by Band Back Together | Nov 16, 2010 | Abuse, Adult Survivors of Childhood Sexual Abuse, Child Abuse, Child Sexual Abuse, Coping With Domestic Abuse, Domestic Abuse |
It started with words. Yelling, angry words he slung at her for being lazy, or slow, or a bad cook. She’d just apologize and go on with life. Then he yelled at me, and she wouldn’t stand for it; she’d step in, and up, like she never did for herself. That’s when he started hitting her. I didn’t even know it was odd until I was older, and observed the parents of friends who never hit. By that time, it was ingrained; my stepfather hit, and that was just… life. I don’t know if my mother knew he started hitting me. I played sports, had bruises, a few fractures. Even my pediatrician never suspected abuse.
If it had stopped at hitting, I probably wouldn’t be so messed up. But when I was 8, everything changed. I was beginning to develop; their marriage was cooling off – they rarely even spoke. And he started looking at me differently. High on pain pills for some imaginary back spasm he used to get sympathy from his family – and drugs from his doctor – he came to my room one night, held a hand over my mouth, and touched me. I was lucky; he was flying so high that when he went to take his clothes off, I ran for the bathroom and locked myself in.
He couldn’t exactly break the door down without waking my mother, so he stood by the door and told me all the terrible things he’d do to me, to my mother, if I ever breathed a word. I believe he meant it, even to this day. So I never said anything, and by grace of some higher power, he never tried again. From that day on, I slept with a knife under my mattress, and told my mother I wanted to make my own bed. I learned to climb out my window in 30 seconds, found a neighbor who would take me in at any hour, for any reason, and kept a bag of clothes and a pair of old shoes stashed in a hidey-hole by the side of the house.
I learned what no child should have to. I lived for two years past that awful night in the same house with him, terrified that I would have to use my escape route and leave my mother behind to face him alone. My only solace was that neighbor, whose daughters loved me like a sister, and who slept next to a 12 gauge shotgun. I’m thankful every day that I never had to ask him to go rescue my mother from a maniac.
That’s the beginning of my story, but it isn’t the end. I’ve posted other pieces of my life elsewhere on this site, and on others… in comments, in my own posts. But what I’ve always failed to include, even when I’ve posted my “epilogue” is the Darkness. And yes, it deserves that capital D. It’s frighteningly close to the surface at times. That beginning shaped my life; the good, I’m a survivor and always will be, the bad, I am quick to draw blood, to use violence instead of words or distance.
I have three children. I love them with everything that I am, and more if it’s possible. I am so, so careful to keep them away from that part of me, but I’m still scared. The part of me that’s cautious of people, of situations, quick to react and deadly when I do, has literally kept me alive. But that same part of me could destroy the people I love. I’ve often heard new mothers being told, “If you can’t handle it, if it just gets too overwhelming, put the baby in a safe place and walk away to cool down.” I’ve had to do this more times than I want to admit, and not just during the infant stage.
My older two are only a year apart — god the stress of that! — and at nearly 5 and nearly 4, they are a handful. Any children of those ages would be, of course. But my oldest is intelligent; so intelligent that at times I’m frightened by how quickly she picks things up. I wonder if she’ll out-pace her ability to comprehend what she’s taking in. My middle child is different. Exactly how we don’t yet know, but I’ve seen these neon signs before. I know what they mean. Autism Spectrum Disorder. High-functioning, certainly, and thank god for that, but still… a challenge. I double-stack baby gates in their doorway to keep them in their room when I feel the Darkness crawling to the surface and I just can’t handle any more. I know this isn’t a terrible thing. They are fed, hydrated, clean, overflowing with toys and even a TV with a DVD player because they, like their Nana, love Disney movies. They are never ignored, but sometimes… sometimes Mommy needs a break from the go-go-go of two toddlers-turned-preschoolers. And I feel horrible. But I would feel worse if I let my Darkness get the better of me, I know that. Better to be safe in their room, cared for and dealt with at a distance than to become easy targets for my frustration. But still I feel like the worst mother in the world.
And now there’s the baby. Not so little anymore — 9 months now, goodness — but still so dependent on Mommy. I wanted her so, so very badly, and I don’t regret having her, not even the timing of it, so close to the others. I just get overwhelmed. So she goes in her nice, safe crib with a brightly-colored baby book to distract her while Mommy has a breather. It’s certainly not the worst thing in the world, and yet? Bad Mommy. I know it isn’t true, but that’s how I feel, because my own little babies should never make me so angry they bring out the Darkness. But after the thirty-millionth time of hearing, “Mommy, I’m hungry.” and “I wanna watch a movie!” and “Sissy’s hitting meeeeee…” and “Wahhhh! Wahhh! WAHHHHHH!” in the last hour, I just want to put my hand through a wall. I never, ever want them to see me lose it that way. It would scare them, scar them perhaps, and I love them too much to do that.
I rarely take people at their word. I always look for hidden meanings, reasons to get up in arms. Why? Because if I spot the attack before it happens, I have an edge. It’s like the abused wife who looks and listens and knows the instant before her husband is going to throw that first punch that she better duck. It’s a life-saving reflex that has no place in common conversation. But it’s there. I can’t make it go away. Ironically, I feel safer around men. Women scheme and connive; they are masters at smiling to your face and stabbing you in the back, and that scares me. If I can see the attack coming, I can prepare. I don’t like being blindsided. I can read men, I’m used to doing so, so they’re safer. But even with men, I’m careful.
I still sleep with a knife beside the bed. I take my cell phone with me to bed, too, just in case. I listen for noises in the night. I hate sleeping when it’s bright out because the sunlight makes it hard to fall asleep or stay that way, but I prefer it because the Monsters generally prefer the dark for their sport. Sleeping, I’m easy prey, but awake, I’m much harder to fell. I have nightmares about people invading my home, waking nightmares sometimes, when I try to fall asleep at night. I am still afraid to let my children sleep in their own room for fear of not being able to protect them should I need to. It’s that scared little 8-year-old coming out, waiting for “Daddy” to creep into her room. Every sound in the night that I don’t immediately recognize is a shiver of terror down my spine.
I’ve spoken to counselors, taken meds, but it never helps. Precisely because people can’t be trusted, and the drugs make me not me anymore. I can’t even recognize the person in the mirror and that might just scare me worse than the nightmares. This is a Darkness bred into me from childhood, reinforced through a lifetime of hardness, that cannot simply be erased. I must learn to live with it, to cope. And I hope (god I hope) that acknowledging it here helps.
by Band Back Together | Nov 15, 2010 | Anger, Depression, Guilt, Jealousy, Poverty, Economic Struggles and Hardship, Stress |
My friends would say that I have a great sense of humor, and I like to think that I do. I’m one of those “ease the tension with a funny line” kind of people. But lately I’m just so jealous and angry and ugly inside – I feel like even my blood and organs have rotted to black.
I am deeply blessed to have a wonderful husband and healthy child. After long bouts of unemployment, my husband and I both have jobs. That should be all I ever want. But dammit if life isn’t harder than I can take sometimes! We have piles of debt, and I hold my breath and pray when I check our bank account balance online. Last week, we were $500 in the hole until payday on Friday. We are under-employed and under-paid, and every purchase, even necessities, requires deliberation.
Yet we’re surrounded by friends who can afford things like vacations, Christmas gifts, babysitters and second children – all things we would love to have, but we can’t. Our friends have successful careers and gym memberships and freaking disposable income – things that we thought we would have too, being smart, college-educated, hard working people.
So I’m jealous. Deep, ugly-cry, Wicked Witch of the West jealous. I find out about one person’s TV appearance or another’s forthcoming baby, and my first reaction is to wince and roll my eyes. I hate myself so much for that. Nobody wants to be around that person, not even me.
I hate that when I count my blessings, I feel like I got shafted. I think I’m pissing off God, setting myself up for something awful to happen because I’m ungrateful, even though logically I know better. I’m just so tired of economic struggles. People say that money doesn’t solve all your problems, but it damn sure solves the problem of not having any f-ing money!
I feel hopeless and furious and also guilty as hell. It’s an awful cycle that I can’t figure out how to end. Is praying for a pot of gold at the end of the rainbow worse than any other idea?
by Band Back Together | Nov 13, 2010 | Encephalocele, Fear, Neural Tube Defects, Stress, Trauma |
Hear my prayer, hear my prayer, hear my prayer, please God, hear my prayer.
I instinctively checked the monitors as I approached my daughter who was sprawled out, getting a sunbath underneath the warmer. Her stats were picture perfect, I noticed, breathing a little more easily, and I made my way slowly to her bedside where she was sleeping peacefully.
I slogged my soggy bottom from the wheelchair onto the rocker that had been shoved into her tiny NICU room; barely even a room, more like a broom closet. She was sandwiched in between two misbehaving (“misbehaving” means that their alarms were constantly blaring) babies who I could hear misbehaving.
Most of the NICU, I noted as I was wheeled past, was full of Feeders and Growers. That’s NICU slang for babies that were, for whatever reason, finishing their gestation outside of the womb. It”s always evoked a pleasant picture of a garden of freshly hatched babies. A Baby Garden.
Of the other babies that I could see cooking away merrily in their incubators, Amelia was the biggest, fattest, and likely the only full- term baby there.
According to her room placement, though, she was the most ill.
Hear my prayer, hear my prayer, hear my prayer, please God, hear my prayer.
My ass firmly planted now onto the chair (I’d had a traumatic vaginal birth mere hours before), I held Amelia’s lone sock as a talisman, hoping it would ward off the Bad News. I was preparing to nurse my daughter again, just waiting for our nurse to come and help me sort through the tangle of wires my daughter was attached to.
It was hard to believe only thirty or so minutes had passed since we’d heard “there’s something sinister on your daughter’s CT scan.”
Our–Amelia’s–nurse walked in and introduced herself to The Daver and I. I was openly weeping, holding onto Mimi’s sock and my iPhone – where the Pranksters live!- as a life preserver. The Daver was pale(r) and stalwart.
I handed off the box of kleenex that had been pressed onto my lap as we left Mother/Baby and my daughter was brought back to me, hooked up to so many wires that she looked like an electrical outlet. The nurse stood there, kindly talking to us, but not revealing anything.
We still had no idea what was wrong with our daughter. A diagnosis would take weeks. Her life, as far as we knew, hung in the balance.
I begged the nurse to have the house neonatologist visit my daughter as the pediatric neurosurgeon was busily operating on someone’s head somewhere other than the NICU. It’s probably good I didn’t know where he was or I’d have stalked him down and dragged him to my daughter for a diagnosis.
The neonatologist – the one I’d met a lifetime ago in the delivery room, the guy who was always drinking a bottle of something – he came over to Amelia’s “room” and he told us that there was a “bright spot” on Amelia’s CT Scan. He didn’t mean diamonds.
I had no fucking clue what that meant and he didn’t follow it up with much, although I did see his lips move, I couldn’t understand his words.
Guess that’s panic for you.
After the doctor left, the nurse came back in to ask if we’d wanted to see the chaplain; rather to have Amelia meet the chaplain. A thousand times yes.
She was amazing. Just. Incredible. For the next year, it was her words, her warmth and compassion that I kept coming back to. She blessed my daughter. My daughter was blessed.
And she is so, so blessed.
We sat there in the NICU; just the three of us. I couldn’t tell you how long we just sat. Time in the ICU is timeless. 4 AM and 4PM are the same.
Soon enough, I had to go upstairs to change my undergarments and ready myself to see my boys. My sister-in-law was bringing my sons to visit, and I had to put on my Poker Face. Given the raw, chapped and bleeding state of my cheeks, was going to be damn near impossible.
Back in my room, I saw that I’d gotten some flowers and a basket from two of my Pranksters and it made me cry. Then again, I think the package of Saltines that had been ruthlessly thrown on the floor the night before might have made me cry. I wasn’t in a Good Place.
Alex and Ben came in a bit after I’d gotten cleaned up. I held Alex very, very close as Ben showed me some pictures he’d colored of Amelia. Ben knew his sister was sick but Alex (only 22 months old) had no idea what a “sister” was, let alone what being “sick” meant. I held them and faked normal until I got the call from the NICU. Time to nurse the baby.
Talk about being torn.
I cried as I said goodbye to my youngest son–my eldest just wanted to get home and I couldn’t find fault with that–and he cried and yowled “Mooommmmyyy” as he was led away to the elevators that would dump him back into the outside world.
By myself for the first time, I tearfully found my way back to the Secret Place, The Land of Tears. Never have I felt so sick to my stomach in my life. People stared sympathetically as I wept in the elevator, leaning against the walls for support.
I begged God to let her live, even if she was retarded and her IQ was 43 and had to live at home for the rest of her life, just please let my baby girl live. I didn’t care what was wrong with her so long as she made it out alive. I begged God to take me instead. I’d had 28 wonderful years on the planet already, and she was less than 24 hours old. Certainly, I’d give my life to save her in a moment.
Hear my prayer, hear my prayer, hear my prayer. Please God, hear my prayer.
After scrubbing the top 50 layers of skin from my arm and signing a reasonable facsimile of my name, I wobbled to her bedside. There she was, my girl. Perfect stats, thrashing about her isolette, pissed as hell and looking for something to eat.
In the brief time I’d been gone we’d gotten a new nurse.
When she came in to assess my daughter and saw me crying as I nursed my girl, for the first time in a day, someone asked me what was wrong. I explained that I didn’t know if my daughter would live or die. I told her that no one had told us what could be wrong with her, what that bump COULD be, why she was in the NICU, nothing.
She looked pretty aghast that we’d been told nothing, and for the first time, someone tried to reassure us. I remember leaving the NICU several hours later slightly less burdened.
That night, we ordered a pizza and tried to relax in my somber room. We tried to let go of some of The Fear. I didn’t feel much like celebrating anything, so no balloons, no stuffed animals, no signs that I had just given birth decorated my room. I could have been on any floor, in any room in the hospital.
The nurse brought me my Ambien and the NICU called to tell me that they would bring my daughter up to nurse every 2 hours (the NICU runs like clockwork. It’s no wonder that new parents struggle to care for their NICU graduate when they get home). I turned on the sound machine to blast white noise over The Daver’s snores, and waited, trying to fall asleep.
Unsurprisingly to no one, I couldn’t get anywhere close to sleep that night. This made the tally of nights without sleep 3.
I was about to lose it.
Somewhere around 4 AM, after someone had barged into my room to empty the wastebasket, waking me from the lightest of light sleep, I panicked. I’d sent Dave down to the NICU to sit with our daughter in the vain hope that having him at her side would set my mind free.
I was alone. The panic that had been a constant dull buzzing had morphed into something much more sinister and I knew what was about to happen.
Frantically, I paged the nurses station because I knew I needed help. I explained as carefully as I could that I was about to have a panic attack and that I needed my nurse NOW. My nurse came in, I don’t remember what she did, but she didn’t want to call my doctors because they would be rounding in a couple of hours and I could ask for something for my anxiety then.
Fucking bitch.
She told me to “relax” and then left.
I tried to “relax” which was as useful as punching myself in the face with a hammer. It didn’t work. I put a call back into the nurses station, begging; pleading with them to call my doctor. I begged for help.
My last rational thought was to quickly inventory anything in the room with any sort of calming properties. The best I could come up with was a bottle of Scope.
I didn’t end up drinking it, but I did call the NICU and beg Dave to come back up. A nurse passing by my room took pity on me and called my doctor, who prescribed me an Ativan. A swarm of people all happened to come into my room at the same time: a partner in my OB practice who looked terrified by me but discharged me anyway, a nurse with that beautiful pill, a tech to get my vitals, and my husband.
It sounds, in retelling this, that they were all there to help, but it wasn’t really like that. Dave and the nurse were trying to calm me down, but the tech, the doctor and whomever was washing the floor were doing their jobs. With spectacularly bad timing.
Ativan on board now, I was trying to gulp some calming breaths and stave off the panic. They’d turned off the lights, and covered my still-swollen body with fresh sheets, cleaned off the bedside table and turned on the white noise machine.
Finally, I began to relax and beat the panic away, if only slightly. Dave held my hand and told me over and over and over again that my daughter was just fine, she was perfect, she was wonderful, she’d done great overnight, she was beautiful, she was going to be just fine. It was soothing to hear, but what would have been MORE soothing? Having her bassinet next to my bed where it belonged instead of three floors below.
Then (dun, dun, DUN), the absolute worst person to show up did.
Lactation services.
Lactation Services showed up, because they say they’ll come by every day you’re in the hospital with a new baby, and they do. It’s awesome for people who need help because breastfeeding is nowhere NEAR as easy as it looks on those weird Lamaze videos.
(also: why are people in the Lamaze videos always naked?)
But I didn’t need help. And when she showed up and saw me shaking in bed, being held by my husband while the nurse clucked around me like a mother hen, lights off, white noise blaring, she should have excused herself. This is not a debate about breast and bottle feeding, this is about decency. But no, she didn’t get the hint.
No.
She introduced herself perkily and asked me how breastfeeding was going, and through clenched teeth, I answered that it was fine. Kinder than the situation warranted.
I expected this to be enough for her, but no, she followed that up with, “Do you have any concerns about breastfeeding?” Wrong question, dipshit. Time, place, all that.
“You know what?” I snarled, “I’m MUCH MORE concerned that my baby is going to die than if I have proper latch, okay?”
Again, she could have gracefully bid be farewell. But no. She kept on keeping on.
“Well, what about your concerns with BREASTFEEDING?” She asked, just not getting it.
I responded with, “Look, if she’s dead, I’m not going to give a FUCK about colostrum, okay? Please!”
I began to sob heavily again. It was the very real truth that my daughter could die. We all knew it. Nursing her wasn’t going to help an encephalocele.
Dave told her to get the fuck out of our room.
Finally, with a DO NOT DISTURB sign on my door, I slept for a few hours.
I awoke when The Daver bounded in and announced, “the neurosurgeon ordered an MRI! And he’s really nice! And not concerned! He thinks it’s an encephalocele! It’s a piece of brain or something that’s herniated out! We can go home after the MRI! And follow up with the results next week! Oh, I wish you’d met him. He was so, so nice.”
And just like that, we went from critical to discharged in less than 36 hours.
