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Miscarried

I wrote the following Monday, July 12, 2010 just hours before I had a D&C procedure.

I can’t sleep. Too much on my mind. I write this with a lump in my throat.

The day before my son Lucas’ first birthday, got a positive pregnancy test. We had only been “trying” for two weeks! Can you say fertile? Stranger things have happened.

Learning I was pregnant for the first time was one of the most exciting days of my life. Not only is it a major milestone on the path of adulthood, it is one of the most joyous experiences you will ever have. I will never forget the day I found out I was pregnant with Lucas. I cried tears of happiness, excitement, and fear.

Learning I was pregnant a second time was a little more shocking for me. I had just gotten back to my pre-pregnancy weight and into my favorite jeans. The hair around my face was starting to grow back and I was FINALLY starting to get the hang of this “mommy thing.” The tears this time came from pure disbelief. I was excited but also troubled by how our perfect little family of three was going to change. I was mostly concerned with how this new addition would affect Lucas and how I might handle two under two. Doing the quick calculations, Lucas and his sibling would be almost 21 months apart.

I thought I was nine weeks along at my first OB/GYN visit when an ultrasound revealed that I was only measuring at six weeks. We were told we could have our dates off.

I’m pretty good (obsessive) with dates and knew deep down inside that something was terribly wrong.

My doctor ordered blood work to check my hCG (the pregnancy hormone) levels and more ultrasounds a week later. Unfortunately, my hCG levels dropped and we learned last Thursday that there had been no growth to the embryo since week six. I had a terrific pregnancy with my son, so why would I think anything would or could go wrong with this one? I certainly felt pregnant.

But, in the end, my gut was right. There was something wrong and this pregnancy wasn’t meant to be.

Of course, we’ll never know exactly what went wrong. Why did this happen to us? What went wrong? Did I do something different this time around? Will it happen again?

I know that miscarriage is far more common than we like to think and often times there are no answers. I’ll have to accept that. Eventually.

All I know right now is that this hurts. I’m sad and because I don’t want to wait around for my body to have a natural miscarriage, I have a D & C (a procedure to scrape and collect the tissue from inside the uterus) scheduled for this afternoon.

Please keep those of us who have been through this terrible ordeal in your thoughts. Thank you.

Not All Anniversaries Are Happy

{sigh} Yesterday was the 6 month anniversary of Robert’s death ~ he was 14 1/2 months old when he died. The past 6 months seem more like a year. I thought time dragged on when my husband Joe was deployed in Iraq, but that flew by in comparison to this. Not a day goes by that I don’t think to myself “Oh no, I forgot Robert at home.”

Or I look in the backseat of the truck & my heart stops because I think “I lost Robert in the store!!!”

Then I realize that he’s gone.

I flash back to the moment I found him laying so still in his crib, I knew in my heart he was already gone. There was nothing I could do.

6 months ago was the hardest day of my life.

Harder than saying goodbye to my husband while I was 9 months pregnant as he drove off on a bus late at night to get on a plane to go to war.

Harder than the day I had to go to the hospital, alone, straight from my OB appointment because they couldn’t find Robert’s heart beat.

Harder than the day Robert was born and the phone connection Joe was on in Iraq sucked and I couldn’t hear him half the time.

Harder than giving birth to Robert, without an epidural because he came so quick it didn’t take.

Harder than the 9 months I was home alone with 3 kids and a husband who was at war and having near misses at death almost everyday.

At 7:55 am on Sunday December 14, 2008 I went to get Robert up and ready for church. I picked my baby up out of his crib and I knew he was dead. I wanted to scream, but I couldn’t. Brianna was in our bedroom watching Playhouse Disney. She couldn’t know what was happening. I carried Robert into the living room, called 911 and pleaded for help.

I gave my baby CPR, knowing it was useless, waiting for what seemed like hours for the police to arrive, it was barely 3 minutes.

I handed Robert to the first officer through the door who actually was in Joe’s unit. He took Robert and another officer and paramedics came in. They tried to work on him, but I knew from the words they were saying it was too late. As soon as I had handed Robert to them I called Joe’s cell phone. He didn’t answer and I didn’t know where he was.

He had left at 4:45 am to take Kameryn to his hockey game. Joe’s phone was ringing, but then I realized, that I didn’t know what to say. I handed my phone over to another officer and said, “I can’t tell my husband. You have to talk to him.” I don’t know what he said, but thank God Joe was only around the corner. Joe barreled through the front door to find me sitting on the floor, sobbing.

Joe called his family to come over and they were at my house within minutes. I couldn’t get in touch with my parents, but finally, my best friend Heather and the police went to my parents’ house to tell them.

All I wanted was to get to the hospital to be with Robert but I had to answer questions. Joe called his LT at work, his 1Sgt from the unit. “God, we need to get to the hospital. Why are we still here?” was that all I could think.

Finally, they let us leave for the hospital.

They took us into a waiting room where we had to wait while person after person from the hospital and police talked to us. Thankfully, not long after we got to the hospital so did numerous people from Joe’s unit, our church, and people from Joe’s work. I was so overwhelmed by how many people came to help us. Much of the rest of the day at the hospital is still a blur. I remember pits and pieces of those hours but mainly I just remember being numb.

My Robert was dead.

What had happened? All the questions the coroner was asking me, that I had to tell the detective the same things I had told the police at the house, I just wanted to see my baby. “When can I see Robert?”

Finally, Joe & I could see him. Our sweet baby boy. All I wanted to do was lay next to him, my head next to him, smelling his hair. Bubby had the best hair, he was supposed to get a hair cut on Friday. I just rubbed his hair with one hand & held Joe’s with the other. Kissing my baby’s head, tears wetting it.

That is how I spent the day 6 months ago

Brothers Forever, Twins No More

We thought we were in a dream, all the joys and fears at the same time. We got two cribs, two sets of every outfit (but in different colors), two swings, two of everything…except two identical boys.

We lost Jonathan James when he was 7 months (in utero). I was given the choice, but I never held him. I had to carry his identical brother Lewis Jordan, for an additional 7 weeks. He just was not ready to leave his brother until then. We knew about the extreme risks of twin-to-twin transfusion, how our surviving son would likely have severe brain damage as blood shunting causes terrible problems for a developing baby. We prepared ourselves for the very real possibility that our surviving son might not recognizing us, speak or walk.

We were destroyed.

I spent the next 7 weeks in a rocking chair in the nursery with TWO of everything; rubbing baby lotion on my hands and inhaling, trying to stop the sobs and the unearthly sounding wails that came from deep within my heart.

But I had another to worry about. Lewis. During all this turmoil, the grief over Jonathan could not be allowed to hobble me too badly, I could not let it, I had to be ready to care for the child that was alive and waiting to meet his parents.

Thank Christ the doctors were wrong about Lewis’ challenges. He was born by C-section on a cold January day, crying out when they removed him from his space. I know he cried out because they were taking him from his beloved brother, Jonathan. They thought it was because he was cold and the lights were bright. Fools.

His kidneys began to shut down 3 minutes after he was born. As they whisked him away from me, I demanded my husband leave my side and go with our son, to protect him, and promise to bring him back to me, healthy and safe.

The OB asked me if I wanted to see Jonathan, warning me that the body’s natural reaction is reabsorbtion, I asked only one question, “are you sure they were identical?” The doctor replied, “one sac, one placenta.” I replied with a heavy heart while still wide open on the operating table, “no, I already know what he looks like, just like his brother.”

Two hours later, my husband brought back our son, placed him in my arms and kissed my forehead. The doctors had stabilized him, no further medical issues had arisen and today he is a healthy, happy, wickedly intelligent nine-year old boy.

I will forever be happy that our son is healthy.

I also will be forever crushed that he does not have his twin brother.

I wish I could make the ache go away.

I wish that I was not jealous of other twins.

I will always wish that I had been strong enough to bring both of my sons into this world (though I followed every order from the medical establishment, I will always blame myself).

I wish I had my Jonathan.

Only The Beginning

Our timing was so perfect. We tried casually to conceive for a couple months, then got pregnant the first month I charted my temperatures. Our baby would be born in May, a month I thought was perfect to have a baby. I’d be off all summer on maternity leave, and I’d still be thirty–a milestone that felt like a relief after our decision to start a family seemed to come not a moment too soon. I had almost made it to the end of the first trimester when I started spotting. We went in for an ultrasound and the baby measured 9 weeks, when I knew for sure I should have been closer to 10 weeks… but there was a heartbeat! We had some sweet relief for a week, in which I felt comfortable telling a few more people at work–because the chance of losing your baby after you’ve seen or heard the heartbeat goes down dramatically. But then my hormone levels seemed to be falling after another blood draw. Dr. Google told us that it was normal for HCG levels to fall later in the first trimester, so we tried not to go wild with worry over a weekend spent waiting for Monday’s ultrasound.

Our baby had grown and developed more in the week since we had last seen it, and there was still a heartbeat. The ultrasound tech spent a long time looking at the baby, doing things we didn’t really understand like examining the blood flow. She gave us a couple pictures and said “good luck with everything.” We went back into the waiting room for the midwife on call to let us know the results. They handed me the phone across the front desk and she started by telling me that yes, there was a heartbeat and that was a good sign, but… BUT. The nuchal fold looked thickened, which was a sign of a chromosomal abnormality. We would need further tests and they would help me get the screening scheduled. She was going to come in to talk to us more. I looked across the room at Jed in utter terror. He rushed over to me and I couldn’t believe I was getting this news over the phone in the middle of the waiting room. I started crying instantly and they ushered us into an empty exam room.

We held each other, crying and afraid, until the midwife came in to expand on the bad news. What the tech saw in the ultrasound didn’t look good–the thick nuchal fold and an omphalocele, I would probably miscarry. In the meantime we would go to a big nearby hospital for a better ultrasound. Either way, we would probably “have some decisions to make.”

That was a Monday. The next ultrasound was on Friday. Neither of us went to work that week. We stayed in, crying, devastated. I needed help getting out of bed every morning because the sadness was paralyzing. We distracted ourselves by painting the kitchen and baking zucchini bread. Our 4th anniversary was on Thursday. I was 11 weeks pregnant with a dying baby.

Friday arrived and we trekked through the hospital to Maternal and Fetal Medicine and one of the top ultrasound doctors in the country. The room had a second ultrasound screen on the wall facing the exam chair, so the mamas can have good views of their babies. I couldn’t decide how much I wanted to look. My husband wanted to punch the resident who hovered around, looking at the screen with barely veiled repulsion. I didn’t notice; I was busy trying to survive. After a really long exam, we sat in a meeting room with the doctor and a couple nurses, where the doctor explained that our baby had edema–cystic hygroma–all over its body, to a level that indicated a chromosomal abnormality so severe the baby wouldn’t survive. There was no way to predict how long I would stay pregnant. I could miscarry that day, or I could go to term and deliver a baby with a certain death sentence.

Termination for medical reasons was suddenly an option they would help me look into.

We went home in shock. It was impossible to comprehend the gravity of this most horrible thing that had ever happened to us. We made the heartbreaking choice to terminate our much-wanted pregnancy and scheduled the appointment. There were only a couple places in our area where I could get an elective termination, despite it being for a pregnancy with no chance of a positive outcome. My midwife wanted to help me but there was nothing they could do in their office.

While we waited for that awful date to arrive we both went back to work. I was like a ghost. People were sad for me and each hug made me cry. I also kept catching myself in “preparing for parenthood” mode—bookmarking an article about librarianship and parenthood, making note of the book about treating common childhood illnesses at home, realizing my new shirt would also make a good maternity shirt. Telling a coworker about how we thought we might dress up our 5-month-old as an acorn for Halloween next year. Falling silent and trying not to start sobbing. I realized my life wasn’t in that place anymore, but my heart hadn’t caught up. I hadn’t yet fallen out of the habit of preparing for baby.

Late that week I felt like my symptoms were diminishing–my nausea was suddenly totally gone. I made a last-minute appointment with the midwife to check for a heartbeat. If there wasn’t a heartbeat, I wouldn’t have to go for the termination and I could stay in the care of my midwife for whatever happened next. The ultrasound tech–who I now reflexively hated–told me I didn’t have to look at the screen while she checked for, and found, the heartbeat. It felt so cruelly wrong that I had almost been hoping for the opposite. I wanted the suffering to be over, for us and my poor sick baby. The midwife understood my emotional state and emphasized that when abnormalities this severe are found this early, there is no chance of survival.

That weekend we went to have dinner at my parents’ house. We’re close with our families, and in a terrible piece of timing, my parents had been in France this whole time and dealing with our news on their vacation. This also meant seeing my sister-in-law who was also pregnant, with the same due date as mine. You read that right. She’s not the most empathetic person, and this was the first day of the next seven months she spent avoiding us.

The next day we arrived at the family planning clinic at a different big hospital in the area, first thing in the morning. The only other people in the waiting room were a small cluster of people centered on a very sad woman. They were obviously there for the same reasons we were–the pain bubbles around all of us were huge. We got in to see the doctor and asked if we had any options as far as anesthesia, because we had been told that today we’d decide with the doctor whether I’d be put to sleep. This seemed like news to the doctor, who kept talking about how it was less expensive to do it the way they usually did–local anesthesia only, awake the whole time. That was pretty much the last of our concerns, not to mention the fact that amazingly my insurance was going to cover it either way and we ended up paying $47. But we just numbly moved forward. It was happening. She flipped on the ultrasound and we saw our baby for the last time, laying peacefully in my womb, no heartbeat. I suppose we could have walked out right then, but it was over for our baby, and we wanted it all to be over so we could move on with our grief. Three hours later, the baby was no longer a part of me and we were on our way home, empty. The D&C was painful and traumatic. It couldn’t have taken long, but it felt like forever. The physical pain was a distraction, but so inconsequential to this pain I was positive was going to be lifelong.

Our terrible limbo was over, but this was only the beginning of our suffering. I write this now almost a year out from the nightmare, with a baby girl who appears to be healthy kicking in my belly, but the intervening months–and subsequent bonus chemical pregnancy just to show how very cruel life can be–have changed me forever. I will never have the innocence of getting pregnant and assuming I’m going to have a baby. I can still place myself right back in the pain and terror of the slog of grief.

Unhealed

The first miscarriage was the one that destroyed me.

I lost four more babies; suffered a failed adoption; and barely saw my first born before she was yanked from between my legs – limp and drenched in a dark, life-sucking coat of meconium – then rushed to specialists trained to cheat death.

But that first loss, when my body cramped and convulsed and spit out a baby we so desperately wanted, is what shattered my heart. It robbed me of hope and started a years-long spiral into grief, despair and, ultimately, nothingness.

Exhausted by the anguish and terrified of feeling it again, I turned off as one loss became two. I numbed myself as two bled into three, and the doctors called me infertile. I became a shell and didn’t feel the fourth miscarriage or remember the fifth. I disassociated from my body when the doctors told me they intubated our first born and knocked her out after she had an eight-minute seizure. That person, sitting speechless and alone in the hospital room after they rushed our baby to a first-rate NICU at a different hospital in another city? That wasn’t me.

But it was.

I was 30 and married just a few months when I first got pregnant. I didn’t know much about babies, didn’t have friends who had them – or lost them. And I certainly never heard the statistic that as many as 1 in 4 pregnancies end in miscarriage.

We pored over baby name books at the bookstore and delighted my parents with the news. We heard the baby’s heartbeat and marked the due date on the calendar.

Then we saw blood. Just a spot. “It’s common in early pregnancy,” the nurse told us over the phone. “Try not to worry.” So, we didn’t. We believed her. We didn’t know enough not to. Idiots.

Then I bled more and they asked us, ever so calmly, to come in to the office. “Let’s just take a look.”

I sat in the passenger’s seat while Kent drove down the interstate and I tried not to think this was anything more than typical bleeding. Truthfully, though, I feared otherwise. Kent excitedly pulled an ultrasound photo from his suit pocket as we readied for the doctor; he couldn’t wait to compare the growth from the last appointment to now.

Ten years later, I can still see the inside of the car and the exit from the highway as it was that day that changed everything. I see the inside of the doctor’s office and Kent fiddling with the black and white photo.

“Put it away,” I snapped nervously. Sure he was jinxing the luck we needed.

And then, quick and impersonal as a business transaction at the bank, the doctor inserted the ultrasound wand, marked the top and bottom of the little bean with an X and explained that he didn’t see a heartbeat.

“Put your clothes back on and when I come back in we’ll talk,” he said.

We left the office in silence, a short, poorly-written book about miscarriage in our hands and an appointment for a D&C on the books. The tears started in the car and rushed with scary abandon once I crumbled on to the couch at home. I hid my face and howled into a pillow. Angry, terrified, lost.

Kent made phone calls to my family, talked to my boss. He tried to explain what we didn’t understand. How it happened. Why? When.

I agonized over the “when,” made myself sick flipping through the calendar as I tried to imagine what I did the day our baby died. Because, of course, I killed the baby. We went camping a few weekends before: did scrambling over rocks and hiking to exhaustion kill the baby? I spent too many hours at the newsroom: did I drown the baby with the stress of deadlines, interviews, and vapid politicians?

The baby fell out of me in horrifying pools of blood and fluid and mangled clots the night before the doctors planned a sterile procedure on a cold operating table. I was alone in the house, doubled over with cramps when the first gush sent me running to the toilet. Over the course of the night, Kent phoned the doctor several times to ask about the shocking volume of blood spilled in the tub, the toilet, the bed, on the floor.

We left the doctor’s office the next morning in silence. We stopped for bagels – because I was famished after losing so much blood – and ate without a word: chewed food, swallowed milk, stared past each other. Like robots, if robots could eat.

Kent went to work while I called in sick the next few days, stayed home and wept with little reprieve. I listened to angry, pulsing music at deafening volume to drown the mournful wails of my heart. And I wrote a letter to the baby I held in my belly but never felt in my arms.

“Today we were supposed to see you once again, all flickers and squirms and holy, miraculous life,” I wrote. “Instead, we shall say goodbye. We came to church to do it. We had hoped the baptismal waters would rush one Sunday morning in June as the priest held you aloft and the congregation craned to see your pink body and dark hair. God would welcome you then, we thought. We didn’t know He’d want to take you now…

“Now, we entrust you to Him. Though we wanted so desperately to hold you and touch you. Love you. Watch you. Clothe and bathe and feed you. Nibble your feet and tickle your ears. We couldn’t. But we did love you. And we will miss you. You can be sure.”

I signed the letter, then Kent did too and we traveled to church to leave a pink tulip at the base of the baptismal font, a symbolic gesture to signal the start of our healing.

Ten years later, I pulled the letter from the envelope and found a leaf from a Japanese maple and a helicopter seed tucked in with it. Signs of life lost, just like our baby.

I changed, but I am not healed.

A Rock In Your Shoe

A little while after Charlie died, a girl I volunteered with at the Ronald McDonald House shared her idea with me about the grieving process. She had lost her 5 year old to Cancer a few years earlier so she had experience and was already a member of the “Moms of Angels” club.

She said grieving was much like a rock in your shoe.

And you can’t get it out. Can’t take the shoe off and shake it out. It is there and always will be.

At first it cuts into your heel and ball of your foot causing you to bleed and be in pain. Then after a little while, you can wiggle it around and get it into a spot where you can’t feel it too much.

But every now and then something will happen and make that rock get under the heel of your foot – causing you to bleed and be in pain. So you go through life with this rock in your shoe that sometimes causes you a lot of pain and sometimes is just “there”.

I thought that was very interesting at the time. And now I know that it is very true.

I attended a visitation for a friend’s stepdad about 5 years later at the funeral home where Charlie was. I remember our visitation almost too vividly. I remember greeting hundreds of people (seriously, like 500) – local friends and friends who had driven several hours or had flown in for our 24-day old baby’s funeral. It was very humbling. I had been in that room for various visitations over the last 5 years with very little pain. But tonight for some reason when I walked in the room, I felt physically ill. Like I might throw up. I remember feeling that way the first time I went in the church where we had his service (my home church) and that morning they just happened to have a baptism and sang “Jesus Loves Me”. Again, I felt physically ill.

You never know what is going to trigger one of those “Moments” and the moment might not make you cry and get all emotional or anything, but it puts a knot in your stomach and makes your hands shake and just makes you feel that rock in your shoe.

But I’ll be able to wiggle it back out of the way and go for a little while until it decides to get under my heel again. This is how we are able to go on.