At the end of last month, I wrote an entry about one of my little brothers and I wanted to share it here with other Pranksters. Normally this is not the type of stuff I share, so getting it down was pretty difficult. I knew if I didn’t do it, it would eat at me until I did. So here it is…
I was at a loss for words, which rarely happens, so I got my son (The Boy) ready for an outing. Which means I handed The Boy off, informing my husband (Gadget Guy) that he needed to take a break, so I didn’t go outside smelling like a gym shoe.
Given the promptness of Gadget Guy’s willingness, I must have smelled pretty bad.
Once I got cleaned up, changed a massive poopy diaper, and got in the car, I decided to go to the mall. I had to take my wedding rings to get cleaned and decided that walking the mall would be as thought-provoking as anything else. Plus, it’s still reaching the low 100′s here in the afternoon, so outside was not an option.
Normally, the mall provides lots of things for me think about: obnoxious teens, people who touch my child without asking, panic attacks in the elevator, using the family bathroom, and the list could go on.
However, this is what caught my attention:
It’s an ornament. I found it in Hallmark.
And this little thing was enough to make me start crying. I was bawling like a baby in the middle of the Hallmark store. My son, who is a 5-month old baby, looked at me like I was a crazy person and the Hallmark lady asked if I was okay.
I muttered something about stubbing my toe, picked up the ornament and paid for it. Then, I high-tailed it out of the mall, as to not make a bigger spectacle of myself. I’m sure you’re wondering how this tiny replica of a 1939 musical fantasy character made me break down like I did.
Sit tight, because I may not make a whole lot of sense here, as I’m already getting teary-eyed at the thought.
I’m the oldest of four children. I have/had two brothers and a sister. I say “had” because one of them died.
Little Brother #1 wasn’t even the one we thought we would lose, but Little Brother #2′s story will have to be shared another day.
Little Brother #1 was a little over two years younger than I was. We grew up together and were bestest friends until we hit puberty. Then we fought, argued and generally didn’t get along. All fairly normal sibling rivalry.
When I went off to college, things between the two of us improved. We appreciated each other a bit more and decided we just needed to agree to disagree and move on.
For the most part, this worked.
Little Brother #2 did things in his own time and in his own way. He had severe ADHD and at 14, decided not to take medication to treat it anymore. He graduated a year later from high school, didn’t go to college, and was (medically) discharged from the Navy. He bounced from one job to another. We were complete opposites in most of those regards, and I had a hard time relating to him.
And he always had a difficult time in social situations which was particularly hard on him. He was a friend to a lot of people, but didn’t have a lot of friends. He was easily taken advantage of. I didn’t understand why he would give so much of himself to other people when they didn’t give him the same in return.
He did excel in dramatics. He was one of the youngest students ever to be inducted to the Thespians Cub when he was in high school. He wasn’t cast often, but tried out for every play and he became the go-to guy for backstage production, lighting, and set design.
People referred to him as Tin Man. I’m not sure where the nickname came from, but he wore it proudly. He had it put on his Letterman jacket instead of his name. It was on his track jersey, the back of his drama t-shirts, and even on his class ring.
In the beginning of 2007, he died.
He was 21.
He was in a car accident, but it wasn’t drugs or alcohol, thankfully. He fell asleep at the wheel and rolled his car.
If there was anything fortunate about his death, it was that no one else was involved, and the freeway was completely empty when it happened. He was pronounced Dead On Arrival. The Medical Examiner said that it would have been quick and that he hadn’t suffered. I HAVE to believe that. I can’t believe that he sat in pain, I just can’t.
My parents didn’t handle it well. I stepped up to take control of things where they couldn’t. Gadget Guy was a live saver and helped support me while I tried to support them.
Little Brother #2′s funeral was epic. There were almost 400 people in attendance. It was amazing to see the sheer number of people crammed into the small chapel as I gave his eulogy. And after the burial we had a huge party in his honor.
In the end, all those people that my brother was a friend to came to say goodbye.
To honor his memory, and celebrate the one thing he loved the most, my parents had “Tin Man” engraved under his name on his headstone.
Now, I can’t watch the Wizard of Oz without crying. I can’t even look at an image of the tin man without choking up.
That is why I was bawling in the middle of the Hallmark. I didn’t even keep the ornament.
Instead, I gave it to my mom.
A person’s a person,
no matter how small”
– Dr Seuss
Today, October 15, 2019, we pause to remember the stars of our soul that were extinguished far too early.
To the parents who are missing their babies today and always, The Band sends our love and prayers.
To our babies, the babies who never got to experience the joys of Earth, whose lives were cut very short, we miss you.
We miss you. More than anyone can ever know. We wish we could have one more moment – one single moment – with you, as we can’t have a lifetime.
Today, we honor the short lives of some of the brightest souls, souls that have touched many and have taught us to cherish all of life’s moments.
To our babies who we carry in our hearts, instead of our arms, we will never forget you.
Band Back Together’s Wall of Remembrance:
- Mary Katerina, miscarriage March 13, 2008.
- September 23, 2010, miscarriage.
Amanda and John’s Babies:
- Juliana, July 2008, miscarriage.
- Charlie, November 2009, miscarriage.
- Samantha, March 2010, miscarriage.
- Her 3 Littles, December 23, 2010, missed miscarriage/June 2011, miscarriage/December 6, 2011, Autosomal Recessive Polycysitic Kidney Disease
Another Becky’s Baby:
- Baby Savu, August 2004 missed miscarriage between 3rd and 4th month.
- Baby Garrett, September 13 2012, Miscarriage
Aunt Becky’s Babies:
- February, 2008, Baby 1, miscarriage.
- March, 2008, Baby 2, miscarriage.
- August 2017 ,Tuesday, miscarriage
- February 15, 2000, miscarriage.
- Pregnant October 2011, unpregnant January 2012, ectopic pregnancy.
- July 15, 2008, miscarriage.
- June 13, 2005, miscarriage.
Baby Noah Walter
- January 2012, miscarriage.
- Malcolm, January 2008, miscarriage.
- Ophelia, April 2009, miscarriage.
- Caden, miscarriage, May 1989.
- Aubrey, miscarriage, December 1993.
- Kaycie, miscarriage, 6/14/2011.
- Baby Jones #1, February 2007, miscarriage at 12 weeks due to blighted ovum (Empty Gestational Sac).
- Michelle, November 1991, miscarriage
- 2 babies, miscarried in 1994 and 1999.
Elsie’s Ten Possibilities:
- Nine Embies, 2008
- Lola, 2011
- Baby 1, September 2006, miscarriage.
- Baby 2, January 2007, miscarriage.
- Baby Girl 1, December 2008, late miscarriage.
- Baby Girl 2, August 17, 2009, born still at 18 weeks.
- March 2005, miscarriage at 13 weeks.
- Biscuit, July 18, 2012, miscarriage.
- Unnamed baby, 6w1d, September 18, 2010, miscarriage.
- Unnamed baby, 6w2d, June 22, 2011, miscarriage.
- Unnamed baby, 5w, August 15, 2011, miscarriage.
- Pregnant in December, 2007. Unpregnant by February, 2008.
- Forget Me Not #1, February 2009, miscarriage.
- Forget Me Not #2, January 2012, miscarriage.
- Baby M, September 10, 2011, miscarriage.
- Stella, February 13, 2011, miscarriage.
- June 8, 2008, early miscarriage.
- November 2007, early miscarriage
- November 2011, early miscarriage
Justine and Boo’s Baby:
Kallay and Ryan’s Baby:
- Baby C lost to a partial miscarriage, May 17, 2010. Baby C is survived by twin sisters, Lily and Molly who were born on December 7, 2010.
- Mari Elizabeth, September 2003, miscarriage
- Noah Douglas, October 2004, miscarriage.
- Twin Angels, July 2006, miscarriages.
- Rebecca, June 3, 1995, miscarriage.
- Baby Sluiter A, April 2007, miscarriage.
- Baby Sluiter B, May 2008, miscarriage.
- Baby 1, September 2009, miscarriage.
- Baby 2, May 2010, miscarriage.
- Lola, October 9, 2012, miscarriage.
Kelly and Brad’s daughter:
- Lily Catherine, February 18, 2010, miscarriage.
- Baby 1, April 2003, miscarriage.
- Baby 2, October 2004, miscarriage.
- Baby 3, February 2006, miscarriage.
Kendra Pocock’s Baby:
- Baby JJ Pocock, July 13 2012, Miscarriage/Ectopic Pregnancy
- Baby, October 1996, miscarriage.
- Baby One, son late term miscarriage at 15 weeks.
- Baby Two, second-trimester miscarriage at 14 weeks.
- Baby Three: miscarriage, 11 weeks.
- Baby Four: miscarriage, 13 weeks
- Baby Five, late miscarriage, 16 weeks.
- Eva, miscarriage
- 7 other babies lost through miscarriage due to luteal phase disorder and clotting disorder.
L. Moses’ Baby:
- Baby Moses, July 17, 2008, ectopic pregnancy
Lara and Brandon’s Son:
Lauren C’s Angels:
- Baby, August 27, 2007, miscarriage.
- Baby Boy, January 13, 2011, miscarriage.
- Baby May 9, 2011, miscarriage.
- Cameron, born and died May 22, 2009 at 10 weeks.
- Jeremiah Oliver and Jillian Olivia, twin babies. Second trimester loss July 9, 2010 and July 14, 2010 respectively.
- July 1994, ectopic pregnancy resulting in emergency surgery.
- Natasha Anastasia, September 7, 2011, miscarriage.
- Baby B #3, September 1, 2011, miscarriage at 5 weeks.
Marlowe Corrine, September 19, 2006, early miscarriage.
- June 11, 2011, miscarriage
- Baby Angel, February 8, 1998, blighted ovum/miscarriage
- Albert Eugene, October 31, 2000, miscarriage
Mindy’s Three Angels:
- Angel One, September 9, 2005, miscarriage.
- Angel Two, July 17, 2007, miscarriage.
- Angel Three, September 25, 2010, miscarriage.
- Peanut, August 7, 2011, miscarriage.
- Baby One, February 2, 2011, miscarriage.
- Hosanna Joy, June 18, 2011, early miscarriage.
- Cody Ryan-Price Grodan, February 14, 2012, miscarriage, 12 weeks.
Nicole and Jake’s baby:
- Baby One, September 19, 2011, miscarriage.
Rachel and Jesse:
- Babies due Aug 2008 and November 2010. Both lost to miscarriage.
- Alivia Mason, March 21, 2012, miscarriage.
- First Angel April, 2013, miscarriage
- Second Angel July 2013 miscarriage
- Isaac Ephraim, miscarriage August 2006.
- Isaiah Jeremiah, miscarriage January 2007.
- Ella Alicea, ectopic pregnancy June 2009.
- September 2006, miscarriage.
- April 12, 2002, miscarriage.
- September 3, 2008, miscarriage.
- Baby Bun Bun, April 2017, miscarriage
- Baby #3, June 2000, miscarriage from a blighted ovum.
- Athena Rose Moore, Girl Twin B
- Grace, 10/29/2001, miscarriage
- October 1990, miscarriage.
- September, 2002, miscarriage
- July 17, miscarriage
- September 25. miscarriages.
- 2008, Little Soul 1, 2008, ectopic pregnancy.
- 2009, Little Soul 2, 2009, ectopic pregnancy.
- Sean Michael, April 14, 1987, miscarriage.
- Nolan “Shepherd,” stillborn at 17 weeks on September 15, 2009.
- Madeleine Rose, stillborn July 7, 2009 due to incompetent cervix and uterine infection.
- Orion, stillborn May 8, 2004
- Benjamin, September 4, 2012, stillbirth.
- Bella Rose, stillborn on September 9, 2009.
- Emerson Allen Behrends, July 10, 2001, stillborn.
- Jonathan Edward, June 4, 1992, stillborn.
Debbie And Jeff’s Daughter:
- Chloe Eva, September 12, 2008, stillbirth.
Heather and David’s Daughter:
- Clara Edith, July 1, 2012, Stillbirth at 42 weeks, 3 days due to meconium aspiration and uterine infection.
Jill and Mark’s Baby:
- Haven, November 26, 2003, stillborn at 38 weeks gestation
- Ruth, January 3, 2013, stillbirth
- Cullen Liam, born still September 11, 2010.
Lilla and Gareth’s daughter:
- Pippa, born still on February 13, 2011 from listeria infection.
- Stillborn, born still 2017
- Kaitlyn Grace, stillborn, born still, May 13, 1995.
Louise and Joseph’s Baby:
- Alice Mathelin, born still on February 25, 2011, at 36 weeks and 5 days from Abruptio Placentae
Martha’s Twin Boys:
- Owen died March 8, 2008 because his cord wasn’t properly attached to the placenta.
- Joshua died one month later, April 6, 2008 because he couldn’t live without his brother. Both were born still on April 8, 2008.
- Summer Lily, born still March 30, 2011.
- Jordan Ala, stillborn on November 13, 2006.
- Nicholas Aaron and Nathan Alexander, June 9, 2000, stillbirth
- Sam, 1997, intrauterine fetal demise
- Audrey Elizabeth, August 7, 1998, born still.
Selah Mae: born January 22, 2002, stillborn.
- Carter Austin Ross, March 18, 2006, stillbirth due to an umbilical cord anomaly.
- Isabella-Rose Elizabeth, October 12, 2009, stillbirth.
Amy and James’s Babies:
- Jacob Bennett born and died on July 11, 2007 due to premature rupture of membranes (PROM).
- Samantha Lauren born August 16, 2011 at 23.5 weeks passed away September 17th due to extreme prematurity and fungal meningitis.
Baby Helen: Born July, 1993. Passed from prematurity.
- Christopher Robin Cote: Born September 25, 2009. Stillborn due to premature rupture of membranes and incompetent cervix.
- Emily, prematurity born 19w 5 days – was too small for the equipment.
- Jellybean, born at 5:20 April 15th, 2009; and passed just four short hours later in her arms.
Heather and Aaron’s Son:
- Aodin R. Hurd, October 7, 2007, born still due to premature rupture of the membranes.
- Kevin William, prematurity, 2005
- Baby S, March 2008, Miscarriage
- Evie, December 14, 2009, Triplet Prematurity
- Jack, December 22, 2009, Triplet Stillbirth due to Prematurity
- Will, January 13, 2010, Triplet Prematurity
- Baby M, May 2010, Miscarriage
Kristin’s Baby (Mama KK):
- Ariel Grace, born on July 28, 2009 at 18 weeks 5 days. Lived 5 minutes.
- Ayla and Juliet, October 20, 2009 at 20 weeks.
- Bayli and Thomas on June 8, 2011 at 21 weeks 2 days.
Matthew Chase Sims:
- April 25th, 2006 due to prematurity.
- Born at 21 weeks in June 2011 due to a bacterial infection, lived for 30 minutes.
- Samuel, August 8, 2001, prematurity.
- Coleman Parker Garibay, September 14, 2005, lost at 6 months gestation and passed from prematurity.
- Reya, September 18 2011, Prematurity due to extreme Pre-eclempsia
- Mikel Azariah and Willamina Azaria born August 12, 2019.
- Mikel was stillborn,
- Willamina was premature at 22 weeks 6 days
S & T’s Son:
- William, November 2, 2013, 24 weeks, 3 days, prematurity
Collin, complications from prematurity, 2009
- Erik Richard, July 29, 1981, prematurity.
Aaron and Kristine’s Son:
- Luke Ervin Seitz, born July 21, 2011 with Hypoplastic Left Heart Syndrome, and passed on June 28, 2011.
- Mateo, Anthony, and Ian born on May 6, 2008 at 23 weeks and 3 days.
- Mateo was born still.
- Anthony passed away from Transposition of the Great Vessels.
- Ian passed away after a short stay in the NICU.
- Nathaniel James, August 24, 2001 – August 29, 2001, Citrullinemia
- David Henry, May 11, 2010 – January 24, 2011, Citrullinemia, passed away after becoming sick post liver transplant
Baby Khalil, born August 14, 2009, stillborn, born still from birth defects.
- Kyle William Kober July 22, 1994 due to Hypoplastic left ventricle syndrome
- Ethan Connor Brockwell, May 3, 2006 – August 17, 2006. Born with Hypoplastic Left Heart Syndrome.
Christopher: November 4, 1979, due to pulmonary atresia, a congenital heart defect.
- Aidan, born with brain malformation on December 16, 2008 and passed on December 19, 2008.
Cora Mae McCormick:
- November 30, 2009 to December 6, 2009 from a congenital heart defect.
- Shane Michael, born October 10, 1971 and died October 11, 1971 from heart complications before his mother could wake from anesthesia. She never saw or held him.
- Brianna Elizabeth, born January 29, 1998 and died March 7, 1998 from a heart defect.
- Seth Douglas Bonnett, Our Little “Tough guy”, March 27, 2008 – October 12, 2008. Died from Hypoplastic Left Heart Syndrome.
- Austin Skylar Gregory, born July 3, 2005 and gained his wings August 29, 2005 from Multiple Complex Congenital Heart Defects.
- Corbin Walker, born February 20, 2011 and died May 17, 2011 from heart defects brought on by Williams Syndrome.
- Chloe Walker, born November 29, 2000 and died June 4, 2001 from multiple congenital heart defects and heterotaxy.
- Starbaby, born still February 2008 due to Trisomy 18.
- Matthew Connor – February 26, 2005, born at 26 weeks, passed from Necrotizing Enterocolitis (NEC).
- Reed Allyvion Miners, passed away July 5th 2003 at one hour old from Primary Myocardial Disease, a congenital heart defect.
- Nathaniel, born August 24, 2001 and died August 29, 2001 from an undiagnosed metabolic disorder.
- David, born May 11, 2010 and Died January 24, 2011 from a myriad of complications resulting from a liver transplant.
- Leia Sky Williams, born October 6, 2011, passed away from Group Beta Strep.
Baby Kash Michael:
- Born June 3, 2011 and died September 28, 2011.
Carey’s Triplet Sons:
- Rudyard, Desmond, and Oscar, June 4th, 2011, born at 22 weeks due to of E. coli infection.
- Nicholas and Zachary, October 27th, 2004.
Heather and Joe’s Twins:
- Jonathan Michael and Samuel Joseph, identical twins born alive and died on May 6, 2004 from extreme prematurity and twin-to-twin transfusion.
- Charlie: Born May 21, 2003 and died June 14, 2003 from late-onset Group B Strep.
- Will, born (today) October 15, 2002 and died on September 16, 2003 from complications of late-onset Group B Strep.
- Malakai Zachary born still March 10, 2007 due to Anencephaly.
- Five more angels, July, 2007 – May, 2010. Miscarriages.
- Catherine Grace, born August 10, 2012, passed August 12, 2012, due to prematurity brought on by HELLP syndrome.
- Kaitlyn Grace, born sleeping at 38 weeks on Saturday, May 13th, 1995. Died from a true knot in her umbilical cord.
Matt and Lauren’s Baby:
- Isla, born 14 weeks premature on August 23, 2011 and died on October 10, 2011.
- Mina Kathryn, born February 18, 2009, died February 24, 2009, due to complications with her PICC line.
- Baby R, May 24, 1998, Medicine Administration by RN who didn’t know or ask.
- Matthew Conner Webb, born January 11, 2005 and died February 26, 2005. He was born at 26 weeks and faced many obstacles in his short life.
- Ziggy Ann born sleeping on January 21, 2009.
- Frank born sleeping May 21, 2010.
- Liberty Ann born March 30, 2011 and died on April 19, 2011.
Ally’s Son: Collin
- Collin: born on August 9th, 2008. He passed away 30 minutes later from cardiac arrest after an emergency c-section due to a placental abruption.
- Nicholas, born December 14, 2005, died April 19, 2006 from SIDS.
- Max Corrigan, born November 14, 1987 and relinquished to adoption on November 18, 1987.
- Brianna Ann 3/19/2018, car accident – donated the gift of life to 5 people through organ donation
- Bryce Philip born May 26, 2009 and died September 1, 2009 due to SIDS
- Ashton Karol, stillborn on February 24, 2010 at 17 weeks.
- Addison Leah, June 13, 2008, accidental death.
Jessica and Mark’s Daughter:
- Hadley Jane, born October 9, 2001 and died October 11, 2007.
- Halsey Douglas Dukes December 31, 2016, Halsey passed from hemophaygocytic lymphohistiocytosis (HLH)
- Halcyon Grayson Dukes was born September 1, 2011 Halcyon failed to develop after 9 weeks
- Jake, born August 14, 2005 died August 27, 2005 due to prematurity and hydrops.
- Sawyer, born November 17, 2009 died December 26, 2009. His cause of death has not been determined because he is part of a study at the Mayo clinic for heart arrhythmias – SIUDS (unexplained sudden infant death)
- Cullen, September 11, 2010, stillbirth.
- Brian Vitale, accidental death, September 4, 2007 – June 3, 2010. We miss him more and more each day.
- Patrick, born April 10, 1977, Adoption
- Sophia Lu Boudreau, born December 21, 2006 and died October 9, 2007 from SIDS.
Rebecca and TJ’s son:
- Rafe Theobald Calvert, born on October 11th, 2009 at 26 weeks. Spent 3 months in the NICU and underwent an intestinal obstruction repair. He was released on January 11th, 2010 and we brought him home for 6 weeks. He passed away at 4 and a half months old from SIDS on February 25th, 2010.
The Stamm’s Daughter:
- Adrienne Mae, May 7, 2006, Sudden Infant Death Syndrome.
- Nathan Michael King, died from SIDS November 2008.
- Kendra, April 23, 2005 to March 24, 2006. Died from Jacobsen Syndrome.
Chance, July 25, 2014, homicide
On October 15, 2019, we will be publishing a Wall of Remembrance for those among us who have lost our babies far too soon.
You are invited to share the names of your lost babies here.
I have had 10 miscarriages – just saying that is hard for me
For so long I have tried to sweep it under the rug – once my number became larger then three I became numb to it all. I’m not really an emotional person, but this topic always brings up memories as if it all happened yesterday.
I have been through 10 miscarriages in 6 years.
I am 28 years old – I have been pregnant 13 times – and have 3 living children.
I can be a very private person, but I think miscarriage and infertility have enough secrecy surrounding it that I do not want to perpetuate it. The more it is talked about – the more women and families can feel supported and listened to and important – not embarrassed and ashamed like I am struggling to not feel. I am opening up the door to talk about it – so here is my long story:
My first two miscarriages were kind of a blur to me. We were not trying to get pregnant and basically found out we were expecting the same time we realized we were miscarrying. I had always heard that having one miscarriage was ‘normal’ and so I honestly didn’t put too much thought into it. They were still very painful and devastating to me but I thought once we were actively trying everything would be OK – that no one would have more then 2.
My husband and I decided to start trying for a family and we actively began trying to conceive using basal body temping as a guide. We became pregnant again in November 2004 after the first month of trying. I was about 6 weeks pregnant just around Christmas when I miscarried (#3). This time it hit me – hard. I mean I have never heard of someone who has had 3 miscarriages ever – let alone in a row.
|Basal Body Temperature Chart using Fertility Friend
I began feverishly doing my research.
With my basal body charts I had noticed that my luteal phase was under 10 days (according to research the shortest it should be for a successful pregnancy) so I began to take vitamins B6 and B12 to lengthen it. I went to the doctor and his thought was that my progesterone was low and that is why I was not able to hold on to the pregnancy past 6 weeks. So a new plan evolved. I would stay on the vitamins and go on a progesterone supplement the moment I found out I was pregnant. This made the basal body temping so important – I needed to know the exact date.
We began another month of trying to conceive (TTC). Thermometer in hand and a plan in mind we became pregnant again in June and I was on the progesterone medication. The plan was to stay on until 12 weeks pregnant and then to slowly wean myself off. When 12 weeks came along we lowered the dose of progesterone but I began to bleed so we quickly went back onto the medication. The baby was doing fine and the new plan was to wean off at 20 weeks. 20 weeks came and I was successfully weaned off with no further complications. I had my first full term baby (Big P) in December 2005 – a healthy boy.
|Big P – 8lbs 1oz
My husband and I had always wanted to have our kids close in age, so we starting TTC again relatively quickly. I began the basal body temping again and got pregnant pretty quickly. When I got the positive I went to the doctor to get a prescription for the progesterone and started taking it again. I miscarried #4 shortly after 7 weeks. My doctor and I both thought it was because the progesterone was not started soon enough so I was given a prescription for the next time to begin the day I had a positive test. I got pregnant again and started the progesterone but miscarried #5 at 6 weeks 5 days and I was starting to lose hope. I went back on the vitamins and we began TTC again. Thinking back it probably would have been better to give myself a few months to heal physically and emotionally but I was determined and had the okay from my doctor.
In July 2006 we got pregnant again and everything was going smoothly. I was on the progesterone and we had an ultrasound that showed the heartbeat and the baby was growing. I was on bed rest again for the first 20 weeks and was weaned off the progesterone at 20 weeks. Everything was going smoothly. At 8 months pregnant I awoke with vertigo – fell and cracked my wrist. I was taken to the hospital and without going into too much detail I was diagnosed with possible stroke and they ran a large amount of tests and I was hospitalized.
In one of those tests they discovered I had a blood disorder called Factor V Leiden. Everything was going relatively smoothly with the pregnancy. I was having some weight issues – having only gained 10lbs and was 8 months pregnant they were checking to see if the baby was growing -which she was. I was being induced just over 2 weeks early because of the vertigo and possible stroke. Our healthy baby girl (Princess R) was born in February 2007.
|Princess R – 7lbs 14oz
This is where the story starts to get a bit crazy. I had 2 more miscarriages (#6 & 7) due to failed birth control. We were not trying to have an other baby yet – however these losses were still quite painful.
In May 2007 I was diagnosed with Celiac Disease and was on a strict gluten free diet. We had wondered if that was an underlying cause contributing to the miscarriages and we’re hopeful that was the answer. I still had the constant vertigo that started in January 2007 and was seeing a neurologist for possible causes. During one of our meetings she mentioned Factor V Leiden again. That was the first time I had heard of it since back when I was pregnant with Princess R. The neurologist thought that could be the cause of my possible stroke when I was pregnant. I was sent to other specialists for that.
My husband and I were ready to expand our family again. I went off birth control in the beginning December 2007 and we began TTC again. I became pregnant the first month but lost miscarriage # 8 at just over 5 weeks. We didn’t take any breaks between that loss and trying to conceive again and we became pregnant again the next cycle at the beginning of January.
I was back on the progesterone and everything was seemingly going okay – baby was perfect. We had made it past 8 weeks of pregnancy and thought everything was going to go smoothly. We had told extended family and friends and had begun taking daily photos of my growing belly – our kids were excited.
|Big P and Princess R telling the family about the growing baby
A phone call came to me a few weeks later that shattered me. The baby (Triton) that had made it to 13 weeks was “no longer viable” and he had passed away (miscarriage # 9). I was confused – I had done everything ‘right’ – I was on the progesterone, was on bed rest – everything. I was scheduled for a D&C because I did not want to deliver at home.
The OB who was going to be doing the surgery turned out to be a lifesaver to me. Another miracle that Triton brought into my life. My OB had read over my chart, talked to me for a long time about my history and pegged that I had been diagnosed with Factor V Leiden, a blood disorder that predisposes me to making blood clots.
The surgery was scheduled for April 24, 2008 and I was able to get the answer I needed. When the pathology came back it showed blood clots caught in the umbilical cord cutting off the supply to Triton. He had given me the answer and we had a new plan and a concrete diagnoses for all my losses – Factor V Leiden.
Recovering from surgery, my husband and I were not trying to conceive yet. I did become pregnant (seriously it’s like he just has to look at me to get me pregnant) the next month but miscarried again (#10) likely because I was not healed up completely from the surgery. We were both ready to start the process of adding to our family and met up with my OB again.
The new plan – because Factor V Leiden predisposes me to throwing blood clots normally and any pregnant woman’s risk of blood clots increase anyway – my chances were pretty high. This is the reason for my miscarriages, my possible stroke at 8 months pregnant – but luckily there was something we could do. I was still going to be on the progesterone for 20 weeks because I did have an issue with low progesterone – it was just not the whole story.
I continued with the basal body temping and this time added low dose aspirin (it’s a blood thinner). Once I got that positive pregnancy test – I went on the progesterone and was put on another medication called Fragmin. This medication is a needle that I inject into my lower abdomen – it is a blood thinner that is safe to take while pregnant. This medication was designed to thin my blood enough to stop me from making clots and putting me and baby at risk for miscarriage or still birth.
I injected myself with this needle every day – I was covered in bruises but everything was working. It became second nature to me. Since it is not safe to go into labor while on blood thinners I was placed on bed rest at 36 weeks because I had begun to dilate. The plan was to induce me again just over 2 weeks early – I had to be off the blood thinner to deliver but could not go over 12 hours without the medication or I would risk another stroke. So, the safest thing to do was a planned early induction.
In February 2009 our third full term baby (Baby E) was born perfect and healthy. I was put back on the Fragmin blood thinners and had to continue giving myself the injections for 8 weeks postpartum.
|Baby E – 7lbs 13oz
Now, if you are still with me – thank you. It is hard to condense this story into a few paragraphs. I don’t really have a ‘moral’ or ‘message’ to this story except this is my story. It has been a very difficult and extremely painful journey.
It has taken me a long time (and I am still working on it) to accept what has happened and to begin to digest it all.
This year on The Band Back Together Project, we are curating and adding the names of your children who are no longer with us and we will be posting our Wall of Remembrance on Pregnancy and Infant Loss Awareness Day.
We welcome you – any of you – to share the names of those you are missing.
I never expected to be a mother at 17. I also never expected to be joining the baby loss club at 17 either. Walking out of that hospital in Tucson on that late August day, I knew that my life had fundamentally changed.
Instead of a baby in my arms, I carried a potted plant and a heavy heart out of the doors of University Hospital.
Sarah Beth Sluszka was born on August 22, 1991.
She died August 24, 1991.
I don’t know what caused her death. I refused an autopsy; I didn’t want my baby being cut up like a science project.
Knowing what I know now, I believe her death was related to a lack of oxygen due to a cord accident.
Sarah never cried, opened her eyes, or moved on her own.
Making the decision to take your child off of life support is heartbreaking.
Making that decision at 17 changes the trajectory of your life. I had no life experience to draw from. My parents only advised, but did not make this decision for me. I alone chose and therefore changed my life forever.
While I miss wanting to know who Sarah could have been over these past 28 years, I am happy with the person and parent I am today.
I went on to have four sons, a (step) daughter, and one granddaughter (so far!) and they have truly been the lights in my life.
In them, I see who Sarah could have been, what she would have been like. Like her siblings, she would have been an amazing human.
August 22 is Be an Angel Day.
Every year, I ask my friends to do one random act of kindness in Sarah’s name on that day.
It helps me to know that people are thinking about her and doing good in her name in the world. I’ll ask you all to do that next year through.
The Band, just put your children’s names onto our wall.
Together we can spread kindness and remember our children with happy hearts.
Sunday will mark five years since my sister died. I had a hard time losing my sister to bone cancer. She fought for over three years with bone cancer that caused her daily pain and stress.
Her life ended when she’d had too many surgeries and her body couldn’t keep up. Losing my sister is the hardest thing I’ve experienced.
I don’t feel bad for her now, because she’s free from all of that. But I do miss her; more than I miss my grandparents who have passed away. Her death was a trauma for me, as her 27-year-old soul was ripped away from my family and we were left with a forever empty chair at the table.
Now, I have a daily regimen of seven medications that keep me here on this earth from antidepressants to mood stabilizers and sleep aids. I fight suicidal thoughts and feelings near-constantly during this time of the year.
I have two girls; the younger one is my lifeline. I was pregnant with her when my sister died and I live in fear that she will die and leave me just like my younger sister left my mom.
My faulty logic says that little sisters die; I am so afraid that I will lose her. Her presence is one of the biggest comforts to me, which makes me love her more than her sister.
There, I said it: I love one kid more than the other.
What can I say? What else is there to do but keep pushing on, trying to move past a pain that is so old and yet so fresh.
I love you, Wends, and I will see you one day.
I’m not a stranger to depression. I live in the frozen tundra and seasonal depression is a way of life up here. I went through previous bouts of depression after my sister died and after my first miscarriage.
It’s back. It’s been slowly building for months.
I hate it, but I have to deal with it now.
It’s not normal to sit on the couch and sob because my house is a mess and it seems like all my friends have older kids who don’t leave toy cars all over the floor. Everyone has problems. Everyone has issues. If my kids were older, there would be other messes, other problems. Wishing my children were in high school is not going to fix anything.
I feel like everyone around me has their life together while I’m falling apart. I have no interest in taking care of my house. I don’t want my pets anywhere near me. The puppy I didn’t even want, but has completely attached himself to me, needs training, but I can’t handle it. Our latest (surprise!) litter of kittens need to be litter-box trained. I can’t deal with that either. My children annoy me. Important paperwork that needs to be taken care of sits untouched because I can’t process the thoughts about how to even fill them out. My kitchen is a disaster. My living room looks like a tornado came through it. I have a load of laundry that is probably molding inside my washing machine right now.
I’ve never understood people who run away from their lives and start over. Until now. It’s really tempting. I used to go for drives by myself when I needed to blow off some steam. But now, I can’t trust myself to get behind the wheel because I don’t know if I would come back. I know my husband and my children need me. I stay because of a sense of duty, but my heart isn’t in it right now.
On Sunday, I had a really bad cold. With my husband home, I could go in the bedroom and rest. I took a good book, my laptop, my phone, my headphones, and stayed all by myself in bed for most of the day. It was the happiest I’ve been in weeks – being alone and able to do whatever I wanted. I read. I napped. I listened to some favorite music. I watched a movie that didn’t involve animated creatures. It was heavenly. When I finally had to leave the comfort of my room and my bed, I had to resist the urge to kick and scream and act like my 3-year-old when he’s overtired and I tell him he has to take a nap.
This morning, a family issue required my action, and I had what I’m guessing was an anxiety attack. I shut down. I could not do what was needed. I started shaking, and tears poured down my face. Thankfully, that action was able to be put off until tomorrow and I have time to prepare myself mentally for what I need to do.
This is scary.
My husband recognized last week that I’m not well and insisted that I get help. I met with my doctor yesterday, and she put me on an antidepressant. Unfortunately, I know all too well from all of my husband’s bipolar medications that mood and brain altering drugs can take weeks to take effect. I do no look forward to the wait.
I’ve made an appointment to meet with a therapist. I’ve let some family members and my closest friends know what’s going on with me and everyone has been really supportive.
But I still feel so very, very alone.