by Band Back Together | Nov 5, 2018 | Feelings, Friend Loss, Grief, Guilt, Help For Grief And Grieving, How To Cope With A Suicide, Loss, Mental Health, Suicide, Survivor Guilt |
I lost my best friend, my very first true best friend, the one who taught me how to love and how to be loved back, to suicide in July 2015. The following is my thoughts when I found out he had taken his own life…
…4 months after it happened.
You see, we had lost touch and I had made myself invisible to everyone around him. I don’t typically believe in regret – it only leads to negativity – however in this case I truly regret leaving his circle. I’m still not sure why I felt it necessary. I missed his memorial. I missed the late night call. I missed saying goodbye.
Because the brain is a funny thing, I seem to have blocked out most of the hardcore grieving.
So here, from my Facebook and various platforms, the recounting of my thoughts and feelings during that time:
November 11, 2015
The journey of life is such a strange thing. I just learned that the person who was my light when I couldn’t see through the darkness left this life a few months ago.
November 12, 2015
I woke up this morning and he was still gone. It wasn’t all just a horrible nightmare giving me chills while I sleep. It’s real life.
I went to sleep crying and I woke up crying. My 2 year old keeps asking why I’m crying. Mommy’s just sad baby. So very sad.
“There will come a day when the joy runs out. Do not ask “What could I have done?” but instead ask “What will I do now?” Think of me when you hear music, and laugh at something you remembered me saying. Know that I am silent and still, and believe me when I say that sweet nothingness is preferred to this life of disgrace, heartache, and pain. I will be no longer be a burden. There will come a day when the joy runs out.”
Pat wrote this on his Facebook February 18th, 2012.
I don’t recall what inspired him to write it, but I saved this note because he put his soul into words.
Words that rang true, unfortunately, way too soon.
So tonight, at Pat’s request, I’m asking myself, “What will I do now?” Instead of the “What should I have done? What could have I done?” that has plagued me since I found out what had happened. Months ago. That I did not know had happened.
Months ago.
I lost him through choices that were very much my own. What will I do, now that my heart is incomplete? I will think of him when I hear music. I will laugh when I remember something he said. I will remember that he isn’t here suffering in the prison of his dark thoughts and insecurities. I will continue to love him as if he were still here, because I don’t know how not to.
In a serendipitous way, he’s the reason that my husband and I are together today. I had stopped at Walmart to grab some books because I was preparing for an extended visit with my friend, Pat, who was having a rough night. The (future) husband just happened to be building a feature nearby. We got to talking and planned to hang out soon.
Three days later, we were sure that we’d never be apart again.
Pat officiated our wedding in the rose garden at Gage Park a year later to the day.
We had lost touch the last couple of years. I’d gotten busy raising kids and building our new extended family and Pat had been busy working and playing his beloved music. We met for coffee at Denny’s about two and a half years ago to catch up and share memories. He had changed and so had I and we couldn’t find our common ground anymore. We both just kind of let our relationship slip into fun memories and the occasional longing to be together, where we used to be.
I’m a firm believer that everyone comes into your life to give you a lesson, good or bad. Pat taught me many lessons in our time together; a hug is the best medicine, astrophysics is fascinating, and Neil deGrasse Tyson, Carl Sagan and Alexei Filippenko are awesome to watch in lecture. That music is a piece of my soul and goes deeper than a Top 40 pop radio station. Today Pat is teaching me to not take for granted the people that come into your life unexpectedly and leave the same way.
I love you, Pat. I’ll forever miss your hugs and dumb Assy McGee references.
I’ll never forget your smile.
January 1, 2016
You’re on my mind a lot today, buddy. There was a curious string of songs in my Pandora shuffle and while I know that if you were here you’d tell me how silly I was being and it’s just a coincidence, but I can’t help but think that it’s you giving me a little boost when you know the day is rough.
Miss you, been missing you. Wish I could tell you that.
(To my friend in a private chat) I can’t say this on my picture because it’s too public. But I’m having such a hard time dealing with his loss.
It’s like a shot to the gut. I feel like I failed him. He couldn’t function on a “hey how ya doing” every six months. He was a full-contact, likes-to-hang-out-in real-life type of guy.
I knew that about him and I just, I feel so badly that I let him grow away from me.
That I let myself become a part of his list of “people that don’t give a shit” because I totally gave a shit. I guess I’m really struggling with what I know his last thoughts were before he took his life.
I know he was listing off all the people that had failed him because I talked him down from that thought before. Many times. I have a Facebook messenger full of me talking him down from that. I wasn’t there that time to talk him down from that.
I know that’s not fair of me to put that on myself. I know that intellectually, but it hurts my heart so fucking much.

This. This haunts me so
He was there for me in my bad time. I was there for him in many of his bad times. I wasn’t there in his last bad time. I don’t know.
I feel selfish. For not trying harder to make him a part of my life. I’m struggling in the shoulda coulda woulda. It’s a favorite past time of mine. I keep pep talking myself “You didn’t know, There’s no way you could’ve known, he shut himself off, too”. I’m just really struggling today. I’ve been in tears for hours. I’m just struggling with my choices. I’m hurting.
February 23, 2016
It’s your birthday today. Normally, I’d be constructing some smart assed email joking about getting old and having you sneak goodies in to me at the nursing home. Instead I’ll be heading out to see your headstone in the country, along with the kiddos so I’m not tempted to be out there for too long. Missing you Pat. Today and everyday. Happy Birthday.
July 3, 2016
It’s been a year. I can’t believe it’s been a whole year. What I wouldn’t give for a Pat hug today. Instead, I’m watching astrophysics documentaries, some of your very favorites, Carl Sagan, Neil deGrasse Tyson and of course Alexei Fillipenko. They’re not the same without you here to dumb them down for me, but it feels like the right thing to do.
I’m looking forward to catching up with your family later today and celebrating your life and sharing memories. Until we meet again, I love you and miss you so, so much.
July 3, 2017
It’s been 2 years that you’ve been gone. I still miss you every day. I find myself in tears when I come across random 6 ft tall bald dudes, with sweet beards sporting some chucks. There are more of those than you would expect. It’s never you, if only I could convince my brain to stop looking. What I wouldn’t do for one more Pat hug. Love dove.
February 23, 2018
Happy Birthday dear friend. Watching some Cosmos tonight and thinking of you. Miss you so much, today and every day.
“when you meet that person.. a person. one of your Soulmates. Let the connection, relationship be what it is. It may be five mins, five hours, five days, five months. Five years. A lifetime. Let it manifest itself, the way it is meant to. It has an organic destiny. This way if it stays or if it leaves, you will be softer from having been Loved this authentically. Souls come into, return, open, and sweep through your life for a myriad of reasons, let them be who and what they are meant.”
― Nayyirah Waheed
by Band Back Together | Oct 30, 2018 | Arthritis, Childhood Diseases And Disorders, Chronic Pediatric Illness, Family, Feelings, Grief, Group B Step, Health, Help For Grief And Grieving, How To Help A Friend With Infertility, How To Help A Parent With a Special Needs Child, Infertility, Loss, Meningitis, Muscular Dystrophy, Parenting, Pregnancy Complications, Sadness, Special Needs Parenting, Viral Infections |
Friday’s child is loving and giving.
So why is my Friday child confused and behave as though he’s Wednesday’s child instead? B doesn’t stick to the old English poem. He got confused along the way. I know exactly when that was. When he was twelve days old and caught the dreaded meningitis.
That was the worst of times.
We were told he wouldn’t survive the night, but he did. We were told he would never recognize us or smile or manage any basic functions, but he did. I won’t bore you all with the setbacks, the heartache every night, the months spent in hospital, how none of our friends visited, the long, drawn-out wait to get home.
Those are for another time. Maybe.
This post is about now, this minute, how I am feeling. I have never written anything like this down before, but I am an avid follower of Aunt Becky and she told me to, in all her posts about Band Back Together.
I don’t know how to make this a nice flowing post rather than a list of illnesses, surgeries, appointments and setbacks. I suppose I’m having this issue because that could be how you would sum up B’s life so far. I know that’s how others see him. When we meet for a Girly Catch-Up date, it’s never, “how are you all?” it’s “what’s B having done now?”
My friends are great but I’ve been labeled The Coper; or she who deals with all that life throws at her. B is labeled as ‘poor thing.’ Not a great label for an intelligent, reasonably active eight-year old. We have settled into this comfortable way of coping that I don’t know how to let people know that sometimes I am not coping very well.
Maybe Band Back Together will be the friend’s ear I can bend.
Anyway, back to my child of woe.
We were lucky to get pregnant with B and we were lucky to have a nice ‘normal’ pregnancy. B was born on his due date and then things started to go wrong.
B was labelled with Torticollis and Talipes within the first few days of his life.
It threw us but we had just come to terms with all of that when B caught the dreaded Meningitis, caused by late onset Group B Strep. Again, not to bore you with that hell of a first 6 months, B managed to cling on and then thrive. He was considered a ‘floppy’ baby due to, what we figured was the brain damage caused by the meningitis, so all his milestones were delayed. He also couldn’t work his muscles properly, including swallowing, so B was fed through a gastrostomy.
When we thought we were through the worst year of our lives, we were hit with another side swipe, B’s hip was dislocated and deformed, it needed immediate surgery. That surgery was deemed successful and so we carried on. We even began to relax a bit and focused on having some more children. B still had some problems, mainly with his muscles, but we had got him off his gastrostomy and, again, he was thriving.
So, we relaxed and concentrated on other issues, such as my infertility and the long rounds of IVF, but again another story for another time.
During these years we were eventually blessed with twins Z and E. All seemed well in our household, the girls were healthy and B was doing well.
Then, when B turned 6 we were knocked over again by the diagnosis that his hips weren’t right still. So major surgery followed, which involved B being in an hip spica for 8weeks (not great for a 6yr old boy and a mum who also has 2yr old twins to look after) and wheelchair bound for many months more.
However, we all survived, well I am a’coper’!
B was just beginning to get mobile again when a doctor noticed his face was looking wonky.
A year of maxillofacial appointments followed which ended with us being knocked over again by the diagnosis of Juvenile arthritis. The arthritis had been attacking his jaw joints for some time unnoticed and had now deformed them to the point of major facial surgery required.
However, they cannot do this while the Arthritis is active, so cue major arthritis drugs. Now B has to have weekly injections, for years, that are lowering his immunity, great.
However, we are coping!
Now factor in his hips update as well last week and we are cooking! B’s hips have, again, grown wrong and further major surgery is required, probably in January. Again my lovely son will be wheelchair bound because of his hips, injecting for his arthritis, struggling to eat because of his jaw deformity and tiring due to his muscle issues. Again, I have taken on this diagnosis and have dealt with it and I am prepared for it. What I didn’t expect was for his orthopaedic surgeon to say that things don’t seem quite right with B’s muscles and they seem to be getting worse.
Well, yes, he has hypotonia from the meningitis. obviously his muscles are not right.
That is not what he meant, the surgeon knows of B’s past history and thinks there is something else affecting him.
So that is why my gorgeous, bright, loving son is now being tested for Muscular Dystrophy and the medical view is that he probably does have it.
WHY?? I mean, hasn’t B gone through enough?
Haven’t I gone through enough? Haven’t all our family gone through enough?
B has, at the moment, hypotonia, hypermobility, hip problems, arthritis, jaw problems and now possible MD. Any 1 of these diagnoses would upset a parent, my son has all of them.
I am not coping any more, outside it looks like business as usual, but inside I am crumbling. I look at my friends’ children and, selfishly, wonder if I can pass on just one of B’s problems to them. Why did he get all of them? Even the doctors can’t believe how unlucky he has been. When friends worry about their child’s broken wrist, I think that I wish B could do cartwheels and break his wrist like that as well.
Then I feel bad for not having sympathy for them. Then, I overcompensate for my guilt by offering help and being the friend they can always turn to. They take that help because they know that I am a coper whereas they aren’t. They make half-hearted promises of help in return but, they have their own families to look after and B and I would need too much help. My hubby is pretty hands-on with the house and the kids but he has never been to a hospital appointment with B, never.
I feel it is B and I against the world sometimes.
So, there you have it, my child of woe.
This has been quite therapeutic, I feel like I can now go out into the world and carry on ‘coping’ again.
by Band Back Together | Sep 26, 2018
What is Child Sexual Abuse?
Child sexual abuse is one of the most horrible things that can happen to a child.
Child sexual abuse is a form of child abuse that includes sexual activity with a minor. A child cannot consent to any form of sexual activity, period. When a perpetrator engages with a child this way, they are committing a crime that can have lasting effects on the victim for years. Child sexual abuse does not need to include physical contact between a perpetrator and a child.
Child sexual abuse refers to any sexual contact with a child or teen. It includes many different acts. Some of these are touching the vagina, penis, or anus of a child; having a child touch the abuser’s vagina, penis, or anus; putting an object, penis, or finger into the vagina or anus of a child; and showing a child pictures or movies of other people undressed or having sex.
Child sexual abuse, also called child molestation, is a form of child abuse in which an adult or older adolescent uses a child for sexual stimulation. Forms of child sexual abuse include engaging in sexual activities with a child (whether by asking or pressuring, or by other means), indecent exposure (of the genitals, female nipples, etc.), child grooming, or using a child to produce child pornography.
Child sexual abuse can occur in a variety of settings, including home, school, or work (in places where child labor is common). Child marriage is one of the main forms of child sexual abuse; UNICEF has stated that child marriage “represents perhaps the most prevalent form of sexual abuse and exploitation of girls.” The effects of child sexual abuse can include depression, post-traumatic stress disorder, anxiety, complex post-traumatic stress disorder, propensity to further victimization in adulthood, and physical injury to the child, among other problems. Sexual abuse by a family member is a form of incest and can result in more serious and long-term psychological trauma, especially in the case of parental incest.
The global prevalence of child sexual abuse has been estimated at 19.7% for females and 7.9% for males. Most sexual abuse offenders are acquainted with their victims; approximately 30% are relatives of the child, most often brothers, fathers, uncles, or cousins; around 60% are other acquaintances, such as “friends” of the family, babysitters, or neighbors; strangers are the offenders in approximately 10% of child sexual abuse cases. Most child sexual abuse is committed by men; studies on female child molesters show that women commit 14% to 40% of offenses reported against boys and 6% of offenses reported against girls.
The word pedophile is commonly applied indiscriminately to anyone who sexually abuses a child, but child sexual offenders are not pedophiles unless they have a strong sexual interest in prepubescent children.[19][20] Under the law, child sexual abuse is often used as an umbrella term describing criminal and civil offenses in which an adult engages in sexual activity with a minor or exploits a minor for the purpose of sexual gratification. The American Psychological Association states that “children cannot consent to sexual activity with adults”, and condemns any such action by an adult: “An adult who engages in sexual activity with a child is performing a criminal and immoral act which never can be considered normal or socially acceptable behavior.”
There are also other forms of child sexual abuse. Sexual abuse can happen to boys or girls of any race, ethnicity, or economic background. Sexual abuse is not a child’s fault. The only person responsible for this kind of behavior is the abuser.
People who sexually abuse children usually know the victims before making sexual contact. Abusers can be anyone, even someone the victim used to look up to, like, or trust, such as a neighbor, babysitter, friend, or member of the family or household.
Most of the time, because abusers are often older, bigger, or more powerful than the victims, children are afraid of what will happen if they don’t cooperate with the abuse or if they tell someone. Sometimes abusers will threaten or hurt victims in other ways to make them do what they want.
The age of children protected by child sexual abuse laws is different from state to state. In most states, sexual contact between an adult (18 years or older) and someone under 16 years old is child sexual abuse and is against the law, even if the abuser believes the young person agreed to the sexual activity. Children and young teens are protected from any sexual contact by adults and older teens because, when there is such a difference in power, sexual contact is harmful.
Child sexual abuse may be perpetrated by a family member, friend, or stranger. Typical behaviors associated with child sexual abuse include:
- Sexually suggestive language
- Oral sex
- Prolonged kissing
- Vaginal intercourse
- Prolonged groping
- Anal intercourse
- Forcing a minor to watch pornography
- Sexual aggression
- Torture
What Is Incest?
Incest is defined as sexual contact between people so closely related that they may not legally marry, often immediate family or first tier family members such as aunts, uncles, cousins, or grandparents. In certain contexts the term has been expanded to include sexual contact with caregivers upon whom an individual depends for care (such as a step-parent, a babysitter, or a teacher).
Incest generally occurs as child sexual abuse by an older family member to a younger child or teenager.
Please see our incest page for more information regarding incest.
How Common Is Child Sexual Abuse?
Per Darkness to Light, it is highly likely that you know a child who has been or is being abused.
Most people think of adult rape as a crime of great proportion and significance and are unaware that children are victimized at a significantly higher rate than adults.
Nearly 70% of all reported sexual assaults (including assaults on adults) occur to children aged 17 and under.
Youths have higher rates of sexual assault victimization than do adults. In 2000, the rate for youths aged 12 to 17 was 2.3 times higher than for adults
The crimes of child sexual abuse are under-reported.
- Experts estimate that 1 in 10 children are sexually abused before their 18th birthday.
- 30% of children are abused by family members.
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Child sexual abuse is far more prevalent than most people realize. It is likely the most prevalent health problem children face with the most serious array of consequences
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About one in seven girls and one in 25 boys with be sexually abused before they turn 18.
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This year, there will be about 400,000* babies born in the U.S. that will become victims of child sexual abuse UNLESS WE DO SOMETHING TO STOP IT.
- As many as 60% are abused by people the family trusts.
- About 35% of victims are 11 years old or younger.
- Nearly 40% are abused by older or larger children.
Stranger danger is a MYTH.
Research shows that the greatest risk to children doesn’t come from strangers, but from friends and family. People who abuse children look and act just like everyone else. In fact, they often go out of their way to appear trustworthy, seeking out settings where they can gain easy access to children, such as sports leagues, faith centers, clubs, and schools.
93% of juvenile sexual assault victims know their attacker, and often it is someone in their family or circle of trust.
Who Sexually Abuses Children?
The word pedophile is commonly applied indiscriminately to anyone who sexually abuses a child, but child sexual offenders are not pedophiles unless they have a strong sexual interest in prepubescent children. Under the law, child sexual abuse is often used as an umbrella term describing criminal and civil offenses in which an adult engages in sexual activity with a minor or exploits a minor for the purpose of sexual gratification. The American Psychological Association states that “children cannot consent to sexual activity with adults,” and condemns any such action by an adult: “An adult who engages in sexual activity with a child is performing a criminal and immoral act which never can be considered normal or socially acceptable behavior.
Pedophilia is called pedophilic disorder in the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), and is defined as a paraphilia ((previously called sexual perversion and sexual deviation, a person with paraphilia experiences intense sexual arousal to atypical objects, situations, fantasies, behaviors, or individuals). Pedophilia includes intense and recurrent sexual urges towards and fantasies about prepubescent children that have either been acted upon or which cause the person with the attraction distress or interpersonal difficulty.
The International Classification of Diseases (ICD-11) defines pedophilia as a “sustained, focused, and intense pattern of sexual arousal—as manifested by persistent sexual thoughts, fantasies, urges, or behaviors—involving per-pubertal children.”
In popular usage, the word pedophilia is often applied to any sexual interest in children or the act of child sexual abuse. This use conflates the sexual attraction to prepubescent children with the act of child sexual abuse, and fails to distinguish between attraction to prepubescent and pubescent or post-pubescent minors. Researchers recommend that these imprecise uses be avoided, because although people who commit child sexual abuse are sometimes pedophiles, child sexual abuse offenders are not pedophiles unless they have a primary or exclusive sexual interest in prepubescent children, and some pedophiles do not molest children.
Pedophilia was first formally recognized and named in the late 19th century. A significant amount of research in the area has taken place since the 1980s.
Although mostly documented in men, there are also women who exhibit the disorder, and researchers assume available estimates under-represent the true number of female pedophiles. No cure for pedophilia has been developed, but there are therapies that can reduce the incidence of a person committing child sexual abuse. The exact causes of pedophilia have not been conclusively established. Some studies of pedophilia in child sex offenders have correlated it with various neurological abnormalities and psychological pathologies.
Those who molest children look and act just like everyone else.
There are people who have or will sexually abuse children in churches, schools, and sports leagues.
Abusers can be neighbors, friends, and family members. People who sexually abuse children can be found in families, schools, churches, recreation centers, youth sports leagues, and any other place children gather. Significantly, abusers can be and often are other children.
- About 90% of children who are victims of abuse know their abuser.
- Only 10% of sexually abused children are abused by a stranger.
- Approximately 30% of children who are sexually abused are abused by family members.
- The younger the victim, the more likely it is that the abuser is a family member. Of those molesting a child under six, 50% were family members. Family members also accounted for 23% of those abusing children ages 12 to 17.
- About 60% of children who are sexually abused are abused by the people the family trusts.
- Homosexual individuals are no more likely to sexually abuse than heterosexual individuals.
Most adolescent sex offenders are not sexual predators and will not go on to become adult offenders.
Most adolescent offenders do not meet the criteria for pedophilia and do not continue to exhibit sexually predatory behaviors.
Adolescent sex offenders are more responsive to treatment than adults. They do not appear to continue to re-offend into adulthood, especially when provided with appropriate treatment.
What Are Some Signs An Adult Is Sexually Abusing A Child?
Keeping children safe can be challenging since many perpetrators who sexually abuse children are in positions of trust. Keeping a child away from the perpetrator may mean major changes in your own life, even if you are outside of the child’s family. It isn’t always easy to identify child sexual abuse—and it can be even harder to step in if you suspect something isn’t right. If a child tells you that someone makes them uncomfortable, even if they can’t tell you anything specific, listen. Talk to someone who can help you figure out if this is something that must be reported, such as a staff member from your local sexual assault service provider. In the meantime, if you are the parent or have influence over the child’s schedule, avoid putting the child in a potentially unsafe situation.
Be wary and cautious of an adult who spend times with children and exhibits the following behaviors:
- Does not respect boundaries or listen when someone tells them “no”
- Engages in touching that a child or child’s parents/guardians have indicated is unwanted
- Tries to be a child’s friend rather than filling an adult role in the child’s life
- Doesn’t appear to have age-appropriate relationships
- Talks with children about their personal problems or relationships
- Spends time alone with children outside of their role in the child’s life or makes up excuses to be alone with the child
- Expresses unusual interest in child’s sexual development, such as commenting on sexual characteristics, or sexualizing normal behaviors
- Gives a child gifts without occasion or reason
- Spends a lot of time with your child or another child you know
What Are Some Signs and Symptoms of Child Sexual Abuse?
Child sexual abuse victims may exhibit a wide range of immediate reactions, both in magnitude and form. Resilient children may not suffer serious consequences, whereas other children with the same experience may be highly traumatized. Some victims do not display emotional problems of any other immediate symptom in response to the abuse.
It’s not always easy to spot sexual abuse as perpetrators often take steps to hide their actions. Some signs are easier to spot than others. For instance, some warning signs might be noticed by a caretaker or parent, and are often red flags that the child needs medical attention. Listen to your instincts. If you notice something that isn’t right or someone is making you uncomfortable—even if you can’t put your finger on why—it’s important to talk to the child.
Signs that a child is being sexually abused are often present, but they are often indistinguishable from other signs of childhood stress, distress or trauma. Direct physical signs of sexual abuse are not common, but may include:
- Bruising from mouth, rectum, or vagina
- Bleeding from mouth, rectum, or vagina
- Redness from mouth, rectum, vagina
- Bumps around the vagina, mouth, or anus
- Scabs around the mouth
- Blood on the sheets, underwear, and clothing
Urinary tract infections, sexually transmitted diseases, and abnormal vaginal or penile discharge are also warning signs.
Child sexual abuse victims often exhibit indirect physical signs, such as anxiety, chronic stomach pain, and headaches.
Behavioral signals are common among sexually abused children. Some of these are
- “Too perfect” behavior
- Withdrawal
- Fear
- Depression
- Unexplained anger and rebellion.
- Sexual behavior that is inappropriate for the child’s age
- Bed-wetting or soiling the bed, if the child has already outgrown these behaviors
- Not wanting to be left alone with certain people or being afraid to be away from primary caregivers, especially if this is a new behavior
- Tries to avoid removing clothing to change or bathe
- Use of alcohol or drugs at an early age can be a sign of trauma such as child sexual abuse.
Emotional signs:
- Excessive talk about or knowledge of sexual topics
- Resuming behaviors that they had grown out of, such as thumbsucking
- Nightmares or fear of being alone at night
- Excessive worry or fearfulness
Age-By-Age Symptoms of Child Sexual Abuse:
Children may respond to sexual abuse in manydifferent ways, which can vary depending on their age,gender, culture, personality, and family structure. In many cases, your child’s behavior will show you how he or she is feeling because children often express their feelings through their actions rather than through words. This can be true for children and adolescents of all ages. In addition, the way in which these feelings are expressed will probably be different depending on your child’s age.
The following section identifies some common behaviors that you might see in preschoolers, school age youth, and teenagers who have experienced sexual abuse.
Signs of Trauma in Preschoolers (ages 2-‐5)
- They may become anxious and clingy, not wanting to separate from their parents at day care or at the babysitter’s house.
- They may seem to take a backward step in development: sucking their thumbs, wetting their beds, refusing t o go to sleep, or waking up at night even though they passed these stages long ago.
- They may become aggressive in their play with other children, with their parents, or with their own toys.
- They may also act out some aspect of their abuse in their play An example would be using toys to act out hiding from a “monster.”
- They may play the same game over and over again , like piling blocks and knocking them down, dropping toys behind furniture and retrieving them, or crashing the same two cars over and over again.
- They may express “magical” ideas about what happened to them, which will affect their behavior. For example, “bad things happen when I am too happy.”
- Although they say they are having fun in an activity they may look sad, angry, or intense in away that, to an adult does not look like they are having fun.
- They may engage in sexual behavior that is inappropriate for their age, such as trying to touch another child in his or her genital area. However, children who have not been sexually abused may behave in this way for other reasons as well.
Signs of Trauma in School Age Children (ages 5 to 13)
- They may experience “magical thinking. For example, the child may believe that someone died because he or she had bad thoughts about that person.
- Sexualized play and behavior is also seen in this age group.
- Thinking that they may have caused the abuse gives children a sense of power and control, while helplessness painfully reminds them that they are both young and dependent upon others.
- They may blame themselves completely for what happened to them during the abuse as a way to make up for feeling so helpless during the abuse.
- They may have frequent nightmares and difficulty falling and maintaining sleep
- Their lack of control over the abuse may give them the feeling that their future is uncertain, which can lead some kids to act in dangerous and reckless ways.
- There may be a major change in their scholastic performance. It’s common for children to have problems concentrating during school following this major trauma.
- On the other hand, they may become intensely focused upon school and schoolwork as a way of distracting themselves from their upsetting thoughts and feelings.
- They may test you on set rules about bedtime, chores, or homework; as well as becoming oppositional, defiant, testy, and/or withdrawn.
- They may have problems in their friendships.
Signs of Trauma in Teenagers (age 13 to 18)
- Teens often feel that no one could possibly understand what they’re going through. This feeling of isolation can easily change the teen’s relationships with friends and parents.
- Teens may believe that the abuse was their fault
- They may choose to involve themselves in risky behaviors, such as experimentation with drugs, sexual activity, or outright refusing to go to school. This is an attempt to handle the anxiety and avoid those feelings of helplessness.
- Teens may feel that their future is limited; that they are damaged forever by the abuse, so planning for the future is completely pointless.
- Teens may create a negative opinion of themselves as they weren’t able to avoid or control the abuse that happened to them.
- Teens may also have revenge fantasies about the people or individual responsible for their abuse, which can lead to feelings of guilt for having such feelings.
- A teen trying to avoid the triggers and reminders of their trauma may find that they prefer being alone rather than risking seeing people or places that trigger them.
- Self-injury and parasuicidal acts are quite common in teens. With the right treatments and support, these problems can be resolved and overcome.
What Are The Risk Factors for Childhood Sexual Abuse?
While no child is immune, there are child and family characteristics that significantly heighten or lower risk of sexual abuse.
The following risk factors gathered from Darkness To Light are based on reported and identified cases of abuse:
Family structure is the most important risk factor in child sexual abuse.
Children who live with two married biological parents are at a low risk for abuse. The risk increases when children live with step-parents or a single parent. Children living without either parent (foster children) are 10 times more likely to be sexually abused than children that live with both biological parents. Children who live with a single parent that has a live-in partner are at the highest risk; they are 20 times more likely to be victims of child sexual abuse than children living with both biological parents.
Gender is also a major factor in sexual abuse. Females are five times more likely to be abused than boys.
The age of the male being abused also plays a part. 8% of victims aged 12-17 are male. 26% of victims under the age of 12 are male.
Age is a significant factor in sexual abuse. While there is risk for children of all ages, children are most vulnerable to abuse between the ages of 7 and 13.
The median age for reported abuse is 9 years old.
However, of children who are sexually abused, more than 20% are abused before the age of 8.
Race and ethnicity are an important factor in identified sexual abuse:
- African American children have almost twice the risk of sexual abuse than white children.
- Children of Hispanic ethnicity have a slightly greater risk than non-Hispanic white children.
The risk for sexual abuse is tripled for children whose parent(s) are not in the labor force.
Children in low socioeconomic status households are three times as likely to be identified as a victim of child abuse.
Children who live in rural areas are almost two times more likely to be identified as victims of child sexual abuse.
Children who witness or are the victim of other crimes are significantly more likely to be sexually abused.
Family and acquaintance child sexual abuse perpetrators have reported that they look for specific characteristics in the children they choose to abuse.
- Perpetrators report that they look for passive, quiet, troubled, lonely children from single parent or broken homes.
- Perpetrators frequently seek out children who are particularly trusting and work proactively to establish a trusting relationship before abusing them.
- Not infrequently, this extends to establishing a trusting relationship with the victim’s family as well.
When Does Child Sexual Abuse Occur?
You may be surprised to know that one in seven children experience the sexual abuse from other adolescents occur between the hours of 3 and 7 PM, with 3-4PM the peak of occurrences.
Most adolescent offenders do not meet the criteria for pedophilia and do not continue to exhibit sexually predatory behaviors, as adolescent sex offenders are more responsive to treatment than adults. They do not appear to continue to re-offend into adulthood, especially when provided with appropriate treatment.
As many as 40% of children who are sexually abused are abused by older, or more powerful children.
The younger the child victim, the more likely it is that the perpetrator is a juvenile. Juveniles are the offenders in 43% of assaults on children under age six. Of these offenders, 14% are under age 12.
Juveniles who commit sex offenses against other children are more likely than adult sex offenders to offend in groups, to offend at schools, and to have more male victims and younger victims.
The number of youth coming to the attention of police for sex offenses increases sharply at age 12 and plateaus after age 14. Early adolescence is the peak age for youth offenses against younger children.A small number of juvenile offenders – one out of 8 – are younger than age 12. Females constitute 7% of juveniles who commit sex offenses.
Child sexual abuse often takes place under specific, often surprising circumstances. It’s helpful to know these circumstances because it allows for the development of strategies to avoid child sexual abuse.
81% of child sexual abuse incidents for all ages occur in one-perpetrator/one-child circumstances.Six to 11-year-old children are most likely (23%) to be abused in multiple-victim circumstances.
Most sexual abuse of children occurs in a residence, typically that of the victim or perpetrator – 84% for children under age 12 to 17, there is also a peak in assaults in the late hours of the evening.
Not everyone who sexually abuses children is a pedophile.
Child sexual abuse is perpetrated by a wide range of individuals with diverse motivations. It is impossible to identify specific characteristics that are common to all child molesters.
Situational offenders tend to offend at times of stress and begin offending later than pedophilic offenders. They also have fewer victims (often family), and have a general preference for adult partners.
Pedophilic offenders often start offending at an early age, and often have a large number of victims (frequently not family members).
70% of child sexual offenders have between one and 9 victims, while 20% have 10 to 40 victims.
What are The Long-Term Effects of Child Sexual Abuse?
Child Sexual Abuse is a root cause of many health and social problems we face in our communities.
Consequences to children and to our society begin immediately after the abuse begins
- 70-80% of sexual abuse survivors report excessive drug and alcohol use.
- One study showed that among male survivors, 50% have suicidal thoughts and more than 20% attempt suicide.
- Young girls who are sexually abused are more likely to develop eating disorders as adolescents.
- More than 60% of teen first pregnancies are preceded by experiences of molestation, rape or attempted rape.
- Both males and females who have been sexually abused are more likely to engage in prostitution.
- The CDC estimates that child abuse costs us billions annually.
- Sexually abused children who keep the abuse a secret or who “tell” and are not believed are at greater risk for psychological, emotional, social, and physical problems, often lasting into adulthood.
When a child is abused outside the family, the family can support the child, but when the abuser is in the family, the family cannot provide the same kind of support or security.
If, for whatever reason, the parent who is not abusing the child learns of the abuse and does not stop it or blames the child for the abuse, that can be very damaging for the child.
As the very people who are supposed to protect them are the ones causing the abuse, incest can damage a child’s ability to trust. Incest survivors may suffer difficulties with developing trusting relationships.
Child sexual abuse is a public health problem of enormous magnitude.
The Center for Disease Control (CDC) recently estimated the lifetime burden of a new substantiated case of nonfatal child maltreatment to be $210,012 per victim. This includes immediate costs, as well as loss of productivity and increased healthcare costs in adulthood. While this estimate is for all forms of child maltreatment, there is evidence that the consequences of child sexual abuse are equivalent or greater than the consequences of other forms of child maltreatment.
This estimate is comparable to that of many other high profile public health problems, indicating the impact and seriousness of the issue of child maltreatment.
For example, the lifetime costs of stroke per person were estimated at $159,846 (2010 dollars). The total lifetime costs associated with type 2 diabetes were estimated between $181,000 and $253,000 (2010 dollars) per case.
What are Long-Term Consequences of Childhood Sexual Abuse In Adolescents?
People choose to deal with the feelings associated with being abused in many different ways. However, sometimes people choose behaviors and coping mechanisms that are problematic. Child sexual abuse (CSA) has lasting consequences for victims. The real tragedy is that it robs children of their potential, setting into motion a chain of events and decisions that affect them throughout their lives.
These long-term consequences can include:
Emotional and mental health problems are often the first consequence and sign of child sexual abuse.
Children who are sexually abused are at significantly greater risk for later post traumatic stress and other anxiety symptoms, depression and suicide attempts. These psychological problems can lead to significant disruptions in normal development and often have a lasting impact, leading to dysfunction and dis tress well into adulthood.
Child sexual abuse has been linked to higher levels of risky behaviors.
Substance abuse problems beginning in childhood or adolescence are some of the most common consequences of child sexual abuse.
A number of studies have found that adolescents with a history of child sexual abuse demonstrate a three to four fold increase in rates of substance abuse/dependence. Drug abuse is more common than alcohol abuse for adolescent child sexual abuse victims.
Age of onset for non-experimental drug use was 14.4 years old for victims, compared to 15.1 years old for non-victimized youth.
Adolescents are 2 to 3 times more likely to have an alcohol use/dependence problem than non-sexually abused people.
Delinquency and crime, often stemming from substance abuse, are more prevalent in adolescents with a history of child sexual abuse. Adolescents who were sexually abused have a three to five fold risk of delinquency.
Behavioral problems, including physical aggression, non-compliance, and oppositionality occur frequently among sexually abused children and adolescents. These emotional and behavioral difficulties can lead to delinquency, poor school performance, and dropping out of school.
Adolescents that reported victimization (i.e., sexual abuse or physical abuse) were more likely to be arrested than their non-abused peers.
Sexually abused children were nearly twice as likely to run away from home.
Academic problems in childhood are a common symptom of sexual abuse.
Sexually abused children tended to perform lower on psychometric tests measuring cognitive ability, academic achievement, and memory assessments when compared to same-age non-sexually abused peers.
Studies indicate that sexual abuse exposure among children and adolescents is associated with high school absentee rates, more grade retention, increased need for special education services, and difficulty with school adaptation.
- 39% of 7 to 12-year old girls with a history of child sexual abuse experienced academic challenge
- 7 to 12 year-old girls with a history of childhood sexual abuse were 50% more likely to display a cognitive ability under the 25% percentile.
- 26% of 7-12 year old girls who have a history of sexual abuse reported that their grades dropped after the abuse, and 48% of them had lower-than-average grades.
Having a history of child sexual abuse greatly increases the chances the child will drop out of school.
The risk of teen pregnancy is much higher for girls with a history of child sexual abuse. This increased risk for pregnancy at a young age is likely due to over-sexualized behavior, another common consequence of child sexual abuse.
Girls who are sexually abused are 2.2 times as likely as non- abused peers to become teen mothers. 45% of pregnant teens report a history of child sexual abuse.
Males who are sexually abused are more likely than their non-abused peers to impregnate a teen. In fact, several studies indicate that the sexual abuse of boys is a stronger risk factor for teen pregnancy than the sexual abuse of girls.
Most sexual abuse incidents reported by pregnant teens occurred well before the incident that resulted in pregnancy. Only 11 to 13% of pregnant girls with a history of child sexual abuse reported that they had become pregnant as a direct result of this abuse.
Sexual behavior problems and over-sexualized behavior are a very common consequence of child sexual abuse.
Age-inappropriate behavior can be a very important and telling sign that abuse is occurring.
Children who have been sexually abused have more than three times as many sexual behavior problems as children who have not been sexually abused.Victims of child sexual abuse are more likely to be sexually promiscuous
What Are The Long-Term Consequences of Child Sexual Abuse in Adults?
Although survivors of child sexual abuse are negatively impacted as a whole, it is important to realize that many individual survivors do not suffer these consequences. Child sexual abuse does not necessarily sentence a victim to an impaired life. Child sexual abuse has lasting consequences for societies. When the prevalence of child sexual abuse is combined with its economic burden, the results are staggering.
Please also see adult survivors of childhood sexual abuse for more information.
Substance abuse problems are a common consequence for adult survivors of child sexual abuse.
Female adult survivors of child sexual abuse are nearly three times more likely to report substance use problems (40.5% versus 14% in general population)
Male adult child sexual abuse victims are 2.6 times more likely to report substance use problems (65% versus 25%) than the general population
Obesity and eating disorders are more common in women who have a history of child sexual abuse.
20 -24 year-old women who were sexually abused as children were four times more likely than their non-abused peers to be diagnosed with an eating disorder.
Middle-aged women who were sexually abused as children were twice as likely to be obese when compared with their non-abused peers.
Mental health problems are an incredibly common long-term consequence of child sexual abuse.
Adult women who were sexually abused as a child are more than twice as likely to suffer from depression as women who were not sexually abused.
Adults with a history of child sexual abuse are more than twice as likely to report a suicide attempt.
Females who are sexually abused are three times more likely to develop psychiatric disorders than females who are not sexually abused.
Among male survivors, more than 70% seek psychological treatment for issues such as substance abuse, suicidal thoughts and attempted suicide.
Child sexual abuse is also associated with physical health problems in adulthood.
It is theorized that this is a result of the substance abuse, mental health issues and other consequences that survivors of child sexual abuse face. Generally, adult victims of child sexual abuse have higher rates of health care utilization and report significantly more health complaints compared to adults without a child sexual abuse history.
This is true for both self-reported doctor’s visits and objective examination of medical records.
These health problems represent a burden both to the survivor and the healthcare system. Adult survivors of child sexual abuse are at greater risk of a wide range of conditions that are non-life threatening and are potentially psychosomatic in nature. These can include:
- Fibromyalgia,
- (PMDD) Severe Premenstrual Syndrome
- Chronic headaches
- Irritable Bowel Syndrome
In addition, adult survivors frequently experience reproductive and sexual health complaints, including excessive bleeding, amenorrhea, pain during intercourse, and/or menstrual irregularity.
Not only do survivors of child sexual abuse have more minor health conditions, they are at greater risk for more serious conditions as well. Adults with a history of child sexual abuse are 30% more likely than their non-abused peers to have a serious medical condition such as diabetes, cancer, heart problems, stroke, and/or hypertension.
Male sexual abuse survivors have twice the HIV-infection rate of non-abused males. In a study of HIV- infected 12 to 20 year olds, 41% reported a sexual abuse history.
Adult survivors of child sexual abuse are more likely to become involved in crime, both as a perpetrator and as a victim.
This is likely a product of a higher risk for substance abuse problems and associated lifestyle factors.
Adult survivors are more than twice as likely to be arrested for a property offense than their non-abused-peers (9.3% versus 4.4%).
As adults, child sexual abuse victims were almost twice as likely to be arrested for a violent offense as the general population (20.4% versus 10.7%).
Males who have been sexually abused are more likely to violently victimize others.
How Can I Help My Sexually Abused Child?
It is important to recognize that not all children are affected the same way by sexual trauma.
Children are resilient by nature and have the potential to heal and recover if offered help and support in a timely fashion. How you respond to your child can have a profound impact on how able they are to recover from abuse. By taking some key steps early on you can help strengthen your child’s trust, sense of safety and potential for healing. The lives of children who have been sexually abused will be changed, but as with other types of traumatic events, there are many wonderful examples of adults who have healed from childhood abuse and are living healthy and productive lives.
While children recognize unpleasant or frightening feelings they may not have a full concept of child sexual abuse until adulthood. Some children may be ready to talk about the abuse and deal with it soon after it happens. Others may need to move more slowly, gradually testing the safety of their relationships and addressing the issues as they unfold over time. Children do best with a combination of love from caregivers and support from a counselor with a specialization working with children who have experienced sexual trauma.
Are there any personal strengths that help protect your child from the negative effects of a trauma such as sexual abuse? Are there any resources in your child’s environment, such as a mentor or a community center,which adds to this protection?
Research on resiliency, or the ability to recover from change and challenges, looks at how individuals exposed to trauma, violence, and other events that place their physical and emotional well-‐beingat risk are able to successfully cope with and overcome these challenges.
According to the literature, the healing process begins with creating a support system and opportunities to meet your child’s basic developmental needs.
Your child is able to give meaning to events and experiences within their lives. Creating meaning from an experience of abuse can help your child identify lessons learned, personal strengths developed, or relationships that were strengthened by the abuse. These basic needs are the foundation under which resiliency is formed. Children whose basic needs are met are more likely to develop the confidence and skills needed to cope with child sexual abuse. Additionallly, your child’s ability to develop healthy coping mechanisms frequently begins with an adult’s belief in the child and his or her resiliency.
As a parent, you have the power to help.
Expressing your love, comforting them, being sensitive to their feelings and vulnerabilities are important ways for you to support your child. Tell your child often how much you love them. In addition, here are some specific things you can do to help your child with the recovery process.
Tell your child that they are not to blame for the abuse.
Even though children are never, ever to blame, it’s not always easy to convince them of this, and they’ll probably need to hear it from you many times. This is because children often feel that they’re to blame for what has happened. They tend to feel responsible not only for the actual abuse, but for causing pain to people they love once the abuse has been uncovered. This is especially true when family members have separated as a result of the abuse. Shouldering guilt for the abuse and its consequences is an intolerable and unfair burden for children to bear.
Without intervention, children are more likely to suffer more serious, long-term emotional effects.
Help your child find relief from guilt.
When adults take responsibility for what has happened, this helps the children to find relief from guilt. As a parent you can take an important step to help your child heal by reassuring them that they are not to blame for the abuse and it was the older person’s responsibility to stop it. You might emphasize that any changes that have resulted from the abuse are because of the abuser’s behaviors – and not because of what the child did or did not do. Because of the child-centered way that young children make sense of the world around them, they naturally place themselves as the “cause” of much of what they experience.
Because of this developmental tendency to take responsibility for things over which they have no control, (bad weather, parents fighting, financial woes), this message may have to be repeated over time and in different ways.
Make sure your child knows that you believe them.
The act of abuse was a profound betrayal of your child’s trust. More than ever, your child needs to know that you believe in them, and that they can trust you and count on you. By acknowledging the harm that was done to your child and by getting them help and taking steps to protect them, you will be helping your child re-establish a sense of trust and safety.
Help your child see that you’re someone they can talk to.
If your child has been abused, provide opportunities for conversation, but let your child be the one to bring up the subject. If they do, listen to them carefully, let them express their feelings, answer their questions as best you can and comfort them. Sometimes parents think that talking about the abuse will cause children more pain or “just make things worse”. But children need to know that there is a loving parent or adult with whom they can be honest, and who will acknowledge their pain and accept their feelings.
Let your child know you will do whatever you can to keep them safe
This is very tough if you’re not sure how fully you’ll be able to safeguard them. Without making false promises, make sure your child knows that you are committed and determined to take whatever steps you can to protect them. When a child sees caring adults acknowledging the abuse and taking steps to intervene, the child learns that they are worth protecting.
Support your child by getting them treatment
Observe your child to see if they are showing signs of emotional distress. If their feelings or behaviors are concerning to you or others, consider bringing them to a specialist who can offer the child a safe place to express themselves, and offer the you some guidance and support to help your child recover.
Why isn’t Child Sexual Abuse Wildly Reported?
Identified incidents of child sexual abuse are declining, although there is no clear indication of a cause as to why this number has dropped. The number of identified incidents of child sexual abuse decreased at least 47% from 1993 to 2005.
Even with declining rates of reported sexual abuse, the public is not fully aware of the magnitude of the problem, as only about 38% of child victims disclose the fact they have been sexually abused.
Some never disclose. But why?
There are many reasons that a child may not report sexual abuse. Some of these reasons include:
- The victim doesn’t know that sexual abuse isn’t normal.
- The victim doesn’t know that incest is a form of abuse.
- The victim may not realize that there is help available.
- The victim may be afraid of the consequences of reporting the abuse.
- The victim may think that no one will believe them if they report the abuse.
- The victim may be afraid of how others will react.
- The victim may have been threatened by the abuser.
- Some children might be afraid that other people will be mad at them
- They may fear that they’ll be taken away from their family
- The often feel shame and embarrassment regarding the abuse.
- Younger kids, whose language skills aren’t fully developed, may have a hard time talking about the abuse.
How Do I Report Child Sexual Abuse?
Child abuse is not just a family problem. It’s a social health issue. Child abuse is everyone’s business. We urge everyone to be a child’s advocate and report child abuse and neglect. If you see or hear something suspicious, say something. Speak up. Report it! You may save a child from further harm, or you may even save a child’s life.
Remember that disclosure can be a scary and difficult process for children, and many kids take weeks, months, or years to reveal what happened to them.
If a child discloses to you, stay calm, comforting, and reassuring.
You may ask them directly if anyone has touched their bodies in a way that made them scared or uncomfortable, or if anyone has forced them to do something that they did not want to do. Your child might be nervous about your response to their disclosure, and your reaction will play an important role in how they continue to cope with the abuse following their confession to you.
It is important that your child sees that you love and support them, regardless of what they say to you.
Okay, now what do I do?
The answer is simple. Anyone who witnesses abusive behavior towards a child or gets a direct disclosure can and should report it! Keep in mind, child abuse takes many forms including physical, emotional, verbal, sexual, neglect, exploitation, Shaken Baby Syndrome, bullying, and more.
If a child is in danger, call the police immediately. Get the report on paper.
RAINN has a database of child abuse and incest state-by-state laws and reporting databases.
You may also try Darkness to Light’s website.
If you suspect a child is being abused or neglected, or if you are a child who is being maltreated, contact your local child protective services office or law enforcement agency so professionals can assess the situation. Many States have a toll-free number to call to report suspected child abuse or neglect. To find out where to call, consult the Information Gateway publication, State Child Abuse and Neglect Reporting Numbers.
Anyone can report suspected child abuse or neglect. Reporting abuse or neglect can protect a child and get help for a family it may even save a child’s life. In some States, any person who suspects child abuse or neglect is required to report. To see how your State addresses this issue, read the Information Gateway publication, Mandatory Reporters of Child Abuse and Neglect.
Child Welfare Information Gateway is not a hotline for reporting suspected child abuse or neglect, and it is not equipped to accept reports of this nature. Information Gateway is not equipped to offer crisis counseling. As a service of the Children’s Bureau in the U.S. Department of Health and Human Services, Information Gateway does not have the authority to intervene or advise in personal situations.
Childhelp® is a national organization that provides crisis assistance and other counseling and referral services. The Childhelp National Child Abuse Hotline is staffed 24 hours a day, 7 days a week, with professional crisis counselors who have access to a database of 55,000 emergency, social service, and support resources. All calls are anonymous. Contact them at 1.800.4.A.CHILD (1.800.422.4453).
Child Sexual Abuse Hotlines:
The Childhelp National Child Abuse Hotline is staffed 24 hours a day, 7 days a week, with professional crisis counselors who have access to a database of 55,000 emergency, social service, and support resources. All calls are anonymous. Contact them at 1.800.4.A.CHILD (1.800.422.4453).
CACs coordinate all the professionals (legal and social services) involved in a case. If you’re unsure about whether to make an official report or just need support, contact a child advocacy center. They will help you evaluate your suspicions. To find one near you, contact National Children’s Alliance at www.nca-online.org or 1-800-239-9950.
Helplines have staff specifically trained operators to deal with questions about suspected child sexual abuse. Call Darkness to Light’s Helpline, 1-866-FOR-LIGHT to be routed to resources in your own community, or call the ChildHelp USA National Child Abuse Hotline, 1-800-4-A-CHILD
Child Sexual Abuse Resources:
RAINN has a database of child abuse and incest state-by-state laws and reporting databases.
1in6 – An organization that helps male child sexual abuse survivors.
Survivors of Incest (and sexual assault) Anonymous – Self-help group designed around the 12 steps of Alcoholics Anonymous.
Effects of Survivors of Incest long essay detailing the long-term effects and coping mechanisms adapted by victims of incest.
The book Secret Survivors: Uncovering Incest and its Aftereffects in Women contains extensive information pertaining to the effects of incest on an individual and a family unit.
The Courage To Heal is about surviving and healing after child sexual abuse.
Fred The Fox Shouts NO! – by Tatiana Kisil Matthews – Fred the Fox helps parents and caregivers introduce the concepts of “private parts” and safety with people we know. Through open communication with the people that love him most, Fred learns he has a strong voice inside and how to use it.
Page last audited 9/2018
by Band Back Together | Sep 5, 2018
On Losing a Child:
There is no greater loss than the loss of a child. It’s out of order; parents should die first. Yet, these tragic deaths happen more often than we’d like to believe and leave an indelible mark on the worlds of their loved ones.
Sudden death is a contradiction to everything we know to be true; losing a child to sudden death is a disruption in the natural law and order of life. It is a heartbreak like no other. Parental grief is different from other losses—it is intensified, exaggerated, and lengthened. Children are not supposed to die; parents expect to see their children grow and mature, and one day to bury their own parents. Ultimately, parents expect to die and leave their children behind, as this is the natural course of life, our life cycle continuing as it should.
The loss of a child is the loss of innocence, the death of the most vulnerable and dependent. The death of a child signifies the loss of the future, of hopes and dreams, of new strength, and of perfection. Grieving parents say that their grief is a lifelong process, a long and painful process by which they try to take and keep some meaning from the loss and life without the child.
After a child’s death, parents must embark on a long, excruciating journey that’s scary and lonely and, unfortunately, a journey that never ends. The hope and desire that healing will come eventually is an intense and persistent hope for grieving parents. The child who died is considered a gift to the parents and family, and they are forced to give up that gift, “I didn’t LOSE my baby; she was TAKEN from me.” Yet, as parents, we also strive to let our child’s life, no matter how short, be seen as a gift to others. Parents of a child who died of SIDS seek to find ways to continue to love, honor, and value the lives of their children, and to make the child’s presence known and felt in the lives of family and friends, thereby not forgetting that the child existed.
Bereaved parents frequently live their lives more fully and generously due to this painful experience.
What Is Sudden Infant Death Syndrome (SIDS)?
Sudden infant death syndrome (SIDS), also called “crib death” and “cot death,” is the unexplained death, usually during sleep, of a seemingly healthy baby less than a year old. SIDS is sometimes known as crib death because the infants often die in their cribs. Although the cause is unknown, it appears that SIDS might be associated with defects in the portion of an infant’s brain that controls breathing and arousal from sleep.
According to the CDC, in 2016, there were about 3,600 sudden unexpected infant deaths (SUID) in the United States. These deaths occur among infants less than 1-year-old and have no immediately obvious cause.
The three commonly reported types of SUID include:
- SIDS.
- Unknown cause.
- Accidental suffocation and strangulation in bed.
In 2016, there were about 1,500 deaths due to SIDS, 1,200 deaths due to unknown causes, and about 900 deaths due to accidental suffocation and strangulation in bed.
SIDS is a diagnosis of exclusions, meaning that after a child dies suddenly, and an autopsy performed, the medical examiner is unable to pinpoint the direct cause for the child’s sudden death.
Researchers have discovered some factors that might put babies at extra risk. They’ve also identified measures to take to help protect your child from SIDS. Perhaps the most important is placing your baby on his or her back to sleep.
The impact of Sudden Infant Death Syndrome (SIDS) presents unique grieving factors and raises painful psychological issues for the parents and family as well as those who love, care, and counsel them. SIDS parents must deal with a baby’s death that is unexpected and unexplained, a death that cannot be predicted or prevented, an infant death so sudden that it leaves no time for preparation or goodbyes, and no period of anticipatory grief. In many cases, parents of SIDS babies are very young and are confronted with grief for the first time.
SIDS often occurs at home, forcing parents and sometimes siblings or other children to witness a terrible tragedy and possibly scenes of intense confusion. In some cases, the parents themselves are the ones who find the child dead and they must always live with that memory. In other cases, the parents may feel overwhelming guilt or anger if the death occurred while the child was in child care. They may feel that the baby might not have died if they had been caring for the infant.
SIDS parents, like other child loss parents, are very often plagued by “if only’s” that they cannot resolve. They replay such thoughts as: “If only I hadn’t put the child down for a nap when I did.” “If only I had checked on the baby sooner.” “If only I had not returned to work so soon.” “If only I had taken the baby to the doctor with that slight cold.”
Professionals need to provide parents with reliable information, as well as emotional support in these situations.
SIDS parents, relatives, child care providers, health care professionals, and other adults feel helpless in trying to explain the inexplicable to other young children who may have been present at the time of the baby’s death. It is especially difficult for children to understand why a baby died when the infant didn’t appear to be sick. Also, in some cases, parents are required to explain SIDS to adults who are misinformed or know nothing about the syndrome.
In some SIDS deaths, the autopsy findings may help answer questions. Parents are often anxious to consult with the pathologist after the autopsy. Discussing the autopsy results often helps most parents accept the reality of their infant’s death. The pathologist reviews the autopsy results, explaining in terms the parents can understand how these findings point (or do not point) to a determination of the cause of death. The pathologist should also take the time to answer any questions that arise.
Friends and family members should try to do all they can to show their concern and help the parents in keeping memories of their baby alive. For most SIDS parents, it is also reassuring for others to try to mention special things they noticed about the baby and remember the child’s birthday or the anniversary of the death. By extending these personal and sensitive gestures, loving and concerned relatives, friends, and caregivers can become a source of reassurance and comfort for the grieving parents.
Some SIDS babies are so young when they die that family members and friends never had a chance to welcome them. They may have missed sharing the parents’ excitement over the birth and affirming the child’s existence. Many individuals do not understand the depth of parental attachment to a very young child. Bereaved SIDS parents should not be made to feel that others don’t want to hear them, that others won’t permit them to openly grieve.
The parents of SIDS babies want their child’s short life to matter not only to them, but to their families and friends, to the others in their circle of loved ones, and to the world. “All too frequently, a SIDS loss is not socially validated in the same way other deaths are. Others often fail to recognize that, despite the brevity of the child’s life, the family’s attachment to that child is strong and deep and has been present in various ways since the knowledge of conception.
Potential Causes and Risk Factors for SIDS (SUID):
It’s likely that a combination of physical and sleep environmental factors can make an infant more vulnerable to SIDS. Researchers are still looking to pinpoint an exact cause for SIDS, as it is a diagnosis of exclusion, meaning that when an autopsy is performed, no other cause for death can be found, it is called SIDS or SUID (sudden unexplained infant death. Potential risk factors vary from child to child.
Physical factors
Physical factors associated with SIDS include:
- Brain defects. Some infants are born with problems that make them more likely to die of SIDS. In many of these babies, the portion of the brain that controls breathing and arousal from sleep hasn’t matured enough to work properly.
- Low birth weight. Premature birth or being part of a multiple birth increases the likelihood that a baby’s brain hasn’t matured completely, so he or she has less control over such automatic processes as breathing and heart rate.
- Respiratory infection. Many infants who died of SIDS had recently had a cold, which might contribute to breathing problems.
Sleep environmental factors
The items in a baby’s crib and his or her sleeping position can combine with a baby’s physical problems to increase the risk of SIDS. Examples include:
- Sleeping on the stomach or side. Babies placed in these positions to sleep might have more difficulty breathing than those placed on their backs.
- Sleeping on a soft surface. Lying face down on a fluffy comforter, a soft mattress or a waterbed can block an infant’s airway.
- Sharing a bed. While the risk of SIDS is lowered if an infant sleeps in the same room as his or her parents, the risk increases if the baby sleeps in the same bed with parents, siblings or pets.
- Overheating. Being too warm while sleeping can increase a baby’s risk of SIDS.
Risk factors
Although sudden infant death syndrome can strike any infant, researchers have identified several factors that might increase a baby’s risk. They include:
- Sex. Boys are slightly more likely to die of SIDS.
- Age. Infants are most vulnerable between the second and fourth months of life.
- Race. For reasons that aren’t well-understood, nonwhite infants are more likely to develop SIDS.
- Family history. Babies who’ve had siblings or cousins die of SIDS are at higher risk of SIDS.
- Secondhand smoke. Babies who live with smokers have a higher risk of SIDS.
- Being premature. Both being born early and having a low birth weight increase your baby’s chances of SIDS.
Maternal risk factors
During pregnancy, the mother also affects her baby’s risk of SIDS, especially if she:
- Is younger than 20
- Smokes cigarettes
- Uses drugs or alcohol
- Has inadequate prenatal care
Can We Prevent SIDS/Sudden Infant Death Syndrome/SUID?
There’s no guaranteed way to prevent SIDS, but you can help your baby sleep more safely by following these tips:
Back to sleep. Place your baby to sleep on his or her back, rather than on the stomach or side, every time you — or anyone else — put the baby to sleep for the first year of life. This isn’t necessary when your baby’s awake or able to roll over both ways without help,
Don’t assume that others will place your baby to sleep in the correct position — insist on it. Advise sitters and child care providers not to use the stomach position to calm an upset baby.
Keep the crib as bare as possible. Use a firm mattress and avoid placing your baby on thick, fluffy padding, such as lambskin or a thick quilt. Don’t leave pillows, fluffy toys or stuffed animals in the crib. These can interfere with breathing if your baby’s face presses against them.
Don’t overheat your baby. To keep your baby warm, try a sleep sack or other sleep clothing that doesn’t require additional covers. Don’t cover your baby’s head.
Have your baby sleep in your room. Ideally, your baby should sleep in your room with you, but alone in a crib, bassinet or other structure designed for infants, for at least six months, and, if possible, up to a year.
Adult beds aren’t safe for infants. A baby can become trapped and suffocate between the headboard slats, the space between the mattress and the bed frame, or the space between the mattress and the wall. A baby can also suffocate if a sleeping parent accidentally rolls over and covers the baby’s nose and mouth.
Breastfeed your baby, if possible. Breastfeeding for at least six months lowers the risk of SIDS.
Don’t use baby monitors and other commercial devices that claim to reduce the risk of SIDS. The American Academy of Pediatrics discourages the use of monitors and other devices because of ineffectiveness and safety issues.
Offer a pacifier. Sucking on a pacifier without a strap or string at naptime and bedtime might reduce the risk of SIDS. One caveat — if you’re breastfeeding, wait to offer a pacifier until your baby is 3 to 4 weeks old and you’ve settled into a nursing routine.
If your baby’s not interested in the pacifier, don’t force it. Try again another day. If the pacifier falls out of your baby’s mouth while he or she is sleeping, don’t pop it back in.
Immunize your baby. There’s no evidence that routine immunizations increase SIDS risk. Some evidence indicates immunizations can help prevent SIDS.
Grieving The Loss of a Child to SIDS:
Grief is a process, not a singular event. Although parents might wish otherwise, grief cannot be bypassed or hurried; it must be allowed to happen. Parents cannot work through the grief and come out the other side the very same person. Grief changes parents. One approach to understanding bereavement, developed by Dr. J.W. Worden (2002), identifies grief not as a succession of phases through which a person passes with little or no control, but as four tasks for the bereaved person:
Accepting the reality of the loss:
When someone dies, there is always a sense that it hasn’t happened. It may seem like a dream or an alternate reality. The first task of grieving is to come full -ace with the reality that the child is dead, that the child is gone and will not return. The opposite of accepting the loss is not believing through some type of denial. Denial usually involves either the facts of the loss, the significance of the loss to the survivor, or the irreversibly of the loss. To accomplish this task, the parent must talk about the dead child and funeral, as well as the circumstances around the death.
Working through the pain of grief:
We must acknowledge and work through the pain of grief or it will manifest itself through some symptoms or atypical behavior. Not everyone experiences the same intensity of pain or feels it in the same way, but it is impossible to lose someone with whom you have been deeply attached without experiencing some level of pain. The negation of this second task is not to feel. People may avoid feeling pain by using thought stopping procedures or by avoiding reminders of the child. Many emotions such as shock, anger, guilt, and depression may be expressed. The bereaved must allow themselves to indulge in the pain: to feel it and know that one day it will pass. It’s been said that it’s easier to express emotions with someone who knew the child or who can relate to the experience directly.
Adjusting to an environment in which the deceased is missing:
Caring for a child takes an amazing amount of time and energy. Parents and other caregivers once consumed with the constant task of meeting the needs of a baby are suddenly forced into inactivity. What was once responsibility is now gone. During their adaptation to loss, people can work to avoid promoting their own helplessness by gradually reforming schedules and responsibilities. Creating meaningful rituals like making a special memorial, keeping a journal, or writing poetry are helpful components of completing this task.
Emotionally relocating the deceased and moving on with life:
Survivors sometimes believe that if they withdraw their emotional attachment, they are dishonoring the memory of the child. In some cases, parents are frightened by the prospect of having another baby because he or she might also die. For many people, this task is the most difficult one to accomplish. They may get stuck at this point and later realize that their life in some way stopped at the point the loss occurred.
Some bereavement experts note the grieving process includes not only the parent adapting to the loss and returning to functioning in their life, but also includes changing and maintaining their relationship with the infant or child. It is normal for parents to report that they having an on-going relationship with their child through their memories and mental life.
Factors that may interfere with the grief process (read more about grief and grieving here)
- Avoiding emotions
- Overactivity leading to exhaustion
- Use of alcohol or other drugs
- Unrealistic promises made to the deceased
- Unresolved grief from a previous loss
- Judgmental relationships
- Resentment of those who try to help
Complicated grief is delayed or unfinished adaptation to loss.
Those who have complicated grief experience a failure to return, over time, to pre-loss levels of functioning, or to the previous state of emotional well-being. Grief may be more difficult in younger parents, women, and persons with limited social support, thus increasing their risk for complicated grief. The grief surrounding a child’s death is unique in its challenges and may necessitate professional counseling from the clergy, grief counselor, family physician, or mental health professional.
Grieving Fathers:
Although both mothers and fathers grieve deeply when such a tragedy occurs, they grieve differently. Fathers are expected to be strong and stoic for their partners; to be the “rock” in the family. All too often, fathers are the ones who attend to the practical but not the emotional aspects surrounding the death; they are expected to be the ones who should not let emotions show or tears fall outwardly, the ones who will not and should not fall apart.
Men are often asked how their wives are doing, but not asked how they are doing. Such expectations place an unmanageable burden on men and deprive them of their rightful and urgent need to grieve. This need will surface eventually if it is not expressed. It is not unusual for grieving fathers to feel overwhelmed, ignored, isolated, and abandoned, but many say that such strong emotions are very difficult to contain after their child’s death.
A father’s grief needs to be verbalized and understood by his partner, other family members, professionals, coworkers and friends, and by anyone who will listen. Fathers repeatedly say that for their own peace of mind, they (and those who care about them) need to move away from this mindset and allow themselves to grieve as they need to.
Families Needing Extra Support:
The tragedy of a child’s death brings profound pain to all affected, and it presents incredibly difficult and unusual problems for all grieving parents.
For some parents, the effects of such a complicated and devastating tragedy can be further compounded when the death occurs in a family already experiencing added stress in their lives, such as substance abuse or domestic violence.
There are some parents for whom there is no “circle of concern” or extended family.
There are also families who choose not to seek out a support network for their own reasons.
It is important to assess each family’s special needs and preferences. Additional resources for families include hospice organizations, local health departments, bereavement support programs, and community or religious leaders or healers. Each family’s cultural beliefs and practices must be honored during the bereavement process.
Types of Non-Traditional Families:
When a non-traditional family experiences the death of an infant, the community’s response may be less supportive of that family. It may be necessary to assist the family to seek out support networks that will best address their needs. Examples of a non-traditional family include:
- Single parent
- Unmarried parents
- Teenage parents
- Step-parents
- Parents in blended families
- Adoptive and foster parents
- Gay and lesbian parents
All of these parents and those in traditional families may find their grief unusually complicated. Regardless of the family’s composition, parental experience, coping strategies, and cultural practices are unique for each family.
Helping The Grieving Family:
Acknowledge the child’s death by telling the parent(s) of your sadness for them and by expressing love and support and trying to provide comfort.
Allow the parent(s) to express feelings without imposing your views or feelings about what is appropriate behavior. Avoid telling the parent(s) you know just how they feel.
Allow the parent(s) to cry–it is appropriate to cry with them.
Visit and talk with the family about the child who died; ask to see pictures or memories the family may have.
Refer to the child by name.
Extend gestures of concern such as bringing flowers or writing a personal note expressing your feelings, letting the parent(s) know of your sadness for them.
Attend the child’s funeral or memorial service.
Offer to go with the parent(s) to the cemetery in the days and weeks after the funeral, or find other special ways to extend personal or sensitive gestures of concern.
Remember anniversaries and special days.
Donate to a specific memorial in honor of the child.
Make practical and specific suggestions, such as offering to stop by at a convenient time, bringing a meal, purchasing a comforting book, offering to take the other children for a special outing, or treating the parent(s) to something special.
Respect the dynamics of each person’s grief. The often visible expressions of pain and confusion shown by the grieving parent(s) are normal. Grief is an ongoing and demanding process.
Keep in mind that the parent(s) may not be able to ask for help or tell you what they need.
Ways That May Help Parents Heal from the Sudden Loss of a Child:
Admitting that their grief is overwhelming, unpredictable, painful, draining, and exhausting—that their grief should not be diminished or ignored.
Allowing themselves to be angry and acknowledging that they are vulnerable, helpless, and feeling disoriented.
Trying to understand that to grieve is to heal and that integrating grief into their lives is a necessity.
Acknowledging the need and desire to talk about the child who died as well as the moments and events that will be missed and never experienced with the child.
Maintaining a belief in the significance of their child’s life, no matter how short.
Creating memorial services and other rituals as ways to commemorate the child’s life.
Deriving support from religious beliefs, a sense of spirituality, or personal faith.
Expressing feelings in journals, poetry, prayers, or other reflective writings or in art, music, or other creative activities.
Trying to be patient and forgiving with themselves and others and refraining from making hasty decisions.
Counting on, confiding in, and trusting those who care, listen, and hear, those who will walk with them, and not be critical of them, those who will try to understand their emotional and physical limitations, while also trying to understand and respect the limitations of their caretakers.
Increasing their physical activity and maintaining a healthful diet.
Volunteering their services to organizations concerned with support for bereaved parents.
Obtaining help from traditional support systems, such as family, friends, professionals or religious groups, undergoing professional counseling, joining a parent support group, or acquiring information on the type of death that occurred as well as about their own grief.
Reassuring themselves and others that they were and still are loving parents.
Letting go of fear and guilt when the time seems right and the grief seems less.
Accepting that they are allowed to feel pleasure and continue their lives, knowing their love for the child transcends death.
When Does The Pain End?
When are you ready to live again?
There is no list of events or anniversaries to check off, and in fact, you’re likely to begin living again before you realize you are doing it. You may catch yourself laughing or pick up a book for recreational reading again. You may start playing lighter, happier music.
When you do make these steps toward living again, you’re likely to feel guilty. “What right have I have to be happy when my child is dead?” And yet something inside feels as though you are being nudged in this positive direction. You may even have the sense that this nudge is from your child or at least a feeling that your child approves of it.
All newly bereaved parents must find ways to get through, not over, their grief—to go on with their lives. Each is forced to continue life’s journey in an individual manner. Many bereaved parents find solace in their religion. Seeking spiritual comfort in a time of grief does not mean repressing the grief.
Many grieving parents also find comfort in rituals. Funerals or memorial services have served many parents as beautiful and meaningful ways of saying goodbye, providing a sense of closure after the child’s death.
For others, ending announcement cards about the baby’s death, writing poems, keeping journals or writing down personal reflections or prayers, or volunteering with a parental bereavement group become ways to remember and honor the child who died.
Grief is a natural response to any loss. Healing for bereaved parents can begin to occur by acknowledging and sharing their grief.
Friends and caregivers who care should grieve and mourn with the parents; and listen. Bereaved parents need to know that their child will be remembered, not just by them but also by family and friends. They need to have the child acknowledged and referred to by name. They want that child’s life to matter. They do not want to forget and they don’t want others to forget.
What has happened to these parents has changed their lives; they will never see life the same way; they will never be the same people. As they attempt to move forward, bereaved parents realize they are survivors and have been strong enough to endure what is probably life’s harshest blow. By addressing their grief and coping with it, they struggle to continue this journey while making this devastating loss part of their own personal history, a part of their life’s story, a part of their very being.
Eventually, time will cease to stand still for parents. Painful and terrible moments will still occur—striking, poignant, but in some ways comforting reminders of the child who died. There will also be regrets for experiences that were never shared. But at some unknown and even unexpected point, parents will come to realize that there can be good moments, even happy and beautiful moments, and it will not seem impossible or wrong to smile or laugh, but it will seem right and beautiful and a fitting way to honor and remember the child who died.
One day, bereaved parents may come to be surprised by joy.
But in time…nature takes care of it; the waves of pain lose intensity a little and come less frequently. Then friends and relatives say the parents are getting over it, and that time heals all wounds. The parents themselves say that as the pain lessens, they begin to have the energy for people and things outside themselves…This is a decision parents say they must make to live as well as they can in their new world. They can become to be happy, but never as happy. Their perspective on this and everything has changed.
Their child’s death is the reason for this and is a measure of the depth and breadth of the bond between parent and child.
Last Edited 7/1/2019