Being diagnosed with Dissociative Identity Disorder (DID) is a real struggle.
First, I’ve had to work at coming to grips with the diagnosis itself. Then there is my struggle with the alters – I have to find out who they are. I know they’re there, but I don’t know much about them. I have learned the names and ages of some, but not all of them. I am slowly learning their likes and dislikes and why they are there. They all hold memories of my abuse. Memories that I can’t recall.
There is a power struggle. I am the host, and I need to be in control, but some of them think that I still need to be protected so they come out to “save” me. They are parts of me stuck in the past. They don’t know what year it is and often times don’t even know what month or day it is either. I have to talk to them and remind them that I am the host and that I am married and my husband and I have seven kids. It really complicates things when one of them has a crush on my brother in-law.
I don’t tell many people about my DID because it’s a stigma.
Society has a warped idea of DID. Most people still call it Multiple Personality Disorder because they don’t realize that the name (and diagnostic criteria) has been changed. Hollywood often portrays it as a situation in which there is often one very violent alter; that’s not the case for me.
If you want to see what living with Dissociative Identity Disorder is like for me, I’d recommend watching the movie Sybil with Sally Fields. It’s a very accurate description of my experiences with DID.
I watched my father have several affairs when I was growing up. By “watched,” I mean he took me to his girlfriend’s house(s), where I sat in the front room reading a book while they disappeared into the back room for an extended period of time.
The conversation in the car when we left was always the same: “Don’t tell your mom we were at XXX’s house – she wouldn’t understand.”
“Okay, Daddy.” The day I said my first “okay” was the day I became keeper of my father’s secrets.
There were times I heard my parents fighting. My mom, yelling out accusations that he had been spending time with this woman or that woman, while my father denied it.
I stayed quiet.
I didn’t fully understand at six or even ten-years old what exactly was going on, or why my mom didn’t want us to be friends with all those nice women. But in my teen years, it started to make more sense.
When I was seventeen, I cheated on my boyfriend. I pushed down thoughts that what I was doing was the same thing my father had done years before.
It became easier a few months later, when I cheated with a second person. And even easier when I went back to the first guy I had cheated with and did it again. I kept it a secret.
My boyfriend started talking about marriage after I turned 18 – we went ring shopping. That night, I left his house and spent the night with someone else, where I also talked about marriage (we had been seeing each other for six months, and he had no idea about my boyfriend-turned-fiancée).
I poured out my heart in my journal.
Was I just like my dad? Would I ever be able to have a relationship that I wouldn’t screw up? I had to make a choice…right?
Instead of a choice, I added a fourth guy to the mix.
In our ten years, I have been faithful. (The fact that my husband is a very jealous guy helps – he would figure out something was going on quickly.) I don’t often think of my cheating past or worry that I will turn out like my father anymore, but today I read a book that brought it all crashing back – a book about a cheating mom and her daughter who grew up to cheat, just like Mom.
I felt the tightening in my chest. And unbidden thoughts of a guy who works at Starbucks that flirted with me two weeks ago come to mind. I have avoided that Starbucks like the plague since he gave me a free scone and told me I have beautiful eyes.
I don’t want to cheat on my husband.
But I realized today, I am still terrified that, one day, I will be unfaithful.
This year, it’s time to take action. It’s time to pull our heads out of our asses and make some plans for world domination.
How? By telling the world, not what we want to do this year, but what we will.
So what will YOU do this year?
It’s already been a rough year for me. Just seven days in, my five-year old son was diagnosed with Leukemia. It has floored me. I am still in shock. Daily I struggle with the WHY WHY WHY of it all.
Still, I can make this year my bitch. I cannot – and WILL NOT – let the whole year be a sinking ship.
I will take care of myself. This means giving myself a break, letting myself off the hook, taking days off work when I need to, continuing my healing through therapy, taking naps… It also means getting dressed every day, showering, and not letting myself slip into a depression. I will continue to do things that bring me joy – like travel – and try to let go of the worry.
I will be there for my son. I will advocate for him and help him create good memories to balance out the less palatable ones. I will continue to give him a stable home life with structure despite the bomb that has gone off in our life.
I will keep working toward my goals – personal and family goals. My husband and I have plans for this year and next – plans we’ve been working toward since we met – and I will not let them get derailed. It would be easy to push everything aside, but the RIGHT thing is to show our son how to live in the face of adversity.
I will nurture my primary relationship. I’ve been stressed and overwrought and altogether tapped out emotionally lately. It’s okay to have low points, I know, and my husband and I are helping each other as best we can. Our relationship is important and provides a foundation for our life as a whole. If we take care of our marriage, the rest of our life will benefit.
I will allow myself to stumble. I will give myself permission to be less than perfect. I will celebrate my victories. And I will make it through this year.
We all have letters we can’t send for a zillion different reasons. Maybe the person is no longer around, maybe you can’t actually speak your mind to them, maybe you’re just not ready to admit it.
Band Back Together encourages you to share your letters with us. You never do know how soothing someone else’s words can be. Click here to write your own letter.
Dear Littlest Sister,
I wish, for so many reasons, that we were closer. It seems that all your life I’ve watched you hurting, and I’ve never been able to help you. Either it was out of my hands or you wouldn’t let me close enough to be any good.
I know I’m a disappointment to you, and that there are times you wish we didn’t share a name. I’m sorry. As difficult as our relationship has been, I have always been proud to call you my sister.
When you were five and our parents were divorcing, I should have been more sensitive. I should have seen the Little Sister who needed reassurance. Looking back, I don’t know why I minded it when you followed me around – you were so darn cute!
When you were playing softball, I wish I hadn’t been so wrapped up in my teenage-self. I wish I’d praised you for all your hard work, told you how great you were. Had I praised you, would you have felt shadowed by our middle sister’s spotlight? Would you still have given up sports?
Maybe it would have changed your future to hear how proud I was of you.
When you were experiencing your own teen depression, I wish I hadn’t been thousands of miles away. I’d have held you as you cried. Maybe then you wouldn’t have tried to overdose. If I’d been there to listen, would you have started cutting?
When you enlisted in the military, did I tell you how my heart swelled with pride? When you came back from your basic training and tech school, I was, once again, wrapped up in my own stuff. Did I tell you that I loved you? Did I tell you that I missed you each day you were gone?
And now, when you’re hurting – when your life is spinning – the distance between us is more than the five-hour drive. I want to call you and listen to your tears. I want to tell you that broken hearts hurt worse than childbirth, but that you’ll heal and be stronger.
I want to comfort you and give you the compassion and support that I know you won’t get from our mother or our middle sister.
It’s silly, really. We’re so much alike, you’d think we’d be closer. But, as I look back, I can see all the wedges I drove between us.
And so, I’ll write this letter to you, a letter you’ll never see. I’ll keep you in my thoughts as I wait to hear news of you. And I’ll pray that this isn’t the thing that causes you to hurt yourself again.
You are such a beautiful person.
You give so much of yourself to everyone. You, who never wanted children, are my son’s favorite aunt. He glows when he talks of his time with you and he tells anyone who will listen that he wants to join the military, just like his heroes. Do you know you’re one of his heroes?
Do you know you’re one of mine?
I love you to the depths of my soul. And no matter what, you will always be a part of me.
Sometimes I wish what I had was as real and tangible as alcoholism or drug addiction: there is something real to battle and win. Instead I have this intangible illness – this personality disorder – that affects everything I do. I can never be cured of Borderline Personality Disorder, that hurts everyone, and I just have to deal with it until it eventually kills me.
I wonder how many people who have Borderline Personality Disorder die of old age? I know it isn’t impossible, but I wonder what the odds are. Even if they don’t commit suicide, borderline habits can lead to early demise.
Don’t worry: I don’t intend to turn to alcohol. I can’t mix it with my medication. And I won’t turn to drug addiction. I rattle enough as it is, with my daily meds. No, those aren’t the only reasons. My illness hurts those around me enough as it is – why purposely add to that?
All I’m saying is that “15 years sober” sounds better than “15 years off my rocker.”
