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Saying Goodbye

Mental Illnesses are prevalent in our world. They greatly affect not only the individual involved, but the people around them. In the month of April, we focus our spotlight on Mental Health, in order to heal together and break down stigmas.

We want your stories. How has your own, or someone else’s mental illness affected your life? How are you rising above stigmas?

Please share your stories with us during the month of April.

Mum,

I am supposed to be heartbroken.

…and I am, but not for the reasons other people think.

When you go – I will mourn the life that could have been – the life you could have had, the life WE could have had; not the car crash it was – leaving nothing but broken people and devastation in its wake.

I will be sad for the “what if” and the “what could have been,” not the actuality. I’m not sad for the reality.

The reality is that your passing will set me free – to a certain extent – from my ‘you’ prison. I’ll still have to continue contending with the prison I built for myself, I know that, but, the direct pain of you will be no more.

People try to share with me, which is sweet and kind but, it makes me squirm and knocks my very thin rope of sanity a little. They tell me about their own experiences of losing a parent or grandparent and how sad they were and how they are there for me. They share things with me which they think will make me feel better – and it would – in an alternate universe, where you weren’t so horrible, and I wasn’t so messed up.

I kind of lie, and say ’“Thank you,” and pretend that I’m cut up about it, like they are about their own relatives passing, and I lie, and I lie, and I lie. Once again, I’m the weird outsider watching the world be normal while I’m in my own little weirdness bubble. What else can I say to them?

“Thanks so much for your kind words and your thoughts and wishes but, please – don’t waste them. She never loved me, and in turn, I’ve built a wall 7 feet tall. I spent my whole life trying to make her love me and it never worked, no matter what I did. This is not a normal ‘daughter losing her mother’ thing, so please – don’t hurt yourself remembering something painful to you in order to help me. Please, please don’t. ”

Sometimes I think I should cry, to look normal.

I nearly did cry the other day. I couldn’t bear to touch your skin with mine so I held your hand through the blanket, and you squeezed it. You squeezed my hand.

It was like throwing a starving person one sugar-free mint. Something wonderful and warm and meaningful but, at the same time empty – and too little – and far too late.

You hang on. Wasting away. I can almost identify every bone in your body. You rarely speak. You rarely wake now. Your body is breaking down, and even the nurses are praying you pass before the really ugly stuff starts happening.

But, you hang on …and on …and on…

I’m sorry you never got the life you wanted mum. I’m sorry it was so hard. I’m sorry you struggled with your own mind from childhood, and I’m sorry you made such awful, terrible, harmful choices. I’m sorry you experienced horrific things, and I’m sorry no one was ever there to protect you.

But, I’m angry you left me. You abandoned me whilst still being in front of me. I’m angry, sad, lost and hurt that you ignored me and chose others so much more favorably over me. The things you did to me, and said to me, and put me through were unforgivable. Some of the things still make me gasp a bit when I remember them because they were so cold and hard and callous; designed to hurt me and humiliate me and separate me. How could a mother treat their child like that?

I guess I don’t want other people’s sympathy because it’s not right. I’m not grieving over the prospective loss of you because, I’ve already been grieving your loss.

…since forever.

Safe journey, Mum.

Inpatient with Dissociative Identity Disorder #3

Mental Illnesses are prevalent in our world. They greatly affect not only the individual involved, but the people around them. In the month of April, we focus our spotlight on Mental Health, in order to heal together and break down stigmas.

We want your stories. How has your own, or someone else’s mental illness affected your life? How are you rising above stigmas?

Please share your stories with us during the month of April.

A bigger obstacle than psychiatric ward staff to the treatment of a Dissociative Identity Disorder (DID) patient is that of a psychiatric doctor. Why? Because there is still a divide between the people who believe/assert/think/etc that DID exists and people who think it’s humbug and that we’re all faking it. The person supposed to treat you may not even believe you are telling the truth!

So you may now understand my relatively high level of anxiety and paranoia when entering a doctor’s office. Either I’ll be respected and treated as an equal, or I’ll be patronized and treated as though I’m just a vivid actress faking a bunch of crazy shit. The third option is that the doc wants to believe me, but actually has no fucking clue about what Dissociative Disorders are, and, evidently, has no clue how to treat me.

My experience yesterday was something like this: if you put the three options within equal distances of each other and drew lines to find the smack middle, my doc would have been sitting on top of the bulge of the three coalescing lines. She had quite a carefree outlook, vivid vocabulary, mild hand gestures. Naturally she wanted to hear everything explained, again, in detail. Fortunately my care worker was with me.

I stared at my thighs, and at my Adventure Time leggings, as the doc said in a chirpy voice, ”You’re not exactly normal, are you? You’re like a splash of color.” I giggled at this – my leggings and my unicorn hoodie were both so colorful I reckon the eyes of passersby would sting. ”No, I wouldn’t say I’m exactly normal.”

The doc decided I’ll stay till Friday, then try being home for the weekend and then come back for the beginning of the week, during which we’d have my second treatment plan meeting.

I have been given permission to take outings during the day. Physical exercise is very important for me in order to keep dissociation at bay, so I went to the gym today, as well as a walk. It is the time of year I wish I lived somewhere else, somewhere where it didn’t start getting dark after 3 pm.

So here I am, sitting on my hospital bed with my small turquoise HP Chromebook purring in my lap, waiting for my designated nurse to come knock on the door again.

A Light In The Darkness: Dare I Hope?

Mental Illnesses are prevalent in our world. They greatly affect not only the individual involved, but the people around them. In the month of April, we focus our spotlight on Mental Health, in order to heal together and break down stigmas.

We want your stories. How has your own, or someone else’s mental illness affected your life? How are you rising above stigmas?

Please share your stories with us during the month of April.

Today, well …really yesterday, I can’t sleep …my coworker stopped me to ask what was the matter. I suppose that it’s been pretty obvious for a long, long time that I haven’t been too happy.

So I laid it out for him.

“I don’t know how long I can keep doing this.” said I.

“What do you mean?” he asked.

“Well, just dragging myself through each day. You don’t understand if you haven’t felt it. There is literally nothing worse. It’s like thought-cancer. Every last good thing that you have done counts for nothing. Nothing is good. You don’t hope for anything because nothing works out, in the end. That’s the way it is when you’re a loser.”

“Hey, I think you’re pretty great. You’re a great employee. Nobody worries if you’re in charge of a project. They know it’ll be done. I can’t claim any understanding of what you’re feeling, but I do understand loneliness and doing the single dad thing. It’s really hard, but you’ll get through it.” he said. “Have you thought about getting any help?”

“Yeah, I’ve done therapy. I have to dredge up all these shit memories, some of which I had all but forgotten. It’s not easy or fun. The drive gets me too. When you’re feeling this way, two hours of driving becomes a HUGE obstacle.”

“Well, do you mind if I help find you someone to see? I wear lots of hats and it really isn’t any trouble. We care about you, and it really tears me up personally to see you this way.  I mean man, when you’re up, you’re up and going, smiling and happy, whistling tunes and singing.”

“Well, those times are becoming fewer and further between. Thank you. Yes you can look.”

We had our Christmas party tonight and it really was all I could do to get out the door. My kids and me. The only single person there. It wasn’t easy. The kids got some small presents, and we feasted on prime rib roast and ham, salad, and green beans with garlic and bacon, funeral potatoes, and cheesecake for dessert.  I ended up smoking at least a dozen cigarettes in between playing cars and dollies with all the kids. I really do love playing with kids. They’re so much cooler than adults. Plus, they don’t mind when you’re a bit of a nerd. They think it’s funny. They’re not all caught up in being an “adult.”

Anyway, it was a fun night. At least as fun as being a depressed mess can be.

It struck me that my coworker noticed something that has only been slowly dawning on me the past few months. I may very well suffer from some kind of Bipolar Disorder. I noticed in this last year that I have periods of not exactly mania, but something akin to it, that precede my depressions. And indeed, thinking back, there were times that I was the one dragging a reluctant wife around to friends’ houses, staying up too late and drinking too much, laughing too loudly, smoking way too many cigarettes. Looking back, it’s like watching a slow sine wave …up and down, and up and down. But the peaks are flattening out, while the valleys are falling lower and lower, like some macabre emotional EKG readout, about to flatline.

In any case, this December is my crossroads. I really think that it’s my last chance, and that I WILL be a fool if I don’t follow through and take whatever help my company can give. Once again, I am struck at how selfless these people can be. I have often thought that my job was the single best thing that I have going for me, aside from the children. I am blessed that they care. I explained to my coworker that even getting out of bed is a HUGE accomplishment for me some days.  What I didn’t mention was that most of the days that I don’t show up to work, I’m laying in bed wondering why I’m even breathing. Last month, I spent two working days and nearly all weekend in bed, leaving only to buy cigarettes. Another thing I didn’t say was that I am completely sure that I could CONQUER THE KNOWN UNIVERSE if I could get better. Another serving of hyperbole anyone?

But its true. I have managed this much in my fight against depression. I have a tiny nucleus of potential, waiting like the silence before the Big Bang, hidden away from the shadows. Indeed, somehow I have managed to keep this strange little grain alive through it all, shedding its light silently like the crystals from Final Fantasy. Maybe that’s what they call my god-spark, my soul or whatever. My true self. It’s a dim light, and a cold one, but at least I’ve managed that much.

I have been very reluctant to try medication. I must admit that I self medicate with marijuana. But….cannabis IS NOT A PANACEA! I have argued this point with people more than once. You can be depressed, get stoned, and yep, be stoned AND depressed. It does make things bearable in that I am freed for a while from the cyclical thoughts of self loathing. But it’s not a treatment. An old hippy once told me that pot should be the spice on an otherwise good life and that kids now wanted to feel stoned to improve their lives and end up being slaves to pot. It’s true. I’ve known people who will go without food in the cupboard in order to get weed. Food is the very first thing I buy, after paying my bills …after all, what will one eat when one has the munchies? Which, since I have a really bad habit of eating little to nothing for days at a time when depressed, is another benefit. It’s sad that so many who advocate for marijuana don’t just say that it’s like a glass of wine for people, and the governments should get over it. They push like it’s some kind of miracle thing, but its just a damned plant with psychoactive substances. Yes it has been shown to have medical uses, but I really don’t think that depression should be one of them.

I have been reluctant to try medication since my stint on a previous bipolar medication. Sure, I didn’t feel depressed any more. But it was a hollow sort of feeling, and I didn’t like it. I couldn’t get happy or sad. It was weird. Maybe it was working like some kind of chemical lobotomy. I’m becoming more and more convinced that there is something wrong in my brain chemistry. I don’t know if things went wrong because of the sexual abuse I suffered, or because of a genetic thing, or both, but I think that some kind of medicine is what I need. I will have to give up pot, to be sure, but I am not espoused to Mary Jane, and I don’t think that I’ll miss her to much.

I also have to get over my anxiety that the medicines will make me feel more suicidal. I began self-harming in 2014. I hit myself hard in the face and head. I already have a kind of cavalier view of pain. Physical pain is easy to bear, for me at least. This means that I could be one of those who just snap because of their medications and finish themselves off impulsively. I don’t want to die, no matter my suicidal thoughts. Not really. But it’s frightening when you can suddenly become your own worst enemy.  No one has ever hit me as hard as I have hit myself. But the scariest part of it is that, for a while, I feel better. Yes.  I hurt myself and feel better. Fucking A.

So December is my crossroads, and I hope I take a better path.  Dare I hope that I’m going to get better?  Tentatively, perhaps.

A Light In The Darkness: One Year Down

Mental Illnesses are prevalent in our world. They greatly affect not only the individual involved, but the people around them. In the month of April, we focus our spotlight on Mental Health, in order to heal together and break down stigmas.

We want your stories. How has your own, or someone else’s mental illness affected your life? How are you rising above stigmas? 

Please share your stories with us during the month of April.

 

As it stands, my story isn’t on this website. That’s because I’m not quite ready to go into it. What is relevant right now is that I’m the newest host in my body’s Dissociative Identity Disorder (DID) system. I’ve been here for almost a year.

All I’ve really succeeded in was coming to terms with all of the mental stuff we didn’t want to admit to before. Like DID, Borderline Personality Disorder, Histrionic Personality Disorder, Avoidant Personality Disorder, Post Traumatic Stress Disorder, and the fact that the shadow people are actually hallucinations (among with other fun psychosis things). That’s a lot to tackle, and the fact that we’re still here makes me feel proud.

I’m both 21 years old and 11 months old. I was thrown into a breakdown where the former host isolated themselves from all but one of their trusted friends. I’ve gotten into a relationship with said friend, and he is the kindest soul I’ve ever (virtually) met. He supports me and makes me feel like I am not completely drowning.

I’m working on freelancing to save up to go back to school (they flunked out of college and now I’m here, aware of most of my limitations and certain to make sure that we succeed this time).

It’s almost been a year, a year of preparation for our lives. A year of learning about myself and my headmates. It’s been a fucking miserable mess of a year, one with lots of breakdowns, self harm, and suicidal thoughts 24/7. But I think I’m going to make it.

I want us to make it.

Light The Darkness: Mental Illness – Help Them

Mental Illnesses are prevalent in our world. They greatly affect not only the individual involved, but the people around them. In the month of April, we focus our spotlight on Mental Health, in order to heal together and break down stigmas.

We want your stories. How has your own, or someone else’s mental illness affected your life? How are you rising above stigmas? 

Please share your stories with us during the month of April.

 

lost my adult son to depression and alcohol and feel very guilty that I didn’t see his struggle.  The days before his death I could have caught him, helped him, saved him. One email, one text. 2 years on, every day I wake and think of him and think of how I failed him. I lost not only my son but my self. When I got the call I fell to my knees and I have never really got up again. My wife left me because she did not want to help me grieve, and I cannot blame her. Will I recover? One day, one day far away I hope I will.

The purpose of this note is however not about me. I’m just like any of a million other parents this year, and next year, and the year after. Its about the other survivors like you. You need to know that you should support every charity, every effort, to work out why this this life toll, that outweighs road deaths by 2-1, happens in this modern day.

You should look at that drink in your hand, or that of your friend, who drinks too much. My son died of extreme alcohol withdrawal and I would wish that on no-one.  At the last he must have been terrified.  You might be one step away from someone who needs help.  Help them.

Thank you for reading and listening.

Inpatient With Dissociative Identity Disorder #2

Looking back on my/our times inpatient, I see an array of different experiences. Whilst at first I felt locked up, caged and incapacitated, later on I felt safer and more in agency of myself. My first inpatient experience was in 2010. This is what I wrote about it:

“I was in psychiatric hospital from April to June 2010. The rooms were cold, with white walls and loud air conditioning. I always fell asleep watching the wall, the shadows portrayed on it by the blinds.

(…)

The worst of all was when the visits went from once a week to none. When my phone was taken away from me. When I wasn’t allowed to see my parents.

(…)

Being caged in a room with no lock, no security, no privacy, without any contact into the world — and no hugs, that was what hospital was like.

I can’t believe I went there by choice.”

The hospital rooms I’ve been in still aren’t all that comfortable. The one I’m in right now is a mix-match of blues and purples (with a blue ceiling, of all things!) and the clock on the front wall is loud and crooked.

Here, we fall asleep with not just our teddy bear but also with our unicorn, bundled up in surprisingly comfortable hospital sheets. Here there is much less need for the sort of musical escapism I did as a teenage patient. Here I am a subject, an agent in my own treatment, and my folks no longer dictate my medical ways. On the contrary, I/we decide how and when and why I am treated.

I was visited by a friend last night, and would most likely be visited by my family and other friends if I were/am to stay longer. My friend gave me the biggest of hugs and played with my hair and kissed my forehead while we lay on my hospital bed talking at ease.

This time round, I have my phone, my laptop, my tablet – all connection to the outer world is intact. We are not trapped or suffocated, though staying within these four walls does get a tad bit boring in the end when I’ve finished all imaginable tasks on my computer.

And I do not regret coming here by choice, or having come here the last few times this past February and the year before. In between we have been treated in an open Daytime Ward, a six-hours-per-day sort of thing, like a part-time job except your job is, well, your own health and well-being.

Unfortunately, it is still a struggle for the staff to understand our condition and our way of being. The phrase ”So I hear you have these personalities?” is still a frequent visitor, and if I don’t remind them they’ll forget I’m not L (unfortunately, L is still up in her Limbo Room).

I’m seeing the doc today. Going to determine whether I leave or stay. Wish me luck!

By-theclocksystem