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My Journey To and Through Infertility

When I was 15, I had terrible ovarian cysts so my doctor put me on birth control. Not that I needed it – I wasn’t sexually active. It was great. No cysts. When I was about 19, I decided to go off the pill. I was taking them but didn’t need them as I still wasn’t sexually active. I knew it couldn’t be great for me so I just stopped taking them.

And then, I never got another period.

After about a year, I went back to my gynecologist and asked about it, whether it was strange or not. He said it WAS very strange and that it did happen occasionally. I may never get another period and may, in fact, be infertile. He told me this very solemnly and with great empathy. He was a good man.

But me, well, uh, I was ECSTATIC! Infertile? Please. Thank you, god. I was never the kid who planned the wedding and the babies and the names. I had three younger siblings I didn’t really care anything about (now I do). I loved to party and this was before the HIV/AIDS epidemic. (YEAH..I know, I said it. This was mid to late 70′s. Figure out how old I am)

I was trying to be an actor and was living a very vagabondish life. I worked about 10 different jobs so I could live and enjoy my life and sexuality. And then one day I felt different. I went to the clinic and yes, I was pregnant. This was after not using birth control for 6 or 7 years. It was a very easy decision for me to make and I had an abortion. I have never regretted that decision.

I lived my life. I used birth control (not the pill, the sponge… remember the Seinfeld episode when Elaine hoards them?)

And then I met Tom. We were friends, fell in love and got married. I realized that, in fact, I did want to have a family with him and that it was going to be wonderful. My life and expectations were turned upside down by the love I felt for Tom and it was so exciting and fun. We were older and after a year of trying, we started dealing with infertility. I was fine. Tom’s motility was low. No boxers or hot tubs. My eggs were a little old. We did inseminations. (Did any of you ever ALMOST make love in the quiet room with your legs in stirrups? To make it more personal? I KNOW you did!)

About a year later, during an insemination break, I became pregnant. There were little lines on the test and it was so exciting! We told everyone. It was amazing. We went to check in and have an ultrasound and hear the heartbeat and well, you all know… there wasn’t one. It was ectopic. I sobbed as they took me in for my D&C because I wanted this baby that I never wanted. This was a little “me and Tom.” It was heartbreaking for both of us.

The next step was IVF. I became a science experiment. I’m not sure there are enough words to convey how much I hated the process. I was going crazy from the hormones, the daily shots of Lupron and the shots Tom gave me (though, I think he got a little pleasure from it). I had eggs harvested and there were a lot. Not many were viable though. There were enough for a transfer and enough to freeze for the next baby.

So we followed protocol and did everything right. There was no baby. It was heartbreaking. Because for the faintest minute, they thought there was a baby… but no, there wasn’t.

We did it once. That’s all we needed. I looked at Tom and said I didn’t want to be a science experiment anymore. I wanted to be a mom and I was already 38 years old. We moved on to adoption. We were together on this decision. He didn’t need a clone and neither did I.

I am so grateful I was with Tom because someone else may not have seen it that way. And that would have been OK but a problem for us. And with Tom it was not a problem. We moved together to the adoption process and that will be my next post.

Because that was a barrel of laughs, too!

I’ve Felt

I’ve felt what it feels like to feel alone. I’ve felt what it feels like to feel unwanted. I’ve felt the pain of being judged. All thanks to you.

It all started in the beginning of seventh grade. I met this boy, in which at the time, was your boyfriend. You befriended me only to keep an “eye” on me. You told me, “You’re like my best friend”. You lied, repeatedly, all because of this one boy. I still remember the day when your friends texted me and told me to “back off” because you thought he was losing interest in you because of me. That’s when it began, when he “broke” your heart. I don’t know if I would’ve made it out alive, you tormented me to a point of disgust.

Everyday, you’d pass by only to call me names. You’ve called me absolutely everything one could think of. Ranging from a “slut”, to a “cry baby”. You wrote my name on walls and desks, commenting on how much of a “whore” I was. I hadn’t even had my first kiss yet. But you still kept on. Your parents supported you, babied you, all because they had no idea of who you really were, and still are. I was only 12, turning 13, but you kept consistent with your words. Only 12, and I was already thinking about suicide.

You made rumors, and pressed charges against the very person that you once “loved”. This remained until the end of eight grade. At this point, I was losing. I was losing myself, I was losing my aunt, and I was losing my parents. I cried in school because my aunt was dying from cancer, but you thought it was because of your words. That’s why I was a “cry baby”, to you. I still recall the day I messaged you on Facebook, and apologized, the same day she died. As if it was all my fault. My parents were getting a divorce, and you just kept on. Having no respect for anyone but yourself because you believe you’re the only one who deserves it. That’s a bully, that’s who you are.

The bullying subsided for about a year. We were “friends”, at least that’s what I believed. You asked for answers on the test, you asked me for help with your work. You pretended. It all started again in tenth grade, you came up to me about midway in the school year. Telling me to “keep my nose out of your business”. I was so confused, I don’t talk to any of her friends exactly for that reason. I’d never respect her, but I’d also never what to be part of her dramatic life. I was extremely unaware of what the situation was. I couldn’t stop shaking. That’s when I realized that I didn’t hate you, but despised you. Everything you were, everything you are. You traumatized me, you made me into this person full of anxiety, full of sadness. I wasn’t gonna let you win.

The next year came, I tried my best to ignore you in every possible way. The previous year, I had dated this boy, let’s just call him “Bunny”. I told everything to him, and he told me everything. We hurt in all the same ways, but he left for the summer, and we split. He knew about you, he said he’d “never date” you for what you did. But of course, that was a lie. The only person I connected to, you stole. You made him block me, exile me out of his life, and he probably hates me. That’s why I’m here now, you pass by me in the hallways, and call me a “slut”, while he’s holding your hand. All I say is “thanks”. Thank you for making me feel. I’ve felt. In which, is past tense, in which it means I won’t anymore. I’ve felt pain. But I now feel happiness. I’ve felt insufficient, but now I feel enough. I’ve felt disgusting.. But now I feel beautiful. All because of you.

Fallen For It Again

Spent the last two months hoping against all hope that my mother and father had not actually abandoned me and would recognize the generous friendly text I sent. We only exchange presents and Christmas cards each year through the post and have absolutely no contact other than that because my mother has been repeatedly out of control and dupes my dad into following her every manipulative idea – she is the expert after all.

I ended up feeling totally resentful that they had yet again ignored me, leaving me hanging, after that I had to place severe boundaries on them to stop them dropping in when they want, without asking regularly. I live 200 miles away from them and on my own and had clearly stated I did not want visitors at the minute thank you, and I would let them know when I did.

Even though I copied in others to the text – who responded within a day or two (so I know it was received) I got no reply from either parent. I felt  manipulated after 6 weeks, and alone, and know it is my mothers method of control.  It is possibly stemming this time from her resentment of me finally forcing an absolute boundary on her in the summer and threatening her with police if she didn’t stop what she was doing and actually meaning it since I had already spoken to them.

It is a tactic she has used before to manipulate/punish me into chasing them from what I now know is from triggering my fear they have yet again abandoned me. And yes I fell for it and sent another text.

And this time I got a reply from both of them! My mothers text was long, to control the conversation, where my dads text was very short with two lines.

My mother thinks she is a psychologist because she has a psychology degree, but she didn’t make the grade and couldn’t do the clinical psychologist degree or practice. I feel that she is really an amateur just like the rest of us but she makes others think and treat her like the expert with these ridiculously big theories of hers about people and why they are doing things that always make her look the overly kind martyr our relationship.

The thing is all her communication always makes me feel that we are lacking on a deep emotional level. It seems to be caring from the outside to strangers or people who don’t want to get involved and not read in context but if you experience it, it feels so hurtful, so nasty it takes my breath away sometimes. From someone considered to be so sensitive to others needs and feelings she can read them and speak for them to others?

Anyway I digress, this text started with  congratulating ME for contacting them! After I contacted them originally and they ignored it completely 2 months ago!?

Next she gave an answer to my original question but made it so insignificant that it makes my original offer basically devoid, and it won’t put me in any special light at all.

The final point was classic, after having years of me being repeatedly abused by men sexually, physically, verballyemotionally and becoming completely isolated from all friends and colleagues after my last seriously abusive relationship with a man who was diagnosed psychotic and completely betrayed me. I wanted to believe I could have a relationship with somebody/anybody and surely he must love me or be able to appreciate me? I was so physically ill from the stress of my last abusive partner that I actually developed an serious auto immune disease and nearly died. I didn’t see the symptoms and have had 9 operations in the last two years at the age of 44, it is blatantly clear to everyone I will not be having children of my own even though I would have loved to, really loved to, even if it was still physically possible and some man could see past the colostomy bag I now have as a result. My mother has taken it upon herself out of the blue this year to start announcing when every single woman is pregnant or has had a baby. The last point on her text was how someone who I don’t even know because she didn’t include the last name (I believe she wants me to fish for info) has had a baby. Something I can never do and on my own have come to a good place about it, until its flagged up by my mother who has also had her own children and knows it all….

It just makes me feel so floored by her every time and so crazy, even though I know we have a dreadful relationship where I literally don’t want to have anything to do with her and I know she is showing others including my dad, saying look how generous I am even though my daughter doesn’t want to have anything to do with me, and I am filling her in with all the family news and keeping her up to date, but with all the news from an entire family who basically abandoned me to her sick behavior my entire life.

I’ve tried having nothing to do with her, I find putting boundaries in place is absolutely impossible. I feel traumatized just trying to work out what boundary it is I need to put in place because I’m so unpracticed in it.

I’ve tried being what she wants me to be and its never enough. I’m upset, hurt and doing the bad things I learned from my mother/father in all my relationships. Trusting people I shouldn’t even though I’m looking hard and not trusting those I should. I learned to repress and not act on my instinct in order to stay safe from her anger and revengeful behavior once my dad and others weren’t around as a child. I take the wrong choices regularly due to the trust issues providing proof to my mother and the family, if they should ever need it, that I am completely the rotten apple and they are the long suffering martyrs all along.

And I keep hearing from my dad ‘Well you were perfectly capable.’

An End And A Beginning

I saw the lights on the ceiling. I felt the tear. The nurse held my hand with saintly love as I sobbed. A part of me died in that moment, a ripple through the eons.

I was 21 and a newly graduated nurse when I went through my abortion and had landed a prestigious hospital job. My mum was accidentally pregnant at the time at 40 with my brother who I later helped to deliver with the midwife (after I had undergone my abortion)

I freaked out. I couldn’t move back home in a small town with a pregnant mother. My boyfriend said he wasn’t ready for a child and we couldn’t afford it (I later discovered he was wealthy and had not been honest with me). He was living far away at the time going to university.

As he slept in my room one night at the nursing quarters against the rules of no men, we were discussing what to do. I got caught with him in my room and I was kicked out by the nun. Pregnant, I went to house hunt by day after my night shift work. The nun who found us gave me one week to find a place after I begged her. I was scared. I didn’t know what to do. I didn’t tell a soul.

My boyfriend booked a hotel for the week as I was homeless and I went through with the abortion. I didn’t want to go through with it but I was so scared, alone and overwhelmed. I always said I would have a child if I accidentally became pregnant, but I just didn’t realize what it was actually like to be in that position.

The first doctor I approached rejected to care for me due to his religious beliefs so I had to hunt for a doctor who would.

I went to get counselling afterwards and was paired with another religious man who rejected me so I had to keep searching for help. I gave up.

I went back to work and it was a very hard year. I saved a few lives and I decided to work in hospice to become more familiar with death. I nurtured people through their losses.

Many hard, lonely years accompanied me with multiple instances of sexual assault and trauma I started to have difficulties coping. I always comforted myself with the idea that losing a child to help others may be excusable as a choice but when I left my career, in those last days I sat down by my friends nieces side who was losing her new baby that had just been born. It was dying in her arms and her tears dropped on that babies face. I watched that baby die as I said goodbye to my career. She didn’t know of my past and now I hear she wants to be a nurse. The chain continues.

My whole family said I was always the mothering, nurturing type and I would have the most kids. I am childless and not married. Tortured by bad memories. Too lost for words.

You don’t forget but you learn to live with it. Its a silent shame for me but I see now with my history of abuse I needed to feel some control over my body. I don’t feel it was the answer now, and in retrospect I would like to say I had all this courage to stand up to this invisible community who bad mouthed people but I was a young vulnerable frightened girl. While I was being accused of being a baby murderer I was saving their lives in hospital.

I think now about it more in philosophical ways. The things we should terminate in our minds and and how a new beginning can start for us to live a happier life. My God believes in redemption and love.

Chronic Neuropathic Pain

In 2003, I had my beautiful, gorgeous and sweet baby, 3 weeks early and after 5 days (yes, 5 days) of labour. As you can well imagine, when I got to the hospital (which also happened to be my birthday) I had been in labour for 4 days. I was tired, my blood pressure was going up and it was time to get her out. Physically, she was fine, so there were no worries about my daughter.

My back felt bruised, swollen and unsteady and I had had an epidural with her birth, but I assumed that it would go away. I went back to work ten days later as I worked for myself. Three months later – I still felt unsteady. My spine felt tender and I was getting concerned. I was out for a walk with my 120 pound dog, toddler and infant. My toddler ran out in the street and I went to scoop her up. It felt like I had been shot.

My legs went out and I was in white-hot blinding pain. It took me almost forty-five minutes to get home from my usual five minute walk. I managed to get us into my bedroom, shut the door and call my husband.

That was the beginning.

Since then I have had several occasions when I can’t walk, migraine headaches, insomnia, burning pain, loss of function of my hands and face, numbness, electrical shocks, cramping, shooting pain. Currently, I am technically un-diagnosed and am floating around the system. It is awful, but I have seen and know people who have had worse. I have done numerous different therapies, medications, tests, and seven years later, I have no answers and am still in pain.

Losing some friends and family; it has made me want to create an enhanced awareness about Pain Patients.

We are treated like pariahs, criminals, junkies, nut-jobs and the like. We are misunderstood, misdiagnosed, dismissed, referred-out and judged. Pain is invisible and the human brain will delete the actual physical memory of pain. Pain is different for everyone, making it difficult to relate. What is bad for one is nothing to another.

I want to increase understanding and acceptance from the Medical Profession that we are real people, with real problems, with real pain. The Health Care System needs to be properly educated on Pain Medication, Pain Management and Treatment for pain. So that there is hope out there for us.

We need to be heard and recognized.

Thanks for building this site for all of us Painies!!