Being diagnosed with Dissociative Identity Disorder (DID) is a real struggle.
First, I’ve had to work at coming to grips with the diagnosis itself. Then there is my struggle with the alters – I have to find out who they are. I know they’re there, but I don’t know much about them. I have learned the names and ages of some, but not all of them. I am slowly learning their likes and dislikes and why they are there. They all hold memories of my abuse. Memories that I can’t recall.
There is a power struggle. I am the host, and I need to be in control, but some of them think that I still need to be protected so they come out to “save” me. They are parts of me stuck in the past. They don’t know what year it is and often times don’t even know what month or day it is either. I have to talk to them and remind them that I am the host and that I am married and my husband and I have seven kids. It really complicates things when one of them has a crush on my brother in-law.
I don’t tell many people about my DID because it’s a stigma.
Society has a warped idea of DID. Most people still call it Multiple Personality Disorder because they don’t realize that the name (and diagnostic criteria) has been changed. Hollywood often portrays it as a situation in which there is often one very violent alter; that’s not the case for me.
If you want to see what living with Dissociative Identity Disorder is like for me, I’d recommend watching the movie Sybil with Sally Fields. It’s a very accurate description of my experiences with DID.
I watched my father have several affairs when I was growing up. By “watched,” I mean he took me to his girlfriend’s house(s), where I sat in the front room reading a book while they disappeared into the back room for an extended period of time.
The conversation in the car when we left was always the same: “Don’t tell your mom we were at XXX’s house – she wouldn’t understand.”
“Okay, Daddy.” The day I said my first “okay” was the day I became keeper of my father’s secrets.
There were times I heard my parents fighting. My mom, yelling out accusations that he had been spending time with this woman or that woman, while my father denied it.
I stayed quiet.
I didn’t fully understand at six or even ten-years old what exactly was going on, or why my mom didn’t want us to be friends with all those nice women. But in my teen years, it started to make more sense.
When I was seventeen, I cheated on my boyfriend. I pushed down thoughts that what I was doing was the same thing my father had done years before.
It became easier a few months later, when I cheated with a second person. And even easier when I went back to the first guy I had cheated with and did it again. I kept it a secret.
My boyfriend started talking about marriage after I turned 18 – we went ring shopping. That night, I left his house and spent the night with someone else, where I also talked about marriage (we had been seeing each other for six months, and he had no idea about my boyfriend-turned-fiancée).
I poured out my heart in my journal.
Was I just like my dad? Would I ever be able to have a relationship that I wouldn’t screw up? I had to make a choice…right?
Instead of a choice, I added a fourth guy to the mix.
In our ten years, I have been faithful. (The fact that my husband is a very jealous guy helps – he would figure out something was going on quickly.) I don’t often think of my cheating past or worry that I will turn out like my father anymore, but today I read a book that brought it all crashing back – a book about a cheating mom and her daughter who grew up to cheat, just like Mom.
I felt the tightening in my chest. And unbidden thoughts of a guy who works at Starbucks that flirted with me two weeks ago come to mind. I have avoided that Starbucks like the plague since he gave me a free scone and told me I have beautiful eyes.
I don’t want to cheat on my husband.
But I realized today, I am still terrified that, one day, I will be unfaithful.
Sometimes we all need a little bit of advice now and then. Do you have a burning question you’d like to ask us?
Do it! Ask the band.
The Band, I’m in a terrible funk right now.
I’m having some kind of weird mid-life crisis, though I don’t know if being just shy of thirty counts as “mid.” Either way, my main problem is that I just want to be left the hell alone. Of course, wanting to be left alone and actually being left alone are two completely different things, and the sad truth is that I will never be left alone.
It’s not due to the bipolar depression, although I know damn well it’s a contributing factor on my worse days; it’s simply because I’m tired. I’m tired of going through the motions of my daily life, getting up early to tend to all manner of things. I’m tired of everyone in my household demanding something from me at all times, whether it’s my daughters, who want/need all of my attention since they are both so young, or my husband wanting to constantly have sex, or even the damn cat for bitching about not having food even though his food bowl is completely full. (The cat is an idiot.)
I have no friends – all of them live in a different state because we moved away 2 years ago in order for my husband to pursue a new job opportunity. We have family not too far from us, but we barely see them as it is, so they wouldn’t dare step in and watch the kids in order for me to get the hell away for a little while.
A few days ago, one of my friends told me to come visit her so we could go on a bender, and to be honest, I would fucking LOVE to! It would be an opportunity to get away and have some fun for once, since all of my hobbies have gone to shit since becoming a stay-at home-mum five years ago. However, even if we still lived close by, that bender would never happen because my husband, while a great guy, is insecure as fuck, and at times errs on the possessive side of things. He would be paranoid about me cheating on him even though I’ve been a million percent faithful.
Pretty much all of my time I try to reach some semblance of reprieve by burying myself in my laptop: reading the news, blogs, messaging friends or (my secret shame) reading and writing fan fiction. (Now The Band knows my horrible secret!) Sometimes I listen to music. Music is a major way for me to unwind, and the advent of Spotify has been very useful since I can listen to stuff that I’m too cheap to purchase via iTunes. My husband thinks that I have some kind of bizarre internet addiction, but that’s so far from the truth.
I know this is a form of escapism.
I’m grumpy, I’m exhausted, and I’m just flat-out sick of everything.
This is my dilemma. I just want my family to back the shit off, but at the same time, it makes me feel like a terrible person. I don’t want to play with the kids. I don’t want to engage in “sexy time.” I don’t want to do the goddamn laundry or feed the goddamn cat.
I see the elderly woman approaching us from across the mall. She is looking past me and at my children with that smile. My kids are at the perfect age to attract these smiles. They are just at the dawn of human interaction. Their speech is still garbled; their language and actions both aped from adults. They, in their search for the right phrase or movement, are often accidentally adorable.
Children at this age still act as if nobody is watching, and adults love them for it. We are drawn to this innocence, I think, for the same reason we are interested in the behaviors of chimps or sleepwalkers. We want to see what it is that people do when they don’t realize they have an audience. We want to see what we would do if we didn’t think so much.
She walks carefully and slowly over to accept the imaginary ice cream cone my son offers up and wins my heart by pretending to eat it. Taking the interaction a step further, she asks him which flavor it was. He tells her it’s chock-lick and her smile deepens with amusement. I am scanning her face, watching her the same way I watch the face of every stranger who approaches my children. I am waiting for the clues that all humans throw off.
I’m waiting to see why she’s doing this.
And so it is that I observe her lined face slip gradually from delight to despair. A line grows deeper across her forehead and her milky eyes fill with tears. Her painted smile is the last to go, proof in my mind that she didn’t even see the sadness coming until it was already written on the rest of her face. I realize that I am moving closer to her as her expression shifts, so that when the tears start to roll down her cheeks I am all but cradling her. She leans against me, frail yet adult-sized. I am not in the habit, anymore, of being needed by people who are not my children. It takes me a minute. I don’t know why she is crying. I only know what she needs. And I have it to give. So I hold her.
She wipes the tears away and catches her breath. “My husband of 49 years passed away 7 months ago. Seeing your children makes it hurt more. Even though they are beautiful. The holidays make it hurt more. Even though I love them.” I hold her tightly, softly offering my condolences. My son asks me why the old woman is crying, and I stumble for a second. I don’t lie to my children, but I don’t throw around words like “death” either. I tell him simply that this woman will not be able to celebrate Christmas with someone she loves.
As I say the words, my voice shakes and my own eyes fill unexpectedly. I close my eyes against the tears, while granting myself one full minute to be overwhelmed with this unforeseen grief. The woman catches me with my emotions and apologizes for making me sad. I shake my head: clearing it, emptying it. “The holidays can be hard,” is what I say as I help her right herself.
They told me back then that I needed to grieve my brother as though he were dead, but to expect the process to take longer, since he is not, in fact, dead. And although I am the type of person to tear at her flesh in hopes of getting the pain on the outside, in order to move past it, I am shocked to find that some days it is as if time has not moved at all for me.
The woman shuffles off in one direction as we continue in another. We meet up later, at the fountain, as I am explaining to my children the concept of wishing on thrown pennies. I have a wallet full of potential wishes, and so I do not need to accept those that the woman offers us. But I do accept because I sense that it will give her something to be able to give to us. I bend down, tuck my children in close. The woman steps in, and we all throw our pennies at the count of three.
You can’t wish for people to come back. It doesn’t work that way. Pennies can’t move mountains. A wish is only a goal, a direction in which to focus your thoughts. In my world, you can only reasonably wish for the things that you have some control over. So I toss my penny in and I hope, for all of us, that the future brings fewer and fewer moments when we are brought to our knees by our pain. We will carry it with us forever, and we should, because it makes us who we are and it honors where we’re from. But more and more we will be able to live with it.
The holidays can be hard. I have always known this. I push myself off my knees, smile at the old woman and grasp her hand for a minute before exchanging it for my daughter’s. We walk out into the cold air and breathe in the last few breaths of 2010. Soon there is chatter and laughter and bickering and sunshine against the cold. I rub my hands together for warmth, raising my face to the sun.
My maternal grandmother has been battling with medical issues since she herniated a disk at the age of 20. She fought through a crushed vertebrae, arthritis, knee replacement surgery, depression, and ovarian cancer to give her love to her three children, six grandchildren, and two great-grandchildren. This past month, the cancer came back, and she tried a second round of chemotherapy.
At the age of 87, it took a serious toll on her already poor balance, and she decided that she’d had enough of the treatments.
All I can do is pray that hospice can help her enjoy the time she has left, because my heart is breaking to see my Nonna so miserable.
My paternal grandmother, my Nan, has never taken good care of herself. As long as she’s lived in her own house, her diet has consisted of pizza, fast food, pie, ice cream, and Coke. Most of the time she hardly eats anything. Not surprisingly, her lack of nutrition over the years has led to osteoporosis, and more recently, pneumonia.
I recently went to visit her in the hospital, and I was enraged at what I saw.
She was emaciated.
Even after a week of antibiotics, she lacked the strength to stand on her own. In hopes of stimulating an appetite, we brought her a cheeseburger from Wendy’s. She fumbled it with trembling hands for a bit before saying, “This burger is so heavy. I can barely lift it.”
As hard as I try, I can’t find the sympathy or grief for my Nan that pours out of me when I think of my Nonna.
Both situations are awful, but all I can feel for my Nan is frustration because she’s done this to herself. All of this could have been prevented.
This anger that I feel scares me, because at this rate it’s going to rob me of my closure. I want to be able to let go.
More than anything, I’m dreading having to watch my parents go through the same thing.
