I breastfed my first child.
She was a freaking PRO at latching-on, and breastfeeding went spectacularly. My recently-born third child is also proving himself to be quite the little breastfeeding champ.
My second child? Not so much. He couldn’t get the hang of latching-on, even with special equipment, like those freaky-looking nipple shields.
The stress of a cross-country move three weeks postpartum, moving in with my in-laws, while my husband had to take an extended job out-of-state (he spent eight months of my son’s first year out-of-state), my supply of breastmilk steadily decreased.
I was too poor to get a decent breast pump, we were in-between insurance, which meant that pumping my breasts to keep up my breastmilk supply was not an option.
Multiple lactation consultants and doctors were seen – no success. We began supplementing with formula, and while he was still a colicky baby, he was a little happier as he wasn’t hungry anymore.
I went on medication for postpartum depression when he was a few months old. That officially brought an end to our breastfeeding journey.
I spent several years working through the guilt of being unable to continue with breastfeeding. Every asthma attack he had triggered that guilt. When he developed speech problems, I worried that his difficulty speaking was related to not bonding through breastfeeding, or because I had postpartum depression.
Fast-forward to this past February as my four-year old climbed into the dentist’s chair for his first visit to the dentist.
As she was checking out his teeth, the dentist asked, “Does he ever have trouble with his speech?”
Startled, I told her, “Not really. He had a little trouble when he first started, but his last evaluation was good.”
While poking around in his mouth, she said, “Oh, good. I see that he’s tongue-tied. Not badly, borderline even, but sometimes makes it hard for children to learn to speak.”
I’m not sure what I said in return, because my mind was already jumping – tongue-tied. His frenulum is short, so his tongue’s movement is restricted. Not only can it cause problems with speech, having a tongue-tie can make breastfeeding and latching on difficult.
And just like that, all those feelings of guilt rushed back.
All the doctors and consultants that we had seen – not one had caught that he’d been tongue-tied. A tongue-tie is easily correctable. The frenulum is clipped and, tada, the tongue can move more freely.
Logically, I know that we’d still have had other hurdles to overcome to be able to breastfeed successfully. I know that he’s a smart, (more-or-less) healthy little boy, who wasn’t negatively impacted by being formula fed. I know that, given all the circumstances, formula was the best option for ALL of us. I know that he and I are no less bonded together because his food came from a silicone nipple instead of my own.
But my heart is less practical.
My heart is grieving that loss; that missed opportunity all over again.
Dear The Band,
I’m a writer.
Or, at least, I think I am. I’d like to think I am. I think about writing all the time – and then I feel ashamed of myself because I’m not writing. I think about all of the stories I could be writing – I think about the text file of ideas for stories on my desktop – and then I get even more depressed because I’m not writing.
The great thing is that I’m not writing because I’m depressed, because I have no job, no friends, am 1300 miles away from all support systems, except for my wonderful soon-to-be husband, and I spend most of my time in an insecure, anxious ball feeling sorry for myself.
I keep seeing over and over again, on Twitter and Facebook and in my MFA program’s forum this statement: “if you don’t write, you aren’t a writer, and you probably shouldn’t be. To be a writer, you must need to write like it’s the way you breathe.” So I second-guess myself; I don’t need that. But I need to need that, if that makes sense.
I miss the feeling of excitement when I pull off a great scene. I miss feeling proud of myself. I miss the sense of self-esteem writing gives me. But right now, depression is taking it away.
I just don’t know how to push through the overwhelming apathy and shame to start writing again. And everyone who tells me to shit or get off the pot – to just start writing regardless – really isn’t helping.
How do I get through this loneliness, depression, anxiety and shame to find myself again?
I’m not sure where I went, but it’d be damn good to see myself again.
Addiction isn’t called a “family disease for nothing.” The family of an addict is just as impacted as the addict.
This is her story of her son’s addiction:
My child has become an addict and loving my child is so very hard. I’m trying to find my happy as I learn to deal with his addiction.
With the overload of health issues around here, along with the common “life stuff,” I willing took a break from blogging after the last attacks from trolls; trolls who don’t know me, know my child, know my life, know my situation, and will never understand my life or my thoughts.
Simply: I took a break because I wasn’t strong enough to keep going,
Three blogs, five days a week, and two little freelance writing gigs with groups have kept me tied to the computer dumping out my odd take on humor, insane fake advice, and occasional a vaguely serious topic.
I have decided I will blog, on my blog, and the trolls will not, cannot affect me. I won’t allow them that kind of power. I have to share this story because as odd or awful as this is, I can’t believe I am the only one. Sometimes knowing you aren’t alone, can make a differences on your life. It has in mine, just like everyone here at Band Back Together.
For a very long time, I’ve been living while waiting for the other shoe to drop.
I call it “living” but it’s really just existing – when I can muster the strength to push the elephant in the room to the back of my mind. This horrible addiction elephant.
When someone you love makes horrible choices, you can still love your addict child, but you also have to make a choice.
I made a choice to love from a distance to allow my son to deal with his addiction on his own time, allow that person to do things at their will, wherever they wanted. The condition was: I would not support that person, their activities: not emotionally and definitely not financially.
Of course that comes with a higher emotional consequence for me, a soul-eating, mind -boggling, hellish existence.
Torn when the phone doesn’t ring, furious, emotional and torn when it does. There is no happy medium, is no mutual enjoyment of life, it’s an inner ring of hell.
It’s odd how the human brain learns to process things so completely outrageous and unacceptable if they happen often enough; the brain removes logic to save the heart. The brain knows if one more little piece of your soul falls to the floor, you will collapse and finally fade away.
Things you never thought you would hear, become expected. Disappointing? Of course. Scary? Almost every time. Seeing red with anger? A lot. Somehow, your brain allows it to roll off your back.
loving an addict through childhood
You can’t fix it, they don’t want to be fixed, no matter how absolutely insane and ludicrous the situation, you cannot even point out how completely illogical the situation is, let alone offer solutions. There are no less than 683 million reasons why all of your ideas are completely stupid.
You learn to focus not on the highs, not on the lows. Not the shocking news, but only that you love that person, your child, who just happens to be an addict.
You make sure whatever you say won’t offend them, or their choices, and you make double damn sure that person knows you love them, you love them deeply, you love them completely, you love them from your soul. You only want the best for them, safety for them, happiness for them.
No one really has the same idea of happiness.
it took me 43 years to realize that.
Another thing I learned; just because it’s ” the normal” thing that you’d make anyone happy, happy and delighted and feeling so very lucky, this can seem like hell on earth to someone with a different view of happy. So who am I to attempt to enforce my idea of happy on anyone? Simply put, I am no one. I am just a daughter, a wife, a sister, a mother, an aunt, a friend.
I am made up as we all our of a unique cocktail of our childhoods, our teachers, our elders, our peers, our life lessons, co-workers, books, and shows we have seen. Just a big casserole of a human being trying to find “happy.” When I achieved happiness, I assumed it would be wonderful – more than wonderful – and that, in turn, everyone else would become happy. Everyone would see how hard work brings happy, how loving each other brings happy, how walking the right road, singing your own song, and smiling would obviously land you in happiness.
The past 20 years, I tried to shove people into the happy, I tried to drag them into happy, push them in, beg them, lure them, slide shows of happy, handmade cards, long emails, song dedications, heartfelt talks, and hugs, I could surely get them to happy. Once they saw happy they would be like “duh, I want to be happy too!”
I was wrong. Their happy was so different than mine so I had to accept they would not be in my happy with me. Maybe they were taking a different route, and we would meet up in happy. Maybe their happy just meant more pit stops, more experiences, different criteria, maybe their happy would never lead to the same location as my happy. What would I do then?
Their happy could be really good for them, so I will work on being happy for their happy.
Little crumbles of your heart fall as your soul tears.
In the end, all you really want is for them to be happy. You convince yourself not to be such as narrow-minded selfish ass who demands everyone’s happiness is within arms reach of your happiness. We are not all alike, and really, what a boring world that would be. Keep telling yourself this as it makes it easier to persevere your heart, mind, and soul. Besides, it makes them happy that you are happy for them. It’s painful but it’s good for them and for the relationship.
Then the call comes, not a happy call, you are prepared because you know when this disease spins ’round, the calls come in two forms and two forms ONLY.
One, the world’s best thing ever, everything is amazing.
The next call, though, could be in a week, a month, a day, or within several minutes: the world is ending, there is no hope, no escape.
There’s not a single thing you can do to make it better. So you listen, try not to cry, remembering to love, offer helpful solutions, offer to make arrangements or calls, you do what you can and it’s usually for nothing. It rarely works out, but you make damn sure they know you love them so much you can’t breathe when they are in pain.
The calls – you see the caller ID – it’s a number from a state that you don’t know, but you do know who is on the other end, you never know the type of call, only that it’s from them. So you take deep breaths and you prepare to play the roulette game of their life. What kind of call you don’t know it could be: an incredibly fantastic words of grandeur.
Or the call can be gut-wrenching, heart-breaking, sobbing pleads for help.
You don’t know, because you can’t know but you answer the phone, inviting the roller-coaster of love and hate and pain into your world.
Nothing surprises you now.
As long as it’s their voice on the end, you are prepared, it’s now become common practice. You’ve learned to stop yelling, begging, urging, and learned to focus on conveying the fact that you love the elephant in the room. You love that elephant when your eyes open in the morning, and you love that elephant when your eyes close at night without a tear running down your cheek. No one sees your tear.
No one hears your cry and no one, no one can understand why this elephant is needed, deeply; it has become comforting.
Then as you are in your happiness on the back porch wind blowing you sit with your little family, cross-legged looking at your happiness, eating sandwiches, and thinking how peaceful and loving and happy this all is.
The phone rings.
The addiction elephant steps outside. The elephant sits on your chest, takes your breath, and overcomes you. Sometimes, when that elephant climbs on you, you compartmentalize you soul, your heart, and your brain as this allows you to attempt to speak in a sane, calm, tone, using gentle words, no blame, just love.
The call ends, with mutual ” I love you’s.”
The happiness is now gone for them as they are faced with a very adult matter that can’t be “worked away.”
You don’t remember the rest of the happy picnic: the people in your happiness with you do not have a conversation about it. You move on as you do after every call. But something is wrong, very wrong
You can’t tell anyone, yet you don’t cry, you don’t sob, you don’t fall to the floor, you don’t steal a car to get to the addiction elephant to hold them.
What the hell is wrong with you?
Why are you not responding like a human?
Why aren’t you happy?
Why not like the other times?
You haven’t fallen apart yet.
Will you fall apart?
Will this change your ability to move forward?
You know that If this person comes back, can you handle it?
Can the happy team handle it? What will be the cost of the elephant if you don’t?
What will be the cost of happy if you do?
I know the other shoe will fall, there’s just no way to process this without dying more inside. Maybe I am out of a soul, a heart, tears. Maybe I have been cried out, maybe I am stronger, maybe my brain is trying to protect me.
I am very much not okay, mostly because I feel okay, there is no way that I should feel okay.
Why am I not shaking, sitting in the shower crying, sobbing, and vomiting like I’ve done before when the bad news comes?
I’m not even shaking.
The shoe will drop, I hope, I beg, I have the strength, the knowledge, the wisdom, the compassion, the ability, the life experience, balanced with the brain, the heart and soul, to take this journey.
To share my happy, to understand their happy, to make a new happy, but most of all, to convey they undying, deepest of love and the basic humanity to make their happy the best happy I can.
Please find your happy; let everyone you know how much you love them – no matter what what makes them happy.
This year, it’s time to take action. It’s time to pull our heads out of our asses and make some plans for world domination.
How? By telling the world, not what we want to do this year, but what we will.
So what will YOU do this year?
2019 is the year I will find my personal equilibrium, the balance between what I must do, what I should do, and what I want to do. It’s not going to be easy, as I have a horrific time saying no and even more horrific sense of guilt when I do.
Unless it’s before my first cup of coffee in the morning; then saying no is easy and guilt-free because I’m too tired to care.
When the balance between the must, should, and want is out of whack, I’m a mess. I’m impatient, resentful, irritable, downright cranky, and miserable to be around. Everything becomes a chore, even the things I like to do.
That’s not fair to me, to my kids, to my husband, to any poor soul who has the misfortune of being near me when I’m struggling to keep up with everything.
That’s why I’m making 2019 the year when I will stop that crazy self-imposed struggle and focus my energy on the musts and the wants. The should-get-dones will just have to wait.
I will focus my presence and talents where they can do the greatest good – my family, my volunteer work (that means YOU, Band!), my creative projects, my home, my friends.
I will say yes to projects that are a challenge and will help me to grow personally and professionally.
I will cut the clutter in all areas of my life: physically, mentally, virtually.
I will re-examine my limits, and respect those limits, for when I don’t, it’s not good for anyone.
I will say no to school activities and fundraisers that are nothing but money and time-suckers that prevent me from doing other, better things with my kids.
I will say no to family functions that cause my stress level to sky-rocket, even when I’m told over and over again, “it’s for the kids”. It won’t be for the kids when mommy is stroking out on the floor because the in-laws are being asshats again.
I will ask for help when I need it and not wait for someone to see that I’m struggling.
I will find my balance, dammit. I will.
I watched my father have several affairs when I was growing up. By “watched,” I mean he took me to his girlfriend’s house(s), where I sat in the front room reading a book while they disappeared into the back room for an extended period of time.
The conversation in the car when we left was always the same: “Don’t tell your mom we were at XXX’s house – she wouldn’t understand.”
“Okay, Daddy.” The day I said my first “okay” was the day I became keeper of my father’s secrets.
There were times I heard my parents fighting. My mom, yelling out accusations that he had been spending time with this woman or that woman, while my father denied it.
I stayed quiet.
I didn’t fully understand at six or even ten-years old what exactly was going on, or why my mom didn’t want us to be friends with all those nice women. But in my teen years, it started to make more sense.
When I was seventeen, I cheated on my boyfriend. I pushed down thoughts that what I was doing was the same thing my father had done years before.
It became easier a few months later, when I cheated with a second person. And even easier when I went back to the first guy I had cheated with and did it again. I kept it a secret.
My boyfriend started talking about marriage after I turned 18 – we went ring shopping. That night, I left his house and spent the night with someone else, where I also talked about marriage (we had been seeing each other for six months, and he had no idea about my boyfriend-turned-fiancée).
I poured out my heart in my journal.
Was I just like my dad? Would I ever be able to have a relationship that I wouldn’t screw up? I had to make a choice…right?
Instead of a choice, I added a fourth guy to the mix.
It continued this way for a while, but by the next year I had broken up with all of them. I wanted a fresh start. I got it when I met the man who is now my husband. We were married after a few months of dating, and this year will be our 10th anniversary.
In our ten years, I have been faithful. (The fact that my husband is a very jealous guy helps – he would figure out something was going on quickly.) I don’t often think of my cheating past or worry that I will turn out like my father anymore, but today I read a book that brought it all crashing back – a book about a cheating mom and her daughter who grew up to cheat, just like Mom.
I felt the tightening in my chest. And unbidden thoughts of a guy who works at Starbucks that flirted with me two weeks ago come to mind. I have avoided that Starbucks like the plague since he gave me a free scone and told me I have beautiful eyes.
I don’t want to cheat on my husband.
But I realized today, I am still terrified that, one day, I will be unfaithful.
So it’s time to Band Back Together for Birth Defects. Share your stories. Tell your tales. We need to learn about the birth defects that have touched YOUR life. Let’s rock out and tell the world OUR stories.
It’s YOUR turn, The Band!
I’ve only ever lurked on Band Back Together, but I feel like I need to tell my daughter’s story.
The pregnancy itself wasn’t bad, just the normal aches, pains, and nausea. Emotionally it was tough – there were issues found on ultrasounds, and my OB felt like it was her duty to present the worst-case scenario every time we spoke. I decided that if we had to hear bad news, I wanted it to be delivered by someone who was kind and knowledgeable, so we switched doctors and started seeing a maternal-fetal specialist.
He told us that there would be kidney issues when she was born, but nothing emergent.
My water broke 2 days before my due date. I had a good, quick labor. There was meconium in the amniotic fluid, but otherwise it went well. She was born just after midnight, with good Apgar scores. She weighed nearly nine pounds! She had no interest in nursing, and she wasn’t into the formula they offered, either. A couple hours later, her blood sugar started to drop, and then she stopped breathing. They took her to the NICU for observation. I’d worked a full day before my water broke, so by the time they took her away I had been awake for almost 24 hours. I was sent to a recovery room without my baby.
That day and the next are a blur. This was my first child, and I had no idea what to expect from a normal birth or a brand new baby. I only knew that this was not what I expected. I alternated between recovering in my room and sitting with my daughter in the NICU. She would barely take any food and kept even less down. There were multiple doctors coming in and out and multiple tests being done – blood draws, x-rays, upper and lower GI, etc.
Finally they determined that she had intestinal malrotation. That means her intestines were jumbled and twisted and not anchored in any way. If untreated or undiscovered, it quickly damages the bowels and then leads to death, essentially by starvation. Surgery was set for Friday night, the same time that I was to be released. I had no choice but to hand over my 3-day old baby to be intubated and placed under general anesthesia so that a surgeon could cut open and rearrange her guts.
My husband, my mom, my mother-in-law, and a close friend were with me during the surgery. Around midnight, the surgery was finally complete. They would only allow 2 people in the room with her at a time, so I stayed there while everyone else took turns coming in to see her. I can’t even describe how it felt to see the 3-inch incision across her tiny little belly. She had wires and tubes everywhere, and we were not allowed to hold her. I could tell she was in pain – when on a ventilator, the vocal cords don’t make noise, but I could see her screaming.
My mom and dear friend knew what kind of comfort I needed – they just held me and murmured words of consolation while I tried in vain to keep it together. My mother-in-law was not so in tune with what I needed – she wanted to touch her, and exclaim over her, and it was all just too much for me. I was completely helpless and broken. I had my husband make everyone leave, and then I left, too. I left my silently screaming baby in the care of total strangers, Band. At that moment, I was certain that the nurses could do more for her than I could. Now, when I look back, I am unable to forgive myself for leaving her.
That night turned out to be the beginning of a long journey. She had 2 more surgeries and lots more testing; we found out that she has a genetic anomaly that seemed to be the cause of her birth defects. She was 9 weeks old when we were finally allowed to take her home – just a few days after my first Mother’s Day.
My daughter is now almost 3 years old. She has very low muscle tone and is still quite delayed, and she is a beautiful, happy, easygoing little girl. She wears her battle scars with no complaint, and despite my failings, she loves me completely.
She is my ray of sunshine.