by Band Back Together | Nov 29, 2010 | Baby Loss, Coping With Baby Loss, Grief, Help For Grief And Grieving, Livng Through A Miscarriage, Loss, Miscarriage, Sadness |
I lay curled up on the bed, looking up into my husbands’ face.
“It’s leaving me, baby. It’s leaving me…”
“I know”, he said.
He crawled in next to me, placed his hand on my belly and whispered, “Goodbye…”
And we cried.
I cried the cry that comes up from your tailbone. The cry that hurts the arches of your feet. The cry that doesn’t stop. And when my eyeballs felt like they would fall out of my face, I cried some more.
My mother was in town, thank goodness, but I could hear my son calling for me in the living room.
There is nothing more emotionally confusing than entertaining one child, while physically feeling the one you were growing leave you.
The next day, the doctor confirmed what we already knew.
“I’m sorry, your uterus is empty.”
It was a clean miscarriage, I would not need any kind of removal procedure.
I have never seen an ultrasound without a baby in it. It looked exactly how she said… empty.
“Not even two months along.”
“Not really a baby yet…”
“A collection of cells gone wrong…”
But it was a baby to us.
We made it on purpose. We made it out of hope.
My husband had already started whispering “I love you” to my belly.
My son was already patting my tummy and saying, “Baby in there.”
We made space for it in our lives.
And now that space is empty.
And I feel it. I physically feel it… missing.
My almost-baby.
We will heal.
We will try again.
But right now, I sit here…
just empty.
*****
I’ve just gotten my first period since the loss, and the sight of the blood has me reeling a little.
Thanks, Band – for being here.
by Band Back Together | Nov 28, 2010 | Baby Loss, Coping With Baby Loss, Grief, Loss, Stillbirth |
Her daughters were stillborn, but born still.
This is her story:
here comes another one
i know. i can feel it.
oh this is a big one
yes. i feel it.
my father sat in the corner, still and quiet until he saw the line on the screen start moving up, showing my contractions not only for me to feel but for the room to see. he announced each one to us five. it was all he could do. the best way he knew how to handle it, and that’s the only reason that it didn’t drive me crazy.
each clench was readying my body for something i was willing every shred of my being against. what we all were wishing against. we watched as the line went up…and down…sometimes higher…then lower…
i was in denial i guess, or shock. whichever. i wasn’t reeling in pain or wracked by sorrow. i was focused. i sat and felt my belly pinch and waited for the announcement.
another one is coming
T had panic attacks. my mother called all the nurses and doctors she had on speed-dial. my sister stared. my brother called and cried. my nana called and cried.
my father and i watched the screen.
the screen that showed my babies’ heart rates, as perfect as they were. the screen that showed my contractions; big, small and in between, ex-fucking-actly 4 goddamn months too soon.
until she came in. she said it was time to unhook the monitors, said it wasn’t necessary anymore. and in a moment, dad and i were back again to the quiet, still place. T tried to control his rage, my sister still stared. my mom talked and nursed and fixed my blankets and monitored my pain.
i felt my girls kick and bubble and turn. how could i tell them it was their last day, their last hurrah? why did i have to let them go so easily? you would think the one thing in the world you would be able to, absolutely need to do is fight for your children’s’ lives, right? i should have been able to motherfucking fight.
it was quiet. too quiet. i longed for my monitor back, and i asked the nurse for it every time she came back in the room. suggested it as a solution to whatever random issue she happened to be concerned with at the time.
maybe we should put the monitors back on?
and the same answer came every time; somber, no. she heard the undercurrent in my voice, growing more desperate with each request. no. she didn’t explain. she just said no.
now i know why.
even now i’d give anything to be back in that room. (a room that i can hardly imagine continues to exist, holding happy families and living babies)
back in those moments when i had them, even under those horrifying circumstances. i’d give it all up to be there holding them inside, watching the screen with my father. looking from right to left and seeing people who loved me and my daughters. we had waited for them so long and we didn’t even get to fucking fight to keep them. they just slipped away.
but what i wouldn’t give to be back there.
back when they weren’t safe for long, but held for now.
bliss.
by Band Back Together | Nov 26, 2010 | Anger, Anxiety, Baby Loss, Compassion, Coping With Baby Loss, Faith, Family, Feelings, Forgiveness, Grief, Help For Grief And Grieving, Hope, How To Help A Friend With Infertility, Infertility, Livng Through A Miscarriage, Loss, Medical Mystery Tour, Miscarriage, Pain And Pain Disorders, Rheumatoid Arthritis |
*I know that not everyone out there is a Christian and I hope that nobody will take offense to this post. My faith is a very personal thing, but it helps me get through so much. My prayer is that everyone dealing with a life crisis will find something that will bring them peace and hope, whether it’s faith in God, faith in humanity, or faith in herself.
When I wrote about my miscarriages and TTC journey, it was the hardest piece I’d ever written. What I left out, though, was the behind the scenes issues. The emotions that I’m still ashamed of feeling. That probably sounds stupid. I mean, you can’t help how you feel about things so why feel shame? Well, it’s been six years and I still do, so I guess I can’t answer that.
When Jordan and I decided to start trying to get pregnant, we didn’t broadcast it, but we also didn’t hide it when people asked. And people did ask. We’d been married over a year at that point, and apparently that’s the time that everyone from your grandma to the cashier at the grocery store deems you ready to have a child. But when we realized we would need a little help expanding our family, we clamped our mouths shut. Our families and closest friends were the only people who knew what we were going through. But when we got that first positive test, we told everyone! I’ve never been the best at keeping my feelings under wraps and we were thrilled.
A few days before I got that positive test, my sister-in-law gave me the news that her sister-in-law was pregnant. I was pretty discouraged at that time thinking that the round of Clomid I had just finished had not worked. But here was this girl (who I love dearly, BTW) who had become pregnant accidentally. It hardly seemed fair.
But then I found out that the Clomid had actually done its job and all was right with the world again. I could be happy for my sister-in-law sister-in-law-in-law sister-in friend, if a little worried for her. After all, my faith had always dictated that “everything happens for a reason.” But then it all changed.
During the few days that encompassed the fateful ultrasound experience and gut-wrenching D&C, I lost more than my baby. I lost my faith.
I left the hospital a bitter, heartbroken person that I no longer recognized. I was angry at the world. I was angry at God. I didn’t go to church. I didn’t pray. I didn’t even sing; something that has always been my solace. For three months I was in this dark pit. Every time someone who didn’t know would ask about the pregnancy and we had to break the news again, I sank further.
At that time, I worked for an agency that provided low-income housing. It seemed like every other day I encountered another woman who was expecting yet another child that she couldn’t afford. All these women around me were getting pregnant so easily, some while actively trying to prevent it, and having the healthy babies that I wanted so badly. I couldn’t understand why I was being treated so unfairly. I couldn’t bring myself to go to the baby shower for my brother-in-law’s sister. Every time I saw a pregnant woman I would cry.
It kills me to finally admit those things. There are very few people in this world that I’ve told about that dark time. I still feel guilty for being so angry. But if my first miscarriage caused me to lose my faith, my second one brought me back.
My second miscarriage happened on a Saturday morning. I was in the ER for a few hours then sent home. The next day at our church was Youth Sunday. I hadn’t been to church in three months at that point, but Jordan’s best friend, David, was delivering the message that day, so I insisted on being there. Not many people at church had known I was pregnant that time, so we didn’t really have to talk about the loss.
Something happened that Sunday morning, though. The youth members all did a great job with their testimonies, prayers, and music. David delivered a beautiful message. And then the youth sang a song to tie it all together – Here I Am Lord. I had heard the song a hundred times before. I had sung it about half that many times. But that day, I actually listened to it. It suddenly spoke to my heart in a way I had never felt before. Thank God we were sitting in the balcony so the whole congregation didn’t see me burst into tears.
I suddenly was at peace. After being angry for so long, it was an incredible feeling to let go of it. In that moment I knew that, like Abraham and Sarah, we would eventually have a child. And that there was a reason for my losses. I knew that it was going to fall to me at some point to support others going through it.
I was able to do just that several months later when my best friend had her first miscarriage. I’ve reached out to others as well – old high school friends on Facebook, a friend at church, etc. It’s what I hope to accomplish by contributing to this site. It also sort of paved the way for me to do the same thing as soon as I was diagnosed with Rheumatoid Arthritis in 2008. Since then I’ve found myself in something of an online support network of people living with chronic illness. Without that moment of clarity, I’m convinced I would still be that bitter person. I’m sure that the RA diagnosis would have been much worse than it was, emotionally speaking. I honestly don’t know how I would have made it through either of my full-term pregnancies, much less through a certainty of life-long pain, had I not had that renewal of faith.
I didn’t tell anyone about what happened to me that day until a few months ago when Jordan and I had the privilege to see David ordained. I figured that was probably the right time to tell him about the impact he had on me that Sunday so long ago. Today, my relationship with God is the most important thing to me. Through Him, I can do anything. There are days when I just need a nudge and there are days when I’m forced to ask Him to carry me. And I’ve come to realize that everything truly does happen for a reason, even if that reason isn’t revealed during this earthly life. But the choices we make when facing hardship will usually go a long way to reaching that revelation.
“But those who trust in the Lord will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint.” ~ Isaiah 40:31
by Band Back Together | Nov 12, 2010 | Cancer and Neoplasia, Chronic Illness, Coping With Cancer, Grief, Health, Help For Grief And Grieving, How To Help A Friend With Chronic Illness, Loss, Parent Loss |
In August of 2006, my mother was diagnosed with cancer. I was at the movie store with my boyfriend and our 4 month old daughter when I got a phone call from my aunt. I had to stand outside because I couldn’t hear her inside. As I stood in the wind with one ear plugged, huddled so she didn’t hear the gusting through the line, she told me my mother was in the hospital fighting for her life. I couldn’t believe it. In shock, I think, I asked her question after question.
My most important question: “What happened?” She went to the ER with abdominal pain, which turned out to be a tumor pushing on her internal organs. She was in multiple organ failure and had to be wheeled into surgery immediately. They only had time to get contact information for my grandparents before she was under and being cut open. They had removed what they could, put her on dialysis and a colostomy bag, and told my grandparents to come as soon as they could. They were 4 states away.
Against the odds, my mother survived the massive surgery which left her with no large intestine, no reproductive organs, and one barely functional kidney. My grandparents packed her home up, leaving behind precious memories and beloved family pets in the process, to try to get her back to their home before another rent payment was due. A few days after they finished packing, my mother was declared stable enough to transport and made the several hour flight away from the only state she had ever called home.
Practically an invalid for months, she relied completely on my grandparents for everything. I was unable to get down to see her, despite impassioned pleas to everyone I could think of, including my and my mother’s previous employer, for a loan. I just needed a plane ticket. A simple fucking plane ticket. $300 that our family couldn’t afford without shutting off the gas in the middle of a Michigan winter. What if she had died in that hospital? Or the months just after? The doctors hadn’t given her much chance, and I couldn’t get a lousy $300 loan to go see her.
How could things get so fucked up so fast? I’d just seen her! She came up after our daughter was born, twice, because soon after she left the first time I needed gallbladder surgery. She may not have been a poster-girl for perfect health, but she wasn’t DYING! How could two months make such a difference? And why the hell couldn’t I get someone to give me a fucking hand up so I could go see one of the most important people in my life when they were practically one foot in the grave?!?!
By the time I finally got to see her, she had mostly stabilized and was started on chemo so the tumors wouldn’t start growing again and really do her in this time. It was a calculated risk: if they started it too soon, and she couldn’t handle literally injecting poison into her body, she died. If they waited too long, the extremely aggressive tumors could grow right back and totally kill her internal organs, if they didn’t starve her of essential nutrients first. Rock, meet hard place. Fuck me.
But she survived. Against all odds – and often stupefying her doctors – she lived. She bulled through that surgery, her recovery, chemo, and eventually radiation as well. And in the end? She kicked cancer in the balls, hard. Her very last oncologist appointment gave her an official diagnosis of remission. Three months later, she died. The treatment(s) had left her with an inability to absorb vital nutrients.
But even as she lay dying, she had the satisfaction of knowing she had won.
She might be dying, but she’d taken the big C with her, kicking and fucking screaming. I’m proud of you, Mom.
by Band Back Together | Nov 11, 2010 | Coping With Losing A Partner, Grief, Help For Grief And Grieving, Loss, Partner/Spouse Loss |
The thing about my husband was that he was very talented. He was an actor/voice-over artist and a writer. He had some success in the real world. He also was an amazing singer. There are videos/recordings with him or his voice in them, and episodes of TV shows and movies that come on arbitrarily that he wrote.
Almost 5 years in, I still get blind-sided by these things. I lie on the couch on a Saturday night, watching a movie and am startled to hear his voice; I forgot he did voice-work on that movie. Or I’m flipping through the channels and, OMG…there’s a movie he wrote, or an episode of a television show. Often I just smile, sometimes the effect is a bit more disturbing. Tonight I was on FB, just trudging through, checking in, and there was a post by my (well, his) nephew.
He had found and posted a VERY old video by David Lee Roth (OK, Just a Gigolo, for those older than a minute). His comment was only, “miss you Tom.” Tom does a voice-over on it and appears in one scene. I had forgotten about it. It was really goofy. In the moment…it made me laugh, so hard.
BUT, I’ve been crying off and on all night. That’s the way grief works. It catches you unaware and knocks you for a loop. I can make it through his birthday with aplomb; show me a stupid video, surprise me with his voice..I’m a wreck.
I’m heading into what I call the “horror” months, because the holidays were his, our, favorite time of the year. Especially Christmas; the music, the activities. We always had a huge party. We went to many other ones. He loved carols; each year we’d make a CD for friends and family, with a theme, of Christmas carols. We have a lot of talented friends, so each year we’d include a friend singing on our CD.
Tom died in January 2006. For Christmas 2006 I decided to make one last CD. It is so beautiful, but one of the most precious parts of it was that I was able to add 3 songs that Tom sang on it. Every year I look so forward to – and dread so much – playing the CD. I know that I will listen to it Thanksgiving weekend as I decorate our Christmas tree; that’s when the CD’s come out.
I want to hear it, I dread it. I want to watch those movies, but I dread hearing his voice, remembering. The pain and the joy and the dread and the amazing gratitude that I have because i DO have these reminders…well. It’s hard to describe.
Grief sucks; life keeps moving ahead. And with it, I have to deal with the good and the bad. Tonight, though I’ve been crying most of the night, I’m clear on that. Maybe not tomorrow or Christmas Eve, but I don’t know. The way that this video surprised and delighted me even as it made me sad and feel my loss really points to the way that my grief, all grief, is a living, changeable thing. I will never not feel the pain, but as time goes on, I hope that initial jolt will be more often, one of delight and gratitude rather than pain and loss.
by Band Back Together | Nov 5, 2010 | Adoption, Breast Cancer, Coping With Losing A Partner, Grief, Help For Grief And Grieving, Loss, Partner/Spouse Loss |
The day Tom died, I lost more than a husband. I lost a family. From the moment I turned on CNN, the family I loved, enjoyed and belonged to began to fracture, as if the second the plane crashed, it became more than tortured steel and shredded rubber.
Tom was from a large, German, Catholic family, where he was the baby of seven. There was quite an age difference between the oldest and the youngest. I’ve always believed Tom was the favorite, the golden child, because he was most like his father and was the last child his mother could ever have.
He loved his family, but they exasperated him. He was closest to his father and endured his mother. He once told me he loved his mother, but he didn’t like her. So, I shouldn’t have been surprised when they turned on me. There were signs over the years that I didn’t measure up. When we got engaged at graduation, she was planning a celebratory family dinner. I wasn’t invited, until she found out we were engaged, and then she felt obligated.
Tom’s first job took us to Fargo, ND. There was never any question I wasn’t going, although the wedding was 10 months away. The night before the moving van came, we moved my boxes to his house. As my boxes sat in their living room, his mother told Tom if I intended to live together, and then have a large “white” wedding not to bother sending invitations to the family, because none of them would come. Tom stood up against her and she finally backed down. She never apologized to me.
Years later, his family was incredibly supportive when I was diagnosed with breast cancer. They flew in for my surgery and sat by my bed. Seven months later when I ran the NYC marathon, they were wearing sweatshirts with words of encouragement.
But, when we announced we were adopting, his mother wasn’t happy. The rest of the family was ecstatic. Weeks before Tom’s death, one of his brothers call to try and convince him not to adopt, but hire a surrogate instead. I was the problem after all, and with a surrogate, the family genes would be passed on. Tom hung up the phone in anger. It was the last time he ever spoke to his brother.
If these memories of the past didn’t raise a red flag, how they treated me during the funeral should have woke me up. Tom’s memorial service was held in the church we were married. His family wanted to memorialize the child Tom was. I wanted to celebrate the man he became. They wanted to have the Stations of the Cross; I wanted to toast him with Scotch and cigars.
It didn’t stop there. His brother insinuated himself into the investigation of the crash, claiming I was overcome with grief and he was acting on behalf of the entire family. He was notified of official information before me, such as the recovery of Tom’s remains. When he knew about the recovery of Tom’s wedding ring before me, the shit hit the fan. My attorneys took on the Nova Scotia government and I tackled the US State Department. But, as soon as all of his remains were identified, I closed the door on his meddling family. They wanted Tom’s remain repatriated and buried in their small town cemetery, I intended to have him cremated and his ashes scattered over the crash site. They tried to manipulate me by playing the church card, but I stood firm.
The day I scattered his ashes, his family was absent. They didn’t know. They would have turned it into a three-ring circus, but I made it about Tom. I informed his father in a very difficultly written, heartfelt letter. His family never forgave me for that, but if I had to do it all over again, I would change nothing.
An uncertain truce was called after I adopted Elliott. Although they attended her christening and showered her with gifts, they were sharpening their knives. I sued the airline after Tom’s death. I was the only person who had the legal right, but they effectively counter sued me. They seemed to have forgotten at the moment we said, “I do” all rights shifted to me. They claimed our marriage wasn’t solid, Tom wasn’t Elliott’s father, and they disclaimed Elliott as family, and claimed breast cancer wasn’t an excuse not to have children.
By the end, his mother said Tom married beneath him, it was my fault we didn’t live near home, and if I read between the lines, she wished it were me on the plane rather than Tom. One of the very low points during this difficult time came when a brother told me “they” had decided it was harder to lose a son than a husband.
My attorneys tried to protect me from the worst, but the damage was done. I became so paranoid I feared they would have me followed by a private investigator. By this time I had met Colby and I wanted to move on with my life. The amount of fear and anger this family was causing me was overwhelming. The hardest part of it all was I thought they loved me, I thought they cared, but to discover how they felt about me rocked me to the core.
Four years after Tom’s death, we were summoned to federal court in Philadelphia. The judge clearly took my side, but he went through the meditative process. In the end, an agreement was reached. The lawsuit was settled and I could move on. I exchanged “pleasantries” with his parents on leaving the courtroom. His mother was not warm and welcoming, his father was in pain. He hugged me a long time and I could feel how much he missed his son. He asked after Elliott and I gave him a picture. It was the last time I ever saw them.
I remember getting in a cab bound for the airport when I turned to my parents with tears streaming down my faces and said, “I can finally marry Colby.”
I lost more than a husband the night Tom died. I lost a family I loved, a family I enjoyed, and family I felt I belonged to.
How naïve I was…
