by Band Back Together | Dec 2, 2010 | Happiness, Love |
Well, Band, I felt the need to cheer myself on. And I realized, who better to celebrate with than The Band? The Band totally rallied for me before… they deserve good news.
So here I am. And here is a list of recent successes:
- I haven’t had a cigarette since Oct. 20th! That’s almost 5 weeks!
- I have a new friend. In real life! Finally!
- I’m starting to become the kind of mom I want to be.
- I’m branching out into the world again!
I crawled out of my hidey-hole. I’ve reached out at church – and people are responding! I am not alone! And I’m ENJOYING the time I spend with my daughter! I’m laughing again! And having fun!
I still have rough bits sometimes, but I’m learning how to manage them better and not slide into the darkness every time.
I feel hopeful. It pretty much rules.
I can’t pinpoint exactly when it started or what started it. But I’m grateful and I want to celebrate. Even if this isn’t forever…it’s been a month or so of feeling good so far but I don’t expect permanence in my life. It’s good today.
Thank you, Band. Thanks for celebrating with me, and for cheering me on when I needed it.
by Band Back Together | Nov 24, 2010 | Encephalocele, Happiness, Love, Neural Tube Defects |
Embryonically, I had the idea for Band Back Together after my daughter, Amelia, was born and landed in the NICU with an extremely rare neural tube defect called an encephalocele. I’d run multiple-user blogs before; in fact, my first blog was a group project. But the idea of creating a space like this was daunting.
First, I had to figure out what the hell this space was supposed to be. My initial thought was to make it a place for special needs parents. Then I figured that I should add my baby loss and infertile friends into the mix. Then I realized that I was thinking too narrowly. I’ve never limited what I do on my own blog (I don’t, I want you to know, think of this as my own blog. I think of it as yours), so why should I start here?
Band Back Together is a light in the darkness.
Our darkness may not look the same, it may not feel the same, but underneath, we are all the same, and we are all so very good. This space and the community we have created proves it.
I am truly honored to have all of your stories here. I believe in what we’re doing. I believe that each of your stories will touch somebody else who may still be in the dark. I believe that someday, someone will stumble here and find your words, and when they do, they will be moved. They will sit on the other side of the computer monitor, just as you are now, and they will feel the light breaking through the darkness. They will feel hope.
You may not think that what you do is important. You are wrong. You may feel like your story isn’t good; it isn’t enough. You are wrong.
Every word you write connects you to another.
So please, Pranksters, write hard. Help me get our words; our stories to other people. Tell your stories – all of them – and please, help me spread the word about the site. It’s time to take Band Back Together to 11.
December 31, 2009, I wrote this,
So I approach 2010 full of renewed hope for the future, because no matter how full of the darkness I feel, I can feel the light on my face and I know it’s all around me. Soon it will be within me.
I am hopeful.
I have hope.
Happy New Year.
Through you, I have found my light. I was right. It is so, so good.
Thank you for helping me find my light.
A very Happy Thanksgiving to each of you, Pranksters.
by Band Back Together | Nov 13, 2010 | Adoption, Anxiety, Blended Families, Family, Love |
I sing you to sleep.
The boys, whom I gave birth to, wouldn’t fall asleep to my singing. We sing together at night, before they go to sleep, but their song is filled with silliness and laughter. But you relax as soon as soon as I start your song.
I didn’t meet you until you were five months old. I was your fourth mother. I was nervous that you wouldn’t bond with us, after having been uprooted so many times. But, the second time we visited you, it was clear you recognized us.
The weekend you had your first sleepover with us, we went out to dinner. A woman stopped by our table to tell us how beautiful you were, and how she loved watching you stare at me.
“Babies always know their mommies,” she said.
I may be your mommy, but you are still not my daughter. We wait. The court is still considering its decision. It is a decision I am glad I do not have to make myself. We have come to know your birth mother, your birth father, your birth family. Both of your birth parents love you very much, and would like you to be with them. Part of me hopes they can do all the things they need to do to make their lives safe and secure enough to have you back. But, another part of me knows that it is a herculean task.
I also know that if you do go back, we will be devastated. Your father has already started looking into therapists, just in case. Your silly brothers, who adore you and compete to make your smile, will have a really hard time adjusting. I suspect this will make my postpartum depression look like a party. But what really worries me is you. Will you be safe? Will that nice lady and man you have playdates with be able to continue their progress? Will you miss your brothers? Will you grow up to be the happy, healthy, amazing woman I know you can be?
Who will sing you to sleep?
by Band Back Together | Oct 2, 2010 | Anger, Anxiety, Faith, Fear, Guilt, Hope, Loneliness, Love, Marriage and Partnership, Military Deployment And Family, Romantic Relationships, Stress |
Today is Day 1.
The first day of this deployment. Familiar in a sort of comforting way, but also strange and surreal.
You see, this deployment is my husband’s choice. It is a civilian deployment for his everyday job- an electrical engineer at a company that makes military radios. He is installing them in vehicles in Afghanistan. He didn’t have to go.
He chose to go so that we have a chance to get ahead financially. A choice that he felt he couldn’t say no to. I feel awful that soldiers who are putting their lives in more danger are making so much less money. It just doesn’t seem right. My husband says, “hey I served, I don’t feel bad that I am taking this opportunity.” But still somehow it bothers me.
He is not responsible for the lives of 100 people this time, only his own. Later in the day I realized that I feel like this is cheating. Last time I felt guilty that he spent most of his time on base and rarely had to go outside the line. When meeting other wives, whose husbands were in further outposts and doing more dangerous jobs, I never told them how lucky I felt that most of the time, I was pretty sure my husband was sitting at a desk, a desk in Afghanistan, but still a desk and not kicking down doors or looking for IED’s.
If I felt guilty last time when he was serving as a soldier, its no wonder I feel so strongly like we are cheating now. I will be surprised if I don’t get into some sort of fight with my mother-in-law this year. She loves to get on her podium and proclaim to the world how hard she has it because her son is gone. Sorry, not my style. even more so this time. She was just posting some crap on Facebook (a picture of my kid wearing an Army hat) and commenting that my husband was leaving Sunday; to remember the sacrifices soldiers make.
Sorry lady (and I use that term loosely), I don’t even know where to start. I’m not usually a freak about letting people know he is out of town, but I haven’t put it all over Facebook yet. Its really my business to share that my husband is leaving for a year. Thanks for putting that out there. If they are our friends/family that matter, they already know. After reading that, I sent her a brochure about Operational Security (OPSEC) and the things that are appropriate to post online. I think she was pissed, but I don’t care.
And that reminder about the sacrifices that soldiers make?
Again, he is not going as a soldier.
I feel it is disrespectful to those service members over there to put them in the same sentence.
Last time I had ways to show I was proud of him – blue star flag, wearing his unit pin, etc. this time I feel as if I have none of that. Luckily, I have my battle buddies, the wives who banded together with me the last time when our husbands were all deployed. But still, it’s weird because people realize that he must be getting paid a lot. It makes me feel greedy and ungrateful for all that we do have. It makes me feel guilty that I am excited we will be able to pay off the house.
I have been trying to hold it together for a few months now. When I do this, I give the impression to people that I am a cold-hearted bitch. Because I usually am very practical and pragmatic about deployments. What good does crying all the time do? Do they just expect me to fall apart because he is leaving or gone?
The first time, I said to myself and them “Someone has to go. When some guys have to go 3-4 times, who am I to think my husband deserves not to go at all?” and we were both okay with that deployment.
We were tired of waiting for the Army to pick a time to send him. And at least he was going with his own unit. This time, we are both okay with the sacrifice because we are hoping to pay off the house. Both times, it feels like people didn’t understand how we could be okay with this. Sure, we will miss each other, sure it will be hard. (I think it is hardest on the kids) but I am proud to be an independent wife and I want to teach my girls self reliance too. We never have been the type of couple that has to go everywhere together.
Since the Army has been a part of our relationship since I met him, we are pretty used to the short-term separations. Cell phones and email has made it easier. When I first met him, he didn’t have a cell phone and had to wait in line to use a pay phone. So I got pretty used to not hearing from him. Also, as an only child, sometimes I relish my time that I get to myself. My new job is great for that as it allows me to help other military families, yet get some alone time in the car traveling.
i don’t usually get upset about deployment in public, and I don’t usually get upset about it at home, because you see, with two kids, two dogs and a house to take care of, I have more things to do than wallow in self pity. So usually the magnitude of it all doesn’t really hit me until the night before he leaves.
Yesterday, I had to drive him to the airport in the late afternoon and it was my day that I allowed myself to be sad. I let the girls have cookies for dinner, eat in the living room and watch a movie while I laid in bed and watched my own TV shows.
This morning I had to move past that and get my daughter on the bus. Somehow I was reminded of the song “This Too Shall Pass” by Ok Go. I couldn’t stop listening to it today.
Somehow it made things better.
by Band Back Together | Sep 24, 2010 | Anger, Anxiety, Breast Cancer, Cancer and Neoplasia, Compassion, Coping With Cancer, Family, Fear, Feelings, Forgiveness, Guilt, Hope, Love, Stress, Trauma |
The first night after my breast cancer chemo treatment was awful. Nugget sobbed hysterically in my arms, giving way to heavy sighs between her defeated attempts for true comfort until she finally fell asleep. I cried, and cried, and cried. Between the tears i apologized over and over to my sweet baby girl for being sick.
Last night was thankfully less painful. She fell asleep with my mother and only had to be quietly lulled back down once. Thank god for small miracles.
As for me, I felt pretty nauseated yesterday and today, and the meds to combat that make me tired. Today, I really started to feel exhausted. We went out for some quick errands this morning, but I’ve since spent the remainder of the day in bed.
