Sometimes we all need a little bit of advice now and then. Do you have a burning question you’d like to ask us?
Do it! Ask the band.
The Band, I’m in a terrible funk right now.
I’m having some kind of weird mid-life crisis, though I don’t know if being just shy of thirty counts as “mid.” Either way, my main problem is that I just want to be left the hell alone. Of course, wanting to be left alone and actually being left alone are two completely different things, and the sad truth is that I will never be left alone.
It’s not due to the bipolar depression, although I know damn well it’s a contributing factor on my worse days; it’s simply because I’m tired. I’m tired of going through the motions of my daily life, getting up early to tend to all manner of things. I’m tired of everyone in my household demanding something from me at all times, whether it’s my daughters, who want/need all of my attention since they are both so young, or my husband wanting to constantly have sex, or even the damn cat for bitching about not having food even though his food bowl is completely full. (The cat is an idiot.)
I have no friends – all of them live in a different state because we moved away 2 years ago in order for my husband to pursue a new job opportunity. We have family not too far from us, but we barely see them as it is, so they wouldn’t dare step in and watch the kids in order for me to get the hell away for a little while.
A few days ago, one of my friends told me to come visit her so we could go on a bender, and to be honest, I would fucking LOVE to! It would be an opportunity to get away and have some fun for once, since all of my hobbies have gone to shit since becoming a stay-at home-mum five years ago. However, even if we still lived close by, that bender would never happen because my husband, while a great guy, is insecure as fuck, and at times errs on the possessive side of things. He would be paranoid about me cheating on him even though I’ve been a million percent faithful.
Pretty much all of my time I try to reach some semblance of reprieve by burying myself in my laptop: reading the news, blogs, messaging friends or (my secret shame) reading and writing fan fiction. (Now The Band knows my horrible secret!) Sometimes I listen to music. Music is a major way for me to unwind, and the advent of Spotify has been very useful since I can listen to stuff that I’m too cheap to purchase via iTunes. My husband thinks that I have some kind of bizarre internet addiction, but that’s so far from the truth.
I know this is a form of escapism.
I’m grumpy, I’m exhausted, and I’m just flat-out sick of everything.
This is my dilemma. I just want my family to back the shit off, but at the same time, it makes me feel like a terrible person. I don’t want to play with the kids. I don’t want to engage in “sexy time.” I don’t want to do the goddamn laundry or feed the goddamn cat.
Three weeks ago my grandma fell and broke her neck.
Three weeks ago she was rushed to Peoria to see if they could fix her.
At 82 with severe Parkinson’s Disease, degenerative bone disease, (from which she’d lost a whole 12 inches off her height) dementia, and multiple other health problems, we didn’t know what the options were.
The surgeon suggested surgery to repair the fracture. He was hopeful that it would work. Do nothing and she could become a paraplegic if she so much as coughed too hard. Or she could live with the neck brace, which she hated, her lungs could fill up with fluid and she could develop pneumonia.
In such poor health, that’s not good.
We opted for surgery; really the only option. Grandma was scared but we all told her we loved her. I told her we would go dancing after she was done as she hasn’t walked in over two years.
She smiled and held our hands, said she loved us, and off she went.
Surgery went well and they were able to fix the break. That was not the major hurdle though. Even in good health, Grandma has never done well with anesthesia. Two days before her fall, the dentist didn’t even want to give her a local to fix a couple teeth as she’s allergic to Novocaine.
After surgery, she was put into a regular room and about an hour later, her vitals crashed.
She was gasping for breath. She looked so very scared. She gripped my hand as a wonderful nurse held the oxygen mask on her for close to an hour until they were able to get a bed ready in the Surgical ICU. Once she was settled in the ICU, we each took turns going to see Grandma. She was on a ventilator to help her breathe and give the swelling a chance to go down after surgery.
This was against her wishes and she was miserable.
She had the vent in for 3 days until it was removed. She did so well.
They observed her for a day in the Surgical ICU (SICU), then transferred her down to another room for a few days.
When she was ready, she was discharged. They didn’t send her back to her assisted living apartment, but to a skilled nursing facility with hospice. Everyone came to visit. Friends, grandchildren, family, everyone. Someone was by her side 24/7. She would talk a little, barely a whisper. Grandma looked at pictures and had us to sing to her while we sat by her side. She told us that she saw my grandpa who’d passed away in 1978.
She told us all of the beautiful things she was seeing and hearing. It was amazing to listen to her. She told us so many stories. She told us there would be no more pain there and no more wheelchairs. We all laughed and cried and held her hand.
On Tuesday November 16, Grandma took her last breath while my mom sang to her. My mom said it was very peaceful. Grandma wasn’t afraid like she had been in the hospital. I am so very thankful for that. I miss her, maybe more than I can ever express. My kids miss her too. They are hurting. I have given them songs that help them feel better, or so they say. I don’t know where to go from here. I don’t know how to fix their hurt, or mine.
This year, it’s time to take action. It’s time to pull our heads out of our asses and make some plans for world domination.
How? By telling the world, not what we want to do this year, but what we will.
So what will YOU do this year?
It’s already been a rough year for me. Just seven days in, my five-year old son was diagnosed with Leukemia. It has floored me. I am still in shock. Daily I struggle with the WHY WHY WHY of it all.
Still, I can make this year my bitch. I cannot – and WILL NOT – let the whole year be a sinking ship.
I will take care of myself. This means giving myself a break, letting myself off the hook, taking days off work when I need to, continuing my healing through therapy, taking naps… It also means getting dressed every day, showering, and not letting myself slip into a depression. I will continue to do things that bring me joy – like travel – and try to let go of the worry.
I will be there for my son. I will advocate for him and help him create good memories to balance out the less palatable ones. I will continue to give him a stable home life with structure despite the bomb that has gone off in our life.
I will keep working toward my goals – personal and family goals. My husband and I have plans for this year and next – plans we’ve been working toward since we met – and I will not let them get derailed. It would be easy to push everything aside, but the RIGHT thing is to show our son how to live in the face of adversity.
I will nurture my primary relationship. I’ve been stressed and overwrought and altogether tapped out emotionally lately. It’s okay to have low points, I know, and my husband and I are helping each other as best we can. Our relationship is important and provides a foundation for our life as a whole. If we take care of our marriage, the rest of our life will benefit.
I will allow myself to stumble. I will give myself permission to be less than perfect. I will celebrate my victories. And I will make it through this year.
We all have letters we can’t send for a zillion different reasons. Maybe the person is no longer around, maybe you can’t actually speak your mind to them, maybe you’re just not ready to admit it.
Band Back Together encourages you to share your letters with us. You never do know how soothing someone else’s words can be. Click here to write your own letter.
Dear Littlest Sister,
I wish, for so many reasons, that we were closer. It seems that all your life I’ve watched you hurting, and I’ve never been able to help you. Either it was out of my hands or you wouldn’t let me close enough to be any good.
I know I’m a disappointment to you, and that there are times you wish we didn’t share a name. I’m sorry. As difficult as our relationship has been, I have always been proud to call you my sister.
When you were five and our parents were divorcing, I should have been more sensitive. I should have seen the Little Sister who needed reassurance. Looking back, I don’t know why I minded it when you followed me around – you were so darn cute!
When you were playing softball, I wish I hadn’t been so wrapped up in my teenage-self. I wish I’d praised you for all your hard work, told you how great you were. Had I praised you, would you have felt shadowed by our middle sister’s spotlight? Would you still have given up sports?
Maybe it would have changed your future to hear how proud I was of you.
When you were experiencing your own teen depression, I wish I hadn’t been thousands of miles away. I’d have held you as you cried. Maybe then you wouldn’t have tried to overdose. If I’d been there to listen, would you have started cutting?
When you enlisted in the military, did I tell you how my heart swelled with pride? When you came back from your basic training and tech school, I was, once again, wrapped up in my own stuff. Did I tell you that I loved you? Did I tell you that I missed you each day you were gone?
And now, when you’re hurting – when your life is spinning – the distance between us is more than the five-hour drive. I want to call you and listen to your tears. I want to tell you that broken hearts hurt worse than childbirth, but that you’ll heal and be stronger.
I want to comfort you and give you the compassion and support that I know you won’t get from our mother or our middle sister.
It’s silly, really. We’re so much alike, you’d think we’d be closer. But, as I look back, I can see all the wedges I drove between us.
And so, I’ll write this letter to you, a letter you’ll never see. I’ll keep you in my thoughts as I wait to hear news of you. And I’ll pray that this isn’t the thing that causes you to hurt yourself again.
You are such a beautiful person.
You give so much of yourself to everyone. You, who never wanted children, are my son’s favorite aunt. He glows when he talks of his time with you and he tells anyone who will listen that he wants to join the military, just like his heroes. Do you know you’re one of his heroes?
Do you know you’re one of mine?
I love you to the depths of my soul. And no matter what, you will always be a part of me.
During the month of August, Band Back Together is going to be publishing posts about loss and grief. These losses can be perceived or real as we know that loss is universal. We welcome you to share the stories of what and who you’ve lost – parents, children, animals, sisters, brothers. Please share your posts with us by clicking here.
This morning on the way into town, I had a flashback of a phone call. A phone call I’d had with hospice, seven months ago.
I remember it well. I was in the back room at my parents house where I’d been staying for the last week or so to help take care of my mom. She was sick. She had taken a turn for the worse. She’d had Stage 4 Colon Cancer for four years. It had been four years of fighting: first chemo and surgeries, and then natural medicine and a special diet.
She’d lived far longer than the doctors thought possible. She’d outlived the projections of every website and message board I’d visited in my obsessive need to understand what we were up against. Her CEA (tumor marker) numbers stayed low and nothing showed up in her monthly exams for a long time.
Then, the numbers started to creep up. After three years of nothing, they’d found a new spot on her liver.
It only took four months to go from finding that small spot to being in that back room on the phone with a lady from hospice.
Mom had been getting intravenous fluids the week before. As weak as she was, we would help her get dressed, get her to the car, one of us on each side to keep her from falling, drive her to the hospital and wait the two to three hours to get the fluids and then repeat the process to get her home.
We’d done this every day for a week, but the benefits of the fluids were starting to be countered by the difficulty of the journey. She was getting too sick to make the trip anymore. We’d talked to her doctor, the hospital, to anyone we could think of to figure out how to get the fluids to come to her. We felt certain there had to be a traveling nurse, or someone else who could administer the fluids. If the problem was that insurance or Medicare wouldn’t cover the cost, we were all more than willing to pay for it.
We just needed someone willing to do it.
When I asked the lady from hospice if that was something she could help us with, instead of answering my question, she asked some of her own: What did I think was really going on? What did I think the fluids were going to do for my mom? Would it be better to keep her going as long as we could, as she got sicker and sicker? Were we doing this for her, or were we doing this for ourselves?
We discussed that Mom’s body wasn’t benefiting from the fluids as well as we’d hoped. Her liver and kidneys had already begun to shut down, and we knew she was experiencing fluid retention. In fact, the fluids we were fighting so desperately for may have been doing more harm than good.
I had one of those moments when the blood thunders through your ears, the air is sucked from your lungs, and time slows down.
She was so sick. Every day she was getting sicker. Of course we knew she was going to die. But until that moment, I’d been in fight mode.
This was the first moment I realized the fight was really over.
The lady on the other end of the phone waited until I stopped crying, and we made arrangements for her to come over to talk to the rest of the family. We’d been fighting this disease aggressively for over four years. It was going to take some professional help to transition from that all-consuming fight to helping our Mom let go and…die.
She came over and we all gathered around the couch where Mom was laying, and we talked about the fact that she really was dying.
It was singularly the saddest discussion I’ve ever been a participant in. Everyone left my sister and I alone with Mom. We talked about how this was really it. We told her how much we loved her, how we would be there with her through it all, and how we would be there to see her on the other side.
I wonder how she felt at that moment.
I think about that moment a lot. I regret that moment sometimes. I wish we’d stayed in denial about her death so we’d never have had that discussion. Once it was out there, it seemed like any fight she had went away. She was ready for it to be over.
My sister, my grown niece and nephew, my aunt and I all took shifts staying with her and Dad. At first we gently tried to get her to eat and drink, but in retrospect that may have been a lingering need to fight for her life. Eventually, even that stopped.
I’d stay for two days, then leave for one or two. I would go to work on the days I was away. Work became a sanctuary where my mind was otherwise occupied. As I drove the hour and a half back to my parents, I felt the heaviness increase until I had to drag myself up the steps and into their house.
We’d brought a hospital bed into their living room so I’d see her the minute I opened the door. Every time I opened that door, I wanted to recoil in horror. Our mom was laying in that bed dying! It couldn’t have felt more surreal.
By then, she was drugged and asleep, and unable to talk much even while awake. It was a living nightmare.
A strange numb detachment descended upon me. I’ve never been like that my whole life. It was like my brain just shut parts of itself off. I felt made of stone.
We held her hand. We brushed the hair out of her face. We put chapstick on her lips and swabs of water in her mouth. We told her how much we loved her over and over and told her we were going to be okay. We promised that we would never stop talking about her to our kids so they would always remember her. We talked about our hope for the future when we would all be together again and she would be healthy.
I hope that she felt some comfort from us being there with her. I know she was scared; her brow and face would be scrunched up with anxiety and pain, even though she couldn’t voice it. The best we could do was give her the shots of pain and anxiety medication that hospice had left for her.
The last time I saw her alive, the truth is, I knew it would be the last time.
I should have stayed. I should have stayed. I should have stayed.
But when my niece came over for her shift, I left. To escape the horror, the impending doom, and the despair, I went back to my house. The next morning, I talked to my niece and she told me that Mom’s hands were getting colder, and I knew I should go back. I knew the signs of impending death by heart; I’d read them over and over in hopes of preparing myself.
But I didn’t go back. I went to work instead. My sister called me at work to let me know she was at Mom’s. She held the phone to Mom’s ear so I could tell her that I love her. She couldn’t talk, but I could hear her breathing loud in an attempt (I choose to believe this) to communicate with me. My sister then called my brother and they had a similar interaction.
My sister was on one side of Mom holding her hand, and my Mom’s baby sister was on her other side holding her hand when it started. They told her it was okay to let go.
We haven’t been “together” since I was three months pregnant with his daughter. That was when he decided to back me into a corner and scream in my face over something silly. That was after he broke my phone in half. My two older kids were asleep in the other room, and he refused to leave MY house. The next day, I took my kids to my aunt’s house with me. He got pissed and started screaming at me again.
I called my aunt behind his back and he tried to slap me, with my terrified children at my feet. I moved out in three hours, after he went to work one Saturday, with the help of some amazing friends.
I missed grabbing some things in the shuffle and he refused to give them back. After I told the landlord I’d moved, he finally moved out; then he moved in with a mutual friend. The friend called me one day so I could get my things from his room while he was gone.
You should have heard that fight: What right did I have going into his house and taking his things? He never did understand that it was NOT his house, and I was invited by the homeowners AND didn’t touch his stuff. I only took mine.
Shortly after that, he amazingly made up with one of his “mortal enemies” and moved in with them. The best part? The house was three houses away from my grandma’s – where I’d moved with my children. He’d call every time I left the house or returned home – every time there was a car in the driveway. Sometimes, he’d call over 10 times in one minute.
One night, I called the police. The next day I got: “I don’t know which of your boyfriends you had call me, but I know you’re a liar and that was not a cop. A cop wouldn’t have restricted their number.” That is the level of stupid I deal with.
Our daughter – who is now four – was born and things are just as bad. If he even THINKS I am seeing someone he says, “We need to talk.” One time, after he found out I was dating someone, he refused to give my daughter back after a scheduled visitation.
I called the police.
They showed up and he said, “Oh I’m sorry officer. I never told her she couldn’t take the baby. I was just going to get her when she called.”
Mind you, he pushed me out of his way because I was just going to go in the house and take her. My other kids again, right there, saw it all.
If I make plans, he wants to know with whom, where, and when. And if he can watch the kids, which he doesn’t seem to understand will NEVER happen.
The one time I allowed him to watch all the kids, he decided to take a bath with my daughter – my daughter from a previous marriage. During this (naked) bath, he talked to her about his flaccid penis floating in the water. The detectives couldn’t prove anything, other than suspicions that he was “grooming” her, so everything was dropped.
This is the ONE thing I said would never happen to my kids, and I just handed it to him. Let the courts handle it instead of letting every single person I know kick his ass. And in the end, I should have just let them. Maybe then he’d understand.
The controlling goes on and on. I’ve told him to leave me alone. He always threatens custody, which, okay, I know I can’t afford that fight. He can because his mom always backs him up. no. matter. what. So, I stay quiet.
He makes sure our daughter has what she needs and I’m grateful for that.
But part of me wonders if it’s another way to control me – every time I refuse to tell him what I’m doing, he asks our daughter about me. Every time. Never fails.
He will buy me underwear or swimsuits, and he won’t take “no” for an answer. When we drop off or pick up our daughter, he backs me into a corner and kisses my neck. He makes inappropriate comments. I absolutely know this tactic. But I’m so tired of fighting – I simply don’t say anything.
Pervert is sometimes easier to deal with than asshole. In doing this, I know I’m letting him win. My depression will never get better with his behavior – I simply don’t know how to stop it.
He’s been blowing up my phone for two days because I didn’t tell him good morning or answer a rhetorical text he sent.
I love my daughter to pieces – don’t get me wrong…but sometimes…nope, can’t even write it. I love her too much.
I just want to take my children and run far, far away.
I don’t know what to do, The Band, and I don’t know how much longer I can keep doing this.
