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I Went Back

Last June, I left my husband with the children at the request of social services. As time went by, I began to go through the different stages of grief. First of all, I didn’t feel anything about the abuse that my husband had given me. Secondly, I felt grief, then I felt angry and blamed him for the fact that the children had been removed from my care and put in the care of my parents.

Then I felt unsure. Had what he’d done to me actually been abuse? Was the way I had reacted at times a case of domestic violence? After all, I did throw a cup of tea at him in the middle of an argument. Did that constitute abuse?

When I first left my husband, he telephoned me often to beg me to go back. He would cry about how sorry he was. Every time I saw him at meetings with social services, he would cling to me like a child who was petrified that his mother was going to abandon him. Later, he finally began to accept that we were separate and that I really didn’t want to go back. Then, social services told us that neither of us had any hope of getting our children back because they said that the volatility of our relationship had emotionally abused them. This is untrue. We cared for our children to the best of our ability, and loved them so much that it hurt.

The children’s social worker is beligerent and only wants to tear families apart rather than putting them together. My husband suggested that if we couldn’t have the children, we should at least have each other. I told him that I had to think about it before I decided what to do. The more I thought about it, the more it made sense. Maybe we should try again. He had changed a lot in the space of nine months. Maybe things could be better this time. We’d both learned so much about ourselves and each other.

At the end of March, I moved back in with my husband, much to the chagrin of social services. They made a point of mentioning it in their reports that it was a sign that we put our relationship before our children. But how can we care for our children if our relationship is fractured and broken? Surely, if we fix our relationship, we’ll be able to better care for the children. After all, one of the reasons they took the children away from us was because of our relationship problems.

I’ve been back now for two months, six weeks of which I spent on the sofa with a broken ankle. When I went to the emergency room with my broken leg, someone commented to me that my husband treated me like a princess. And do you know what? He has. He has spent the last six weeks waiting on me hand and foot, while also redecorating our new bedroom. He went out to buy me wine, gum, and chocolate whenever I asked him to. But …part of me is still thinking maybe he’ll change back. I know that my family is scared of that. When I broke my leg, my father asked me if I’d really fallen down stairs or if I’d been pushed by my husband.

I’m scared to have sex with my husband because I’m scared of being raped again. Maybe my husband has really changed this time, but maybe he hasn’t. I’m so scared that he will go back to the way he was. Maybe my fears are the consequence of our volatile relationship. I don’t know. What do you think?

His Normal

G., my five-year old, has weekly therapy sessions. Right now we’re using therapy to help manage his ADHD symptoms but I’m also hoping that it’s able to help with his inability to express his feelings or relate to other children. My husband recently sent me an e-mail mentioning that G. asked when N., my two-year old, was going to start going to therapy.

And it made me cry.

G. doesn’t know that he’s different. I hope that he never does. We’re taking the necessary steps to help him at an early age. But it is hard. It’s hard having a child that behaves and reacts to things in a way that I don’t understand. I know that some of it, of course, is his age, but a lot of it has to do with ADHD.

T-ball is a prime example. Yes, I know. They are five. Attention spans aren’t exactly what your average five-year-old is known for. But when his team is on the field, the other little boys watch the ball and chase after it while G. lets it roll on by because he’s staring at the sky…or picking grass…or laying flat on his back in the outfield.

I’m the type of person who likes routine. I want things to go the way they’re supposed to go and get stressed or anxious when they do not. I realize that is my issue, and I’m working on it.

Routine does not work well with G. Requests with multiple steps do not work with G. Trying to get him to focus on anything for more than a few minutes does not work with G.

I know how swimming lessons and gym class have gone. I know how he has responded to soccer and T-ball. School is still a bit of a mystery to me. I know he’s a sweet and charming child and I know that he does well with women he likes. I also know that Kindergarten is packed with activities which means that the kids are never at any activity for too long, although the lessons of the day are repeated throughout, just in different ways. So it’s probably ideal for him.

But still, I worry. I worry that he can’t tell me the names of any of the students in his class. I worry that he’s not learning what he needs to be learning. I worry that Kindergarten may be the easy part, and next year first grade is going to throw us for a loop. I worry because that’s what I do, but also because of who he is. I’ve been worried about school from the first day I suspected that he had ADHD.

I worry because I watched my brother grow up with ADHD, and I watched him struggle. Things like school and making friends were so much harder for him. My brother is doing fantastically now. He’s working on his Master’s Degree. He’s in a career suited to his interests and personality. And he is still best friends with his best friends from fourth grade. One of whom was the best man at his wedding.

I know that I am not alone. I know there are other parents out there dealing with the same issues with their children.

On the bad days, however, it doesn’t make it any easier.

Thank You So Much

I’ve been having problems with my boyfriend (we are in our 40’s). He was brought up in foster care, abused by foster parents, and rejected by previous partners.

I read your article on self destructing behaviour and suddenly his anger all made sense. I now know how to cope with him, not only that, but help him overcome his lack of self worth. Thank you so much for helping!

Three Tips That Will Help Your Single Parent Juggling Act

Life after divorce is never easy. Yes, to you it might turn out as a pleasant change for a while, due to the release you got from all of your pain and misery, but it would be a difficult change for your children to deal with. The protection the children felt from having both parents at home is no longer there.

Once the couple has been separated, the children find themselves clueless and directionless in the whole wide world. The guardian parent has to understand this situation and act accordingly to save the lives of children from getting ruined. If you are a single parent who recently got divorced and is now in between of a parent juggling act, here are 3 tips on how to make the transition a little easier for your children:

1. How to Get Respect from Your Children.

A parent stopping his/her child from doing something and the kid yelling back or screaming isn’t a very rare situation in lives of single parents. If your child has told you several times that he hates you and you are the worst father or mother in the world, trust me, you aren’t the only one experiencing this. Now, most parents lose their mind in such situations and either begin heated arguments or start shouting or hitting the children.

There is absolutely no doubt about the fact that you deserve utmost respect from your children. However, you will have to earn that respect, not by being bossy but by being reasonable, mature and friendly. You must be friendly with your children so that they can open up to you. When a child feels free to be open with a parent, if they want something, they will want to express their reasons why they want it. In turn, you will be able to make a more informed decision. No matter what your answer is, by building up a better relation with the child, you will avoid him/her feeling disrespected or being neglected.

2. Spend Uninterrupted Time with Your Kids

The last thing your kids want is you ignoring them. When a couple separates, the children have to live with either parent. They can never be with both parents at the same time. Depending on the agreement between the parents, children may spend particular times of the year with father or mother but in very rare cases they can be with both the father and mother. Keeping this factor in mind, you have to give your children adequate amount of attention. You should try spending uninterrupted time with the kids so that they don’t feel the fact that either of their parent is missing in their life.

3. Try To Maintain A Mature Relationship With Your Ex

Just because you have separated from your partner doesn’t mean that you cannot see your ex again. Being a parent, it should be your highest priority to do anything and everything to make your children’s lives and future better. You shouldn’t tell your children that their other parent was the one at fault or wasn’t worth being a parent. You should instead let your kids decide what kind of relationship they want to keep with your ex. Your children would most likely resent you for separating them from the father or mother, if you tell them to stay away or be at a distance.

It is important that you maintain a mature relationship with your ex so that you both can meet up occasionally in order to make sure your children’s lives aren’t falling apart. There are occasions when you and your former spouse have to meet up to celebrate the happy moments of your children or to provide support in their sad ones. It is not rare for divorced people to gather up on the birthdays of their children. You should do it too if it helps your children’s healthy growth, physically and mentally.

Handling life and children after divorce is certainly difficult. However, if you follow the above mentioned instructions and take wise decisions throughout the years, you can stop your children from fighting with you day in and day out, and feel incomplete without both the parents.

Complex Medical Conditions Do Not Equate Mental Illness Or Neglect

For many, becoming a parent is an inherent, indescribable experience that subconsciously transforms you into a fiercely protect caregiver. When your child becomes ill, your natural inclination is to seek medical attention and abide by the doctor’s orders. However, if the illness is caused by a complex medical condition, sometimes answers are not as easy to find. There comes a point in which, after numerous attempts to find the answer, the burden of proof appears to be placed upon the families or even the patient themselves.

With the embattled medical negligence case between the Pelletier family, Boston Children’s Hospital and Massachusetts Department of Child and Family Services (DCF), it brings to light the struggles of treating a complex and poorly understood medical condition, patient and family rights, and quality of life issues. I am not a medical expert, I am not a lawyer, and I do not know the Pelletier family. I am someone who struggles with a rare medical disorder, and thirty years ago I was Justina Pelletier.

In May of 1984, after numerous hospitalizations, tests, visits with specialists and multiple incidents of respiratory arrest, local doctors in collaboration with Boston Children’s Hospital were out of answers and filed a complaint against my parents with DCF. The complaint was based on unsubstantiated claims by someone who claimed to be an “acquaintance.” There was no home visit, no interview, not even a second opinion from an unaffiliated medical expert. My parents were accused of medical negligence even though they followed the advice of the pediatrician and the hospital’s attending physician.

Reading the report, I found it not only to be inflammatory but completely devoid of any factual evidence. There was no mediation or care plan developed between the hospital and my family, only threats echoed through the Department of Children and Family Services. When my father questioned the DCF case manager on the legitimacy of the accusations, her response was that she read the report and “just knew.” While I understand the intended purpose of these investigations is for the best interests of the child, that is not what happened with my family and it doesn’t appear to be the case for the Pelletier’s.

When you look at the Justina Pelletier case, it is mind-boggling; it feels like there has to be something more to the story that’s not being told. How could a world-renowned hospital and an agency dedicating to protecting children be responsible for the implied child abuse and child neglect? If you do not have firsthand experience, it’s hard to imagine. For my family and I however, we feel overwhelming compassion after every press release for Justina Pelletier.

Luckily in my case, my parents were able to reach an outside specialist who performed an emergency bronchoscopy – a procedure Children’s Hospital was capable of but failed to do – and located the source of my life-threatening respiratory distress. A rare structural birth defect called an “innominate artery” caused my aorta to cross over my trachea, crushing it, and in conjunction with a smaller lung defect would have cost me my life had my parents not pushed for more answers. Approximately one month following the DCF investigation, surpassing typical life expectancy for the defect, I had lifesaving cardiac surgery at Massachusetts Eye and Ear Infirmary, a world-renowned teaching and surgical facilities for disorders of the head, neck and chest. Had the Department of Children and Family prevailed, it would’ve killed me.

My health struggles did not end following the surgery. After twenty years of multiple surgeries, injuries, and complications, I was diagnosed with ehlers-danlos syndrome. The genetic specialists at Brigham and Women’s Hospital of Boston compared my medical history and, combined with my clinical presentation decided that I fit the profile for the hyper mobility sub-type of Ehlers-Danlos syndrome. My defective collagen and its systemic effects validated my experiences and helped me build a care plan with my team of specialists. In doing so, it helps ensure the best quality of life possible. Justina Pelletier and all patients with complex medical problems deserve this.

“Doctor shopping” is a term thrown around when a person seeks answers from multiple providers or alternate treatment. Being proactive and locating appropriate treatment is not doctor shopping. Complex medical conditions do not equate psychological imbalance or parental medical negligence.

Now that the state of Massachusetts has been granted permanent custody of fifteen-year old Justina, the irony is inescapable. If Justina’s condition is purely psychosomatic, as suggested by Boston Children’s Hospital, and her parents are to blame? Why does she continue to deteriorate whilst presenting with tangible physical symptoms? If her parents have not been permitted contact with her, surely there has to be a more logical answer. The fact of the matter is Justina Pelletier is being punished for being ill while the witch-hunt against her family plays out on a national platform.

My hope is that Justina is as fortunate as I was and receives the medical care she so desperately needs … before it’s too late.

“Special Day”

Today was my two month anniversary. Now, you might be pretty happy for me, but let me explain how it went.

First he was gone all morning to watch his brother, ok no big deal, it is a family thing. Next, just normal talking and flirting pretty fun and I was happy to talk.

Then he got upset and started saying negative things, I honestly thought he was going to kill himself and he was swearing at me a lot. I got so upset with myself that I said “I deserve to die.” This just made it worse and he offered no support or care.

It’s like I can’t be upset. I can’t be hurt or need a minute to heal. He makes excuses as to why he is upset, or treating me poorly, or just not trying to make today special. After about 3 hours of that we talked it through and I calmed him down.

Happy fucking two months to me.