by Band Back Together | Aug 1, 2016 | Bacterial Infectious Diseases, Happiness, Hope, Lyme Disease |
This is her struggle with Lyme Disease and a happy update!
I’ve been on some version of antibiotics since late last fall, first killing Bartonella and then working with a combo of drugs to attack the Lyme bacteria.
A year ago, I had no idea why I was sick. Each month brought with it an unknown set of new symptoms. I would cycle through the month with a flare up every 35-ish days. I often predicted when I would get sick again because the cycles were so regular. No one wants a diagnosis like this, but at that point, I just wanted to know what the hell was wrong with me!
I have had several people question whether I was legitimately sick and then a few more question the Lyme diagnosis since it is far from fool-proof. But a year later, I have to say, I feel SO much better and am so thankful for the doctors who risk their licenses to treat this disease. I may not be 100%, and I certainly still have some neurologic deficits, but compared to a year ago, I am so much healthier.
The shooting electric shock pain is gone.
Where I used to be tired from doing nothing, I now am only tired from doing. I may still get more easily fatigued than I used to, but at least I can be somewhat productive. (And this week has been a record for energy I think since before I got pregnant TWO AND A HALF YEARS AGO!)
My joints feel much better and are only stiff momentarily in the morning.
The all-over body pain is gone.
I still get dizzy, but it’s becoming more and more related to over-stimulation and florescent lights, as opposed to just being dizzy because I’m awake.
I still forget how to spell words sometimes and can find myself lost in a conversation. My eyes still get tired. And the Bell’s Palsy isn’t fully resolved.
But I am better, and that’s a reason to be optimistic that I will make a full recovery!
by Band Back Together | Aug 1, 2016 | Uncategorized |
Howdy The Band!
Hope everything is nifty on your end. Here? Things are quiet ’round these here parts and while I’d like to HOPE that the silence is due to the fact that our writers are all doing amazingly; sitting on a white sandy beach, watching the tide roll in, day after blissful day, not a care in the world. Just listening to that tide crashing into the shore.
But I fear I am incorrect – see, when *I* get quiet? It means that there is something very VERY serious going on; something SO serious that I’m totally unable to process it without being quiet and still.
It’s been quite awhile since we’ve done a State of the Band address, so I figured it was time for us to check in with YOU, The Band. How are things? I am so laughably far off base with my white sandy beach fantasy?
There’s no time like the present to let it all out. I know I’m about to – I’ve got about a gazillion ninety posts percolating in my brain, just WAITING to be let out. And yeah, sure I have a therapist I see on a weekly basis, but personally, I prefer a blank box urging me to use my words. BY FAR (for me), there is no better therapy than using my words to write something, then taking a long, aimless country road drive.
So I urge you to use your words and tell us how you’re doing. Your trials and tribulations. Things that make you feel defeated and things that make you feel ebullient.
See, I’ve been running this show for nearly 6 (SIX!!) years, and I’ve the luxury of reading your stories for as long. I’ve the perspective to see that what once was, at best, slippery pile of uncertainty to the elegant library of stories that I’d known it would.
But there are still ever-increasing scads of people – survivors looking for themselves in your words, for people like you to find a connection with. Looking to see themselves in your words. This system only works if you can share a bit of yourself, let us in, and help us see what your world looks like.
I know I’ve seen many requests for stories written by Adult Children of Narcissistic Parents (ACONs), baby loss, miscarriage, and a TON for mental illness.
I’m going to provide you some writing prompts, but please, don’t limit yourselves by these topics:
What makes you feel defeated?
What demons are rattling your closet?
What demons have you beaten?
What have you survived?
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What are some topics that you’d like explored in greater detail, The Band? What type of posts would help YOU through the hard times?
If’n you DON’T feel comfortable asking for a particular topic in the comments, don’t hesitate to email me: becky.harks@gmail.com
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This August, we are officially bringing back the I Am Me Project that was started back in 2011.
The premise is simple: define yourself. Can be easy as simple declarative sentences or as challenging as eye opening revelations. This is an ongoing project here at The Band and we’ve found this can be an incredibly healing premise. I do hope you’ll join us.
What makes you, well, YOU?
How are we alike?
How are we different?
How are you unique?
I’m personally challenging myself to rewrite my own – my initial submission is here.
Pretty much everything in my life has changed, so I’ll be interested (and slightly scared) to complete my I Am Me Project post.
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Do you have free time? No, seriously. OKAY so maybe “free time” is a quote-unquote.
Rather than ask that, I’m asking for those of you who can eke out a few hours a day/week to help keep The Band running. Off the top of my (very addled) head, I know that we need…
A photo editor
Someone(s) to run our Pinterest account
Someone(s) to run our G+ page
People to help brainstorm new ideas for The Band
— among a great many others.
Please, OH PLEASE, let me know if’n you can make some time to help us out!
That would be SO freaking Full of the Awesome. Even the littlest bit of time would be SUPER rad!
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Don’t know if you know this, The Band, but we also have social media accounts! (I will warn you that some of them, naturally, have been quietly moldering away) I’d be more enthusiastic but even my brand of paper towel has its’ own Twitter feed.
Band Back Together Twitter
Band Back Together Facebook
Band Back Together Tumblr
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To all of our lurkers out there, we’d LOVE to meet you! Stop by and leave us a comment just saying “howdy!” and, if you’re brave (which ALL of you are), we’d love a post or three from you!
Time to step out of the shadows. No more hiding in the darkness. C’mon out – the light you see around you? It’s a healing one.
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I do apologize for my prolonged absence and I promise to STOP going radio silent when shit gets real.
Wishing white sandy beaches for us all,
Love always,
Becky Sherrick Harks