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Dose of Happy: I Fought The Man ‘O’ War and The Man ‘O’ War Won

One of the weirder phobias I have–aside of my fear of tomatoes touching my food–is that I’m terrified of fish. I don’t mean that if I see an aquarium, I’m going to break out into a cold sweat and start crying, no, even I’m not THAT insane.

But since I can remember, my parents have been taking us to tropical places–I know, poor baby, right?–and along with tropical places = snorkeling.

When I was 4 or 5, my parents bravely took us to Mexico and in a stunning fit of idiocy on their part, they left my brother and I to swim alone while they leisurely relaxed in a cliff-type thing above us. Out of sight, out of mind, I think, was the idea. Having three kids of my own, I understand the urge. But I’m still unsure what the fuck they were thinking to leave a 14 year old in charge of a 4 year old in the ocean.

Because my brother promptly ditched me to go and strut his lack of muscles in front of a couple of bikini clad babes.

I could swim, though, so I just waded into the water.

What happened next has been replayed over and over in my mind for the next 24 years.

The fish, accustomed to friendly humans who might feed them delicious treaties, swarmed me. Since I wasn’t underwater myself, I couldn’t see their beautiful swirling colorful fins. Instead, I saw a bunch of black THINGS just swarm me.

I screamed so loudly that pretty much everyone at the beach–including my lazy parents– came running. Maybe they thought I’d been half eaten by a Jaws-like shark, or perhaps I caught sight of a fat hairy dude in a Speedo. Who knows.

All that I do know is that for years after this, I had to force myself to go into the ocean, shaking and terrified, every time we went on vacation. The fear would subside the moment I was under the crystal blue water, but up until that point, I’d be silently shaking in my swimsuit.

Our last family vacation happened in 2000. My brother–recovering from a nasty divorce and full-on taking every bad feeling out on me–was 30, I was 20. My parents made the grave error of leaving us alone to share a room where we fought like it was 1999.

This is likely WHY this was our last vacation as a family.

One of the days that we were there in Cozumel, we went to some renowned beach to get some snorkeling done and generally laze about the beach. By this age, I can assure you, I wasn’t upset that my parents didn’t watch me swim. In fact, I welcomed the opportunity to get the fuck away from everyone else and have some relative solitude in the waves.

I’m a decent swimmer, so once I got past the rocks and coral at the mouth of the beach–where, of course, in my normal good gracefulness, I fell and cut the shit out of my foot–I got pretty far away from the lip of the beach where I could get in and out of the water. This beach wasn’t really full of sand, you see. It was more the coral and other stuff that will cut a bitch (like me) up.

But I relished the soft whooshing of the ocean in my ears as I snorkeled about, following a family of yellow and blue fish around and trying to forget the hysterics of the morning. My brother had called me a worthless piece of shit for the 437th time that hour and I crumpled into a pile of tears outside of our villa. The 5,000 feral cats who’d been following me about swarmed me as I cried. It was strangely comforting.

It was wonderful to feel so free. There’s something so comforting about the soft lull of the waves, the ability to be a voyeur into another world, and after my initial fear, I am always reluctant to get out of the water.

Out of nowhere, as I was admiring a particularly delightful looking puffer fish, my body caught fire. I was electrified, my body searing in pain and I began to hyperventilate.

I popped my head above water to see if I’d run into some electrified fence (I was in pain and terrified. I know how dumb that sounds now), nothing. I forced my face down under the water to see what I’d obviously run into. If it were a school of jelly fish, then I’d do well to make sure to swim AWAY from it rather than into the swarm. Still, I could see nothing.

I swam choppily back toward shore, hyperventilating and panicking, now noticing just how fucking far away I was from the beach. I looked down at my arms and legs and saw with horror that I was now a mess of criss-crossed red welts, from my legs to my arms and my chest.

Finally, after what had to be at least two hours (read: 3 minutes), I grabbed hold of a ladder and hoisted myself shakily up to the beach. I sat at the edge of the cliff-type, surveying the damage and trying to catch my breath, crying heavily. I was breathing so shallowly that I was starting to white out, and using the last bit of my common senseI crawled back away from the edge, lest I fall to my watery death below. This time, I really could have used a chaperone.

I passed out for I don’t know how long, and when I woke up, the welts had turned to bleeding blisters and I had uncontrollable goose bumps without being cold and a good case of the shakes. I was now officially fucked up.

Eventually, my mother found me and helped me back to a towel and gave me a medicinal Pina Colada. The rest of the vacation–including the following day which was a snorkeling boat cruise sort of thing–was uneventful by comparison. If that horse bucks you and all that good boo-yang, right?

—————

What’s attacked YOU, Internet whom I love beyond compare?

Post originally published on Mommy Wants Vodka

Sound Check 4/3/19

What is UP The Band?

It’s Aunt Becky here rocking the suburbs like Ratt tried (and failed) to do. Even with two “t’s?”

March was a weird month for me – it felt that it both flew by and was extra long, although we all did survive the Ides of March, though, tragically Caesar did not. Presumably, if you’re reading this, you did, indeed survive. Congrats!

On Sunday, we had an excellent amount of posts come in for trans visibility day, so if you haven’t seen them, I suggest you do.

This month, we’re mixing things up like Grand Master Flash, so please take a gander:

You can post any post about anything – as always – but we’re looking for all kinds of stories and writers and non-writers. In fact, we’ll happily take any and all posts that have been published before. Don’t worry if you’re not a writer because we have an excellent editing team (shout out to Rosalie)!

I’m super excited for all of your posts, especially the “hear’s the deal” ones. See, for these posts, you get to be open, honest, and explicit about something in your life, such as here’s the deal for Autism. Or loving an addict. Or, as you will see tomorrow (TUNE IN), my own post about the state of mental healthcare. Really, vent away!

I know some of the stories you could tell aren’t “as bad” as the others, but that doesn’t change them from being important – we’re not running the pain olympics and as far as we’re concerned, if you have a story, tell it. I know, I know, it’s hard to do, but it’s a task I’m making myself do, because it matters. All of it. It all matters.

You can even do it anonymously, if you so desire.

And as always, we’re expanding. I’m hoping that we do, in fact, get moved to the next theme, which our site guy Matt is taking care of. We know this theme is a bit wonky so we’re mixing it up and making it a bit more user friendly with functioning things like links.

If you don’t already follow us, you can find us out and about on social media (shout out to our amazing team of social media gurus who make everything easier for us!)

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I’m really thrilled to read all of your stories this month, and remember this: you can write anything about any subject at any time. Don’t feel constrained by the calendar.

If you need me, you know where to find me: becky@bandbacktogether.com

Loves you!

Aunt Becky

Dose of Happy: The Simple Life

This post was previously written on Mommy Wants Vodka, October 2012.

Moving is not my forte. Well, I suppose that moving is NO ONE’s forte, but there are people who move for a living, so perhaps they enjoy their job. I can’t be sure. So I’ll go with “most people hate to move.” I, myself, as previously stated, am one of those people.

It’s not the packing or unpacking, it’s the goodbyes that go along with it. While moving from a house to an apartment wasn’t quite the same sort of job that required actual movers or anything, it was still hard to say goodbye to the home I’d been lovingly restoring for years. I never expected to leave.

I’d begun moving on Wednesday, the day after the Comcast debacle began, which, I’m beginning to doubt that Comcast actually DOES care, or they wouldn’t have made me waste approximately two days to get Internet, but that, my wonderful Pranksters, is neither here nor there. (but it does make an excellent story for another day)

Box after box, I loaded into the van, pretending to be an overly large ant simply bringing offerings to the queen. It helps if I can visualize something like that or I get annoyed at the bruises that now make it appear as though I’ve been thoroughly beaten with whips and chains or boxes I happened to fill just this side of too heavy.

the simple life

Three trips later, we were nearly done transporting boxes from this place to my new home, all over but the furniture and a couple of boxes that could only be packed at the last minute because they contained items like, “Marshmallow Fluff” and “Socks.” I mean, a day without socks is a day not worth living, and I wasn’t stupid enough to wear flimsy flippity-flops to move in, although that does seem to be something I’d do. Four inch heals? Sure! Let’s go run a marathon! Imma beat you motherfuckers! Just as soon as I fix this broken heel and nurse the 27 blisters on my feet that I got already. Wait, it’s ONLY been two minutes? That’s bullshit. 

It was weird, seeing my life packed up like that. I’d always thought that I had more stuff, but it turns out that my ritual purging had truly paid off. And not just because I’d already managed to dump my shit at the scary Salvation Army donations center, but because my life in boxes? Turns out, that well before this debacle began, I’d purged just the right amount of stuff to fit into my one-bedroom apartment. In fact, the only things I really needed to make my house a home were pieces of (cheap) furniture.

Target, you are my BFF forever and ever and ever. Except for the Pranksters who are my family.

Saturday, I brought my Muppet girlchild with me to the U-haul place nearby to pick up one of those truck thingies and managed to fill it – in one trip – with the furniture I could call my own, which means that I’ve been able to actually sit somewhere that is not the floor while I sort through my crap.

Slowly, I’ve been unpacking, cleaning, and placing things in my very own space. Because the space is smaller than the home I once lived in, it’s been much easier to utilize the space that I do have, paring down the items I own further, and making my apartment my home.

While leaving my home of 7 years has been incredibly hard, for the first time in my life, everything seems simpler.

the simple life

More put together.

the simple life

Calmer. More organized.

And happier.

the simple life

Much, much happier.

Soundcheck 3/12/19

Hey The Band!

I’d been meaning to push this out on Fat Tuesday (could there BE an awesomer day?), but life did what it always does – ignores my plans. So here I am, Aunt Becky, rocking you from the suburbs like the Quiet Riot.

It being March already, I hope that you are having a good one, and hey – what’s the weather like where you are? Here, in the suburbs of Chicago, it’s vacillating from low twenties (heat wave!) to subzero temps. Perfect way to breed microbes, as evidenced by 1/2 the schools around here being empty – looks like the Influenza A virus.  Damn kids are petri dishes (OF LOVE).

One of the things we’re always (always!) looking for on this site is new content. I know some of the stories you could tell aren’t “as bad” as the others, but that doesn’t change them from being important – we’re not running the pain olympics and as far as we’re concerned, if you have a story, tell it. I know, I know, it’s hard to do, but it’s a task I’m making myself do, because it matters. All of it. It all matters.

You can even do it anonymously, if you so desire.

We do understand that it can be tremendously hard to know WHERE to start on any given story, so we’re giving you some writing prompts (aren’t we kind?). Feel free to add more into the comments.

This month, we’re featuring the always-popular Letter To My Younger Self and we’d love to see what you’d tell your younger self. Bring ’em on!

We’re also doing a Spotlight Series on brain issues – damage, accidents, congenital issues, genetic diseases, viruses that cause encephalitis, stroke, you name it. I’ve had several requests for additional posts on the site regarding coping with or living with brain problems.

And as always, we’re expanding. I know that a lot of the links and other things around here aren’t working like they should, but our very own Matt is helping us to fix this site and start it with a new look and ease of use. So please bear with us!

If you don’t already follow us, you can find us out and about on social media!

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We are always looking for new volunteers, so if you’re interested, please fill this out and we’ll holler at you!

Love and Pyrotechnics,

Becky

Owner Of A Broken Heart (Much Better Than Owner Of A Lonely Heart)

Hey, The Band, February is Heart Awareness Month, and we’d love your story.

This is my story:

Most of us, well, we don’t think much about their hearts.

 

From A&P, I saw precisely what one looks like and was a little disappointed. It also looks like a fatty Nerf football, which doesn’t do it and it’s job any justice.

I know I’ve waxed poetic about the brain, but honestly, without the heart? There would be no brain function.

For years, I simply ignored my heart because, well, it worked. It’s a luxury most of us don’t have to think about until we’re old and wrinkly. Yeah, yeah, yeah, I mean, I KNEW about a heart healthy diet, I knew things could happen to your heart, or you could be born with a congenital heart defect(s).

The first time I became aware of my heart, I was leaving Las Vegas (no, not that depressing movie).

I’d had a migraine, because, obviously, VEGAS, so I popped a few triptans into my mouth and let them melt in my mouth. I’d not had luck with them so far, but my ancient, forgetful neurologist insisted I try them. He even gave me a garbage bag full of samples, (which is neither here nor there, excepting that if I’d tried to travel with them, I’d have been accused of drug trafficking), and urged me to try these breakthrough migraine meds.

Which leads me to the plane going home from Vegas.

I’m not a nervous flyer, I wasn’t stressed, I wasn’t upset in any way. In fact, I felt great.

Until my heart started a rockin’ beat in my chest. Started, I looked down at my chest to note that while it felt like my heart was going to burst through my chest wall and flop down onto the tray table like a fish out of water.

It took a second because it made things a bit blurry, but I realized that I was experiencing palpitations. So much for my garbage bag of triptan samples. When I returned to the neurologist, I mentioned my rockin’ heart beat and he asked, “are you sure?” (which he may have been directing at old skull on his desk) and I assured him that yes, I was entirely sure. He explained that it was a rare side effect of the triptans, but did look a little oddly at me – I think he’d finally realized who I was.

BAM!

No more triptans. It wasn’t a huge deal – they’d not really helped and shit, heart palpitations aren’t a joking matter.

At this point, I should have seen a cardiologist.

Clearly, I did not.

Years later (late 2016), I was admitted to the cardiac ICU after going to the ER to figure out why I’d been falling so often – now sober, it made no sense. They ran my labs and my calcium was super high and admitted me. They twerked around my medications a bit, and kept me hooked up to that medusa-like EKG for what seemed like days because it probably was days. Outcome? Prolonged QT-syndrome – chemically (medication) induced.

I should have seen a cardiologist, but I was homeless and broke and let myself forget about it. I mean, it stayed there in my mind, gnawing in the back of my brain stem, but still, did nothing.

I’m a terrible patient.

Last year, I’d found out that my mother had hypertrophic cardiomyopathy – which has a genetic basis, and ignored it again.

Finally, after that stupid little voice in my head reminding me in increasingly annoying levels that hey, this heart-thing is important, Dumbo, I made my appointment at a random cardiac clinic near my house. I went in, Nathan in tow, expecting nothing whatsoever to be wrong. I mean, really – I had enough issues already – and my heart, with those few minor exceptions, was fine.

I got to wear a cardiac event monitor for 30 days (somehow it ended up at 35 days) and every single day/night I wore it, I was in hell. The electrodes itched, they popped off randomly, and they’d choke me now and again. Which is why I took it off around day 20, waiting for the call from the company that monitors for abnormal rhythms, and since I never got the call, I never put it back on.

Bad, BAD patient.

During my scheduled ECG, I laid on the table, knowing they wouldn’t find anything. I mean, I didn’t even think I HAD a heart, much less problems with one.

A couple days later, I was told to get a cardiac MRI. At this point, I kinda rolled my eyes because CLEARLY THERE WAS NOTHING WRONG.

Several days after THAT was complete, I was called back into the cardiologists office, again, Nathan in tow.

“It’s fine,” I told Nathan on the 3 minute drive to the cardio practice. “It’s not a big deal.” Nathan didn’t look like it was so fine, but for all I knew, he could just have been constipated.

My cardiologist steps into the room and starts with, “we’re going to send you downtown to Northwestern,” and that I needed “a genetic screening” because I “had hypertrophic cardiomyopathy.”

“Okay,” I replied, thinking I was making a major gift for geneticists everywhere. I mean, certainly my genes were awesomely superior.

In the meantime, Dave and I worked out a plan to take the kids to a pediatric cardiologist.

The genetic test took approximately 100 years to complete (I never said that I was good at math) and had a failure rate of 60%. Thankfully, my body, like me is highly competitive, and it did work because I was soon to learn that I’d had had five genetic markers for the test (four of which the meaning was indeterminate). The one that I DID have showed that my HCM was genetic, and I had a 50% chance of passing it on to any of my babies.

My heart sank at that – you hate to leave a genetic legacy like THAT to anyone. I’d prepared myself for it, however, because what else beyond teeth-gnashing and pearl-clutching can you do?

At their appointment with the pediatric cardiologist, their hearts were examined and they showed no signs or any development of hypertrophic cardiomyopathy. They’re young, of course, and the yearly monitoring will help the doctor to catch any new developments in their hearts. Plus, I mean, it’s a combination of gene mutations that cause HCM, and with all genes considered, there may be protective genes that reduce the chance of the development of HCM, even if they are carriers.

At least, that’s what I tell myself.

My geneticist was kind enough to send out kits for the kids, and in approximately 150 years, they will find out if they’re carriers.

Until then, we’ll wait and see.

Great.

If life has taught me nothing over the last five years, it’s this: life is precious, precious gold, and if you squander it away, whelp, you’re probably not going to get a second chance. If you want to make your mark in this world, get the fuck out there and do it. Don’t be scared, fear can be a good thing – it means you still have something to live for.

“We’re all going to die. We don’t get much say over how or when, but we do get to decide how we’re gonna live. So, do it. Decide. Is this the life you want to live? Is this the person you want to love? Is this the best you can be? Can you be stronger? Kinder? More compassionate?

Decide. Breathe in.

Breathe out and decide.

Nothing is permanent you’ll never know when your time is up.

So do it. Live.”

-Richard Webber