by Band Back Together | Sep 7, 2018 | A Letter I Can't Send, Addiction, Anger, Cognitive Distortions, Delusional Disorder, Estrangement, Family, Feelings, Homelessness, Mental Health, Passive/Aggressive Behavior, Poverty, Economic Struggles and Hardship, Sadness, Shame, Stress, Trauma, Trust |
Dear Bro,
The last time we talked, you had so much blame. So much disdain for my decisions and actions. You had guessed my motives from the biased stories told to you from people who were angry with me at the time.
At no point did anyone say to me, “Katie, these things we’ve tolerated from you are no longer acceptable to us. It needs to stop or you need to leave.”
I respected the boundaries Casey gave me without any realization that my behavior was triggering Hali. Why would I think that Billy’s appearance would trigger her into a panic?
After several weeks of living peacefully – with both Lee & Hali’s permission to live in their backyard, coming inside only to shower and heat up microwave meals… suddenly, I received notice that I’d violated their boundaries.
I’d been coming by to shower in the dark of night, and I always announced myself when I arrived during the day. Rationally, I explained the reason for each person that I’d invited in. You thought that I didn’t deserve the opportunity to fix it so that I could ease Hali’s mind. I did not even garner enough of his respect to let me know by text, call, or taking a moment to walk into the backyard to tell me to my face that my presence was creating panic in his mom. He acted without taking into account my feelings, situation, or ability to show respect WHEN ASKED TO.
He says I disrespected him and his parent’s house. Did I? Partially, yes.
I acknowledge that I did not understand that my actions within my surroundings (and the authority to bring guests (even short-term ones) in) were triggering others, but I was NOT incapable of rational understanding. My behavior was deemed unacceptable by Casey who never told me.
I am deeply hurt that everyone around me was so offended, angry, and unable to deal with my choices, yet too afraid for my sanity (or lack thereof) to confront me from a place of care, love, concern, and protection.
I am hurt by your actions and inactions as well, Sir.
You talked to people who knew me without explaining my version of those events and should have told them that my motives shouldn’t be impugned, as I wasn’t being malicious.
And when you diagnosed my “irrationality” to Casey, you didn’t tell him that we had had a conversation a while later (after my rational ability to understand had been restored by the State) when I explained my ACTUAL intentions and acknowledged that I could see now that people did not trust my ability to make sense at all.
I was hurt that you made no effort to tell Casey that I had given reasons/excuses as my actions were based on a skewed and warped sense of reality at the time.
EVERY ONE IS THE PROTAGONIST OF THEIR OWN STORY AND HAS A BIASED PERSPECTIVE.
I cannot accept that you understand me “better than anyone” because NOT A SINGLE SOURCE OF INFORMATION YOU SOUGHT HAD ANY CONTACT WITH ME AND AT NO TIME DID ANY OF THESE *IRREFUTABLE* SOURCES actually understand my motivations.
They cast me into a pile that they deemed “unacceptable to have any contact with” and I was left even more alone.
You resent that I – from your perspective – manipulated Mom & Dad into giving me money that I should have been ashamed to ask for?
You actually have the nerve to tell me that you love me and care about me SO much that you MUST protect yourself from any contact with me. Those two statements are BOTH true I understand that, and I’ve respected that – you’ll notice that I haven’t asked for anything from you since.
You are NOT a professional psychologist trained to diagnose whether or not I was, at the time, able to understand reality. You said that your experience shook you so badly and made you believe that I cannot appreciate any viewpoint but my own. This is not true.
What I find ironic is that you actually believe that you have SUCH a powerful brain that you – taking Casey’s word for what happened – are the SOLE AUTHORITY of your Sister. That is SICK AND OFFENSIVE.
You have no understanding of any person’s story but your own. This summer, I tried to understand the motivations of people around me and compare motives with actions.
Was I naive and taken advantage of?
Yes, however, I learn from my mistakes.
Unlike the people I was hanging out with, I had no problem acknowledging my mistake, explaining the reason for it, and promising that would not do so again. I truly believed that ALL people have dignity and value in this world and I believed that everyone’s decisions MAKE SENSE TO THEM at that moment.
I’m able to see others’ actions, disagree with them, but acknowledge that their perspective makes sense to them, even if I find their logic or assumptions wrong. Validating their actions were reasonable to them and then offering a minor change of perspective or asking a question to clarify their motivations and feelings at the time. Unfortunately, people began to think I was manipulating them. They distrusted who I was; they began to treat me as a a threat to their understanding of the universe.
I was very much hurt that my *only* natural sibling was incapable of contacting me for the 18+ months that I found myself homeless.
You offered no indication of care – or acknowledgement of gratitude – that you’d lived with me for 2 years without any income, you understood and appreciated my explanation for wanting you to stay – that I couldn’t live with my only brother homeless – while it was in my power to prevent it. I’ve strived to make you feel as though you were family and I’d always do all I could to ensure that you were safe and loved. You threw my generosity into my face. When I expressed ANY expectation that you contribute to the well-being of the household, in the form of dishes, other cleaning, money (when you had it), or an indication that you had any interest in adding to the comfort and happiness of the people around you, all I got was silence.
How did your sense of “honor” survive when presented with the *exact same* circumstances, but reversed? When I became homeless, you found yourself incapable of allowing me anywhere near you for longer than a few minutes at a time; you insisted upon resenting me for my inability to take responsibility for my life.
Throughout, you happily took Matt’s side. Your sister’s understanding of reality was so far removed from any you could comprehend based upon your limited experience and NO training or treatment experience. You disregard any external wisdom I have learned from talking to others about their experience.
You are so terrified of mental illness that you hide in your monastery of ceramic and Sony PlayStation and justify that being without any responsibilities to anyone – not even those (you say) you love and value – somehow makes you a superior judge of the human condition and supremely qualified to pass judgement upon those who fail to meet your standards.
I accept that my actions have landed me in this situation, and I am aware that your response to stress and drama is escapism and distress-avoidance. You run the fuck away from a situation you cannot fit into the neat little compartments that you believe all humans should conform to. Any deviation from those neat little boxes you quickly label, categorize, then promptly disregard terrifies you. You become a shadow of who you want to be, and my insanity terrifies your sense of the destiny you believe you control.
You are disappointed in me; that I did not meet your expectations for what you “expected” from me. It’s as if you felt no guilt about fucking off all of the family because Mom & Dad could fall back on me – a child they could be proud of.
Somehow you believe that I’d had some kind of idyllic life for a small moment. This meant that you were absolved of any guilt for your own lack of ambition and sloth, because you avoided confrontation and uncomfortable emotions your entire life, and sunk into early drug use to escape your feelings.
You don’t understand my life and my choices. You’ve never asked me (without accusations) about my life.
The only real message I got last month is that you do love me and were aware of my existence and the lifestyle I had fallen into. You had so much anger and disappointment in me, but honestly, you weren’t acting like caring family member reaching out to see if he could help, without approving of my choices I’d made, but that my behavior was so frightening that you avoided me. You wanted an acknowledgement that I hadn’t made good choices and an apology for the pain you’d been through because of it.
You take my choices very personally, Mike, though I’ve never held you responsible for my fuckups. I have respected your desire for distance and no contact. I had no desire to make you uncomfortable. I’ve only experienced your encouragement and care after I’ve made a mistake and you believed it wasn’t your place to say so, though your mindset is truly remarkable. It’s too bad you’re a coward for not speaking up.
You’re a smart person, Brother, but you don’t show respect to me.
Respect is believing what I tell you – or at least giving me the benefit of the doubt that I am not lying. Your experience of living through my mania is valuable to me, especially. However, you expect me to understand events EXACTLY the way you do.
I don’t.
I had my reasons and I went through enough hell – without any indication that you cared. You took over ten years to find a full-time job and never asked for anything that would inconvenience anyone else. That is your code. But you have NEVER even ASKED me how I define right and wrong – because your understanding of the world is rigid, all or nothing, black and white, and while you understand that other people have different needs and desires, you have no respect for my choices because I don’t adhere to your rigid belief system.
You have no interest in understanding me or my story, Mike. You’ve never asked me for my motivation behind a choice you didn’t like, you only told me I was wrong after I’d done it. Life isn’t easy and I don’t have all of the answers.
You say I destroyed you. If this is true, I sincerely apologize that my crazy was so traumatic that you feel I have irreparably damaged you.
What I don’t understand is how you continue to internalize and make my choices ALL ABOUT YOURSELF.
Do you understand that my choices were made without you?
You are not my victim, Brother. And I am not yours. People do change over time – we heal and grow or we stagnate and stop learning because we are comfortable and complacent. I don’t know at what point you stopped believing that you were capable of change, growth, or positive change for yourself.
i don’t know when you decided that YOUR experience was the only one with meaning or value. I don’t know when you decided that you were too far removed to add any perspective or for your insight and opinion BEFORE I made decisions. We are evolutionary ultra-social creatures designed to live in community with one another. But researchers are wrong, in your opinion, because the fittest survive what?
Hell. And come out stronger.
The strongest people I have come across over my plethora of identities and lifestyles, the strongest are those who’ve been through the kind of hell that I put myself through. But they made a choice not to be victimized by their life story. They found the lessons and found ways to contribute – I have struggled with this.
Leslie asked me on the phone in January, which was “what does Brody (my boyfriend) give you, Katie?”
I paused briefly and answered: he gives me an interest in the future and a vision for what kind of life I want. He gives me a reason for the struggle and value for the journey that brought us together. He’s the smartest man I have ever known and the only man whose perspective I use; his viewpoint is a barometer of my ability to interpret reality.
He gives me safety and respects my viewpoint. He’s the only man who’s EVER told that me I was wrong and why. He cares about me and loves me – not in spite of my crazy, but BECAUSE of it. He has no reservations or “despites” in his love for me. I love, accept, and understand him in of fundamental way that NO ONE has ever done.
But you don’t care about that.
You believe that you’re “destroyed,” but that was not my doing, Little Brother.
The only control we have is in our response to the things we perceive. You’ve never had an interest in anyone else’s perspective. You don’t care what anyone thinks. You don’t get value from painful reflection.
Fine.
You are dead.
Because you don’t value any other person’s existence, and because you have declared yourself the sole arbiter of Morality and Honor without any interest in what others might think, you are, indeed a God to yourself.
And I have my own understanding of how the Universe operates. You have no use for my concept of God and your memory of me is not what you heard or were told about.
Sorry to disappoint you.
I’ve learned and grown and changed and I have more understanding than you EVER will of the way people DESERVE to be treated. I find value for their experiences and perspectives. You aren’t interested in my experiences and I think you’re terrified that the role you’ve put me into isn’t accurate, that you cling the me that you valued but never treated with any dignity.
Goodbye, Brother
I will always hope and pray that you find some growth, happiness and/or reason for your existence beyond your pain and escape from it. I will always hope that any report I get of you will be positive. You don’t believe in Luck either, so I hope you find what has eluded you.
–Your “Big” Sister
by Band Back Together | Sep 4, 2018 | Addiction, Addiction Recovery, Adult Bullying, Adult Children of Addicts, Agoraphobia, Anger, Anxiety, Anxiety Disorders, Bacterial Infectious Diseases, Child Neglect, Cognitive Distortions, Coping With Depression, Coping With Divorce, Denial, Depression, Dissociative Amnesia, Divorce, Emotional Boundaries, Emotional Regulation, Estrangement, Fear, Guilt, How To Help With Low Self-Esteem, Hypoparathyroidism, Infectious Diseases, Invisible Illness, Jealousy, Loneliness, Major Depressive Disorder, Marriage Problems, Medical Mystery Tour, Mental Illness Stigma, Pain And Pain Disorders, Poverty, Economic Struggles and Hardship, Sadness, Self-Esteem, Shame, Stress, Substance Abuse, Substance Abuse Relapse, Trauma, Trust |
There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.
I hope it is not.
I didn’t see the picture until I was 5 months sober, staying in the unfinished basement at my parents house, grateful that I was no longer homeless, while I hunted for a job. Before this, I’d been staying there after a stint at a ramshackle, rundown motel, the kind of place you probably could dismantle a dead body, leave the head on the pillow, and no one would think anything of it. But it was my room, and despite the lice they gifted me, I loved it. Until money dried up and suddenly I was, once again, homeless. I’d moved in there after I was discharged from the inpatient psych ward, in which I was able to successfully detox after a suicide attempt. Got some free ECT to boot.
(WINNING)
Despite what you see on the After School Special’s of our childhood, I didn’t take a single Vicodin, fall into a stupor, and become insta-addict – just add narcotics! No, my entry into addiction was a slow and steady downward spiral of which I am deeply ashamed. It’s left my brain full of wreckage and ruin, fragmented bits of my life that don’t follow a single pattern. Between the opiates, the Ketamine, and the ECT, I cannot even be certain that what I am telling you is the truth; what I’ve gathered are bits and pieces of the addict I so desperately hate from other people who are around, fuzzy recollections, and my own social media posts.
About a year and a half before I moved from my yellow house to the apartments by the river, Dave and I had separated; he’d told me that while he cared for me, he no longer loved me. While we lived in the same house, we’d had completely separate lives for years, so he moved to the basement while I stayed upstairs. I’d been miserable before his confession and after? I was nearly broken. Using the Vicodin, then Norco, I was able to numb my pain and get out of my head, which, while remarkably stupid, was effective. For awhile.
Let me stop you, Dear Reader, and ask you to keep what I am about to say in mind as you read through this massive tome. I’m simply trying to make certain that you understand several key things about my addiction and subsequent recovery. I alone was the one who chose to take the drugs. No one forced me to abuse opiates, and even later, (SPOILER ALERT) Ketamine. This isn’t a post about blaming others for my misdoings, rejecting any accountability, nor making any excuses for the stupid, awful things I’ve done. I alone fucked up. My addiction was my own fault. However, in the same vein, no one “saved” me but myself. There was no cheeky interventionist. No room full of people who loved me weeping stoically, telling me how my addiction hurt them. No letters. Nothing. It was just me. I was alone, and I chose to get – and remain – sober.
The delusions started when I moved out, sitting in my empty apartment alone, paralyzed by the thought of getting off the couch to go to the bathroom. Always a night-owl, I’d wake at some ungodly hour of the morning, shaking. It wasn’t withdrawal, no, it was pure unfettered anxiety.
It was the aftermath of using so many pills, all the fun you think you’re having comes back to bite you with crippling anxiety and depression.
Which is why I’d do more.
Yes, opiates are powerful, and yes, I abused them, but things really didn’t become dire until I added Ketamine to my life.
Ketamine, if you’re unaware, is a club drug, a horse tranquilizer, and a date rape drug. You use too much? You may wake up at some hipster coffee bar, trying to sing “You’re Having My Baby” to the dude in the front row who may or may not actually exist. In other words, it’s the best way to forget how fucked you are.
The delusions worsen as time passed. I could see into the future. I could read your mind. I was going to be famous. I was super fucking rich. In this fucked-up world, I could even forget about me, and the life that I’d so carelessly shattered. I remember sitting in Divorce Class at the courthouse, something required of all divorces in Kane County, weeping at all that I’d thrown away – using a total of three boxes of the low-quality, government tissues. I left with a shiny pink face and completely chapped nose and eyes that appeared to be making a break from their sockets. I went home, took some pills, took some Ketamine, and passed out.
I retreated ever-inward. I didn’t talk to many people. I didn’t share my struggles. I was alone, and it was my fault.
The hallucinations started soon after Divorce Class ended and my ex and I split up. He’d left my house in a rage after a fight and went to live with his sister. I got scared. His temper, magnified by the drugs, the hallucinations, and the delusions, grew increasingly frightening. Once he’d moved out, the attacks began. I’d wake up naked in my bedroom, my body sore and bruised, and my brain put the two unrelated events together as one – he was attacking me. It happened every few days, these “attacks,” until I found myself at the police station, reporting them. I was dangerously sick and I had no idea.
My friends on the Internet (those whom I had left), sent me money for surveillance cameras. I bought them, installed them – trying to capture the culprit – and when I saw what I saw, I immediately called the police and told them the culprit.
The videos in my bedroom captured an incredibly stoned, dead-eyed, version of myself, violently attacking myself, brutally tearing at my flesh. In particular, THAT me liked to beat my face with one of my prized possessions – a candlestick set from our wedding, take another pill or hit up some Ketamine, then violating myself with the candlestick. It lasted hours. I’d wake up with no memory of events, sore and tired and unsure of how I’d gotten there.
I’d never engaged in self-injury before – not once – so the very idea that I’d hurt myself was unbelievable, but right there, on my grainy old laptop, was proof of how unhinged I’d become. Charged with filing a false report, I plead guilty.
In early September of 2015, I decided to get fixed, and made arrangements with work to take a few weeks off to do an inpatient detox, and, for the first time in a long time, I woke up happily, rather than cursing the gods that I was still alive.
It was to be short-lived.
Several days later, sober, I was idly chatting with my neighbor about her upcoming vacation (funny the things your brain remembers and what it does not), standing by my screen door, when karma came calling. It sounded like the shucking noise of an ear of corn, or maybe the sound that a huge thing of broccoli makes when you rip it apart – hard. It felt like a bullet to the femur. I crumpled on top of my neighbor and began screaming wildly about calling an ambulance, yelling over and over like some perverse, yet truthful, Chicken Little: “my leg is broken, my LEG is broken!”
I don’t remember much after that. I woke up in (physical rehab) and learned that my femur (hereafter to be called my “Blasfemur,”) had broken, fairly high up on the bone, where the biggest, strongest bone in your body is at its peak of strength. Whaaaa?
The doctors and nurses shrugged it off my questions, with a flippant “It just happens” and sent me home, armed with a Norco prescription, in November, to heal. I added the Ketamine, just to make sure.
A couple of weeks later at the end of November, I was putting up the Christmas tree with the kids and my mother. It was all merry and fucking bright until I sat down on the couch and felt that familiar crunch. Screams came out of me I didn’t know were possible, but I’d lost my actual words. My mother stood over me yelling “what’s wrong? what’s wrong?” and I couldn’t find the words. I overheard her telling my babies that I was “probably just faking it” as she walked out the door, my screams fading into an ice cold silence. They left me alone in that apartment where I screamed and cried and screamed. Finally, I managed to call 911 and when they asked me questions, all I could scream was my address.
I woke up in January in a nursing home. When I woke up, I found myself sitting at a table in a vast dining room, full of old people. For weeks to come, I thought that I’d died and gone…wherever it is that you go.
This time, I learned, my (blas)femur and it’s associated hardware had become infected after the first surgery, which weakened the bone, causing it to snap like a tree. They put me all back together like the bionic woman, but the surgery had introduced the wee colony of Strep D in the bone into my bloodstream, creating an infection on meth. I’d been in a coma for weeks. Once again, I learned to walk, and once again, I was sent home in late January with another Norco prescription. The nursing home really wanted me to have someone stay with me to help out, but I insisted that I was fine alone. In truth, I had nobody to help me out, but was far too ashamed to tell them.
The picture I referenced above was taken some time in May, as far as my fuzzy memory allows me to remember, after my third femur fracture in March. This time, I’d been so high that I fell asleep on the toilet and rolled off. Glamorous, no? Just like Fat Elvis. Luckily, my eldest son was there and he called 911 and my parents to whisk him away. I remember my father on the phone, telling Ben that I was a liar and I was faking it. I was swept away in the ambulance for even more hardware, and finally? A diagnosis:
HypoPARAthyroidism.
It’s an autoimmune disease that leaches calcium from the bones, resulting in brittle bones. It is managed, not treated. There is no cure.
But, I had the answer. Finally.
After my third fracture, I once again was sent to the nursing home, and quickly discharged with even higher doses of Norco, when my insurance balked, I’d used up all my rehab days for the year. By this time, I’d lost my apartment, my stuff was in storage (except the things that we’re thrown away, which my father gloated about while I was flat on my back) and my parents let me stay with them, which was about the only option I had. They couldn’t really kick me out if my leg was only freshly attached. I feel deeper into a depression, self-loathing, and drug abuse as I realized what a mess I’d made with my life. How many bad choices I’d made. How many people I’d hurt. How much I’d hurt myself. How much I loathed myself. How I once had a life that in no way resembled sleeping in my parents dining room. How I’d been a home owner. How I’d been married. How lucky I’d been. How I threw it all away. My life turned into a series of “once did” and “used to.”
The only one who hated me more was my father.
While we were once close confidants, in the years after my marriage to Dave, his disdain had become palpable. My uncle had to intervene one Christmas, after my father mocked me incessantly for taking a temp job filling out gift cards while I was pregnant with Alex. It may seem normal to some of you, this behavior, but in THEIR house, NO ONE was EVER SAD and NOTHING was EVER WRONG. WASPs to the core, my family is.
When I moved back in, broken, dejected, and high, our fights became epic. For the first time in my life, I stood UP to one of my parents. Then, I was promptly kicked out.
Guess I’m not so WASPy after all.
I want to say that the picture was taken around May of 2016, but my estimate may be thoroughly skewed, so if you’re counting on dates being correct and cohesive, you’ve got the wrong girl.
This is a picture of me, though you probably wouldn’t recognize me. I am wearing the blue scrubs that you associate with a hospital: not exactly sky blue, not teal, not navy, just generic blue hospital scrubs. These are, I remember, the only clothes I have to my name. I was given them in both the hospital and the nursing home, a gift, I suppose, of being a frequent flier, tinged with a bit of pity – this girl has no clothes, we can help. Whomever gave them to me, know that you gave me a bit of dignity, which I will never forget. Thank you.
I am wearing scrubs, the light of the refrigerator is slowly bleaching out half of my now-enormous body, as opposed to the darkness outside. There is a tube of fat around my neck, nearly destroying any evidence of my face, but if you look closely, you can make out my glasses, my nostrils, my hair cascading down. My neck is stretched back at nearly a 90 degree angle from my body, my head listlessly resting on the back of my wheelchair. My mouth gaped wide, which, should I been engaging in fly catching, would have netted far more than the average Venus flytrap. I am clearly, unmistakably, and without a single shred of doubt, passed the fuck out.
It is both me and not me.
High as i was, I don’t remember a thing about the photo being taken. But there I was, in all my pixelated glory.
By the time I saw the photo, I was once again in my “will do” and “can do” space. I’d kicked drugs in September 2016 and had found a job that I enjoyed. I stayed with my parents while I began to sort out my medical debt and save toward a new car and an apartment of my own. My spirits were high, my depression finally abated to the background, and I was tentatively happy. I’d apologized until my throat was sore, but my fragmented memory saved me from the worst of it, but I was not forgiven. I don’t think I ever expected to be. And now, I never will.
It’s okay. I can’t expect this. I know I fucked up.
My father, who’d actually grown increasingly disdainful of me, the more sober and well I became, confronted me when I came home one day after work, preparing to do my AFTER work, work.
My mother shuffled along behind him, Ben, the caboose. All three of them were in hysterics, tears rolling down their cheeks as I sat down in my normal spot on the couch. After showing them a video of two turtles humping a couple of days before, I eagerly waited to see what they were showing me.
What it was was that picture. Of the not me, me.
They could hardly contain their laughter, my father happier than ever, braying, “Isn’t this the best picture of you?” and “You PASSED OUT, (heave, heave) IN FRONT OF THE FRIDGE!” punctuated, with “I’m going to frame this picture!” The tears welled in my eyes while my teeth clenched, they laughed even harder at my reaction.
Like I said, if they’ve become Christmas Card sending people, this will be the picture of me they show, expecting others to laugh uproariously. Before I moved out, in fact, my father made certain to show the picture to anyone who came over. “Wanna see something hilarious?” he’d ask. Expecting memes or a funny cat playing the piano, they’d agree. I could see it when they saw it, my dad chortling with laughter, nearly choking on his giggles, the looks on their faces: a mixture of confusion and pity. Even in my drug-hazed “glory,” I’d never felt so low.
Maybe that picture is splashed all over the internet, in the dark recesses I don’t explore, and maybe it’s not. Maybe it’s hung on their wall, replacing all of the other pictures. Maybe it’s not.
Maybe we’ll meet again.
Maybe not.
