by Band Back Together | Jun 15, 2016 | Anger, Breast Cancer, Cancer and Neoplasia, Cancer Survivor, Coping With Cancer, Depression, Faith, Fear, Guilt, Mastectomy, Stress, Trauma |
Have you ever been swimming in the ocean and wondered what was lurking underneath you…eying your body…sizing you up to see if you would make a tasty meal? That’s what I call the breast cancer “shark attack syndrome.”
I liken the physical and psychological impact of a double mastectomy to a shark attack. It happens quickly and violently. In a matter of minutes you are struck hard and parts of your body are carried away into a vast ocean by a predator much bigger than you. It isn’t personal. The attack is random. You are left alive but amputated–stunned and with a life long fear of the water.
People who know about my diagnosis gawked at my chest like an accident scene on the freeway. Family, friends…they can’t help themselves from looking. I chose not to have reconstruction due to the lengthy recovery…an infant and a toddler don’t lend themselves to extensive plastic surgery. My daughter was 8 months old and my son was 3 years when I had the surgery, not exactly the age where I could be out of commission.
I don’t wear the prosthetics I bought…they constantly remind me I am amputated, and the first time I took yoga one of them fell out! My beloved yoga teacher said, “Just take them out, honey.” I never looked back.
Rough Waters
The journey through a breast cancer diagnosis with two small children was so very hard. I searched for the words to tell my son…
”The Doctor found a lump in mommy’s breast that isn’t good for her body and he has to take it out.”
Thanks to my son’s school and my amazing husband, we got him through it…but he STILL talks about it and recently asked, “Mommy, why don’t you have boobies?” At that point I realized my beautiful daughter would grow up never knowing her mother’s body to look “normal.” She only knows the scars. That is the day my heart broke forever. As if depression didn’t make me feel inadequate enough, now I felt like a carnie act. Come on down and meet the lady who was attacked by sharks!
I will never truly recover from knowing what I look like and what I represent to my children. But I am here to be their mom and truly thankful. Thank god I had it checked. The mammogram showed no abnormalities! If I had just had the mammogram I would have faced a diagnosis of invasive cancer and perhaps required chemotherapy or radiation. As of now, they tell me I am “cured.”
And I found it myself.
Not a minute in the day goes by that I don’t worry that it will return and take me from my children. Every woman who has had breast cancer knows exactly what I’m talking about. Every cold, every headache, every stiff muscle, still scares me into thinking I am still out there in that ocean—defenseless to another shark attack. What part of my body will they take next time?
I saw my mother lose her breast early in life. The same month I was diagnosed, she was diagnosed with Stage IV colo-rectal cancer. I watched the sharks circle her for six years, taking feet of colon, and eventually her life.
But it isn’t a pity party. I am glad I got cancer. It was a hell of a lot easier to deal with than postpartum depression, than life-long depression, than the cancer that is depression. And it got me immediately in touch with impermanence, and subsequently, my spiritual practice.
If I were thrown back into the dark ocean again and a recurrence reared it’s ugly head, I have my faith to thank for curing me of my fear of sharks.
by Band Back Together | Jun 14, 2016 | Coping With Depression, Depression, Fear, Mental Health, Self Loathing, Shame, Therapy |
Well, Bandmates, this is the day. I have an appointment with my general practitioner. I will refuse to leave until I have a path forward and an appointment with a psychiatrist or counselor.
This is it.
If I don’t do anything, I know the outcome will be tragic.
It’s not a matter of willpower any more. I’ve used all that up. The only thing that’s keeping me even slightly together lately is the thought of how much my kiddos would hurt if I killed myself. I am exhausted and at the last shreds of my willpower. This pain I have carried for my whole damned life is destroying me.
I must say that I’m very nervous. I don’t know what is going to happen, but I’m going to spill my guts. I feel shame at the prospect of sharing this pain I have in a non-anonymous setting. I feel shame that this disease has wrecked my life. I am scared to death that I will wreck my kids if I don’t get this shit handled. I am horrified at the state of my life, the feeling that I am capable of so much, yet do so little with my time.
I’m fucking smart. I’m handsome in a kinda scruffy way. I have a decent enough job. But I feel that I am unworthy of anything enjoyable. I’m done ignoring the phone calls from my friends. They’re coming fewer and further between. I’m done procrastinating. I’ve sat here for more than five months, losing more and more of what I have come to cherish. Time with my kids, friends, art and music. I haven’t touched my bass guitar in months. It’s got to the point that I don’t even like to hear music any more, and I have been a musician/singer for most of my life.
I can only write a few paragraphs at a time before these damned hopeless feelings overcome me and cloud my imagination. Even my favorite time-sink of video games has become something I simply don’t enjoy anymore. My only friends are my pets, workmates, my computer, and Netflix. The first thought in my head whenever I wake, be it at a normal time, or at some odd hour of the night, is I hate my life, I hate myself.
Today is the day that enough is enough.
Please, if you feel like I do, get help now! Don’t wait until your life is left in ruin because of a disease. Don’t let your mind tell you that your problems are due to your own failures, that somehow you’re a weak person. That is the disease talking. Every lie this disease tells you has a grain of truth in it. That’s how you come to believe all the negative nonsense. We don’t try hard enough because the disease keeps us from doing so, but the disease doesn’t ever take the blame for keeping our reserves of willpower so low. If you’re at the end of your rope, there’s nothing left but to either give up or try to get the help you need. This disease is going to tell you so many half-truths that you really don’t know what the truth is anymore. That’s why you need to get a helping hand. Please, don’t let the disease hold you back.
by Band Back Together | Jun 7, 2016 | A Letter I Can't Send, Adult Survivors of Childhood Sexual Abuse, Alcohol Addiction, Anger, Child Abuse, Child Neglect, Child Sexual Abuse, Depression, Guilt, Inpatient Psychiatric Care, Loneliness, Self Loathing, Trust |
We all have letters we’d like to send, but know that we can’t. A letter to someone we no longer have a relationship with, a letter to a family member or friend who has died, a letter to reclaim our power or our voice from an abuser.
Letters where actual contact is just not possible.
Do you have a letter you can’t send?
Why not send it to The Band?
This is what I would like to tell my mom, and probably would if she weren’t in a fragile state. She’s been wheelchair bound since my second child was born and my daughter is now nearing junior high school. How she ended up in a wheelchair isn’t at issue at this point. Needless to say, she is simply too weak to hear this stuff.
Mom,
Did you ever wonder why I was so angry as a young man? Or why I only had a single friend when I was going through school? You should remember the angry tantrums that I used to pull. The anger I showed you was caused by a deep, horrid certainty that I was useless and doomed to failure. That I could never trust people or achieve anything of moment in life.
While a lot of this is standard fare for a teenager, you never informed dad about any incident as far as I can tell. He was never the kind of man to sit still for such nonsense. Did you stop to think when you told me as a very young child that I was a “surprise?” It didn’t take me long to figure out that “surprise” meant accident, and that you didn’t intend to make me. From that time on, I wondered if everyone would be happier without me, or if I even was truly wanted in the home.
What about the grades, Mom? You know, when I began failing in high school and you would hide the facts from Dad. Of course a child would accept help in such a way. I didn’t want to be in trouble at home AND school, after all. It’s a repeated pattern with you.
Consistently, you would “shelter” your little boy from Dad’s wrath, which was rather corporal, yet never over the top. Yet you failed entirely to protect me from sexual predators. Yes, mother I was molested as a child. I, your little boy, was fucked by a teenage girl belonging to a “trusted” family. My innocence was gone by fourth grade, Mother. Then, listening to your gossip, I learned that you never really even liked that family and thought their mother to be disgusting and immoral. Why, then, was I allowed to mix with them? Did you never wonder why I didn’t have any friends or why I quit playing with the other children from that family? I really believed that my molester was my girlfriend. You have no idea how confused and hurt I was when I saw her with a boy her own age. I had no one to confide in, and as children who are abused often feel that they would get into more trouble.
You were already struggling with demons of your own, of which I had known a little from the time I was in second grade when you were first hospitalized for “stress.” Junior high came around, and while I seemed to be okay, inside I was dying. I felt completely alone, as sex abuse survivors often do. I went through those three years with one friend who I met in fifth grade.
Then, you decided you were divorcing Dad. We moved out and lived for a few months in another town. You went back to father because, as I later found out, he bribed you. Yes, he cashed money from his retirement account and gave you a lump sum of cash to spend at your discretion. That caused me to lose a lot of respect for you. That was a single summer and back to the home. It was fucked up mom.
Junior high progressed. Even then I would have horrid angry outbursts of hopeless despair which should have caused some questions. Mom, why didn’t you do anything to get me help then?
High school came along and I gave up my choir aspirations. I didn’t have the confidence to try out for the high school choir, even though I had pulled straight A’s in all my choir work for junior high and earned a place on the Honor Choir. Indeed, I began to give up on everything then. I didn’t have many friends and had no visitors or invitations during summer breaks to anything. You never wondered why I never went steady with a girl, and asked only one out, and only then after repeated assurances that she would say yes? I pushed away my best friend in this time, in favor of what I thought were better friends. I’m lucky he forgave me, when I asked for his forgiveness.
I joined the Navy, only to flunk their psych evaluation and be sent home after five or so weeks. So there I was in the airport, defeated. You were so out of it, Mom. Dad was obviously exhausted. Apparently, it was getting near to another stay in the hospital for you. Not that they did you any good, except for to get you to decide to pretend everything was okay, so you could get out. Do you remember that ride home and the crazy things you talked about? In any case, Mother, you couldn’t handle your little boy leaving and broke down again. I needed some strength and real help then, Mom. But you, once again, were in trouble. I felt guilty by even thinking, “Dammit, I need my parents right now!” But Dad was dealing with your outbursts and insomnia. And so, once again, I kept my secrets and felt an utter failure. I know you’ve had difficulties Mama, but this isn’t about you right now.
You must realize that I was neglected by you in a few ways. Sure, you kept the house clean and meals on the table, but you never would inform my father of things that he had the right to know, like my failing grades. I was allowed to withdraw unhealthily into fantasy-like video games and television. You didn’t make me do the the things that I should have been doing, Mom. Dad could have helped you with that, if you would have let him. But I knew you, and I played you to keep the bad grades secret, just like any teenager would do, given the chance.
You did all that shit with my older sister, to the Nth degree, keeping her from facing the music for so long that she’s now a drug addict with no job, car, house, or self-respect. I escaped that because all along, since second grade, I have resented you. Yes. Resented that I couldn’t have a mommy that didn’t pick crazy fights with dad as we were watching a baseball game, eating dinner, or whatever. A mommy that wouldn’t freak out at tiny problems and scare the shit out of me with lies fashioned to keep me safe, that only served to inhibit my sense of trust in the world. A mommy who didn’t get so tired she wouldn’t talk to me or Dad and had to be taken to hospital on regular intervals.
I love ya, Mom, but you sure fucked up bad.
Four kids, one alcoholic, another a depressed, self-loathing mess (me) and a drug addict forever child. My oldest brother is the most well-balanced of the four of us, and I truly believe it’s because he spent the greater majority of his time with Father. Why did you “protect” us three from Dad so much? I have a good relationship with my father now, but my brother and sister haven’t spoken with him in years, in any meaningful way.
Do you know why dad was so grumpy all the time, mom? Because he slogged his ass of in a coal mine for twelve hours a day, six days a week and came home to either a batshit crazy or a sweet as pie wife–he never knew what to expect. He paid your way, Mom, and you resented him for it! He never made you stay home, you could have had your own money. Instead, you spent him into debt with secret credit cards, on more than one occasion. I remember the fights. They were the only ones that had any kind of justification. In other words, Dad was right!
You even kept him from forming decent relationships with the majority of his children.
Mom, I love you, but you have messed up three of your kids. That is a fact. I am now thirty six and struggle daily with feelings of empty, horrid loneliness and depression. These things are only bigger for me now, and I resent that you had every reasonable signal that something was very wrong with your child and you did …nothing. NOTHING!
I am now a father, and if one of my children began behaving the ways that I did, I would most certainly get them to someone for help. It’s not normal to rage the ways I did. Now I know it’s because of the injustice of abuse and the feeling that I wasn’t really wanted in the home.
I’m fixing these problems now, Mom, and without your help, just as before. It’s fucked, and I’m still kinda pissed off that all the signs were there. Sure, it was the early nineties. You watched enough talk shows to see at least one child psychiatrist telling parents signs of trouble in a kid. This fucking rock I’ve been toting for so goddamned long is a big bastard now. I’m pissed that I’ve had to do that carrying for so long. I’ve learned so much in my reading that I know that things wouldn’t be so bad NOW, if you would had done more THEN. Maybe you could have found yourself some decent help along the way, too.
I’m taking action now, Mom. I’m a big boy and have been taking care of myself. I’m getting the help I need, but my problems are compounded now by a failed marriage and the breakdown of my little family. This isn’t easier. Time didn’t make this shit go away. Indeed its only become worse.
I will overcome.
I love you mom. I hate you too. I don’t like it, and certainly this is going to be something that I address in therapy. But I’m doing it, finally, and that’s the point.
by Band Back Together | May 19, 2016 | Anxiety, Borderline Personality Disorder, Depression, Divorce, Post-Traumatic Stress Disorder |
I have mentioned before on this blog that I’m a writer. Sure, an amateur certainly. I decided the other day that perhaps it would be useful to write a memoir of some kind, documenting the conditions of my childhood. In a way, I suppose I would like to see my own progression to this state on paper. If I ever complete it, I suppose it would help someone understand the nature of mental illness and how it can be one big event or many tiny ones that really trigger depression, anxiety, borderline personality, PTSD, etc.
The thing is that I’ve been remembering things that I hadn’t thought of in a long while. Like how much I loved the Dukes of Hazard when I was a kid. I would call my dad Boss Hog and make him buy a cigar to smoke. The thing is, I have always had this tendency to see the worst in everything. It’s not new, and it would be easy to place the blame on my ex wife.
Truth be told, I have always had this sense of not belonging. Whatever my condition is, I have always had it. To be sure, it hasn’t ever been so intense and difficult to deal with. But it’s been, to borrow a phrase, a death of a thousand cuts. Sure, there were some really bad incidents that went down. By and large though, I think it was isolation that really irritated this condition I bear.
Why are so many authors or artists also burdened with this malaise? Does the disease of the mind inspire the art, in an artist’s effort to express themselves, or are the traits of an artist a combination that is vulnerable to mental illness?
All I know is that for me, it seems to be a combination of these reasons. I suffer from insufferably high standards. This is why I am so pessimistic. Eastern thought cautions us against the formation of expectations, and boy do I ever have a knack for letting myself down. My standards are so high that I defeat myself. I realized this while I was playing fetch with my dog the other evening. I expect everything to be awesome and perfect the first time. Always have. And I am crushed by the letdown. Either because others didn’t perform to what I expected or because I failed in some way. Not that my dog wasn’t fetching, but only because my damn brain never stops thinking.
But both of these conditions arise from my expectations of perfection. It doesn’t really reflect on my capability nor that of those around me. Perfection is impossible. I cannot remember who the author was, but it was a book about recording music. He said that the pursuit of perfection is self-defeating, because the moment we get close to perfection, we realize how it could still be better. Perfection is an endless climb.
Idealism has been somewhat of a plague to me. For this reason, I have two books, several dozen short stories complete with another book in the works along side of a memoir. I know I will probably never submit them for editing with intent to publish because of my own expectations. They won’t ever meet my own standards, so why would I expect them to meet the standards of others? I need to kick that. I’m actually kind of a good writer and nothing ventured, nothing gained after all. Perhaps, if tamed, my sense of idealism can be an ally.
By-DigitalTreant
by Band Back Together | May 17, 2016 | Anxiety, Depression, Suicide, Unemployment |
I am unemployed. I have been unemployed since I was fired on February 10th. I worked at a pretty famous law firm, but it was in areas of law that I wasn’t familiar with. I also made dumb mistakes. Also, I felt that the other secretary (besides me) sabotaged my efforts to fit in at law firm. I was only hired in early November. I want to emphasize getting fired was my fault. I made too many mistakes; I’m not blaming anyone but myself.
I am taking being unemployed very hard. I feel like something has been ripped out of me. Part of my identity is my career, and it’s been taken from me, until I find a decent job. While I was growing up, my father owned a successful farm, and my siblings (I have six other siblings), parents, and whole family worked together on the farm. My parents farmed well and made a lot of money. They treated the farm like a 2nd religion. It was thought about, talked about, dealt with every single day! We had dairy cows and those dairy cows HAD TO BE milked every day (unless they were within a couple of months giving birth), twice a day. If they weren’t, they would suffer a disease called mastitis (which women can also suffer from). I didn’t like farming. I didn’t like working every single day from Sunday to Sunday. I hated getting up during the 5 o’clock hour, and still do to this day. I was the fourth son out of five, and the first son not to farm.
What I’m trying to say is that working has always been very, very important to me and growing up it was treated very, very seriously. So, when I see how my Dad and my siblings have flourished and I have been fired several times, it just hurts so bad. I’m just not as good as they are. I love working, and making money in my chosen legal profession means so much to me. Succeeding means a lot, possibly, too much.
The place I worked is somewhat famous. It was covered by major local newspapers, Crains, Reuters, and even once on Comedy Central this summer. I felt this was a golden opportunity. If I could succeed there, then it would be like a gold star on my resume. When I worked there, I had a sense of accomplishment. If I could even work there for a year or more, it would have helped immeasurably. But I didn’t. I came up short, my opportunity GONE.
My Mom, my brother, sister and I all have/had depression (Mom died). It’s part of my heredity, and mine has been made worse because I am now unemployed. I won’t commit suicide, because I owe it to my girlfriend and kids not to kill myself. I know how that would hurt them.
But, I wish I were dead. If if someone were to shoot me and kill me, and if I were allowed to speak just before I died, I would say, “Thank you!!” to my murderer. I wake up feeling bad. My depression is somewhat better because of my girlfriend. No one could ever ask for a better life partner. She’s so altruistic. I had a great mother, but even she was not as altruistic as my girlfriend.
I go to a psychiatrist. I take an anti-depressant. I have anxiety disorder and take medication for that as well. I go to a counselor. I go to Church every week, and that helps a lot. I know I should be happy that God loves me, Jesus died for my sins, and I am grateful for being saved, but I am suffering right here, right now.
I want/crave a legal job or something of comparable pay. I want it so bad. The very thing I want, is the very thing I’m being deprived of. It’s cut me down. I’m diminished as a result.
by Band Back Together | May 9, 2016 | Anxiety, Child Grooming, Child Sexual Abuse, Depression, Fear, Guilt, Shame |
I’m currently 22 years old, and for so long, I felt as if I had my childhood taken from me.
Before I explain my story, I do want to say that I didn’t realize that my mind was capable of taking what had happen to me and hiding it away inside me.
I still felt guilt and random depression … yet I thought I was ‘over’ it.
I was not.
Once you understand what is bothering you, it can be fixed.
When I was a little girl, around the age of 6, I looked up to my uncle. He’d take me to the store all the time to pick out whatever I wanted, he let me eat candy when my mom wouldn’t have been okay with it, he stood up for me if I was in trouble, and he showed me attention when most of my family didn’t at that time.
I loved my uncle, and he had gained my trust. He was the kind of guy you could count on. He was always being there for everyone. He was the man who you could call at 3AM if your car broke down, and he would come help you – maybe even buy you a new car.
Well, little did I know, being so young, that it was all nothing but a setup … a setup that took years of gaining everyone’s trust, going to church every Sunday, gaining a reputation as a well-known man of the community, with many people who looked up to him.
I don’t recall the exact day the child sexual abuse began but I do remember being told that I could trust him.
He’d say things like, “I’m helping you,” and “I’d never hurt you.” For a while, he didn’t touch me, but he’d gained my trust, expecting that I wouldn’t tell anyone about the child sexual abuse.
I didn’t tell a soul.
At first, I was so young that I felt as if something was just kinda … off, but I wasn’t sure if it was wrong or not.
The child sexual abuse went on for years.
Every time the kids’ cartoon Tom and Jerry would come on TV, he’d have me go into the den and lay on the couch. His wife would normally be cooking in the kitchen or off doing something during that time.
There were glass mirrors in the TV stand that he would open a certain way if his wife was home, so he could see her reflection off the glass if she was coming that way.
He would make me lay on my belly while he touched and rubbed my body. He never had sexual intercourse with me.
This would go on for years, almost every single day. He always complimented me while he would touch, and after a while I finally started to realize that what he was doing to me was wrong.
Even then, after years of having dealt with that man, I still was scared to tell anyone … mainly because I knew the family loved him.
He’d won everyone over, and I thought nobody would believe me so I had to act like everything was fine.
I remember running from him the last time he tried to sexually abuse me and I told him I was going to tell the woman who lived across from him as his wife was gone that day.
My mind will not allow me to remember what he did or said but I didn’t leave. I didn’t go back to his house after that day. I talked my mom into letting me ride the school bus to a friend’s house instead of my uncle’s.
I didn’t explain why.
I still held in what happen to me, and I didn’t tell until I turned 18 years old. I was working at a new job, in which I had to be around new people and older men, which gave me flashbacks to my childhood. I called my mother and finally told her the truth. We kept it to ourselves, it felt better to at least tell someone what happen.
Then, as I got older, I was put on medication to cope with depression and anxiety. I never understood why until I went back to his house to get my closure with him; to FINALLY him how I felt.
By this point, I was an adult with a child of my own and a fiancée. I went into his home by myself, while a close friend waited in the car. I walked in ready to get it over with.
At this point the man was now 80 years old, yet still was aware of what he done to me. I started my conversation by telling him that I wanted to understand why he did that to me, and I told him that what he did was wrong.
He actually admitted to what he did, yet wouldn’t apologize.
He told me that he saw nothing wrong with it. He also said me, “Well, you’re engaged, about to be married soon, so I see nothing wrong with it.“
Once he said that, my mouth dropped open.
He actually expected a thank you from me!
His eyes confirmed that. He had the audacity to explain that he’d groomed me as a child; that he prepared me for my future husband. I explained how wrong he was.
I made it very clear that he had nothing to do with my engagement, nor my life, aside from my anxiety issues. It seemed to surprise him that I’d said that. It seemed, in a way, to hurt him.
I never got my apology from that man, which wouldn’t have been a meaningful one anyway. However, I did leave that day feeling as if a weight was lifted off of me.
It made me view life better after getting to stand up for myself.
It may sound crazy, but just breathing felt good again. The trees looked more alive and beautiful than before. I could actually laugh with my friends and family without feeling like I was faking it all the time.
I realized that the sexual abuse wasn’t my fault. It’s never the child’s fault, no matter what. Adults know better, a child is still learning and understanding. It’s always wrong for any man to preform any sexual act on a child, whether it’s verbal or physical, it’s always wrong.
It’s going to cause you to think; it might out bring feelings you’ve hidden for years, that just come out of the blue. And yet, I firmly believe that you can overcome the madness.
You’ll probably never understand why it happened. Being abused as a child makes the saying that “everything happens for a reason” feel untrue. I believe there’s an end to all bad.
There’s also karma, which I believe will be much more powerful then him answering to me.
There is a definition for “grooming.” Being groomed for child sexual abuse does exist, and it is wrong.
Never be afraid to speak, run, tell your doctor, teacher, someone you know can – and will – help.
There can be a stop to the childhood sexual abuse. Never believe the lies of the ones who want to bring you down or hurt you.