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Father’s Day

Emotional abuse.

Not a word I ever thought I’d associate with myself. And yet here I am, writing this post.

It’s a little confusing; it didn’t always feel like it does now. I’m the eldest of four kids, and I remember my dad, for the most part of my early years as a different person. He was sweet and funny, he taught art and gave us drawing lessons on weekends. We lived on one farm, then moved to another. He sang this song about a little baby duck. He watched movies with us. He bought us watercolor paints.

Unfortunately, that’s ancient history. And it stops somewhere – I’m not for sure of the date, but I do know that it stops around the time I was seven.

It’s been a long time coming, or it feels like it, but that’s not my dad anymore.

These days, he has almost constant migraines, he treats his kids like something that should be “useful” to him, is critical, cruel-worded, and dismissive.

It’s eggshell territory – I’m always stepping on them, can hear them crunch under my feet when he’s around. He’s not friendly and there’s no camaraderie and joking. There’s only what we’re supposed to be doing, and that we’re not doing good enough.

I don’t know if that was always his personality or if it’s a new thing. I do know that he’s gotten progressively worse, so much so that now, if I didn’t know him before, I wouldn’t realize it used to be different.

My sister, who’s 12, doesn’t realize it. And I remember what it was like the first time I realized that not only was he being abusive in an emotional way, but that I was scared of it.

It was Father’s Day, 2014.

He had a headache, which wasn’t news, and everyone was done with breakfast and scattered around the house. Some tiny thing flipped him out – and it was my fault. I’d been in my room, reading quietly out loud because it helps me concentrate.

My family calls me out on it and doesn’t like it, so I try not to do it often, but for the most part they ignore it.

This time he didn’t.

I guess it was the straw that broke the camel’s back, or something. He blew up, stormed around, slammed stuff on the kitchen counters, screamed his fucking head off at my mom.

Normally when he’s angry, critical, trying to correct something, or give us a job or order, he doesn’t shout. He uses this *reasonable* and patronizing tone that says he’s disappointed in you, that you’ve really just been incredibly incompetent and useless THIS time, and he hopes you’re happy with yourself.

It’s the worst thing in the world.

Well, the shouting was worse.

My sister ran into my room and we hid under my desk until he left the house and my mom found us there. She was half-laughing, half-crying, like she wanted it to not be as big of a deal as it was.

I ran out and hid in the field crying for the better part of an hour, not wanting to be in the same airspace as him. When I got back, he was waiting on the front porch. I remembered that he wanted to talk to me. I sat there feeling sick as he went on and on, this self-victimizing speech I couldn’t stand hearing.

I wanted to tell him it didn’t excuse his actions, but I started crying instead. He put his arm around me, which just made it worse. I wanted to get out of the entire situation, and he wasn’t trying to comfort me. He was using me as a way to comfort himself.

Since I’m at school, I don’t see as much of him. I think my second-youngest brother realized that, because he got a job away from home this year and his own apartment. I don’t have a license, so I couldn’t make that happen, and when I’m not working I’m home all the time. It’s not much different that it was that day or before that day, except that now, I notice it.

Today, it was towels in the bathroom. He called all of us in to see how there was a towel on the floor and another one *improperly* draped over the rack. He gave us this lecture on the *correct* bathroom procedures, and as we were leaving I said something to my sister, which I’ve been using to comfort myself and get myself through the constant tension in my household:

I’m a spy, just witnessing and gathering data.

He heard it and asked me what I said, so I said I hadn’t spoken. He told me I was being childish, acting like a “whipped puppy.”

And the thing is?

That’s EXACTLY how I feel, and I can’t stop it.

I don’t even know if it’s as bad as I think it is. Nobody else in my family goes on crying jags about it. My sister’s a feisty little fireball and fights back. My younger brother doesn’t give a shit. My mom doesn’t like his attitude, but also she defends him and sympathizes somehow.

It’s just me, hiding in the bathroom choking on tears. Because every day in this house I feel judged and afraid and anxious. I don’t like to go anywhere with my father.

I don’t feel I HAVE the same father I did when I was six and loved him. I don’t feel like I love him now. I don’t respect him anymore, and I don’t even particularly LIKE him.

And for some reason the same thought keeps going around and around in my head.

Someday, if I get married, he’s going to want to walk me down the aisle, this person I don’t respect or even particularly like.

And I won’t be able to tell him “no.”

Is It Possible To Recover From Trauma?

First, let me share some things I’ve learned from several sources.

According to some sources, as children, our brains are extraordinary at forming new connections. We are more able to learn any number of skills as children than as adults. We retain a certain amount of neuroplasticity into adulthood, but most of our neural circuitry becomes fixed.

According to some sources, in childhood we are mirrors. That is, especially in childhood, we are prone to taking what others give us in regard to our self-image. This may explain why some of us grow up with decent self-esteem levels and others have little to none. Certainly, we still are mirrors as adults, but we don’t usually morph ourselves to conform to what others say or do as often.

Bullied kids tend to take on the names that their bullies give them.

Children who encounter abuse of any kind tend to shape themselves according to that abuse. We become the”‘ugly” or the “stupid” or the unwanted” that we’re told we are. We become desperate ones, seeking the approval or protection we never got as kids.

So, I must ask the question if it is truly possible to recover from childhood trauma and abuse?  

How do we replace the experiences we were deprived of as children when we become adults? It’s not possible to delete our bad memories like some corrupted file and replace it with an error-free one. This is something our machines have the advantage in; when their parts and pieces break or fail, they are easy to replace. The myriad experiences that make up an individual personality are unique and irreplaceable.

But how many people wish that certain things would have been different?  

In my own life, I wish that my childhood was different. That certain things never happened. I have no idea this would differ among us.  What would that man be like? Would things have been the same yet better?

I can’t have an affectionate father. I can’t have a healthy mother.

I live in another town, away from the abuse. I can’t have it any other way than it is now. It is what it is.

How do I heal this gaping hole in my heart where self-confidence is supposed to be, when the experiences are long gone?  

Self-care goes a long way.

Flipping all the negative over and telling yourself good things can go a long way.

But there are times that all of it seems so hollow. That little boy can’t be protected. The damage was done long ago. The boy is now a man, all the wounds are scarred over. Permanently.

When I imagine the future, it’s one in which I’m alone, friendless, without comfort. I feel like a dumbass when I daydream a better future. Companions and friends who actually visit. Maybe even a significant other.

I KNOW it’s because I had shitty experiences growing up. People who have had a healthy childhood EXPECT more of the same from the future. They have no problem imagining nice futures.

After all, their inner children feel happy and safe. They aren’t disbelieving when someone misses them or expresses their admiration. They probably think “Yeah, I am pretty great!” I don’t believe compliments. I attribute them as ignorance or politeness. I’ve made a conscious effort to be gracious when I receive a compliment lately, but my initial reaction, is always, at the core, negative.

So, since these experiences are fixed, can we ameliorate the past by adding new experiences? I don’t know.

At the end of even a great day, I still feel ready for the other shoe to drop. The few fun dates I’ve had as a single man don’t engender any hopeful attitude for me. I just give up on these relationships, believing I’m just getting to the inevitable conclusion. These past few years have been hard.

I’m alone half the time.  I don’t have a ‘circle.’  The friends I had are no more.  They have lives.  I don’t have anywhere to fit in.  Everywhere I go, I feel like an interloper.  Permanently sidelined.  Wallflower.  I want to move, yet I cannot imagine what would be different.  After all, no matter where you go, there YOU are.

Sometimes I fantasize about a new life.  Friends who visit and invite me to things, self-confidence, a real relationship with someone who is my best friend AND lover.  I want so desperately to have this new life, where I’m not ashamed of myself in public.  Where I make eye contact with people and put my best foot forward. Where I’m not embarrassed by ME.  In this new life, I’m not scared of rejection.  After all, in this fantasy, I actually love myself, so rejection doesn’t affect me as much as in real life.  In this fantasy, I live in a place where I have lots of friends who share my interests.  We go out and play music on weekends.  We talk about the books we’re reading and the ideas we’re thinking of.  We have FUN.

Then I wake up.  Yep.  Still the same life.  No friends.  Little fun.

I give people great advice that I cannot follow.  I’m quite sure that everyone except me has a great future ahead of them.  I try to get them to see if they don’t like their situation, they can change it.  I tell them that there isn’t anything they cannot have if they are willing to work toward it.  Why in the hell can’t I believe that for myself?! It’s that little boy, cringing away from a world that didn’t accept him for who he was.  The world that took his innocence and left only self-loathing behind.  The little boy who escapes into books to hide his big, goofy teeth and glasses.  The little boy who was told by his peers how geeky, nerdy and weird he was till the little boy wouldn’t even make eye contact with them any more.  The young man who played hundreds (probably thousands) of hours of video games to escape from a world that seemed to have no place for him.  The little boy who would become the man that now wishes everything were different.

I’m so careful with my children’s self-image.  I don’t allow name-calling, even in jest.  I don’t allow angry harsh tones of voice.  I don’t allow them to call themselves names.  I make sure that they treat others with respect.  I play with them and make sure they get to do the things they want to do.  I suppose, in the end, they deserve to have what I could not.  Compared to them, my matters don’t add up to much.

I’m dead scared of what I’m going to do when they’re adults.  I know I need to get something going for myself, but I have no idea where to begin.  Bars and churches hold no hope for me.  I cannot imagine any possiblities for the man I am.  I don’t mean to sound like a complete downer, it’s just how I feel.

I know! Those blokes in bowflex ads seem to have it figured out.  Just get in shape and your world will right itself!  That’s what I should do, right? A tight bod and a convertible will fix everything! Sarcasm off…  I’m not at all ignorant to the fact that I just need to take my own advice and pursue my desires.  I just can’t really believe in a good life.  It may seem like very small potatoes but I can’t summon the effort to try because I don’t believe it will do any good!

This is what I mean about these formative experiences: they have me so quagmired that I all I can do is maintain some kind of routine.   The positives I’ve accumulated in my life fade into the darkness that I’ve carried from childhood.  All that’s left is….nothing.  No hope, no reason to plan more than a couple days to a week ahead other than for the kids.  I don’t even know what it means to be excited anymore. The only kind of anticipation I know about lately is anxiety.  The skills I do have for coping only do so much.  The past is still there, just around the corner, shading and tainting everything in the present.  All because of a crappy childhood.  All because of events that occurred more than twenty years ago.

Please Answer!!

There are some days where I feel like telling someone about my cutting. There we times where I am standing next to my parents or teacher and wanting to tell them but I chicken out. I think I am afraid of the consequences of how people might react or what will happen after I tell them.

Please, if you have any knowledge or experience of self harm, answer these questions:

How do I know if what I am doing is cutting or self harm?

How do I finally tell someone I am cutting?

How do I know if I am cutting for attention?

Thank you guys so much for the support. Last time I posted, I was ten days clean from cutting (if what I’m doing really is cutting). Sadly, I cannot boast this anymore. I am under 15, and going through a lot of the stress that comes with 8th grade and high school. Two days ago, I cut small lines in to my skin from the beginning of my hip to just below my ribs. I can tell you that I had one hell of a time not showing the cuts when changing during PE. Please answer my questions or give advice.

All That You Can’t Leave Behind

The desk is always manned by a sweet-faced volunteer to help you find whatever you’ve lost or find your way, except when, of course, you cannot find it at all. There are flowers there, too, beautiful flowers, always fresh flowers. Usually lilies are mixed in, fragrant lilies, reeking of death and funerals, but the flowers are so beautiful that you can almost forgive the scent that makes you want to vomit.

Over there is the place you cried until you dry-heaved as you took your infant daughter to her third MRI in her first week of life. And just past that is the chapel where you prayed for her life. The stained-glass windows during that frigid February day shone a cold bright light as your daughter slumbered through an anesthesia coma, and you tried to forget all that you knew about neurosurgery.

You prayed with all of your soul.

Above the chapel is the waiting room where you sat after you’d dropped your daughter off into the arms of her neurosurgeon, hoping that the last kiss you gave her warm, delicious head, wouldn’t be the last kiss you ever gave her. You sat in that waiting room with the three people who cared enough about you to show up and hold your hand and you choked back tears as the operating room nurse brought you back a bag of your daughter’s first hair in a bio-hazard bag.

You held that bag and wondered if that would be all you had left of her.

Below that waiting room is the gift shop where you dragged Nathan, someone who you will always treasure for being a friend when you needed one most, to buy your daughter something hopeful. A necklace. Carefully, you pick out a necklace that you will give your daughter and someday tell her, “Amelia, Princess of the Bells, Mommy bought you this when you were having your brain surgery.”

It’s a very beautiful necklace. A crystal encrusted heart on a simple silver chain in a velvet bag. It is perfect.

You hope she knows that this necklace is very, very important.

Two floors and a yawning corridor away, is the happy floor, filled with women and new babies, where your life was forever changed with seven words, “Becky, there’s something wrong with your baby.” A new world was created then, a secret place only you could go, this land of tears.

Your soul broke.

Up above that room, down another winding corridor, you screamed as they wrenched your nursing baby from you. Your breasts wept, too, as you cowered in that bed, terrified, in your secret place, your own land of tears.

In the dark basement, worlds away from the happy new parents above, you joined the ranks of the hollow-eyed ghosts in the NICU as you signed in and out to see your daughter. There, at least, you didn’t scare anyone with your eyes swollen nearly shut from crying and cheeks raw and bleeding from hospital grade tissues.

Above her bed there would be her bed post-surgery in the PICU and seeing her in a gown that bore the same logo as the hospital you’d worked at in nursing school made it almost easy to pretend this was all some vicious nightmare. That maybe you’d wake up to a normal, healthy baby.

Then your daughter would cry, her voice raw and hoarse from intubation and you knew this was your new world order.

When your other children came to see their sister, you’d rearrange your horrible face into a mask of what you hoped would pass as cheerfulness, ply them with candy, and hope that they wouldn’t look too closely at your shaking hands or tear-stained face. When they screamed, “I want MOMMY!” as they left for the day, you felt torn between the two worlds, one of which you’d just as soon leave behind, too.

All corridors eventually feed into the cafeteria, where you remember laughing for the first time in months. It was a jangled, strangled sort of sound, but there it was: a laugh, from your mouth, and it was real.

Down by the statue of the heart or perhaps children dancing in a circle is where you waited with your daughter as you took her home with you for the last time. Surrounded by all of the pink things you could find, balloons deflating slightly in the cold February air, you were exhausted, but ebullient: your warrior daughter had made it.

A mother had never been prouder. You held her car seat close to you as you whispered to her sleeping cheek, “You made it, my girl. You’re a fighter like your Momma, all right.” This time, for the first time in her life, when the tears wet her cheek, they were the good kind.

But late at night, when the rest of the house sleeps, these are the corridors that your mind roams, over and over. Your memory, photographic, can recall everything with the sort of clarity that makes you relive those days constantly.

You are forever delivering that sick baby.

Constantly having her wrenched from your arms, always back in those terrible moments roaming the halls, seeing the same desk clerk, smelling those awful lilies, dry heaving into the diaper bag.

The sadness is omnipresent and yet nowhere. It is the new world order.

Save for roaming the corridors all night every night, you haven’t been back to those halls since your daughter had those awful thick black stitches removed from the back of her head.

You must return. New problems, a new specialist, means one thing: you must face your demons and return.

A new desk clerk and a new flower arrangement await you in the official looking building in which you found absolutely no comfort and now you must face up to walking these halls once again. It’s likely that you’ll cry. It’s likely that you’ll dry heave. It’s likely that no one will understand your reaction to this big official building. It’s just a place, after all.

But this is so much more than a place. It’s where the old you shriveled up and died and the new you was dragged screaming into the world.

So you and your ghosts walk the corridors all night every night, reliving the worst parts of your life, wishing they could be laid to rest, knowing that they never will.

Ever.

—————

This post was written by Becky Sherrick Harks and originally published here, on Mommy Wants Vodka.

Her Diagnosis

Thirteen years ago this past July our lives changed forever.

We had already suspected that something was not quite right with Anna.  She had stopped nursing after a few days.  I assumed that it was my fault, and since I was afraid that she was hungry, switched to formula and bottle feeding.  She did well with that for a few days, then it seemed like a challenge just to get her to drink an ounce.  We called the nurses on the maternity floor where she was born, and we were reassured that she probably just had gas and an upset stomach because of the switch and not to worry.

I was still worried, but we had our first post-natal pediatrician appointment the next day (July 25), so I knew we would get answers then.

In the mean time, I received a phone call from someone from the state of Michigan.  I’m not sure, my memories of that are vague.  I remember that she told me that Anna had potentially tested positive for one of the disorders in the newborn screening test, and we should go to the hospital to get blood drawn, to confirm it. I was concerned, but was still focused on our doctor’s visit.

When we went to see Dr. Simms, her pediatrician at the time, as soon as we were called back to the exam room, she greeted me, looked Anna over, then excused herself to get one of the other doctors. I guess she wasn’t sure how I would react to what she would tell me next.  When they returned, she explained that Anna had tested positive for maple syrup urine disease (MSUD*), it was very serious, and she was very sick. The only specialist in the state who saw patients was located at University of Michigan, and we were expected down there, and we need to leave as soon as possible.  I remember that her southern accent was soothing, and the other doctor gently held my shoulders and guided me to a chair, but my mind was in a fog.  I didn’t understand…. Anna was born healthy.  Both of her Apgar scores were 9.  That meant we were supposed to live happily ever after.

Right?

Right???

At the time Lance was working at Hafer Hardware, and it was lunch time. Dr. Simms allowed me to use the phone in her office to call him. I called the store, but he had just left for lunch.  And of course, this was before we had cell phones. I’m sure it was only a few minutes before he finally called back, but it seemed like an eternity.  After reaching him, Anna and I headed home to pack before we headed to Ann Arbor.

On the drive to U of M I poured over my “What to Expect” book.

MSUD wasn’t in there. I had heard of it, but only as an ailment of a serial killer in a crime novel I had read, not as a real disease.

When we got to the ER at U of M, Dr. Allen, a neurologist who treated patients with MSUD, and a gaggle of med students crowded into the small room. I remember that he removed Anna’s diaper and passed it around for the students to smell.  He then took a swab of her earwax for them to smell.  We were completely flabbergasted… what did he think he was doing?

We didn’t realize he was doing it to show the students that both smelled like they had been smothered in Aunt Jemima’s.

You see, there were signs that Anna has MSUD, but we never picked up on them.  She had a very high pitched shrill cry, but we joked that she’d sing opera someday.  By the time she was 3 days old, she tensed her muscles so tightly she rolled herself over.  We bragged that we had a wonder baby who was months ahead developmentally. Her diaper smelled sweet and syrupy.  We chalked it up to being new parents, and being so in love we thought her dirty diapers smelled good. And what we thought was fussiness with the bottle and me not being confident in nursing was actually because her brain had swelled so much that she lost the suck and swallow reflex.

By the time we were in PICU, she had an IV in her scalp, because she was so dehydrated that that’s the only blood vessel they could use.  She had an NG tube giving her nutrition.  She was hooked up to heart monitors and pulse-ox monitors.  She looked so tiny and helpless there in the bed. We had never felt so helpless as parents as we did then.  That day is one of the few times I’ve seen my husband break down and sob.

What information we were given about MSUD over the past few days was overwhelming.  Most of the official definitions included two very frightening likely outcomes: mental retardation and death.  The prospect of having a child with a restricted low protein diet was daunting too.  Would we need to become vegetarians, too?  If we wanted to eat meat, would we need to hide it from her, making late night drive-thru runs to satisfy our cravings? 

Those fears seem so trivial now, but they were so real to us then.

Over the next two weeks, Anna got stronger.

After she got out of the PICU, she was moved to a regular room.  After she regained some weight and was able to take feedings by bottle we were able to come home.  She was sent home with the NG tube, as she was still taking about a quarter of her formula that way.  Shortly after we got home from the hospital she grabbed the NG tube and pulled it out, flinging stomach acid all over me.  I should have known then that it would serve as foreshadowing for how the next thirteen years would go!

Thankfully, we were able to remove the tube after a week.

As I think back to those days, I also look ahead to what faces us.  When it comes time for her [liver] transplant, I know that we will face long days in the hospital full of tears, hope, fear, and prayers.  The big difference will be that this time, we will be filled with hope.

Hope that although we will be entering a new chapter full of uncertainty, we will be free of the fear that MSUD has caused over the past thirteen years.

*Maple syrup urine disease is an inborn error of metabolism.

My Lyme Disease Story Part II

Click here for Part I

Everyday I feel like I am going to die.

It’s pretty difficult to sleep at night when you are afraid that you won’t wake up in the morning, leaving your 18 month old motherless. And in the *capable* hands of your husband who, when it’s his night to make dinner, relies on boxed Mac and Cheese. Without me he’d probably revert back to Kraft, leaving organic Annie’s behind.

Neurologic disorders are their own beast, I think. The symptoms are literally all in your head, and yet you feel them everywhere. My feet tingle. Sometimes I can’t stand the feeling of pants on my legs because my nerves are hyper sensitive. My hands go completely numb some nights. Just a minute ago I was pretty sure that my tongue had stopped working and that maybe I was having a crazy allergic reaction. When I touch the skin of another person, sometimes it feels like it’s burning.

I’ve been to the ER too many times this last year. At first it was chest pain, which was treated with Ativan. Turns out I have chest wall inflammation. Advil was much more helpful than the anxiety drugs, but I’m a woman so must be crazy. Then I went to a doctor for what felt like the flu in the height of the swine flu outbreak. She listened to my heart, which had become tachycardic. She thought I was having a thyroid storm. Nope. Just Lyme disease. (It would have been helpful to know it was Lyme then.)

Lyme is also extra special because it causes psychiatric changes. Remember IRENE from the Real World? Don’t you wish you were my husband? I swing between uncontrollable anger to lying on the floor thinking about death. Suicide is actually the leading cause of death for people with Lyme. When I was first diagnosed and reading about the disease, I couldn’t figure out why there were links to suicide prevention lines. I get it now.

And then there’s the memory deficits. I’ve always had a really sharp memory. My mom hates me for it. Pray that your children don’t remember every phrase you ever uttered to them! I’m also a word freak and can kick some serious Scrabble ass. But now, I have trouble remembering the word for “countertop” (yep, happened the other day). I don’t know how to spell things. And I often just stop in the middle of a conversation unsure of what we were talking about or what I was saying or what I want to say next.

My stomach hurts. My knees ache. I lose my sense of taste sometimes. I can’t sleep, and yet I’m profoundly exhausted. I get night sweats. Bright lights bother me. And low lights bother me even more. I feel jittery and can’t sit still. But I’m too tired and sore to move. And I constantly feel like I’ve just gotten off a Tilt-A-Whirl, that’s how dizzy I am.

This is my life. I don’t tell you this for sympathy. I tell you it because it’s real. And frankly it scares the shit out of me.