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The Great Pandemic: Coping with a Pandemic

We at The Band Back Together Project are looking for your stories of what you’re going through in the time of the great pandemic. Please share your stories with us. You can use this to login, or you can send your story to becky@bandbacktogether.com or stacey@bandbacktogether.com.

Please share this around – we are none of us alone; we are all connected. You never know who’s lives you’ll change with your words.

I’m stressed. There is a lot going on out there, it feels like the information changes every day. My kids are home all day, every day. They don’t get to run around with their friends, even if we do see them while we are out for a walk. The news coming out of Italy gets more bleak by the minute, and I wonder if we are doing enough to stop this before it hits us like a runaway truck.

I worry about being able to feed my family long term, assuming this continues, which doesn’t feel like a stretch. I worry about my family, all of whom live at least 175 miles away. I worry the grocery stores will have to close because all their employees get sick. I worry that all medical personnel are burning themselves out and will suffer tremendously for it. I worry about the scientists working day and night to give us concrete answers.

This novel coronavirus has kicked my anxiety into full gear. I spend my days and nights imagining all the worst case scenarios. Sleep is not relief from this. The tension in my shoulders, jaw, whole body never releases. Taking a complete, deep breath seems impossible. My brain is a squirrel on meth stuck on a hamster wheel.

I talk to others online about their concerns, and I find all of them relatable. Maybe not in a specific detail kind of way, but in a general kind of way. I’m not a single mom struggling to care for her special needs child with no extra cash to even start to stock up on basics I may need. I’m not a new mom feeling isolated after building my routine around meeting up with friendly faces three times a week. I’m not the mom of a medically fragile child, panicked because people just can’t take this seriously.

I’m not these specific people. But I understand their struggles. Yesterday, I wrote a little post full of sass about how to survive. The sass hid the truth. This is not normal. It is not sustainable for our mental health. I need my friends and support system as much as anyone. And I need to support people just as much.

If you read this far, thank you. If you find that you just need to vent your fears, write them out here. You can post it anonymously, even we won’t be able to identify you. If you have some kind of resource I can link to that would help some of the people I listed above, shout them out. We will link anything that will help.

Lots of love, but don’t touch me,

Stacey

My List Of My Physical, Psychological, And Emotional Traumas – Bipolar Disorder, PTSD, Abuse, and Pain

My therapist has asked me to write down a list of my emotional traumas.

A list of all the emotionally and physically traumatic experiences that have happened to me in my life, that have contributed to my Bipolar Disorder and PTSD.

Right now, my therapist doesn’t feel as though I’m ready for the therapy called Eye Movement Desensitization and Reprocessing (EMDR). As far as I understand, I have to relive physical and emotional traumatic experiences, have the proper emotional response, get over it, then have Cognitive Behavioral Therapy (CBT) so I can develop some sort of coping mechanism for the future.

But until my medications are adjusted and I’m in a better place, I have to wait.

So, here is my list:

Sexual abuse around age 3 by a family member. I repressed this memory until it slapped me in the face at age 12, causing an intense anxiety attack.

Constant arguing between my parents, thanks to my father’s alcoholism, gambling and pain issues due to needing a hip replacement. The pain issue turned into an anger issue; turned into a power tool being thrown at my mother, missing, and going through the window and landing at my feet; followed by an argument on a holiday with my father resulting in me taking a heavy duty power torch to the head.

As a “gifted child,” I was bullied a lot in primary school and high school. I still carry some of those emotional scars with me.

Funnily enough, my brain is currently trying to stop me from accessing more memories. Suck it, brain; stop being a whiny bitch and let me write this shit out.

When I was 16, my mother – being severely depressed – attempted suicide several times. The last time she tried, she had an argument with my father (now a better man, nothing like his days in my earlier life), and downed a ton of pills. I found her and her suicide note. I actively suppress the things written on that note thanks to the emotional trauma but I know how it began.

That sentence haunts me in my dreams. She is fine now, thankfully, but I refused to talk about it with anyone and pretended it never happened.

I was diagnosed with severe anxiety disorder when I had a panic attack at high school so bad my heart rate was 180, and I had to be rushed to hospital for fear of doing damage to my heart.

Since that day, I regularly have heart palpitations.

I had a psychotic episode at 17, when voices told me to stab my mother. I became paralyzed in my own bed while lights shone down from the ceiling, and I was convinced aliens were coming for me, despite my logical brain telling me I was being stupid.

I was diagnosed with endometriosis and told I should probably have children before 25. I’m currently a week away from my 24th birthday. Talk about another emotional trauma.

I moved out of my family home to the capital of my state to attend university. I was diagnosed with Bipolar Disorder at this stage, and promiscuity, sleepless nights, shopping sprees, and severe irritability kicked in.

I dated a Muslim man for eight months. Toward the end of the relationship, I was emotionally abused, when he called me a dog. I went running into the arms of a male friend.

I decided I was the worst person in the world and went off screwing any guy who looked my way, drinking myself into oblivion, and eating pills like candy, just to numb the pain. I wanted to be used. I asked my male friend – now my fuck buddy – if he was using me for sex. He replied yes. I cried and said, “good.

” Turned out he wasn’t using me: he was in love with me; as a result of my promiscuity, and his inability to tell me how he felt, he quit university, broken-hearted.

I started dating my current partner, whom I have been with for five years now. We lived with his sister, her fiancé, and their daughter. His sister is a lazy bully who cannot look after herself, let alone children (currently a total of three). Her fiancé is a violent, alcoholic gambler. After being made a prisoner in my own bedroom, we got our own place.

My diagnosis of fibromyalgia explained my constant pain and tiredness. Yay for inheriting every single shitty illness my parents have.

Recently, I have started to have feelings for a close friend, who also has a partner. While drunk, we have made twice. I have feelings for him, but he is just attracted to me. I have immense guilt over betraying my partner, who is emotionally stunted. I think I’m just attracted to my friend because he has the social and emotional skills my partner lacks.

I was severely bullied at my last job until I began having daily panic attacks and getting into a screaming matches with a higher-up and former friend.

I decided to self-harm and contemplated suicide when the medication I was taking for five years stopped working. Unfortunately, while the medication stopped working, my now non-existant libido did not return.

Have also suffered dermatillomania (chronic skin-picking) for most of my life, particularly my feet. It is disgusting.

Currently, I am plagued by insomnia, headaches, anxiety, shame, severe depression, guilt, and every other horrible feeling imaginable. According to my therapist, I have feelings of low self-worth. According to my friends, I have a much lower opinion of myself than everyone else does of me.

I am both numb and emotionally unstable. I can’t cry, even though I really want to let it out. I think of myself as selfish and horrible, a terrible person who doesn’t deserve what I have. I theorize that I have some subconscious need to sabotage myself.  Every time something is going well, just to add some drama in my life. Why I do this, I don’t know. And as I have written this list in such a cold, emotionless manner, I find it odd that I can be so numb and feel so many negative emotions at the same time. I feel like a robot.

I don’t want sympathy. At least, I don’t think I do. I am just tired. Tired of struggling through every day with these issues. I want the problems to just magically disappear because I’m tired of fighting.

I know it’s a long road ahead to my recovery. And as much as I don’t want to relive the aforementioned memories, I am also excited for the first time in ages because maybe, finally, with proper therapy…

…maybe I’ll finally get some peace and closure.

Jack

Jack

Birth: 16 Apr 2004

Jack The Dog

Death: 23 Jan 2019

“My dog does this amazing thing where he just exists and makes my whole life better because of it.”

– Unknown

Chihuahua. So not a breed of dog that I would ever have thought I would ever own. I’ve always been more into the working breeds, (ie: GSD, Dobermans, Boxers, Rotties, etc.) But way back in 2004, my ex (who wasn’t an ex at the time) and I stopped at a pet store. (Ok, please don’t yell at me about buying a pet store dog. I now know all about puppy mills and stuff. I know, I know. But back then I didn’t really know, or didn’t think about it, or whatever. If I ever get another dog it will be a rescue. Please don’t yell at me.)

Honestly we were just out enjoying the day when we decided to go in and look around. It was something to do.

I said “No dogs”, but somehow we walked out with a dog, who we ended up naming Jack. This dog went across country with us a few times; he was a great traveling companion. But I always told people he wasn’t MY dog. I mean my ex was the one that talked me into getting him. And they seemed pretty attached to each other.

Fast forward to 2013.

We had moved from Florida to Minnesota in 2010 to be closer to her family after I got laid off work. Then in March of 2013, My ex and I split. I was devastated. Don’t get me wrong, there were things wrong on both sides. I take my fair share of the blame there. But when she was preparing to move out, I was informed that I got to take the dog, she was taking the cat. (Um, what? He’s not my dog, but ok.)

I was now keeping the dog.

It’s probably a good thing I got him. You see I have PTSD, it’s probably actually CPTSD but that’s just now becoming a thing. And along with PTSD, I get a side of anxiety (with panic attacks) and depression.

Woohoo….I have a trifecta of mental crap! Yay! Go team me! /end sarcasm.

But the one living being who helped me through all of the break up and mental stuff was Jack, my little chi.

He was there when no one else was.

He laid next to me when I cried.

Back when I was in therapy, I’d come home and talk to him about it. Jack was the one I celebrated with when I got my first degree black belt. He celebrated birthdays with me, and helped me when I was down.

Because no matter how much I wanted to just hide from everyone and not get out of bed, I had to get up.

Jack needed me, to go out, or to be fed, or whatever. I could not neglect him just because I was a mess.

I had to keep going because this little sweet soul needed me. Even when I felt like no one really needed me for anything, Jack did. He depended on me for food, shelter and companionship.

As much as he needed me, I ended up needing him as well. I needed someone to get excited to see me. I’d come home from work and he was so glad I was home. Jack was the one thing in my life who wanted me there.

It was he and I against the world.

I took him to parks, we went on drives together. He heard me rant about stuff and listened to all my stories. If I was anxious he came and sat in my lap so I would pet him. We were best buds.

Late last year I was beginning to suspect that something was going on with him. There was nothing I could pinpoint and say, that’s it.

So I just kept an eye on him.

He was still the same loving dog he was just slowing down a bit; he WAS 14 years old, not a young kid anymore.

So I just kept an eye on him.

Then in January of this year, he took a turn.

I’m not going into it all but I did get him to the vet. They did blood work to start because we didn’t know what was going on. This was a place to start trying to figure it out. His blood work came back all normal. She said according to his blood work he was healthy.

The vet said the next step was getting some imagining done to see if there was tumors or something else.

But we didn’t get that far. His blood work came back on a Tuesday afternoon and Jack died in my arms the next day.

It was Wednesday the 23rd of January at about 8pm.

I don’t know what happened to him.

But I do know a part of me died that day.

He might not have been a trained emotional support dog, but that’s the job he fell into, he was there for me through some dark times. I’ve cried more over the death of this dog then I have over anyone else, human or animal.

I’m crying right now typing this.

I don’t even feel like I’m putting into the proper words what this dog meant to me.

I’m still not over his death and I’m not sure I ever will be. I’m still grieving seven months later.

I still talk to his ashes and tell him mamma loves him.

When I make popcorn I still put a piece or two by his ashes. He loved popcorn.

I have a couple of wonderful friends who had a book made for me, one of those Shutterfly ones.

One of my friends works in marketing (she’s a graphic designer) so she swiped the photos from my Facebook. My other friend, who is my TKD instructor, found the quotes.

So they made me a book of my Jack.

It’s probably the greatest gift I’ve been given. I have a shelf with a couple of photos of him and one of our other dog Abbie. The book is there too.

Jack’s ashes are there along with a clay heart with Jack’s paw prints. I call it my shrine.

I miss him…

every

single

day.

I fell back into my depression and my anxiety has been worse. It’s been a rough year.

But I’m slowly trying to pull myself out of it. I’ve been trying to make myself get out of the apartment more. I’ve been trying to take walks in the park near here.

It’s the one Jack and I went to the most in his last 6 months before he passed. It took me several months to even drive back into that park. I still haven’t been able to bring myself to clean the inside of the windows in my van, his nose prints are still on them.

But I’m trying to do more, to get out.

But it’s hard. So very hard.

Jack’s ashes are in a small box inside of a velvet bag with embroidery. It says, “Until we meet again at the Rainbow Bridge.”

You Don’t Get More Than You Can Handle

Losing a child of any age is one of the worst, hardest things for a parent to bear.

Please, share the stories of the children you’ve lost with us. There is strength in numbers.

Throughout the past two years I have often heard, “God doesn’t give you more than you can handle.”

Well, I have a bone to pick with God: I am NOT as strong as He thinks I am.

Somehow, I managed to get through my husband’s year long tour in Iraq. I had to. Late in the evening in September 2007, I hugged and kissed my husband, as he rubbed and kissed my h u g e pregnant belly and got on a bus. I didn’t know if I would ever see him again. I can still see his big, goofy grin as he smiled and waved good-bye. I stood there, watched the buses pull out into the darkness and I prayed to God that he would come home safely. I prayed that our son would get to meet his Daddy; the same prayer I prayed every day for the next year. I got into the truck, hugely pregnant, and I lost it.

I cried the whole way home.

27 days later, my son Robert was born.

I’m not so strong.

Now, seven months after Robert’s death from SIDS I can’t seem to “get it together.”

I’m pretty smart. I know that I am grieving. I know that everyone grieves differently. But I’ve had enough. I don’t want the panic attacks that happen for no reason. Panic attacks that I shouldn’t even be getting anymore because I take medication to prevent them.

Tired of being tired because I can’t sleep at night. Every time I close my eyes I see Robert in his crib when I found him, dead from SIDS, or in the hospital on the gurney.

coping with child loss

I’m starting to get mad, really mad. Mad at my husband because I had to go through another major event alone. Mad at the Army for not letting Joe be at home for Robert’s birth. I’m mad at God.

This is how my conversations with God have been lately:

Me: “Why did Robert have to die of SIDS?”

God: no response

Me: “Hrmph”

Me: “Guess I should have been more specific when I asked you to bring Joe home safe so Robert could meet him.”

God: no response

Me: “grrrrrr”

Me: “I’m a good Mommy, why do I not to get to have my baby?”

God: no response

Me: sobbing

Me: “I think you and I need a break!”

God: no response

wall of baby loss

 

 

PTSD and Childhood Bullying – A Silent Suffering

I always thought that PTSD was something soldiers developed – I was naïve; had no idea anyone could develop Post-Traumatic Stress Disorder. After my teenage son began to get into trouble, I assumed we’d become another statistic – a family with an out-of-control teen.

After we started family counseling, my therapist suggested that I try private therapy. About a week into it, I was diagnosed with PTSD. The therapist said were several things that led to PTSD.

PTSD, or Post-Traumatic Stress Disorder, can occur when something horrible or traumatic has happened in. It causes stress every time you encounter a situation is similar to the previously-experienced traumatic events.

I’ve had a few types of traumatic events. I had a rocky relationship with my father growing up and then his death was both very sudden and very traumatic. An abusive relationship with my ex. I’ve experienced abuse from my son. Lastly, I was bullied by a girl from second grade all the way through high school.

My reactions to everyday situations can be more intense than they need to be – but whenever I am in a stressful or threatening situation, I relive past experiences. It’s hell, reliving the same horrible day over and over.

Once, when I saw my grade school bully in the grocery store, while I was there with my kids and we were checking out. The sound drained out of the store. My heart began to race. Blood pumped in my ears. My face got hot. As soon as I was able, I grabbed my kids and ran for the car. I must’ve driven break-necking speeds home, but I don’t remember getting there.

I had a panic attack after seeing this woman! We live in a small town and the odds of running into her are probably higher than in other areas, but I never see her. When I did, I hit fight or flight mode, and flew! That was six years ago.

Since I began therapy, I’ve seen her again. My daughters were with me, and this time I made sure to make eye contact with her as I turned to my daughters and said, “Girls, let’s go check out. I think we’ve got all we need now!” I turned and went to check out. As we left I felt so proud of myself for facing her, and not fleeing like a chicken facing slaughter!

Thanks to the ways she traumatized me, I always tell my kids, “Don’t take anyone’s crap at school!” Recently my daughter was getting harassed by a staff member at her middle school. I contacted the principal and reported her. This woman has not bothered my daughter since I reported her; threatened to file a sexual harassment suit against the school.

Since starting therapy, I stand up more than I used to. Despite all the reasons my therapist thought that I was traumatized, I think the bully and my father’s sudden death were the two that really affected me.

I was a victim of domestic abuse, but I came to terms with it, and took a stand. I left my then-husband and married the man responsible for making me feel like I was worth more. I call him my White Knight because I was considering suicide when we met – he saved me.

My son and I have resolved many of our issues and are working on our relationship; things are getting better.

I still have issues with my dad’s death.

See, I was blamed for him dying. He died from cancer 14 years ago and afterward, I was told that being around stressed him out – caused his cancer to return after it had been in remission.

Being blamed for his death is a hard thing to overcome. But this year, I was able to make it past his birthday and the anniversary of his death (exactly a month apart) without being a total mess!

To all those out there who have been bullied, abused, or lost a loved one, don’t assume you are strong enough to deal with it on your own.

PTSD snuck up and took over my life. I’d been miserable for years because I didn’t know what I was trying to cope with on my own. I suffered for years without understanding why, until I didn’t want to live any more.

Now, I cannot imagine having missed one day of my kids lives. Good or bad, I want to be there for it all. When they graduate from high school, when they get married, go off to college, when they start their own families. I want to be there, protect them from the problems I had. To tell them, “You’re better than this!” Or smile for them after they avoid bad situations entirely!

Don’t hesitate to get help for PTSD. It really does make a difference.

I never wanted to go to therapy every week, but I am, and I am doing much better. My therapist told me last week that he thinks I am nearly ready to be done. I think that’s a remarkable thing to hear – I am better, I can do it.

My therapist told me recently that I’m a remarkable person for dealing with what I’ve experienced, and still managing to smile. I told him that despite any issues I’ve had, I have great kids and a loving husband.

That’s all I could ask for!

The List – Bipolar Disorder, PTSD, Abuse and Pain

My therapist has asked me to write down a list.

A list of all the traumatic experiences that have happened to me in my life, that have contributed to my Bipolar Disorder and PTSD.

Right now, my therapist doesn’t feel as though I’m ready for the therapy called Eye Movement Desensitization and Reprocessing (EMDR). As far as I understand, I have to relive my traumatic experiences, have the proper emotional response, get over it, then have Cognitive Behavioral Therapy (CBT) so I can develop some sort of coping mechanism for the future. But until my medications are adjusted and I’m in a better place, I have to wait.

So, here is my list:

Sexual abuse around age 3 by a family member. I repressed this memory until it slapped me in the face at age 12, causing an intense anxiety attack.

Constant arguing between my parents, thanks to my father’s alcoholism, gambling, and pain issues due to needing a hip replacement. The pain issue turned into an anger issue; turned into a power tool being thrown at my mother, missing, and going through the window and landing at my feet; followed by an argument on a holiday with my father resulting in me taking a heavy duty power torch to the head.

As a “gifted child,” I was bullied a lot in primary school and high school. I still carry some of those emotional scars with me.

Funnily enough, my brain is currently trying to stop me from accessing more memories. Suck it, brain; stop being a whiny bitch and let me write this shit out.

When I was 16, my mother – being severely depressedattempted suicide several times. The last time she tried, she had an argument with my father (now a better man, nothing like his days in my earlier life), and downed a ton of pills. I found her and her suicide note. I actively suppress the things written on that note, but if I actively access that memory, the note started with “I no longer fear death. In fact, I embrace it.” That sentence haunts me in my dreams. She is fine now, thankfully, but I refused to talk about it with anyone and pretended it never happened.

I was diagnosed with severe anxiety disorder when I had a panic attack at high school so bad my heart rate was 180, and I had to be rushed to hospital for fear of doing damage to my heart. Since that day, I regularly have palpitations.

I had a psychotic episode at 17, when voices told me to stab my mother. I became paralyzed in my own bed while lights shone down from the ceiling, and I was convinced aliens were coming for me, despite my logical brain telling me I was being stupid.

I was diagnosed with endometriosis and told I should probably have children before 25. I’m currently a week away from my 24th birthday.

I moved out of my family home to the capital of my state to attend university. I was diagnosed with Bipolar Disorder at this stage, and promiscuity, sleepless nights, shopping sprees, and severe irritability kicked in.

I dated a Muslim man for eight months. Toward the end of the relationship, I was emotionally abused, when he called me a dog. I went running into the arms of a male friend.

I decided I was the worst person in the world and went off screwing any guy who looked my way, drinking myself into oblivion, and eating pills like candy, just to numb the pain. I wanted to be used. I asked my male friend – now my fuck buddy – if he was using me for sex. He replied yes. I cried and said, “good.” Turned out he wasn’t using me: he was in love with me; as a result of my promiscuity, and his inability to tell me how he felt, he quit university, broken-hearted.

I started dating my current partner, whom I have been with for five years now. We lived with his sister, her fiancé, and their daughter. His sister is a lazy bully who cannot look after herself, let alone children (currently a total of three). Her fiancé is a violent, alcoholic gambler. After being made a prisoner in my own bedroom, we got our own place.

My diagnosis of fibromyalgia explained my constant pain and tiredness. Yay for inheriting every single shitty illness my parents have.

Recently, I have started to have feelings for a close friend, who also has a partner. While drunk, we have made  out twice. I have feelings for him, but he is just attracted to me. I have immense guilt over betraying my partner, who is emotionally stunted. I think I’m just attracted to my friend because he has the social and emotional skills my partner lacks.

I was severely bullied at my last job until I began having daily panic attacks and getting into a screaming matches with a higher-up and former friend.

I decided to self-harm and contemplated suicide when the medication I was taking for five years stopped working. Unfortunately, while the medication stopped working, my now non-existent libido did not return.
Have also suffered Dermatillomania (chronic skin-picking) for most of my life, particularly my feet. It is disgusting.

Currently, I am plagued by insomnia, headaches, anxiety, shame, severe depression, guilt, and every other horrible feeling imaginable. According to my therapist, I have feelings of low self-worth. According to my friends, I have a much lower opinion of myself than everyone else does of me.

I am both numb and emotionally unstable. I can’t cry, even though I really want to let it out. I think of myself as selfish and horrible, a terrible person who doesn’t deserve what I have. I theorize that I have some subconscious need to sabotage myself.  Every time something is going well, just to add some drama in my life. Why I do this, I don’t know. And as I have written this list in such a cold, emotionless manner, I find it odd that I can be so numb and feel so many negative emotions at the same time. I feel like a robot.

I don’t want sympathy. At least, I don’t think I do. I am just tired. Tired of struggling through every day with these issues. I want the problems to just magically disappear because I’m tired of fighting.

I know it’s a long road ahead to my recovery. And as much as I don’t want to relive the aforementioned memories, I am also excited for the first time in ages because maybe, finally, with proper therapy…

…maybe I’ll finally get some peace and closure.