When I look in the mirror I feel a powerful cognitive dissonance. I have to be – I must be looking at something other than myself.
People say it is just a body, but it isn’t. It is the only physical representation of my entire self. It is the one – the only – thing tying me to this earth, which is not a place I often want to be.
If I can scrape the fat off my bones, then I can disappear, sink right through the cracks, and fade into the woodwork of life. Sometimes I fantasize about melting, or burning, or dissolving.
I cannot offer any deep insights into my body or my mind. I don’t know why I hate the feeling of food in my stomach. Why the only times I eat are when I’m in full binging mode.
I would like to offer up some counterpoints to the common myths surrounding eating disorders: I do not want to be beautiful. I do not want to look good in a bikini. I do not want boys to look at me.
In fact, I would prefer that nobody looks at me. I have come to the conclusion I’m almost certainly asexual, which I can’t pretend doesn’t influence my isolation from the “sexual” aspects of this – of my body.
I did not ask for this body, and no matter what I do, I cannot shrink my body, force it into a prepubescent frame, where I am free of the long fingers of sex and of the realities of growing up.
“A person’s a person,
no matter how small” – Dr Seuss
Today, October 15, 2014, we pause to remember the stars of our soul that were extinguished far too early.
To the parents who are missing their babies today and always, The Band sends our love and prayers.
To our babies, the babies who never got to experience the joys of Earth and whose lives were cut very short, we miss you.
We miss you. More than anyone can ever know. We wish we could have one more moment – one single moment – with you, as if we can’t have a lifetime with you.
Today, we honor the short lives of some of the brightest souls, souls that have touched many and have taught us to cherish all of life’s moments.
To our babies who we carry in our hearts, instead of our arms, we will never forget you.
Nolan “Shepherd,” stillborn at 17 weeks on September 15, 2009.
Angie’s Daughter:
Madeleine Rose, stillborn July 7, 2009 due to incompetent cervix and uterine infection.
Ann’s Son:
Orion, stillborn May 8, 2004
Beka’s Son:
Benjamin, September 4, 2012, stillbirth.
Beryl’s Daughter:
Bella Rose, stillborn on September 9, 2009.
Brenda’s Son:
Emerson Allen Behrends, July 10, 2001, stillborn.
Debbie’s Son:
Jonathan Edward, June 4, 1992, stillborn.
Debbie And Jeff’s Daughter:
Chloe Eva, September 12, 2008, stillbirth.
Heather and David’s Daughter:
Clara Edith, July 1, 2012, Stillbirth at 42 weeks, 3 days due to meconium aspiration and uterine infection.
Jill and Mark’s Baby:
Haven, November 26, 2003, stillborn at 38 weeks gestation
Jolene’s Daughter:
Ruth, January 3, 2013, stillbirth
Leslie’s Son:
Cullen Liam, born still September 11, 2010.
Lilla and Gareth’s daughter:
Pippa, born still on February 13, 2011 from listeria infection.
Louise and Joseph’s Baby:
Alice Mathelin, born still on February 25, 2011, at 36 weeks and 5 days from Abruptio Placentae
Martha’s Twin Boys:
Owen died March 8, 2008 because his cord wasn’t properly attached to the placenta.
Joshua died one month later, April 6, 2008 because he couldn’t live without his brother. Both were born still on April 8, 2008.
Melanie’s Daughter:
Summer Lily, born still March 30, 2011.
Mel’s Daughter:
Jordan Ala, stillborn on November 13, 2006.
Melissa’s Twins:
Nicholas Aaron and Nathan Alexander, June 9, 2000, stillbirth
Sarah’s Daughter:
Audrey Elizabeth, August 7, 1998, born still.
Selah Mae: born January 22, 2002, stillborn.
Stephanie’s Son:
Carter Austin Ross, March 18, 2006, stillbirth due to an umbilical cord anomaly.
TiaMaria’s Daughter:
Isabella-Rose Elizabeth, October 12, 2009, stillbirth.
Prematurity:
Amy and James’s Babies:
Jacob Bennett born and died on July 11, 2007 due to premature rupture of membranes (PROM).
Samantha Lauren born August 16, 2011 at 23.5 weeks passed away September 17th due to extreme prematurity and fungal meningitis.
Baby Helen: Born July, 1993. Passed from prematurity.
Celeste’s Son:
Christopher Robin Cote: Born September 25, 2009. Stillborn due to premature rupture of membranes and incompetent cervix.
Christine’s Son:
Jellybean, born at 5:20 April 15th, 2009; and passed just four short hours later in her arms.
Heather and Aaron’s Son:
Aodin R. Hurd, October 7, 2007, born still due to premature rupture of the membranes.
Kate’s Babies:
Baby S, March 2008, Miscarriage
Evie, December 14, 2009, Triplet Prematurity
Jack, December 22, 2009, Triplet Stillbirth due to Prematurity
Will, January 13, 2010, Triplet Prematurity
Baby M, May 2010, Miscarriage
Kristin’s Baby (Mama KK):
Ariel Grace, born on July 28, 2009 at 18 weeks 5 days. Lived 5 minutes.
Leleisme’s Babies:
Ayla and Juliet, October 20, 2009 at 20 weeks.
Bayli and Thomas on June 8, 2011 at 21 weeks 2 days.
Matthew Chase Sims: April 25th, 2006 due to prematurity.
Melissa’s Son:
Born at 21 weeks in June 2011 due to a bacterial infection, lived for 30 minutes.
Nicky’s Son:
Samuel, August 8, 2001, prematurity.
Nina’s Son:
Coleman Parker Garibay, September 14, 2005, lost at 6 months gestation and passed from prematurity.
Paula’s Baby:
Reya, September 18 2011, Prematurity due to extreme Pre-eclempsia
S & T’s Son:
William, November 2, 2013, 24 weeks, 3 days, prematurity
Yvette’s Son:
Erik Richard, July 29, 1981, prematurity.
Birth Defects:
Aaron and Kristine’s Son:
Luke Ervin Seitz, born July 21, 2011 with Hypoplastic Left Heart Syndrome, and passed on June 28, 2011.
Amy’s Babies:
Mateo, Anthony, and Ian born on May 6, 2008 at 23 weeks and 3 days.
Mateo was born still.
Anthony passed away from Transposition of the Great Vessels.
Ian passed away after a short stay in the NICU.
Amy’s Babies:
Nathaniel James, August 24, 2001 – August 29, 2001, Citrullinemia
David Henry, May 11, 2010 – January 24, 2011, Citrullinemia, passed away after becoming sick post liver transplant
Baby Khalil, born August 14, 2009, stillborn, born still from birth defects.
Beth’s Son:
Ethan Connor Brockwell, May 3, 2006 – August 17, 2006. Born with Hypoplastic Left Heart Syndrome.
Christopher: November 4, 1979, due to pulmonary atresia, a congenital heart defect.
Christopher’s Son:
Aidan, born with brain malformation on December 16, 2008 and passed on December 19, 2008.
Cora Mae McCormick:
November 30, 2009 to December 6, 2009 from a congenital heart defect.
Ellen’s Son:
Shane Michael, born October 10, 1971 and died October 11, 1971 from heart complications before his mother could wake from anesthesia. She never saw or held him.
Julie’s Daughter:
Brianna Elizabeth, born January 29, 1998 and died March 7, 1998 from a heart defect.
Kathryn’s Son:
Seth Douglas Bonnett, Our Little “Tough guy”, March 27, 2008 – October 12, 2008. Died from Hypoplastic Left Heart Syndrome.
Raquel’s Son:
Austin Skylar Gregory, born July 3, 2005 and gained his wings August 29, 2005 from Multiple Complex Congenital Heart Defects.
Ruth’s Son:
Corbin Walker, born February 20, 2011 and died May 17, 2011 from heart defects brought on by Williams Syndrome.
Shannon’s Baby:
Chloe Walker, born November 29, 2000 and died June 4, 2001 from multiple congenital heart defects and heterotaxy.
Suzy’s Son:
Starbaby, born still February 2008 due to Trisomy 18.
Venita’s Son:
Matthew Connor – February 26, 2005, born at 26 weeks, passed from Necrotizing Enterocolitis (NEC).
Wendy’s Baby:
Reed Allyvion Miners, passed away July 5th 2003 at one hour old from Primary Myocardial Disease, a congenital heart defect.
Infant Loss:
Amy’s Sons:
Nathaniel, born August 24, 2001 and died August 29, 2001 from an undiagnosed metabolic disorder.
David, born May 11, 2010 and Died January 24, 2011 from a myriad of complications resulting from a liver transplant.
Angie’s Daughter:
Leia Sky Williams, born October 6, 2011, passed away from Group Beta Strep.
Baby Dominic:
January 16, 2002, SIDS
Baby Kash Michael:
Born June 3, 2011 and died September 28, 2011.
Carey’s Triplet Sons:
Rudyard, Desmond, and Oscar, June 4th, 2011, born at 22 weeks due to of E. coli infection.
Cecily’s Sons:
Nicholas and Zachary, October 27th, 2004.
Heather and Joe’s Twins:
Jonathan Michael and Samuel Joseph, identical twins born alive and died on May 6, 2004 from extreme prematurity and twin-to-twin transfusion.
Jana’s Son:
Charlie: Born May 21, 2003 and died June 14, 2003 from late-onset Group B Strep.
JennK’s Son:
Will, born (today) October 15, 2002 and died on September 16, 2003 from complications of late-onset Group B Strep.
Jenni’s Babies:
Malakai Zachary born still March 10, 2007 due to Anencephaly.
Five more angels, July, 2007 – May, 2010. Miscarriages.
Kara’s Daughter:
Catherine Grace, born August 10, 2012, passed August 12, 2012, due to prematurity brought on by HELLP syndrome.
Lisa’s Daughter:
Kaitlyn Grace, born sleeping at 38 weeks on Saturday, May 13th, 1995. Died from a true knot in her umbilical cord.
Matt and Lauren’s Baby:
Isla, born 14 weeks premature on August 23, 2011 and died on October 10, 2011.
Rachel’s Daughter:
Mina Kathryn, born February 18, 2009, died February 24, 2009, due to complications with her PICC line.
Scribbles412’s Baby:
Baby R, May 24, 1998, Medicine Administration by RN who didn’t know or ask.
Stephanie’s Son:
Silas, prematurity.
Venita’s Son:
Matthew Conner Webb, born January 11, 2005 and died February 26, 2005. He was born at 26 weeks and faced many obstacles in his short life.
Liberty Ann born March 30, 2011 and died on April 19, 2011.
Ally’s Son: Collin
Collin: born on August 9th, 2008. He passed away 30 minutes later from cardiac arrest after an emergency c-section due to a placental abruption.
Amy’s Baby:
Nicholas, born December 14, 2005, died April 19, 2006 from SIDS.
Claudia’s Son:
Max Corrigan, born November 14, 1987 and relinquished to adoption on November 18, 1987.
Colleen’s Babies:
Bryce Philip born May 26, 2009 and died September 1, 2009 due to SIDS
Ashton Karol, stillborn on February 24, 2010 at 17 weeks.
Jenny’s Daughter:
Addison Leah, June 13, 2008, accidental death.
Jessica and Mark’s Daughter:
Hadley Jane, born October 9, 2001 and died October 11, 2007.
Lanie’s Sons:
Jake, born August 14, 2005 died August 27, 2005 due to prematurity and hydrops.
Sawyer, born November 17, 2009 died December 26, 2009. His cause of death has not been determined because he is part of a study at the Mayo clinic for heart arrhythmias – SIUDS (unexplained sudden infant death)
Leslie’s Son:
Cullen, September 11, 2010, stillbirth.
Mindy’s Son:
Brian Vitale, accidental death, September 4, 2007 – June 3, 2010. We miss him more and more each day.
Nancy’s Son:
Patrick, born April 10, 1977, Adoption
Pharon’s Daughter:
Sophia Lu Boudreau, born December 21, 2006 and died October 9, 2007 from SIDS.
Rebecca and TJ’s son:
Rafe Theobald Calvert, born on October 11th, 2009 at 26 weeks. Spent 3 months in the NICU and underwent an intestinal obstruction repair. He was released on January 11th, 2010 and we brought him home for 6 weeks. He passed away at 4 and a half months old from SIDS on February 25th, 2010.
The Stamm’s Daughter:
Adrienne Mae, May 7, 2006, Sudden Infant Death Syndrome.
Suzie’s Son:
Nathan Michael King, died from SIDS November 2008.
Vanessa’s Daughter:
Kendra, April 23, 2005 to March 24, 2006. Died from Jacobsen Syndrome.
Homicide:
Chance, July 25, 2014, homicide
————–
Read about how to help a friend through miscarriage.
Let me be honest with you and give full disclosure. We were not together. But we were very much together. Not sexually or romantically – but in every other way possible. We were a unit. He was my husband and the father of my daughter. We were madly in love and we fought equally as hard as we loved. But we couldn’t make it work because we had separate issues. When those issues aligned, they exploded and caught our lives on fire. We were, as the prolific Eminem says, “what happens when a tornado meets a volcano.”
We were even openly dating other people. I would tell anyone who was interested in me, “If this is going to work, please know you’ll not only be dating me, but you’ll be dating my husband and my daughter.” I’d ask him who he was sleeping with and if they were any good in bed. No one understood us, not even ourselves.
We never divorced and we took our vows very seriously, even if we weren’t fucking. He was still wearing his wedding band when he was found unconscious on a basement floor. I was still wearing mine an hour later when his Uncle called me to tell me things didn’t look good.
Less than 12 hours before that phone call, he and I were eating dinner at a Japanese restaurant with our daughter. We both had soup and split a sushi roll like we always did.
Our daughter was 5 at the time and said, “I like it when it’s just the three of us. We should do this more often.” He and I both nodded in agreement and I told him I’d like that very much. Maybe we could have figured out how to fix the mess we’d made, but probably not.
He mentioned needing to the grocery store to get some things for our daughter since she’d be spending the night at his place the next night. So we went together. I remembered how out of it he seemed to be. After he put only one item (strawberry shampoo) in the basket, he shrugged and said he’d get the rest later.
By then it was raining and he walked us back to my car. As he walked away I said, “Dude, I don’t even get a hug?” and he hugged me in the rain. I told him to be safe. The second I got home I called him to make sure he was home safely. He told me he loved me. I told him loved him, too.
I didn’t hear my cell phone until the second time his Uncle called because it was on vibrate. When my husband didn’t make it to work that morning, they went to check on him and found him unconscious. Paramedics broke his two front teeth trying to insert a breathing tube because his teeth were clenched. They couldn’t determine how long he’d be without oxygen. They couldn’t figure out what in the hell happened.
The whole drive to the hospital, I was convinced it would end up being an overdose or alcohol poisoning. I yelled and I screamed the whole way there. I cried. I told the universe if it took him away from me, I’d fucking kill it.
As it turns out, his system was completely clean. No drugs and the only sign of alcohol was so trace, they said it could have been from using mouthwash after brushing his teeth.
They spent 4 days running tests on him to figure out what happened. Four days on life support. Four days of not sleeping. Four days of seizures, which I thought was a good sign (I was wrong). Four days for friends and family to trickle in. He was only 25 and none of this made any sense.
I rubbed his feet. I told him stories. I teased him. If he could hear me, I wanted him to know that, like I promised him, I wasn’t going anywhere.
On the fourth day, they fit us all into a little room and told us there was no hope. He was brain dead and, oh yeah, they had no idea why. They might be able to tell us once an autopsy was performed. We made the unanimous decision that he would never want to live on machines.
On that fourth day, they wheeled him into an OR and removed all tubes and machinery. They said I could stay until he took his last breath and at that time I’d be ushered out so they could retrieve the few organs I approved.
I held his hand and quietly sang to him. I told him I didn’t want him to go, but it’d be okay if he had to. My face mask filled with snot and tears as I watched his breathing stop and fade out into the silence in the room.
I went to the liquor store and the guy behind the counter said, “Jesus, who died?” Slinging my bottle of vodka, I crawled into bed until the world stopped making so much noise. It never has.
The days and months following I heard some lovely gems:
“You weren’t together anymore. Why are you so upset?”
“We should get the ashes until your daughter turns 18. Then she can have them.”
“You’re not his wife.”
“Why was he wearing his ring if you weren’t together?”
“Weren’t you guys dating other people?”
“Why are you listed in the obituary?”
So let’s get this straight:
I wasn’t really his wife anymore, but I was wife enough to pay the medical bills (because he was on MY insurance), pay for half the funeral service, get all documents in order and pay off all the remaining debt he left behind. I could answer any question you’d ever ask about him. I wasn’t really his wife? Fuck you.
I admit we weren’t normal or conventional.
But let me be honest with you. Full disclosure. I loved that man with a depth, passion, and ferocity I could never explain. I hated him because he was everything I wanted and we couldn’t make it work. He was my best friend and knew everything about me – and loved me anyway.
He loved the smell of pumpkin and drank coffee at all hours. He wanted tattoos but never got any. His entire life was dedicated to our daughter. He was a chef. He smelled like mint. He had the most beautiful brown eyes that he passed down to our daughter. He dressed really well, except he had awful taste in hats.
Losing him is the worst thing that has ever happened to me and it has stolen a chunk of my heart forever.
i am being nudged because there is a new site coming up and it’s about..READY FOR THIS…grief.
all kinds of grief, the grief spectrum. whatever.
anyway, i know about it. way too much. and i also realize this is an attempt, because it won’t be right.
not that it’ll ever be right, but i figure i’ll have to hone this to make it really readable, or good enough, or…
wtf? good enough? for who?
jesus, it is what it is. i write like i write. i feel what i feel. (sense the anger? i seethe a lot, sometimes it is a murderous rage, often directed at my dead husband. it’s a nice side effect of ptsd. as is depression and drinking and eating too much or too little – done all)
so.
january 21 2006.
i feel my husband get out of bed, roll over. “morning”
..i go back to sleep.
(it’s a saturday morning, it’s 7:30 am..yeah, i go back to sleep! don’t judge)
maybe, MAYBE 5 minutes later i hear my son running down the hall, screaming “daddy fell and there’s blood”.
up like a shot, into the bathroom, where he was feeding the dog. water everywhere. did he slip in the water? “No. i passed out”….
calm me to crazed son ”call 911 and then get me some pants.” (i thought enough to ask for pants. i’m great in a crisis.)
husband not in pain, but says he’s having a hard time breathing. so we sit him up (BTW… we is me and a 13 year old scared shitless piece of love). we wait for the ambulance. it seems like hours..under 5 minutes.
i am CALM. SO CALM. i put on pants, i hold husbands head. i speak soothingly to both my guys. i call neighbor to come over to stay with son while i go to hospital. ambulance comes, and as they get him loaded and i see i can’t go in the ambulance, i grab water and my knitting…and then i BRUSH MY GODDAMED TEETH (WTF? what was i thinking?), because i figure i’ll be at the hospital for a while, and. and. and…i can’t remember if i told him i loved him. (drives me insane to this day)
i called my friend to meet me at hospital and took off. got a call en-route that ambulance was changing hospitals…what? why?….so i pull a u-turn in the middle of the street and head to the 2nd hospital. still..calm enough to call friend and tell her. weird.
(Later i find out that the 2nd hospital was trauma center. great)
when i arrive she is there, we go in. i speak to a nurse who IMMEDIATELY brings us into the ER. at this point….well, the dread is setting in. i breathe, say to susan “this can’t be good”.
AND NOW I NEED A BREAK…saving as draft.
(BTW..it’s been almost 5 years. i still can’t breathe, often, when i tell my story. and now i’m back, 6 days later to, hopefully, finish).
and i walk into the ER room that has doctors hustling and bustling (that sounds like a song from Oklahoma) and all i can see/feel/hear/ KNOW is that there is no life in that room. because, the only life i cared about is not there. the doctors kept working on tom as i held his hand and cried and asked for “a xanax, PLEASE”…, but he was gone, we all knew it. and there was a point when i just asked them when were they going to stop, so i could leave and get my son (my son, our son…how was i going to tell him?) and then they stopped. and called the time. and it was truly over.
(crying again. i wonder when i ever will not cry telling this?)
my husband and i met in 1985, married in 1989 and he died in 2006. our son was 13. my son will be 18 on september 21st, and the pain is still acute for him. but we’re going to get tattoos, SO FUCKING THERE! (tom HATED tattoos…we like them)
i’m older than most of you who will read this. i didn’t know about blogging when tom died, i wish i had. it would have helped.
the only thing i regret about that day, in terms of my choices, was the choice to leave my son at home. it seemed right at the time. i believe it was a mistake; we were without each others most important OTHER person at the worst moment of our lives.
i have never written all of this before, and it is filtered through several years. but, it is exactly how it was, because i will never forget it. and there is more to say about that day, and friends and how to deal with grief, for yourself and others, and i will.
i know i will because now i NEED to.
and i trust that this new site will be a safe place for us all.
And take heart, this isn’t one of those “She was in so much pain–” (she was) “– and now her suffering’s ended!” kind of stories, (even though the suffering’s ended, but more on my end) or “It was her time,” “God has a plan”, “It was meant to be,” or any of the other ridiculous platitudes that etiquette has taught us to say when someone is in pain.
By the by, all of those last few statements are damaging. They’re not even worthless, they’re Express Delivery Pain, and they wreck a person who is grieving. Better to say nothing when you don’t know what to say. Moving on.
Naomi was an artiste.
She participated in yoga, dance, performance arts, stage combat and renaissance festivals. Naomi practiced with a few religions and philosophies, loved to read and visit museums. She had a very exotic look (she was born in Russia, and her heritage is of Rom descent), and her tattoos were beautiful. I loved how delicate her skin was, and how her hair shone in the sun. She always managed to look glamorous, no matter what she was doing. Her face was the embodiment of Resting Bitch Face.
Only a few years older than me, but she had some mileage on her. As a teen addict and rape survivor, she’d managed to gain herself a steady income, decent living arrangement, clean and sober (apart from cigarettes; cloves, especially, were her vice). She was very ‘jaded’, as one might say (if one doesn’t have more depth than a teacup). Naomi was ever so much more than jaded; she was downright grisly. She was overripe with experience. Her font of knowledge was brackish water from a sewer system. Naomi had truly seen the underbelly of American Life as a runaway, and it stayed with her.
And yet we became friends. Fast friends, actually. I was only just twenty-ish when Naomi steamrolled her way into my world via social media. We talked for hours sometimes, and both of us liked to draw Tarot for the other. It became a regular thing for me to travel out to the East Coast to see her. I was the maid of honor at her wedding, and her ex-husband (they divorced shortly after, but remained friends) still keeps in contact with me. I met several of her friends, two of whom I have also now flown out to see, separately from Naomi, although we would send selfies to her.
The thing to keep in mind, though, is that over the years, Naomi never put away That Habit that some broken youths just can’t kick: the need for drama.
It makes you feel significant. You feel like you’re at the center of a play that’s only interesting if you’re speaking or being pandered to. When there’s drama, you feel important and like your life is far more tragic, amazing, complicated, full of hardship or whatever else is on the agenda for the day. Cultivating drama and seeking it out in what would otherwise be considered (by many, not just me) very normal, everyday encounters– that’s an addiction for some kids that have fucked-up backgrounds.
I should know. I am one.
Naomi was the kind of person that, if I was sound asleep in the spare bedroom, she would come into my space unannounced, and flump onto the mattress beside me and sigh. LOUDLY. I fell for it the first couple of times, but after she complained that an author friend of ours (who’d allowed us to stay at his home while we were visiting the township together) hadn’t made a move on her, even though she promised to fulfill his every wish, I’d had enough. I needed sleep. So I pretended to stay asleep. She bounced a little more, took off her shoes and said, “I just need to sleep in here tonight.” I made a quiet noise and turned over. “But I guess you’re asleep and not up for talking, huh?” Naomi said this at normal volume, full of petulance. With another anguished sigh, she picked up her boots and stomped to the couch.
One of the many things we talked about, as the best of friends, was nutrition and dietary specifications. We liked to experiment with replacing ingredients to either cut carbs, help out with digestions, etc. Herbs and supplements were never far from our mind to reach for, rather than a bottle of Aleve. We’re not hippies (hippies don’t hate the way we do), but we try to listen to our bodies and respond to small cues. We exhaust other avenues before seeking out a doctor.
She’d had a hard time kicking a bout of thrush, and had had no real success with a limited-ingredient diet. One morning, she called and said, “Uh… my skin is orange?” and I knew, immediately, that she was extremely ill. “Go to the hospital,” I breathed out, “and call me once you’re there.”
Naomi had a very rare form of neuroendocrinal cancer. It essentially starts in your brain and blooms into a tumor in a random part of the body. And the cancer was choking her pancreas. The mass was inoperable, but it responded to radiation, and we hoped to direct the radiation to shrink the mass away from this badly-needed organ just enough to allow for a surgeon to cut away the cancer. Instead, it started to shrink right where it was, and after a shunt was implanted to allow her pancreas to work, Naomi’s body threaded a new artery *through* the tumor, and several other veins as well, so the pancreas could still receive blood flow and remain intact and functional. It was almost as if her body wanted to hang onto the mass, regardless of malignancy.
Once the tumor measured at about the size of a tennis ball, they began chemotherapy. I would fly down to be with her during the week at the suites, and we would lounge with the television for hours together. I’d make her curry, she’d help me craft mocktails, it’d be a nice time. But every single time I visited, she and her husband were fighting. Once, in the middle of a dinner with another friend at the beach, she called me to say that they were getting divorced and she needed me to take my things and go to a hotel. But by the time I arrived home, they were quietly ignoring each other and behaved normally with me. Everything was apparently fine. They divorced shortly thereafter.
When it came time for the annual oncology review, the tumor was still present in the same position, but it also wasn’t getting bigger. As most of her organs were functioning perfectly fine in spite of the tumor, she was cleared to move up the coast to Brooklyn. She invited me to her parents’ house in the country, but I declined. I had just become pregnant with my daughter, and I didn’t want to travel. Naomi said she understood, but there was an edge to her voice.
Within a few months, I can tell you what the vast majority of our conversations were about:
-NYC is filthy
-her roommate is awful
-there are no pretty, single goth boys
-cancer is stupid
-practicing Santeria
-hating her bosses
-hating her job
-hating her new roommate
-hating how she has to beg for attention from a guy she’s dating x6
-hating that nobody is nice to her
-hating the new job
-hating the other roommate, but only slightly less than the newer one, and never saying a thing about it to either of them
There was a notable shift in who she was as a person, and how she interacted with me, after I became pregnant. Perhaps it was because I was no longer available and had had her linked with my Emergency Contacts so my phone would always ring if Naomi called me. At some point, I broke my phone and never set up the Always Ring contacts in the new one. This lead to many impatient messages on the morning after, increasing in resentment the longer it took me to respond.
When my darling baby was born, cheerful and healthy, Naomi asked to be called the witchy godmother, and cooed at my wobbly infant. She sent me pastries from her favorite Jewish bakery, and shipped blankets with chewy spots for the baby. One day she told me that she felt much more attached and close to me and my child than she did her own sister and nephew.
Therein lays our friendship, at its core. We admired and adored the other from a distance, and shared intimate details of our love lives and inner feelings. I had been friends with Naomi for so long, when it became more one-sided, I chalked it up to the cancer and let it go. But I realized that it was just who she was as a person. She would always be the victim, the one who has it worse, who hurts more, who feels things so deeply no one could possibly understand what she’s going through. I began to avoid her questions of, “Do you have time to talk?” and only respond later when I could be more attentive, but by then, the moment (and the drama) had passed.
Finally, when my daughter was 4 months old and I was at the peak of my exhaustion and postpartum depression, Naomi’s gall bladder turned septic and she had to have an emergency surgeon to remove it. I knew she’d been at the hospital for about a week, and her boyfriend was making updates as best he could, but if I’d ever felt the energy to start texting or talking to anyone– not just Naomi– I would always stop before the first sentence left my fingertips. I wouldn’t have time for a conversation, or the energy to listen. I was pretty broken, and my gurgly baby was delightful and adorable and easy to handle but… postpartum depression is a monster. Perhaps I was wrong to think our friendship could survive a month without contact. Maybe I should’ve just sent the one or two-sentence text messages, just to let Naomi know that I was thinking about her.
But I didn’t. And for the better part of 6 weeks, neither of us reached out to the other.
And then she messaged me one day out the blue, opening with, “I am upset and I need to tell you what I’m feeling.” So I settled into Best Friend Mode and prepared myself for an hour or two of new/old complaints with minimal commentary on my part. But I was not prepared for what happened next.
“I almost died!!” she raged, “and you couldn’t even pick up the phone! But I’m just expected to remember every stupid detail about your kid!” and that’s about when she lost me. I’d heard about other people saying crazy things when their cancer gets to late-stage terminality, but I had also become (unfortunately) too experienced with people fighting cancer and then dying. And I don’t find this to be true.
My kid had nothing to do with this fight we were about to have. I tried my best to shelve the comment and look for what was underneath: she was in pain, she had no way of expressing it beyond rage and lashing out. I tried to commit to this conversation with everything I had, and I am still grateful that my kid was napping at that precise moment in history.
I listened and took in all of her words. I filtered out some of the hate and attacking phrases, and sent back a heartfelt apology, with a promise to do better in the future and to at least keep Naomi abreast of where I was emotionally. I apologized again, and said that I would understand if she needed to stay mad at me for a while, but I just needed to say the words “I’m sorry” first.
I’m not sure how everyone else on the planet receives apologies, but for me, all I want to hear is:
-acknowledge the pain that was caused, without excuse
-empathize as to how this could have affected you, were the tables turned
-admit fault, apologize sincerely
-have a plan for what to do differently next time (and/or how you intend to make it up)
Pretty sure I’d checked off all those boxes in my reply, but apparently, that’s not how Naomi liked her mea culpas, especially without a genuflection. I had ended my letter with love, but she instantly shot back, “Spare me diplomatic bullshit.”
I bristled, but was more hurt that she thought me insincere.
“I can see you are still very angry,” I responded, “so I’ll leave you be for now.” I was trying to just give her space to be angry without being more hurtful to me, and I thought I had conveyed that it wasn’t in my intention to block her out or turn away from her. I hoped my words had been received with love on some wavelength. That’s not what happened.
“I’ll leave you be for now.”
“what else is new”
That was over a year ago, in May of 2019. A lot has happened in the last 18 months.
Last week, I discovered that Naomi had been found dead in her bedroom by her parents. The cancer had progressed, she had had another emergency surgery, and she succumbed within a month. Her fight was finally over. Our mutual friends were sharing stories and crying over the loss of such a beautiful person, and what must I be feeling, as the very best friend of olde?
Well.. I felt relieved. I felt a tremendous weight fall away from my body.
Ah, yes, yes, I’m a horrible person, I know. Luckily, I also don’t care what anybody else thinks.
Was it surprising? Yes, of course. I hadn’t been in contact with Naomi for over a year.
Was *I* personally surprised? No, not at all.
Part of being the Best Friend meant helping her plan her will, her final wishes for rites and burial, for palliative care and, in case the worst of it came to pass, her plan for suicide. I had promised to assist. More than once, she used the phrase, “I don’t want to live like this anymore,” and I would comfort her as best I could, without asking if she was ready to die. One day, she told me she was ready, because the pain had become too much. I asked her to give me a day to get my affairs in order, and I’d get on the plane to NYC. By the end of the night, she’d messaged to say not to bother coming out, that she was fine.
When I found out Naomi was dead, I felt a deep pain in my heart for the relationship that we had shared. For the actual friendship, the late night talks, snuggling with her dogs, sharing costumes and garb for holidays and vacations. We loved each other, truly. But not everything is made to last forever.
As I scrolled through the memorials and testimonies that people were contributing in her honor, I felt mildly amused, thinking, “I doubt Naomi ever told these people the things she told me.” And it hit me– I’m glad she’s dead.
No more drama.
No more unnecessary calls.
No more seeking out the worst-case scenario and *betting on it*, in every situation.
No more shrieking, no more “Okay, but just five more minutes–” stretching into an hour every time.
No more pity party the size of Houston.
No more of any of it.
As it would have fallen to me, eventually, to untangle and sort through the mess of feelings she’d stirred together and dumped on me in that final conversation, and try to make sense of our friendship going forward, it still wouldn’t have been enough. Naomi always needed grandiose gestures to make her believe that a person was being honest and truthful. And I have never been the person to do that.
It would’ve been my job to fix that mess, because that’s the way it had always been. Helping her to see another’s perspective, and not assuming the worst intention of her lovers. Reminding her to breathe before she speaks, and never say the first thing that comes to mind. These are behaviors that every grown adult must learn to master for themselves, so they can be contributing members of society.
I was 35 years old before I realized that Naomi was completely dependent on me. I had never realized that our friendship had taken that turn, but looking back, it was so obvious.
I’m so very grateful that she is no longer suffering from migraines, nausea, aching all over and weariness. I am happy that Naomi has passed. Her body was terrible to her. But the emotional hellscape in which she lived, every single day, was the real demon, not the cancer. And it was largely her own doing, because she could never back away from being the center of attention. She had to repeat everything she heard or suspected about a person. There was no irritation too small that she couldn’t launch a full-scale critical review, complete with scathing commentary. If nobody had told Naomi that she was pretty at least once a week, she would post a new selfie with a comment: “felt cute might delete later” and then praise every person who complimented her. The reason I know she did this intentionally is because she told me.
I’m glad she is dead. I am relieved that my friend has died. I am happier because she’s dead; a tremendous burden has been lifted from me.
I don’t even know what her family intends to do with Naomi’s remains, but I’m not going to call them and ask, or insist on carrying out her final wishes. That was a promise I made to a friend. The woman who called me names and vilified me at my lowest point is not my friend.
I’m not obligated to fulfill anything on her behalf. I’ll never have to unravel another one of her messes ever again. I’ve said it before, and I’ll say it again: I’m glad she’s dead.
Post Script: if this kind of thing truly makes your insides twist, I am pleased that there are still people out there who have only experienced wholesome relationships that are full of goodwill and reciprocity. But since finding my voice about this and learning to say how I feel without needing to justify it, it has been made clear to me that many, many other people feel this way about now-deceased people from their pasts, and for far worse reasons than the ones I claim against Naomi. So to those people who’ve only experienced equitable relationships, I salute you. For everyone else, go ahead and say it out loud. I give you permission to say “I’m glad they’re dead,” and then reflect on any good times you may have shared, or at least share why it is that you are glad they’re gone. It has given me tremendous closure. Maybe your family or mutual friends don’t or won’t understand, but that’s okay.
You can say it to me, here, or you can write about it on your own, or you can tell it to The Band. We are here for you. But either way, go ahead and say it, see if it helps free you the way it did for me.