And take heart, this isn’t one of those “She was in so much pain–” (she was) “– and now her suffering’s ended!” kind of stories, (even though the suffering’s ended, but more on my end) or “It was her time,” “God has a plan”, “It was meant to be,” or any of the other ridiculous platitudes that etiquette has taught us to say when someone is in pain.
By the by, all of those last few statements are damaging. They’re not even worthless, they’re Express Delivery Pain, and they wreck a person who is grieving. Better to say nothing when you don’t know what to say. Moving on.
Naomi was an artiste.
She participated in yoga, dance, performance arts, stage combat and renaissance festivals. Naomi practiced with a few religions and philosophies, loved to read and visit museums. She had a very exotic look (she was born in Russia, and her heritage is of Rom descent), and her tattoos were beautiful. I loved how delicate her skin was, and how her hair shone in the sun. She always managed to look glamorous, no matter what she was doing. Her face was the embodiment of Resting Bitch Face.
Only a few years older than me, but she had some mileage on her. As a teen addict and rape survivor, she’d managed to gain herself a steady income, decent living arrangement, clean and sober (apart from cigarettes; cloves, especially, were her vice). She was very ‘jaded’, as one might say (if one doesn’t have more depth than a teacup). Naomi was ever so much more than jaded; she was downright grisly. She was overripe with experience. Her font of knowledge was brackish water from a sewer system. Naomi had truly seen the underbelly of American Life as a runaway, and it stayed with her.
And yet we became friends. Fast friends, actually. I was only just twenty-ish when Naomi steamrolled her way into my world via social media. We talked for hours sometimes, and both of us liked to draw Tarot for the other. It became a regular thing for me to travel out to the East Coast to see her. I was the maid of honor at her wedding, and her ex-husband (they divorced shortly after, but remained friends) still keeps in contact with me. I met several of her friends, two of whom I have also now flown out to see, separately from Naomi, although we would send selfies to her.
The thing to keep in mind, though, is that over the years, Naomi never put away That Habit that some broken youths just can’t kick: the need for drama.
It makes you feel significant. You feel like you’re at the center of a play that’s only interesting if you’re speaking or being pandered to. When there’s drama, you feel important and like your life is far more tragic, amazing, complicated, full of hardship or whatever else is on the agenda for the day. Cultivating drama and seeking it out in what would otherwise be considered (by many, not just me) very normal, everyday encounters– that’s an addiction for some kids that have fucked-up backgrounds.
I should know. I am one.
Naomi was the kind of person that, if I was sound asleep in the spare bedroom, she would come into my space unannounced, and flump onto the mattress beside me and sigh. LOUDLY. I fell for it the first couple of times, but after she complained that an author friend of ours (who’d allowed us to stay at his home while we were visiting the township together) hadn’t made a move on her, even though she promised to fulfill his every wish, I’d had enough. I needed sleep. So I pretended to stay asleep. She bounced a little more, took off her shoes and said, “I just need to sleep in here tonight.” I made a quiet noise and turned over. “But I guess you’re asleep and not up for talking, huh?” Naomi said this at normal volume, full of petulance. With another anguished sigh, she picked up her boots and stomped to the couch.
One of the many things we talked about, as the best of friends, was nutrition and dietary specifications. We liked to experiment with replacing ingredients to either cut carbs, help out with digestions, etc. Herbs and supplements were never far from our mind to reach for, rather than a bottle of Aleve. We’re not hippies (hippies don’t hate the way we do), but we try to listen to our bodies and respond to small cues. We exhaust other avenues before seeking out a doctor.
She’d had a hard time kicking a bout of thrush, and had had no real success with a limited-ingredient diet. One morning, she called and said, “Uh… my skin is orange?” and I knew, immediately, that she was extremely ill. “Go to the hospital,” I breathed out, “and call me once you’re there.”
Naomi had a very rare form of neuroendocrinal cancer. It essentially starts in your brain and blooms into a tumor in a random part of the body. And the cancer was choking her pancreas. The mass was inoperable, but it responded to radiation, and we hoped to direct the radiation to shrink the mass away from this badly-needed organ just enough to allow for a surgeon to cut away the cancer. Instead, it started to shrink right where it was, and after a shunt was implanted to allow her pancreas to work, Naomi’s body threaded a new artery *through* the tumor, and several other veins as well, so the pancreas could still receive blood flow and remain intact and functional. It was almost as if her body wanted to hang onto the mass, regardless of malignancy.
Once the tumor measured at about the size of a tennis ball, they began chemotherapy. I would fly down to be with her during the week at the suites, and we would lounge with the television for hours together. I’d make her curry, she’d help me craft mocktails, it’d be a nice time. But every single time I visited, she and her husband were fighting. Once, in the middle of a dinner with another friend at the beach, she called me to say that they were getting divorced and she needed me to take my things and go to a hotel. But by the time I arrived home, they were quietly ignoring each other and behaved normally with me. Everything was apparently fine. They divorced shortly thereafter.
When it came time for the annual oncology review, the tumor was still present in the same position, but it also wasn’t getting bigger. As most of her organs were functioning perfectly fine in spite of the tumor, she was cleared to move up the coast to Brooklyn. She invited me to her parents’ house in the country, but I declined. I had just become pregnant with my daughter, and I didn’t want to travel. Naomi said she understood, but there was an edge to her voice.
Within a few months, I can tell you what the vast majority of our conversations were about:
-NYC is filthy
-her roommate is awful
-there are no pretty, single goth boys
-cancer is stupid
-practicing Santeria
-hating her bosses
-hating her job
-hating her new roommate
-hating how she has to beg for attention from a guy she’s dating x6
-hating that nobody is nice to her
-hating the new job
-hating the other roommate, but only slightly less than the newer one, and never saying a thing about it to either of them
There was a notable shift in who she was as a person, and how she interacted with me, after I became pregnant. Perhaps it was because I was no longer available and had had her linked with my Emergency Contacts so my phone would always ring if Naomi called me. At some point, I broke my phone and never set up the Always Ring contacts in the new one. This lead to many impatient messages on the morning after, increasing in resentment the longer it took me to respond.
When my darling baby was born, cheerful and healthy, Naomi asked to be called the witchy godmother, and cooed at my wobbly infant. She sent me pastries from her favorite Jewish bakery, and shipped blankets with chewy spots for the baby. One day she told me that she felt much more attached and close to me and my child than she did her own sister and nephew.
Therein lays our friendship, at its core. We admired and adored the other from a distance, and shared intimate details of our love lives and inner feelings. I had been friends with Naomi for so long, when it became more one-sided, I chalked it up to the cancer and let it go. But I realized that it was just who she was as a person. She would always be the victim, the one who has it worse, who hurts more, who feels things so deeply no one could possibly understand what she’s going through. I began to avoid her questions of, “Do you have time to talk?” and only respond later when I could be more attentive, but by then, the moment (and the drama) had passed.
Finally, when my daughter was 4 months old and I was at the peak of my exhaustion and postpartum depression, Naomi’s gall bladder turned septic and she had to have an emergency surgeon to remove it. I knew she’d been at the hospital for about a week, and her boyfriend was making updates as best he could, but if I’d ever felt the energy to start texting or talking to anyone– not just Naomi– I would always stop before the first sentence left my fingertips. I wouldn’t have time for a conversation, or the energy to listen. I was pretty broken, and my gurgly baby was delightful and adorable and easy to handle but… postpartum depression is a monster. Perhaps I was wrong to think our friendship could survive a month without contact. Maybe I should’ve just sent the one or two-sentence text messages, just to let Naomi know that I was thinking about her.
But I didn’t. And for the better part of 6 weeks, neither of us reached out to the other.
And then she messaged me one day out the blue, opening with, “I am upset and I need to tell you what I’m feeling.” So I settled into Best Friend Mode and prepared myself for an hour or two of new/old complaints with minimal commentary on my part. But I was not prepared for what happened next.
“I almost died!!” she raged, “and you couldn’t even pick up the phone! But I’m just expected to remember every stupid detail about your kid!” and that’s about when she lost me. I’d heard about other people saying crazy things when their cancer gets to late-stage terminality, but I had also become (unfortunately) too experienced with people fighting cancer and then dying. And I don’t find this to be true.
My kid had nothing to do with this fight we were about to have. I tried my best to shelve the comment and look for what was underneath: she was in pain, she had no way of expressing it beyond rage and lashing out. I tried to commit to this conversation with everything I had, and I am still grateful that my kid was napping at that precise moment in history.
I listened and took in all of her words. I filtered out some of the hate and attacking phrases, and sent back a heartfelt apology, with a promise to do better in the future and to at least keep Naomi abreast of where I was emotionally. I apologized again, and said that I would understand if she needed to stay mad at me for a while, but I just needed to say the words “I’m sorry” first.
I’m not sure how everyone else on the planet receives apologies, but for me, all I want to hear is:
-acknowledge the pain that was caused, without excuse
-empathize as to how this could have affected you, were the tables turned
-admit fault, apologize sincerely
-have a plan for what to do differently next time (and/or how you intend to make it up)
Pretty sure I’d checked off all those boxes in my reply, but apparently, that’s not how Naomi liked her mea culpas, especially without a genuflection. I had ended my letter with love, but she instantly shot back, “Spare me diplomatic bullshit.”
I bristled, but was more hurt that she thought me insincere.
“I can see you are still very angry,” I responded, “so I’ll leave you be for now.” I was trying to just give her space to be angry without being more hurtful to me, and I thought I had conveyed that it wasn’t in my intention to block her out or turn away from her. I hoped my words had been received with love on some wavelength. That’s not what happened.
“I’ll leave you be for now.”
“what else is new”
That was over a year ago, in May of 2019. A lot has happened in the last 18 months.
Last week, I discovered that Naomi had been found dead in her bedroom by her parents. The cancer had progressed, she had had another emergency surgery, and she succumbed within a month. Her fight was finally over. Our mutual friends were sharing stories and crying over the loss of such a beautiful person, and what must I be feeling, as the very best friend of olde?
Well.. I felt relieved. I felt a tremendous weight fall away from my body.
Ah, yes, yes, I’m a horrible person, I know. Luckily, I also don’t care what anybody else thinks.
Was it surprising? Yes, of course. I hadn’t been in contact with Naomi for over a year.
Was *I* personally surprised? No, not at all.
Part of being the Best Friend meant helping her plan her will, her final wishes for rites and burial, for palliative care and, in case the worst of it came to pass, her plan for suicide. I had promised to assist. More than once, she used the phrase, “I don’t want to live like this anymore,” and I would comfort her as best I could, without asking if she was ready to die. One day, she told me she was ready, because the pain had become too much. I asked her to give me a day to get my affairs in order, and I’d get on the plane to NYC. By the end of the night, she’d messaged to say not to bother coming out, that she was fine.
When I found out Naomi was dead, I felt a deep pain in my heart for the relationship that we had shared. For the actual friendship, the late night talks, snuggling with her dogs, sharing costumes and garb for holidays and vacations. We loved each other, truly. But not everything is made to last forever.
As I scrolled through the memorials and testimonies that people were contributing in her honor, I felt mildly amused, thinking, “I doubt Naomi ever told these people the things she told me.” And it hit me– I’m glad she’s dead.
No more drama.
No more unnecessary calls.
No more seeking out the worst-case scenario and *betting on it*, in every situation.
No more shrieking, no more “Okay, but just five more minutes–” stretching into an hour every time.
No more pity party the size of Houston.
No more of any of it.
As it would have fallen to me, eventually, to untangle and sort through the mess of feelings she’d stirred together and dumped on me in that final conversation, and try to make sense of our friendship going forward, it still wouldn’t have been enough. Naomi always needed grandiose gestures to make her believe that a person was being honest and truthful. And I have never been the person to do that.
It would’ve been my job to fix that mess, because that’s the way it had always been. Helping her to see another’s perspective, and not assuming the worst intention of her lovers. Reminding her to breathe before she speaks, and never say the first thing that comes to mind. These are behaviors that every grown adult must learn to master for themselves, so they can be contributing members of society.
I was 35 years old before I realized that Naomi was completely dependent on me. I had never realized that our friendship had taken that turn, but looking back, it was so obvious.
I’m so very grateful that she is no longer suffering from migraines, nausea, aching all over and weariness. I am happy that Naomi has passed. Her body was terrible to her. But the emotional hellscape in which she lived, every single day, was the real demon, not the cancer. And it was largely her own doing, because she could never back away from being the center of attention. She had to repeat everything she heard or suspected about a person. There was no irritation too small that she couldn’t launch a full-scale critical review, complete with scathing commentary. If nobody had told Naomi that she was pretty at least once a week, she would post a new selfie with a comment: “felt cute might delete later” and then praise every person who complimented her. The reason I know she did this intentionally is because she told me.
I’m glad she is dead. I am relieved that my friend has died. I am happier because she’s dead; a tremendous burden has been lifted from me.
I don’t even know what her family intends to do with Naomi’s remains, but I’m not going to call them and ask, or insist on carrying out her final wishes. That was a promise I made to a friend. The woman who called me names and vilified me at my lowest point is not my friend.
I’m not obligated to fulfill anything on her behalf. I’ll never have to unravel another one of her messes ever again. I’ve said it before, and I’ll say it again: I’m glad she’s dead.
Post Script: if this kind of thing truly makes your insides twist, I am pleased that there are still people out there who have only experienced wholesome relationships that are full of goodwill and reciprocity. But since finding my voice about this and learning to say how I feel without needing to justify it, it has been made clear to me that many, many other people feel this way about now-deceased people from their pasts, and for far worse reasons than the ones I claim against Naomi. So to those people who’ve only experienced equitable relationships, I salute you. For everyone else, go ahead and say it out loud. I give you permission to say “I’m glad they’re dead,” and then reflect on any good times you may have shared, or at least share why it is that you are glad they’re gone. It has given me tremendous closure. Maybe your family or mutual friends don’t or won’t understand, but that’s okay.
You can say it to me, here, or you can write about it on your own, or you can tell it to The Band. We are here for you. But either way, go ahead and say it, see if it helps free you the way it did for me.
I’m beside myself… My 11 year-old daughter recently decided she wants to live with her dad, citing that she’s not happy living with me. Unsurprisingly, this has elicited within me feelings of failure as a mother… I’ve loved her and always provided for her as best I could as a single mother (with a hell of a mother wound myself) since the day I found out I was pregnant with her. I’ve sacrificed, fought back tears from her dagger-like words and given SO MUCH of myself that some days I don’t know who I am anymore.
I’ve been in therapy for a year working on my past traumas, as has she. I have offered myself as a safe space to her and have used every parenting tactic known to the human race… I don’t know what to do. I feel helpless, hopeless and want to crawl in a hole and bury myself. She has told me she wants me all to herself, doesn’t want to share me with her sister or anyone else. She’s also been mean, verbally abusive and morbid as long as I can remember. Her dad can’t believe the behaviors I’ve described to him, as she’s never that way around him.
I feel like giving up, folding my cards and letting them fall as they may. My health, both physically and mentally, has deteriorated tremendously over the last several years and I simply don’t have the energy to keep fighting.
A while back, I was spending some time reading the blogs here on Band Back Together. Usually I travel over to Mommy, Alcoholism, or other topics….this time I fell upon some PTSD posts, and thought I should share my story.
Back in February 2010, I was in a car accident that changed my life. I have a multitude of physical injuries with muscles and nerves and emotional/brain issues. At first the doctors were hopeful that time would resolve these with physical therapies but it’s a really slow process. I’m now under the care of a neurologist, undergoing testing. Post Traumatic Stress Disorder is something I was diagnosed with when I visited a therapist who sat me down and did a simple checklist with me. Imagine, that one Big Black Thing can be determined… with a checklist.
What it’s like in my head is so difficult to describe, because words get mixed up in my brain. It’s been almost impossible to describe because it is unclear to me. I lose words. As I write blog entries, I have volumes of words in my head and cannot seem to get them out; they elude me. I tend to type paragraphs or sentences while chapters are locked in the prison of my mind. It is a very dark place I rarely explore these issues outside of therapy offices anymore. There, at least, they have the right questions, the ones that can open the cell door a bit.
Life hasn’t changed on a day-to-day basis. If I had a new ball of yarn, tightly and neatly rolled, I could easily begin to knit a scarf. If I took that new ball of yarn and allowed a puppy to play with it for an hour, it would still be a ball of yarn with the same length, color, and overall properties, but it would have imperfections. I can still use this yarn to knit a scarf that will keep me warm but the imperfections can be apparent if you look closely. The strength, however, will not be the same.
For example, I have a phone where all my appointments are stored, as are daily tasks such as picking up my kids from school, eating, sending paperwork, and calling friends to help with paperwork. I lose time. For example, last week I had a form to fill out to send away to the car insurance company. It was a very straightforward form but I would have to access other forms in my file folder to access my policy numbers and other information. I sat down to do this with the file folder beside me – everything I do has to be organized and focused. I got up to get a pen and ended up in a different room of the house doing something entirely different with no idea how I got sidetracked. I didn’t even realize until I walked past the table with the file folder on it.
I was immediately angry at this lost time.
I sat down again to complete the task. A while later my heart rate was up, my right leg was bouncing, I was becoming frantic because I just couldn’t understand it. I had rifled through my file folder countless times to find my policy number, which I knew was on many of the pages. Yet I couldn’t find it. I couldn’t remember how many times I’d looked through it. Did I look through it? I think I did. Try again.
My phone beeped to let me know I had to pick up my daughter from school in an hour.
What? I’d lost 2.5 hours! The pressure was too much. A huge breath exploded from inside me. I pushed up from the kitchen table knocking over my chair. I was furious! My head was pounding. I felt a stabbing pain at the base of my as my back spasmed and my hands were tingly.
The black doom was closing in upon me.
Failure again.
I ran to the bathroom, ran the cold water over my inner wrists, breathing in through my nose and out through my mouth, crying silent dry heaving sobs.
Then I was numb.
Breathing normally, I washed my splotchy red face and reapplied my makeup. I went to the kitchen for some Extra Strength Tylenol. It does almost nothing but I don’t take the anti-spasmodic medication for my back because it makes me a zombie. I tried to relax in my numbness and lost time until the alarm rang telling me I had 15 minutes to pick up my daughter.
I had 15 minutes until I had to be Mom, the mom I want to be – the smiling, patient mom. Not the numb, auto-pilot mom. So I put on the happy mask and prepared to give my daughters the memories they deserve, knowing that God provides me the strength. Until I can truly experience it, I will mimic it for them.
Just typing this makes me uneasy; it’s the tip of the iceberg for me. I don’t want to address the iceberg.
I implement controls for my daily activities, remaining hopeful that one day the PTSD will give up this lock on me.
We met when we were twelve. My wife Kimmy was always healthy. She never smoked, only occasionally drank, she exercised and ate all the right foods. She hadn’t seen a doctor in six years, always joking, “I’m waiting for the big one!”
She went in for gall bladder surgery on 10/19/10. I assured her she’d be fine. My wife passed away fifty-five blurry days later on 12/13/2010.
When I realized how sick Kimmy really was, I told her, “Dammit Kimmy, why couldn’t you be a mean, bitchy woman? Then I could be rejoicing right now!” But she couldn’t be mean or bitchy. Not her nature. She was so sweet, so positive, right up until she died in my arms.
I miss her so much. I was a train wreck that she’d lovingly pulled out of the gutter, cleaned up, and helped exercise my demons. She made me what I am today.
And now, in my new, traumatic, bizarro world, I can no longer keep track of time or what day it is. I walk around feeling stoned. I question; I second guess myself. Did I kill Kimmy? I go back and forth, replaying this in my head.
St. Patrick’s Day last year, we lost our ten-year old Lab/Aussie pup, Zona. That dog was part of the family. Our kids adored her as much as she loved them. That dog allowed them to ride her, use her as a pillow; anything the kids wanted. We took her to the vet. She had to be put down. My children were inconsolable. Kim and I looked at each other and she said, “you go, you held Cajun while she passed on. I’ll stay with Zona.” An autopsy revealed wide-spread cancer. My stoic Zona never let on.
Now, looking back I wonder, did Zona’s cancer (in some crazy way) pass to Kimmy? What if I had stayed in that room?
———–
I regret that I was so uptight about money and our financial situation. Kimmy would say, “I’d love to go to the beach.” I’d show her our bills, explaining that, “It’s not a good time.” Kimmy wanted a beach cruiser, and I’d nod, knowing we didn’t have the money. Kimmy wanted to replace the broken stereo in her car, and I explained that we could not afford that either.
Not right now.
When she died, the community helped with bills and groceries and medical expenses. Now we can go to the beach, only Kimmy’s not here to go with us. Dammit, I feel responsible for being so focused on money problems. I should have just taken her to the beach.
————-
While Kimmy was so sick, I did everything I could to help: showers, dressing her, feeding her, doing the cleaning, even giving her a Lovenox injection twice a day; to combat the blood clotting issues caused by the demon cancer. She called me her knight in shining armor. She told me that I was saving her. But I wasn’t, I couldn’t; I wanted to believe I could.
I wonder, did the Lovenox help? Or was I making it worse?
I don’t know.
I do know that Kimmy was an incredible wife, mother and friend; the type of person you wanted to be around. Positive, upbeat, energetic. She was an excellent cook, such a nurturing mother – and I can’t help but think of how sad, how tragic this is for them. Cody 13, Autumn 10 and Antonio, especially Antonio, 7; all motherless.
What the hell happened?
Now, our family is closer than ever, although it’s out of necessity. Our glue, our mentor, the love of my life, the mother of my children, our motivator is gone – ripped from our lives so quickly – but we try to remember her positivity. We comfort each other because we know she believed she was going to Heaven. I tell the kids, “we need to smile and remember the wonderful times.” These little ones have responded so beautifully and remarkably, standing up for each other, and for me. They try to keep our morale up and her memory alive.
In the dark of night when I cannot sleep, I replay the whole nightmare, over and over:
What could I have done differently? I should have seen that she was sick. I should have. I could have…why didn’t I?
And, I cannot shake this feeling. I was not Kimmy’s knight…I did not ride off into the sunset. I did not save the girl.
On January 4th of 2020, I picked up my One Year Chip. How awesome that was. And in a stretch of ego, how proud I was of myself. Yes, I know I didn’t do it alone, but I was still proud of myself for not giving into the craving, especially early on.
So, I picked up my chip and all was so good in my world. February came and I was still on that pink cloud, vowing to never step off of it – hell, my sponsor said I never had to if I didn’t want to, so why would I?
Then came March, and we all know what March brought. For me, it brought a little more unknown than I was ready for. But I have a program and a higher power, and I was going to be okay. My meetings shut down, but we all found Zoom and again I knew it would be okay.
April got a little harder. I was diagnosed with Covid on April 9th. I was lucky and able to manage my symptoms at home. One thing that was becoming more and more evident, though, was that I was starting to miss my fellowship – the Zoom meetings weren’t quite filling the void anymore. Plus, I had been laid off on March 16th, so I was living in an isolation I knew would be NO good for me. But I was still okay. I leaned on my higher power hard, but He’s got broad shoulders. Then came May.
May was gonna be good. We got back to work on the 13th and although it wasn’t as busy as it needed to be, it would pick up. I just knew it would. And although Covid was ripping through the world, I could stay busy with work and feel some normalcy.
Side Note: I live in South Carolina and masks weren’t much of a thing here until quite recently. So we eventually became a “hot spot”, made the national news – the works. And as Bill would say when sharing his story… “And then it got worse.”
My mom had always lived independently. At 77 she was the neighbor who took all her neighbors to doctor appointments, the pharmacy, grocery store; whatever they needed. On May 20th mom was doing what she does – taking a neighbor to a doctor appointment. Except that after dropping off her friend, she disappeared. Just like that. We searched and searched, checked parking lots of nearby doctor offices, hospital parking lots, made all the phone calls, and yielded nothing. We checked her apartment for clues, and that’s where we found that her wallet with all her money, credit cards, and license were still there. As was her cell phone. Mom disappeared and had no money or ID or way to call or be called. That’s when I started to feel a serious WTF feeling.
In the meantime, I had filed a missing person report here with the police department. Besides walking in the rooms of A.A., that was the smartest thing I’ve done. All told my mom was missing a total of 26 hours. She was found at about 1:30 on the 21st, in Virginia. I may have forgotten to mention my mom lives here in SC too. She was pulled over by a police officer for driving with her hazards on. The officer here in SC who filed the missing persons immediately put mom on the NCIC, so her license plate dinged as soon as the officer in Virginia ran it. Maybe that’s procedure, I don’t know, but I’m grateful he did that. Beyond grateful.
**At this point I’d like to point out again that mom had no ID or money. I have no idea where she spent that 26 hours because the trip to Virginia from here is 4, maybe 5 hours. This troubled me for weeks, but she doesn’t remember any of it, so that right there is some Grace of God stuff, and I chose to let that go**
Mom had no idea where she was, how she’d gotten there, or why she’d gone there. She was belligerent with the officer and he brought her to the hospital for evaluation. That hospital was less than helpful. As a matter of fact, for a minute I thought about legal charges against them, but knew I could not afford to pursue litigation against them. So, I let it go. Mom wasn’t hurt by them; she just wasn’t helped.
That Thursday we were ready to head back to South Carolina, but it was too much to drive so we decided to get a room. I had to stay up all night long at that hotel because mom kept trying to leave the room… that was a long night. We came back home the next morning and I will spare too much of that story; let’s just say that immediately upon returning home I brought mom to the hospital here, where she was admitted and stayed for what ended up being a week. There I found out mom had developed a bad UTI which brought on an early onset of dementia. That explained her previously inexplicable trip to Virginia and her subsequent behaviors.
About the 4th day in the hospital, it became obvious that once the UTI had cleared up mom wasn’t much better. That dementia wasn’t just going to go away. What was worse though was because she wasn’t “medically” in need any longer, the hospital wanted her gone. Every day they would tell me she needed to be released. I had no idea what the hell I was supposed to do with her! She certainly couldn’t live alone anymore and if she stayed with me, I’d have to quit my job and probably never sleep again for fear she’d sneak out of my house. None of those were viable option, I was so lost. Suddenly I’m the caregiver with absolutely no clue what my next steps were. Medicare, Medicaid – I knew nothing, but I was about to get a crash course.
Again, I’ll spare you all the details, but I found a place for mom to be transferred to while I tried to figure the Medicaid/Medicare piece out. It’s a lovely assisted living that is costing me $2000 a month. I cannot sustain that for much longer before I bankrupt myself. To make matters worse, this assisted living facility (I have very recently learned) doesn’t accept Medicaid payments. As a matter of fact, there’s one place that covers most of the eastern seaboard of South Carolina for Medicaid assisted living residents. It’s an hour away and NO ONE is taking what they refer to as “community transfers” due to Covid. So, for now, mom has to stay there while I try to figure out how old is too old to become a prostitute…
Kidding, of course.
So, for now, mom is where she is and she’s safe. She’s as mean as a rattlesnake every time I see her, she even told me she wished she had killed me when she had the chance. Yes, I know she has a disease and doesn’t always know what she saying, but I can promise you that doesn’t make it hurt any less. But I’m all she’s got and I don’t get another mom, so it is what it is.
My sobriety has taken quite a hit, but it’s still intact. Year 2 of sobriety has thrown a shit ton of curve balls at me and I’m trying to learn when to swing and when to let em go by. I’m getting better at it. I got to go to an in-person meeting last night – first one since early March. It was glorious. I have been missing my “people” so much. Way more than I realized.
I’m sure there’s a lot I left out, maybe forgot, but I’m finally beginning to realize what some of our slogans mean. Living Life on Life’s Terms isn’t for pansies. One Day at A Time is something I’m having trouble with these days, but my people smack me in the back of the head with it when I need it. Also when I need it, they’re here for me. You’re here for me. That’s amazing and I hope to never take that for granted.
Please share this around – we are none of us alone; we are all connected. You never know who’s lives you’ll change with your words.
It’s 3AM right now.
Of course I can’t sleep, which isn’t really new for me, but it seems new right now. Now, the things that keep me up all night are the unknown, the terrifying, and the huge.
These are the scattered thoughts, flitting around my brain – I’ve got to get them out of I’ll explode. Well, maybe I won’t, but I know I need to talk with someone other than my wife. She’s so patient and loves me so much but she needs a break.
Maybe we all need a break, but here goes what I’m thinking about.
There are so many things.
Just. So. Much. Pandemic.
I have friends that I love dearly. DEARLY. They are in Manhattan right now (currently a hotbed for CoVID-19) & I’m so scared that I might lose them.
I have family that are immunocompromised and/or are in a higher risk age bracket. I’m terrified that I’ll lose them too.
I, myself, am immune compromised! OMG! CRAP!
People are talking about comparable periods in recent history so we have some sort of frame of reference for how to act. Some are talking about 9/11, others are talking about the Great Depression (which my parent’s lived through), but it’s really not like that. I briefly considered the Cuban Missile Crisis based on the major fear we’re all trying to live through.
But it dawns on me: the early 80’s and HIV/AIDS crisis – originally called GRID (gay-related immune deficiency) – we’ve been through this – the fear, the isolation of sick people in hospitals, not understanding what was going on, what to expect, who would be sick, and how they would become ill. The lack of available medical treatments. And the fear; all the fucking fear.
Maybe one way to get through all this is ask one of your gays who lived through this what it was like back then: we’ll tell you to stay fabulous, keep on loving, and protect you and your loved ones at all costs.
My son’s school wants us to do internet learning with him. Are they stinking crazy? I’m not going to do that with him! He’s scared too – if I’m up at 3AM with all these thoughts, I cannot imagine trying to teach my kid but I will help him to do is best and help him if he needs it. I cannot imagine doing any of this homeschooling stuff people are doing – my son’s got enough on his little plate. He’s 13 – I can’t even IMAGINE being his age and going through this. If you think for even one minute that these kids think this is some type of extended vacation, you’re wrong: these kids are as scared as we are.
Every night now, around 7PM, people around the world are going outside, clapping and shouting and making noise for all these healthcare – and other essential – workers right now. These brave people put each other in actual danger every single day that they go to work. They’re exhausted. They’re overworked. They don’t even have the proper equipment to do their jobs safely. I mean, people around the world are SEWING masks for them.
This is insane. Absolutely insane.
We don’t have enough toilet paper and we can’t find any. All of the stores are out they don’t know when they are getting more. I guess we are going to have to start sewing toilet paper too.
What are people without homes going to do?
How do they stay safe?
What about people in prisons?
\How do we keep them safe?
CoVID-19 sucks.
This is the most bizarre experience of my life. I alternate between denial and absolute terror 23 times a day.
I went grocery shopping earlier today & it’s clear that people are on their last nerve.
It took all of my mental energy to get through that.
I wore a mask and gloves when I went out, and as a woman passed me and saw my mask she said me, “You know, if you’re healthy, those masks aren’t going to do anything for you anyway.” I acted like I didn’t hear her. Maybe the mask isn’t going to help. But it isn’t hurting her.
People are scared. Let it go. Have some compassion for each other.
That’s what I say to her in my head.
Then, I realized she is under unimaginable stress too. I gave her compassion and I changed my mental response to her – I reminded myself that she’s scared too.
There’s world-wide uncertainty right now & we’re all grasping for a feeling of control. She is too; she’s scared like the rest of us.
Maybe the way she is navigating her fear is wanting to know more than other people; she needs that right now. And so I mentally forgave her because I totally understand where she is coming from.
There is a beautiful sense of solidarity happening too. I think that it’s appropriate for me to be positive and hopeful here now. People all over are jumping in and helping. Delivering food and meds to people who can’t get out. Delivering food to hospital workers who are not able to get breaks to go out and get food for themselves. People are giving out free lunches for families who depend on the schools for those meals.
It’s quite beautiful.
I am so fortunate too.
I have a roof over my head, and no threat of losing that (at least right now). I have an amazing wife that is on this journey with me, and who is solid when I need her to be.
I get to be solid when she needs me to be, and that helps me just as much. I have an amazing son who is challenging and fun and healthy. I have food in my belly and no threat of losing that.
I’m fortunate. I’m privileged. I am also grateful. I don’t take this for granted.
I do have hope. And I do believe that everyone around the world is doing their very best to take care of each other.
I said it and I meant it.
