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Beautiful Boy

My darling son 36 years old went asleep forever on November 18th from melanoma and I just cant cope wit the loss. He was the light of my life and always had a smile for everyone, especially his “mumma” as he called me. I don’t know how to carry on. Maybe someone on here has experienced the same loss and might be able to help. I just cry all day six weeks on. I miss him so much. He was a beautiful son, husband and brother.

I’m Glad She’s Dead

I said it and I meant it.

And take heart, this isn’t one of those “She was in so much pain–” (she was) “– and now her suffering’s ended!” kind of stories, (even though the suffering’s ended, but more on my end) or “It was her time,” “God has a plan”, “It was meant to be,” or any of the other ridiculous platitudes that etiquette has taught us to say when someone is in pain.

By the by, all of those last few statements are damaging. They’re not even worthless, they’re Express Delivery Pain, and they wreck a person who is grieving. Better to say nothing when you don’t know what to say. Moving on.

Naomi was an artiste.

She participated in yoga, dance, performance arts, stage combat and renaissance festivals. Naomi practiced with a few religions and philosophies, loved to read and visit museums. She had a very exotic look (she was born in Russia, and her heritage is of Rom descent), and her tattoos were beautiful. I loved how delicate her skin was, and how her hair shone in the sun. She always managed to look glamorous, no matter what she was doing. Her face was the embodiment of Resting Bitch Face.

Only a few years older than me, but she had some mileage on her. As a teen addict and rape survivor, she’d managed to gain herself a steady income, decent living arrangement, clean and sober (apart from cigarettes; cloves, especially, were her vice). She was very ‘jaded’, as one might say (if one doesn’t have more depth than a teacup).  Naomi was ever so much more than jaded; she was downright grisly. She was overripe with experience. Her font of knowledge was brackish water from a sewer system. Naomi had truly seen the underbelly of American Life as a runaway, and it stayed with her.

And yet we became friends. Fast friends, actually. I was only just twenty-ish when Naomi steamrolled her way into my world via social media. We talked for hours sometimes, and both of us liked to draw Tarot for the other. It became a regular thing for me to travel out to the East Coast to see her. I was the maid of honor at her wedding, and her ex-husband (they divorced shortly after, but remained friends) still keeps in contact with me. I met several of her friends, two of whom I have also now flown out to see, separately from Naomi, although we would send selfies to her.

The thing to keep in mind, though, is that over the years, Naomi never put away That Habit that some broken youths just can’t kick: the need for drama.

It makes you feel significant. You feel like you’re at the center of a play that’s only interesting if you’re speaking or being pandered to. When there’s drama, you feel important and like your life is far more tragic, amazing, complicated, full of hardship or whatever else is on the agenda for the day. Cultivating drama and seeking it out in what would otherwise be considered (by many, not just me) very normal, everyday encounters– that’s an addiction for some kids that have fucked-up backgrounds.

I should know. I am one.

Naomi was the kind of person that, if I was sound asleep in the spare bedroom, she would come into my space unannounced, and flump onto the mattress beside me and sigh. LOUDLY. I fell for it the first couple of times, but after she complained that an author friend of ours (who’d allowed us to stay at his home while we were visiting the township together) hadn’t made a move on her, even though she promised to fulfill his every wish, I’d had enough. I needed sleep. So I pretended to stay asleep. She bounced a little more, took off her shoes and said, “I just need to sleep in here tonight.” I made a quiet noise and turned over. “But I guess you’re asleep and not up for talking, huh?” Naomi said this at normal volume, full of petulance. With another anguished sigh, she picked up her boots and stomped to the couch.

One of the many things we talked about, as the best of friends, was nutrition and dietary specifications. We liked to experiment with replacing ingredients to either cut carbs, help out with digestions, etc. Herbs and supplements were never far from our mind to reach for, rather than a bottle of Aleve. We’re not hippies (hippies don’t hate the way we do), but we try to listen to our bodies and respond to small cues. We exhaust other avenues before seeking out a doctor.

She’d had a hard time kicking a bout of thrush, and had had no real success with a limited-ingredient diet. One morning, she called and said, “Uh… my skin is orange?” and I knew, immediately, that she was extremely ill. “Go to the hospital,” I breathed out, “and call me once you’re there.”

Naomi had a very rare form of neuroendocrinal cancer. It essentially starts in your brain and blooms into a tumor in a random part of the body. And the cancer was choking her pancreas. The mass was inoperable, but it responded to radiation, and we hoped to direct the radiation to shrink the mass away from this badly-needed organ just enough to allow for a surgeon to cut away the cancer. Instead, it started to shrink right where it was, and after a shunt was implanted to allow her pancreas to work, Naomi’s body threaded a new artery *through* the tumor, and several other veins as well, so the pancreas could still receive blood flow and remain intact and functional. It was almost as if her body wanted to hang onto the mass, regardless of malignancy.

Once the tumor measured at about the size of a tennis ball, they began chemotherapy. I would fly down to be with her during the week at the suites, and we would lounge with the television for hours together. I’d make her curry, she’d help me craft mocktails, it’d be a nice time. But every single time I visited, she and her husband were fighting. Once, in the middle of a dinner with another friend at the beach, she called me to say that they were getting divorced and she needed me to take my things and go to a hotel. But by the time I arrived home, they were quietly ignoring each other and behaved normally with me. Everything was apparently fine. They divorced shortly thereafter.

When it came time for the annual oncology review, the tumor was still present in the same position, but it also wasn’t getting bigger. As most of her organs were functioning perfectly fine in spite of the tumor, she was cleared to move up the coast to Brooklyn. She invited me to her parents’ house in the country, but I declined. I had just become pregnant with my daughter, and I didn’t want to travel. Naomi said she understood, but there was an edge to her voice.

Within a few months, I can tell you what the vast majority of our conversations were about:

-NYC is filthy
-her roommate is awful
-there are no pretty, single goth boys
-cancer is stupid
-practicing Santeria
-hating her bosses
-hating her job
-hating her new roommate
-hating how she has to beg for attention from a guy she’s dating x6
-hating that nobody is nice to her
-hating the new job
-hating the other roommate, but only slightly less than the newer one, and never saying a thing about it to either of them

There was a notable shift in who she was as a person, and how she interacted with me, after I became pregnant. Perhaps it was because I was no longer available and had had her linked with my Emergency Contacts so my phone would always ring if Naomi called me. At some point, I broke my phone and never set up the Always Ring contacts in the new one. This lead to many impatient messages on the morning after, increasing in resentment the longer it took me to respond.

When my darling baby was born, cheerful and healthy, Naomi asked to be called the witchy godmother, and cooed at my wobbly infant. She sent me pastries from her favorite Jewish bakery, and shipped blankets with chewy spots for the baby. One day she told me that she felt much more attached and close to me and my child than she did her own sister and nephew.

Therein lays our friendship, at its core. We admired and adored the other from a distance, and shared intimate details of our love lives and inner feelings. I had been friends with Naomi for so long, when it became more one-sided, I chalked it up to the cancer and let it go. But I realized that it was just who she was as a person. She would always be the victim, the one who has it worse, who hurts more, who feels things so deeply no one could possibly understand what she’s going through. I began to avoid her questions of, “Do you have time to talk?” and only respond later when I could be more attentive, but by then, the moment (and the drama) had passed.

Finally, when my daughter was 4 months old and I was at the peak of my exhaustion and postpartum depression, Naomi’s gall bladder turned septic and she had to have an emergency surgeon to remove it. I knew she’d been at the hospital for about a week, and her boyfriend was making updates as best he could, but if I’d ever felt the energy to start texting or talking to anyone– not just Naomi– I would always stop before the first sentence left my fingertips. I wouldn’t have time for a conversation, or the energy to listen. I was pretty broken, and my gurgly baby was delightful and adorable and easy to handle but… postpartum depression is a monster. Perhaps I was wrong to think our friendship could survive a month without contact. Maybe I should’ve just sent the one or two-sentence text messages, just to let Naomi know that I was thinking about her.

But I didn’t. And for the better part of 6 weeks, neither of us reached out to the other.

And then she messaged me one day out the blue, opening with, “I am upset and I need to tell you what I’m feeling.” So I settled into Best Friend Mode and prepared myself for an hour or two of new/old complaints with minimal commentary on my part. But I was not prepared for what happened next.

She was pissed. Naomi was so angry at me.

“I almost died!!” she raged, “and you couldn’t even pick up the phone! But I’m just expected to remember every stupid detail about your kid!” and that’s about when she lost me. I’d heard about other people saying crazy things when their cancer gets to late-stage terminality, but I had also become (unfortunately) too experienced with people fighting cancer and then dying. And I don’t find this to be true.

My kid had nothing to do with this fight we were about to have. I tried my best to shelve the comment and look for what was underneath: she was in pain, she had no way of expressing it beyond rage and lashing out. I tried to commit to this conversation with everything I had, and I am still grateful that my kid was napping at that precise moment in history.

I listened and took in all of her words. I filtered out some of the hate and attacking phrases, and sent back a heartfelt apology, with a promise to do better in the future and to at least keep Naomi abreast of where I was emotionally. I apologized again, and said that I would understand if she needed to stay mad at me for a while, but I just needed to say the words “I’m sorry” first.

I’m not sure how everyone else on the planet receives apologies, but for me, all I want to hear is:

-acknowledge the pain that was caused, without excuse
-empathize as to how this could have affected you, were the tables turned
-admit fault, apologize sincerely
-have a plan for what to do differently next time (and/or how you intend to make it up)

Pretty sure I’d checked off all those boxes in my reply, but apparently, that’s not how Naomi liked her mea culpas, especially without a genuflection. I had ended my letter with love, but she instantly shot back, “Spare me diplomatic bullshit.”
I bristled, but was more hurt that she thought me insincere.

“I can see you are still very angry,” I responded, “so I’ll leave you be for now.” I was trying to just give her space to be angry without being more hurtful to me, and I thought I had conveyed that it wasn’t in my intention to block her out or turn away from her. I hoped my words had been received with love on some wavelength. That’s not what happened.

“I’ll leave you be for now.”
“what else is new”

That was over a year ago, in May of 2019. A lot has happened in the last 18 months.

Last week, I discovered that Naomi had been found dead in her bedroom by her parents. The cancer had progressed, she had had another emergency surgery, and she succumbed within a month. Her fight was finally over. Our mutual friends were sharing stories and crying over the loss of such a beautiful person, and what must I be feeling, as the very best friend of olde?

Well.. I felt relieved. I felt a tremendous weight fall away from my body.

Ah, yes, yes, I’m a horrible person, I know. Luckily, I also don’t care what anybody else thinks.

Was it surprising? Yes, of course. I hadn’t been in contact with Naomi for over a year.

Was *I* personally surprised? No, not at all.

Part of being the Best Friend meant helping her plan her will, her final wishes for rites and burial, for palliative care and, in case the worst of it came to pass, her plan for suicide. I had promised to assist. More than once, she used the phrase, “I don’t want to live like this anymore,” and I would comfort her as best I could, without asking if she was ready to die. One day, she told me she was ready, because the pain had become too much. I asked her to give me a day to get my affairs in order, and I’d get on the plane to NYC. By the end of the night, she’d messaged to say not to bother coming out, that she was fine.

When I found out Naomi was dead, I felt a deep pain in my heart for the relationship that we had shared. For the actual friendship, the late night talks, snuggling with her dogs, sharing costumes and garb for holidays and vacations. We loved each other, truly. But not everything is made to last forever.

As I scrolled through the memorials and testimonies that people were contributing in her honor, I felt mildly amused, thinking, “I doubt Naomi ever told these people the things she told me.” And it hit me– I’m glad she’s dead.

No more drama.
No more unnecessary calls.
No more seeking out the worst-case scenario and *betting on it*, in every situation.
No more shrieking, no more “Okay, but just five more minutes–” stretching into an hour every time.
No more pity party the size of Houston.
No more of any of it.

As it would have fallen to me, eventually, to untangle and sort through the mess of feelings she’d stirred together and dumped on me in that final conversation, and try to make sense of our friendship going forward, it still wouldn’t have been enough. Naomi always needed grandiose gestures to make her believe that a person was being honest and truthful. And I have never been the person to do that.

It would’ve been my job to fix that mess, because that’s the way it had always been. Helping her to see another’s perspective, and not assuming the worst intention of her lovers. Reminding her to breathe before she speaks, and never say the first thing that comes to mind. These are behaviors that every grown adult must learn to master for themselves, so they can be contributing members of society.

I was 35 years old before I realized that Naomi was completely dependent on me. I had never realized that our friendship had taken that turn, but looking back, it was so obvious.

I’m so very grateful that she is no longer suffering from migraines, nausea, aching all over and weariness. I am happy that Naomi has passed. Her body was terrible to her. But the emotional hellscape in which she lived, every single day, was the real demon, not the cancer. And it was largely her own doing, because she could never back away from being the center of attention. She had to repeat everything she heard or suspected about a person. There was no irritation too small that she couldn’t launch a full-scale critical review, complete with scathing commentary. If nobody had told Naomi that she was pretty at least once a week, she would post a new selfie with a comment: “felt cute might delete later” and then praise every person who complimented her. The reason I know she did this intentionally is because she told me.

I’m glad she is dead. I am relieved that my friend has died. I am happier because she’s dead; a tremendous burden has been lifted from me.

I don’t even know what her family intends to do with Naomi’s remains, but I’m not going to call them and ask, or insist on carrying out her final wishes. That was a promise I made to a friend. The woman who called me names and vilified me at my lowest point is not my friend.

I’m not obligated to fulfill anything on her behalf. I’ll never have to unravel another one of her messes ever again. I’ve said it before, and I’ll say it again: I’m glad she’s dead.

 

Post Script: if this kind of thing truly makes your insides twist, I am pleased that there are still people out there who have only experienced wholesome relationships that are full of goodwill and reciprocity. But since finding my voice about this and learning to say how I feel without needing to justify it, it has been made clear to me that many, many other people feel this way about now-deceased people from their pasts, and for far worse reasons than the ones I claim against Naomi. So to those people who’ve only experienced equitable relationships, I salute you. For everyone else, go ahead and say it out loud. I give you permission to say “I’m glad they’re dead,” and then reflect on any good times you may have shared, or at least share why it is that you are glad they’re gone. It has given me tremendous closure. Maybe your family or mutual friends don’t or won’t understand, but that’s okay.

You can say it to me, here, or you can write about it on your own, or you can tell it to The Band. We are here for you. But either way, go ahead and say it, see if it helps free you the way it did for me.

 

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Coming to Terms With Saying Goodbye

Some days it’s easy to ignore the realities life throws in your direction. Other days, reality hits you so hard it’s difficult to breathe.

As I was lying in bed last night, I thought about what it would be like to lose my dad. He’s always been there, calm and ready to listen. My mom and I talked on the phone yesterday. He seems to be doing better, almost as if nothing happened. But something did happen. We just don’t know what or how much damage it may have caused. Maybe it was nothing and we’re making it out to be more than what it really is. But what if we’re not?

She talked about finding his life insurance papers and needing to start making funeral arrangements. Sounds grossly morbid, but when my grandmother died, she had most of it already planned (burial plot, casket, funeral home, etc) which made the process for my mom and my uncles a little easier to bear. So I suppose that’s what she’s doing as well. It may help in the process of mentally dealing with the impending loss.

I was born to parents who didn’t want me so my adopted mom and dad took me in when I was just a baby. They’re all I’ve ever known. My dad started a new family after the death of his first wife. He supported my mom in the decision to adopt two children and start over late in life, even after having four children of his own. My mom always said he was so supportive. He would get up early in the morning to get me out of bed and walk me around their apartment and tell me all the stories about the photos hanging on their walls so that my mom could sleep just a little bit longer.

The age difference between my mom and dad has become more pronounced over the last several years, but even more so now. He looks like an old, sickly man instead of the strong man he used to be. It’s terrifying to imagine what losing him will be like. Maybe we’re all getting ahead of ourselves. Maybe he’ll be fine for a long time still. Who knows? With all the advances of modern medicine, people still die of terrible things while taking dozens of pills until they finally just give up. Sounds deeply depressing, but it’s true.

I talked to him on the phone last night, and he didn’t even mention that anything had happened. Denial maybe? Or he just doesn’t want to talk about it because it’s scary thinking about the future. I desperately want him to call my cell phone and leave a message. After last week’s Postsecret update, so many people have voicemails from lost ones so that they can remember them and hear their voices. The cell phone carriers also work with people to get those messages saved so they will have them forever. I want that.

Thinking about the past, there aren’t that many photos of us together. We weren’t much about taking photos when we got older. Regret surrounds me. All the what-ifs and should-haves. I get the sinking feeling that the sand is slowly coming to an end in the hourglass.

It brings me back to the death of my grandma a few years back. It was the only death I had been keenly aware of and I was present for the last few hours of her life. I remember it vividly. We knew she was sick and wasn’t getting better. She took a turn for the worse when I was getting ready to visit my college of choice for undergrad. It was a Spring day in April 2004. Spring was coming and the forsythia was blooming. I remember thinking how beautiful it was and how she would have loved to see them in full bloom. We got back late that night, and I went to visit her in the nursing home. It was like I entered an alternate universe seeing someone I didn’t know gasping for breath. It was horrifying.

I’m scared. I’m not ready for this. Not yet. I really didn’t think it’d be so soon.

 

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Mom

mom's suicideJune 7, 2020 at 1:00am, an hour before my shift at work, I got a phone call no one wants. It was my dad: I answered.  “Mom died” he said tearfully.

I felt my stomach drop. Impossible. How could she be gone? I was stunned. I immediately stood up, gathered up my work stuff (knowing that I wouldn’t need them that morning) to meet dad at the hospital.

Mom had been in the hospital for a UTI for the past week. Her condition had been stable but she was pretty out of it. Because of the virus we were unable to see her in the hospital or at all because she lived in a nursing home. We had done window visits, and dad talked to her on the phone, but it wasn’t the same. I attempted to Facetime with her (earlier that week) but she was pretty out of it  My mom had MS, so her health was always on a roller coaster. I kept thinking how we managed 3 years since the last hospital incident when things were close then. I thought we had more time.

The drive to the hospital (also my employer) was a blur, I was trying to reach family members to let them know what happened. All I knew is that her oxygen levels had dropped. “There had to be more”, I thought. I made it to work hurrying into the office to deposit my keys, tell my coworker where I was going, and grab a mask. I met dad out in the ER and we hugged. Going up to the floor where mom was seemed so unreal, like a dream, a really horrible bad dream. I felt nauseous and almost like I was back in time to when my sister died 7 years ago and we went to see her, then almost 20 years ago when my grandfather died. I was not ready for this.

When we approached her room the nurse was so kind, just explaining what happened (the same thing my dad had said), and the nurse added that mom kept saying “Go away” to her. That gave me indication that she knew it was her time, she was tired, and my sister was waiting for her.

 

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A Story of Loss

I thought it would be my salvation when the doctor gave me the test results.  I was twenty and my life was going nowhere. I should have known it would be a disaster.

I thought it would save me, though.  I had seen him with his kids. I had seen how happy they were when they were around him, how he seemed to dote on them. He looked like a good dad who would never harm any child of his.

I thought that when he knew he had another child growing in my belly, he would stop hitting me, that he would want to love and protect this child as much as he did his other children.

I was excited when I told him. Smiling, thinking that he would be excited, too.  He asked me how far along I was. “Three months,” I said. “I’m three months pregnant.

He looked at me for a long time, saying nothing. I could not read the expression on his face.  Then …

He kicked my baby out of me. He planted his foot repeatedly into my belly until I lay there in a pool of blood, mourning for the child that would never be.

My baby, my baby. I’m sorry. I’m so sorry that you had to die so violently, while you were supposed to be safe and protected within my womb.

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What The Hell Happened?

cancer love storyWe met when we were twelve. My wife Kimmy was always healthy. She never smoked, only occasionally drank, she exercised and ate all the right foods. She hadn’t seen a doctor in six years, always joking, “I’m waiting for the big one!”

She went in for gall bladder surgery on 10/19/10. I assured her she’d be fine. My wife passed away fifty-five blurry days later on 12/13/2010.

When I realized how sick Kimmy really was, I told her, “Dammit Kimmy, why couldn’t you be a mean, bitchy woman? Then I could be rejoicing right now!” But she couldn’t be mean or bitchy. Not her nature. She was so sweet, so positive, right up until she died in my arms.

miss her so much. I was a train wreck that she’d lovingly pulled out of the gutter, cleaned up, and helped exercise my demons. She made me what I am today.

And now, in my new, traumatic, bizarro world, I can no longer keep track of time or what day it is. I walk around feeling stoned. I question; I second guess myself. Did I kill Kimmy? I go back and forth, replaying this in my head.

St. Patrick’s Day last year, we lost our ten-year old Lab/Aussie pup, Zona. That dog was part of the family. Our kids adored her as much as she loved them. That dog allowed them to ride her, use her as a pillow; anything the kids wanted. We took her to the vet. She had to be put down. My children were inconsolable. Kim and I looked at each other and she said, “you go, you held Cajun while she passed on. I’ll stay with Zona.” An autopsy revealed wide-spread cancer. My stoic Zona never let on.

Now, looking back I wonder, did Zona’s cancer (in some crazy way) pass to Kimmy? What if I had stayed in that room?

———–

I regret that I was so uptight about money and our financial situation. Kimmy would say, “I’d love to go to the beach.” I’d show her our bills, explaining that, “It’s not a good time.” Kimmy wanted a beach cruiser, and I’d nod, knowing we didn’t have the money. Kimmy wanted to replace the broken stereo in her car, and I explained that we could not afford that either.

Not right now.

When she died, the community helped with bills and groceries and medical expenses. Now we can go to the beach, only Kimmy’s not here to go with us. Dammit, I feel responsible for being so focused on money problems. I should have just taken her to the beach.

————-

While Kimmy was so sick, I did everything I could to help: showers, dressing her, feeding her, doing the cleaning, even giving her a Lovenox injection twice a day; to combat the blood clotting issues caused by the demon cancer. She called me her knight in shining armor. She told me that I was saving her. But I wasn’t, I couldn’t; I wanted to believe I could.

I wonder, did the Lovenox help? Or was I making it worse?

I don’t know.

I do know that Kimmy was an incredible wife, mother and friend; the type of person you wanted to be around. Positive, upbeat, energetic. She was an excellent cook, such a nurturing mother – and I can’t help but think of how sad, how tragic this is for them. Cody 13, Autumn 10 and Antonio, especially Antonio, 7; all motherless.

What the hell happened?

Now, our family is closer than ever, although it’s out of necessity. Our glue, our mentor, the love of my life, the mother of my children, our motivator is gone – ripped from our lives so quickly – but we try to remember her positivity. We comfort each other because we know she believed she was going to Heaven. I tell the kids, “we need to smile and remember the wonderful times.” These little ones have responded so beautifully and remarkably, standing up for each other, and for me. They try to keep our morale up and her memory alive.

In the dark of night when I cannot sleep, I replay the whole nightmare, over and over:

What could I have done differently? I should have seen that she was sick. I should have. I could have…why didn’t I?

And, I cannot shake this feeling. I was not Kimmy’s knight…I did not ride off into the sunset. I did not save the girl.

I’m the bad guy.

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