Guys, here’s the thing. I’m tired. Not like “I might grab a nap” tired. More like “I would like to lay down, and become one with the ground and let flowers sprout out of me” tired.
I have to admit that I’m a fighter. I’m a single female with a house, yard, full time job, two dogs, a cat, some fish, a couple hobbies, anxiety, depression, and an autoimmune disorder.
The bit that gets me is that part of my job is helping piece together information on death investigations. There is nothing more soul sucking than a steady stream of autopsy reports, except for maybe watching the slow demise of another human being. That’s eight hours of my day. I love my job. I feel committed to it, and we do good work. It’s just so hard.
When I come home, I have lovely beautiful friends who need me. They need me to support them, and have their backs. They have problems, and I feel like I should help, but I’m tapped out. I’m dry and crumbling. I want so badly to help, but my well is dry.
I don’t know what to do anymore. I don’t have anyone to tell.
Fortunately, my daughter Sam, who has ben recently diagnosed with Triple Negative Breast Cancer, has medical insurance through her employer.
As long as she can keep her job during all of her treatment, it covers a fair amount of some of her costs. At least after her catastrophic cap was met for the year (didn’t take too long to reach it).
We all consider the deductibles and copays, and prescription copays in our lives, but be sure to check your policy on investigative drugs. Medical trials. Travel and time off work. Did you know that many insurances do not cover care if the “Standard of Care” doesn’t work? Some don’t cover food unless it’s eating out instead of buying a loaf of bread and lunch meat. Some only will cover hotel rates available to AAA members in the 1950s. Some will pay a portion of their “idea” of what your gas should cost, but only on the DATE of your appointment, even if you’ve had to drive out of state the day before or after.
Pray you never need to know the intricacies of your health insurance. Even if you mange to jump though the right hoops and snag every receipt, it would take a team of dedicated government trained legal assistants to maneuver through the paperwork. Oh, and then you can wait for over a year for any reimbursement.
Moral of the story.
Including your 20-something year old child should have some type of additional policies, because my 20-something had never been sick in her life. She had to use her insurance for the first time and we learned a very hard lesson: chronic health issues and cancer do NOT care about your age, your gender, your race, your educational level, or your income bracket. Buy that add-on policy you pray you never have to use. I mean, yeah, it’s going to crimp on picking up that name brand mayonnaise, skip a few cups of designer coffee or don’t upgrade your phone to get it, because you don’t know how important it can be.
Pray you never need it, never have to walk this walk or fight this fight while being financially sucker punched at every turn.
Traveling 400 miles for treatment in Houston, TX, at MD Anderson alone adds up. Lodging is expensive. On her third trip out of state, she and I were in Houston away from home and family for several weeks straight. After that, we’ve got weekly visits for treatment and tests will go on for the foreseeable future.
Imagine you are just finishing college. You’ve invested all these years into student loans and grades and worked from the bottom up in a field helping others, so you’d be all set in your field after just one more test. You’re 20-something, but you’re invincible; you’ve never been sick.
You’ve got all your ducks in a row and have considered every possible decision.
You have spent your entire life on college student budget working your own way through school, accumulating debt, but going into a field where you are guaranteed to be a super star. Soon, you are going to kick open the doors and rock the world.
You dream of the vacations you didn’t take because you had to write papers and pay for copies and laundry, and you begin to plan them in your head. You go to sleep, dreaming of how great it’s all going to be now that you’re done. Once that last test is passed, you can consider your future. You have dreamy conversations with your parents about how one day not only will you buy a house, but this will have a little retirement cottage in the back for them, and they won’t have to worry about anything.
You tell your baby brother to keep up his grades, you bribe him and tell him to work his way to and through college, but you will be there for him if there are any hiccups along the way.
Your phone rings on a Friday afternoon as you’re in a store looking for a pink bow tie for your little brother’s prom coming up this weekend. It’s the doctor you saw, and out of nowhere, he says you have cancer and he will see you again next week. Just like that.
You’re alone. All alone.
You’re holding a bow tie for the baby brother you adore and have dressed his entire life. Your life just changed. The air is sucked out of the room, and nothing moves. You walk over to the dress shirts and begin looking for his size, but now you can’t remember for sure if he has that adorable little boy neck or of he has now grown into a lumberjack.
You call your mom to check, but instead, “I have cancer” falls out of your mouth.
Everyone’s life just changed and it all hits you.
Imagine dropping everything to live in a city far away for a month while still having to pay rent, utilities, and a car payment. Leaving your bed, pets, plants, and family behind. Being afraid of checking the mail or answering the phone: there will be bills in there with numbers that look like jackpots for the PowerBall.
Seeing things you never wanted to see. Learning a language you didn’t want to learn (Cancer Speak). Realizing you aren’t in invincible 20-something with the world at your feet, that you now must depend on the kindness of strangers when you don’t even recognize yourself in the mirror.
In the meantime, you travel every week to Texas, three states away, sleep, eat, get prescriptions, anything else you might need. Make sure you keep your job so you can keep your insurance and have a life when this is all over. Oh, also, you’re fighting cancer, so we are going to dump some of the most horrible chemical combinations known to mankind into your body and you are going to be sicker than you could ever possibly imagine.
Lucky that our family is tight. We pull together we pull through. All of my kids have sacrificed what they have and the course of their futures for family members and this is no exception. WE ARE LUCKY.
Samantha’s cancer is rare, which means she’s interesting to the scientific world, which opens us up to the option of seeing the Most Genius Medical people on the planet who study her type of Cancer. WE ARE LUCKY that we were able to get together the resources to get her to the people who could try to help her in the first 3 months.
WE ARE LUCKY that friends, family, and strangers have taken it upon themselves to raise money, cook dinner, open their homes, offer a ride, send a card, give a hug, and pray for us.
We are simply terrified, we know the first chemo regimen and treatment plan failed. We see the doctors and nurses faces when they hear her diagnosis. We realize what it means to be in trials, research programs, and testing studies. We know that we can only get the only hope kind of help out of state. We don’t feel very lucky because we know as a family that as the expenses, bills, costs pile up, the income has gone down on several fronts. Things like car repairs, broken air conditioners and power going out don’t stop because of cancer.
We don’t feel lucky because there’s interest on the credit cards and interest on the payments, and we are paddling like a herd of ducks in a hurricane just to get thru every day. We don’t feel lucky because it’s unnatural, it’s unnatural and soul-emptying to be a parent whose child has cancer. We don’t feel lucky that ”she’s grown up.”
We are her parents and she will always be our child. We don’t feel lucky that “at least she doesn’t have kids,” because she loves children and wanted to be a foster mom, because that’s who she is.
We don’t feel lucky because no one who has cancer is lucky.
This is the story no one wants me to tell – that no one wants to hear. But this is my story, and The Band gives me the space where I can tell it.
I was always a dancer. Nothing else mattered to me. It was my go-to activity after a bad breakup, I focused on what I could do: dance. Dance became all I ever wanted – my happy place, my home. I knew I was missing out on dating during high school, but no man could compare with dance.
I wasn’t supposed to go to that Big Band dance. I was supposed to be in bed, but my friend dragged me out, still in my PJ’s with stage hair and make-up from an earlier performance. And if I hadn’t seen that guy who hurt me dancing at that moment, I wouldn’t have gone for a drink. If I hadn’t gone for a drink, I wouldn’t have tripped. If I hadn’t tripped, he wouldn’t have caught me. He was Chuck*, a guy I knew through a friend. Soon, he became my own nightmare.
We talked the rest of the night, soon we were always talking, always together, and I found myself falling. Three weeks later, he told me that he’d gotten back together with his ex. We were watching a movie on my couch as we talked, and somehow, that night, we ended up making out — he got in my pants. I hated myself for that: I’m better than this, I told myself, but an evil voice whispered, He’s the only one who wants you. He is the ONLY one who will EVER want you.
He told me tales of his horrible, abusive mother and his girlfriend. He told me he truly wanted to be with me, and, like a fool, I believed him. This is how I became the “other woman.” Three months I sat by, believing that if I showed him how much I loved him, he would leave her to be with me.
Finally, in late January, I told him to decide who he wanted, and to stay out of my life until then.
He called me in March to tell me they’d broken up. We started fooling around again and I felt like less of a whore. Three days after my 18th birthday, in April, he asked me out, and a week later, I lost my virginity to him.
Soon I found myself at college, where I was studying dance. I thought things were great between us until he started threatening me. He’d tell me if I went out with my friends, he would break up with me, or how horny he was; how he was going to “give a shit-ton of chocolate and honey to a girl and get [himself] jumped.” This scared me.
Deep in my gut, I knew he’d already cheated on me over the summer, but I ignored it. I changed how I lived — made myself sick. I started to cut myself again, fell back into my anorexic ways, and hatedmyself. I was only happy when I was with him.
My wise Mama saw the signs, the downward spiral I was in. She tried to help, and I just shoved her away.
One night, I asked him if he’d ever cheated on me. This started a huge fight and he dumped me. After hours where I begged his forgiveness, promising I’d never to ask him if he’d cheated on me again, he took ME back.
I became so sick, so weak that I blew my knee out. My career was over. I was lost.
Chuck was happy – I left that college and moved home. I was half living with him, and still believed that I was happy. I swore I was happy even though he never took me out, never told his friends about me, canceled dates, and stood me up. I was never allowed to have a life outside of him. Another warning sign I wish I’d noted.
Soon, I was trying to rebuild my life when he broke up with me again: “We need a break so you can focus on healing yourself. But you’re always welcome to spend the night,” he said. Now I know he just wanted to keep me as a bed-warmer.
He left for a family vacation. During that time, I was raped by someone I’d trusted.
Chuck went crazy, calling me a worthless whore when he found out. A month after the rape, after I’d begged for his forgiveness, he took me back. Not as a girlfriend, though, because we still “needed time” to heal.
For the next four months, my life consisted of waiting for him to decide to take me back as his girl. If I denied him sex, if I didn’t risk falling asleep driving from my new college dorm to his place, if I didn’t skip classes to sleep because he’d kept me up all night, I was the most horrible human being in the world. If I did anything to anger him, he would scream, telling me how pathetic I was. When we talked, he talked down to me, as if I were a naïve child, incapable of understanding. If I countered him in any way, he’d yell and threaten me.
Chuck called me right after I found out my Mama had cancer. He managed to convince me he was going to break up with his girlfriend, and we would be together again. Like a total idiot, I believed him. But as my Mama got sicker, I spent less time with him and more with her. He made me feel guilty for it, but she needed me. Just four months later, she was dying.
At this point, Chuck was diagnosed with a disease that attacked his nervous system, but I couldn’t be in two places at once. When he was high on his medications, he’d become violent with me, so I stayed away from him. He was still with his girlfriend, and I was starting to have my doubts about him.
I lived alone at my parent’s house while my Dad stayed at the hospital with my Mama. My school was between the hospital and our house, so I became an expert at commuting. My friend, Tom, would stay the night with me – we took turns sleeping on the floor or couch because I didn’t want him to sleep in my room. When I had nightmares, he’d hold me until I fell asleep.
Dad and I were at lunch the Tuesday after finals. He had driven up to check on me, and as we ate, we got the phone call that Mama was gone. I hugged him as I cried, and went outside to text my friends before going back to force myself to finish lunch. When I got home, Tom was waiting for me. He held me as I sobbed uncontrollably laying on my Mama’s side of my parents’ bed. He held me until my Dad came home, and I finally let go of him.
Tom came to the funeral and sat behind me, rubbing my shoulder when I cried. Dad and my best friend, Cat, held my hands. Cat joined my family for dinner that night; Tom was over the next day.
Chuck sent a text four hours after Mama died. “I’m sorry, hon.” He didn’t come to the funeral. Didn’t even text or call to ask how I was.
Soon afterward, Chuck’s girlfriend asked Tom if he was cheating on her. Tom stayed quiet for me. He gave Chuck, his old friend, a choice: tell his girlfriend that he was cheating or Tom would. Chuck sent the two of us the same text: “I refused to pick between you two, so I pick neither.”
This was two weeks to the day after my Mama died.
I screamed at Tom; I felt so betrayed. But the worst, most hurtful thing that Chuck said to me: “You were nothing but something to keep me happy when she didn’t. I never wanted you. I was happy with her. Why would I ever be with you? You’re nothing to me. And now, because of you and your buddy Tom, she dumped me. Thanks. You ruined the only chance I had to be happy.”
Tom had, after all, told the girl she was being cheated on.
I was sick in bed for four days after that. I stopped answering my phone, deleted all texts from Chuck without reading them – I knew he was just being ugly. Finally, all the warnings I’d gotten and ignored made sense: he was nothing but a manipulator who’d used me. And I’d let him. He’d manipulated me into believing whatever he said. I believed that God had killed my mother as punishment to me for being such a pathetic excuse of a human.
Tom finally came to my door. I hugged him so tightly and cried until I fell asleep.
Tom became my lifeline and soon I was in love with him. He treated me better than any guy ever had, he listened, he tried to help me heal. I tried to deny what I felt for my friend, but when you feel nothing but shattered and empty, you hold on to any other feeling like it’s the only thing keeping you alive. We ended up sleeping together as we tried to figure out what we were becoming.
Tom and I were still trying to figure out what was going on when he decided to tell his ex-girlfriend – one of my best friends – Jane what had happened. Jane broke that night. She told me that I was a whore and never to talk to her again. Tom left and the last I heard from him was a letter confessing that it was all his fault and he was no better than Chuck. Jane moved home after school, and though I have seen her twice, she turns away and pretends I don’t exist while I fight not to cry or run up and hug her. I love her, and I hate myself for hurting her.
Chuck is gone from my life, and my Dad forced me into therapy. I find my wounds from Chuck are still bleeding. Because of him I am depressed, have severe anxiety, am a borderline alcoholic and borderline sex addict. I am also a survivor of emotional and sexual abuse. In relationships, I panic and shut down completely. I cannot handle being yelled at and actually went off on a professor when he began to say the same things Chuck had said to me.
Tom helped me, he made me a better person, and because of him I had the strength to return to my church and my faith after Chuck pulled me from it. I know my only path for forgiveness is in God, and through my faith, I have forgiven Chuck. I cannot manage to forgive myself for the years of pain I have caused. I pray someday I might be forgiven by both Jane and Chuck’s ex-girlfriend, Gina, and that I will be able to hug them each one last time.
I pray that, by a miracle, I can talk to Tom and find out how he feels about me. I still love him. The same voice of hope that whispered that my Mama was going to be alive to help me celebrate the end of finals, whispers that maybe Tom and I will have a chance at a future together….
I wish that somehow everything will turn out okay. I cannot explain how much I hate myself for what I did; who I became. I want nothing more than to hug my friends again and to feel that something in my life will be right again. I pray and wish and hope to be forgiven, even if I feel like I don’t deserve it.
This is my story. This is what no one wanted me to say, what no one wanted to hear. But it was time for me to tell my story, and maybe time for the truth to come out.
Okay, Band, I am in a quandary and need some mature advice.
My closest friend cheated on her husband this year, her husband found out, and they decided to stay together and work on their marriage.
Last week, my friend confided in me that she had been cheating again (same guy), but it ended the week before she told me. Only this time she did not plan to tell her husband. Our husbands are also close friends and in business together. She told me this but also straight-up said that it was okay for me to tell my husband about what she’s been up to. Because my husband and I love them both and also value the truth, we each talked to her separately and urged her to tell her husband the truth. She agreed that she should be honest with her husband if her marriage had a real chance at being repaired.
Last weekend, she told me that she’d told him, but that they were going to keep the matter to themselves and seek counseling. Over the course of the week it became obvious that her husband had no clue about her affair. My husband and I agonized over what to do.
Did we (1) urge her again to come clean or (2) leave it alone?
We chose option 1. She blew up and told us to back-off. So we did…but with nagging consciences.
Today, my husband decided that if his friend found out at a later date that his had wife cheated again, and found out that we knew about it and hadn’t told him—well, he just couldn’t live with that.
So without actually telling him outright, he gently told his friend today that his wife was not being truthful and he needed to talk to her. (I had no clue he was going to say anything to him.)
My friend’s husband went home to confront her.
Needless to say, the poo hit the fan and the truth is out. Now she’s lashing out at my husband for talking to her husband and “ruining her life.” I feel awful about the whole thing; I love my best friend and her husband as well. They have been amazing friends.
I would love to hear from anyone who has been in a similar situation—do you think my husband did the right thing?
Would you tell your friend if their spouse had cheated on them? Could you live with yourself if you knew and did nothing? Where do we go from here?
The Band Back Together Project is a group weblog and nonprofit organization that provides educational resources as well as a safe, moderated, supportive environment to share stories of survival.
Through the power of real stories written by real people, we can work together to de-stigmatize mental illness, abuse, rape, baby loss and other traumas so that we may learn, grow, and heal.
All are welcome.