I posted a while ago anonymously about my oldest son. He is truly in a bad, bad place. He’s a very angry child. We sought help from his therapist and psychiatrist. Finally, after weeks and weeks of fighting, we got somewhere. He was diagnosed with co-morbid bipolar disorder along with his autism, ADHD, ODD, depression, and anxiety.
It finally felt like we were getting somewhere. Until…that deep dark place got worse.
We are fighting daily to keep him out of inpatient hospital stays. I walk on egg shells talking to him because I don’t know what is going to upset him.
I’ve had a continuous migraine for the past 5 days because just thinking about him makes my anxiety sky high. He’s a good kid and has such a good heart, I just don’t know how to help him.
Does anyone have any ideas?
I am all out of ideas. I’m completely mentally worn the eff out. He’s just so angry and mad at the world. I just want my happy kid back
How can you explain the unexplainable?
The intangible that lives within and is expressed without but not with words…thoughts, deeds, drinks, and pills. Words seldom give justice to the turmoil within. And even when blurted out in a moment of weakness or vulnerability…if expressed to the wrong person they are still and float on the air like flotsam…better left wherever the journey began.
One might say “get a therapist” or “join a group.” Some psychobabble will surely help things along. Turn lemons into lemonade, bump inertia into movement. But, what to do without that ever-expensive, mostly elusive thing called health insurance?
Out of pocket expenses for mental health care are damaging.
So the cycle continues. The mood swings, the doubting, the bursts of mania. The decision to do one thing and suddenly another road is taken. All the while keeping things together. Feeling very little, looking very ill and fooling no one. Or maybe, just maybe, fooling everyone and that is the very problem that needs to be addressed.
The adjectives used to describe this current state are self-actualized and negative. But what is the alternative?
“Take these broken wings and learn to fly…”
No, these wings aren’t broken, my cape is not torn, I can handle everything that is happening. In the midst of accolades for “making it,” the pieces of my heart slowly tumble and quietly hit the ground while barely making a whisper.
And yet the pain is still devastating, immobilizing and nobody knows.
Admittedly this is my fault. Perhaps wiping away the facade will release magical healing powers, somehow I find that doubtful. So what if the alternative means holding it all in, weight creeping up and face looking as if I’m aging in reverse – teen years I’m back! Acne and all.
Sadly I don’t know how to remedy this. And so I sit. Waiting for the next thing in the pipeline and inevitably it comes and keeps me focused.
For a moment.
But in the quiet times (which are rare) my truth must be faced. I’m inert. Immobile. Dysfunctional and pray that someone will swoop in and take it all away. The likelihood of that happening? Nil.
And so I wake to face another day, I wear the mask and hope that no one notices.
I’m a girl – check that – a lady. I married a fantastic man. I have a crappy job, but it’s okay. I hobby (yeah, hobby as a verb, got a problem with that?) – I read, embroider, write to pen pals, and water my dead plants.
I get panic attacks. I have Bipolar II Disorder. But it’s okay. I mean, I can’t cure it…so, I live with it, right?
Don’t get me wrong, it blows serious monkey balls most of the time. I’m currently untreated and once my insurance kicks in, I’ll still have to wait another six months to have it covered, “pre-existing condition” and all. (Wait, wait, I’m getting to something.) I’ve got a few problems – so what, right? I’m with the Band and “problems” is one tune we all sing.
So why do I feel like I’m the first person to bring up bed-wetting? I’m no expert. I don’t have any kids. I don’t know anyone who’s ever done it…sober. I never did it as a kid. I mean, well, since I got potty trained. I’m good at being potty trained.
Recently, though, I peed the bed. Not even in a drunken haze. Just while sleeping, like a normal person. That’s what you do, right, sleep? And then, a few weeks later, I did it again!
What. The. Hell.
Add that to the migraines when I’m around blinking lights, a nervous twitch when my sister visits, panic attacks when I, well, whenever – it just happens on the roller coaster of being untreated Bipolar. That’s not enough? Now this?
For fuck’s sake, I’m an adult. I’m married. I share a bed with a man and two dogs. I yell at my little dog for peeing on the kitchen floor, but at least she’s not doing it in the bed. (You should see the looks she gives me, by the way.)
The only two times it has happened – hopefully the only two times it will ever happen – the only commonality I can see is that I had nightmares. I get nightmares pretty frequently, especially when I’m shifting between ups and downs, so it’s not like I can say, “Oh, it was the nightmares which caused them!”
The first incident was in the early morning hours. I awoke to myself peeing and ran to the bathroom. I finished, showered, and continued on with my day. No sheets were wet, just my pj’s. I told the Hub and we passed it off as maybe I drank too much water before going to bed, and was in too deep a sleep to fully wake up. Or maybe I was getting an UTI.
But whatever, accidents happen. We never mentioned it again.
The second incident, a few weeks later, I happened to be sleeping on the couch. (So, maybe I lied. Maybe I peed the bed once and the couch once. Hah! So, I’ve only peed the bed once!) I woke up in a virtual puddle. Thank goodness we have dogs and my couch is stain-guarded so nothing really soaked in. I ran to the bathroom, but I had already drained everything; and it was a LOT.
There I was, soaked in pee, in my living room. I cleaned up myself and the couch, and change into something dry. This was 2:00 in the am. I hate being up at that time – we don’t have cable and nothing’s on. I just stood and stared at my couch, willing it to dry faster. The husband woke up and stumbled to the living room “Are you coming to bed?”
I had fallen asleep watching television (I heart The Nanny reruns).
I had to tell him what happened.
We talked about it.
Did I remember the nightmare? No.
Did I drink a lot of anything before I went to bed? No.
Is there pain? Could I be pregnant? Is that even a symptom?
Have I been feeling all right in the brain lately? Any issues maybe that are bothering me that weren’t before? No.
Nothing seems different. Panic attacks seem more frequent lately, and the migraines last longer. That could be because I’m shifting schedules – downs to ups, you know.
Nothing seems to be triggering this new symptom.
Maybe all my other symptoms increasing in number and intensity are just putting my body through hell. Maybe it’s a new thing. Maybe I’ll do it again. Maybe I won’t do it again until I can see a proper doctor (November 2nd). Maybe. Maybe. Maybe. I just don’t know enough about bed-wetting to be sure about anything. (I’m not even sure it’s hyphenated.)
I do know something, though. I know I have someone special in my husband. I know that even after I had cleaned it all up, my husband cleaned the couch. He still waited a day or two to sit down on it. He was so nice about the whole situation, though. He worried about me, and what this new activity means for me. He said he was sorry my broken brain was making my body do crazy things.
To relieve the new anxiety I had facing bedtime, he even cracked a joke and offered to put me out with the dogs for a potty break before bed. No, really, I laughed. It’s all I could do. But I threatened I might pee on the couch again if he made me laugh too hard. And we laughed at that.
And then we went to bed, nervous about what the night might bring.
I proposed in 1996.
He’d always said, “If you get the ring, I’ll say yes. ”
I did, he did.
We did in September 1997. We’d been together for 3 years already. We were a good couple, we were happy. I knew his bipolar disorder was manageable, I knew we could conquer anything.
Years passed, new home, new jobs, a lot of loneliness. He worked swing-shift which is not good for a relationship or anyone with mental health disorders.
This is where it is no longer my story…I had an affair, I left him, albeit amicably. We remained friends, he kept it, “in the family” in a round about sort of way.
They had a kid, So did me and my new husband. We spoke on occasion, kept in touch via family.
We each moved forward.
2018, a lot of suicide, celebrities, local people, friends of friends. I thought I should check-in with him but I didn’t.
Time and time again, I didn’t.
I awoke one morning to my husband asking if I knew anyone in a certain neighborhood there’d been a major tragedy.
I waited until I got to work.
I texted my ex, “What’s your mom’s address?” No response. “Hello?” No response. Messenger dings, My ex sister-in-law. “Can you talk?” I told her that I was at work.
“His mental illness got the best of him, he did the unthinkable, he killed A, he killed B, he killed C, and A, he took his own life.”
My past destroyed in one night.
He left a child parentless
I have spoken to the child. We connected. I have nothing bad to say about the child’s father.
I loved him, always. We were good together. We grew apart.
I feel I could have helped had he just reached out to me.
Today 11/15 is his Birthday, I wish him peace on the other side. I know he fought his demons, I know they over ran him in the end.
I still love him, he’s my past, I will, as always, hold him close to my heart.
There were 4 victims that night.
All of them fell victim to Bipolar Disorder, a failing system, and a lack of understanding from those around the one suffering the most.
Today, I will light a candle for your Birthday,
You are missed. You will always be missed.
I will always remember you.
Happy Birthday, RIP, DLP.
I hear that all the time. There is no simple answer. But answering it is the focus of my daily life. Every day. The real answer is Gabriel’s not OK. Gabriel is Bipolar. His moods shift. Daily. Weekly. Yearly. He is never OK. I spend my days like a detective trying to sniff out any small clue of a mood change, charting, taking notes, observing him. Worrying about him.
He spent 10 months of the last 12 (literally, not figuratively) suicidal, dangerous, aggressive, and explosive. His meds are controlling that a little, but he is manic right now. Which is dangerous in other ways. And his meds aren’t holding that in. They aren’t ‘stabilizing’ him like they are supposed to. And without going into a tirade about doctors, I don’t have a ‘handle’ on this the way I PROMISED myself I would last October. And last May. And last July. You get the point.
The fact that mania seeps out now means that Gabriel is hyper (he isn’t normally at all), he is giddy, inappropriate (laughing, jokes, rude comments, butt jokes, pulling his pants down in front of a friend during a play date, etc), and more likely to jump off the roof (or trick his brothers into doing it) than anything else. Which is, in some ways, better than the dangerous depressive side. However, as October comes to a close, so will the mania, and the bipolar depression will replace my giddy-inappropriate child with one who hates the world. Who hates me. Who hates his brothers. One who is so negative and dangerous that he threatens to take knives to school and kill people. That kid is hard to live with. That kid is hard to keep safe. That kid threatens my sanity and the safety of my other two children.
We have to put him on another medication. A stronger medication. And although our ‘nurse practitioner’ is willing to give him a new medicine now, (they want to put him on Lamictal), my next appointment with his actual doctor, a real psychiatrist, isn’t until November 24.
Yes, the day before Thanksgiving.
Why wait? Because Lamictal has a 1 in 1000 chance of a deadly side effect. A deadly rash that may just start itself in the depth of my son’s mouth where I am less likely to see it. Less likely to be able to get him the immediate medical attention required. That scares me.
And scares my husband. So much so, that he refuses to give our son this drug until we see our psychiatrist. Who we can see the day before Thanksgiving.
So, I will bake pies early this year. And spend the that glorious Wednesday afternoon admiring the artwork on the walls of Children’s Hospital, nervously wondering if I will be rushing Gabriel to the ER with a rash on Thanksgiving day, and trying to hold down all those bites of pie I shoved in my throat in the anticipation of this moment where we are forced to make, yet another, hard decision about our son’s care.
But I have no choice. So we wait.
But the cycling won’t wait.
Depression is nipping at his heels and I am not sure we can out run it.
I don’t remember when reporting of suspected abuse and threat assessments (e.g., suicide risk identifications) became mandatory for educators and counselors. It was before I became a parent, I know that much, and it dawned on me a long time ago that there were probably plenty of reports that resulted from misunderstandings.
About a month ago, while we were in the middle of Princess’ most troubling days, while we struggled to identify and treat her emerging bipolar tendencies, our son, Hoss, ran away from his school and was brought back by the county police. It’s been a long time since he ran away like that, but it brought back memories of the tough times before he was diagnosed with his mood disorder.
One of these elopement incidents was the final thing that sent him to the psychiatric hospital back in the day, and that he’d gone all of last school year without ever feeling the need to escape like that made me feel like we’d made serious progress. Last month’s bolting was not as serious as what we used to see, but he did leave the property.
When the police officer brought him back to the school, they said he’d expressed that he’d wanted to die. As a result, despite the assurances of the school staff with whom Hoss has a history (principal, counselor, psychologist) that he was not actually a danger to himself or others, the police informed us that they would be taking him to the ER for a psychiatric consult. I was told that I would not be allowed to go along until I had spoken with the Mobile Crisis Team.
I spent time with the MCT explaining all of the steps I go through to care for my children and myself (outpatient therapies for the children, family therapy with a social worker with whom all of the family members are comfortable, open lines of communication with the schools, medication monitoring all around) with a response that roughly translated to:
“Okay. That’s exactly what we were going to recommend, so keep on keeping on.”
My husband went to the ER to stay with Hoss, and the evaluation indicated that Hoss’ “I wish someone would just kill me,” was not actually a cry for help, but rather a misstated outburst that is not all that unusual for a nine-year-old boy with ADHD. During the next therapy session, Hoss got an opportunity to talk about how upset he was that he’d been forced to go to the ER when he’d wanted to stay with his sister and I.
While Princess was in the day hospital program a few weeks ago in preparation for the transition back to school (now that we’ve gotten her medication properly titrated), she spoke of her brother’s boundary issues, and how he’s gotten in trouble the weekend before for not keeping his hands to himself.
Part of that boundary crossing included trying to tickle her all over, and missing her stomach by hitting a bit further south. Because we are working with Hoss on respecting personal space as well as just plain leaving his sister alone sometimes, he had to process what he’d done and he had consequences for not acting as he was supposed to.
Princess accepted his apology, since he’d properly identified what he’d done wrong and what he should have done instead. I didn’t hear about the incident until days later, since it happened while I was out of the house and it was no longer on everyone’s mind by the time I got home that evening.
However, the hospital reported the incident to the county, who interviewed all three of my children.
The end result of the interviews (from the point of view of the police and social worker) was that there was no criminal activity or additional cause for concern.
The end result from the point of view of my children was slightly different- Princess feels bad that she got her brother in trouble, Hoss is irritated and slightly grossed out that he “…had to look at pictures of private parts! Even girl ones!” and Little Joe doesn’t understand why he had to answer a whole bunch of questions about body parts and our family and stuff.
I know that mandatory reporting has resulted in abuse being caught before more damage can be done. I know that conducting threat assessments in elementary school may mean that we have fewer young children reacting to their stress by harming or killing themselves.
I understand this, and of course I want those bad things prevented.
I’m just struggling with how this has put me under a microscope when, according to the mental health and educational professionals who know me and my family, I’m one of the good guys