Select Page

Sweet Baby, Hold Back Your Tears Now

The first night after my breast cancer chemo treatment was awful.  Nugget sobbed hysterically in my arms, giving way to heavy sighs between her defeated attempts for true comfort until she finally fell asleep.  I cried, and cried, and cried.  Between the tears i apologized over and over to my sweet baby girl for being sick.

Last night was thankfully less painful.  She fell asleep with my mother and only had to be quietly lulled back down once.  Thank god for small miracles.

As for me, I felt pretty nauseated yesterday and today, and the meds to combat that make me tired.  Today, I really started to feel exhausted.  We went out for some quick errands this morning, but I’ve since spent the remainder of the day in bed.

Tears For Fears

I’m not even sure to where to start.  Remember that fever?  It finally went away.  Then it came back.  A second set of bloodwork later, the doctor still thinks it’s viral.  I get a chest x-ray to rule out pneumonia.  Next is a CT scan,  then a biopsy.  The biopsy has to be done under general anesthesia by a mediastinoscopy, and a bronchoscopy is thrown in for good measure.  Now they think I have Hodgkins.

I know that there are readers who will get this so much more than others that have already heard it from me.  My biggest fearWhat if I have to have chemo and stop nursing my daughter?  It’s going to break her little heart (and mine) if she looks up at me, her mama, with her pleading, beautiful blue eyes and signs for her nursies and i have to say no.

I can’t say any more than that right now.  I just can’t.  This fear is crippling me and the tears won’t stop.

PTSD And My Sinking Ship

As women, we have to learn to listen to our gut. {Even when it’s telling us something we don’t want to hear.} And in March 2010 my gut was telling me one thing – loud & clear – “You must turn this ship around or it’s going to sink!”

I know, right? Clearly, something I didn’t want to hear.

You see, my son was nearly killed in an accident in July 2009 and eight months later, the bones were healing, but I was still broken.  And, something had to give.  I was bending and bowing under the heavy load I was carrying & I had to make a choice. The first choice that would turn my life, this ship, around was telling my husband the truth. I had to tell him of the awful thoughts that would fill my soul and haunt my nights.

I had to tell the man I love how often I had pictured him dead or dying, with our beautiful, innocent, children at his side. I had to tell him of the times I lied and told him I was sleeping downstairs, when really? I was sitting in one of the kids rooms crying. Picturing them dead. There is no marriage course that prepares you for that conversation. No book that tells you what to say when you’re wife is losing her mind.

I am blessed. And he reinforced what my heart knew and my mind couldn’t comprehend when he hugged me and held me and told me that I needed to call a doctor. {I knew in my gut that this was what I needed, but it was nice to hear him say it.}

You see, I was dying a slow death at the hand of post traumatic stress disorder. At the time I didn’t know what it was, but I knew that anxiety and fear were ruling my life. I was not living with intent.

Post Traumatic Stress had taken over & changed the woman I had once loved. It had stolen my husband’s wife & my children’s mother. I am a firm believer that life shouldn’t be the same after trauma, I expect that. I accept that. But, I also knew that I was not living and I didn’t want to settle for anything less. When you believe in your heart that one of your children is dying, is going to die, may die…there are no books or blogs or words or friendships that are inspiring enough to settle your soul.

And, even after I tucked my boy away in a bed, EIGHT long months later…safely upstairs, without a wheelchair, after a long day of school and baseball practice, I couldn’t shake my spirit of those haunting thoughts. Those reoccurring nightmares, I had when I was awake.

Nighttime would creep up on me like a thief and steal any sanity I had managed to build up in my reserves for the day. It was always worse at night.

The blackness would slip under the door frame and suddenly I would grow weak under the urge to hold my children tightly and scream into the thick air. The thoughts that filled my head were not that of a “sane” woman. I no longer recognized the woman that replaced me when night fell. The fear of losing my loved ones began to grow…and grow…and grow…

I didn’t tell the therapist everything right away. But after a week of visits, I let it all go. I told him that I pictured my baby dying of SIDS every time I closed my eyes. I would sit in her room in the dark on the floor and use my phone to light up her face so I could watch her breathe. I would rock in her room through the night and cry. And torture myself with the thought of finding her lifeless in the morning. A thought that wouldn’t let me close my eyes.

The blanket the boy brought home from the hospital would trigger phantom day-dreams that would leave me shuttering. I could hear him screaming in the night, in pain, even after the pain was gone. I would lay awake at night and watch my husbands’ chest rise and fall with each breath. I would picture how badly my heart would/will hurt when he dies, I would think of losing my parents…losing my aunts. Death consumed my thoughts.

I couldn’t drive in my car without sobbing uncontrollably. Every slammed brake or rushed traffic light would leave me in a puddle of doubt and fear. I was convinced someone was going to hit me, hit us, kill my family…

And, I knew this wasn’t right.

There were times when my mind would convince my heart that I was better off dead, rather than face the sadness the future holds. I would pray to please let me die before my children, my husband…and at times, I would even think “before my parents.” I would remember the agonizing pain of the unknown – as my son was air-cared to the local Children’s Hospital – and I would pray that the demon of memory be taken away from me.

But, as I told my therapist of my thoughts & fears…as I spoke of the anxiety that chased me in the night…the fear seemed to find a place where it could lay dormant. And I was fine with that. For now.

It’s been just over one year since the accident. And I still know that the dormant monster is waiting. Lurking…

And, there are times when I have talk myself off the ledge. Times when I feel the anxiety creeping back in. I accept the fact that life will never be the same. I accept the fact that it’s not suppose to. And, I know that with that change comes baggage, that at times will be too much to carry. But I also know I can face this demon head on, with the help of my family & friends…and even my blogging community.

I am working hard to turn this ship around. To make up for the ground that has been lost. To find my way back to the shore of safety and maybe, just maybe, even learn how to live on the sandy, white beaches of satisfaction.

Someday.

Solitary

I’m turning into a hermit. Not in the traditional sense, exactly. I leave my house almost every day. But I hate leaving. When I leave, I can’t wait to get back. I can’t wait to put on the same clothes I’ve worn for twelve weeks, even though they stink and have stains on them. I long to lay on my couch and stare blankly at the TV.

I’m not finding comfort in anything anymore. Flipping around on the internet, my surefire way to escape, now makes me tired. I have thousands of unopened emails, dozens of unread text messages. I want to look at them but I just don’t have the stamina.

The only things I seem to have energy for? Envy and crying.

When I was on bed rest with Madeline, the only time I was allowed to leave my house was to go to the doctor. I remember sitting in my OB’s office, seeing happy pregnant ladies with their growing bellies, and being overcome with jealousy. Or when Maddie was in the NICU, I would constantly see happy parents going home with their new babies, and my body would become hot with anger.

This is so much worse.

Everything sets me off now. Seeing a child walking down the street with a parent, or a man buying diapers, or a plastic toy in the grass turns me into an ugly, hateful shell of my former self. I say that I wouldn’t wish this on anyone, but that’s not entirely true. If it meant I could have my little girl back? If a magical genie said, “OK, pick another family and they’ll lose their child instead,” there isn’t a single person in the world that would be safe. Even the people I know.

I felt guilty about this at first, but I realized that everyone who knows me or reads this would feel the same way. And everyone who knows me or reads this has already had a similar thought. “Man, that sucks, but better them than us.” Who WOULDN’T think that way? I know that, before Maddie passed, when I heard about a family that lost a child I would be so relieved it wasn’t MY baby that was gone. It wasn’t MY family whose worst nightmare came true.

So I’m slowly becoming a hermit, because I’m afraid soon I won’t be able to keep it in. So that the next person that says something well-intentioned won’t get me screaming in their face. So that the next person who rightfully complains online about their cranky child won’t get an expletive-filled email or comment. So that the innocent man buying diapers won’t have to see me glaring at him with my swollen blood-shot eyes.

Am I protecting others, or myself? I don’t really know.