It’s been almost three years since you died. I miss you. Until you died, I can honestly say that I did not carry around much regret, but since you passed I have one big regret. I am so sorry that I could not take better care of you in your old age, when your health was failing. None of us realized how bad you had gotten and I thought you had more time left.
See, you came to visit me for two weeks. Shortly after I left my job to stay at home full time with my then one year old daughter, I had hoped that the visit would go well. We even toured a senior care home that was so nice and I knew we all liked it. But having you here for two weeks was hard. And we found out that since you had a felony on your record, you would not be eligible to live in a nice senior care facility, even though it was so long ago. I was barely keeping it together with my own family. I had been dealing with postpartum anxiety (though I didn’t know what that was at the time), we had just switched to one income, and I was an emotional wreck. I didn’t know that would be the last time I would see you.
When you stayed with us, you were scared to do simple things on your own, like changing the toilet paper roll or putting food on your own dinner plate. It also seemed like many of the usual social graces people use escaped you as I had to remind you of things like using a napkin. We thought you had been spending too much time alone. I knew being in new environments was stressful for you. I panicked when you told me you were starting new medication a few days into the trip. I was afraid that there would be a lag-time until the new meds kicked in and that you might have a manic episode. I was scared, and overwhelmed, and grumpy. Although I had always wanted to take of you, I was afraid of exposing my husband and daughter to your psychotic episodes and just could not handle taking care of you in my home.
After your next breakdown, you went to live with my brother in LA. It was hard to tell over the phone, but he said that you didn’t come back to normal after that one. I know you hated living in the city & in a noisy house with no where to walk to. We didn’t understand why your psychiatrist kept taking you off of your medications, without talking with any of us. I am sad that you died so soon, but I am beyond infuriated with the mental health care system and the shit they put you through all those years. That time, your case workers finally talked you into checking into the behavioral health center, but it was set up for short term care. Your psychatrist took you off of all your psych meds, so the hospital didn’t give you any & you were completely out of it. When I tried to talk to you on the phone you put the receiver inside your mouth. It was impossible to have a conversation. They put you in a wheel chair because you kept falling down. They couldn’t send you home & there were no long term care facilities available for you to go to. We finally fought for you to go to a medical rehab place and argued with them long enough to have you (finally) evaluated by a psychiatrist…which took two weeks. They put you back on psych meds and you improved enough for J to take you home.
But you weren’t all the way better and you had a hard time adjusting to J’s house. He managed to get you into a retirement home that didn’t do a comprehensive background check. When you became agitated and confused again, we thought it was related to your mental health, so J took you to a nearby emergency psychiatric hospital. The doctors there didn’t know you. He waited with you all damn day and they couldn’t tell him how long it would be to get you in to see a doctor. They told him the only way to get you seen was to have you brought in by police. So he called the police, explained the situation and a very understanding cop escorted you in the back of a police car to the hospital. It breaks my heart that he had to put handcuffs on you to walk you into the hospital “in custody.” They explained to you that you hadn’t done anything wrong, but didn’t think you really understood. After all of your experiences,I know that was scary for you and I feel horrible that they had to do that to get you into a doctor. Horrible and pissed beyond belief at this fucked up mental health system that would put a 72 year old man with severe mental health issues though that just to get fucking treated by a doctor. Anyway, it seems like we should have been taking you to a medical doctor, because you died within hours of being checked in. Supposedly they gave you a physical exam, then something to help you sleep because you were tired. When the nurse checked on you 15 minutes later, you were gone.
My other regret is that you had to deal with a system that was so incompetent and frustrating to deal with. That your health care added to the hardships that you faced in life & that I wasn’t a better advocate for your care during your life. I love you and I miss you, and I am glad that you are no longer suffering.
I was feeling so alone. I freeze when I meet people I don’t know. My parents have messed me up big time. My mother, who I no longer have anything to do with, is a bisexual, bipolar mess. My father is an alcoholic who gets in touch to ease his own conscience. I’ve been doing it alone for years. Some days, I am strong for my two girls; others I’m a mess and feel like a failure who yells.
My brother, who is now disabled after being attacked in jail, cannot speak: he can only say yes and no. My mother decided to kill him “for his own good,” or so she says. Her only punishment was home detention and supervision.
I’m getting off track….
I feel I’m the only sane one in a big storm that’s only just starting to subside. I get lost in the mess or drama at times. I am more than that. I am not just a product of two alcoholic parents. I am my own person. I am a young woman who has endured too much in her short life. I want to be free of it all. I keep myself going by keeping busy with cleaning, gardening…I’m an artist who has an opinion.
I want to say to anyone out there who has a messed up family life that you are not alone: it does get better. Your situation does not make you who you are. I would love to talk to anyone who feels the same in this life. Please
feel free to share, too.
So, let’s talk about my youngest. He is one of the sweetest most loving caring kids you will ever meet. He has autism, ADHD, anxiety, depression, asthma, and EDS. EDS Elhers Danlos Syndrome. It’s a connective tissue disorder. It sucks. I have it also and right now we are both having major pain flares.
Readers Digest version: last Wednesday, I think it was, my husband and I and our youngest went to our foot doctor because my feet are horrible, my husband’s are from the army and back in December, my son fell and sprained his ankle, and we thought he was ok but he was still limping. With EDS, you do not walk it off, and I have two surgeries on my feet to prove that.
So, the doctor gets x-rays, and comes and gets my husband and me to come look at them. She points at a spot on his ankle and says, “I don’t know what that is, I don’t like it. I want an MRI immediately!”
Ok, so I’m freaking out inside. She puts my son in a walking boot and he’s fine; he’s none the wiser. He walks with a cane daily because his knees are really bad.
So, we learn it could be dead bone, dead connective tissue, the C word, malformed bone or connective tissue and I forget what else. He will probably need surgery. I’m not handling this well at all. He’s my baby and I know he hurts because I gave him the blasted syndrome.
The “immediately” is not happening because apparently it’s a special kind and even though my son has 3 insurances, they have to sign off first. I’m just beside myself. My anxiety is not happy. Thank god for happy pills. Any suggestions on how not to obsess?
I’d been casually chatting with my father about my growing orchid obsession. He looked at me a little funny – nothing out of the ordinary there – when he dropped a bomb, “You know, your grandfather grew these orchids.”
No, no I didn’t know that. I’d remembered the greenhouses from my early childhood. Every other weekend, I recall, we’d go to a certain greenhouse or another, which is why the smell of that good green growing earth makes me nostalgic and warm inside. I remember being a toddler, spending hours at the rose garden at the Chicago Botanic Garden, listening to my family plan my future wedding there. I cannot tell you how sorry I am that I did not marry there.
My grandfather grew roses – beautiful roses – always puttering around with them, lovingly spraying them with this and that, warding off all potential pests and coaxing out the most beautiful, heavenly-scented blooms.
When I grew my own rose garden, lovingly spraying them with this and that, warding off potential pests, and coaxing out the most beautiful, heavenly-scented blooms, I’d think of him. Not at first. But eventually, I felt as though he was right there beside me, helping me identify pests and apply the proper fertilizers.
The orchids, though, they threw me through a loop. Until I found this:
That’s an orchid bloom in my curls.
My grandfather is with me always, it seems.
He is my hero.
And not just because he grew orchids and roses like I do, but because he lived the sort of live I hope to live. It was a life less ordinary.
He graduated from Johns Hopkins medical school at nineteen and became a doctor at the same age that my life hit a crossroads. I’d always planned to go to medical school myself, and life found a way. I became a mother.
He worked as the sort of family doctor that made housecalls, his forceps and stethoscope always in his medical bag, ready to deliver a baby, diagnose rubella, or treat a broken arm. It was during these housecalls that he was exposed to tuberculosis and spent many months at a TB sanatorium in the mountains, missing out on his first son’s – my father’s – early life.
Before that, though, he was a doctor in the United States Army. He was the first on the scene when the Allies liberated the concentration camps. He was the first medical personnel to treat the concentration camp victims. He never spoke of those days, what he saw, the atrocities of the Nazi’s, and what he had to do to help the survivors, although I know they weighed on him.
By the time I rolled around, he’d given up his medical practice and became the head of pathology at Northwestern Memorial Hospital.
The apple of his eye, his granddaughter, he spent as much time with as he could. Weekends roaming the botanical gardens. Nights at Ravinia, on the lawn, under the stars, listening to the magical strains of Saint Matthew’s Passion and The 1812 Overture, eating fried chicken on a picnic blanket. Those were the best days of my young life.
An adult with children of my own, my grandfather long-passed, I have the vain hope that one day, my life will, too, be remembered as less ordinary, if only by myself. That because of the choices I’ve made, the people I carry in my heart, the people who now (however virtually) walk by my side, the experiences I’ve put behind me, that my own life can be as far from ordinary as his.
I’d say that I miss you, Grandpa, but I know you’re always with me.
