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This morning on the way into town, I had a flashback of a phone call. A phone call I’d had with hospice, seven months ago.
I remember it well. I was in the back room at my parents house where I’d been staying for the last week or so to help take care of my mom. She was sick. She had taken a turn for the worse. She’d had Stage 4 Colon Cancer for four years. It had been four years of fighting: first chemo and surgeries, and then natural medicine and a special diet.
She’d lived far longer than the doctors thought possible. She’d outlived the projections of every website and message board I’d visited in my obsessive need to understand what we were up against. Her CEA (tumor marker) numbers stayed low and nothing showed up in her monthly exams for a long time.
Then, the numbers started to creep up. After three years of nothing, they’d found a new spot on her liver.
It only took four months to go from finding that small spot to being in that back room on the phone with a lady from hospice.
Mom had been getting intravenous fluids the week before. As weak as she was, we would help her get dressed, get her to the car, one of us on each side to keep her from falling, drive her to the hospital and wait the two to three hours to get the fluids and then repeat the process to get her home.
We’d done this every day for a week, but the benefits of the fluids were starting to be countered by the difficulty of the journey. She was getting too sick to make the trip anymore. We’d talked to her doctor, the hospital, to anyone we could think of to figure out how to get the fluids to come to her. We felt certain there had to be a traveling nurse, or someone else who could administer the fluids. If the problem was that insurance or Medicare wouldn’t cover the cost, we were all more than willing to pay for it.
We just needed someone willing to do it.
When I asked the lady from hospice if that was something she could help us with, instead of answering my question, she asked some of her own: What did I think was really going on? What did I think the fluids were going to do for my mom? Would it be better to keep her going as long as we could, as she got sicker and sicker? Were we doing this for her, or were we doing this for ourselves?
We discussed that Mom’s body wasn’t benefiting from the fluids as well as we’d hoped. Her liver and kidneys had already begun to shut down, and we knew she was experiencing fluid retention. In fact, the fluids we were fighting so desperately for may have been doing more harm than good.
I had one of those moments when the blood thunders through your ears, the air is sucked from your lungs, and time slows down.
She was so sick. Every day she was getting sicker. Of course we knew she was going to die. But until that moment, I’d been in fight mode.
This was the first moment I realized the fight was really over.
The lady on the other end of the phone waited until I stopped crying, and we made arrangements for her to come over to talk to the rest of the family. We’d been fighting this disease aggressively for over four years. It was going to take some professional help to transition from that all-consuming fight to helping our Mom let go and…die.
She came over and we all gathered around the couch where Mom was laying, and we talked about the fact that she really was dying.
It was singularly the saddest discussion I’ve ever been a participant in. Everyone left my sister and I alone with Mom. We talked about how this was really it. We told her how much we loved her, how we would be there with her through it all, and how we would be there to see her on the other side.
I wonder how she felt at that moment.
I think about that moment a lot. I regret that moment sometimes. I wish we’d stayed in denial about her death so we’d never have had that discussion. Once it was out there, it seemed like any fight she had went away. She was ready for it to be over.
My sister, my grown niece and nephew, my aunt and I all took shifts staying with her and Dad. At first we gently tried to get her to eat and drink, but in retrospect that may have been a lingering need to fight for her life. Eventually, even that stopped.
I’d stay for two days, then leave for one or two. I would go to work on the days I was away. Work became a sanctuary where my mind was otherwise occupied. As I drove the hour and a half back to my parents, I felt the heaviness increase until I had to drag myself up the steps and into their house.
We’d brought a hospital bed into their living room so I’d see her the minute I opened the door. Every time I opened that door, I wanted to recoil in horror. Our mom was laying in that bed dying! It couldn’t have felt more surreal.
By then, she was drugged and asleep, and unable to talk much even while awake. It was a living nightmare.
A strange numb detachment descended upon me. I’ve never been like that my whole life. It was like my brain just shut parts of itself off. I felt made of stone.
We held her hand. We brushed the hair out of her face. We put chapstick on her lips and swabs of water in her mouth. We told her how much we loved her over and over and told her we were going to be okay. We promised that we would never stop talking about her to our kids so they would always remember her. We talked about our hope for the future when we would all be together again and she would be healthy.
I hope that she felt some comfort from us being there with her. I know she was scared; her brow and face would be scrunched up with anxiety and pain, even though she couldn’t voice it. The best we could do was give her the shots of pain and anxiety medication that hospice had left for her.
The last time I saw her alive, the truth is, I knew it would be the last time.
I should have stayed. I should have stayed. I should have stayed.
But when my niece came over for her shift, I left. To escape the horror, the impending doom, and the despair, I went back to my house. The next morning, I talked to my niece and she told me that Mom’s hands were getting colder, and I knew I should go back. I knew the signs of impending death by heart; I’d read them over and over in hopes of preparing myself.
But I didn’t go back. I went to work instead. My sister called me at work to let me know she was at Mom’s. She held the phone to Mom’s ear so I could tell her that I love her. She couldn’t talk, but I could hear her breathing loud in an attempt (I choose to believe this) to communicate with me. My sister then called my brother and they had a similar interaction.
My sister was on one side of Mom holding her hand, and my Mom’s baby sister was on her other side holding her hand when it started. They told her it was okay to let go.
First off, let me explain that I have four amazing daughters, and I’m out the other side of postpartum psychosis – I hope that my words will help others to feel less alone. The power of words can be magical.
While I was fine mentally after my first daughter was born, I was faring poorly after giving birth to my second; I’d had a traumatic birth experience coupled with the loss of my relationship with my partner. My ex and I separated, so I blamed the loss of my relationship for my mental health issues. After I went to the doctor, I was given antidepressants, which I thought would help, but they only made me feel seasick, nauseous, and I couldn’t focus on anything.
With side effects like that, I stopped taking the antidepressants; I didn’t detox or stop taking them correctly, but still I felt like a million dollars and I felt a huge relief once I moved away from ex. Now, I adored my girls but I had bonding issues with my second, which is always painfully hard.
Three years later and I met my current husband. I’d never felt so content and adored. I fell pregnant with my third daughter, having once vowed I would never have any more kids – but I didn’t feel right denying my husband the joys of children – I gave him the gift of parenthood! I’d had a perfect pregnancy and labour, and the most beautiful little bundle was born. Four months later, we got married and my baby started to get ill – like really ill – and ended up tube fed in hospital for a week.
I’d stopped breastfeeding her during that week, and guess what?! I’d fallen pregnant with a fourth daughter, and this time my pregnancy was, at best, surreal, and, at worst, heartbreaking to relive. I became psychotic, erratic, forgetful, resentful, and fell completely off the rails.
One day, we were driving to collect my eldest daughters from their dad – 100 miles away – and I tried to stop our car in the middle of the motorway. My husband first thought I was joking but I wasn’t. I’d literally lost the plot. I was screaming and trying to change the gears on the car. I was trying to get out of the car while it was moving. Within a minute, my husband was crying, begging me to calm down.
In the UK it’s illegal to pull over on a motorway, but we got stuck in traffic and our eight-month old baby was screaming from the back of the car. I was 3 1/2 months pregnant and screaming that I was going to jump off a bridge. I was so desperate to get out the car. We couldn’t go anywhere, we were stuck in traffic with me inconsolable. My husband managed to pacify me.
At that point I should have sought help, I know that now, but I continued on with my life because I didn’t want to be prescribed additional shitty antidepressants. I soldiered on, all the while making everyone else around me miserable, scared, and resentful of me and my outbursts. I was vile, but I couldn’t see it or understand why I felt this way.
One morning, my husband went to get his hair cut at the barber and got caught in traffic – no big deal. When he came home, I started launching potatoes at his head – hot jacket potatoes straight from the oven, because I’d thought that if he didn’t have the manners to eat his dinner with his family, he could wear it! I was launching potatoes at his head while he was ducking, trying to reassure and cuddle me. Suddenly, I was convinced he was seeing someone else.
I used to go out at 2:00 AM when I couldn’t sleep and drive to the supermarket to do my weekly shop, just so I could drive past the cliff edge and dream of driving off of it. I was volatile and suicidal.
I adored my daughters and husband, but I genuinely believed everyone would be better off without my potato-throwing, car-stopping self in their lives. And quite frankly – at that time – they probably would have been. In the end, my husband rang my family, crying on the phone, begging them to intervene as he was at breaking point himself.
My mum drove me to A and E at 4:00 AM to see the emergency mental health team. It took five hours of me sitting, heavily pregnant, in a waiting room with heroin addicts fighting each other, waiting for their psych consultations before I was seen. I totally broke down. I was exhausted and scared and so, so confused. The mental health treatment team wanted to give me a c-section and sedate me, but it made me more irrational. I promised to stay with my family if I didn’t have to take any antidepressants, as all I could think was whatever I take, the baby takes.
They agreed with my plan, as long as I had a crisis meeting with my whole family and had someone with me at all times. By then, I had eight weeks to go. I was still an emotional train wreck but somehow I got through it. I gave birth to the most stunning little baby girl whom I bonded with immediately, thankfully. The mental health team believed that my symptoms were all related to hormones, as there was such a small age gap between babies and from the moment she was born I was fine. Since then, I have been mentally better.
Now, I have a completely different outlook on life.
At my most significant appointment, when I really was on the brink, the most wonderful psych doc told me this: “Suicide transfers your pain and torment to the ones you leave behind.” I truly believe those words are the reason I didn’t drive off of the cliff. I couldn’t leave my girls and husband.
I now live a normal life with my husband and four girls, and it feels like a lifetime ago. I talk about it a lot with friends and with strangers (and anyone who will listen) because I’m not ashamed of having had postpartum psychosis.
I’m simply proud to be out the other side and when people say they envy my beautiful family and relationship with my husband, I tell them the reality, and how much it took to get to where we are.
Then I tell them I have the best potato throw they will ever see!
Postpartum Psychosis (PP) is a severe, yet treatable, form of postpartum mental illness that occurs to some women after they’ve had a baby. It can happen to women without previous experience of mental illness, and usually begins in the first few days to weeks after childbirth. About half of women who experience it have no risk factors; but women with a prior history of mental illness, like bipolar disorder, a history of prior episodes of postpartum psychosis, or a family history are at a higher risk. Postpartum psychosis is different from postpartum depression and the Baby Blues Baby blues is common 2-3 days after childbirth but should pass. In some cases, the depressed mood lingers for more than 2 weeks and months after the labor, when some women receive a diagnosis of postpartum depression.
Postpartum Psychosis is a rare mental illness, compared to the rates of postpartum depression or postpartum anxiety. It occurs in approximately 1 to 2 out of every 1,000 deliveries, or approximately .1 -.2% of births. The onset is usually sudden, most often within the first two weeks postpartum, Unlike the Baby Blues symptoms, postpartum psychosis is treated as a medical emergency and requires urgent treatment. Most women get committed to a mental hospital, residing either in Mother and Baby units, at the general psychiatric ward, or in postpartum depression treatment centers.
Postpartum psychosis can worsen extremely quickly and should always be treated as a medical emergency. Most women need to be treated with medication and admitted to hospital for emergent care to treat the woman for the symptoms of this frightening mental illness.
Of the women who develop a postpartum psychosis, research has suggested that there is approximately a 5% suicide rate and a 4% infanticide rate associated with the illness. This is because the woman experiencing psychosis is experiencing a break from reality. In her psychotic state, the delusions and beliefs make sense to her; they feel very real to her and are often religious. Immediate treatment for a woman going through psychosis is imperative.
It is also important to remember that many survivors of postpartum psychosis never experience delusions that give violent commands. Delusions can take many forms, and not all of them are destructive. Most women who experience postpartum psychosis do not harm themselves or anyone else. However, there is always the risk of danger because psychosis includes delusional thinking and irrational judgment, and this is illness must be quickly assessed, treated, and carefully monitored by a trained mental healthcare team.
Postpartum psychosis is temporary and treatable with professional help, but it is an emergency and it is essential that you receive immediate help. If you feel you or someone you know may be suffering from this illness, know that it is not your fault and you are not to blame. Call your doctor or an emergency crisis hotline right away so that you can get the help you need.
Fortunately, with the right treatment, women with PP can and do make a full recovery. Recovery takes time and the journey may be tough. The illness can be frightening and shocking for both the woman experiencing it and her partner. Women do return to their normal selves, and are able to regain the mothering role they expected. There is no evidence that the baby’s long term development is affected by Postpartum Psychosis.
Postpartum mood disorders can include severe depression (sometimes mixed with anxiety), as well as other seriously disabling problems labeled with terms such as anxiety/ \panic disorder, obsessive-compulsive disorder, post-traumatic stress disorder, and, very rarely, psychosis. Postpartum depression is by far the most common of postpartum mood disorders, affecting about one in seven new mothers. It can start anytime in the first year after giving birth. Symptoms of postpartum depression can include hopelessness, suicidal thoughts, sleep and eating problems, inability to feel good or be comforted, and withdrawing into oneself. A woman experiencing postpartum depression may have a hard time caring for her baby or meeting the other demands of daily life.
Besides postpartum depression, women sometimes experience other postpartum mood disorders. Feelings of intense anxiety, fear, or panic, along with rapid breathing, an accelerated heart rate, hot or cold flashes, chest pain, and shaking or dizziness are symptoms of an anxiety/panic disorder. Recurrent frightening thoughts, including obsessing over the baby’s health or acting out repetitive behaviors such as compulsive hand washing, are symptoms of an obsessive-compulsive disorder. A combination of depression with anxiety/panic disorder or obsessive-compulsive disorder is also possible.
Postpartum Psychosis is the label used by most professionals for an episode of mania or psychosis that occurs soon after childbirth. However, other names can be used, including: Puerperal Psychosis; Postnatal Psychosis; Mania or Bipolar Disorder triggered by childbirth (this doesn’t necessarily mean that your partner will develop ongoing Bipolar Disorder); Schizoaffective Disorder with onset following childbirth (this doesn’t necessarily mean that you will develop ongoing Schizoaffective Disorder); Postnatal Depression with psychotic features.
While there appears to be a strong link between postpartum psychosis and bipolar disorder, it’s estimated that about half of women who present with postpartum psychosis have no psychiatric history prior to delivery, making it difficult to identify women who are at greatest risk for this illnessThere are many other mental health conditions that occur following childbirth, including Postpartum Depression, Postpartum Anxiety, and Postpartum Obsessive Compulsive Disorder (P-OCD). It is important that these conditions are not grouped under the term Postpartum Depression. PPD is much more common than PP, but tends to require different treatments and has different causes and outcomes.
Help is available
You’re not alone.
What Are The Causes Risk Factors For Postpartum Psychosis?
If you’re at high risk of developing postpartum psychosis, you should have specialist care during pregnancy, though about half of women who experience postpartum psychosis have no risk factors. While research into Postpartum Psychosis is ongoing, we still have much to learn about this serious mental illness. What is currently known about Postpartum Psychosis is this:
Lower birth weight increases the risk of postpartum psychosis, whereas gestational diabetes and birth weight were associated with a reduced risk of first-onset psychoses during the postpartum period.
Older mothers (over 35 years) are about 2.4 times as likely to experience postpartum psychosis than younger mothers (under 19 years).
PP is not your fault. It is not caused by anything you or your partner have thought or done.
Relationship problems, family, money troubles, or an unwanted baby do not cause PP.
The dramatic changes in hormone levels following birth are thought to trigger PP, but studies have not yet identified how these factors are involved.
For a woman with no history of mental illness who has a close relative (a mother or sister) who had postpartum psychosis, the risk is about 3%
The first month after delivery is the time of greatest risk for psychotic illness.
Genetic factors are thought to play a role. Women are more likely to have PP if a close relative has had PP. There may be a genetic component; while mutations in chromosome 16 and in specific genes involved in serotoninergic, hormonal, and inflammatory pathways have been identified, none had been confirmed as of 2019
Women with a history of Bipolar Disorder or schizophrenia are at very high risk of PP.
Disrupted sleep patterns may cause PP for some
Women who already have a diagnosis of bipolar disorder, schizoaffective disorder, schizophrenia, or another psychotic illness are considered to be at a higher risk for developing postpartum psychosis.
Women with a history of bipolar disorder, schizophrenia, prior episode of postpartum psychosis, or a family history of postpartum psychosis are at high risk; about 25-50% of women in this group will have postpartum psychosis.
After one episode of postpartum psychosis, the risk for additional episodes of postpartum psychosis increases to 30-50%.
There is mixed evidence about whether the type of delivery or a traumatic delivery plays a role. It is possible that there are overlaps with physical illnesses that occur during childbirth, such as pre-eclampsia and infection..
What Are The Symptoms of Postpartum Psychosis?
Symptoms of postpartum psychosis usually start suddenly within the first two weeks after giving birth. Rarely, they can develop several weeks after the baby is born. For some women, Postpartum Psychosis may develop very quickly and become obvious that something is wrong. For other people, symptoms may emerge more gradually. This can be difficult to determine if the symptoms are part of the natural childbirth process, or if it’s an actual emergency. When in doubt, call for help.
The symptoms vary and can change quickly. The most severe symptoms last from 2 to 12 weeks, and recovery usually takes 6 months to a year.
Postpartum Psychosis is a medical emergency and must be treated immediately.
Women with Postpartum Psychosis experience some or all of the following symptoms:
Excited, elated, or feeling “high”
Depressed, anxious, or confused.
Excessively irritable or changeable in mood (also called mood lability)
Postpartum Psychosis must also include one or more of the following:
Strange beliefs that could not be true (delusions).
Hearing, seeing, feeling or smelling things that are not there (hallucinations).
High mood with loss of touch with reality(mania).
Severe confusion.
These are also common symptoms:
Being more talkative, sociable, on the phone an excessive amount.
Having a very busy mind or racing thoughts.
Feeling very energetic and like Super Mom
Agitated and restless.
Having trouble sleeping, or not feeling the need to sleep.
Behaving in a way that is out of character or out of control.
Feeling paranoid or suspicious of people’s motives.
Feeling that things are connected in special ways or that stories on the TV or radio have special personal meaning.
Feeling that the baby is connected to God or the Devil in some way.
The majority of postpartum survivors rarely or never experience violent tendencies and delusions. The vast majority of women who survive postpartum psychosis won’t harm themselves or the baby. However, staying quiet about the debilitating condition, the loneliness deprives both mother and child of bonding and forming the strong connection that would otherwise occur.
Suicide and infanticide, the most devastating outcomes of severe postpartum psychosis, occur in between 4 and 5% of women afflicted with the illness. Tragic outcomes happen when the symptoms in a mother worsen to the point of detaching from reality. Mothers become deeply affected by irrational, paranoid ideas that make sense to them.
Most often, infanticide takes place when the mother believes that the child is in danger, often from supernatural forces, so ending the baby’s life looks like the only remaining option. Tragic outcomes can only be avoided through urgent medical treatment.
How is Postpartum Psychosis Diagnosed?
Diagnosis of postpartum psychosis always requires hospitalization, where treatment is antipsychotic medication, mood stabilizers, and, in cases of strong risk for suicide, electroconvulsive therapy. Women who have been hospitalized for a psychiatric condition immediately after delivery are at a much higher risk of suicide during the first year after delivery.
The rapid and accurate diagnosis of postpartum psychosis is essential to expedite appropriate treatment and to allow for quick, full recovery, prevention of future episodes, and reduction of risk to the mother and her children and family.
How Is Postpartum Psychosis Treated?
Postpartum Psychosis is a psychiatric EMERGENCY and must be treated immediately.
Call 911 or your doctor.
Treatment of Postpartum Psychosis has no official guidelines. Once tests are administered and all the proper medical causes have been excluded from the diagnosis then the proper treatment is given based on the symptoms. Before the mother is released from the hospital, the team that administered treatment will work with the mother and her family to create a discharge plan that will strengthen her support, along with close follow-up, and prevent stressors that will risk the mother relapsing. Also, for future pregnancies, the mother’s primary care provider is advised to work jointly with other specialists on her care team giving her care in thought of anti-manic prophylaxis during pregnancy or after childbirth.
The mother may not recognize that she has anything wrong with her, so it may be up to the family to insist upon proper psychiatric care. At no time should the mother be left alone with the child until it is determined that the mother is being properly treated and the mother and child are both safe. It is vital that there be a supportive network of family and friends to care for both the mother and the baby.
The mother should be thoroughly evaluated by a doctor both during the episode and for some time afterwards. Symptoms may reappear within a year or two postpartum. Hospitalization is required in order for the mother’s treatment, particularly any medication regimens, to be properly administered and monitored. Women do return to their normal selves, and are able to regain the mothering role they expected. There is no evidence that the baby’s long term development is affected by Postpartum Psychosis.
Note: It is not uncommon for people to think the term postpartum schizophrenia is interchangeable with the diagnosis of postpartum psychosis. Postpartum schizophrenia is not a real diagnosis. Schizophrenia itself is a different diagnosis than psychosis. The disease of schizophrenia is treatable, but not curable. Postpartum psychosis, on the other hand, is both treatable and curable.
Admission To The Hospital:
As Postpartum Psychosis is an actual emergency, the very best and safest place for someone who has PP is in the hospital, which can cause major feelings within the family. Often, people don’t want to go or stay in the hospital for treatment, but as PP can lead to murder, suicide, and infanticide, ensuring your safety is the most important goal. In the hospital, you will be treated using a variety of different medications, other therapies, and therapy.
If you’re the partner of someone who has postpartum psychosis, it’s very likely that you may have to involuntarily to commit your loved one – for the safety of all involved. The length of time for hospital admission is highly individual. An average stay for PP is around 8 –12 weeks, but some women are admitted for only 2 weeks and some for much longer
Partners say that seeking treatment can bring about a vast array of difficult emotions – feelings of disloyalty, guilt, relief, helplessness, stress and frustration. The health system can be hard to navigate, and a great deal of tenacity is sometimes needed.
Before you is discharged from the hospital, you and your partner should ask for help in making a plan of action with your treatment team in case she gets ill again. The plan should include:
Triggers that may make you more vulnerable to high or low moods, such as stress.
Early warning signs to look out for, such as sleeplessness.
Which treatments or medications, and what doses, have worked well in the past.
Any medications you’d like to avoid.
Where you would like to be treated if you were to go back into a hospital.
The phone numbers of any health professionals and services you’ll need.
Activities you find helpful to your recovery.
Medication For Postpartum Psychosis:
You may only be in hospital for a short time, but it’s likely that you’ll probably need to take medication for a longer period after being discharged from hospital.
Different medications and dosages work for different people and it’s hard to find the right balance of psychiatric medications, so you may have to change medications and treatment at any time. Many medications used to treat Postpartum Psychosis have some side effects, so be sure to continue to chat with your treatment team about your treatment, including any side effects you are experiencing. Dosage can be changed or taken at different times of the day depending upon the side effects.
Many medications for postpartum psychosis can take 3 – 4 weeks to have an effect, which can cause major anger and frustration for all involved. Your doctors will be keeping an eye on how you and may change medication as needed. Be sure to ask the doctors and nurses any questions you have about your medications.
It’s very likely that your treatment team will use some of the medications listed below. It’s important to note that some of the medications for PP may have some unpleasant side effects for some, people, particularly when just starting to take them. Make certain to report any and all side effects to your treatment plan.
Antidepressants are used to help improve low mood and are often used alongside a mood stabilizer.
Antipsychotics are used to help treat psychotic symptoms such as unusual beliefs (delusions) and seeing or hearing things that are not there (hallucinations). They can also help to reduce anxiety and high mood (mania). At higher doses, many antipsychotics can cause you to feel sleepy and unmotivated, but remember that you may need these higher doses to fully recover.
Benzodiazepines may be used to help to reduce agitation and anxiety.
Mood stabilizers may be used to treat high mood (mania), low mood (depression) and dramatic changes in mood.
Sleeping medications can be used in the short term to help regain normal sleeping patterns.
ECT (Electroconvulsive therapy) In some cases, severe symptoms of Postpartum Psychosis persist even when you’ve been taking medication for quite awhile.If this is the case, or if the illness is particularly severe, the psychiatrist treating your partner may recommend that you consider ECT. ECT can be an effective treatment for PP.
Other types of therapies may also be used to help you, including psychological therapy. As you move forward with your recovery, you will receive a referral to a therapist for therapy.
Most women who have recovered say that taking medication was vital to their recovery as medications help bring the symptoms of psychosis under control and to stabilize your mood.You may feel, however, that medication only helps with half the problem – symptoms but not self confidence. It is important to use more active recovery methods alongside medication to help with self confidence and the social side of recovery.
The great majority of women with postpartum psychosis make a full recovery as long as they receive the right treatment.
The Aftermath of Postpartum Psychosis:
You and your family should have emergency contact numbers for local crisis services, if you, your partner, or family think you are becoming unwell. If you think you are becoming unwell again, don’t wait to seek help.
Postpartum psychosis can go undetected and pass spontaneously in many women. Considering the risks, the best way to help yourself is to surround yourself with support. Being open and honest about your feelings, thoughts and fears will help your family and friends understand your condition better.
In the early days after being diagnosed and/or receiving treatment in hospital you may feel a sense of confusion about the events of your baby’s birth and your illness. Many women find it hard to remember the exact sequence of events. Some of the following ideas may help you to piece together what happened:
Ask your treatment for a summary of events and your treatment.
Talk to your partner or family about what happened – but some people find this very hard and need time to recover first.
Write your story as you can remember it.
Use photos or memories to put together a timeline of events. This can help you look back on your baby’s first days even though they weren’t how you expected them to be.
Read other women’s stories Many women behave in ways that are really out of character during an episode of Postpartum Psychosis. It may help just to know that these experiences are usual symptoms of the illness.
These ideas may help you learn to cope with what has happened:
You may feel let down, angry, and/or unhappy about the way treatment was started, especially if you had to go to hospital under an involuntary admission.Remind yourself that these were symptoms of the illness and not a permanent change in you.
It is very common during PP to become angry, excitable, use inappropriate language, be overfamiliar with strangers, or believe you have special insight or powers.
Distressing thoughts about harming yourself or your baby are also common, though very upsetting. It is very normal to feel embarrassment or shock at the things you did when unwell.
Talk through upsetting symptoms with your partner.
Ask to speak to a health professional (such as a support worker, specialist midwife, community psychiatric nurse, or another member of the your treatment team) about how you feel about your symptoms.
A psychologist or counsellor (particularly one with specialist knowledge of postnatal illness) may be able to help you talk through your experiences.
It’s normal to feel a whole range of emotions when you begin to recover from Postpartum Psychosis (PP). Below are some common emotions:
Shock
Embarrassment
Why me?
Anger
Exhaustion
Guilt
Worries and anxiety about bonding with your baby, your relationships, and your future health.
People recover from distressing experiences in different ways. Some need to talk about it, others may find that they’d like to face recovery in a different way, and you may find that you and your partner are dealing with the impact of PP in the same way, or in very different manners. This is where you and your partner must work together, be patient with each other, provide support and love, and don’t hesitate to ask the treatment team if what you’re experiencing is normal.
Here are some of the things you can do to cope with postpartum psychosis:
Be open about your thoughts, fears, and doubts. The postpartum period is always a rocky emotional and mental journey and a time of great mental adjustment.
Beat fear and shame. Most women who experience aggressive or irrational thoughts about themselves and their babies feel ashamed of talking about it. Sharing your thoughts with close ones helps them help you. Once you’ve experienced and received support, you will feel more confident in your recovery and gradually regain faith in your own judgment.
Be kind to yourself and understand that postpartum psychosis doesn’t define you. You’re no less of a mother because you have a mental illness. You didn’t choose to get sick, and you are equally valuable to your baby and your family regardless of your mental state.
Follow your care plan. Stay devoted to taking medication as prescribed and keeping up with appointments. At times, you might too tired or drowsy to stay on schedule. Make sure to have a backup plan to meet all of your appointments, including someone to drive you and someone to stay with the baby.
Focus on rest, recovery, and bonding with your child. Recovery from postpartum psychosis isn’t the time to worry about housework. Rely on friends and relatives to help as much as possible so that you can spend plenty of time resting and bonding with the baby.
Many women who have been through PP find that there are ups and downs in their mood over the first year of recovery, which can lead to feelings of a relapse or setback, if things have been otherwise going well. Having another bout of anxiety, depression, and other symptoms can make women feel as they’ll never recover. An episode of postpartum psychosis is sometimes followed by a period of depression, anxiety and low confidence.
It might take a while for you to come to terms with what happened. Some mothers have difficulty bonding with their baby after an episode of postpartum psychosis, or feel some sadness at missing out on time with their baby. With support from your partner, family, friends, and your mental health team, you can overcome these feelings.
Neither you or your partner can make this mental illness get better by toughing it out. It’s something that must be closely monitored and treated and watched and talked about. Try to have a discussion about PP at least every day.
Set small achievable goals. As you monitor your progress you’ll see that every setback doesn’t take you back to square one. It’s important for you to see how far you’ve come.
Keep a mood diary, which can help you track triggers for high and low moods. This is handy to bring to the treatment team, so they can best monitor and treat your mental illness Partners may want to keep a mood diary of their own. Getting to know yourself better allows you to notice any things you do which particularly affect the mood at home, for better or worse.
Make a a list of things that make you feel happy, and try them out when you’re feeling down and make a list of things that help you feel calmer and more relaxed, use them to try something from it if you’re feeling stressed or high.
What Are The Outcomes For Women Who Have Postpartum Psychosis?
The most severe symptoms of PP usually last from 2 to 12 weeks; it can take between six months and a year to recover – every woman is different in her recovery. Women often experience low self-esteem and difficulties as they recover, but most women fully recover. Many women who have PP have a hard time bonding with their child as they recover, but end up with healthy relationships with their babies.
Postpartum psychosis can disappear gradually in the months after labor, but can also linger for years. Women who choose to speak openly about the illness and seek help often find that antepartum psychiatrists and medication have a beneficial long-term impact.
About half of women who experience postpartum psychosis have further experiences of mental illness unrelated to childbirth; further pregnancies do not change that risk. Women hospitalized for a psychiatric illness shortly after giving birth have a 70 times greater risk of suicide in the first 12 months following delivery.
Should I Have Another Baby?
Making the decision to have another baby isn’t straightforward. Thinking about it might bring a lot of worries – will you and your partner go through the same painful experiences all over again? The more you can both share about your
hopes and fears, the easier it will be to make an informed decision together.
Many women who have had Postpartum Psychosis go on to have more children, and about 50% do not experience PP again after the birth of another baby. With the right care, if your partner does have another episode, you should be able to spot the signs, get help before it becomes too severe, and recover more quickly the second time around.
You can plan as many children as you want, even with history of postpartum psychosis. However, you will have to set up a support system and be prepared for the illness right after childbirth. Those with high risk from postpartum psychosis should have a support team monitoring their state during the pregnancy and after childbirth. If you’re expecting to experience postpartum psychosis after childbirth, specialist care during the pregnancy, as well as consultations with a psychiatrist are a good way to support mental health.
At around 32 weeks of pregnancy, everyone involved with your care, including family and friends, midwife, GP, and obstetrician, should meet to exchange information and agree on the postpartum care plans. In some maternity units, you may see a psychiatrist or mental health nurse before you leave hospital, even if you are well. This is to check that you are well at the time you go home. They should also check the plan made at your pre-birth planning meeting. They can make sure you have any medication you need and set up any support services as possible.
You should get a copy of your written care plan. This should include early warning symptoms and a plan for your care. There should also be details of how you and your family can get help quickly if you do become unwell.
The best solution for your postpartum care is to define the treatment course after the delivery. Some women have symptoms so severe that they need to be admitted to the psychiatric ward right after the childbirth. Others rely on the help of friends and family with housework and the baby. In some cases, mothers are under constant supervision from family members and never left alone with the baby. Though it might seem unsettling to know you can’t be alone with your child, this is the only way to ensure the safety of both of you. When someone is always present to help out with the baby, you are left with more time to recover and bond with the child.
You should discuss:
The risk of developing postpartum psychosis.
Risks and benefits of medication in pregnancy and after birth. This should give you the information you need to make decisions about your treatment.
The type of care you can expect in your local area from perinatal mental health and maternity services and how professionals work together with you and your family.
If you are at high risk of postpartum psychosis, you should have specialist care in pregnancy, If you are already under the care another mental health service they can work together
For Partners And Loved Ones: Coping With Postpartum Psychosis:
Do NOT hesitate to call emergency services if you’re concerned for your partner and your new baby.
Sitting next to – rather than in front – of your partner can help him or her feel more comfortable. This position also helps lessen feelings of confrontation if she is confused. Try to remain a friend and on their good side and talk to your partner, even it seems she’s not able to fully comprehend what you’re saying. Your voice is soothing.
Keep things as quiet and calm as possible, reduce any loud noises you can Things such as television programs may be too stimulating for him or her. Limit your partner’s mobile phone as possible, so he or she doesn’t have the embarrassment later of realizing they made frantic calls to distant friends or work colleagues during the period in which they were most ill.
This is a tricky thing to understand, but don’t try to reason with her; it’ll only make her more upset and confused – which is what you’re trying to avoid. Don’t take what she says or does too personally. What you’re hearing from him or her is the postpartum psychosis talking, not your partner, and isn’t what he or she really believes.
When her symptoms are severe, your partner will need help to look after the baby – she cannot be left alone with the baby. If she needs to go into hospital, the baby doesn’t typically accompany his or her parent Where your partner receives care will depend on
how ill she is, it may be helpful for family or friends to come and support you if they are able.
If your partner is admitted to the hospital, you can help her recovery by visiting regularly with the baby and giving her the opportunity to help with dressing, feeding, and changing the baby as well as plenty of time for cuddles.
Admission To The Hospital:
When your partner is admitted – voluntarily or not – you must find out as much about her treatment plan, while expecting it to change often. Ask questions like:
What kinds of health professionals will be in your partner’s treatment team?
How will they work with your partner?
What will they do for her?
It’s generally known that a psychiatric hospital can be scary, chaotic, and frightening environment for both mother and baby. It’s generally unlikely that a baby will be staying with your partner throughout her stay. Ask questions such as:
Can you bring the baby to see his or her mother?
What time are visiting hours and for how long? Is there somewhere to have some privacy when you visit?
If your partner is breastfeeding, do they have a hospital grade pump and/or the capacity to store formula for when the baby visits.
How do they plan to manage any postpartum physical issues (such as C-section care).
Will your partner have short leave periods when you could take the baby for a walk around the grounds?
Coping While Your Partner is Inpatient:
Your role for a few weeks is going to be balancing looking after yourself, your partner and bonding with your baby. It’s a difficult, stressful, and tiring time for you and your family. Don’t hesitate to ask for help as you can. Feeling alone, confused, stressed, frustrated or unsure of how to help is very normal at this point.
Before you share your partner’s illness, give yourself a bit of time to think about who needs to know what. Explaining what’s happening to family and friends is quite difficult. While we are making progress in destigmatizing mental illness, old habits die hard, and it can be hard for people to accept mental illness. Speak to your own and your partner’s families as close together in time as possible. Here’s what you should consider before you begin telling other people:
Who needs to know the whole story? Who only needs the highlights?
Does your partner want any visitors or phone calls yet?
Who can personally support you? What kind of support do you need?
What practical support can they give?
Watching the baby and/or other children
Who can and will help by cooking meals?
Informing other friends and family up to date
House work
Someone to lean on emotionally
Recognize what your partner needs and encourage people not to call the hospital or your partner directly in the first few days.
Advocating For Your Partner:
There will be a lot of information understand all at once, and we all know that conversations with doctors and nurses can be jargon-heavy for anyone – especially if you have no medical training. Keep a notebook with you to record things like: important phone numbers; names of her treatment teams, numbers to reach each of them, dates of meetings, therapies being tried, spellings and dosages of medications; how your partner is doing, and what her symptoms are when you visit or phone; any advice you’ve been given; and questions you want to ask.
Don’t be afraid to ask doctors and nurses to take the time to explain things to you.
Caring For The Baby:
You must also look after your own health, and make sure you put your “oxygen mask” on first. You’re no good to anyone if you’re neglecting yourself. Remember that looking after your partner and family is a lotto cope with. It may be particularly difficult if your normal support system is your partner, as she can’t be there for you as she is ill.
You might find yourself feeling stressed, anxious, low, or unwell. Find a friend or family member you can talk to, then let them know how you’re feeling. Letting out your feelings can only help you – and is in no way related to how “strong” you feel you must be. This is scary – don’t kid yourself.
It isn’t selfish to think about yourself.
Caring for a baby might be new to you. Remember that the first few weeks after having a baby are hard for every parent, even without the additional worries and extra jobs that you have.
All new parents need help and advice in the early days, so don’t be afraid to ask the nurse, treatment team, and loved ones to help you with feeding, holding, bathing, sleep routines, and bonding with your baby.
Discharge From Hospital:
You’ve done it! You’ve both gotten to the other side and you’re stronger for it – but it can be a particularly daunting task. It’s OK for you both to feel totally nervous about this. Coming home is the beginning of a deeper recovery process, and recovery may take longer than anyone would like.
Before she comes home, though, work with your partner and her treatment team to establish an action plan if her symptoms worsen, who to call in an emergency, and when your partner should be readmitted, if necessary.
In the beginning you may note that your partner has probably lost confidence as a mother, so try to let her learn on her own. You don’t need to be the Baby Expert in the home (it will only serve to make her feel badly), let her learn what she needs and how to ask for help. Be honest, and reassure her that there’s really plenty of things that you don’t yet know how to do, either. Support her taking small steps with independent care for the baby, rather than letting her back out and letting you do it.
Make time to talk to each other – you are both getting over a big ordeal. Your patience may be low and things may be moving too slowly for your liking, but she needs to recover as much as you do. If she’s up to it, have fun together and enjoy some of the things you’ve missed. Prioritize spending time together – you are the best team to help each other and your baby. Some people suggest that you take lots of photos of yourselves and your baby, to help you and your partner remember this time and have some happy memories for you both to look back upon.
Ideally there will be a plan in place for community mental health services to continue supporting your partner at home.
Most areas have a huge number of privately run parent-infant groups, such as baby massage, singing and signing, baby yoga etc. Some parents find these groups helpful and others find it too daunting to attend alone when recovering. Most groups are also open to Dads and babies.
Raising a child is a lot of work! Don’t be afraid to ask friends and relatives to help out in practical ways. You could ask people who live locally to organize a meal rotation, or just to be available tot ext when you need some shopping or to get some laundry done.
Recovery From Postpartum Psychosis:
Once your partner has left hospital is when you really need support like fathers’ groups and frequent contact with her treatment plan. Postpartum psychosis can have a big impact on your life, but support is available. It might help to speak to others who’ve had the same condition, or connect with a charity.
You and your partner need to realize that all parents have good and bad days; tears, exhaustion, and anxiety aren’t always a bad thing. Just keep an eye on your partner and her behavior and don’t hesitate to call for help if it appears that there’s something more going on than normal parenting woes.
While your partner is unwell and in recovery, your relationship will probably be different than it has been. Many couples who’ve been through PP say that their relationship did change due to the illness. Some feel that their relationship
sufferer while others feel that their relationship strengthened as they shared the experience of going through PP as they learned to respect the resilience and determination their partners
showed in the sometimes-long recovery period.
There are a number of organizations that help couples work though their issues; these might be helpful a little further down the line. Talk to a mental health professional or find a local support group. Your experiences during your partner’s illness may leave you feeling shocked, frightened, or overwhelmed, and you may find that seeing a counselor to address your feelings helps you cope.
If you are concerned that your partner is making plans to commit suicide, get help urgently by calling emergency services or taking her directly to the hospital emergency department.It can be very distressing if your partner is having suicidal thoughts during recovery, but these can happen. There is no evidence that asking about suicidal thoughts will give someone an idea, so it’s wise to discuss this openly and honestly.
PP is a severe illness and recovery takes time. Women who have had PP say it can take 12 – 18 months or longer to feel ‘normal again’ and to fully regain their confidence.
It can take time to deal with the difficult emotions that have been part of your partner’s illness and recovery. Don’t rush her or yourself and make certain to be sensitive to her feelings; a lot of people who’ve had postpartum psychosis feel ashamed and embarrassed by the things they’ve done or said during their break from reality. In addition, she may have issues with separating what actually occurred during PP versus the delusions and hallucinations that she thought were real
Offering the right support to your partner while she monitors her own feelings and behaviors can be a bit tricky. It’s important that you’re both aware of the seriousness of what she’s been
through and are looking out for any signs that she’s becoming unwell. Try to be sensitive to the fact that your partner may feel watched or judged and fear that whatever she does might e seen as a symptom of illness.
You can help your partner, relative or friend by:
Be calm and supportive
Take the time to listen
Help with housework and cooking
Help with childcare and night-time feeds
letting them get as much sleep as possible
helping with shopping and household chores
keeping the home as calm and quiet as possible
Discourage too many visitors
Support for partners, relatives and friends
Postpartum psychosis can be distressing for partners, relatives and friends, too.
If your partner, relative or friend is going through an episode of postpartum psychosis or recovering, don’t be afraid to get help yourself.
Available 24 hours a day, you will be asked to leave a confidential message and a trained and caring volunteer will return your call or text. They will listen, answer questions, offer encouragement and connect you with local resources as needed.
Office on Women’s Health: Provide national leadership and coordination to improve the health of women and girls through policy, education, and innovative programs.
March of Dimes: March of Dimes leads the fight for the health of all moms and babies. We believe that every baby deserves the best possible start. Unfortunately, not all babies get one. We are changing that.
Pregnancy is a whirlwind of tons of emotions and sensations – our body is ever changing as well as our wishes, dreams, plans, hopes, and expectations that come at us both from every direction. It’s completely normal to feel overwhelmed by the idea of bringing a new life and person into the world, while strangers and loved ones alike bombard you with their experiences and ideas.
Most pregnant women feel their appetite increase, an eager anticipation of the new life to come, and sleep should be good (excepting getting comfortable, which is always a challenge during pregnancy). Normal worries and concerns will be sprinkled throughout the pregnancy experience, but they shouldn’t dominate our days or nights.
Ask yourself, “Do I emotionally feel like ‘me’ most of the day?” “Can I to sleep at night?” “Am I mostly excited about the baby coming?,” and “Am I eating enough?”
All of the above should be answered with a resounding “YES.”
If you’re not, it’s time to seek out a specialized health care practitioner who can help understand what’s happening with you
Depression and anxiety affect just as many pregnant women as new mothers, and can happen to the strongest, most intelligent, and loving moms. If you experience depression during your pregnancy, speak to your obstetrician – this is called antepartum depression, and it affects a great many men and women during pregnancy. There are a number of ways you can get help, and not all of them involve medications.
Every trimester you should either be given a formal screening or simply asked a few key questions to determine how you’re doing emotionally. Receiving the right help during pregnancy will not only be best for you and your entire family, it will help you minimize the risk of postpartum depression.
Several days to weeks after giving birth, some mothers and fathers notice that they’re experiencing some strange symptoms, (most commonly) sadness, and/or anxiety after the birth of their child.
An estimated 1 out of every 6 women and 1 out of every 10 men experiences troubling depression or anxiety after the birth or adoption of a child, and in most people, these feelings are generally transient in nature. Given the tremendously stressful period of learning to live life with a newborn or new child is tremendously stressful to all involved, which is why we now recognize then men can also have postpartum mood disorders.
During the postpartum period, about 85% of women experience some type of mood disturbance. Generally, these symptoms are mild and short-lived; however, 10 to 15% of women and men go on to develop more significant symptoms of depression or anxiety. Postpartum psychiatric illnesses are typically divided into categories:
Antenatal/Antepartum Depression
Postpartum Baby Blues
Postpartum Depression
Postpartum Anxiety Disorders
Postpartum OCD
Postpartum Psychosis
It may be useful to conceptualize these disorders as existing along a continuum, where postpartum blues is the mildest and postpartum psychosis the most severe form of postpartum mood disorders.
Postpartum mood disorders are often characterized by despondency, emotional instability, anger, guilt, tearfulness, worrying, anxious thoughts or images, feelings of inadequacy and the inability to cope. It may occur shortly after the arrival of a new baby or many months later. For some, symptoms may begin in pregnancy; which is called or Antenatal Depression. The types of postpartum mood disorders generally lay on a spectrum.
Risk Factors for Developing Postpartum Mood Disorders:
Some things can make you more likely than others to develop postpartum mood disorders, including PPD. These are called risk factor. and having a risk factor or a few doesn’t mean for sure that you’ll have any problems with your mental health during or after pregnancy, but these risk factors, may increase your chances. Talk to your health care provider to see if you’re at risk for a postpartum mood disorder.
Your health care provider should assess you for PPD at your postpartum care checkups, including questions about your risks, feelings, stress level, as well as your moods.
Risk factors for postpartum mood disorders include:
Depression during pregnancy (Antenatal depression) or you’ve had major depression or another mental illness before
Family history of depression or mental health disorders.
You’ve been physically or sexually abused in your life
Problems with your partner, including domestic violence (also called intimate partner violence or IPV).
Extra stress in your life, such being separated from your partner, the death of a loved one, or an illness that affects you or a loved one.
Unemployed or have low income, little education, or little support from family or friends.
Pregnancy is unplanned or unwanted, or you’re younger than 19.
You have diabetes. Diabetes can be pre-existing diabetes (also called pre-gestational diabetes) or it can be gestational diabetes.
Pregnancy complications such as premature birth, birth before 37 weeks of pregnant
Multiples (twins, triplets) pregnancy
Pregnant with a child who has been diagnosed birth defects
You have trouble breastfeeding or caring for your baby.
Infant is sick or has ongoing health conditions.
Negative thoughts about being a mom and/or having trouble adjusting to being a parent.
Negative thoughts and feelings about being a mom may include:
Doubts that you can be a good mom
Pressure to be a perfect mom
Feeling that you’re no longer the person you were before you had your baby
Feeling that you’re less attractive after having your baby
Having no free time for yourself
Feeling tired and moody because you aren’t sleeping well or getting enough sleep
What is Antenatal Depression?
Depression during pregnancy, or antepartum depression, is a mood disorder just like clinical depression as far as symptoms are concerned. Mood disorders are biological illnesses that involve changes in brain chemistry and men and women who suffer from major depression are at a higher risk for developing antenatal depression.
During pregnancy, as I’m sure you’re aware, hormone changes affects the chemicals in your brain, including those that tell you to eat, sleep, and rest. Some of the other hormone changes are directly related to Antenatal Depression and Antenatal Anxiety. Unfortunately, these hormones can be exacerbated by difficult life situations, stress, and other factors which can result in depression during pregnancy.
Women with Antepartum Depression tend experience some of the following symptoms for at least two weeks:
Persistent sadness
Problems concentrating
Sleeping too little or too much
Loss of interest in activities that you usually enjoy
Recurring thoughts of death, suicide, or hopelessness
Anxiety without a trigger
Feelings of guilt or worthlessness
Change in eating habits
What Are The Postpartum Baby Blues?
Specialists believe that approximately 50 to 85% of women and men experience postpartum blues during the first few weeks after delivery; part of it is related to wildly changing hormone levels, the stress of having a new person to care for, and not feeling as though they’ll be able to manage. As this type of mood disorder is common – even expected, it can be more accurate to consider The Baby Blues as a normal experience following childbirth rather than a psychiatric illness.
Rather than feelings of sadness, men and women with The Baby Blues more commonly report mood lability, tearfulness, anxiety, and/or irritability. These symptoms typically peak on the fourth or fifth day after delivery and may last for a few hours or a few days, remitting spontaneously within two weeks of delivery.
While these symptoms are unpredictable and often unsettling, they do not interfere with a woman’s ability to function. No specific treatment is required; however, it should be noted that sometimes The Baby Blues heralds the development of a more significant mood disorder, particularly in women who have a history of depression.
If symptoms of depression persist for longer than two weeks, you should be evaluated to rule out a more serious postpartum mood disorder.
What Is Postpartum Depression (PPD)?
PPD tends to emerge over the first two to three months postpartum but can occur at any point after delivery. Some men and women actually note the onset of milder depressive symptoms during pregnancy. Postpartum depression is clinically indistinguishable from depression occurring at other times during a woman’s life.
In women and men who have milder cases of PPD, it can be quite difficult to detect postpartum depression because many of the symptoms used to diagnose depression (such as sleep and appetite disturbance, fatigue) also occur in postpartum women in the absence of depression.
The Edinburgh Postnatal Depression Scale is a 10-item questionnaire that may be used to identify women who have PPD.
On this scale, a score of 12 or greater or an affirmative answer on question 10 (presence of suicidal thoughts) raise concern and indicate a need for more thorough evaluation.
Edinburgh Postnatal Depression Scale (EPDS)[1]
The questionnaire below is called the Edinburgh Postnatal Depression Scale (EDPS) The EDPS was developed to identify women who may have postpartum depression. Each answer is given a score of 0 to 3 . The maximum score is 30.
Please select the answer that comes closest to how you have felt in the past 7 days:
A score of more than 10 suggests minor or major depression may be present. Further evaluation is recommended.
Postpartum Depression (Postnatal Depression)
Postpartum depression is major depression that occurs after giving birth. Symptoms are present for most of the day and last for at least 2 weeks.
As many as 1 in every 7 women (14%) suffers postpartum depression .In a study of 209 women referred for major depression during or after pregnancy 11.5% reported start of depression during pregnancy, 66.5 % reported start of depression within 6 weeks after childbirth (early postpartum), and 22% reported onset 6 weeks after childbirth (late postpartum), One woman reported onset of depression at more than 27 weeks after childbirth.
Racing thoughts, psychotic symptoms (such as hallucinations or delusions), or a family history of bipolar disorder (BPD) may indicate bipolar disorder is present.
Treatment
Treatment of depression during pregnancy and after childbirth is based on expert opinion. “Within the limits of expert opinion and with the expectation that future research data will take precedence, these guidelines provide some direction”. The following are some treatment options that have been suggested .
Mild depression
Psychotherapy such as cognitive-behavioral therapy (CBT) OR interpersonal therapy
Mild Depression postpartum while breast-feeding
Psychotherapy with or without antidepressant (sertraline or paroxetine)
Severe Depression
Psychotherapy AND fluoxetine
Alternative medications: sertraline or tricyclic antidepressant
Severe Depression postpartum while breast-feeding
Supportive services AND sertraline
Alternative medication: Paroxetine
Some of the symptoms of postpartum depression include:
Depressed or sad mood
Persistent sadness not otherwise explained
Tearfulness
Loss of interest in usual activities
Feelings of guilt
Feelings of worthlessness or incompetence
Fatigue
Sleep disturbance
Change in appetite
Poor concentration
Suicidal thoughts
What Causes Postpartum Depression?
The postpartum period is characterized by a rapid shift in the hormonal environment. Within the first 48 hours after delivery, estrogen and progesterone concentrations fall dramatically. As these gonadal steroids modulate neurotransmitter systems involved in the regulation of mood, many investigators have proposed a role for these hormonal shirts in the emergence of postpartum affective illness.
While seems as if there is no consistent correlation between serum levels of estrogen, progesterone, cortisol, or thyroid hormones and the occurrence of postpartum mood disturbance, some investigators hypothesize that there is a subgroup of women who are particularly sensitive to the hormonal changes that take place after delivery. This population of women may be more vulnerable to PPD and to other hormonally driven mood disturbances, such as those occurring during the premenstrual phase of the menstrual cycle or during the perimenopause.
Other factors may play a role in the development of PPD. One of the most consistent findings is that among women and men who report marital dissatisfaction and/or inadequate social supports, postpartum depressive mental illnesses is more common. Several investigators have also demonstrated that stressful life events occurring either during pregnancy or near the time of delivery appear to increase the likelihood of postpartum depression.
While all of these factors may act together to cause PPD, the emergence of this disorder probably reflects an underlying vulnerability to affective illness. Women with histories of major depression or bipolar disorder are more vulnerable to PPD, and women who develop PPD will often go on to have recurrent episodes of depression unrelated to pregnancy or childbirth.
Who is at Risk for Postpartum Depression?
All women are vulnerable to postpartum depression, regardless of age, marital status, education level, or socioeconomic status. While it is impossible to predict who will develop PPD, certain risk factors for PPD have been identified, including:
Previous episode of PPD
Depression during pregnancy (antenatal depression)
History of depression or bipolar disorder
Recent stressful life events
Inadequate social supports
Marital or family issues
What Is Postpartum Anxiety?
Recent research suggests that 6% of pregnant women and 10% of postpartum women develop significant anxiety disorders. Sometimes these men and women experience anxiety alone, and sometimes they experience it in addition to postpartum depression. You do not have to be diagnosed with OCD to experience these common symptoms of perinatal anxiety
Generalized anxiety is common in both the general population and the postpartum period, however some women may also develop more challenging types of anxiety, such as panic disorder, and/or hypochondriasis in the postpartum period. Postpartum obsessive-compulsive disorder has also been reported, in which women report disturbing and intrusive thoughts of harming their infant.
The symptoms of anxiety during pregnancy or postpartum might include:
Constant worry
Feeling that something bad is going to happen
Racing thoughts
Disturbances of sleep and appetite
Inability to sit still
Physical symptoms like dizziness, hot flashes, and nausea
Risk factors for perinatal anxiety and/or panic disorder may include a personal or family history of anxiety, previous perinatal depression or anxiety, or thyroid imbalance; however, many men and women develop Postpartum Anxiety without any risk factors.
Postpartum Panic Disorder is a form of anxiety with which the sufferer feels very nervous and has recurring panic attacks after the birth or adoption of a baby or child. During a panic attack, he or she may experience any or all of the following:
Shortness of breath
Feeling of someone sitting on his or her chest
Chest pain
Claustrophobia
Dizziness
Heart palpitations
Numbness and tingling in the extremities.
Panic attacks seem to go in waves, but it is important to know that they will pass and will not hurt you.
What Is Postpartum Obsessive-Compulsive Disorder?
Postpartum Obsessive-Compulsive Disorder (OCD) is probably most misunderstood and misdiagnosed of the perinatal mood disorders. It is estimated that as many as 3-5% of new mothers and some new fathers will experience some of these symptoms. The repetitive, intrusive images and thoughts are very frightening and can feel like they come “out of the blue.” Fortunately, postpartum OCD is temporary and treatable with professional help. If you feel you may be suffering from one of this illness, know that it is not your fault and you are not to blame.
Research has shown that these images are anxious in nature, not delusional, and have very low risk of being acted upon. It is far more likely that the parent with this symptom takes steps to avoid triggers and avoid what they fear is potential harm to the baby.
Some women and men do not have OCD but are bothered by obsessive-compulsive symptoms.
Symptoms of Postpartum Obsessive-Compulsive symptoms can include:
Obsessions, also called intrusive thoughts, which are persistent, repetitive thoughts or mental images related to the baby. These thoughts are very upsetting and not something the woman has ever experienced before.
Compulsions, where the mom may do certain things over and over again to reduce her fears and obsessions. This may include things like needing to clean constantly, check things many times, count or reorder things.
A sense of horror about the obsessions
Overly occupied with keeping your baby safe
Compelled to do certain things over and over again to help relieve her anxiety and fears–This can include counting things, ordering things, listing things, checking and rechecking actions already performed, and cleaning repeatedly. This may manifest itself in cleaning, feeding, or taking care of the baby.
May recognize these obsessions but feels horror and shame associated with them
Obsessions or thoughts that are persistent, are repetitive and can include mental images of the baby that are disturbing
Fear of being alone with the baby
Women who suffer from PPOCD often know that these thoughts, actions, and feelings are not normal and do not act on them. But the obsession can get in the way of a mom taking care of her baby properly or being able to enjoy her baby. With the right treatment, women with PPOCD can experience freedom from being controlled by these obsessions and compulsions
Fear of being left alone with the infant
Hypervigilance in protecting the infant
Moms with postpartum OCD know that their thoughts are bizarre and are very unlikely to ever act on them.
Risk factors for postpartum OCD include a personal or family history of anxiety or OCD.
Given the potential adverse effects of untreated mood and anxiety symptoms in either the mother, father, careful screening and early recognition of anxiety symptoms during the postpartum period is recommended. Antepartum anxiety are temporary and treatable with professional help. If you feel you may be suffering from one of these illnesses, know that it is not your fault and you are not to blame.
What Is Postpartum Post-Traumatic Stress Disorder (PPTSD)?
Postpartum post-traumatic stress disorder (P-PTSD) often affects women who experienced a real or perceived trauma during childbirth or immediately after the baby was born.
P-PTSD is not a well-researched postpartum mood disorder, but for the estimated 3 to 16 percent of new moms and dads who suffer from it, this postpartum mood disorder is very real and incredibly frightening. P-PTSD can greatly impact the way they experience parenthood and care for their new baby.
For most women, the safe delivery of a healthy baby is moment remembered with great happiness. But not every new mom’s birth experience is a joyful one. In fact, more than a third of recently delivered moms describe their birth as traumatic, and the American College of Obstetricians and Gynecologists estimate that 3 to 16 percent display severe traumatic stress responses in the postpartum period. Like war veterans who suffer from PTSD – intrusive memories and flashbacks after suffering traumatic experiences on the battlefield – moms with P-PTSD look at their childbirth experience as a source of pain and anxiety and suffer from very similar post-traumatic symptoms.
P-PTSD is triggered by a traumatic event or events – real or perceived –– during pregnancy, labor, delivery, or during the postpartum period.
A mom-to-be may experience a traumatic event, such as severe morning sickness, fertility treatments, or serious pregnancy complications. Some women might experience trauma during childbirth if their labor was long and painful, if there was a cord prolapse, shoulder dystocia, a severe tear, previously undiscovered birth defects, hemorrhage, or an emergency C-section.
Trauma may result from a home birth that resulted in a transfer to a hospital due to complications; it could be from a planned hospital delivery that ended up unexpectedly at home. Trauma may develop if someone who’d wanted an intervention-free birth ends up requiring life-saving interventions.
Postpartum traumas may include having a premature baby, a baby who needs to be in the NICU, breastfeeding difficulties, or worse, a stillbirth or loss of a child early on.
Often the trauma is an emotional one: feelings of being powerless, of not being listened to, of not having adequate support during childbirth.
It’s important to remember that postpartum PTSD can develop after a real or perceived threat of death of the mother, father, or baby.
Traumas that may cause postpartum post-traumatic stress (P-PTSD) disorder include:
Unplanned or emergency C-section
Emergency complication such as prolapsed umbilical cord
Birth that requires invasive interventions such as vacuum extractor or forceps
Baby requiring a NICU stay
Lack of support and assurance during the delivery
Lack of communication from the birth and support team
Feelings of powerlessness
Symptoms of P-PTSD may include:
Nightmares and flashbacks to the birth or trauma
Anxiety and panic attacks
Feeling a detachment from reality and life
Irritability, sleeplessness, hyper-vigilance, startles more easily
Avoidance of anything that brings reminders of the event such as people, places, smells, noises, feelings
May begin re-experiencing past traumatic events, including the event that triggered the disorder
Women who are experiencing PPTSD need to talk with a health care provider about what they are feeling. With the correct treatment, these symptoms will lessen and eventually go away.
What Is Postpartum Psychosis?
Postpartum Psychosis (PP) is a severe, but treatable, form of mental illness that occurs after having a baby. It can happen ‘out of the blue’ to women without previous experience of mental illness. There are some groups of women, women with a history of bipolar disorder for example, who are at much higher risk. PP normally begins in the first few days to weeks after childbirth. It can get worse very quickly and should always be treated as a medical emergency. Most women need to be treated with medication and admitted to hospital.
Postpartum psychosis is the most severe form of postpartum mood disorders and is extremely – extremely dangerous. Postpartum Psychosis is a medical emergency. If you believe a friend or loved one is suffering from Postpartum Psychosis, don’t wait: call 911. This is an emergency.
Fortunately, postpartum psychosis It is a rare postpartum mood disorder that occurs in approximately 1 to 2 per 1000 women after childbirth.
The presentation is often dramatic, with onset of symptoms as early as the first 48 to 72 hours after delivery. The majority of women with puerperal psychosis develop symptoms within the first two postpartum weeks.
With the right treatment, women with PP do make a full recovery. Recovery takes time and the journey may be tough. The illness can be frightening and shocking for both the woman experiencing it and her family. Women do return to their normal selves, and are able to regain the mothering role they expected. There is no evidence that the baby’s long term development is affected by Postpartum Psychosis.
There are a large variety of symptoms that women with PP can experience. Women may be:
Excited, elated, or ‘high’.
Depressed, anxious, or confused.
Excessively irritable or changeable in mood.
Postpartum Psychosis includes one or more of the following:
Strange beliefs that could not be true (delusions).
Hearing, seeing, feeling or smelling things that are not there (hallucinations).
High mood with loss of touch with reality (mania).
Paranoia
Attempts to harm the child or herself
Severe confusion.
These are also common symptoms:
Being more talkative, sociable, on the phone an excessive amount.
Having a very busy mind or racing thoughts.
Feeling very energetic and like ‘super-mum’ or agitated and restless.
Having trouble sleeping, or not feeling the need to sleep.
Behaving in a way that is out of character or out of control.
Feeling paranoid or suspicious of people’s motives.
Feeling that things are connected in special ways or that stories on the TV or radio have special personal meaning.
Feeling that the baby is connected to God or the Devil in some way.
It appears that in most cases, postpartum psychosis represents an episode of bipolar illness; the symptoms of puerperal psychosis most closely resemble those of a rapidly evolving manic (or mixed) episode. The earliest signs are restlessness, irritability, and insomnia. Women with this disorder exhibit a rapidly shifting depressed or elated mood, disorientation or confusion, and erratic or disorganized behavior. Delusional beliefs are common and often center on the infant.
Auditory hallucinations that instruct the mother to harm herself or her infant may also occur.
Risk for infanticide, as well as suicide, is significant in this population.
How Are Postpartum Mood Disorders Treated?
Postpartum depression presents along a continuum, and the type of treatment selected is based on the severity and type of symptoms present. However, before initiating psychiatric treatment, any medical causes for mood disturbances (including thyroid dysfunction and/or anemia) must be excluded. Initial evaluation of a man or woman for postpartum mood disorders should always include a thorough and complete history, a physical examination, as well as routine laboratory tests.
Non-pharmacological therapies are often useful in the treatment of postpartum depression. It has been wildly demonstrated that short-term cognitive-behavioral therapy (CBT) was as effective as treatment with fluoxetine in women who have postpartum depression. Interpersonal therapy (IPT) has also been shown to be effective for the treatment of women with mild-to-moderate postpartum depression. Not only is IPT effective for treating the symptoms of depression, women who receive IPT may also benefit from significant improvements in the quality of their interpersonal relationships.
These non-pharmacological interventions may be particularly attractive to those patients who are reluctant to use psychotropic medications (such as women who are breastfeeding) or for women who have milder forms of depressive illness. Women with more severe postpartum depression may choose to receive pharmacological treatment, either in addition to or instead of these non-pharmacological therapies.
Only a few studies have systematically assessed the pharmacological treatment of postpartum depression.
Conventional antidepressant medications (fluoxetine, sertraline, fluvoxamine, and venlafaxine) have shown efficacy in the treatment of postpartum depression, standard antidepressant doses were both effective and well tolerated. The choice of an antidepressant should be guided by the woman’s prior response to antidepressant medication and side effect profile. Specific serotonin reuptake inhibitors (SSRIs) are ideal first-line agents, as they are anxiolytic, non-sedating, and well-tolerated.
For women who cannot tolerate SSRIs, bupropion (Wellbutrin) may be an alternative; although one pilot study suggests bupropion may not be as effective as SSRIs
Tricyclic antidepressants (TCAs) are frequently used and, because they tend to be more sedating, may be more appropriate for women who present with prominent sleep disturbance. Given the prevalence of anxiety symptoms, adjunctive use of a benzodiazepine (including clonazepam, lorazepam) may be very helpful to help ease anxiety and allow for relaxation.
While it’s difficult to reliably predict which women in the general population will experience postpartum mood disorders, it is possible to identify certain subgroups of women (such as men and women with a history of mood disorders) who are more vulnerable to postpartum affective illness.
Current research indicates that prophylactic interventions may be instituted near or at the time of delivery to decrease the risk of postpartum illness. Several studies demonstrate that women with histories of bipolar disorder or puerperal psychosis benefit from prophylactic treatment with lithium instituted either prior to delivery (at 36 weeks gestation) or no later than the first 48 hours postpartum.
Women and men with postpartum psychiatric illness are offered a variety of services by clinicians with particular expertise in these areas:
Clinical evaluation for postpartum mood and anxiety disorders
Medication management
Consultation regarding breastfeeding and psychotropic medications
Puerperal psychosis is considered a psychiatric emergency that typically requires inpatient treatment.
Acute treatment with either typical or atypical anti-psychotic medications is indicated. Given the well-established relationship between puerperal psychosis and bipolar disorder, postpartum psychosis should be treated as an affective psychosis and a mood stabilizer is indicated.
Electroconvulsive therapy (ECT) is well-tolerated and rapidly effective for severe postpartum depression and psychosis.
Can I Take Medications While Breastfeeding?
The nutritional, immunologic and psychological benefits of breastfeeding have been well-documented. Women who plan to breastfeed must be informed that all psychotropic medications, including antidepressants, are secreted into the breast milk, though concentrations in the breast milk appear to vary widely throughout the day The amount of medication to which an infant is exposed depends on several factors including, dosage of medication, rate of maternal drug metabolism, and frequency and timing of feedings.
Over the past five years, we’ve learned more regarding the use of various antidepressants during breastfeeding. Available data on the tricyclic antidepressants, fluoxetine, paroxetine, and sertraline during breastfeeding have been encouraging and suggest that significant complications related to an infant’s exposure to these medications in breast milk appear to be rare. While less information is available on other antidepressants, there have been no reports of serious adverse events related to infant exposure to these medications.
Women who have bipolar disorder may discover breastfeeding may be much more problematic. The first concern is that on-demand, around-the-clock breastfeeding may significantly disrupt the mother’s sleep, which can increase her vulnerability to a relapse of bipolar disorder during the postpartum period. Second, there have been reports of toxicity in nursing infants who have been exposed to various mood stabilizers in the breast milk, including lithium and carbamazepine. Lithium, a gold standard in management of bipolar disorder, is excreted at high levels in the mother’s milk, so infant serum levels of Lithium are relatively high, which brings an increased risk of neonatal toxicity. Exposure to carbamazepine and valproic acid in the breast milk has also been associated with hepatotoxicity (liver toxicity) in a nursing infant.
If you’ve been diagnosed and treated for bipolar disorder, the very best thing that you can do for yourself and your infant is to develop a postpartum plan with your psychiatrist and your OB, based on the symptoms you experienced before you were pregnant. In this plan, you can address your postpartum concerns and ways to manage these concerns.
Additional Things You Can Do To Help Postpartum Mood Disorders:
With the controversy regarding the use of some antidepressants during pregnancy, many women are interested in other ways to help treat depression. As mentioned above, support groups, psychotherapy and light therapy are alternatives to using medication when treating mild to moderate depression.
In addition to these, you may want to talk with your health care providers about some of the other natural ways to help relieve the symptoms of depression.
If you do not feel comfortable talking with your health care provider about your feelings of depression, find someone else to talk with. It is important that someone knows what you are dealing with and can try to help you. Never try to face depression alone. Your baby needs you to seek help and get treatment.
Pay attention to the warning signs. Find out what triggers your mood disorder. Make a plan so that you know what to do if your symptoms get worse. Contact your doctor or therapist if you notice any changes. Ask friends or family to watch out for warning signs.
Stick to your treatment plan. Don’t skip psychotherapy sessions. Even if you’re feeling well, continue to take medication as prescribed.
Make some time to have fun. This can help remind you that everything won’t remain this stressful
Don’t isolate yourself, but don’t overcommit yourself, either.
Set realistic expectations. Be kind to yourself. Don’t pressure yourself to do everything. Ask for help when you need it.
New studies report acupuncture may be a viable option in treating depression in pregnant women.
Many foods have been linked to mood changes, the ability to handle stress and mental clarity. Diets high in caffeine, sugar, processed carbohydrates, artificial additives and low protein can all lead to issues regarding your mental and physical health. Make a conscious decision to start fueling your body with the foods that can help you feel better.
Learn about postpartum mood disorders. Empowerment leads us to feel better and more in control of our feelings.
Get exercise. Physical activity may help reduce symptoms
Exercise naturally increases serotonin levels and decreases cortisol levels.
Take a daily walk with your baby, or get together with other new moms for regular exercise.
Maintain an adequate diet. The Canada Food Guide is a useful reference in helping you choose how to eat well. Choose more protein and Omega 3, and fewer simple carbohydrates.
Avoid alcohol and illicit drugs. It may seem like they lessen your problems, but in the long run, they generally worsen symptoms and make the depression harder to treat.
Get adequate sleep. Lack of sleep greatly affects the body and mind’s ability to handle stress and day to day challenges. Work on establishing a routine sleep schedule that has you going to sleep and getting up at the same time. Ask for support from friends and family in watching the baby so you can get some sleep.
Available 24 hours a day, you will be asked to leave a confidential message and a trained and caring volunteer will return your call or text. They will listen, answer questions, offer encouragement and connect you with local resources as needed.
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It’s estimated that between 5-10% of the female population is affected in some way by Polycystic Ovarian Syndrome.
This is her infertility story.
I’m a lesbian. Ordinarily that isn’t super-important, but I’m at the point that I want kids, so it becomes very important.
Once people find out that I’m gay and want kids, I get asked, “So you’re planning to adopt, right?” There seems to be a socially-held expectation that being gay means you must adopt. Once, someone told me that adopting was “my social responsibility.”
However, my response is always, no, I want to carry my child. I want to experience pregnancy, with all its ups and downs. I want to feel my child grow. It’s my experience, and no one should try and take that away.
While I was never big into kids, I’ve dreamed about being pregnant since I was a teenager. I always vaguely knew it was something I had to do at some point.
Then, about two years ago, suddenly a switch flipped and it was all I could think about. I started reading about it, talking about it, doing everything I could to get near it.
And one day, my partner and I decided to start trying.
My partner and I have tried to get pregnant for a year and a half. We tried to get her pregnant because her cycle was regular. Since I cycled irregularly, and we didn’t know what it would take to get me regular enough to become pregnant, it seemed the easy choice. We started tracking her cycle, found a donor, went through a contractual process that took months, and finally started trying.
Every month we’d try, watch her symptoms, get excited, take the test… and it would be negative. Twice we got hopeful. But eighteen months and two miscarriages later, we’re back at square one.
During those eighteen months, I ran through every emotion imaginable. The worst of which was the jealousy; jealousy that I wasn’t able to carry our child. I consoled myself by saying I’d carry number two. However, by the end, we both felt defeated, deflated, and devastated. I also felt a fierce determination; a determination that I wanted this so badly, I’d do anything I needed to do.
After 18 months of failure to get pregnant, I decided to see an endocrinologist. I’ve always had a really irregular cycle, so I knew something was wrong. However, it took me a long time to be ready to face the possibilities of what that might mean.
After meeting with the endocrinologist, I was diagnosed with Polycystic Ovarian Syndrome, or PCOS. PCOS has major fertility implications – PCOS means that I don’t ovulate. No ovulation = no baby.
I’ve started a treatment regime including medication and weight loss, that so far has been unsuccessful in booting my system – no easy task. Next month I start an ovulation drug that will allow me to ovulate regularly.
All of a sudden, this got very, very real. My coping strategy involves researching the hell out of my options. I’ve been sensitive to my options for a while, because, by now, we’re up $2,000 in to plane tickets, doctor visits, and everything associated with a bootleg-approach to getting pregnant.
We tried working directly with our donor. We had him tested for fertility. We got ourselves prepped. It costs a lot of money. Starting our adventure with the endo and getting my cycle regulated meant we had to consider some options.
My options are to start fertility drugs.
Once I do this, I can try either a home insemination, or an Intrauterine Insemination, or IUI. This whole TTC thing gets complicated, overwhelming and expensive really quickly. My understanding is that IUI, in which a tube is placed in my uterus to flush sperm in to the area as I ovulate, is my best option.
Of course I know how baby-making works, but damn.
I hate that it has to be so clinical. I hate that there is always someone else in my bedroom. I hate that this can’t just be mine. I hate that I can’t be surprise. I hate that we will pay an $800 price tag for an 18% chance of success. It’s just not fair.
Despite all of this, I’m optimistic. Still looking forward to the future. I know it will happen, and I can’t wait until it does.
As long as there is that tiny pinprick of light, I’ll keep the sputtering flame of hope alive.