Reading back on my post, I realize how disturbing it was and that my judgement on that night was wrong.
However i do thank you for the support. This was the first time that i reached to such a low level emotionally and the holiday blues just made it worse for me.
However, it did help so much seeing all my loved ones again during the holiday season because my work is of such nature that it requires me to be away from home for long periods at a time. There are currently no construction / mining projects with open positions close to home and our project has a lot of shift changes according to project scope changes.
Due to that, i have isolated myself for a few years not realizing the emotional damage i caused.
However after my post and reconnecting with my friends at home during the holidays i realized that there is so much beauty in healing too.
When i came back i also started being more social and involved in charity events, small talk to fellow neighbors and joining the church again – which I have not done the past couple of years.
The blog made me realize that it is important to realize your weaknesses and pain to be able to adjust your lifestyle more for improved mental health and to help you heal and use the life experiences you went through to help others in need – even though it might not be directly linked to your own pain.
Since i started healing from my pain, i have grown to be such a better and kinder person and although it has only been just over a month i am exited for my life ahead and it feels full of purpose again.
I still miss her so much, but using the pain to help other people in need has changed the experience from a dead end to a positive life choice – without the requiring of medication or seeing a therapist.
I really thank you for that from the bottom of my heart.
And again i really apologize for my post; it was an emotional breakdown of all the hurt of the divorce and her loss that has just smothered me that night, but i am certain that i will never reached that point again.
I have also posted the following to just say thank you for the responses and prayers although I only read it now it has really helped so much and forever!
i can assist your team on helping other women in similar situations or completely other situations i would love to.
Reaching out has helped a lot and i also reached out to a family member.
I am glad that i pulled myself out mentally and i feel like a different person.
I also started by helping others where i can (e.g registering for bone marrow donation and donating blood ). It gives me another reason to hold on as well as spending more time with my two daughters has also cleared my min. This made me realize it is okay to break down for a minute – but it is not okay to leave them behind without a mother.
This blog has also helped me realize that there is so much people with the same pain and that it is okay to open up and that there is support without judgement.
i thank each and every person that shared their concern and opened up about similar heartache it really does make my burden more bearable.
And another AWESOME update:
As a women in the construction industry and a single mom, I do come across as a very strong and independent women and if my thoughts were shared with my family and friends, I would totally feel ashamed and isolated again, however after sharing my thoughts with you a lot has changed before i even read your posts, but i do feel that your page has saved my life and turned it around completely and here is why…..
I felt a sense of relief that i could open up about my loss for the first time without the judgement of close friends, family, and collages in my personal life so i finally had a go-to safe haven place to deal with my grief. After i wrote my letter, i felt compelled to read other stories on your page (witch made me realize I am not alone with this loss & if they can survive it, I can too).
Then i felt somewhat better and thought hey how can be proactive? have nothing more to lose how about i just check the self help links?
So i did and i realized there is hope. I gathered some tips and gave it a try and I am so amazed by the results.
I don’t only feel better but i actually truly feel like the strong women that i pretended to be for three years.
You may share as much about my letter as you feel comfortable doing as long as i stay completely anonymous, simply for the fact that i would hate to be judged by anyone close to me as i still find myself to be fragile sometimes (not in a suicidal way, more like “i want to eat that whole slab chocolate and cry for a while” kind of way ) but i not ready yet for such a setback.
hence, I have reached out to you.
You are so sincere in your posts and your page is amazing and i believe you have saved my life that night and i can not thank you enough for that.
You gave me a place to go to with all my overwhelmed emotions when i needed it the absolute most.
It was so inspiring that i decided to give back in a way.
I am not a very good writer but I thought hey everyone struggling is in need of something so i started donating blood and registering at SABMR to give back as my general health is at a stronger stage than my writing.
What you may or may not read below is something that you should be warned about. While not particularly graphic, the post contains strong themes such as child loss, stillbirth, baby loss, and suicide. If you feel that you cannot handle any of those triggers, please click here to be taken away to a world of glittery whimsy. Don’t feel as though you should read this if you’re not ready or if you’re never ready. Part of being healthy is being able to stop yourself if you’re uncomfortable with the following post.
I need you to know that this is a first for our site and that I left it alone for a long time because I didn’t want to do more harm than good. Finally, it dawned on me that this anonymous poster (who I simply cannot locate – I tried) gave us her deepest feelings and fears. Even if I am uncomfortable (and I am), these are her sacred words, and they deserve to see the light of day. You’re very welcome to reach out to me via email: becky@bandbacktogether.com
This site has a motto, a simple one: we are none of us alone, we are all connected.
We take stories here – all of them – and this is no different.
These are her sacred words that she wanted me to share with you.
I feel guilty and out of line when i speak about her on any other day except for her birthday… this year I could not even speak to anyone about her.
I don’t even understand what I must feel and what the normal grieving process is. Some nights even feel worse than the nights I lost her.
I had this idea that i would be over it by now or that I would not think about her so much.
I thought time would make it all better…..
tonight is one of the worse nights I’ve had. I just started missing her more than ever and then I felt like my heart is shattered all over again.
i can barely breathe from the crying, I feel the pain in my throat. My heart feels like it is being ripped out right now.
The image of her little lifeless body in front of me is stuck inside my head. She just looked like she was sleeping.
I just needed her her to breathe.
I just needed her to breathe.
Why did she die???
Why did she have to die?
I can’t explain this pain.
I don’t think anyone will understand what I feel right now. If I ever had to talk to anyone about this pain, what would they think? I just can’t talk to anyone! I will just be a burden or they will think I am seeking attention; that is mostly the case when i bring her name up to my ex-husband. I didn’t mean to blame him for not being able to save her, all the build up hurt just got the best of me. The grief turned into hate, hate towards people that do not deserve it, it made me push them away.
i just feel like screaming now!
Sometimes I wonder if I will feel better if I could talk about her, sometimes I wonder if it will ever get better….
Will I ever get closure?
i do not think i will male it through this pain…
i smile the whole day so no one even notices how broken I am. Once I am alone, I break down.
It is like a black hole that just gets bigger…
The pain consumes more of me each day.
Suicide is no longer just a thought, it is a pat of my plan, it is a matter of fact.
I am not scared anymore to go
I am so sorry for what i leave behind; the people I love that I leave behind. They don’t deserve it, my kids, my family, and my friends don’t deserve it… they have done nothing wrong.
i Just cannot go on , i have died inside a long time ago. Who i am now is just a body that is on repeat and that is not life. Feeling so numb and hurting this much is unbearable.
I hope the ones i leave behind will try and understand. On the brighter side at least my ex-husband will be happy.
I just want to go home, I want to be in heaven , I want to rest with my baby Olive.
I don’t belong here anymore.
After her loss, I tried my best to be happy, but I’ve never been happy again since she has died. I mastered the art of pretending to be happy at least , but I just can’t feel it. Funny how i even have the nickname “Smiley”… lol
If there was a person i’d have been able to open up about her, it would have been her father, but because of the ways in which i brought her up in our fights, he doesn’t want to hear anything about her.
I guess I cant blame him; it is my own fault … I never had a guideline or a manual on how to deal with the mixed emotions and thoughts her death caused.
I kept quiet about so many feelings that I should have shared and I lashed out about so many thoughts I should have kept to myself.
Anyway, it is to late late for the “should have’s” and “what if’s” and “if only i hads.”
Nothing will bring her back and nothing will change this pain. All this hurt killed me inside.
I didn’t die that long after she died; now it’s just my body that is left behind wondering around, longing to go, waiting impatiently to go.
Yes, I do think my death will be a shock to everyone in my life including my boyfriend ( which is the most amazing guy on earth). Some people don’t even know about Baby Olive, so most people that are the closest to me wont even link my death with hers.
The truth is i that just want to go. I feel so numb to their opinion about why I left – it won’t even matter. There won’t be a note it a sign before if I go, I will just go.
i guess the only reason i am still here is to finalize a few things before I go. I want my departure to be easy for those I leave behind, I want to be quickly forgotten. I don’t want anyone to hurt or feel guilty. My wish is to make it seem like an accident.
I am not even sure whyIi wrote this. If i ever had to say i am sorry, i will say sorry to her father for the anger and the blame and the hurt. I would have apologized for the person i was, I am sorry for my actions and how they affected you. I am sorry for being so controlling and crazy over you. I just never loved the way I loved my husband and I’ve never hurt like the day i lost her.
I am not good at handling those strong emotions – it just comes out wrong and I am sorry. Sorry will never fix anything and even if I had the chance to say sorry now, I know it won’t matter.
It has been 3 years.
I don’t even think you will remember. I know that you are happy now, I know you love her more than me, I know she is so much better and prettier than me, and that is good.
I will not bother to disturb anyone.
Whatever is left unsaid will forever be…
i guess writing this gave me some peace before I go, even if it will never be read or understood. Even if those i leave behind will never know that I got some peace before i go.
i feel so much better to knowIi can finally go. I feel it’s so selfish, yet I am no longer living even if i stay.
I will give my family my very best to make sure they know how much i love them and how much i appreciate them.
They are the best; that’s why i want to go without them considering suicide.
While everyone starts off with a new year, I just wish to start of with my eternal life without this pain and hurt.
i guess I am hoping to meet her there too … most nights, the thought of meeting her soon helps me to fall asleep.
I don’t know what I was supposed to feel or how, how to soothe this pain, but I do know i want to end it.
and i will.
I guess that’s just where my story ends.
my book of life has been completed and i guess not every story gets that happy ending.
ive been wanting to post for a long time about what to say when someone loses a child. some days i feel like i really didn’t lose a child so much as i lost the possibility of one, or two, as it were. when my mother remarked that i didn’t really have them, i knew what she meant, and i agreed, after i recovered from the initial sting of her candor.
i didn’t after all. my dear ayla, the one whose bag of life was so grievously compromised, never showed us any signs of spirit after she was born. she was on the shuttle already as we nuzzled her warm body.
sweet juliet was pink, opened up her little mouth, stretched her limbs. morphine i cried out, “T! cut her cord!” so desperate was i to believe the deceit of her movements. silly people, my daughter is fine!
run along now. ah but reality resurfaced all too soon. the amazing wonderful caring loving angel at my bedside nurse worked swiftly to baptize her and deliver her to our arms.
this is where is gets hazy for me.
i know T held his sweet girl as she went on to join her sister. he says she made a face that looked just like her mama right before she drifted off.
i slept in and out of consciousness for hours, waking only to deliver the placentas and fill the space-age barf bags i was provided. when i finally half-shook my stupor, my mom helped me shower and put on a stretchy netted undie.
the doctor came in and told me i could leave whenever i wanted or i was welcome to stay. i gave him a ‘watchu talkin bout willis?’ kind of look. i was in no shape to leave and after awhile i was moved out of the birthing suite into a regular room.
T showed me the text he had sent out to our friends and families:
‘this morning at exactly 20 weeks we delivered Ayla Joy and Juliet Grace. we held them in our arms, baptized them, and kissed them goodbye.’
i never would have thought to send a text and i forwarded it, in disbelief, to many. one went out as an answer to a ex co-worker who had not 5 minutes earlier asked how everything was going: not good. its not good.
T wondered aloud exactly when all of his friends had started praying.
its just that the words that meant the most to us were unique. one friend wrote ‘you gave them such beautiful names’, another, ‘your little girls are angels now, they will always be with you and i will never forget them.’ after he and his wife could gather themselves enough to be able to call me; my cousin, a dad of two boys, cried with me. he said ‘i wish i could have met them’.
so what can you say when a baby dies?
certainly nothing that anyone said took the pain away, but having the girls acknowledged was something that meant a lot to both T and me.
when an older person dies, you don’t just say you’re sorry, you usually elaborate about the person and what you loved about them. that’s what we especially appreciated about these few comments. people were not just pitying us, feeling sorry for what we went through, they were remembering our girls to us and acknowledging that even though we didn’t really get to have them, lord, they were here.
When a baby dies, we are fragmented. Shattered, we must pick up the pieces and put them back together as we pay tribute to our children, our tables forever missing one, our families incomplete, our treasures in heaven, our babies alive only in our hearts.
It is through our stories that they live forever. These children were here and they mattered. They were loved.
They are loved.
I saw your pajamas last night.
No, they weren’t the exact ones, of course. I returned yours to the store, along with your bassinet and baby blankets.
These were the same though, your pattern. The ones I picked out to match your nursery. Bright teal, with lime green, hot pink, and bright purple flowers. And panda bears. Lots of pandas.
It’s been three years today, October 12. One would think it wouldn’t hurt anymore. Or that I would have tried to heal by having another baby by now. They’re wrong.
It does still hurt. In the lonely nights, when I feel the ghost of your movements, deep in my belly. In the unguarded moments when I let myself watch the baby shows on TLC. When I pass by someone pregnant, and I find myself passing a hand over my empty tummy.
Is it wrong of me then, that I do crave to hold another baby in my arms?
I’ve given myself time, and I continue to mourn you. But I still have so much love to give. And Ian wants a baby. I want to give him this gift, to share this part of our future together. A part of me still feels I’m forsaking you to do so.
So tell me, my sweet Bella, what am I to do?
How long am I to go on missing the sound of your heartbeat, the feel of your somersaults?
How long before it’s “acceptable” for me to want another child?
Nolan “Shepherd,” stillborn at 17 weeks on September 15, 2009.
Amanda’s Baby:
Jamie, 4/6/2010
Angie’s Daughter:
Madeleine Rose, stillborn July 7, 2009 due to incompetent cervix and uterine infection.
Ann’s Son:
Orion, stillborn May 8, 2004
Beka’s Son:
Benjamin, September 4, 2012, stillbirth.
Beryl’s Daughter:
Bella Rose, stillborn on September 9, 2009.
Brenda’s Son:
Emerson Allen Behrends, July 10, 2001, stillborn.
Danielle’s Baby:
Micah Rachel
Debbie’s Son:
Jonathan Edward, June 4, 1992, stillborn.
Debbie And Jeff’s Daughter:
Chloe Eva, September 12, 2008, stillbirth.
Heather and David’s Daughter:
Clara Edith, July 1, 2012, Stillbirth at 42 weeks, 3 days due to meconium aspiration and uterine infection.
Jill and Mark’s Baby:
Haven, November 26, 2003, stillborn at 38 weeks gestation
Jolene’s Daughter:
Ruth, January 3, 2013, stillbirth
Leslie’s Son:
Cullen Liam, born still September 11, 2010.
Lilla and Gareth’s daughter:
Pippa, born still on February 13, 2011 from listeria infection.
Lillie Belle:
Stillborn, born still 2017
Lisa’s Daughter:
Kaitlyn Grace, stillborn, born still, May 13, 1995.
Louise and Joseph’s Baby:
Alice Mathelin, born still on February 25, 2011, at 36 weeks and 5 days from Abruptio Placentae
Martha’s Twin Boys:
Owen died March 8, 2008 because his cord wasn’t properly attached to the placenta.
Joshua died one month later, April 6, 2008 because he couldn’t live without his brother. Both were born still on April 8, 2008.
Melanie’s Daughter:
Summer Lily, born still March 30, 2011.
Mel’s Daughter:
Jordan Ala, stillborn on November 13, 2006.
Melissa’s Twins:
Nicholas Aaron and Nathan Alexander, June 9, 2000, stillbirth
Nikki’s Son:
Sam, 1997, intrauterine fetal demise
Sarah’s Daughter:
Audrey Elizabeth, August 7, 1998, born still.
Selah Mae: born January 22, 2002, stillborn.
Stephanie’s Son:
Carter Austin Ross, March 18, 2006, stillbirth due to an umbilical cord anomaly.
TiaMaria’s Daughter:
Isabella-Rose Elizabeth, October 12, 2009, stillbirth.
Prematurity:
Amy and James’s Babies:
Jacob Bennett born and died on July 11, 2007 due to premature rupture of membranes (PROM).
Samantha Lauren born August 16, 2011 at 23.5 weeks passed away September 17th due to extreme prematurity and fungal meningitis.
Baby Helen: Born July, 1993. Passed from prematurity.
Celeste’s Son:
Christopher Robin Cote: Born September 25, 2009. Stillborn due to premature rupture of membranes and incompetent cervix.
Chantel’s Daughter:
Emily, prematurity born 19w 5 days – was too small for the equipment.
Christine’s Son:
Jellybean, born at 5:20 April 15th, 2009; and passed just four short hours later in her arms.
Heather and Aaron’s Son:
Aodin R. Hurd, October 7, 2007, born still due to premature rupture of the membranes.
Jenn’s Son:
Kevin William, prematurity, 2005
Kate’s Babies:
Baby S, March 2008, Miscarriage
Evie, December 14, 2009, Triplet Prematurity
Jack, December 22, 2009, Triplet Stillbirth due to Prematurity
Will, January 13, 2010, Triplet Prematurity
Baby M, May 2010, Miscarriage
Kristin’s Baby (Mama KK):
Ariel Grace, born on July 28, 2009 at 18 weeks 5 days. Lived 5 minutes.
Leleisme’s Babies:
Ayla and Juliet, October 20, 2009 at 20 weeks.
Bayli and Thomas on June 8, 2011 at 21 weeks 2 days.
Matthew Chase Sims:
April 25th, 2006 due to prematurity.
Melissa’s Son:
Born at 21 weeks in June 2011 due to a bacterial infection, lived for 30 minutes.
Melissa’s Daughter:
Hope, 1993
Nicky’s Son:
Samuel, August 8, 2001, prematurity.
Nina’s Son:
Coleman Parker Garibay, September 14, 2005, lost at 6 months gestation and passed from prematurity.
Paula’s Baby:
Reya, September 18 2011, Prematurity due to extreme Pre-eclempsia
Qudija’s Babies
Mikel Azariah and Willamina Azaria born August 12, 2019.
Mikel was stillborn,
Willamina was premature at 22 weeks 6 days
S & T’s Son:
William, November 2, 2013, 24 weeks, 3 days, prematurity
Vickie’s Son:
Collin, complications from prematurity, 2009
Yvette’s Son:
Erik Richard, July 29, 1981, prematurity.
Birth Defects:
Aaron and Kristine’s Son:
Luke Ervin Seitz, born July 21, 2011 with Hypoplastic Left Heart Syndrome, and passed on June 28, 2011.
Amy’s Babies:
Mateo, Anthony, and Ian born on May 6, 2008 at 23 weeks and 3 days.
Mateo was born still.
Anthony passed away from Transposition of the Great Vessels.
Ian passed away after a short stay in the NICU.
Amy’s Babies:
Nathaniel James, August 24, 2001 – August 29, 2001, Citrullinemia
David Henry, May 11, 2010 – January 24, 2011, Citrullinemia, passed away after becoming sick post liver transplant
Baby Khalil, born August 14, 2009, stillborn, born still from birth defects.
Baby Kober
Kyle William Kober July 22, 1994 due to Hypoplastic left ventricle syndrome
Beth’sSon:
Ethan Connor Brockwell, May 3, 2006 – August 17, 2006. Born with Hypoplastic Left Heart Syndrome.
Christopher: November 4, 1979, due to pulmonary atresia, a congenital heart defect.
Christopher’s Son:
Aidan, born with brain malformation on December 16, 2008 and passed on December 19, 2008.
Cora Mae McCormick:
November 30, 2009 to December 6, 2009 from a congenital heart defect.
Ellen’s Son:
Shane Michael, born October 10, 1971 and died October 11, 1971 from heart complications before his mother could wake from anesthesia. She never saw or held him.
Julie’s Daughter:
Brianna Elizabeth, born January 29, 1998 and died March 7, 1998 from a heart defect.
Kathryn’s Son:
Seth Douglas Bonnett, Our Little “Tough guy”, March 27, 2008 – October 12, 2008. Died from Hypoplastic Left Heart Syndrome.
Raquel’s Son:
Austin Skylar Gregory, born July 3, 2005 and gained his wings August 29, 2005 from Multiple Complex Congenital Heart Defects.
Ruth’s Son:
Corbin Walker, born February 20, 2011 and died May 17, 2011 from heart defects brought on by Williams Syndrome.
Shannon’s Baby:
Chloe Walker, born November 29, 2000 and died June 4, 2001 from multiple congenital heart defects and heterotaxy.
Suzy’s Son:
Starbaby, born still February 2008 due to Trisomy 18.
Venita’s Son:
Matthew Connor – February 26, 2005, born at 26 weeks, passed from Necrotizing Enterocolitis (NEC).
Wendy’s Baby:
Reed Allyvion Miners, passed away July 5th 2003 at one hour old from Primary Myocardial Disease, a congenital heart defect.
Liberty Ann born March 30, 2011 and died on April 19, 2011.
Ally’s Son: Collin
Collin: born on August 9th, 2008. He passed away 30 minutes later from cardiac arrest after an emergency c-section due to a placental abruption.
Amy’s Baby:
Nicholas, born December 14, 2005, died April 19, 2006 from SIDS.
Claudia’s Son:
Max Corrigan, born November 14, 1987 and relinquished to adoption on November 18, 1987.
April’s Daughter:
Brianna Ann 3/19/2018, car accident – donated the gift of life to 5 people through organ donation
Colleen’s Babies:
Bryce Philip born May 26, 2009 and died September 1, 2009 due to SIDS
Ashton Karol, stillborn on February 24, 2010 at 17 weeks.
Jenny’s Daughter:
Addison Leah, June 13, 2008, accidental death.
Jessica and Mark’s Daughter:
Hadley Jane, born October 9, 2001 and died October 11, 2007.
Julie’s Babies:
Halsey Douglas Dukes December 31, 2016, Halsey passed from hemophaygocytic lymphohistiocytosis (HLH)
Halcyon Grayson Dukes was born September 1, 2011 Halcyon failed to develop after 9 weeks
Lanie’s Sons:
Jake, born August 14, 2005 died August 27, 2005 due to prematurity and hydrops.
Sawyer, born November 17, 2009 died December 26, 2009. His cause of death has not been determined because he is part of a study at the Mayo clinic for heart arrhythmias – SIUDS (unexplained sudden infant death)
Leslie’s Son:
Cullen, September 11, 2010, stillbirth.
Mindy’s Son:
Brian Vitale, accidental death, September 4, 2007 – June 3, 2010. We miss him more and more each day.
Nancy’s Son:
Patrick, born April 10, 1977, Adoption
Pharon’s Daughter:
Sophia Lu Boudreau, born December 21, 2006 and died October 9, 2007 from SIDS.
Rebecca and TJ’s son:
Rafe Theobald Calvert, born on October 11th, 2009 at 26 weeks. Spent 3 months in the NICU and underwent an intestinal obstruction repair. He was released on January 11th, 2010 and we brought him home for 6 weeks. He passed away at 4 and a half months old from SIDS on February 25th, 2010.
The Stamm’s Daughter:
Adrienne Mae, May 7, 2006, Sudden Infant Death Syndrome.
Suzie’s Son:
Nathan Michael King, died from SIDS November 2008.
Vanessa’s Daughter:
Kendra, April 23, 2005 to March 24, 2006. Died from Jacobsen Syndrome.
I have had 10 miscarriages – just saying that is hard for me
For so long I have tried to sweep it under the rug – once my number became larger then three I became numb to it all. I’m not really an emotional person, but this topic always brings up memories as if it all happened yesterday.
I have been through 10 miscarriages in 6 years.
I am 28 years old – I have been pregnant 13 times – and have 3 living children.
I can be a very private person, but I think miscarriage and infertility have enough secrecy surrounding it that I do not want to perpetuate it. The more it is talked about – the more women and families can feel supported and listened to and important – not embarrassed and ashamed like I am struggling to not feel. I am opening up the door to talk about it – so here is my long story:
My first two miscarriages were kind of a blur to me. We were not trying to get pregnant and basically found out we were expecting the same time we realized we were miscarrying. I had always heard that having one miscarriage was ‘normal’ and so I honestly didn’t put too much thought into it. They were still very painful and devastating to me but I thought once we were actively trying everything would be OK – that no one would have more then 2.
My husband and I decided to start trying for a family and we actively began trying to conceive using basal body temping as a guide. We became pregnant again in November 2004 after the first month of trying. I was about 6 weeks pregnant just around Christmas when I miscarried (#3). This time it hit me – hard. I mean I have never heard of someone who has had 3 miscarriages ever – let alone in a row.
Basal Body Temperature Chart using Fertility Friend
I began feverishly doing my research.
With my basal body charts I had noticed that my luteal phase was under 10 days (according to research the shortest it should be for a successful pregnancy) so I began to take vitamins B6 and B12 to lengthen it. I went to the doctor and his thought was that my progesterone was low and that is why I was not able to hold on to the pregnancy past 6 weeks. So a new plan evolved. I would stay on the vitamins and go on a progesterone supplement the moment I found out I was pregnant. This made the basal body temping so important – I needed to know the exact date.
We began another month of trying to conceive (TTC). Thermometer in hand and a plan in mind we became pregnant again in June and I was on the progesterone medication. The plan was to stay on until 12 weeks pregnant and then to slowly wean myself off. When 12 weeks came along we lowered the dose of progesterone but I began to bleed so we quickly went back onto the medication. The baby was doing fine and the new plan was to wean off at 20 weeks. 20 weeks came and I was successfully weaned off with no further complications. I had my first full term baby (Big P) in December 2005 – a healthy boy.
Big P – 8lbs 1oz
My husband and I had always wanted to have our kids close in age, so we starting TTC again relatively quickly. I began the basal body temping again and got pregnant pretty quickly. When I got the positive I went to the doctor to get a prescription for the progesterone and started taking it again. I miscarried #4 shortly after 7 weeks. My doctor and I both thought it was because the progesterone was not started soon enough so I was given a prescription for the next time to begin the day I had a positive test. I got pregnant again and started the progesterone but miscarried #5 at 6 weeks 5 days and I was starting to lose hope. I went back on the vitamins and we began TTC again. Thinking back it probably would have been better to give myself a few months to heal physically and emotionally but I was determined and had the okay from my doctor.
In July 2006 we got pregnant again and everything was going smoothly. I was on the progesterone and we had an ultrasound that showed the heartbeat and the baby was growing. I was on bed rest again for the first 20 weeks and was weaned off the progesterone at 20 weeks. Everything was going smoothly. At 8 months pregnant I awoke with vertigo – fell and cracked my wrist. I was taken to the hospital and without going into too much detail I was diagnosed with possible stroke and they ran a large amount of tests and I was hospitalized.
In one of those tests they discovered I had a blood disorder called Factor V Leiden. Everything was going relatively smoothly with the pregnancy. I was having some weight issues – having only gained 10lbs and was 8 months pregnant they were checking to see if the baby was growing -which she was. I was being induced just over 2 weeks early because of the vertigo and possible stroke. Our healthy baby girl (Princess R) was born in February 2007.
Princess R – 7lbs 14oz
This is where the story starts to get a bit crazy. I had 2 more miscarriages (#6 & 7) due to failed birth control. We were not trying to have an other baby yet – however these losses were still quite painful.
In May 2007 I was diagnosed with Celiac Disease and was on a strict gluten free diet. We had wondered if that was an underlying cause contributing to the miscarriages and we’re hopeful that was the answer. I still had the constant vertigo that started in January 2007 and was seeing a neurologist for possible causes. During one of our meetings she mentioned Factor V Leiden again. That was the first time I had heard of it since back when I was pregnant with Princess R. The neurologist thought that could be the cause of my possible stroke when I was pregnant. I was sent to other specialists for that.
My husband and I were ready to expand our family again. I went off birth control in the beginning December 2007 and we began TTC again. I became pregnant the first month but lost miscarriage # 8 at just over 5 weeks. We didn’t take any breaks between that loss and trying to conceive again and we became pregnant again the next cycle at the beginning of January.
I was back on the progesterone and everything was seemingly going okay – baby was perfect. We had made it past 8 weeks of pregnancy and thought everything was going to go smoothly. We had told extended family and friends and had begun taking daily photos of my growing belly – our kids were excited.
Big P and Princess R telling the family about the growing baby
A phone call came to me a few weeks later that shattered me. The baby (Triton) that had made it to 13 weeks was “no longer viable” and he had passed away (miscarriage # 9). I was confused – I had done everything ‘right’ – I was on the progesterone, was on bed rest – everything. I was scheduled for a D&C because I did not want to deliver at home.
The OB who was going to be doing the surgery turned out to be a lifesaver to me. Another miracle that Triton brought into my life. My OB had read over my chart, talked to me for a long time about my history and pegged that I had been diagnosed with Factor V Leiden, a blood disorder that predisposes me to making blood clots.
The surgery was scheduled for April 24, 2008 and I was able to get the answer I needed. When the pathology came back it showed blood clots caught in the umbilical cord cutting off the supply to Triton. He had given me the answer and we had a new plan and a concrete diagnoses for all my losses – Factor V Leiden.
Recovering from surgery, my husband and I were not trying to conceive yet. I did become pregnant (seriously it’s like he just has to look at me to get me pregnant) the next month but miscarried again (#10) likely because I was not healed up completely from the surgery. We were both ready to start the process of adding to our family and met up with my OB again.
The new plan – because Factor V Leiden predisposes me to throwing blood clots normally and any pregnant woman’s risk of blood clots increase anyway – my chances were pretty high. This is the reason for my miscarriages, my possible stroke at 8 months pregnant – but luckily there was something we could do. I was still going to be on the progesterone for 20 weeks because I did have an issue with low progesterone – it was just not the whole story.
I continued with the basal body temping and this time added low dose aspirin (it’s a blood thinner). Once I got that positive pregnancy test – I went on the progesterone and was put on another medication called Fragmin. This medication is a needle that I inject into my lower abdomen – it is a blood thinner that is safe to take while pregnant. This medication was designed to thin my blood enough to stop me from making clots and putting me and baby at risk for miscarriage or still birth.
I injected myself with this needle every day – I was covered in bruises but everything was working. It became second nature to me. Since it is not safe to go into labor while on blood thinners I was placed on bed rest at 36 weeks because I had begun to dilate. The plan was to induce me again just over 2 weeks early – I had to be off the blood thinner to deliver but could not go over 12 hours without the medication or I would risk another stroke. So, the safest thing to do was a planned early induction.
In February 2009 our third full term baby (Baby E) was born perfect and healthy. I was put back on the Fragmin blood thinners and had to continue giving myself the injections for 8 weeks postpartum.
Baby E – 7lbs 13oz
Now, if you are still with me – thank you. It is hard to condense this story into a few paragraphs. I don’t really have a ‘moral’ or ‘message’ to this story except this is my story. It has been a very difficult and extremely painful journey.
It has taken me a long time (and I am still working on it) to accept what has happened and to begin to digest it all.