by Band Back Together | Jan 25, 2019 | Anxiety Disorders, Ask The Band, Coping With Anxiety Disorders, Ehlers-Danlos Syndrome, Family, Fear, Feelings, How To Help A Parent With a Special Needs Child, Intracranial Hypertension, Mental Health, Parenting, Special Needs Parenting |
You know about my kids now here’s a little about me.
I am extremely stubborn.
I hate admitting I need help.
I have a ton of health problems: anxiety, depression, EDS, IIH, and fibromyalgia. All 3 of my kids have autism with other co-morbidities. My husband is my rock but he can be a pain in my ass.
I take on a lot with the boys because they’re mine it’s not up to someone else to do it and I do see a therapist.
She thinks in dealing with the latest with what I call my shitshow, I lost myself in there somewhere.
I think she’s right in a way, I’m so mentally tired I’m surprised I can form complete sentences.
I’m getting away next week for 10 days.
For the first time in 4.5 years, I’m going to visit my mom, my dad, and my sister. I haven’t been together with the three of them at the same time in a long time.
I’m actually really excited… but scared too.
Scared of having a good time.
Is that weird?
Scared I’m going to be in pain and they won’t understand. Scared of being away from my kids for so long.
Okay, I’m scared shitless.
Help!
by Band Back Together | Jan 24, 2019 | Hope, Love, Survivor, with the band |
You. That is why.
When you comment on my posts that you understand, or you’re sorry, or that you love me? That may be the only positive experience I have that day. I know I SHOULD live for myself, but I can’t. So I live for you. To tell my life experiences. The things that made me who I am.
Dealing with PTSD, childhood sexual abuse, suicide, prematurity, abuse, horrible (now-dead) parents? Is a load of fun. (Sorry, sarcasm is my primary language.) By sharing stories of my mother’s suicide and my own self-hatred, your love and support makes my life a little more bearable. Every single one of you.
The Band, each and every single one of you is awesome, and I love all of y’all!! Thank you for sharing your stories. The ones that we all smile reading. But especially the ones that make us lose our shit. Because you’ve been there, survived, and lived to tell the story. Thank you, Band.
Your love is the only unconditional love I’ve ever received.
by Band Back Together | Jan 23, 2019 | Bipolar Disorder, Emotional Regulation, Loving Someone With Bipolar Disorder, Mental Health, Shame, Stress, Trauma |
How can you explain the unexplainable?
The intangible that lives within and is expressed without but not with words…thoughts, deeds, drinks, and pills. Words seldom give justice to the turmoil within. And even when blurted out in a moment of weakness or vulnerability…if expressed to the wrong person they are still and float on the air like flotsam…better left wherever the journey began.
One might say “get a therapist” or “join a group.” Some psychobabble will surely help things along. Turn lemons into lemonade, bump inertia into movement. But, what to do without that ever-expensive, mostly elusive thing called health insurance?
Out of pocket expenses for mental health care are damaging.
So the cycle continues. The mood swings, the doubting, the bursts of mania. The decision to do one thing and suddenly another road is taken. All the while keeping things together. Feeling very little, looking very ill and fooling no one. Or maybe, just maybe, fooling everyone and that is the very problem that needs to be addressed.
The adjectives used to describe this current state are self-actualized and negative. But what is the alternative?
“Take these broken wings and learn to fly…”
No, these wings aren’t broken, my cape is not torn, I can handle everything that is happening. In the midst of accolades for “making it,” the pieces of my heart slowly tumble and quietly hit the ground while barely making a whisper.
And yet the pain is still devastating, immobilizing and nobody knows.
Admittedly this is my fault. Perhaps wiping away the facade will release magical healing powers, somehow I find that doubtful. So what if the alternative means holding it all in, weight creeping up and face looking as if I’m aging in reverse – teen years I’m back! Acne and all.
Sadly I don’t know how to remedy this. And so I sit. Waiting for the next thing in the pipeline and inevitably it comes and keeps me focused.
For a moment.
But in the quiet times (which are rare) my truth must be faced. I’m inert. Immobile. Dysfunctional and pray that someone will swoop in and take it all away. The likelihood of that happening? Nil.
And so I wake to face another day, I wear the mask and hope that no one notices.
by Band Back Together | Jan 22, 2019 | A Letter I Can't Send, Faith, Family, Feelings, Loneliness, Marriage and Partnership, Marriage Problems, Sadness |
I have been single for the past 5 years.
This time of year where people getting engaged is hard for someone like me who wishes for it to be my turn. So here is my heartbreaking letter to my once future husband that I cannot send.
Dear Future Husband,
I am going to be honest; I don’t think you exist.
Once a upon a time, I used to dream of the day I’d meet you; we’d have a lovely courtship, an amazing proposal on top of a Ferris Wheel (because you know how much I love them), then a wedding of my dreams (which, I’ll admit, has changed throughout my life but still involves these great pair of heels that have been sitting quietly in my closet, sadly collecting dust) and the rest of our lives together.
You know, the whole white picket fence bit.
But now? I am no longer wearing white, I’m wearing black.
I’m no longer walking down the aisle to you, I don’t see your face light up with the biggest, cheesiest smile as I walk to you.
No.
I’m very sad, standing in dark forest, all alone. So lonely. My heart has been broken too many times to count. A piece of you, of our life, fades with each piece of my heartbreak, and now you’re gone. Disappeared. No longer are you parts my hopes and dreams, now you’re nothing but an afterthought.
Maybe you’re really out there, but I am not so convinced of – even though my friends have told me otherwise. They’ve told me to to be patient, God has a plan for you, the list goes on.
They don’t know how I fear that I’m that I’ll never find yo; that we’ll never have our own happily ever after.
In fact (this is really horrible of me) but I stopped praying for God to keep you safe, to watch over you, that your heart is pure, that you have undying faith.
I began to feel that I was wasting God’s time by praying for someone who doesn’t exist; someone I’m never going to find.
I used to believe that love conquered al; that it was stronger than anything. That I could love you despite never meeting you. Recently, it sounds silly and downright depressing. I am desperately afraid that it’s going to be too late for me – I’m not getting any younger and my clock is ticking.
I sort of feel that I have given up on us. I used to fight so hard to find you, but now I am exhausted and I can’t wait anymore for you.
I wish I didn’t feel this way. I’ve tried to fight it.
I hope you understand and will forgive me someday and that you find another woman to love just as much you would have loved me.
From,
Your Once-Future Wife
by Band Back Together | Jan 16, 2019 | A Letter I Can't Send, Emotional Abuse, Family, Feelings, Psychological Manipulation, Trauma |
My views regarding my mother have changed in recent years.
Presently, she is someone who exists as part of a story in my life, catalyzing a significant examination of myself and those who surround me.
I often contemplate whether that was her purpose, but intertwined in those thoughts; there is guilt.
Parents make sacrifices for their children, and perhaps hers was the loss of our relationship, forcing me to embark on a new path. However, I don’t think she’ll ever be cognizant of that.
I have fond memories of her, times when she was a picturesque, doting mother, ferrying my friends and me to practice, taking us to the mall, and covering for me when I exceeded my curfew.
Those untainted recollections haunt me because I’ve realized that for every good deed, there was a price tag. The cost was never evident, as though you had found a one of a kind item at the store. You stand alone in the aisle, puzzled while turning the object over and back again in an attempt to locate that small, sticky, square sliver of paper that gives something its value.
You approach the register, convincing yourself it isn’t a lavish novelty—until the cashier regrettably informs you that the item exceeds your price range. After an internal battle, you purchase it anyway because you falsely believe that you need it.
That’s how it was with her.
She’d give, I’d take, and I would later have buyer’s remorse. I felt liable during those exchanges on many occasions, but they’ve taught me that I shouldn’t give more than I’m willing to lose–whether that be time, money, or respect. I did and said things throughout our strained relationship that weren’t fair, correct, or appropriate. There were times my behavior was unquestionably harsh.
In other moments, I yelled too much, was self-absorbed, and at times manipulative. Even as a child, I innately sensed that she was not capable of truly loving anyone. Her affections were an unmarked, dead-end road; I never knew where the pavement faded into the dirt until I found myself in the mud. She tirelessly helped people (and probably still does), but would then complain when her efforts didn’t garner adequate appreciation or her deeds weren’t reciprocated.
Through watching her perform this soliloquy of martyrdom and innumerable encore performances, I uncovered another meaningful piece of knowledge: If you’re giving to fill a void within yourself, stop giving and fix yourself because no one else will. To me, that is her downfall—she never fixed herself. Perhaps she didn’t know how—or was unable to recognize that she needed mending. It was always easier for her to blame her short-comings on others.
Usually, it was my dad, the man who worked seven days every week to provide for his family and allow her to do as she pleased. He was flawed, but not any more than the rest of us tend to be. My dad had a temper, was overly strict, and could be perceived as controlling at times, but he expressed an abundant amount of love and dedication to his family.
Yet somehow, my mother always found a reason to make him not good enough for her, or for us. She would shout from the proverbial rooftops to whatever audience was present: family, church people, or her friends—it didn’t matter. If they had ears and minute of time, she would begin Act I of her tragic play.
Her behavior reminded me of the game “Telephone” in elementary school.
The story at the end was never the story at the beginning, but no one was able to decipher what that was because true to her victim mentality, “She would never say that!” And so it went throughout my teenage years, her speaking half-truths, my dad getting mad, and her tear-soaked, half-hearted apologies.
Lather. Rinse. Repeat.
I’ve surmised that’s where my lesson on people began—with those years of trusting, then not, and the gray area twisted between the confusion. It’s strange to look back on it now, coldly removed from it, emotionless. Or perhaps it’s still anger; I’m not sure. I vividly recall frequent conversations with my dad and his constant reminders to, “Not be like your mom.”
At that point in time, I always thought he meant weak because that’s how I perceived her: sad, depressed, and angry. She attended a private masquerade, a façade tuned so finely that she is still unaware that she’s wandering through a false reality. During those times, I didn’t know that life was preparing me for something I would never see approaching—the Trojan horse of life’s fuckery right in front of me. I was oblivious to the depth of her wounds and subsequent actions, until one day I could no longer deny the existence of her illness.
For many people, the term “mother” is synonymous with love, compassion, and devotion. An upstanding matriarch fiercely defends her children from harm and zealously supports their endeavors. I have spent countless nights awake thinking about the perfect incarnation of a mom, and I’ve concluded that my mother will never embody those characteristics. The greatest, albeit most difficult thing about life, is that it gives everything you need to know if you pause momentarily, pay attention, and don’t allow your ego to get the best of you.
If you’re repeatedly finding yourself in the same situation, it’s because you haven’t mastered the lesson those particular circumstances are supposed to teach you, or maybe you have, and you’re too stubborn or stupid to recognize them. I fell into the latter category because that’s just who I was then, optimistic and dumb enough to believe I could right any wrong. Writing that now is ridiculous, but that’s how it started—the relationship with a price tag so high, it almost destroyed my credit, and me.
He was charismatic.
Funny.
Handsome.
He said all of the right things at exactly the right time. Looking back, I guess he had to, or someone would peel back the thin layers around his dysfunction and see a hollow vessel, devoid of empathy or compassion unless it was for selfish gain.
My mother, however, adored him. She thought he was fantastic. The words of praise for him gushed from her mouth like a broken faucet. She insisted he was perfect for me.
I initially agreed until I saw through the shroud to what was underneath. It was like my internal GPS had lost signal on life’s journey and now it was too late to turn back. The scenery was beautiful at times. There were days filled with sunshine, laughter, and hope. Those times were my favorite because most days were dark and tumultuous. It seemed as though I was trying to outrun the rain, but I never knew when lightning would strike. The storm always seemed to clear at the exact moment that I was ready to relocate to a better climate.
And of course, there was my mother, clearing wreckage, and negotiating an insurance policy—or so I thought.
What I failed to realize is that insurance agents love disasters. Disasters wreak havoc and chaos while convincing policyholders that they require more insurance so that they are better prepared for the next catastrophe. I purchased an abundance of insurance from my mother. I talked and confided in her, while she manipulated the weather to her liking. In return, the weather repaid the debt by providing her with a temperate climate.
From my mother’s perspective, it was a fair exchange. She was never one to forgo a “diamond of a deal.” She received the attention and adoration she was so desperately seeking, and he received another layer of protection. Together, they were a perfect storm and were moving toward the coast at an alarming rate.
He and I found ourselves at the beach on that road trip from hell. By that point, I was preparing to change routes and terminate my insurance because I could no longer afford the premium; however, the best-laid plans always go awry when the atmosphere becomes unstable.
That day began calmly and seemingly beautiful, but the bright sunlight obscured the horizon as it beamed through the car windows that morning. We were exploring on that trip. Laughter and conversation filled the air like particles of pollen—invisible and damaging. I thought that maybe, just maybe, the sky was going to remain clear. If I only I hoped enough, had enough insurance, I falsely believed everything would be ok.
I was absolutely wrong.
He—the weather, became erratic and violent; I was stranded in the current, drowning while trapped in a car until I suddenly saw the eye of the hurricane approaching. Those few moments of relief granted me the clarity to see daylight. I suddenly became aware that I couldn’t regulate the weather, but I could control my reaction to it. There was an open road, but it had been hidden by the debris from the frequent storms.
That day I began driving.
I drove away from the downpours, evaded the lightning strikes, and put miles between the constant uncertainty of whether I had purchased enough insurance. When I called my mother, the insurance agent to discontinue my policy, she didn’t answer. She wasn’t available that night or the next day. She was too busy attempting to manage the self-made disaster that she didn’t care about me—her daughter. She turned away the child she had known for 32 years. She abandoned me, the daughter that she was supposed to unfailingly love and support.
I don’t know what he promised her exactly, but whatever it was, it was enough for them both to attempt to pursue me down that new, secret road I had discovered. They attempted to detour my journey through phone calls, texts, and at times, unnerving threats. I kept driving farther and farther away. She revived the soliloquy that had served her well and performed it for a multitude of audiences. The new version had added a few additional scenes, and they served to convey how terrible I was. She was heartbroken that her child could just walk away from her. It was then, that my dad’s words from over a decade ago reverberated in my mind, “Don’t be like your mom.” The statement had been a clear warning that I was unable to comprehend at the time because I didn’t understand that she was mentally ill. I was too naïve to fully perceive the environment that tarnished my childhood and too self-centered to evaluate my contribution.
She and I were and always will remain different people. She will forever be the insurance agent feeding and creating disasters for her own personal gain. I hope that someday her catastrophic business will close and she will have placed a vacant sign in the window. Although, I think the absence of orchestrating calamities would force introspection, and the disasters we harbor on the inside are usually far worse than those we create. My lessons in this life are far from over, and I hope that they’re never complete because if I stop learning, I cease to evolve into a better person. The chapter about my mother has been painful and dangerous, yet exceedingly valuable.
I’m grateful for the destruction and nearly being swept away because I changed routes. I began a migration to a new destination that I plotted and chose on my own. My mother and I will forever be traveling in opposite directions, but we were at the same starting point for a brief time. She may never fully grasp the reason or the outcome of our sudden departure in life, but I hope that one day her course becomes calm and clear instead of winding and uncertain.
Despite the pain she has caused, she unknowingly and unwillingly sacrificed her happiness for her child’s—and that’s the worst punishment of all.
by Band Back Together | Jan 14, 2019 | Abuse, Adult Children of Narcissistic Parents, Child Abuse, Child Grooming, Domestic Abuse, Emotional Abuse, Fear, How To Help With Low Self-Esteem, Intimate Partner Rape, Mental Health, Pornography Addiction, Post-Traumatic Stress Disorder, Psychological Manipulation, Psychological Manipulation, Rape/Sexual Assault, Self-Esteem, Sexual Coercion, Shame, Stress, Things That Are Bullshit, trauma, Trauma |
As a child of a covert narcissist, who spent every day breaking down any self-esteem I might accidentally grow, I was a prime target for my malignant narcissist of an ex-husband.
Keep in mind that there never has been and never will be an actual diagnosis for either my mother or my ex. Both fought like hell against any hint of therapy because there was nothing wrong with them, everything was my fault.
There are many stories, some I have already told, and this one, which I never thought would see the light of day.
Marital rape.
I don’t even want to think about it, never mind discuss it with anyone. But people need to know that it exists, that it happens, and that it’s not OK.
I married my “high school sweetheart” AKA, a predator who targeted someone vulnerable 3 years his junior. Now, the age difference wouldn’t matter if we had been grown, mature adults. As a matter of fact, my current wonderful husband is 7 years older than me. But then, my ex was my first real boyfriend, and as I said earlier, I was raised in a dysfunctional family in which the normal was not normal.
I was taught to serve, to ignore my own needs in favour of other’s wants. I learned that I didn’t matter. I had no choices, no opinions of my own. I was a mirror.
And that continued throughout my marriage. I was perfectly broken and ready to be used.
From the beginning, he taught me that it was my fault if he was in pain. Physical, mental, financial, it was all my responsibility.
That continued into the bedroom.
Sex was not a loving act between two cherished partners, it was a power play. If he had a need, I was to fulfill it. If he had a desire, I was to play the part. Women were his enemies and only to be used. His porn addiction was out of control, and this was before the internet, so our bedroom was filled with falling down piles of the most degrading magazines he could get his hands on. I was only the receptacle, not the object of desire. I was too fat, too ugly and nothing about me was good enough.
He groomed me to be meek and accepting that he was the only one in the world who would ever put up with me and I needed to be grateful that I had him, because otherwise I would die alone. I was only acceptable as long as I did what I was told.
I was expected to be “ready and willing” at any time, any place, because you see, blue balls are fatal.
I bet you didn’t know that.
My sex education was brief at best, back in 1980ish and I’m pretty sure that wasn’t covered. As the years dragged on, I was barely even worth being a receptacle.
The worst part was when he…couldn’t.
That would bring the rage. That was when the worst times happened. If he couldn’t do it himself, he used whatever was at hand, including a police issued nightstick. He bought this illegally, as normal citizens aren’t allowed to have these in my country. This added to the thrill, I guess.
What it has done to me over the years has led to a deep fear of police. It’s not a straight line, there are many other stories involved, but that’s a biggie.
As a boring, law abiding middle-aged white woman, I actually have very few encounters with police officers. (Yeah, white privilege at work, sigh).
In the past few years, my PTSD has made me absolutely terrified of even the briefest encounter. Why it waited 20 years to fuck with my head like this, I have no idea, but my therapist does. I’ve been working on my fragile mental health for about 10 years now, one thing at a time, and she tells me that my brain will withhold things that I am not prepared to deal with yet. As I have gotten other things somewhat under control, my suicidal thoughts, my OCD, my anxiety, and depression have a little less hold on me. And then, slowly, over a few years, I found myself avoiding anyone in a uniform that might remind me. Whether a soldier, a police officer, or even a security guard if he has a nightstick or a gun, I will freeze and go into a panic attack.
This is interfering with my life dammit!
I am so angry at my stupid brain. I am absolutely terrified of getting stopped by the police, even for something benign.
What would I do?
My big fear is that I will bolt and not be able to communicate why I am acting erratically and get arrested. I fear my heart would stop, like a terrified rabbit caught in a trap. I
fear that I will have another nervous breakdown. I fear I would never recover.
But I’m working on it. I am going to beat it, I swear.
This particular mind-dragon is a powerful one, but not invincible. I have proven that over and over again in my recovery. I am worth the work, I deserve peace.
Session by session with my trauma therapist, day by day with my husband, we are all fighting for me. If you are reading this and you have experienced marital rape, you are worth it too! It’s not right, it’s not OK and it’s not your fault. Please use the resources here at The Band, and know that there are people who care and who can help.