by Bratmom | Feb 8, 2019 | Anxiety Disorders, Ask The Band, Attention-Deficit Hyperactivity Disorder, Autism, Bipolar Disorder, Co-Morbid Bipolar Disorder, Depression, Feelings, Loving Someone With Bipolar Disorder, Mental Health, Oppositional Defiant Disorder, Parenting |
I posted a while ago anonymously about my oldest son. He is truly in a bad, bad place. He’s a very angry child. We sought help from his therapist and psychiatrist. Finally, after weeks and weeks of fighting, we got somewhere. He was diagnosed with co-morbid bipolar disorder along with his autism, ADHD, ODD, depression, and anxiety.
It finally felt like we were getting somewhere. Until…that deep dark place got worse.
We are fighting daily to keep him out of inpatient hospital stays. I walk on egg shells talking to him because I don’t know what is going to upset him.
I’ve had a continuous migraine for the past 5 days because just thinking about him makes my anxiety sky high. He’s a good kid and has such a good heart, I just don’t know how to help him.
Does anyone have any ideas?
I am all out of ideas. I’m completely mentally worn the eff out. He’s just so angry and mad at the world. I just want my happy kid back
by Band Back Together | Jan 25, 2019 | Anxiety Disorders, Ask The Band, Coping With Anxiety Disorders, Ehlers-Danlos Syndrome, Family, Fear, Feelings, How To Help A Parent With a Special Needs Child, Intracranial Hypertension, Mental Health, Parenting, Special Needs Parenting |
You know about my kids now here’s a little about me.
I am extremely stubborn.
I hate admitting I need help.
I have a ton of health problems: anxiety, depression, EDS, IIH, and fibromyalgia. All 3 of my kids have autism with other co-morbidities. My husband is my rock but he can be a pain in my ass.
I take on a lot with the boys because they’re mine it’s not up to someone else to do it and I do see a therapist.
She thinks in dealing with the latest with what I call my shitshow, I lost myself in there somewhere.
I think she’s right in a way, I’m so mentally tired I’m surprised I can form complete sentences.
I’m getting away next week for 10 days.
For the first time in 4.5 years, I’m going to visit my mom, my dad, and my sister. I haven’t been together with the three of them at the same time in a long time.
I’m actually really excited… but scared too.
Scared of having a good time.
Is that weird?
Scared I’m going to be in pain and they won’t understand. Scared of being away from my kids for so long.
Okay, I’m scared shitless.
Help!
by Band Back Together | Jan 12, 2019 | Divorce, Family, Heartbreak, Parenting |
I have so many different stories I want/need to share with The Band, it is hard for me to sit down and write just one. I think I have one that needs to come out now before I explode, though.
In another life, I was married to my high school sweetheart. I was an Army wife and a stay-at-home mom, and I think I was pretty damn good at it. I thought things were perfect. Sure, things could have been better, but the grass is always greener, right?
My husband left for Iraq before our 3 kids were even in school. He was gone for 2 years. A lifetime happened in those years he was away. We grew as a family. He came home expecting us to be the same, and we weren’t. He came home from Iraq and was expected to be a family man, father, husband again after being a bachelor of sorts while he was gone. Things happened; we divorced. It is still hard for me to accept. He was my world! I’m moving and trying to get past it, though.
I do pretty well until he calls and says things like “I love you,” “I miss you,” “I want us again.” I try really, really hard not to, but sometimes I fold. I do love him, miss him. This last time though, I told him NO. Not until you are no longer with your girlfriend. Not until we go to counseling as a family, a couple, and you alone. I also told him that I want more than just to be with him: I want my kids to have their DAD. They deserve that. I told him taking them for a couple hours every couple months and canceling on them 9 times out of 10 is not all right. I am NOT covering for him anymore. He agreed. Promised to take the kids 3 times now.
And guess what? He has canceled every. single. time. I have been wiping tears and hugging hurt little people for 2 weeks now. He doesn’t get it. He always says “sorry, something came up.” I tell him “take them with you,” and his response is “I can’t afford it.” WHAT! I am raising our children with NO help from you! Nothing. Okay, I just started getting child support again, but I am not talking about the money; I mean emotionally, physically. They just want to be with you. They don’t care if you sit on the couch or in the car. They would LOVE to just be near you. Believe me.
I am so tired of covering for him. I can’t handle the questions: “Am I not good enough for Daddy?” “Why am I not special enough?” “Do I have to change so he will love me?”
How do I answer those? I don’t think my hugs and answers are enough anymore. I think my kids, my little hearts, are starting to think I am just blowing smoke.
Help me, The Band. How do I fix their hurt?
by Band Back Together | Dec 13, 2018 | Abuse, Coping With Divorce, Coping With Domestic Abuse, Divorce, Domestic Abuse, Emotional Abuse, Feelings, How To Cope With A Suicide, How To Help With Low Self-Esteem, Loss, Parenting, Parenting Teens, Self-Esteem, Suicide, Teen Suicide |
I was never going to write on here. I was going to comment and offer support… but I was never going to write about how I felt.
“It’ll go away later,” I’d tell myself. “There worse things out there in life than feeling down every now and then.” “Everyone gets overwhelmed this time of year.”
But then I wonder if it’s worse than that.
I’ve always been relatively smart. My elementary school wanted me to advance to 2nd grade during Kindergarten. I was in Beta Club and always enjoyed school. Then, in the 3rd grade, my parents split up. I vaguely remember an incident where my dad hit my mom. They got back together when I was in 6th grade. But, things weren’t going well.
We moved after 6th grade. My best friend had moved away a year earlier and I had a hard time making new friends in my new town.
I was smart… and smart kids aren’t the cool kids.
So, I dumbed myself down.
Things weren’t good at home, either. My parents were not happy and it showed. My mom had a meeting with my teacher’s my sophomore year of high school to discuss my poor grades and my English teacher told her it was because I was bored with school. It was too easy for me, and I had given up.
I had driven myself to the point that I actually told my mother that I wanted to kill myself.
To this day I can not guarantee that it was an empty threat.
After we moved, everything about me changed. I became my mother… she gets upset too easily. She’s depressed. As far as I know, she’s not gotten help for it and she’s always telling me to stop getting “into tizzies.”
I’ve been in some bad relationships where I was used and cheated on and emotionally abused. I was called a “butterface” (everything is okay about her, but her face), ugly, and fat. I think the worst thing people made fun of me for was my nose. It’s on the larger side and now every time I look at myself in the mirror all I see is that damn nose.
How it makes me far from perfect.
I’m engaged now and I love my fiance with all of my heart and I know he loves me, too…but there’s this voice that comes out every now and then and eats away at me.
That voice says that he deserves someone beautiful and he’s going to find her and leave me. My self-esteem is not great.
I trust that he loves me and won’t leave me… but that voice in my head won’t shut up.
The best way to describe how I feel is when you go to a store like Best Buy. If you go to the back of the store where all the TVs are, and you put each TV on a different channel and close your eyes. All those voices, all the things running through your mind – and I can’t make it stop.
My self-esteem is so very low. I can’t even make simple decisions like what I want to eat for dinner. If I go to make a speech or presentation in class, I get so shaky I can barely stand up, let alone speak. In some classes I can’t understand the material, so I cry.
When Tony asks me what I don’t understand so he can help, all I can muster is, “I just don’t understand.”
What’s the most important thing I don’t understand?
Why I went from a smart, outgoing kid to someone who wants to hide in their room with the lights off.
And, then there are days when I feel great and nothing is wrong and I just say to myself, “it went away like usual. See? Everything is better. Sometimes people just get sad.”
Until that voice in the back of my head finds those remotes again.
by Band Back Together | Dec 3, 2018 | Addiction, Addiction Recovery, Mental Health, Parenting Teens, Teen Substance Abuse |
Today, Today I am heartbroken. I am also, angry and anxious and sad, embarrassed and emotionless. Every time I think I can’t cry anymore, the tears just start falling.
Today…. I have to send my son to live with his father.
I have to ‘kick him out’ of my house. He has been getting in trouble. Mostly for marijuana at school. Today… is the fourth time in less than a year (calendar year) it is the 2nd time in less than a month. I am angry at the school, because they are blowing things up that shouldn’t be.
He is supposed to be in a trauma-informed school. You know the place where the kids go because they get caught with pot at regular school?
The principal has told me multiple times that she doesn’t care if they smoke pot. They just can’t do it at school.
Well.
Today a kid happened to walk in at the same time as my son who HAD been smoking before school so they all got pulled into the office “No one at my school is going to be smelling like weed” Nice double standard lady. She searched the cars. Found pot in the other kids car. My son… He had the mouthpiece of a bong. “drug paraphernalia”
So it is a 2nd strike. He is expelled.
5 away months from graduating high school.
Funny thing is. I told her this would happen when they kicked him out of band. When they took away his positive influences. I told them he would spiral. I begged them to try another way. Every single scenario I laid out has happened.
Today…. I am so angry at the school. For the double standards. For the harsh punishments. When, really, why is pot treated any different than say nicotine or alcohol. He wasn’t shooting up in the bathroom or doing a line of coke in the hallway. He smokes blunts. The ladies head about spun when he told her he uses CBD for his anxiety.
*gasp that’s marijuana*
Today I feel like a failure. Like I caused this with our fucked up life. I feel like I missed something big. A big way to help him. Today I am heartbroken I am losing my baby boy.
Today I am angry at the fucked up school system who can let kids who cause a lockdown for a gun threat, kids who are drunk all the time and kids who smoke cigarettes on school grounds get away with it. They don’t get punished.
Today I am frustrated with my friends who tell me I am doing the right thing. I don’t want this to be right. I just want it all to be better.
Today I want to stop crying. Today I want everything to be okay. And I am terrified that..
Today…
Today is the beginning of the end.
by Band Back Together | Nov 27, 2018 | Anxiety Disorders, Bipolar Disorder, Coping With Anxiety Disorders, Coping With Depression, Depressive Disorder, Loving Someone With Bipolar Disorder, Mental Health, Parenting, Parenting Teens, Pediatric Bipolar Disorder, Pediatric Depression, Teen Bipolar Disorder |
How’s Gabriel?
I hear that all the time. There is no simple answer. But answering it is the focus of my daily life. Every day. The real answer is Gabriel’s not OK. Gabriel is Bipolar. His moods shift. Daily. Weekly. Yearly. He is never OK. I spend my days like a detective trying to sniff out any small clue of a mood change, charting, taking notes, observing him. Worrying about him.
He spent 10 months of the last 12 (literally, not figuratively) suicidal, dangerous, aggressive, and explosive. His meds are controlling that a little, but he is manic right now. Which is dangerous in other ways. And his meds aren’t holding that in. They aren’t ‘stabilizing’ him like they are supposed to. And without going into a tirade about doctors, I don’t have a ‘handle’ on this the way I PROMISED myself I would last October. And last May. And last July. You get the point.
The fact that mania seeps out now means that Gabriel is hyper (he isn’t normally at all), he is giddy, inappropriate (laughing, jokes, rude comments, butt jokes, pulling his pants down in front of a friend during a play date, etc), and more likely to jump off the roof (or trick his brothers into doing it) than anything else. Which is, in some ways, better than the dangerous depressive side. However, as October comes to a close, so will the mania, and the bipolar depression will replace my giddy-inappropriate child with one who hates the world. Who hates me. Who hates his brothers. One who is so negative and dangerous that he threatens to take knives to school and kill people. That kid is hard to live with. That kid is hard to keep safe. That kid threatens my sanity and the safety of my other two children.
We have to put him on another medication. A stronger medication. And although our ‘nurse practitioner’ is willing to give him a new medicine now, (they want to put him on Lamictal), my next appointment with his actual doctor, a real psychiatrist, isn’t until November 24.
Yes, the day before Thanksgiving.
Why wait? Because Lamictal has a 1 in 1000 chance of a deadly side effect. A deadly rash that may just start itself in the depth of my son’s mouth where I am less likely to see it. Less likely to be able to get him the immediate medical attention required. That scares me.
And scares my husband. So much so, that he refuses to give our son this drug until we see our psychiatrist. Who we can see the day before Thanksgiving.
So, I will bake pies early this year. And spend the that glorious Wednesday afternoon admiring the artwork on the walls of Children’s Hospital, nervously wondering if I will be rushing Gabriel to the ER with a rash on Thanksgiving day, and trying to hold down all those bites of pie I shoved in my throat in the anticipation of this moment where we are forced to make, yet another, hard decision about our son’s care.
But I have no choice. So we wait.
But the cycling won’t wait.
Depression is nipping at his heels and I am not sure we can out run it.
