IUI

Demo Tape: Coping With Infertility

While we, at The Band, work tirelessly to bring you expert resource pages, sometimes the best advice is from someone who has been where you're standing. What follows is a mixture between a resource page and a post.

I introduce to you, The Band, a Demo Tape.

Take what you need and leave the rest.

I am one of the lucky ones. I am infertile, but after six failed Artificial Inseminations (AI), from two different doctors, and three surgeries to remove endometriosis and uterine polyps, I finally got pregnant with twins via In Vitro Fertilisation (IVF).

For the most part, I am on the other side of infertility, but there are times when I still get mad at my body for not cooperating. It took three years and almost twenty-thousand dollars to become pregnant. It doesn’t seem fair that most people get to become pregnant for free.  

There are a few things I want to pass along to those who are still trying to conceive but haven’t achieved pregnancy yet: 

(1) Expect to get rude/hurtful comments from people who find out you are going through Assisted Reproductive Treatment (ART).

You'll likely hear that you are being selfish for not adopting, or that it's not natural to get pregnant with a doctor’s help.

My comeback to the first point was always, “Well, I see you have biological children so why didn’t you adopt instead of getting pregnant? Isn’t that equally selfish?” 

This will generally shut them up, or at least get them to leave you alone. If they don’t have children, shrug it off. They don't know what it is like to want your own child.

And while adoption is right for many people, it isn't right for everyone. In my case, I was traumatized by my adopted sister and knew I wouldn't be a good adoptive parent.

People don’t know all the facts about your particular situation, and while it would be nice for them to mind their own business, they won’t. Ignore them if you can and focus on your goal of getting pregnant. 

As far as ART not being natural, if medical technology exists that can help with achieving pregnancy, it would be stupid not to use it. It is no different than any other medical condition for which a treatment exists.

For those people who will tell you that ART “takes God out of the process,” ummm, how so? If you believe in a God, then whether or not the ART is successful is a pretty good indication that God is involved in the process. If you don’t believe in a God, then you can discard this argument as not relevant and keep moving forward.

(2) If you are not seeing results from your doctor, change doctors. 

I know this is not a fun proposition, having to jump through all the hoops again, but if you are not getting results with your current clinic, you might want to consider a different clinic. I recommend checking out the Centers for Disease Control and Prevention's Annual ART Success Rates Reports to see where your provider stands (the CDC mandates that clinics performing ART annually provide data for all procedures performed).

(3) You already know this, it will hurt to see those around you get pregnant easily.

Baby showers will be torture. Pregnancy announcements will be like drive by shootings. You will probably cry every time you pee on one of those evil pee sticks and it comes up negative. The fertility medicines will make things worse. Expect to be more of a basket case than usual. Cry and then move on to the next part of your plan.

(4) Have a plan.

Call your insurance company ahead of time to see what they will cover. Look at your clinic's statistics for pregnancy success via AI (less expensive) and success rates for IVF (more expensive) and tell the doctor which way you want to go. 

When I was trying to get pregnant, protocol dictated three rounds of AI before progressing to IVF, but in some cases, it might be more advantageous to go directly to IVF if that is an option for you.

See if your clinic has a program where you pre-pay for three proceedures, and if you don't achieve pregnancy, a portion of your money is refunded. There are usually restrictions on these programs (age, medical history, etc.) but if you qualify, it can save you money. Approach getting pregnant as methodically as you can. 

(5) Expect to lose all sense of modesty. 

You will not care who sees your nether regions after a few rounds on the ART merry go round. You will feel like your body is not your own and that you are at the mercy of the doctors and lab technicians. It may feel like you are buying a car rather than trying to conceive a baby. That it is a normal feeling. Remember, how you get pregnant is not as important as that you get pregnant. 

(6) You will be annoyed by people who think that IVF is guaranteed to work.

People will refer to your embryos as being “implanted” into your uterus, when in reality, they are just transferred to your uterus. Implantation is not guaranteed.

It may take more than one attempt at IVF to get pregnant. This is also true for AI. Don’t get discouraged if you do not get pregnant on the first try. Put your head down and just keep plugging through the crap, the sadness, and the feelings of anger you have towards your body, until you come out the other side. And know that you will come out the other side. 

You will get through this. You will be a different person when all is said and done, but that is okay.

Don’t be afraid to tell people what you are going through. Although there will be those who are insensitive, you will be surprised at how many people suffer, or have suffered, with infertility. It is a very common condition. You are not alone. A lot of us have gone through it, are going through it, or have a relative who is going through it. Do not feel ashamed that you need help getting pregnant. Be gentle with yourself and know that you are one of many.

I wish you all success.

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Planting The Seeds

It's estimated that between 5-10% of the female population is affected in some way by Polycystic Ovarian Syndrome.

This is her infertility story.

I'm a lesbian. Ordinarily that isn't super-important, but I'm at the point that I want kids, so it becomes very important.

Once people find out that I'm gay and want kids, I get asked, "So you're planning to adopt, right?" There seems to be a socially-held expectation that being gay means you must adopt. Once, someone told me that adopting was "my social responsibility."

However, my response is always, no, I want to carry my child. I want to experience pregnancy, with all its ups and downs. I want to feel my child grow. It's my experience, and no one should try and take that away.

While I was never big into kids, I've dreamed about being pregnant since I was a teenager. I always vaguely knew it was something I had to do at some point.

Then, about two years ago, suddenly a switch flipped and it was all I could think about. I started reading about it, talking about it, doing everything I could to get near it.

And one day, my partner and I decided to start trying.

My partner and I have tried to get pregnant for a year and a half. We tried to get her pregnant because her cycle was regular. Since I cycled irregularly, and we didn't know what it would take to get me regular enough to become pregnant, it seemed the easy choice. We started tracking her cycle, found a donor, went through a contractual process that took months, and finally started trying.

Every month we'd try, watch her symptoms, get excited, take the test... and it would be negative. Twice we got hopeful. But eighteen months and two miscarriages later, we're back at square one.

During those eighteen months, I ran through every emotion imaginable. The worst of which was the jealousy; jealousy that I wasn't able to carry our child. I consoled myself by saying I'd carry number two. However, by the end, we both felt defeated, deflated, and devastated. I also felt a fierce determination; a determination that I wanted this so badly, I'd do anything I needed to do.

After 18 months of failure to get pregnant, I decided to see an endocrinologist. I've always had a really irregular cycle, so I knew something was wrong. However, it took me a long time to be ready to face the possibilities of what that might mean.

After meeting with the endocrinologist, I was diagnosed with Polycystic Ovarian Syndrome, or PCOS. PCOS has major fertility implications - PCOS means that I don't ovulate. No ovulation = no baby. 

I've started a treatment regime including medication and weight loss, that so far has been unsuccessful in booting my system - no easy task. Next month I start an ovulation drug that will allow me to ovulate regularly.

All of a sudden, this got very, very real. My coping strategy involves researching the hell out of my options. I've been sensitive to my options for a while, because, by now, we're up $2,000 in to plane tickets, doctor visits, and everything associated with a bootleg-approach to getting pregnant.

We tried working directly with our donor. We had him tested for fertility. We got ourselves prepped. It costs a lot of money. Starting our adventure with the endo and getting my cycle regulated meant we had to consider some options.

My options are to start fertility drugs.

Once I do this, I can try either a home insemination, or an Interuterine Insemination, or IUI. This whole TTC thing gets complicated, overwhelming and expensive really quickly. My understanding is that IUI, in which a tube is placed in my uterus to flush sperm in to the area as I ovulate, is my best option.

Of course I know how baby-making works, but damn.

I hate that it has to be so clinical. I hate that there is always someone else in my bedroom. I hate that this can't just be mine. I hate that I can't be surprise. I hate that we will pay an $800 price tag for an 18% chance of success. It's just not fair.

Despite all of this, I'm optimistic. Still looking forward to the future. I know it will happen, and I can't wait until it does.

As long as there is that tiny pinprick of light, I'll keep the sputtering flame of hope alive.

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My Infertility Story

We started trying to have a baby in October 2003. By July 2004, my doctor was concerned and sent us for testing at a reproductive endocrinologist (RE). The appointment was on our wedding anniversary.

"You will never have a child naturally."

"There is a 99.99999% chance that you will never conceive a child on your own."

Happy anniversary! Needless to say, the celebratory dinner later that night was less than enthusiastic.

The RE recommended IVF with ICSI as the only option. Typical IVF, when they put the egg and the sperm in the dish together and leave it up to chance, wouldn't work. Instead, they would take the egg from me, actually insert J's sperm into it, and then put everything back in me and hope for the best. All this cost enough to pay for the doctor to buy a new car. Insurance was covering squat. But they would cover my depression medication.

J waffled on whether or not he wanted to do it. He wanted children; he just didn't want a litter of children.

Then there was the problem of affording the IVF. Of course they had financing programs, but was that the way we wanted to bring in another life? Under a pile of bills? It was a mess. So when we started undergoing all the testing, we knew we had to tell our families. His parents were supportive; my mother sucked (typical) and my dad was MIA (also, typical at the time but now, thankfully, things are very much different).

At 23, I was basically told I had three choices: spend a load of money, adopt, or live child-free.

J, after an unsuccessful surgery on his part, wanted to choose child-free. I wanted nothing more than to be a mommy to a child - any child. But I couldn’t force him to give me his sperm and $20,000.

For four years, I watched painfully as the people around me got pregnant and had babies. I avoided family functions at times because it was just too, too painful. I wanted a baby.

I tried to convince myself that I didn’t want one. It didn’t work.

In November 2007, I had surgery for endometriosis, a horrible, painful, bullshit disease that makes your uterine lining grow outside your uterus. Fun stuff.

In January 2008, we moved to Knoxville, Tennessee to spread our wings. My job had a need for my special gifts: organization and a killer sense of humor. You couldn't do my job without one.

In May, I found out I was pregnant. We didn’t tell anyone because we were terrified. A week later, we miscarried.

The good that came of it was that J decided he wanted a baby. So my new doctor recommended a new RE. She thought that maybe we could get pregnant with Intrauterine Insemination (IUI), which was a fraction of the cost of the IVF with ICSI. Incredibly, we had enough money in savings to do it the next cycle.

The first month, even on Clomid, my ovaries did not produce enough viable eggs to do the insemination. She recommended that we wait until the following month to try when I had enough eggs to really give it a go. “But have sex,” she said.

The next month was November 2008. We did the cycle, the shots in December, and the insemination in a very cold room two weeks before Christmas. Three days before Christmas, we found out the cycle failed.

I couldn’t do anything but cry.

The doctor recommended having surgery to clear the endometriosis again. I'd only been at the Knoxville location for a year and didn't want to take the time off. So we put it on the back burner: I started working out, teaching belly dancing. J started running.

In late March, I had the worst stomach flu ever. It was awful. I puked all the time - I couldn’t even brush my teeth.

A friend asked if I was pregnant. I scoffed at her: “Are you crazy? Do you have any idea what you're suggesting?” On April 4, 2009, I took the first of twenty pregnancy tests. All of them were positive. I cried. And cried. And cried.

I called my doctor and demanded progesterone supplements and an immediate ultrasound - both of which I got. My Monster was in a perfect position in her little sack in my womb. I just needed to keep her there. My husband immediately put the kibosh on the belly dancing for fear I would shake the little pea loose. Sex was put on hold for the same reason.

I was S.I.C.K. The whole freakin' nine months. But I was carrying a baby.

The first time I felt the baby move, I cried. It was like a fluttering across my whole stomach. And then it got stronger and stronger.

I had two baby showers - one in Alabama and one in Knoxville. I had great family and friends. I bought the stroller/car seat and the crib. Most everything else was bought for us.

I was expecting a whopper of a baby girl.

October came and J's grandfather died. I couldn't travel to the funeral for a man who had been like a interim father to me which hurt. I tried to talk my doctor into it but since I was swelling and having contractions, she said no. I still miss Grandpa every day. I wish so badly that he was able to meet the Monster because he would have LOVED her.

In December, things got more and more intense. I went into labor December 7, around 11:30 but contractions wasn't strong or close together - just enough to keep me up that night.

J drove me to the doctor's office the next day because we were pretty sure they were going to keep me. Nope. They sent me to the hospital who promptly sent me home. I know I sounded like a crazy person when I called the doctor's office in terrible pain. They scheduled me for an induction the next morning.

That night, I went back to the hospital; they admitted me and gave me some blessed medication that allowed me to relax and sleep. I sent J home to sleep in the bed before all the action started. He would come back at 5:30 the next morning because they were starting the Pitocin at 6AM.

At 2:30, I woke up and called the nurse. When she walked in, I apologized because, in my sleep, I had peed all over the bed.

My water had broken. I was having back labor. It was BAD.

I didn't get the epidural until 5AM. I think I proposed to that man. I know I paid a fortune for it, even with insurance. Worth every penny.

J showed up on time, I told him what had happened and his eyes got really big. His family arrived from Alabama around 7.

At about 9, I remember telling J that I needed to push. He said, "You are not doing any of that until the doctor gets here and they say it is okay." So I sent him to find the nurse.

She said it was, indeed, time to push.

I pushed for 45 minutes and heard the cry: she was out. My Monster was out. J grabbed my head, kissed me and yelled "You did it!"

That is one of my most favorite memories.

7 lbs, 9 oz 19.5 inches long

Perfect in every single way.

My baby was born. After all my struggles, all my sorrows, my baby was born. I have a baby girl.

She's almost two now - so rotten that you can just smell her. She's prissy and sassy and all the things that little girls should be.

She's a Mommy's girl. I love her - I am so thankful for her; so thankful that I am her Mommy, so thankful that I have my daughter and my J.

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Chances Are

i woke up mid-dream a couple mornings ago. i was having a conversation with a friend who was upset that she got her period and wasn’t pregnant that month. that part is a little hazy, and i definitely don’t recall anything before then. i was in a really deep sleep.

but somehow as i was being pulled out of my slumber by the alarm, i heard myself say loud and clear, "But you can try again next month."

and she can. who knows if she is even trying for a second child - that’s not really the part that gave me pause. certainly in real life i would have been more sympathetic and offered some encouragement! in my dream, though, i spoke only the patent truth – she could try...every month if she wanted to. and not just her! no, so many others are spending money and time, taking this or putting something on or in or pulling that out to avoid what so many of us long for - just a chance.

my husband and i have been married for almost three years, trying for more than four to conceive. my husband and i have had three chances at pregnancy.

three.

i am not counting IUI, as i knew my very constitution negates the process. if eggs were able to get where they needed to be, we would have been successful by then. they were not chances - i did not wait two weeks in hope and excitement until it was time to pee on a stick. i submitted to my reality because that’s the way this game is played: okay, Mr. RE, here ya go, take your best shot. Clomid? sure, you know what? I'LL TAKE DOUBLE. nice try.

three. chances.

but i have so much hope besides. i read recently about the early months being the hardest. those early months were when we thought it really could work! this is the month! but it never did, and it never was.

i think those early disappointments are akin to a failed assisted cycle every month. you were not only mourning another lost month, wondering how many more you would suffer, but you were so confused with feelings of hope - maybe next month - and fear - it might not work next month, either. your body didn't work and you didn't know why. you felt betrayed by something, but not entirely sure what - possibly everything you had ever thought was certain. this murky, scary place leads to an unknown sorrow, the depths of which almost no one understands. thank god above for those who do.

but you know what? i am ever grateful for the chances T and i have created for ourselves. that’s how it works, you know, on this side of the great divide. we make our chances happen, so they are even more precious in the end.

to gain perspective, i was driving through the portion of my city that i would never want to live in yesterday, looking around. as always, i was feeling lucky for my life and my health. i wound up, as per usual, worrying for those inside the too-small houses on dirty streets. i wondered if any of them were sick, needed medicine or care. wondered about the girl who goes to work her minimum wage/no benefits job every day and tries, with her husband, every month. will she ever get her chance? or will she live forever with the post script "she could never have children, you know" following her name?

maybe if she just had a chance?

so it is my goal to start being more positive about my chances. some still remain, and even if they don’t produce the results i so long for, i will remember those who went without and i will choose to be grateful.

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Empty Uterus Syndrome

When I started blogging, it was about infertility. My first blog was a place for me to vent and to commiserate with others going through the same hell.

If you have never gone though infertility, there is just no way to understand. Sympathize, yes, but truly understand? No.

It took over every part of my life. I was depressed, frustrated, ANGRY, and heart-sick. I was literally making myself ill, and the only relief I got was through connecting with others who understood what I was going through.

My husband was on hemodialysis for renal failure until about a year ago when he got his (second) kidney transplant. This left him with a sperm count of about zilch, and while we were doing fairly well financially at that time, (I miss those days! Damn economy!!) there was no way we could afford IVF. We tried Clomid and then intrauterine insemination with donor sperm, but nothing worked. We tried to adopt a three-year-old boy with kidney cancer, but when my family found out he was bi-racial, they ruined that route for us as well.

By some miracle, we were connected with an infertility clinic that offered to do an IVF cycle for us at 60% off due to my husband's kidney issues. We barely eeked out four embryos. Three were implanted, and we became pregnant with triplets. One died. We had twins. They were premature. One has special needs. Four months later, we found out we were pregnant on our own (what the f*ck!?) and we had Nolan.

When I got pregnant with the triplets, I briefly changed my blog name to "Crowded Uterus Syndrome." But then we lost our triplet. And I changed it back. And I will never change it again.

Why?

Because what I have is more like Empty Uterus Syndrome.  It is something I will always have. No matter how many kids I do or do not have. Whether I give birth or adopt.

What is Empty Uterus Syndrome?

It is infertility and how it changes the way you look at the world. It changes your faith. It changes how you parent. It changes how you LIVE. It becomes you, and it never, ever goes away.

Empty Uterus Syndrome is lying in bed all night, crying when you should be sleeping, because you're afraid that your parents are going to die someday.

And your husband is going to die someday.

And you have no brothers or sisters or cousins.

And you know that unless you have children you will be utterly and completely alone in the world one day when you are old and sick and scared and need someone more than you ever have in your life.

It is a sickness.

And it will always be in me.

It is who I am. And I'm not ashamed of that.

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