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My daughter Katy was always a challenge – she’d not left the Terrible Twos – and when she got older, she was diagnosed with bipolar disorder and oppositional defiant disorder (ODD). As much of a challenge as she could be, she was also very pretty, smart, and funny. One of my favorite memories is how she loved to eat so much that she’d eat in her sleep – sometimes she’d fall asleep and wake up and continue chewing. No one came between her and her food.
My very favorite Katy moment was right after she was born, they laid her on me, and she lifted her head and looked right at me. Crazy, right?
I still hold that moment close to my heart – has gotten me through a lot of tough times.
Morphine turned into methamphetamines and our relationship began to crumble.
By then, I’d gotten remarried and my new husband didn’t want her to live with us when she asked to move back in. I enforced my previous statement, telling her that she couldn’t come home.
Shortly thereafter, she moved back in with her dad.
In 2007, she married a nice guy; one who complemented Katy well. She was very manipulative and he was able to deal with it. Unfortunately, after he joined the Army Reserves and was deployed to Egypt, which left Katy alone with my newborn granddaughter, Rae. Her daughter’s birth, of course, was crippled with complications; she developed a uterine infection and a week after discharge, her uterus burst.
After her major surgery, the doctors told Katy that she probably couldn’t have any more kids.
Katy was a fierce mom. She was a good mother – very firm but fair. Rae still has excellent manners and is very well-behaved because of her amazing mother. During her ten day hospital stay, she fought the nurses to make sure she could nurse Rae. Once home, she was in huge amounts of pain. This is when I believe her addiction to opiates began.
With her husband away in Egypt, Katy got involved with an old friend and with her pain pill prescriptions used up, she turned to heroin. Our relationship was still very shaky – when I told her she wasn’t allowed to come to Easter, we didn’t speak for over a year. Even still, she let me see my granddaughter.
Drugs had rotted her teeth and beautiful smile. The poor thing had to have them extracted and get dentures. I was with her and it was gruesome.
For my own mental health, I had to distance myself from her. I couldn’t deal with the drama in her life – especially the drama with her father. He, and I believe Katy as well, had borderline personality disorder. She was a difficult person – always talking, needing help, wanting something, craving love, starved for attention, and it drained my husband and son. I’d try to avoid getting drawn into her drama, but she’d sense me pulling away and she’d draw me back in.
When Mike, her husband returned from Egypt, Mike began using heroin as well and the three of them moved in with my ex-husband.
Both Katy and my son, Chris were very relieved when their dad died because he was so cruel to them. Katy replied to someone who said that “he was in a better place” by saying that “no, he was in hell.”
In 2017, Katy began the process of getting clean and sober and had moved to a city with a friend to get away from her husband who was still using.
I thought she was faking it and using the lymphoma as a way for us to take her in. We had a huge blowout and she turned around and left my house.
Thanks to the heroin, her husband Mike had a bad heart valve and needed open heart surgery, and, being a caregiver, she moved back in with him.
That summer, she ended up staying with us in our cabin in Pennsylvania and I noticed she was tired. Always so tired. She slept so much and so often that I wondered if she was on drugs.
Concerned, we took her to a hospital in Pittsburgh on Father’s Day 2017 where she was diagnosed with Acute Lymphoblastic Leukemia (ALL).
I remember staring at those three awful words written on a whiteboard in her room. She had been within days of dying. Days.
And I hadn’t believed her.
The hospital started her treatment and we had her transferred to the Cleveland Clinic closer to our house. From then on, I was on auto-pilot.
I was a caretaker too: my mom was bipolar which meant that I had to take care of her when I was a kid.
I was the oldest of four and my parents divorced when I was 15, so becoming her caretaker fell into my lap. She’d made numerous suicide attempts and was in and out of the inpatient psych ward multiple times a year.
My dad had a stroke 12 years ago and was in and out of the hospital and nursing homes for seven months before he died. I went multiple times a week to visit, it was nice to spend time with him.
I was raised to be a caretaker.
I stayed with Katy constantly from the moment she had been admitted until the day she died. There were a few nights that her friends would spend time with her so that I could rest. Otherwise, I slept on a chair that converted to a bed. I showered in the family showers and drank coffee from their family lounge
Katy’s first treatment course lasted five weeks and she was stuck in the hospital for the entirety of it. The staff was awesome. They didn’t even mention the track marks on her arms or asked if she’d done drugs.
Addiction isn’t called a “family disease for nothing.” The family of an addict is just as impacted as the addict.
This is her story of her son’s addiction:
My child has become an addict and loving my child is so very hard. I’m trying to find my happy as I learn to deal with his addiction.
With the overload of health issues around here, along with the common “life stuff,” I willing took a break from blogging after the last attacks from trolls; trolls who don’t know me, know my child, know my life, know my situation, and will never understand my life or my thoughts.
Simply: I took a break because I wasn’t strong enough to keep going,
Three blogs, five days a week, and two little freelance writing gigs with groups have kept me tied to the computer dumping out my odd take on humor, insane fake advice, and occasional a vaguely serious topic.
I have decided I will blog, on my blog, and the trolls will not, cannot affect me. I won’t allow them that kind of power. I have to share this story because as odd or awful as this is, I can’t believe I am the only one. Sometimes knowing you aren’t alone, can make a differences on your life. It has in mine, just like everyone here at Band Back Together.
I call it “living” but it’s really just existing – when I can muster the strength to push the elephant in the room to the back of my mind. This horrible addiction elephant.
When someone you love makes horrible choices, you can still love your addict child, but you also have to make a choice.
I made a choice to love from a distance to allow my son to deal with his addiction on his own time, allow that person to do things at their will, wherever they wanted. The condition was: I would not support that person, their activities: not emotionally and definitely not financially.
Of course that comes with a higher emotional consequence for me, a soul-eating, mind -boggling, hellish existence.
Torn when the phone doesn’t ring, furious, emotional and torn when it does. There is no happy medium, is no mutual enjoyment of life, it’s an inner ring of hell.
It’s odd how the human brain learns to process things so completely outrageous and unacceptable if they happen often enough; the brain removes logic to save the heart. The brain knows if one more little piece of your soul falls to the floor, you will collapse and finally fade away.
You can’t fix it, they don’t want to be fixed, no matter how absolutely insane and ludicrous the situation, you cannot even point out how completely illogical the situation is, let alone offer solutions. There are no less than 683 million reasons why all of your ideas are completely stupid.
You learn to focus not on the highs, not on the lows. Not the shocking news, but only that you love that person, your child, who just happens to be an addict.
You make sure whatever you say won’t offend them, or their choices, and you make double damn sure that person knows you love them, you love them deeply, you love them completely, you love them from your soul. You only want the best for them, safety for them, happiness for them.
No one really has the same idea of happiness.
it took me 43 years to realize that.
Another thing I learned; just because it’s ” the normal” thing that you’d make anyone happy, happy and delighted and feeling so very lucky, this can seem like hell on earth to someone with a different view of happy. So who am I to attempt to enforce my idea of happy on anyone? Simply put, I am no one. I am just a daughter, a wife, a sister, a mother, an aunt, a friend.
I am made up as we all our of a unique cocktail of our childhoods, our teachers, our elders, our peers, our life lessons, co-workers, books, and shows we have seen. Just a big casserole of a human being trying to find “happy.” When I achieved happiness, I assumed it would be wonderful – more than wonderful – and that, in turn, everyone else would become happy. Everyone would see how hard work brings happy, how loving each other brings happy, how walking the right road, singing your own song, and smiling would obviously land you in happiness.
The past 20 years, I tried to shove people into the happy, I tried to drag them into happy, push them in, beg them, lure them, slide shows of happy, handmade cards, long emails, song dedications, heartfelt talks, and hugs, I could surely get them to happy. Once they saw happy they would be like “duh, I want to be happy too!”
I was wrong. Their happy was so different than mine so I had to accept they would not be in my happy with me. Maybe they were taking a different route, and we would meet up in happy. Maybe their happy just meant more pit stops, more experiences, different criteria, maybe their happy would never lead to the same location as my happy. What would I do then?
Their happy could be really good for them, so I will work on being happy for their happy.
Little crumbles of your heart fall as your soul tears.
In the end, all you really want is for them to be happy. You convince yourself not to be such as narrow-minded selfish ass who demands everyone’s happiness is within arms reach of your happiness. We are not all alike, and really, what a boring world that would be. Keep telling yourself this as it makes it easier to persevere your heart, mind, and soul. Besides, it makes them happy that you are happy for them. It’s painful but it’s good for them and for the relationship.
Then the call comes, not a happy call, you are prepared because you know when this disease spins ’round, the calls come in two forms and two forms ONLY.
One, the world’s best thing ever, everything is amazing.
The next call, though, could be in a week, a month, a day, or within several minutes: the world is ending, there is no hope, no escape.
There’s not a single thing you can do to make it better. So you listen, try not to cry, remembering to love, offer helpful solutions, offer to make arrangements or calls, you do what you can and it’s usually for nothing. It rarely works out, but you make damn sure they know you love them so much you can’t breathe when they are in pain.
The calls – you see the caller ID – it’s a number from a state that you don’t know, but you do know who is on the other end, you never know the type of call, only that it’s from them. So you take deep breaths and you prepare to play the roulette game of their life. What kind of call you don’t know it could be: an incredibly fantastic words of grandeur.
Or the call can be gut-wrenching, heart-breaking, sobbing pleads for help.
You don’t know, because you can’t know but you answer the phone, inviting the roller-coaster of love and hate and pain into your world.
Nothing surprises you now.
As long as it’s their voice on the end, you are prepared, it’s now become common practice. You’ve learned to stop yelling, begging, urging, and learned to focus on conveying the fact that you love the elephant in the room. You love that elephant when your eyes open in the morning, and you love that elephant when your eyes close at night without a tear running down your cheek. No one sees your tear.
No one hears your cry and no one, no one can understand why this elephant is needed, deeply; it has become comforting.
Then as you are in your happiness on the back porch wind blowing you sit with your little family, cross-legged looking at your happiness, eating sandwiches, and thinking how peaceful and loving and happy this all is.
The phone rings.
The addiction elephant steps outside. The elephant sits on your chest, takes your breath, and overcomes you. Sometimes, when that elephant climbs on you, you compartmentalize you soul, your heart, and your brain as this allows you to attempt to speak in a sane, calm, tone, using gentle words, no blame, just love.
The call ends, with mutual ” I love you’s.”
The happiness is now gone for them as they are faced with a very adult matter that can’t be “worked away.”
You don’t remember the rest of the happy picnic: the people in your happiness with you do not have a conversation about it. You move on as you do after every call. But something is wrong, very wrong
You can’t tell anyone, yet you don’t cry, you don’t sob, you don’t fall to the floor, you don’t steal a car to get to the addiction elephant to hold them.
What the hell is wrong with you?
Why are you not responding like a human?
Why aren’t you happy?
Why not like the other times?
You haven’t fallen apart yet.
Will you fall apart?
Will this change your ability to move forward?
You know that If this person comes back, can you handle it?
Can the happy team handle it? What will be the cost of the elephant if you don’t?
What will be the cost of happy if you do?
I know the other shoe will fall, there’s just no way to process this without dying more inside. Maybe I am out of a soul, a heart, tears. Maybe I have been cried out, maybe I am stronger, maybe my brain is trying to protect me.
I am very much not okay, mostly because I feel okay, there is no way that I should feel okay.
Why am I not shaking, sitting in the shower crying, sobbing, and vomiting like I’ve done before when the bad news comes?
I’m not even shaking.
The shoe will drop, I hope, I beg, I have the strength, the knowledge, the wisdom, the compassion, the ability, the life experience, balanced with the brain, the heart and soul, to take this journey.
To share my happy, to understand their happy, to make a new happy, but most of all, to convey they undying, deepest of love and the basic humanity to make their happy the best happy I can.
Please find your happy; let everyone you know how much you love them – no matter what what makes them happy.
I don’t do resolutions. I have never been able to keep promises I made to myself, so I quit trying. However, I can’t say no to Aunt Becky, so I’ve been trying to figure out what “I will…” do this year.
I was coming up blank until my conversation with my mom this afternoon, and it hit me.
I will be OKAY.
That doesn’t sound like much, and yet it’s huge. There was a time when being okay seemed an impossibility. I recall it vividly.
It was April 2, 2005. I was two days out of treatment for addiction, and I was annihilated. That night, I reached the point of perfect misery. I didn’t want to live and could not die. I finally knew that I could not live that way anymore, and I took the first step. I surrendered, and the next day, I began attending Narcotics Anonymous meetings like my life depended on it.
When I first got clean, I didn’t think I’d still be clean 14 years later. I certainly didn’t think I’d ever be okay. But I kept coming back. I got a sponsor. I started working steps.
The idea that I might someday be okay never really occurred to me. There were other N.A. members who I thought would be okay. Some of them are. Some of them relapsed. Of those who relapsed, some made it back. Some didn’t. I never really thought about which category I’d fall into; I couldn’t think that far ahead. Getting through each day, each moment, was too much of a struggle.
Even when I found that each day wasn’t a struggle, I didn’t really think about whether or not I’d be okay.
Until today, when I was laughing with my mom about something that happened today. The event is irrelevant. The awareness it brought me today is what’s relevant. I realized that I just might be okay.
I don’t mean I am cured. I just finally understand that if I keep doing what I’ve been doing to recover from the
disease of addiction, well, I just might be OK.
For somebody who didn’t think she was worth saving when she reached out for help, that shit is huge.
Shit. It would take too long to tell you everything that I love.
I could go on and on about my Mr. Sunshine, my puppy, the shoes, the clothes, my smartphone; but I don’t think that’s the point of this “exercise.” Not for me, anyway.
For me, the point of these “exercises” is to look beyond all that. The point is to find the beauty within me. The point is to find the beauty in life. The point is to find the beauty in this moment.
We just came home from the neighbor’s house where we sat around the fire and ate hot dogs and marshmallows. Sunshine is on the phone with one of the men he sponsors. My puppy is asleep in the floor. I am writing my Dose of Happy post for The Band.
This moment is perfect. In spite of the ugly sofa and carpet in the magic bus, in spite of the fact that it is HOT, in spite of the fact that the house needs cleaning.
This moment is perfect because I’ve learned a few things over the last few years.
Thanks to Narcotics Anonymous, I learned that I am worth saving. Thanks to The Band, I have learned that stigmas are bullshit. Through my family, I learned that if I do not want to become discontent with my own life, I need not look at what others have. Thanks to friends from all of these parts of my world, I have learned that life is beautiful, I am beautiful, you are beautiful.
So in the end, for me, the point of this Dose of Happy stuffz is to remember. To remember that I am beautiful, life is beautiful, you are beautiful. Which leads me back to the original question. What do I love?
I love that I don’t look at what others have. I look at what I have. I look at how rich my life is. And it is rich.
I have my recovery. I have my friends. I have The Band. I have my family.
Aunt Becky challenged me to write an “I Will” post… Here’s my crack at it:
This is a year of major changes for me. The title is paraphrased from a book by one of my favorite authors, Maeve Binchy, who died a few years ago. One of the lessons I’ve taken from her books is that kindness matters and change is sometimes incremental, but the opportunities to change abound.
First the Goals:
Meet Baby (due end of June)
Complete Probation (October, possibly sooner)
Complete the 12 steps (currently on Step 4, which sucks, but I am finding valuable)
Start School (Sign Language Interpreting Program)
Graduate Treatment (possibly this month?)
Move into my own apartment (hopefully by March)
Stay sober (110 days and counting)
Practice healthy boundaries – especially removing unhealthy and negative people from my life and saying “no” to things that jeopardize my values/goals/self
Re-engage with Church
Learn to manage anger without becoming self-destructive
Stay Present and Enjoy the Journey
Practice Forgiveness – especially of myself
Never Stop Learning
Make good choices (especially financial ones)
Daily Maintenance (this is a concept from NA – aka The Four Simple Things: 1. pray honesty, out loud; 2. talk to another addict, preferably one sponsor or someone else with more clean time, honestly; 3. read literature daily; and 4. do something nice for someone else).
my dad was, and still is, a serious control freak. he wants everything to go his way, all the time, forever. His need to control + my rebellious streak – any display of love or affection = a seriously fucked up child.
i’d love to write this on my regular blog, but it would upset the people who know me (and we both know that i shouldn’t upset others, right?), so i’m writing it on the down-low. anyway, this is more for me than for you, because you would never admit to fucking up. mom has put up with a lot of shit to stay married to you for 44 years, but i don’t feel sorry for her because we both know she loves to play the martyr. you two are a textbook case of how not to raise a daughter, and i’ll get to mom in another blog. this one’s for you-
i know that you and mom “had” to get married. i know that you weren’t thrilled about it. i also know that you really wanted a son, but you got me instead. while i made do with the john deere tractor and matching wagon, you and i both know i really wanted the barbie corvette. so barbie and her friends went on lots of hayrides, no biggie. because i loved you.
lesson #1- be happy with whatever i get and don’t be disappointed; any affection i may receive depends on this.
we had fun when i was little. we played football with pillows in the trailer that i grew up in, you pretended to be a horse so i could ride on your back. except you always bucked me off, every time. you’d hide in the bathroom down the narrow hall and call to me and when i came to you, you’d jump out of the dark and scare me. i hated that game, and tried to refuse, but mom would insist i go every time. when mom called that dinner was ready, you’d always hold me back and say that i didn’t get to eat. even though i knew it was a game, i didn’t like it. now that i think about it, your sense of humor was somewhat sadistic. but i didn’t see it that way at the time. because i loved you.
lesson #2 – play along, even when i don’t want to.
when i was small, and did something wrong, you whipped me. you had that fucking collection of belts and always made me pick one. i took a long time choosing, hoping you would change your mind, but you never did. i always chose the red, white, and blue one, because if i had to get whipped, it should be with a pretty belt. and it wasn’t just one or two times. no, you beat my ass. and bare legs. and back. and arms.
i stole some of your coin collection to use in the gum ball machine at the trailer court. it was only a couple of wheat pennies and a dime, but you found me at the gum ball machine and my heart got stuck in my throat. you had a wire coat hanger in your right hand and it was summer and i was wearing shorts. you beat me with that wire hanger all the way to the trailer and that was a long way and i couldn’t run fast because i was only 4. and still, i loved you.
and that time you got mad ’cause mom made chili in july. i was still in a highchair, even though i was 3. i dumped my chili onto the metal tray and you swore at me for wasting food. you grabbed me by my shirt and pulled me out of the highchair. my legs got all cut up because you didn’t take the tray off first. then you threw me on the floor of the living room, and that’s how my favorite top got ripped. then you grabbed a belt from your collection and started beating me and you wouldn’t stop. mom finally pulled you away and threw you out. she let you come back, though. because she needed you more than she loved me. i asked mom to fix my top, but she threw it away instead.
lesson #3 – i am bad, and being hurt by someone i love is acceptable. in fact, i should expect it. i need to learn the art of survival, nobody else is going to protect me.
you have never told me you loved me. never. not once. you have never told me you are proud of me. not ever. not when i graduated from college, or grad school, or got straight a’s, or stuck with my crappy marriage for so long, or left said crappy marriage when it was time. i craved your approval like an addict craves that next hit off the pipe, knowing it will never be enough. and i chased after your approval the way a child chases their shadow, knowing that they will never catch it but always hoping against hope that this time might be different. and i never hated you for it. instead, i hated myself for not being enough.
lesson #4 – it’s not you. it’s me. and it will always be me, even when it’s you.
you had a girlfriend on the side, beginning when i was 5, and ending around the time i went away to college. i know this because i rode the bus with her son in high school. he told me all about how you’d come over on christmas day when he was little. i always wondered why you left after we’d opened presents. you were going to your other family. the one with two boys.
remember that time when i was a senior in high school and my friend viki and i saw your truck at your girlfriend’s house? i rang the doorbell and asked your girlfriend if you were there and i told her who i was. after viki and i drove away, we hid in a driveway and watched you speed past us in your truck, racing towards home. and we laughed because we knew you couldn’t touch me. not unless you wanted to tell mom what you were so pissed about.
mom still doesn’t know about that time i called your girlfriend at work and called her a whore and a bitch and demanded that army picture of you back. the one that mom kept asking about and you kept telling her that you’d left it in your locker at work. only it wasn’t in your locker, was it? it was on your girlfriend’s tv, because her son told me. you brought the picture home that night. that’s when you stopped looking me in the eye and started hating me. because you’d been caught by your daughter. and i began to hate you right back.
and when you suddenly decided not to pay for grad school, i became a stripper to pay for it myself. because i had learned the art of survival.
lesson #5 – i have nothing to lose and it feels good to be a bitch.
you stopped hugging me when i turned 10, and i’m pretty sure it had something to do with my going through puberty. especially when you went on a trip and brought me back that cleveland browns sweatshirt, threw it in my general direction while averting your eyes and said, “here, this will cover up your bumps.” nice way to encourage a young girl to have pride in her body. so i started covering up my bumps, all the time. when i was in my late 20’s, i got rid of my bumps altogether by developing anorexia. then i had to cover up my bones. i began to loathe myself.
lesson #6 – my body is sexual, and sexuality is bad.
the only birthday of mine that you ever came to was when i turned 5. i still remember it because that’s the birthday i got my first barbie. you took her away and wouldn’t give her back. you thought that was funny and i played along so you would stay. to this day, i occasionally find myself playing along, for fear of being abandoned or pissing someone off. when i was 17, you never came to my high school graduation. i know this because when i got home after the ceremony, the ticket i’d left for you on the kitchen table was still there. you were still pissed about me finding you at your girlfriend’s two months prior, and calling her at her job. because i’d stopped playing along.
lesson #7 – when i stop playing along, you will hate me.
in high school, you started to have me followed, instead of sitting me down and asking me about what was going on in my life, you got kids from the trailer court to tell you shit about me, a full $5 for each bit of information. that’s how you found out i smoked, drank, got high, and had a black best friend. you even sent two guys on my fucking spring break trip to daytona beach. i know this because on the last night, we all got drunk together and they told me. then they proceeded to tell me your name, my full name, where i lived and what you wanted to know. i wasn’t even safe from you 1,000 miles away.
can i just tell you how fucked up that is? that is seriously fucked up. i was the most paranoid teenager i knew, even without the pot.
you made me stop being friends with kim, you beat my ass when you found out i smoked and you grounded me for three months for drinking. fuck you. i started getting high with my dealer’s 16-year-old wife before school, i went through the bottle of vodka you had hidden in your cupboard, filling it with water instead. that’s right dad, the more you tightened the screws, the more i fucked up. i went to school drunk every day, or high, or both. i hid beers in my bedroom and drank them when you were asleep. i smoked in the bathroom after you and mom left for work. i feared getting caught, but the rush was incredible.
lesson #8 – my father is out to get me, and he will always find me.
you wouldn’t let me date the same guy twice, because you didn’t want me to get pregnant, the way mom did. you wanted me to get an education and be someone. or something. not for my sake, but so that you could say you had a college-educated child. and i was so terrified of getting pregnant that i didn’t had sex until i was 19. and then i slept with every guy i wanted to when i went away to college. because i could, and you had never taught me to respect my body. you had only taught me to get away with whatever i could. i never enjoyed the sex, but being sneaky felt awesome.
lesson #9 – sex is about power and revenge.
when i was in my final year of grad school, i met my future husband, only i didn’t know it at the time. i was smart and i knew about birth control. but when you should have taught me confidence, i learned fear. where self-esteem should have been, there was an empty well, waiting to be filled by someone else’s ideas and beliefs. fear of abandonment took the place of knowing my own worth. standing my ground was replaced by an aching need to please, at any cost. so when my future husband said “no rubbers, please” i said “ok”. because i needed to be loved, and i was afraid of losing him.
lesson #10 – do whatever i have to do make other people happy. my thoughts and feelings don’t count and should be kept to myself. they will only make others stop loving me.
and then i got pregnant. your biggest fear. and because you were my biggest fear, and because i didn’t believe in myself, and because my boyfriend didn’t want a baby and because i didn’t want to be abandoned, i had an abortion. then the self-hatred really kicked in.
lesson #11 – all decisions should be based on fear.
it has taken me 20+ years to undo what you did to me. everyday i untangle a bit more of the knot, trying to smooth out the yarn. it’s still good yarn, and everyday i knit myself.
lesson #12 – you made me stronger, smarter, tougher and braver. so fuck you.