Last year, Stand Up to Cancer asked me if i remembered what i was doing on september 11th, 2001. I did. I still do. This is what i wrote:
su2c asked on twitter if we remembered what we were doing eight years ago on September 11th, 2001. we were living in manhattan. i was on my way to work. the streets were filled with frantic police officers. it was horribly loud, as manhattan so reliably is, but you could feel an eerie silence beginning to settle over the city.
there was a mass exodus on foot. people fled the city via every bridge possible. the subways and trains weren’t in service. grand central was locked down because of the bomb threat. our building was locked down, too. a cell phone signal near impossible to come by.
nuggetdaddy was working in new jersey then and i was finally able to get a hold of him. we decided i would take the first train out of the city and he would pick me up wherever we could both get to. i made it on the first train out of grand central. it was sweltering. the train filled with an acrid stench. most passengers were covered in a heavy white dust; most in more than their fair share of blood.
it didn’t matter where the train was going, people just got on in hopes of making it out of the city. the train stopped at every single station en route. it took forever.
nuggetdaddy picked me up at the fleetwood stop and we decided to try to drive back into the city. we had pets and friends to check on. family and friends desperate to hear our voices. we were finally able to make it back in over some tiny bridge in the bronx.
by now the city was silent. there were no planes in the air, no people on the streets. when we woke up the next morning the wind had changed direction. the stench was unbearable. we stayed in the apartment all weekend, happy to be alive and at home with the pets and dr. roommate.
so, stand up to cancer, there’s your answer.
and speaking of stand up to cancer, did you watch the telecast last night? did you donate? did you help find a cure? did you save lives? did you stand up to cancer?
I push myself everyday often beyond my better judgment. Lupus and Sjogrens are not diseases that I can beat into submission nor is the depression that comes along with the chronic widespread pain.
Yes, I want to do more, but why can’t you see I can only do so much and some days a lot less?
You need to know something else. When you don’t make the time to visit me? it breaks my spirit in ways I cannot adequately describe. I may be broken, but I still have value. I am worth the trouble it would take to make the trip to my house. I know you love me.
I wish you knew how much I need you to recognize this won’t go away by ignoring it and by default me.
Reading other’s posts has been full of horror for me. I remember, I remember. I was a teenager feeling the full despair and desperation, of loneliness and self-loathing. I feel it still sometimes, and I have patched myself together as best I can.
My parents still say things they don’t realize are so hurtful, but I am gradually learning to see it. I know I don’t have to react or justify my actions to them, because I am finally accepting that it is their sad way of getting attention. The hysterical thing is, if I can stop from responding, stop saying, “But that isn’t true!” arguing my point, it stops. I change the subject or say nothing – telling myself I know what the truth is, and that is all that is important. I feel sorry they don’t see this, but it is not my job to be their therapist. It is not my job to make them over into what I want them to be – because that is an impossible task.
I have accepted that they will never be the nurturing, trustworthy parents I wanted them to be. They have never been, and looking hard at the evidence, there appears to be zero evidence that they ever will. My expectations and dreams of what “could have been” have created such misery in my life. What a liberation to see it! And so terribly sad – I grieved a lot about that. But letting that mirage go has brought a lot of peace, too.
I can enjoy many good things about them. And, if they ever become what I dreamed of, it will be a surprise and a gift, not a constant let down that they don’t. It is only my job to set boundaries on how much I will let happen before I leave or end the conversation. And, I have more and more friends who sometimes teach me about life – like a good mother or father would, and that’s what I so need.
My inner critic will always be there, repeating awful messages. But I can add good ones, screaming them out if necessary in the bad times, and I can teach myself to recognize those evil words for what they are. My parents loved me as best they could, but their love was twisted and mixed with their own blindness. Maybe their parents’ blindness as well – as they say in Al-anon, it’s the gift that keeps on giving. I know now, the awful things they do to me, were done to them, and they likely do to themselves as well.
Lately those nights I call the screams and knives (figuratively) where I cannot see how I am worthy for anything, I am starting to ask myself if the story line isn’t a bit seductive. Is it a grand play and I am the star? Oh, the horror of my self-loathing and awfulness. In this, I see I am getting the rapt attention I so want. The drama! The tears being ripped from the bottom of my soul! But really, do I need attention in this form? When I’m in the pit, I’m learning to ask, how is today so different from yesterday, when I had hope or felt good? The answer is always outside events that have given the critic in my mind more ammunition to say, “See you did it again, you will never be able to change.” Nothing about my inner me has changed otherwise. I might feel like life is not worth living and things will never change, but reality is that everything else in the universe changes. I am still the tender soul that lived in this body yesterday, and will be tomorrow.
Though at times I might feel hopeless, I will never take my life now because I am starting to trust that I am not alone. I am not the base and evil things my mind sucks me into thinking. I can step back from the story and know that no matter how awful I feel, it isn’t real. It’s like having a bad cold. It will pass. I am a good person, I just have to rewrite the tapes – like the playlist where you’ve gotten tired of a certain song. I put in good, and when I’m ready and willing, ask for the old to be taken out, or let it go.
We are already lovable and whole as we are. Perfect if we can only let ourselves see it. I am beginning to see how that might be possible; we can change how we act, but it’s about training the self-critic, not doing things to be more worthy.
Have you ever been swimming in the ocean and wondered what was lurking underneath you…eying your body…sizing you up to see if you would make a tasty meal? That’s what I call the breast cancer “shark attack syndrome.”
I liken the physical and psychological impact of a double mastectomy to a shark attack. It happens quickly and violently. In a matter of minutes you are struck hard and parts of your body are carried away into a vast ocean by a predator much bigger than you. It isn’t personal. The attack is random. You are left alive but amputated–stunned and with a life long fear of the water.
People who know about my diagnosis gawked at my chest like an accident scene on the freeway. Family, friends…they can’t help themselves from looking. I chose not to have reconstruction due to the lengthy recovery…an infant and a toddler don’t lend themselves to extensive plastic surgery. My daughter was 8 months old and my son was 3 years when I had the surgery, not exactly the age where I could be out of commission.
I don’t wear the prosthetics I bought…they constantly remind me I am amputated, and the first time I took yoga one of them fell out! My beloved yoga teacher said, “Just take them out, honey.” I never looked back.
Rough Waters
The journey through a breast cancer diagnosis with two small children was so very hard. I searched for the words to tell my son…
”The Doctor found a lump in mommy’s breast that isn’t good for her body and he has to take it out.”
Thanks to my son’s school and my amazing husband, we got him through it…but he STILL talks about it and recently asked, “Mommy, why don’t you have boobies?” At that point I realized my beautiful daughter would grow up never knowing her mother’s body to look “normal.” She only knows the scars. That is the day my heart broke forever. As if depression didn’t make me feel inadequate enough, now I felt like a carnie act. Come on down and meet the lady who was attacked by sharks!
I will never truly recover from knowing what I look like and what I represent to my children. But I am here to be their mom and truly thankful. Thank god I had it checked. The mammogram showed no abnormalities! If I had just had the mammogram I would have faced a diagnosis of invasive cancer and perhaps required chemotherapy or radiation. As of now, they tell me I am “cured.”
And I found it myself.
Not a minute in the day goes by that I don’t worry that it will return and take me from my children. Every woman who has had breast cancer knows exactly what I’m talking about. Every cold, every headache, every stiff muscle, still scares me into thinking I am still out there in that ocean—defenseless to another shark attack. What part of my body will they take next time?
I saw my mother lose her breast early in life. The same month I was diagnosed, she was diagnosed with Stage IV colo-rectal cancer. I watched the sharks circle her for six years, taking feet of colon, and eventually her life.
But it isn’t a pity party. I am glad I got cancer. It was a hell of a lot easier to deal with than postpartum depression, than life-long depression, than the cancer that is depression. And it got me immediately in touch with impermanence, and subsequently, my spiritual practice.
If I were thrown back into the dark ocean again and a recurrence reared it’s ugly head, I have my faith to thank for curing me of my fear of sharks.
When I was 15, I had terrible ovarian cysts so my doctor put me on birth control. Not that I needed it – I wasn’t sexually active. It was great. No cysts. When I was about 19, I decided to go off the pill. I was taking them but didn’t need them as I still wasn’t sexually active. I knew it couldn’t be great for me so I just stopped taking them.
And then, I never got another period.
After about a year, I went back to my gynecologist and asked about it, whether it was strange or not. He said it WAS very strange and that it did happen occasionally. I may never get another period and may, in fact, be infertile. He told me this very solemnly and with great empathy. He was a good man.
But me, well, uh, I was ECSTATIC! Infertile? Please. Thank you, god. I was never the kid who planned the wedding and the babies and the names. I had three younger siblings I didn’t really care anything about (now I do). I loved to party and this was before the HIV/AIDS epidemic. (YEAH..I know, I said it. This was mid to late 70′s. Figure out how old I am)
I was trying to be an actor and was living a very vagabondish life. I worked about 10 different jobs so I could live and enjoy my life and sexuality. And then one day I felt different. I went to the clinic and yes, I was pregnant. This was after not using birth control for 6 or 7 years. It was a very easy decision for me to make and I had an abortion. I have never regretted that decision.
I lived my life. I used birth control (not the pill, the sponge… remember the Seinfeld episode when Elaine hoards them?)
And then I met Tom. We were friends, fell in love and got married. I realized that, in fact, I did want to have a family with him and that it was going to be wonderful. My life and expectations were turned upside down by the love I felt for Tom and it was so exciting and fun. We were older and after a year of trying, we started dealing with infertility. I was fine. Tom’s motility was low. No boxers or hot tubs. My eggs were a little old. We did inseminations. (Did any of you ever ALMOST make love in the quiet room with your legs in stirrups? To make it more personal? I KNOW you did!)
About a year later, during an insemination break, I became pregnant. There were little lines on the test and it was so exciting! We told everyone. It was amazing. We went to check in and have an ultrasound and hear the heartbeat and well, you all know… there wasn’t one. It was ectopic. I sobbed as they took me in for my D&C because I wanted this baby that I never wanted. This was a little “me and Tom.” It was heartbreaking for both of us.
The next step was IVF. I became a science experiment. I’m not sure there are enough words to convey how much I hated the process. I was going crazy from the hormones, the daily shots of Lupron and the shots Tom gave me (though, I think he got a little pleasure from it). I had eggs harvested and there were a lot. Not many were viable though. There were enough for a transfer and enough to freeze for the next baby.
So we followed protocol and did everything right. There was no baby. It was heartbreaking. Because for the faintest minute, they thought there was a baby… but no, there wasn’t.
We did it once. That’s all we needed. I looked at Tom and said I didn’t want to be a science experiment anymore. I wanted to be a mom and I was already 38 years old. We moved on to adoption. We were together on this decision. He didn’t need a clone and neither did I.
I am so grateful I was with Tom because someone else may not have seen it that way. And that would have been OK but a problem for us. And with Tom it was not a problem. We moved together to the adoption process and that will be my next post.
I’ve felt what it feels like to feel alone. I’ve felt what it feels like to feel unwanted. I’ve felt the pain of being judged. All thanks to you.
It all started in the beginning of seventh grade. I met this boy, in which at the time, was your boyfriend. You befriended me only to keep an “eye” on me. You told me, “You’re like my best friend”. You lied, repeatedly, all because of this one boy. I still remember the day when your friends texted me and told me to “back off” because you thought he was losing interest in you because of me. That’s when it began, when he “broke” your heart. I don’t know if I would’ve made it out alive, you tormented me to a point of disgust.
Everyday, you’d pass by only to call me names. You’ve called me absolutely everything one could think of. Ranging from a “slut”, to a “cry baby”. You wrote my name on walls and desks, commenting on how much of a “whore” I was. I hadn’t even had my first kiss yet. But you still kept on. Your parents supported you, babied you, all because they had no idea of who you really were, and still are. I was only 12, turning 13, but you kept consistent with your words. Only 12, and I was already thinking about suicide.
You made rumors, and pressed charges against the very person that you once “loved”. This remained until the end of eight grade. At this point, I was losing. I was losing myself, I was losing my aunt, and I was losing my parents. I cried in school because my aunt was dying from cancer, but you thought it was because of your words. That’s why I was a “cry baby”, to you. I still recall the day I messaged you on Facebook, and apologized, the same day she died. As if it was all my fault. My parents were getting a divorce, and you just kept on. Having no respect for anyone but yourself because you believe you’re the only one who deserves it. That’s a bully, that’s who you are.
The bullying subsided for about a year. We were “friends”, at least that’s what I believed. You asked for answers on the test, you asked me for help with your work. You pretended. It all started again in tenth grade, you came up to me about midway in the school year. Telling me to “keep my nose out of your business”. I was so confused, I don’t talk to any of her friends exactly for that reason. I’d never respect her, but I’d also never what to be part of her dramatic life. I was extremely unaware of what the situation was. I couldn’t stop shaking. That’s when I realized that I didn’t hate you, but despised you. Everything you were, everything you are. You traumatized me, you made me into this person full of anxiety, full of sadness. I wasn’t gonna let you win.
The next year came, I tried my best to ignore you in every possible way. The previous year, I had dated this boy, let’s just call him “Bunny”. I told everything to him, and he told me everything. We hurt in all the same ways, but he left for the summer, and we split. He knew about you, he said he’d “never date” you for what you did. But of course, that was a lie. The only person I connected to, you stole. You made him block me, exile me out of his life, and he probably hates me. That’s why I’m here now, you pass by me in the hallways, and call me a “slut”, while he’s holding your hand. All I say is “thanks”. Thank you for making me feel. I’ve felt. In which, is past tense, in which it means I won’t anymore. I’ve felt pain. But I now feel happiness. I’ve felt insufficient, but now I feel enough. I’ve felt disgusting.. But now I feel beautiful. All because of you.
su2c asked on twitter if we remembered what we were doing eight years ago on September 11th, 2001. we were living in manhattan. i was on my way to work. the streets were filled with frantic police officers. it was horribly loud, as manhattan so reliably is, but you could feel an eerie silence beginning to settle over the city.
