I’m 33 years old. I have issues with PTSD, anxiety and depression. My Conversion Disorder is in remission, and I was a T-7/8 paraplegic for four years.
Anyway.
I’ve had a boyfriend for four years, a personal best for me! We’ve been really trying hard the last year, went to couples counselling and everything. It just didn’t work.
When I moved in, I put all my household stuff in storage, saying if things are good in a year, I’ll get rid of it. He owned the apartment and had all the household stuff one needs.
For four years, we were a We.
It’s done now, mutually, yet I feel so scared. Six days left in the month. I can stay here longer but it hurts, for both of us. Neither of us will start the healing process while living together. I want out.
I want a little place of my own, where I can cry all I need.
Right now, I have nowhere to go, hoping one of the two places I applied to accepts me. I have no household stuff …bed, microwave, broom, dishes, little and big things, I don’t have any of it.
I’m just so fucking scared. No Us, no place of my own, no pot to cook in. I feel almost agoraphobic. Too many possibilities. I just want my own little place that’s warm and safe
Today, I decided to go back on anti-depressants. This is a battle I’ve waged for years; do I really need them, do they really help, are the side effects worth it, am I just a loser who can’t deal with life’s vagaries.
Last weekend I drafted a post that contained the line, I feel like a bucket brimming with tears, and the slightest, inevitable tremble of the earth makes them overflow. It’s an inelegant metaphor, but worse, it’s a pretty clear symptom that things are not going well. It’s partly a bad birthday, partly the break-up, partly some harsh health news. It’s mostly, if I’m honest, cyclical, recurrent, my noonday demon.
“Grief is depression in proportion to circumstance; depression is grief out of proportion to circumstance.”
— Andrew Solomon
This is a family tradition; at the cousins’ table at last weekend’s wedding, we raised a toast to Lexapro and discussed having a candy bowl of all our meds on the coffee table of the rental house we’ll share at the next wedding. It’s funny, but it isn’t. Undiagnosed and untreated depression, manifested as alcoholism and other self-destructive behavior, blackens the family history like soot after a fire. Not everyone, not all the time, but too many, too often.
For me, it begins with a lack of resilience. My normal ability to adapt diminishes and diminishes until I can’t remember that I ever had it. Then, despite the pride I take in being self-aware, I start to judge my good life unworthy and tell myself that my unhappiness, my deep profound malaise that rips the joy out of each moment and shows me only the glaring photo-negative of each happy event, is actually the only sane and measured response to a terrible world and my own failures to strive against the terribleness. That’s the most insidious part, for me; my beautiful brain turns against me, whispering that I am correct in my assessment of my own awfulness and that I deserve to feel bereft, that my sadness is borne from clearly seeing the world and my own bottom-rung place in it. That the life that stretches before me will always be this bleak and hopeless, and that it’s my fault, and that I’m forever lost.
I mostly retain enough self-awareness to know how first-world self-pitying this sounds to anyone but me, but knowing that doesn’t combat my secret belief that it’s true.
My first episode of depression hit me during my fourth year of college. I was living by myself, and working two jobs, and so sad and overwhelmed that I began skipping classes to sleep and sleep, until I got so far behind that I saw no option but to quit. The rueful backstory here is that my parents had already yanked me out of my beloved city and school once, for financial reasons, and I had fought bitterly to return to the life I thought was rightfully mine. And then I ruined it. No one, myself included, ever thought my actions might be aberrant because I was ill; I was just a failure who fucked it all up.
“…a part of depression is that it touches cognition. That you are having a breakdown does not mean that your life isn’t a mess. If there are issues you have successfully skirted or avoided for years, they come cropping back up and stare you full in the face, and one aspect of depression is a deep knowledge that the comforting doctors who assure you that your judgment is bad are wrong. You are in touch with the real terribleness of your life. You can accept rationally that later, after the medication sets in, you will be better able to deal with the terribleness, but you will not be free of it. When you are depressed, the past and future are absorbed entirely by the present moment, as in the world of a three-year-old. You cannot remember a time when you felt better, at least not clearly; and you certainly cannot imagine a future time when you will feel better.”
— Andrew Solomon (The Noonday Demon: An Atlas of Depression)
I’ve tried and tried to write about the beginnings of this last trough, when my sister’s boyfriend was shot and nearly killed on our front porch in 2006. Well, I have succeeded in writing about it–the awful terror and despair of the days and weeks that surrounded the event, and my subsequent PTSD and years of broken sleep and terrible anger–but I’ve failed to write about it in a way that is useful. It’s simply too raw and ugly still, and there is no happy ending, only pain and permanent disability and broken hearts. The long-term effects led to my worst low ever, eventually, and to an appointment with a psychiatrist where I wept uncontrollably and confessed that I was afraid to leave my house and afraid to stay home alone and at the bitter end of my ability to conceal how bad things were. I was scared that I would die, that I was broken in a way that could never be put right.
Medicine was a revelation, a silver bullet that lifted me up and out in weeks. I’d gone so far as to get a prescription for anti-depressants before, but never taken them. Once I started, within six months I’d launched a new business, gotten a promotion, found a new place to live, and started dating again.
And then in January I quit. I felt good, I was falling in love, I was emphatically not a person who would be on meds for the rest of her life. I wanted to be the plucky heroine of my own story who’d had some lows and left them behind. I didn’t want my dates to see the pill bottles. I didn’t want to be damaged goods.
But I don’t want to be mired in black sadness and self-doubt any more either. I’ve met so many people lately who are doing amazing things with their lives, and I’ve lost so much time already. I write this to remind myself that I have more to offer the world than I’ve been able to give, that the drum of failure and hopelessness inside my head can change its beat. I get a flash every once in a while of what my life could mean, of what I could accomplish with the talents and abilities I have, and I need to hold on to those images and walk toward them. If I have to pause in my march each day to wash down some false pharmaceutical courage, it’s a small price to pay.
Watching your children struggle is hard on a parent.
This is her story:
I sometimes say that I won the craptastic mental health lottery. I’ve had my share of minor struggles. My children, on the other hand, have dealt with much more than I did.
My daughter is twelve, and has just returned home on Wednesday from her second hospital stay in four months. I am confident really believe hope like hell that we’ve gotten to the heart of identifying her disorder so we can do the right things to treat it. She’s smart and creative and beautiful, and I want everyone to know that about her, not focus on her anxiety or her awkwardness or her peculiar outbursts.
My nine year old son was the one who pulled us kicking and screaming into the world of mood disorders. I’ve done lots reading (books, websites, you name it) about kids like him and the myriad of Disorders (the conditions are often too big to be suited to a lowercase “d”) that could have caused his behavior. Always one to resist a label, Hoss does not fit neatly into any of the diagnoses that generally cause the behaviors as they manifested themselves in him. Welcome to “mood disorder- Not Otherwise Specified.”
He’s witty and brilliant and is such a computer whiz that I could see him as the next Bill Gates.
My baby boy, who is seven years old and therefore long past being a baby, is the hardest to pin down. He may be quirky. He may be something more serious. His stubborn streak and need for routine may not be OCD or Aspergers, but no one has ruled it out yet either. Little Joe, he of the unbelievable memory and soothing routines, is still a wild card.
Most mental illnesses have some genetic link, although there are always families with no history who have a child with some issues rising to the surface. What would be the odds of having not one, not two, but three kids with these disorders?
I am sharing my story in hopes that if someone has dealt with something similar they would be able to help me put my life back together. I’m sorry, it’s a novel to read.
My freshman year of college, I immediately pledged a sorority. Where I go to school, you actually have to pledge, you aren’t automatically admitted. One of the guys in a fraternity took interest in me and helped me out during pledging. Once pledging was over, he began to take interest in me that went past friendship.
About two weeks into the relationship, I knew that I needed to get out, but didn’t know how. He would say things to me such as, “I’m like a boy in a toy store and you’re taking away all my toys” when I did not want to engage in sexual things. Although in my head I knew I needed out, he was charming and manipulative and got me to stay in the relationship.
A month into the relationship is when the actual date rape started. It occurred at a formal with his fraternity out of state. I was under 21, so I could not go out to the bars with his friends, therefore, no one could hear me fighting back or yelling for help. This is how I lost my virginity.
This happened four other times over a three month period. He would manipulate his way back into my life. The last time it happened, he not only raped me but also became physically violent. I then got the courage to end the relationship, but he wasn’t done.
He began stalking me. Everyday. Everywhere I went …there he was. He walked behind me to class and was there when I would get out. He would have my RA leave things in my dorm room for me, and have my friends leave things in my bags and car. After multiple times of asking for him to leave me alone, he told me I was going to receive a text one night from a friend of his. This friend ended up to be the underboss of the chicago mob, or at least that is what I was told. He, his wife, and two daughters texted me everyday, all the time. They would threaten me and those I love. I was told I was being followed by those who worked for him. I was told I constantly had a hit man who would kill me if I ever tried to talk to the cops or tell anyone. I was always being watched.
During this period of time, he used this harassment and coercion to continue to rape me. For five months, this happened every day. They would text me, and threaten me, and he would use it to sexually abuse me. One night while he was asleep, I went through his phone because I was suspicious of all of these messages. I found the texting app he was using. It was all fake. He had created an entire family and hit man to stalk, harass, coerce, and rape me. He would actually borrow cars of his friends and follow me when I wasn’t with him. He had pet names for me. He would get other people to call me and act like these people. He would drop off letters and gifts even after my roommates told him we knew it was him and he needed to leave me alone or we would call the cops.
I recently turned him into the school. I had enough evidence, and he was expelled. YAY! But now I am left to deal with the horror of the past year. The stalking is okay for me to talk about. It’s so insane its almost laughable, but the fear was real. The adrenaline was flowing through my veins at every point during the day.
I still do not sleep at night, in order to protect myself. He broke into my house several times and stole some shirts. His roommate found them in his room and gave them back to me. I can’t eat during the day because I am so anxious. I can drink all day. I don’t have trouble keeping that down. I can eat at night, so I try and take vitamins and eat as much as possible at night time.
Even though I know it was fake (and he admitted to it and the rapes), I still constantly look over my shoulder to make sure I am not being watched or followed. I just feel very disassociated and don’t know how to deal with everything that happened. I am talking to a counselor, but its difficult because she hasn’t been through what I have.
I try to be as non-dramatic as possible, I just feel like I’m losing my brain – not like I’m having a mental breakdown, I just can’t concentrate on anything. When people talk to me, it takes a lot of focus and time for me to comprehend what they are saying. My short term memory is shot, and I am having flashbacks of things my brain has blocked until now. If any of you have advice or have been through this please let me know.
My daughter brought home her first trimester report card yesterday. She got all A’s and B’s, which I know will make her grandparents proud. I’m proud too, of course. But….
I read more than the report card. I read her progress report on her IEP goals. The report that says she’s making “slight progress” in her language arts and math classes. These are classes she takes in the cognitively impaired (special ed) room. The report also reminds me that she reads at a third grade level in some areas, and at a first grade level in others. She’s been at a third grade level since about fifth grade. She is in seventh grade.
This is when the anxiety creeps in again. When I start to worry about her future. Will she ever read at higher than a third grade level? Will she ever be able to do more than basic arithmetic? If she can’t take the standardized tests in high school, will she even get a diploma? College is likely out of the question, but there’s a tech school here in town through the school system, maybe she can go there?
Then there’s the jealousy. Hearing my friends and acquaintances kids’ read four grade levels beyond their age – skip grades – attend Big 10 colleges – earn all A’s.
Then I just try to focus on what’s happening right now. One day at a time. Push those worries back to that dark corner of my mind.
I recently got back from a trip to New York, a five hour drive (from Maine), which was huge for me!
I suffer with agoraphobia, meaning I have a hard time leaving my house for any duration. Five minutes is hard enough, you can imagine how hard A WEEK was for me.
BUT, alas, I DID IT! I successfully left my house for a vacation and managed to have fun!
Not only did I have fun, but so did my son, here is a picture of him playing with his cousins in the sprinkler on one of the hotter days.
He had a ball and I was so happy I overcame this hurdle and was able to experience this with him!
Anxiety and panic disorders are very real and can feel like a noose around your neck, but I promise- with a lot of work and effort, YOU CAN FREE YOURSELF FROM ITS HOLD. It doesn’t have to be a life sentence. You can overcome your fears a little at a time. Baby steps, just remember baby steps. Small victories lead to even bigger victories (before this trip, I was only able to be outside of my house for 15 minutes at a time). Don’t let yourself be held down by anxiety. Fight for your life back!
Thanks for being there for me, The Band. I don’t know where I would be right now without you guys!
