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My Story

I am the daughter of a Narcissicistic father.

From my earliest memories, I recall a lot of fighting between my parents. It was very violent, and oftentimes, I would curl into a ball and put a pillow over my ears to drown out the noise. When I was about eight years old, I swore that I would become educated, so that I would never be trapped like my mother was.

We lived out in the country and had only one car, which my father used for work. My father had a hair-trigger temper, especially when criticized. I recall him asking my opinion once, and I gave him my honest answer. He became enraged and flew off the handle. While he never punched me, I got thrown around a lot, pinned to the ground and wall quite often. I was deathly afraid all the time.

As I grew, his rage turned away from my mother and focused on me. In a way, I was glad because I adored my mother and wanted to protect her. I also knew instinctively that I was much stronger than she was. So …I was the Scapegoat.

I was criticized and picked on every day of my life. I could not go unnoticed; he even yelled about my sitting posture, my clothes, or the way I held my head. It was constant. I tried hard not to cause trouble, became an A student, but he still was not happy with me.

He was uber sensitive about his personal appearance and also very nosy. He’d ask anyone he met how much they made, what kind of car they had, or what church they went to. Although he was a blue-ciollar worker, he passed himself off as an executive, and people believed him. He had an air of authority and superiority.

My mother was co-dependent; whenever he and I had a row, she would come to my room and say, ” Your dad really loves you. He doesn’t show it, but that’s how he is. He would never hurt you.” Total BS.

I left the home as soon as I turned 18 and lived with friends to finish high school. He’d already made it clear that I should not get educated, as women were meant to stay home and care for their husbands in a submissive role. I attended a community college for two years and then transferred to a university, not getting my degree until I was 25. I worked two jobs, had an apartment and car. No matter what, I was always criticized, and he would not butt out of my life.

I went on to earn a Masters Degree at one of the nation’s best universities and got a great job that I loved. I met the man if my dreams, who is the complete opposite of my father, and we had four fabulous children, who are now all grown. I never once behaved as my father. I took great care to be a loving mother, and with the help of my husband, was very successful in that.

My father criticized our parenting, interfered with our marriage and exploited our children. For this, we decided to cut off all ties. We have been estranged for seven years now, and it was the best decision of my life. I still love them, pray for them and want the best for them. I am powerless to change my father, whose temper has lessened, but his criticisms and overall negativity have grown much worse. He is in his 80’s now, so he probably doesn’t have long to live.

I did have psychotherapy years ago, and that’s when I learned the name for his problem: Narcissistic Personality Disorder. Happily, I did not repeat or inherit this. But I do have one sibling who has some characteristics, despite being the Golden Child. I accept that I will never be 100% healed, but I do my very best each day and my father’s voice no longer sounds in my head. I’m free!

My Worst Fear Realized

My first husband and I were married for ten years. Almost the entire time, I was desperate to have a child. We tried everything short of in-vitro fertilization, with no luck. Eventually, we were able to adopt, but that desire for a child that I could carry in my own womb was overwhelming.

After four years of marriage, I found out he had been cheating on me. As time went on, I came to discover he had always cheated on me, and the number of women was terrifying.

Aside from the fear of STDs, my worst fear was that in the middle of my infertility hell, he would impregnate one, if not several, of his mistresses. After all, he had done it before!

When we had been married for five years, he admitted that he had another “potential” child. He tried to claim that this child may not even be his. That son was only six months younger than his second child with his first wife – who he also tried to claim might not be his.

I tried to tell myself that these things that happened before me didn’t matter, but I could quite never shake that feeling that if he’d done it once, he would do it again.

We divorced shortly after our tenth anniversary. He married his mistress of three years. She left him when she realized he was cheating on her, too. Irony at its best. I remarried, my ex eventually gave up his rights to our daughter; she was adopted by my husband, and I gave birth to an amazing little boy.

It has been eight years since he left me for Wife #3.

His birthday was last week. I wish I could forget that date, but unfortunately, it’s a permanent fixture in my head. His sisters and his mother took him out to eat for his birthday. One of the sisters posted pictures on Facebook from the dinner.

At first, I just scrolled past them, but a sense of morbid curiosity made me go back and look through them. Few things are as satisfying as knowing that your ex is falling apart without you.

Sure enough, he looked like crap. He’s put on weight. He’s not aging gracefully. It makes me much too happy.

Among the pictures was one that made my heart stop. There was a little girl. She was about the age of my daughter. I knew she didn’t belong to either of my former sisters-in-law.

In another picture, she was standing next to him with her hand on his shoulder in a very comfortable, affectionate position. Looking at the two of them together, I was stunned to see that she looked exactly like him. Same facial structure, same chin.

He has a daughter.

A daughter that is too old to have been conceived after he left me.

Hoping that I was wrong, I sent a message to his sister asking her who the girl was. When she didn’t answer back, I knew I had my answer. She finally did answer more than 24 hours later, saying she wasn’t comfortable answering questions about her brother.

Confirmation.

If that little girl had belonged to anyone other than him, she would have just said so. Not talking about her brother was the proof I was looking for.

At first, I was furious! Enraged! Pissed!

How DARE he get some other woman pregnant when I had suffered for so many years to have a child with him!

I sent the picture to several friends and family members, to get their opinions of whether or not I was imagining things and jumping to conclusions. Everyone agreed: that’s his daughter.

And who knows how many more children he has running around in this world!

I was still shaking several hours later when I went to bed. I couldn’t sleep, thinking about confronting him. Whether I would punch him or just slap him when I saw him. After a few hours tossing and turning, I finally fell asleep.

The next morning, however, I was fine.

I realized it really didn’t matter.

I always knew there was a good chance that it would happen. I was grateful that I didn’t find out about her when I was still married to him, or I would probably be in prison for murder right now.

My daughter and I are free of him. He can’t hurt us. And the fact is, he is not worth the time and energy it takes to be angry with him. He is a scumbag, he has always been a scumbag, and he will always be a scumbag. Who cares how many illegitimate children he has? That’s his problem, not mine.

I believe in God. I believe that one day we will all have to answer for our sins. My ex-husband is going to have some pretty major sins to answer for someday.

I think I’ll just worry about my own life.

Guilt

Guilt can be a deadly weapon.

This is her story:

I’ve never talked about it…to anyone but a therapist. And, I have never said anything on my own blog about it. But personally, I think a blog that allows you to declare you are “Not Mommy of the Year” is the place to do it, right?

I carry a lot of guilt, dating back to July 19, 2009.

You see, I allowed my son – my first born & my pride & joy, ride and sometimes even drive a golf cart. That cart – it almost took his life.

I’ll pause here and let that sink in for a moment…

I knowingly allowed my son to operate and ride in a motorized vehicle that was not a) safe b) age appropriate or c) SAFE. What kind of mom does that?

Our children rely on us for many things. But one of the key things they rely on us for is safety. And, if they can’t rely on us, who can they rely on?

What kind of mother looks the other way as grandpa and son drive by (at a speed that is slightly faster than I would prefer for myself) in a golf cart, of all things.

And, this wasn’t your average golf cart. It was as suped up machine, with larger than normal wheels and a tow package. And my son, he isn’t just a normal son. He’s MY son.

I have cried a thousand tears. And made a thousand promises. And worried years of my life away since July 19. I have spent countless hours lying in bed with him, rubbing his hair and praying softly as he slept.

I have prayed for forgiveness. For healing. For peace.

And yet, I still don’t feel like I have paid for my sins.

I can still remember hearing the helicopter circle overhead and thinking – I could have prevented this.  Let me be the first to tell you – there is nothing more painful to your heart than to think that you could have prevented your own child’s pain. his bloodshed. his near death.

And you didn’t.

I failed him.

I failed him in my most important duty as a mother. I failed to protect him.

This is the single most prominent factor holding me back from healing. And I know that. And, it is something I continue to work on.

Because,  you see…I carry guilt with me.

I carry it in my heart.

And I see it everyday.

The Big Break

I’m 33 years old. I have issues with PTSD, anxiety and depression. My Conversion Disorder is in remission, and I was a T-7/8 paraplegic for four years.

Anyway.

I’ve had a boyfriend for four years, a personal best for me! We’ve been really trying hard the last year, went to couples counselling and everything. It just didn’t work.

When I moved in, I put all my household stuff in storage, saying if things are good in a year, I’ll get rid of it. He owned the apartment and had all the household stuff one needs.

For four years, we were a We.

It’s done now, mutually, yet I feel so scared. Six days left in the month. I can stay here longer but it hurts, for both of us. Neither of us will start the healing process while living together. I want out.

I want a little place of my own, where I can cry all I need.

Right now, I have nowhere to go, hoping one of the two places I applied to accepts me. I have no household stuff …bed, microwave, broom, dishes, little and big things, I don’t have any of it.

I’m just so fucking scared. No Us, no place of my own, no pot to cook in. I feel almost agoraphobic. Too many possibilities. I just want my own little place that’s warm and safe

No One Wants Me

Lyme disease is one of the hardest infections to treat.

This is her story:

I saw my neurologist today. She told me “no one wants Lyme disease.” She was referring to doctors, though it is an appropriate statement on many levels. I’ve been trying to get in to see the infectious disease doctor here. The infectious disease (ID) society is the overriding medical body who makes Lyme recommendations for diagnosis and treatment.

When I call the receptionist at the ID doc’s office (his name is Sky Blue, he he), however, she makes even getting into see him a nightmare. I have been trying to make an appointment for two months. *They* aren’t sure he treats Lyme (uh, he should). *They* told me to get a referral. I did. *They* still weren’t sure the doc could see me. *They* told me someone would call me after talking to him.

*They* didn’t. My neurologist said no doctor wants Lyme.

I can understand.

Lyme disease is so full of controversy. On one side is the IDSA (Infectious Disease Society of America- though don’t let the “America” fool you; many other countries follow their guidelines). They post that Lyme is an easily diagnosed and treated disease. They believe that even if you have late stage Lyme (which causes neurological problems and arthritis-like symptoms), it is treatable with four weeks of antibiotics.

On the other side is ILADS (International Lyme and Associated Diseases Society). They believe that Lyme is much more complex and is very difficult to diagnose and treat. They argue that many people with late stage lyme are “seronegative” (meaning their bloodwork for Lyme is negative). They also believe that the Lyme bacteria is present in several forms (spirochete, cyst, L-form). They believe in long-term, high dose antibiotic therapy (meaning a year or more). The IDSA maintains that there are no empirically sound studies showing that long-term antibiotics are more effective than a placebo. ILADS and associated organizations say that those studies haven’t studied true long-term therapy (i.e. twelve weeks instead of a year or two).

There are many patients who believe that the IDSA is in bed with the insurance companies, denying treatment for chronic Lyme beyond the 28 day criteria. I find this argument to be a bit bogus considering insurance covers things like chemo without a grand conspiracy [this isn’t to say I don’t think there are legitimate problems with our insurance system!]. But I do think the IDSA has blinders on and seems unwilling to say that it’s possible that they don’t know. I think they should encourage more studies, more science rather than telling the other side (a very vocal side) to fuck off.

I fall somewhere in the middle. I believe in science. I believe in studies. I also believe in medicine that hasn’t been proven. My dad’s life was saved because of a clinical trial for recurrent lymphoma. The medicine did NOT get FDA approval. But it cured my dad. Above the science, above the controversy, I want to get better. I am 27, and I want to live a healthy life. While it might sound nice, sitting around my house while it gets messier and messier watching old Showtime television series isn’t the way I like to spend my time. My bed and I have a relationship that is frankly a bit unhealthy (which reminds me I should probably wash my sheets a little more often). I want to write. I want to build brands. I want to engage. I don’t want to curse my computer screen because it gives me double vision. Frankly I don’t care about the ILADS/IDSA bullshit.

I just want my life back.

Which means I have to care. I have to do a lot of research. I read a lot of journal articles and scientific papers (usually zoomed in to 200% or with the font on the internet increased). I try to make informed decisions. I come up with my own hypotheses. I’m pretty sure my doctors hate me because I have more theories than they do and seem maybe slightly crazy with a hint of medical OCD. My labs at the moment are fine. I look completely healthy on paper. Except I’m not.

And no one wants me. If the doctors treat without confirmed lab tests (which were supposed to be used for surveillance not diagnosis) they risk their medical licenses (google Dr. Jones). The doctors seem afraid of this as as a diagnosis (but are free to give me migraine meds without a confirmed lab workup!). To see my doctor in Seattle I had to sign a form that I understood this was an experimental treatment protocol. That doctor continues to treat me. And I probably shouldn’t have gone on this expensive medical dead-end. But the problem is when things happen here (maybe unrelated to Lyme) I don’t have anyone to go see, which makes me a thousand times more likely to go to the ER instead of just calling my primary care doc.

I know this is confusing. I tried to explain it as best I could, and I explained things as I see it (so if you disagree, this is how I view the controversy).

If you have more questions, I can try my best to answer them.