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Living Life on Life’s Terms Isn’t for Pansies

On January 4th of 2020, I picked up my One Year Chip. How awesome that was. And in a stretch of ego, how proud I was of myself. Yes, I know I didn’t do it alone, but I was still proud of myself for not giving into the craving, especially early on.

So, I picked up my chip and all was so good in my world. February came and I was still on that pink cloud, vowing to never step off of it – hell, my sponsor said I never had to if I didn’t want to, so why would I?

Then came March, and we all know what March brought. For me, it brought a little more unknown than I was ready for. But I have a program and a higher power, and I was going to be okay. My meetings shut down, but we all found Zoom and again I knew it would be okay.

April got a little harder. I was diagnosed with Covid on April 9th. I was lucky and able to manage my symptoms at home. One thing that was becoming more and more evident, though, was that I was starting to miss my fellowship – the Zoom meetings weren’t quite filling the void anymore. Plus, I had been laid off on March 16th, so I was living in an isolation I knew would be NO good for me. But I was still okay. I leaned on my higher power hard, but He’s got broad shoulders. Then came May.

May was gonna be good. We got back to work on the 13th and although it wasn’t as busy as it needed to be, it would pick up. I just knew it would. And although Covid was ripping through the world, I could stay busy with work and feel some normalcy.

Side Note: I live in South Carolina and masks weren’t much of a thing here until quite recently. So we eventually became a “hot spot”, made the national news – the works. And as Bill would say when sharing his story… “And then it got worse.”

My mom had always lived independently. At 77 she was the neighbor who took all her neighbors to doctor appointments, the pharmacy, grocery store; whatever they needed. On May 20th mom was doing what she does – taking a neighbor to a doctor appointment. Except that after dropping off her friend, she disappeared. Just like that. We searched and searched, checked parking lots of nearby doctor offices, hospital parking lots, made all the phone calls, and yielded nothing. We checked her apartment for clues, and that’s where we found that her wallet with all her money, credit cards, and license were still there. As was her cell phone. Mom disappeared and had no money or ID or way to call or be called. That’s when I started to feel a serious WTF feeling.

In the meantime, I had filed a missing person report here with the police department. Besides walking in the rooms of A.A., that was the smartest thing I’ve done.  All told my mom was missing a total of 26 hours. She was found at about 1:30 on the 21st, in Virginia. I may have forgotten to mention my mom lives here in SC too. She was pulled over by a police officer for driving with her hazards on. The officer here in SC who filed the missing persons immediately put mom on the NCIC, so her license plate dinged as soon as the officer in Virginia ran it. Maybe that’s procedure, I don’t know, but I’m grateful he did that. Beyond grateful.

**At this point I’d like to point out again that mom had no ID or money. I have no idea where she spent that 26 hours because the trip to Virginia from here is 4, maybe 5 hours. This troubled me for weeks, but she doesn’t remember any of it, so that right there is some Grace of God stuff, and I chose to let that go**

Mom had no idea where she was, how she’d gotten there, or why she’d gone there. She was belligerent with the officer and he brought her to the hospital for evaluation. That hospital was less than helpful. As a matter of fact, for a minute I thought about legal charges against them, but knew I could not afford to pursue litigation against them. So, I let it go. Mom wasn’t hurt by them; she just wasn’t helped.

That Thursday we were ready to head back to South Carolina, but it was too much to drive so we decided to get a room. I had to stay up all night long at that hotel because mom kept trying to leave the room… that was a long night. We came back home the next morning and I will spare too much of that story; let’s just say that immediately upon returning home I brought mom to the hospital here, where she was admitted and stayed for what ended up being a week. There I found out mom had developed a bad UTI which brought on an early onset of dementia. That explained her previously inexplicable trip to Virginia and her subsequent behaviors.

About the 4th day in the hospital, it became obvious that once the UTI had cleared up mom wasn’t much better. That dementia wasn’t just going to go away. What was worse though was because she wasn’t “medically” in need any longer, the hospital wanted her gone. Every day they would tell me she needed to be released. I had no idea what the hell I was supposed to do with her! She certainly couldn’t live alone anymore and if she stayed with me, I’d have to quit my job and probably never sleep again for fear she’d sneak out of my house. None of those were viable option, I was so lost. Suddenly I’m the caregiver with absolutely no clue what my next steps were. Medicare, Medicaid – I knew nothing, but I was about to get a crash course.

Again, I’ll spare you all the details, but I found a place for mom to be transferred to while I tried to figure the Medicaid/Medicare piece out. It’s a lovely assisted living that is costing me $2000 a month. I cannot sustain that for much longer before I bankrupt myself. To make matters worse, this assisted living facility (I have very recently learned) doesn’t accept Medicaid payments. As a matter of fact, there’s one place that covers most of the eastern seaboard of South Carolina for Medicaid assisted living residents. It’s an hour away and NO ONE is taking what they refer to as “community transfers” due to Covid. So, for now, mom has to stay there while I try to figure out how old is too old to become a prostitute…

Kidding, of course.

So, for now, mom is where she is and she’s safe. She’s as mean as a rattlesnake every time I see her, she even told me she wished she had killed me when she had the chance. Yes, I know she has a disease and doesn’t always know what she saying, but I can promise you that doesn’t make it hurt any less. But I’m all she’s got and I don’t get another mom, so it is what it is.

My sobriety has taken quite a hit, but it’s still intact. Year 2 of sobriety has thrown a shit ton of curve balls at me and I’m trying to learn when to swing and when to let em go by. I’m getting better at it. I got to go to an in-person meeting last night – first one since early March. It was glorious. I have been missing my “people” so much. Way more than I realized.

I’m sure there’s a lot I left out, maybe forgot, but I’m finally beginning to realize what some of our slogans mean. Living Life on Life’s Terms isn’t for pansies. One Day at A Time is something I’m having trouble with these days, but my people smack me in the back of the head with it when I need it. Also when I need it, they’re here for me. You’re here for me. That’s amazing and I hope to never take that for granted.

Back to my journey. Thanks for listening ?

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Reasons to Live Today

Reasons to Live Today

When I was in the depths of my worst dark days, there was a feeling I would get. It feels like an itch that you can’t scratch. It ignites a burning desire deep within to just rip off your skin so you don’t have to feel it anymore. Every second you’re forced to spend in your body is worse than the last and there is absolutely no end in sight.

When you come to the realization that THIS IS IT. Fear is all you can feel. What does the end look like? People say it gets better, but holy shit, have they encountered YOUR demons? They have not! How in the world am I going to wake tomorrow knowing that the FEAR will still be there. You hear “Just hang on” and can’t believe that you can accomplish such an insane task. That ledge is getting really slippery and you can’t feel your fingers.

So, everyday I started looking for one thing to live for. There were many days that it was my husband’s smile or my children’s laughter. Other days it was a chocolate doughnut. Some days it was the color of the sky, the smell of the air after rainfall, the beauty of a butterfly with an intricate face on their wings, tiny flowers in the yard that no one planted there, but are a gift from Mother Nature, or the sound of the lapping of ocean waves.

The Midwest sunsets on calm evenings, when the delicate pastels of the evening skies are painted on the bottom of barely moving clouds. The call of the male bullfrogs looking for them girls. The song of the cicadas in the damp summer nights. The howling of a distant pack of coyotes counting up their pack to make sure everyone made it through the night’s battle and had full tummies before heading home at dawn. The gentle curves of newly budded trees. Tiny insect eggs tucked into the stem of a dandelion. The deep buzz and tiny squeak of a nearby hummingbird.The delicate structures inside of ordinary looking flowers. Watching two tiny lizards basking in the late afternoon sun. Each of their heads on the other’s back enjoying the quiet before the next adventure.

The way the sun hit my living room window just right only during the “dark months” to light up the crystals in my window to give me rainbows in the afternoon on the days when it finally decided to grace us with it’s presence. The sound of raindrops on windowsills.

These are the things that make life worth it. That one thing would get me through. Before I knew it (though it seems like an eternity in the midst of it) the sun would come out a little more. I’d feel like showering a little more often. I’d hear myself laugh without having to touch the internal reminder that things are funny. Breathing got a little easier.

Here’s the thing… I’m talking to you, person who didn’t want to wake up today. Not the one that didn’t want to get out of bed, the one that prayed the night before (to a deity they don’t believe in) to allow them the freedom of not waking up. You. I love you. You are not alone. You can make it. Do you know how I know? Because I made it. More than once. I have survived every cell in my body telling me to give up. I will survive again. Because I know that one day I’ll look forward to waking up. One day I’ll be able to plan beyond the next minute. One day breath will come. Friend, it feels so good. You are worth it.

Random related article: In These Dark Times Practice Love and Kindness

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Back the Fuck Off Us, Okay?!

Here’s the thing; mental illness isn’t a joke

Most of you giggle a bit when you remember my delightful – and very public – breakdown several years ago. On the outside, I’m sure it WAS funny and insane and who doesn’t get a tickle from watching a train wreck of a person lose their mind? PUBLICLY?!? Even better. In fact?

HIGH-larious.

Now I’ve noticed that several of my fellow OG bloggers are in the process of similar meltdowns and of course, blood is in the water and who doesn’t like to speculate about all of their life choices and make up stories to share with other people?

Gossiping is hilarious business.

Now before you get all, “whelp you put it out there, it’s clearly for public consumption”, remember that you don’t know a thing about what their lives are like beyond the screen. Or their lives AT ALL.

So before you go on about Kanye or anyone else who’s having a public meltdown, remember that it’s not really all that funny to the person having it or their loved ones. I know I wasn’t laughing.

I mean, throw your own life into the spotlight (perks or none) for the world to see. See how people pick apart yur choices. Presume to know a lot more than you do. Giggle. Laugh. Enjoy the speculations and the lies.

It feels fantastic to be critiqued! To be disowned by friends you’ve known forever! Too funny!

Soo funny!

But until you’re going to do that, allow the whole world to watch your mistakes, remember that mental health diseases are actual diseases and that you don’t get the chance to figure out when you’ll break down. If medication works for you. If you have a right to refuse it. Those aren’t up for speculation.

And honestly? Leave Kanye the fuck alone.

NONE of this is funny.

Mental illness isn’t a joke.

Ask The Band: Ripped In Two

Hello, The Band,

This is my first post here. I’m just going to jump right into it.

It all started two years ago when I met a guy. He was a friend of a good friend of mine. I developed a crush on him. I started having dreams – sweet dreams – about him. These dreams resulted in more dreams. Now, I have lost count of how many I’ve had. In the latest one we were in the backseat of a car and I had my head in his lap and he was holding my hand.

It was perfect.

Yesterday I found out he’s moving away; he didn’t tell me where.

I cried for half the day. I don’t even know him very well. We’ve never really hung out socially alone before. I’ve only seen him at parties my friend has thrown. I know it must seem a little crazy to have all these dreams about someone I barely know, but I think we have some sort of connection. Now we’ll never be able to explore that.

Not to say I haven’t tried. Boy, have I! I’ve contacted him several times on Facebook…once I worked up the nerve. He was hard to reach because I didn’t have his cell number, which I finally got from our mutual friend. She didn’t exactly approve of my crush on him at first but she came around eventually.

I did get in touch with him on Facebook. He said he didn’t want to give me the wrong idea that it would be a long-term thing…which was what I’d wanted.

So now I feel horrible. I can’t make him not move, and if I tell him what I just told you, it will scare him away.

I know it’s just a crush, but it feels like so much more. It’s like my heart is being ripped in two…as cliche as that sounds. I know there has to be someone out there for me. I’m tired of hearing, “It will happen when you least expect it.”

What do you think, The Band?

What should I do?

#blacklivesmatter

We have been very quiet over here, for many reasons. We are watching the news unfold, watching communities around the country, the globe, unite against racism. We want to speak, scream, rage with you about the injustice, the hatred. How not okay this all is and has been. How the whole system is wrong. We want to discuss steps we can take to make things better and how we help get justice, if justice can be achieved.

We want to give you stories from black voices about black trauma and what it means to be black. But we don’t have any. Not one. And that is both okay and not. It is okay because no one owes us their story, no one owes us their pain.

It’s not okay because while we accept everyone and welcome everyone, the vast majority of people that interact with our site are not of color, at least that we know of (because we don’t ask, should we? <- actual question). Or they don’t come here for intersectionality* of mental health, physical health, and how that interacts with race (or gender). The reality is that we talk a lot about depression but we don’t talk about being depressed and black. We talk about domestic violence but don’t address racial aspects. There is so much to learn in regard to trauma, intersectionality, and mental health. So, we will continue to sit back and learn more. We have so so much to learn. If you are reading this, and you have a story to tell, we would love to hear it. We would love to share it. But mostly, we would love to support you and give another platform to your voice. There are so many good things already posted to the internet, we won’t link them. There are lists of media to be consumed, things white people can do to help, places to donate to various funds to help causes close to this. You don’t need our help finding them. <3

We see you. We hear you. We stand with you. #blacklivesmatter #sayhisname #sayhername

 

*intersectionality: the overlap of identities and how they work together to shape our life and world view. Example: a black transgendered woman.