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My Lyme Disease Story – Part I

I was bitten by a tick when I was ten. It’s the only tick bite I remember, though a large number of those with Lyme don’t remember a tick bite. There’s no way to know if this bite or another was the culprit. I do remember a rash on my hand the summer I was pregnant, and I now wonder if it was from a tick, but there is no way to know. I always had weird medical things happen as a kid though, so we have wondered if maybe it’s been dormant for many years. Your immune system has an amazing ability to keep things in check (even if you’ve been given a taste of that forbidden formula).

And your immune system is amazingly susceptible to stress, which arrived on my, well, ashy, crumbling doorstep when I was eight months pregnant.

I had Kellen and went into my six week checkup, where they did a pap, which came back abnormal (yeah, my fall pretty much sucked), and gave me a flu shot.

Four days later (and four days after returning to teaching) my face stopped working. I was home nursing Kellen (or trying) and tried to smile at him, at which point I realized I couldn’t move the right side of my mouth. Earlier in the day I had noticed that it felt like I was talking with braces on, like my lips were having to make way for an obstruction on my teeth, despite not having had braces in well over a decade. That morning I drank orange juice that tasted dull as well as had a Starbucks sandwich that made me question their place as a food establishment.

It turned out that my taste buds were not working on the right side. After I finished nursing Kellen I decided to go back to school to finish teaching. I was really scared but didn’t want to deal with it at the moment (because the only two options I could think of were a stroke and brain cancer). As I was driving down the road I lost my ability to blink my right eye. I turned around, and we went to the hospital.

The good news is that it wasn’t a stroke or brain cancer, though the way the doctor told me it was *just* Bell’s Palsy made it seem so benign as though I hadn’t just lost full functionality of one side of my face and now looked like this:

“Are you sure nothing else is wrong?” I asked the ER doc. I just couldn’t fathom that the nerves in my face would stop firing just because they felt like it. The doctor assured me that nearly all cases of Bell’s Palsy are spontaneous and have no other underlying cause than a small virus. (Had I lived in the Northeast, it is likely I would have been tested for Lyme then as Bell’s Palsy is common in Lyme and the first symptom of it moving into your brain, when things get really dicey.) They gave me anti-virals and steroids. (It was because of this I stopped breastfeeding.)

Dan and I decided to head down to San Diego. I had taken a leave of absence from work because I was overwhelmed. The stress of the fire and the rebuild was compounded by this new development, and I knew that I was spread too thin. It has always been hard for me to walk away, and while it was sad, I am proud of my ability to say, “I can’t.” We left the day after Thanksgiving, a trip that was nearly thwarted by an incredible and overwhelming sense of anxiety. I couldn’t sit down at all because I felt so antsy and uncomfortable. It was one of the only times I’ve ever had the urge to scrub a floor. It’s unknown if this was a natural progression of the Lyme or because I had been prescribed Zoloft to deal with the PTSD. It’s been posited that SSRIs may actually exacerbate Lyme symptoms in some people (many also find them helpful).

That was also the day that the dizziness set in, and it’s kept a firm hold on me for over a year. I spent the entire trip in San Diego sleeping. When I wasn’t, I was scared. I truly thought I was going to die but was afraid of going to the ER because I didn’t want them to think I was crazy. I wish I had gone while in California.

I made a deal with myself that I would make an appointment with my neurologist in January if I was still sick after Christmas. I scheduled an appointment. That week I woke up and felt fine, nearly canceling the appointment to see the doctor. At that point being dizzy was the biggest issue; it was debilitating and frightening. The symptoms came back strongly the day before I went to see the doctor It would be the first of many cycles but also the clue that led another doctor to Lyme disease nine months later.

At first I was diagnosed with Benign Positional Vertigo, which is caused by ear crystals shaking loose. The test for this is tilting your head back to see if it gets worse. It did. But the exercises didn’t work. So an MRI was ordered. While I passed the muscle tests with the neurologist and chiropractor I was seeing, I drop things a lot (more than normal), so I worried a lot about MS, especially because I was told that mid to late 20s was typical for age of onset. With every click on the MRI machine I just hoped that I didn’t have MS and if I did that the test showed it. I didn’t want to be sick, but I also wanted an answer to why I felt so badly.

Click here for Part II.

Healing

So, I’ve just realized that I’ve been in an emotional, physical, and verbally abusive relationship for five years. I am in the process of healing.

You would think that healing comes easily. It doesn’t. Every day seems like a struggle. Sometimes I hate myself for the person that I have become: fragile, weak, heartbroken, depressed. I thought that I loved this man. He told me that he loved me, and I told him that I loved him, but everything changed so fast. The gentle, sweet talking man that I thought I knew turned out to be an angry, jealous, bitter abuser. I can’t help but think about the chances that I had to walk away.

I met him on a Christian blog. I discovered my spiritual side wanted to learn more about the Christian faith. He sent me a friend request, and I accepted it. I invited this man into my life because I thought that he was a fellow Christian with good intentions. Being 19 at the time, with many problems in my personal life, I realize that I was also naive. I did not think about the repercussions of pouring out my heart to a complete stranger.

Not long after we had met, he started to tell me that he loved me. Soon after, I gave him my phone number. I thought that I could trust him, and I gave him my address. Over time, he would send me gifts: candy, clothes, money, and other things. He told me that I was the only one, different from the other girls that he met. He made me feel loved, in his eyes I was perfect.

The more we got to know each other, the more serious we got. Since the relationship was long distance, we kept in touch with each as much as possible, maybe a little bit too much. We would literally stay on the phone with each other for hours. What I thought was a sign of care was nothing more than his way of control. If I did not return his phone calls, he would text me constantly. When ever we got into an argument, and I would ignore him, he would threaten to commit suicide.

Months into the relationship, I noticed that things were beginning to take a turn for the worse, but since I was going through a tough time in my life, and I needed someone to turn to, I chose to ignore the signs. A began to notice his jealousy, especially after I would tell him about my male friends. He punished for my honesty when I was only trying to establish trust. He started degrading me and calling me names. I thought that this was normal and forgave him after. He then started to send me pictures of himself, some sexual in nature. I was uncomfortable with this, but I did not tell him. I thought that sex would bring us closer since we were so far apart.

After seven months of communicating by phone, email, and text, I took a bus to meet him in Mississippi. I was scared, but felt that this would show how much I really wanted this relationship to turn out. When I saw him for the first time, I felt numb. I didn’t feel attracted to him, but did my best to make him feel loved. When I got to his house, I was nervous. His mom didn’t know I was there and I didn’t know anyone. We ended up having sex that first night. I didn’t enjoy it, but I felt like this would make everything official.

After two weeks, I returned home. I moved out of my parents house and stayed with my grandparents. We continued to stay in touch and we told each other how we wish that we could be together. One day, after an argument with his mother, he decided that he wanted to leave home. He wanted to come live with me even after I told him that I was not ready. He left anyway. I was scared at the fact that this man would come to my home even after I said no. I was worried about what my family would think.

When he got to South Carolina, I met him at the hotel to help him settle. I began to feel responsible for his homelessness and I stayed at the hotel with him. When he ran out of money, he asked if he could stay with me. As worried as I was, I let him.

Since that day, my life has never been the same. I live with a predator. He’s a completely different man from the man that I thought I knew. He accuses me of sleeping around. He’s looked through my phones, and even broken them. He destroys things that have value to me.

I’ve been sexually abused by this man. He touches me inappropriately without my permission. I’ve been physically abused: punched, kicked, slapped, bruised. I’ve called the police on him three times. He’s been arrested once.

I became pregnant by this man. The abuse did not stop after I got pregnant. After my baby was born, he started to isolate himself from me even more.

I wanted to share this story because I wanted to let any one who has been abused know that you can heal. I had to get on my knees and pray for healing. I accepted Jesus Christ into my life so that I could be saved. I know that Jesus loves me, and you, no matter what anyone else says. When we know that we are loved, we begin to love ourselves: then we can heal.

Living With PTSD

I’m still seeing the therapist for Post Traumatic Stress Disorder, but I am also seeing a Crystal therapist as well, every other week. (I can’t even begin to explain this – but if you’re curious – Google Crystal Sessions, Alexander Method, Natural Shock Healing or dark magic…er, scratch that…that won’t help.)

Unfortunately, there are still days when I can tell it isn’t gone.  I’m not sure what I thought, but I think it was something like ”This Shit Will Be Over By Summer, RIGHT?”

Sometimes something as simple as a favorite TV show – (Brothers & Sisters to be exact) can send me into a full-blown anxiety attack – and push the reality of a tragedy back into my life as fast as I had swept it under the rug. And don’t underestimate me, I am pretty damn good as pushing dirt under rugs. Just ask my husband…

::Can I just take a slick city minute to say to the writers of Brothers & Sisters…whoa. I think you got your point across. As I stood on my back patio gasping for air and bawling my eyes out, I realized you people need to find hobbies. Something other than thinking of ways to make innocent, crazy, stressed-out TV addicts freak the hell out. ::steps off my soapbox::

Back to my point.

I am happy to report that there are days that go by where I feel like life is back to normal. There are moments in time where I feel myself forgetting about the fear.

Here recently, I’ve had several people ask what exactly my “bad days” look like? So, I thought I’d take a moment and explain what it feels like to always think the bottom is about to fall out.

Because really, that’s what it boils down to for me. I have days where I can pretend like bad things happen to other people. But, those days creep in, where I can’t help but think that too much time has passed between “bad things happening to me” and I am due.

There really is only one moment of every.single.day (approximatey 7:50 a.m. Nice way to start the day, eh?) that really has be stumped.

I pull into the school parking lot and I feel my heart begin to beat just a tad bit faster…and then my mind starts to race…and then my breaths become faster…and I pretend to be cool as a cucumber (whatever that means) and say goodbye to my son, I kiss him, I hug him and I watch him as he walks through the front doors. Slowly, I pull out of the drop off lane and I pull into a parking spot.

There – every single day, I have a brief panic attack. Without fail.

I am used to it now. Really, I am.

The tears only last about a minute or two. I regroup, adjust my eyeliner and go about my business. Ready to take on the world.  It’s not as bad as it used to be. But, the thoughts are still there. I still think,

Was that the last time I will ever kiss his warm cheek? “

“Was that the last time I ever see him alive?”

“Will someone come into the school today with a gun? Is this the day?”

And then I tell myself that I can’t let this fear control me. I can’t let Satan in my life, in my thoughts & in my heart. I push my fears aside every morning and I stop and thank God that I just watched my happy, healthy son, walk into school on two legs, with some pep in his step. I thank my lucky stars. And I continue my commute.

And even though this still happens every morning, the effect it has on me is shortening. And I know that this isn’t going to define me, control me or even cross my mind in the future. I may never be the same as I was prior to July 19, 2009, and that’s okay. I would dare to say that I am not supposed to be.

But, I can tell you that PTSD may linger with me the rest of my life, but it will not present itself every day. I know that. And that gives me hope.

My Story

I think I was raped last night.

I drank very much at a bar and remember bits and pieces of being in someone’s hotel room.

My mom picked me up when I woke up, but she was not supportive and called me names.

I don’t really know what to do.

I am out of the country, so I don’t know if I am able to see a doctor or how it even works here.

I don’t know anything about the man besides his age and first name (he is from another country too).

I feel very lost and just want my story to be heard, I guess. Thank you.

One Year Ago

One year ago, September 8, you kissed me. You think it was so innocent. Just a momentary lapse of judgement. I wish I could tell you this. You have no idea the damage you caused.

I was content in my marriage, content with my life. I love my husband (I guess), but we never had any sexual chemistry between us and we haven’t had sex in years. He said it was because I was frigid, and I thought I was because I never felt any attraction to him. Over the years he has lost all desire for me, but still, he is a good man and we have built a comfortable life. He’s a reclusive intellectual and a bit depressed, like I am, so we spend a lot of time in silence.  he silence, like the sexless marriage, has become unbearable.

Then YOU came along… you are fun, energetic, full of life and we talk and joke constantly when we have lunch or a drink. You remind me of everything I gave up when I got married, including spontaneity, humor, fun, and passion. I am not frigid; that one kiss proved it. The arousal and feeling of pure joy in that one kiss are indescribable and it still haunts me every day. I was not expecting this, not looking for this, yet it happened.

When I see you with your partner I get so jealous. Her laughter is a knife in my soul. I don’t laugh with my husband, we don’t have fun. I laugh with you though, and whenever we part, I go into a deep depression for days afterwards at the thought of not seeing you again for a while.

I feel you would never leave your partner for me – it’s far too much a miracle to expect from Life. And I’ve never, ever wanted to cheat on or leave my husband. So what am I to do? I feel like I’m dying a slow death from a neglect that I never realized was happening until you kissed me.

I have no valid reason for leaving my husband, he’s a good person and he tries. I feel like I’m the one who’s screwed everything up, that he should have married someone who could love and appreciate him better and was attracted to him. He says he loves me though and if I leave ever him he’ll be crushed. It’s cowardly of me, but I wish instead he would find someone better than me and leave me for her so I could try again in life. I would want to try with you, but as I said, it’s far too big a miracle to expect and probably more than I deserve.

My therapist hasn’t told me to stop seeing you, and for that I am grateful. He understands you are the only bright spot in my life, even though it depresses me so whenever we part. He acknowledges my feelings and agrees this is all so tragic, but so far we have no answers. This is all such a mess.

All because of one …little …kiss.