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Living a Lie

I guess this really started when I was first born. I’ve always wanted to feel loved by my father…but he didn’t want me. Because of that I spent my whole life wanting to be loved and wanted by a male figure. Now I’m 22 and I’m in a physically abusive relationship. I’m not sure what I should do.

When I first met my boyfriend 3 years ago he was the sweetest man. He respected me so much. He did everything a genuine gentleman would do to earn my trust.

It wasn’t until 2 years later that I found myself hiding in his bathroom crying while he tried to rip the door off so he could grab me and scream at me. That was just the beginning though. I almost wish it was still that way…

Now here I am. I have a house with him, a life, and I am financially dependent on him.

Our fights usually start with me being upset at him over a stupid issue, to any other couple it would just be a regular argument that ends with the couple coming to a compromise… but not for us…

I will usually threaten to go to my moms house so I can have time to calm down, but he doesn’t like that. If I ever threatened to go to my moms house or just even go into the other room to calm down he will get on top of me and pin me down, usually on the floor or bed. In the process of pinning me down he will grab me and squeeze me until I can’t breathe and no matter how much I ask him to get off of me and I beg and plead while crying he ignores me. I usually end up hyperventilating and crying so hard that I urinate myself and even then he won’t stop. I have had a few circumstances where he has tried to choke me. I have gone through other situations with him where he’s hit my head into a wall or with his fist and given me a concussion.

I feel like I can’t escape. Over the past two years I’ve gained weight and I don’t feel worthy of really anything. I feel like all I ever wanted in this world was to find a good husband and to marry and have beautiful children and be happy and I really thought this guy would be the one who can give that to me. I keep staying with him because I feel like when he tells me that he is sorry he means it and that eventually all of these issues will be in the past it he will never do it again. But I still hate myself because I know if I ever walk down the aisle him I’ll be walking down to my abuser and not a man who truly loves me. I feel like I can’t leave because I love him and I’m extremely dependent on him. I really don’t know what to do.

Like The Deserts Miss The Rain

oh, how i miss the simplicity of our nursing days.  life without breastfeeding is hard, and cancer certainly isn’t making it any easier.  crying was limited to brief moments following boo-boos and over-tired minutes post car seat strap-ins.  it was never part of naptime or bedtime.

a balanced diet was effortless.

i never knew the struggle of naptime.  now i have to walk and rock nugget in my arms or in a peanut shell while she chews on a pacifier, maybe holds her blanket and always twiddles at least one nipple.  at night we lather, rinse, repeat or if i’m really lucky we just lay down and she holds on to each boob, binky clenched between her teeth and drifts off, dreaming of nursing i imagine.

i never knew a picky toddler.

whenever nugget was hungry or thirsty the milk bar was always open.  trying new and different foods was fun instead of stressful.  nugget’s tummy was never upset.  her favorite snack was always handy.  we never had to pack a meal to go out.

i did at least have a few weeks and the foresight to work in the concept of “kisses make boo boos all better.”  nugget still kisses my port and scars everyday.  recently she’s added my breasts to her fix-it list and kisses and hugs them all day long.

she’s trying her best to make mommy all better with her kisses, because she knows that’s when she can have her nursies back.

The Glamorous Life

i’m almost bald. i only shower every few days. as soon as the nausea ends the muscle pain starts. then comes the bone pain. after that subsides then it’s time to start all over again. i give nugget everything i have regardless of the overwhelming exhaustion.

this is the reality in our home. this is what my cancer looks like. this is how my daughter copes with my illness.

Don’t Tell Me

don’t tell me i don’t have cancer anymore or that i “just have chemo now.”

don’t tell me to go outside and get some fresh air when i can’t be in the sun.

don’t tell me that taking a shower will make me feel better when my skin hurts too much to touch.

don’t tell me that i have the “good kind of cancer” unless you’ve had it and know how “good” it is.

don’t tell me how nicely shaped my bald head is.

don’t tell me how tired you are.

don’t tell me you’ll be there for me and then not follow through.

don’t tell me your medical opinion unless you’re my oncologist.

don’t tell me how to be me, because you aren’t.

An End And A Beginning

I saw the lights on the ceiling. I felt the tear. The nurse held my hand with saintly love as I sobbed. A part of me died in that moment, a ripple through the eons.

I was 21 and a newly graduated nurse when I went through my abortion and had landed a prestigious hospital job. My mum was accidentally pregnant at the time at 40 with my brother who I later helped to deliver with the midwife (after I had undergone my abortion)

I freaked out. I couldn’t move back home in a small town with a pregnant mother. My boyfriend said he wasn’t ready for a child and we couldn’t afford it (I later discovered he was wealthy and had not been honest with me). He was living far away at the time going to university.

As he slept in my room one night at the nursing quarters against the rules of no men, we were discussing what to do. I got caught with him in my room and I was kicked out by the nun. Pregnant, I went to house hunt by day after my night shift work. The nun who found us gave me one week to find a place after I begged her. I was scared. I didn’t know what to do. I didn’t tell a soul.

My boyfriend booked a hotel for the week as I was homeless and I went through with the abortion. I didn’t want to go through with it but I was so scared, alone and overwhelmed. I always said I would have a child if I accidentally became pregnant, but I just didn’t realize what it was actually like to be in that position.

The first doctor I approached rejected to care for me due to his religious beliefs so I had to hunt for a doctor who would.

I went to get counselling afterwards and was paired with another religious man who rejected me so I had to keep searching for help. I gave up.

I went back to work and it was a very hard year. I saved a few lives and I decided to work in hospice to become more familiar with death. I nurtured people through their losses.

Many hard, lonely years accompanied me with multiple instances of sexual assault and trauma I started to have difficulties coping. I always comforted myself with the idea that losing a child to help others may be excusable as a choice but when I left my career, in those last days I sat down by my friends nieces side who was losing her new baby that had just been born. It was dying in her arms and her tears dropped on that babies face. I watched that baby die as I said goodbye to my career. She didn’t know of my past and now I hear she wants to be a nurse. The chain continues.

My whole family said I was always the mothering, nurturing type and I would have the most kids. I am childless and not married. Tortured by bad memories. Too lost for words.

You don’t forget but you learn to live with it. Its a silent shame for me but I see now with my history of abuse I needed to feel some control over my body. I don’t feel it was the answer now, and in retrospect I would like to say I had all this courage to stand up to this invisible community who bad mouthed people but I was a young vulnerable frightened girl. While I was being accused of being a baby murderer I was saving their lives in hospital.

I think now about it more in philosophical ways. The things we should terminate in our minds and and how a new beginning can start for us to live a happier life. My God believes in redemption and love.

Loved And Lost: What Do I Say To Someone Who Has Lost A Child or Baby?

First, people are afraid of what to say, and often say nothing. This is a mistake. Many people are afraid to bring up the deceased child, fearing it will open wounds and raw feelings. But in my opinion the hardest thing is when people don’t talk about Maddie. It feels like she was never here, and this is what is heartbreaking. It is nice when people say, “I thought of Maddie today,” of “I saw a kid in a dress like the one Maddie wore at whatever today.” Or “I miss Maddie.” These things help, not hurt. Make us feel she is not forgotten. Sending a keepsake with the child’s photo or name, things that help her be tangibly remembered are nice. We have received AMAZING things and we cherish everything.

Six years ago, one of my friends lost her father. I was living across the country from her, and I was terrified. I felt guilty that I had my dad and she didn’t. So I didn’t say anything, and I ruined our friendship for a while. I am very lucky she gave me another chance. She has been there for me since Maddie passed away. I have horrible regret about the whole thing – all I had to do was call her and say, “I’m so sorry.”

Religion is a potentially explosive way to comfort. Unless you absolutely know 100% percent the person will be comforted by mentions of faith, don’t go there. Religion is a very complicated thing in the wake of a child’s death, and they may be angry at God or confused as to how to incorporate the death of a child into the religion that they have known to have their best interests in mind. Even someone you know to be intensely religious may be having a crisis of faith in the wake of a child’s death, and could be angered/saddened by mention of religion. Especially stay away from, “God wanted her more than you,” or “God needed her more,” etc.

I don’t care if it is the all powerful creator of the universe, you don’t tell any Mama that anyone wants her baby more than she does.

So many people hate seeing their loved one in such pain and want to fix it. Consequentially, they start talking about how you have to move on, that you will see them again, the child is with God, it will get better in time, etc. All things they think will “fix it.” Don’t try to do this. Follow the lead of the parents. Discuss what they want…if they go to those places you can discuss those things, but don’t try to steer it there. Sometimes I want to talk about Maddie and the unfairness of it all, and other times I want to hear funny stories or talk about reality TV.

Don’t be afraid to show emotion. Many people feel they have to be strong for their friends, that they can’t cry or show emotion. I don’t think that is true. You can be strong AND be emotional. If tears come, don’t fight them. This shows your friends that you, too, are crushed and sad and lost.

Address the horror. People often worry about addressing how awful the situation is, but the parents want to hear that people get the hell they are in. The parents feel alone when they don’t think people understand how awful this is. Saying things like, “This is the worst thing. I am so sorry and sad that it had to happen to you and your child,” helps.

Food is very helpful. The last thing you want to do when mourning is worry about eating. There are always people around after a death, and the last thing you want to think about is feeding them. Mike and I never would have eaten if food hadn’t been sent to us. A gift of food also tells the parents they are loved.

Say or express something you never have before. If you have never told the person that you love them, come right out and tell them that you love them. If you’ve never held their hand, hold their hand. Give hugs. These expressions mean a lot.

Finally, my biggest advice is to not be afraid to take initiative. We often say, “let me know what I can do,” in a situation like this. Well, I can tell you that Mike and I had no idea what we needed. We were so lucky that we had friends and family rally together and just take care of things. A few came to town to help out. One friend organized food, another cleaned my house, two bought the clothes Mike and I wore to the funeral, one put together Maddie’s slide show, a few organized the reception after her service. I could go on and on. I didn’t have to worry about anything because I knew my friends and family would handle it.

Be there for your friends. Call, email, text. Tell them they don’t have to respond. Let them know you are thinking of them, and their child, all the time. Don’t drop away after the funeral – that’s when they’ll need you the most. Be the kind of friend that you would want to have.