by Band Back Together | Jan 30, 2014 | Abortion, Abortion Recovery, Grief, Guilt, Help For Grief And Grieving, Loss, Sadness |
Upstate NY, 1985
It was taken away from them. Just a seed in the beginning of a life forming to join this world.
A decision. She wasn’t ready. Not in her plan. So scared, but no decision to be made. Outcome predetermined; not to start.
So it was ended. They had no chance to join this world. Left to find another possibility for the loss was cold.
She could feel it in her hips. The pain was held and rocked till the grief was pushed thru every pore, wrung out thru sorrow ’till she could find space to breathe.
Why is it so hard to let go?
Why does it wash over you decades in time?
They were crying out to be saved, but she didn’t hear.
I am so sorry to have left you. I wasn’t ready to carry a soul.
It’s all consuming, the process of growing up. Staying aware, but willing to feel the piercing joys and sorrows that you have endured. Sometimes it’s so cold. She was just learning how to share gold, black & pink.
Still stiff, I’ll learn how to relax and breathe.
–and I forgive you sweet melissa. U meant no harm
–then why does it hurt?
– because you feel deeply and that is a gift to cherish
I feel the blood in my body and hear the ink on the page. I’m still learning to see clearly and that is okay.
–thank you. I am grateful
– U are always welcome. my gifts are bountiful
–amen
– I forgive you. come fly with me
by Band Back Together | Sep 4, 2013 | Baby Loss, Coping With Baby Loss, Grief, Loss, Prematurity, Preterm Labor |
The scars of losing a baby will never fully heal. We are shattered; unable to see the light.
This is her story:
At 5AM on Tuesday, the 5th of February 2013, I gave birth to a baby boy at home.
He was 20 weeks and 1 day gestational age; he weighed a mere 340 grams.
I held my son his whole life; eight minutes.
I named my son Cash Alan. I watched Cash as he struggled for life; an image that will forever haunt me. I shared his pain and fear but there was nothing I could do to save him.
An autopsy revealed that premature labour was caused by an infection of the uterus and placenta due to low levels of amniotic fluid.
Cash was cremated on Thursday, February the 14th 2013 and I keep his ashes with me in a small urn. I’ve found some comfort in knowing that all Cash knew of Life was my love for him, but I will never truly come to terms with his death.
Prior to my loss, I spent over 15 years building a career as a publicist. I loved my field and felt passionate about everything I was doing.
After I lost Cash, everything changed.
I became someone else, none of the little stuff mattered anymore. I see Life so differently now. I was at a crossroads, lost in my grief. A few weeks after losing Cash, I packed up and moved 1600 kilometers away for a fresh start. I knew I no longer wanted to be a publicist, the late nights and time away from home kept me away from my other children.
The idea came to me after spending hours upon hours searching the internet for keepsakes to honour Cash. On 24 June 2013 (the date Cash was due to be born) I started a business called “In Loving Memory Of Cash;” a dedication to the brief Life of my son. The official launch is planned for 5th February 2014; his first angelversary. I want to to ensure that bereaved parents have an opportunity to save the moment without thinking about the details.
I now handcraft unique memorial keepsakes full-time. 100% of the profits are used to support pregnancy and infant loss projects and campaigns. Creating memorial gifts is a great outlet for my own grief. A piece of my heart and soul goes into every one of my creations: IT’S NOT JUST ABOUT MAKING SOMETHING SPECIAL, IT’S ABOUT HONOURING A PRECIOUS LIFE, HOWEVER BRIEF.
The most comforting words when grieving are “You Are Not Alone.” I’m able connect with bereaved parents on a level that not everyone else can. I understand the intense pain and sorrow, the never-ending heartbreak, and the heavy burden of empty arms.
The response so far has been tremendous. I have already helped many families honour their angels. I have my bad days where I want to stay in bed and grieve all day long. I live for my other children, but now I have a purpose, a reason to go on:
I want to make sure no angel gets forgotten.
by Band Back Together | Jul 18, 2013 | Brain Injury, Coma, Grief, Guilt, Help For Grief And Grieving, Loss |
During even the smallest moments of our lives, our actions can mean the world to someone. We must hold onto those moments with all we are.
This is their story:
We met at the bus stop.
You see, I was working at this place seven years back, and buses had to be taken to reach the institution. I was in a teaching position. She was in the library.
We got talking after bumping into each other at the same bus stop, boarding the same bus and getting off at the same stop every day. We were the same age. She was single and I was not.
Her long hair she carefully tied into a bun and soon we became friendly enough for me to intentionally pull out her hair clip and release her hair. She’d beg me to not do it; tying the hair down was “such a chore,” she’d exclaim, but I could not escape the fun of it. We’d chat all the way to the office, then chat all the way back.
She held her umbrella for me when it rained, because I hated carrying umbrellas, and she wouldn’t let me get wet. She claim to be fake-upset with me, but she always shared her umbrella.
Six months later, I changed jobs and I no longer needed the bus. I no longer stood at the stop. I no longer waited for her to arrive, so that we could catch up on our day (she lived at a hostel nearby the bus stop).
I recall catching a glimpse of her standing at the bus stop, while I was driving towards my new office one morning. The bus stop was no longer on my usual route, but I had broken my daily route that day. She was looking away; our eyes did not meet.
Then one evening, we bumped into each other while running errands. You wouldn’t have noticed that we hadn’t been seeing each other. While we were both in a hurry, the warmth was overwhelming. She invited me over to her hostel, but I refused, saying that I’d come by some other day.
Then I did not run into her at all. She crossed my mind now and again – I considered visiting her “one of these days,” but it just never happened.
Several months later, I ran into another ex-colleague. We’d worked in the same department, and rode the same bus to and from work. When the conversation veered toward M, the librarian, my ex-colleague suddenly got very serious.
M had been diagnosed with some brain-related issue and was undergoing treatment. I never got full details of what had happened. She’d had to get her long hair chopped off. She was still working but as she became progressively weaker, she eventually stopped working.
One day, she collapsed after a brain hemorrhage and never came out of it.
“Do you know what M used to say about you?” my ex-colleague asked.
“What?”
“Now I have neither the hair, nor the hair-puller.”
I cannot believe that M thought of me in her last few months.
What I put aside with procrastination and life-getting-in-my-way, has now become unachievable.
She is no longer there.
I instinctively look out for her every time I pass the bus stop.
She will never be found there. But that should not stop me for silently acknowledging the place that brought two strangers together.
Right?
by Band Back Together | Aug 7, 2011 | Encephalocele, Loss, NICU, Post-Traumatic Stress Disorder, Special Needs Parenting |
The old me died in a puddle of tears on that birthing table as my daughter whisked freshly from my body was clucked over and examined and I was left paralyzed from the waist down, terrified and alone. I was reborn into a new world where all of my old besties and allies were no longer at my side, where my husband was gone, and where I was, again, alone against the world.
It’s not terribly different, I guess, than how any of us are born, it’s just that I was older and not covered with that cheese-type stuff.
For eighteen months now, I’ve carefully picked up the pieces of who I was and assembled them back into a reasonable representation of who I am now. I discarded some of the old things I didn’t need: the anger that I’d held onto for so long and the inability to let people in and the long-held opinion that I didn’t need anyone but myself to be happy.
In turn, I’ve added some new things that I think I always needed but didn’t realize: I’m warmer, more loving and I’m more thankful of the people who do love me. There are bad things woven in there too, of course. You don’t go through major traumas without picking up some hell along the way. The darkness inside me is heavy sometimes. Sometimes I wonder if it’s more than I can bear.
These shards of who I am now are stitched loosely together with the belief that the universe is far less random than I’d ever thought it was and that someday, it’ll all make more sense. I have to cling to that idea or I’d probably go crazy and shave my head and tattoo a fire-breathing scorpion on it.
Monday morning, I will go back to the place that I was born. Not Highland Park Hospital, where on July 15, 1980, Rebecca Elizabeth Sherrick* was born, but Central DuPage Hospital, where Becky Sherrick Harks was born on January 28, 2009. I haven’t been back since her surgery.
My daughter, her curls like a halo, finally masking the scar that bisects the back of her whole head, she and I will march into the place where we were both born on the very same day. My ghosts will roam the halls with us, carefully holding my hand, gently guiding me find the place where I will take my daughter to help her find her words.
I hope that when I pass the ghost of myself in the hall I can send her a hug; some silent signal of strength from her future self. Because while the darkness is omnipresent, the sadness an integral part, there is always hope. I hope that she knows that the future is large and that while she will rage, trying to fit in to a world that no longer exists, in all that she has lost, there will be more that she gains.
Monday, the flowers in the vase on the desk will be fresh, and the volunteers will smile, confused by the visibly upset young woman and her beautiful daughter. They will not understand that sometimes, it just hurts.
They will not understand that sometimes, you slay the dragon.
Sometimes the dragon slays you.
Today, Amelia, Princess of the Bells**, she and I will slay my dragon.
————–
*what? You didn’t think my parents named me Aunt Becky, did you?
**Amelia, by my amazing friend the Star Crossed Writer
An army stands ten thousand strong and tall,
But you shall rise above the bloody fray
And rain down vengeance ‘pon your enemies
And all those who would stand against your will.
When darkness threatens fainter hearts than yours
And calls ring out for champions to arise,
The cries will cease and everyone will see
Amelia, the Princess of the Bells.
by Band Back Together | Jul 7, 2011 | Encephalocele, Neural Tube Defects, NICU |
Human anatomy I’ve always found to be a strikingly tender science. Certainly, I always loved the dryness of the carbon chains and the satisfaction of growing new strains of bacterium, but seeing the human body and lovingly learning all of the nooks and crannies, all of the ways that we are all the same underneath, that is beautiful.
I always heard civilians shudder when I explained that I would be assisting with a dissection.
“Gross,” they would say. “I could NEVER do something like that.”
When pressed, I never got anything more specific from them, which meant that they’d never seen one, because the body, well, the human body is not gross. It is resplendent. It is powerful. It is amazing. It is beautiful.
All of the organ systems functioning in synchronicity so that we are able to walk upright, speak, form words, paint beautiful pictures, draw pictures with our written words, love, that is not gross. And that is what human anatomy is.
Inside, we are even more beautiful than out.
Rarely, however, do the names of the parts of the body reflect their beauty.
Often, they’re named after the anatomist who found them because scientists are about as self-serving and obnoxious as bloggers. The Islets of Langerhans, for example may bring to mind a nice set of islands found off the coast of Ireland, but no, they’re actually endocrine-producing cells of the pancreas.
Even the very word pancreas sounds more like something you’d find dead on the side of the road than something that creates the body’s most important enzymes. But to say it aloud sounds dirty, something you spit out of your mouth, a splat, an inelegant word for a very elegant organ.
The day we learned of the heart, I came across the words chordae tendineae, and I stopped for a moment. Latin words make me happy, which is probably, in part, why I am so attracted to virology. Continuing on, I read what this curious, elegant term meant.
The chordae tendineae are tendinous cords of dense tissue that connect the two atrioventricular valves to their papillary muscles in the hearts ventricles.
The chordae tendineae are the heart strings.
That is probably the most graceful and magnificent term I have ever heard and the best representation of why I find human anatomy so intoxicatingly lovely. We human beings actually have heart strings.
Whenever I am sad, I think of those tiny strings, which I have seen with my own eyes, felt with my fingers, those strings of fibrous tissue, so very much stronger than they look, and I am comforted by the heart strings that bind us all.
On my refrigerator hangs a report from Early Intervention with my daughter’s name on it. It is a discharge sheet that states that she is at or above level for everything. It was true then. It is not true any longer. I cannot bear to take it down, because to take it down would be to admit defeat.
I will not be defeated. My daughter will not be defeated.
When I called my case worker, she sounded so sad to hear from me, her voice mirroring my own. It didn’t help that the only sheet of paper I could find with the phone number on it was her discharge from the program with a jaunty, “We enjoyed working with your family!” on it.
The therapist will come several days after my 30th birthday to evaluate my daughter and to tell me what I already know: Amelia is not normal. Amelia needs help. I am a trained diagnostician and I am aware of both of these facts. I am also aware that I am doing the right things. But knowing this doesn’t make this any easier for me.
There is something between her brilliantly big brain and delicate rosebud mouth that isn’t connecting properly. It fills me with a well of sorrow I didn’t even know I had, because I want so badly to hear her words. All of her words. Stories of Saturn and the planetarium and pleas for cookies and candy and the injustice of it all when I deny her.
I want to know my daughter.
Instead, I kiss her head and rub her scar and apologize to her for what is certain to be a hard road ahead. My heart strings clench painfully and I cry bitter tears, wishing I could make it easy for her, knowing I can’t.
We’re gearing up for a battle over here and we’ll win.
Eventually. Some way, somehow, we’ll win.
by Band Back Together | Jun 24, 2011 | Anger, Breast Cancer, Cancer and Neoplasia, Caregiver, Coping With Cancer, Family, Feelings, Guilt, Stress, Trauma, Trust |
i’ve written before about my love hate relationship with the pump… well, mostly about the hate portion. its rhythmic sucking makes me sing little songs to its always irritating tempo. then they mix around with the gymboree songs already stuck in my head. then i realize how badly i really do need the prozac and ativan.
i don’t know for sure how long it’s going to last. i’m trying to be realistic about the prospect of having cancer, undergoing chemo and pumping for (hopefully only) six months. it’s kind of like starting out nursing. i tried to limit my expectations of myself. i said i’d aim for six months and then see if i could go for a year. that seemed ridiculously long to me at the time, much like pumping for six months does now. but a year came and went and well, here we are.
my husband, nugget daddy, stayed down at my parents’ last night so nugget and i have been left to fend for ourselves for the majority of the past two days, save for a playdate and lasagna drop off yesterday afternoon.
i didn’t get to pump at all yesterday. i can’t pump in front of my daughter, nugget. that would be like asking your pregnant best friend to take you to happy hour. i meant to pump last night once she went to sleep, but i fell asleep, too. my boobs had been angry ever since.
nugget likes to have her naps with me, but this limits my options for the duration of naptime as to what i can actually accomplish with twenty pounds of sleeping toddler strapped to my chest, lovely though as she feels snuggled against me. her grandmamie puts her to sleep in the stroller and i bribed her into it with chocolate chips this afternoon so i could pump, finally, and subsequently blog about it. lucky you!
i was so angry the first few times i pumped after starting chemo. it was like rubbing salt in the wounds. i couldn’t nurse nugget and i had to stand uncomfortably in the bathroom watching my milk fill up plastic bottles instead of a happy baby. and then as i would dump the ounces of heartache down the sink a new wound would appear like a gaping mouth to catch my salty tears and sting my aching soul. what a waste.
you won’t find much if you google “cancer” and “breastfeeding” except for articles about nursing after breast cancer. “chemo” and “breastfeeding” yields the same contraindication tagline over and over, and “cancer” and “breastmilk” mostly just points you to article after article about this guy who drank breastmilk to fight his prostate cancer. those, mostly sensational and local news, articles mention milk banks selling milk to cancer patients when they have excess available to sell. it costs $3 an ounce.
i’ve had plenty of time to think about that guy and those $3 ounces while making up songs to the pump’s rhythm and calculating how much i’d just poured down the drain. warning! here comes the crunchy freaky part. squee! maybe you want to stop reading, uptight next door neighbor guy or old school grandpa, maybe there’s a golf game you’d rather be watching. okay, so seriously, why the fuck would i want to keep dumping my milk down the drain when other cancer patients are paying good money to get their hands on it? i don’t know what exactly it might do for me, but it sure won’t be doing anything at the bottom of the sink that’s for sure. so i sucked it up and sucked it down.
it was sort of gross at first, though why exactly i’m not sure. i think it was the temperature. i can’t think of any beverage i regularly consume at body temperature. but now i’m used to it and pleased by thought that i might actually be doing something to help save my own life.
so, now i have a new goal. i want to pump twice a day for the whole six months, or however long it might be. i know i might get sick. i know i might have to stop if i do. but if i approach it the way i did breastfeeding, then maybe i can make it through. maybe if i tell all of you about my plan then i’ll be hell-bent on reaching my goal. maybe some mother out there trolling the interwebs for a glimmer of hope will find my blog now, instead of all the other useless crap i found.
