by Band Back Together | Dec 4, 2010 | Anger, Anxiety, Baby Loss, Coping With Baby Loss, Grief, Guilt, Help For Grief And Grieving, How To Cope With Post-Traumatic Stress Disorder, Livng Through A Miscarriage, Loss, Love, Miscarriage, Post-Traumatic Stress Disorder, Sadness |
I have never spoken to anyone about this but my husband, my mother, and, of course, my doctors. This may be one of the hardest things I will ever write. It may not all make sense. I don’t remember it all. But yet I remember it like it was yesterday. I will never forget it. This is my PTSD talking. I am in a very bad place right now. And I know what happened to me isn’t as bad as some but to me it’s worse because she was mine.
Anyway, Oh God here goes…
You were due December 25th. I was so excited that both of your sisters were Christmas babies. I love Christmas. And I still do. Your due date was so amazing I couldn’t believe it – three children born on or around Christmas.
The beginning of my pregnancy didn’t seem out of the ordinary. Normal morning all day sickness for me. Around 6 weeks something felt off I called my Doctor who is AMAZING, and she got me right in for an ultrasound. There you were – perfect. And fine. Little heart beating to beat the band with a due date of Dec. 25th. I felt better. Things resumed. We got to our 12th week and we told everyone and even started buying things. Come on – you were my fourth baby. What could go wrong? How could I even think that?? Everything was fine .
Then it happened. July 27th I felt yucky and my back hurt SO bad. I should have called the doctor. You might be here today. I should have known. But I just thought I worked hard that day. It was hotter than hell. And it was just a back ache. I never ever had back labor. At 2:12 on July 28th, I woke up and thought, “shit, I wet the bed.” I hit my husband and said, “I wet the bed. Go get new sheets.” And then I went to turn the lights on. And it felt really off. It was sticky. I turned the light on and there was blood everywhere. I heard a sound like I had never heard before – it was my screams. I told my husband call the doctor and tell her we’re going to the hospital. Something was very very wrong.
My mom came running in and tried to calm me, but it didn’t help. I remember telling her keep the kids out. I didn’t want them to see the blood. And my back – OMG the pain. All the sudden I felt a pop between my legs and there was a “doll” between my legs – it didn’t seem real. I thought WTF is that about my own baby. I saw your little chest heaving up and down. You were breathing!!!!!!!
I screamed for my husband to stop calling the doctor. We had to leave NOW. She’s here. She’s ALIVE. She’s breathing.
You were 18 weeks and 5 days. You were perfect – tiny and waxy, but perfect. You breathed for 5 minutes. I held you in my hand as you took you first and last breaths. I will never forget them. I loved you so much in those 5 minutes. You were my daughter, Ariel Grace.
But the horror didn’t come until we got to the hospital. You WEREN’T a baby. You were nothing. You were – I choke on the words now. You were a miscarriage. But I saw you and I held you. You WERE breathing for 5 minutes. I have a cell video of it. But you were going to be discarded as if it was a miscarriage. I flipped out like my husband has never seen me flip out. I screamed and I wailed. I hit a doctor, I think. Not my doctor. She was AMAZING. She held me while I rocked the baby. She stroked my hair. She couldn’t change the policy.
You would never exist to the world. You would get no birth certificate and no death certificate. But to me and your father, siblings and grandparents you were EVERYTHING!
I made my uncle call his friend at a funeral home. He kind of laughed – not in a mean way but he told my uncle, “She’s not even as big as a cat. I can’t charge. I won’t. It’s a freebie.” I have her ashes. Although that was a HELL of a fight. But I think they knew I was a mad woman and I would not leave that hospital without MY baby.
I have her ashes hidden in my room. I left the hospital the next day with nothing. No baby, no belly, no nothing. I was empty and blank and a Zombie for a LONG time. Hell, I still am. I never mentioned it to anyone. Some people asked questions. I think I probably stared at them blankly. But I never answered. My husband or mother would later. I couldn’t talk about it. It’s over a year later and the pain is still unreal. I have nightmares of waking up to the blood every five minutes. I don’t know that they will ever go away. But what is the worst for me is I can’t talk about her to anyone but my husband, mother and therapists.
Am I forgetting her, am I not remembering her, am I cold? I just it hurts so bad. And no one that I personally know can understand that pain. No one I know in real life understands my anger and bitterness of her not being a baby because she was 18 weeks and 5 days and not a viable birth. Isn’t breathing for 5 minutes viable? Had we been at the hospital could we have made it farther my AMAZING doctor thinks that those 5 minutes were pretty darn special. And so do I for a baby with such under developed lungs.
Obviously now everyone knows she was never born and just went away. People have stopped asking questions. And I just can’t talk about it. I feel cold. And I miss her even more now. I don’t know that it will get better. She wasn’t a “real” living baby. But she was mine. I held her. I named her. I talked to her. And on her birthday I buy her a gift. I guess that really does make me crazy. Maybe I’ll stop someday. I don’t know. But I guess tonight on one of my darkest of nights, this needed to come out. Thank you for listening. No one else knows. And it hurt to talk about. A LOT so this was BRAVE. So thank you for reading.
by Band Back Together | Dec 3, 2010 | Grief, Help For Grief And Grieving, HIV/AIDS, Loss, Parent Loss |
I’ve been thinking a lot about my dad lately. He was my hero.
My dad was the kind of guy who can get through Ivy League med school by drawing cartoons in the back of the class, and still somehow graduate in front. He wore a necklace that read, “War is not for children and other living things,” and took my family to Peter, Paul and Mary concerts.
Dad never read me bedtime stories. Instead, when I was four, he began explaining the theory of evolution in nightly increments. Tom Petty was often blasting in the car, and he used to do a weird hand-clapping maneuver that involved taking his hands on and off the steering wheel which I found exhilarating. He was lucky not to have been pulled over, but it made him the coolest person in the world.
Dad took me to Washington for our last trip. We sat in on an NPR recording and toured the White House. I didn’t understand why on Earth he would pack in THAT many museums visits into one trip. Turns out, he wanted to cram in a lifetime’s worth.
Dancing was the same thing. My father loved to dance with us whenever he could. One day, he had my sisters and I wear dresses, and gave us all a long, special dance to our favorite music (three-year old Carrie, and seven-year old me picked blended folk -too embarrassing to mention. Our favorite Hebrew album was included in line-up. Luckily, my youngest sister was still too little to talk.)
I never understood why he danced with us that day until years later, after he was gone, when I finally learned what a wedding was.
I could go on and on about my father, about what a wonderful guy he was, how he told us if he had to do it all over, he would have been an architect instead of a psychiatrist…
I can generally pull off humor in the most dire of situations, but when I write about my father, it’s hard. I’m still angry at the doctor’s mistake that caused him to hemorrhage and receive an HIV-infected blood transfusion two months before they started screening blood for HIV/AIDS. My dad was gentle, funny, and brilliant – a wonderful human being. I’m angry that my grandmother lost her only son, and I’m angry my mother was left alone with three kids. It’s a miracle my mother never contracted AIDS from my father, thus everyone else in my family is healthy. (We think my mother has Delta 32, making her resistant to AIDS.)
Still, this kind of thing is not supposed to happen.
On World AIDS Day, I want to look back, to smile and thank him for the presents he gave ME.
To the baby born on January 14th, 1952 at Beth Israel hospital in Newark, NJ, weighing 7lbs 11oz, and to the 42 year old man who stood at 6’4, thank you, Dad, for teaching me that no one is infallible. For teaching me that, regardless of race or socioeconomic status, we all are equal.
HIV/AIDS was still relatively new back when my father was first diagnosed. There was still enough stigma that, even in his obituary, my mother wrote he died of cancer because she was afraid of what the people in our small town would think if she told the truth.
Thank you, Dad, for teaching me the importance of being real and speaking the truth. Thank you for showing me firsthand that we all deserve a voice, especially those sick or marginalized.
I always told people the truth about my father, regardless of what people might think of me or my family. I lost friends, as did my mother, but I always wanted people to know that AIDS can happen to anyone.
I stopped believe in miracles that February. But I started believing in the ability of words to transform people’s lives.
Thank you, Dad, for having a bigger impact on my life than anything else in my twenty-five years. If I could give you all the presents your heart desires, I would.
That you lived gave me enough to last a lifetime.
by Band Back Together | Dec 3, 2010 | Anger, Anniversary Reactions, Breakups, Coping With Losing A Child, Grief, Help For Grief And Grieving, How To Cope With Post-Traumatic Stress Disorder, Livng Through A Miscarriage, Miscarriage, Post-Traumatic Stress Disorder, Sadness, Spotlight On Baby Loss |
Today is when our baby was due.
Today is when we would’ve met our child and become parents.
It’s hard writing those words, but even harder thinking about what they actually mean. We never knew if our baby was a boy or a girl, though we’re convinced our little one was a tiny princess. We named her, though only we know her name. I try to look at our faces all the time and imagine what she would’ve looked like. There is an emptiness in my heart knowing our family isn’t complete, that there’s someone missing.
I posed a question to people a while ago. I asked if they would consider someone a mother if their child never made it into their arms, and as would you expect, the answers were divided. I’m half in the park that “I am a mother,” and half in the “I’m not” as well. Without having her here in my arms, I feel like I don’t deserve the title of ‘mother,’ but I can’t deny she was here, even if only for a short time.
Her initials are CG, and I wish I could tell you her name, but somehow it doesn’t feel right. I’m tired of her being our secret though, and I want the world to know I should have a daughter here. I’m angry, frustrated, and hurt. I want people to know about her, I want others to miss her, I want others to care.
Today, I should be a mother, holding our little angel, breathing her in and going over all of her little features with the awe only a new mother can have.
Today is a lot harder than I thought it would be.
by Band Back Together | Dec 1, 2010 | Anger, Depression, Grandparent Loss, Grief, Help For Grief And Grieving, How To Cope With A Suicide, Sadness, Stress, Suicide |
Just yesterday I was reading posts at this site. Shedding sympathetic tears and yet at the same time being so grateful that I had nothing to post here. My gratefulness was premature.
For all intense and purposes, my grandfather died at 8:30 last night. He actually died at 6:20 this morning.
At 8:30 last night my grandfather shot himself in the head. Even after that and being on no life support it took the rest of his body 10 hours to die. 10 hours that my father and mother waited at the hospital all the while knowing that what they were waiting for was a pronouncement of death for my father’s father.
When my mom called me last night, I knew intelligently, that my mom calls my pop-pop “Pop”, and when she called I could tell by her tone that something had happened. Someone had died and at 91, my grandfather was – of course – the most logical answer. But he was healthy. Healthier than most men 10 years his junior and his mind was sharp as a tack, but I knew that it had to be him. However, when I heard the words “Pop shot himself tonight.”
I was thrown immediately into an hysterical state and just started screaming, “Pop-pop or my dad?!?!? Pop-pop or my dad?!?!?”
I’m numb. I’m at work today because I need normal. I need routine. When I actually stop and really think about it, my body shuts down and I go into a near catatonic state. My body’s defenses are too high right now. Too ready to go into flight mode. I need normal. For at least today.
But nothing will ever be normal again. My grandfather killed himself. And my aunt who lives with him was home at the time. I don’t know what to think. I’m devastated. I’m angry. And I feel so awful for my dad. Beyond awful.
When dad called me this morning to tell me that Pop-pop had finally passed away, he broke down and asked me not to hate Pop-pop. Which I never could. I loved that man more than anything. He asked to please not think less of him. And I don’t. Then he asked me to please not be angry at Pop-pop. I told him I wasn’t. I told him I didn’t understand, but that I wasn’t angry.
I hope it’s not always wrong to lie.
If you or anyone you know is feeling suicidal, please remember that suicide is never the answer.
Call the National Suicide Hotline (US): 1-800-273-8255
by Band Back Together | Nov 30, 2010 | Cancer and Neoplasia, Coma, Grief, Help For Grief And Grieving, Hospice, Loss, Parent Loss |
t was 11 years ago today.
I sat in the middle bedroom at my Granny’s house holding his hand. His breathing was shallow and staggered. He had faded in and out of consciousness several times that evening and we had taken turns sitting with him. We knew he wasn’t in any pain and we weren’t exactly sure he even knew we were there. But we like to think he did. After a very long day and evening, and a day or two prior of much of the same, we knew the time was near.
It was decided by one of us, who exactly I can’t remember and it really doesn’t matter, that maybe we should all go in and tell him it was okay to go. We knew he was ready and it was okay. No matter how many times I say it was okay, it really wasn’t. And still isn’t. Just don’t tell my Dad that.
They tell you that people in a coma or not in a real state of consciousness can still hear you if you talk to them. I know now they are right. Either that, or God heard us and passed the message on to Dad.
It wasn’t more than a few minutes after that, although it seemed like much more, he slipped away. Hearing from us that we were okay and it was time allowed him to let go as well. It was very peaceful. It was heartbreakingly sad. It was something I would never wish on anyone else and at the same time a memory I would EVER want to trade away.
It was 11 years ago today and it still feels like yesterday.
It was 11 years ago and I still miss him terribly.
I love you, Dad.
by Band Back Together | Nov 29, 2010 | Dementia, Grandparent Loss, Grief, Help For Grief And Grieving, Hospice, Parkinson's Disease |
3 weeks ago my grandma fell and broke her neck.
3 weeks ago she was rushed to Peoria to see if they could fix her.
At 82 with severe Parkinson’s Disease, degenerative bone disease, (from which she’d lost a whole 12 inches off her height) dementia, and multiple other health problems, we didn’t know what the options were.
The surgeon suggested surgery to repair the fracture. He was hopeful that it would work. Do nothing and she could become a paraplegic if she so much as coughed too hard. Or she could live with the neck brace, which she hated, her lungs could fill up with fluid and she could develop pneumonia. In such poor health, that’s not good.
We opted for surgery; really the only option. Grandma was scared but we all told her we loved her. I told her we would go dancing after she was done as she hasn’t walked in over two years.
She smiled and held our hands, said she loved us and off she went.
Surgery went well and they were able to fix the break. That was not the major hurdle though. Even in good health, Grandma has never done well with anesthesia. Two days before her fall, the dentist didn’t even want to give her a local to fix a couple teeth as she’s allergic to Novocaine.
After surgery, she was put into a regular room and about an hour later, her vitals crashed.
She was gasping for breath. She looked so very scared. She gripped my hand as a wonderful nurse held the oxygen mask on her for close to an hour until they were able to get a bed ready in the Surgical ICU. Once she was settled in the ICU, we each took turns going to see Grandma. She was on a ventilator to help her breathe and give the swelling a chance to go down after surgery. This was against her wishes and she was miserable. She had the vent in for 3 days until it was removed. She did so well.
They observed her for a day in the Surgical ICU (SICU), then transferred her down to another room for a few days.
When she was ready, she was discharged.They didn’t send her back to her assisted living apartment, but to a skilled nursing facility with hospice. Everyone came to visit. Friends, grandchildren, family, everyone. Someone was by her side 24/7. She would talk a little, barely a whisper. Grandma looked at pictures and had us to sing to her while we sat by her side. She told us that she saw my grandpa who passed away in 1978.
She told us all of the beautiful things she was seeing and hearing. It was amazing to listen to her. She told us so many stories. She told us there would be no more pain there and no more wheelchairs. We all laughed and cried and held her hand.
On Tuesday November 16, Grandma took her last breath while my mom sang to her. My mom said it was very peaceful. Grandma wasn’t afraid like she had been in the hospital. I am so very thankful for that. I miss her, maybe more than I can ever express. My kids miss her too. They are hurting. I have given them songs that help them feel better, or so they say. I don’t know where to go from here. I don’t know how to fix their hurt, or mine.
This holiday is especially going to be hard for me.
Last year I was upset because I wouldn’t get to spend it at Grandma’s house. At least I got to spend it with her.
Now I don’t even have that.
