Prankster, my heart goes out to you. I wish that I could wrap you up in a big hug so that you knew that you were loved. Because you are so loved. You are worth everything. I know that telling you that you need to stop won’t help and will further reinforce all that you do to yourself, so I won’t, but I am reading what you don’t say here, and it breaks my heart. You are worth saving. You can fight your dragon and you can win. Someday you will win.
We will be here waiting to celebrate when you do.
Much, much love,
Aunt Becky
I’m a sucker for it. And I could speculate about all the things that have caused it. My childhood wasn’t great. I’ve dealt with depression and all the shit it brings. I’m impulsive… but I have this feeling, deep down inside, that it’s just the way I’m wired.
The first time it happened I was 14, angry and frustrated and it just made sense. The scissors were right there… and just like that, an addiction was born. I was a cutter. I self-injured.
Of course, 14 year-olds aren’t the most logical thinkers, so I got ‘caught’. We did the whole therapy deal with a crappy counselor and I was expected to stop immediately, so I did.
But I wasn’t stupid. Since the age of 15, I’ve been dealing with an eating disorder. I’ve seen 2 shrinks since the first, and neither know about my eating disorder.
As with all addictions, I’ll never be cured. I never truly stopped, but my parents like to think I did, so I let them. I just got better at hiding it.
While I don’t cut nearly as often as I use to, I picked up a nice little friend, named trichotillomania (self-pulling of hair). It’s so great [sarcasm].
This would be one reason I think it’s instilled in me, I don’t want to give it up. It’s mine, all mine, and I don’t have to share it with anyone, which feels great.
So, maybe the day will come and I’ll be ready to give up the ghost. And if it does, I’ll come back, and I’ll let all of you know.
I was bitten by a tick when I was ten. It’s the only tick bite I remember, though a large number of those with Lyme don’t remember a tick bite. There’s no way to know if this bite or another was the culprit. I do remember a rash on my hand the summer I was pregnant, and I now wonder if it was from a tick, but there is no way to know. I always had weird medical things happen as a kid though, so we have wondered if maybe it’s been dormant for many years. Your immune system has an amazing ability to keep things in check (even if you’ve been given a taste of that forbidden formula).
And your immune system is amazingly susceptible to stress, which arrived on my, well, ashy, crumbling doorstep when I was eight months pregnant.
I had Kellen and went into my six week checkup, where they did a pap, which came back abnormal (yeah, my fall pretty much sucked), and gave me a flu shot.
Four days later (and four days after returning to teaching) my face stopped working. I was home nursing Kellen (or trying) and tried to smile at him, at which point I realized I couldn’t move the right side of my mouth. Earlier in the day I had noticed that it felt like I was talking with braces on, like my lips were having to make way for an obstruction on my teeth, despite not having had braces in well over a decade. That morning I drank orange juice that tasted dull as well as had a Starbucks sandwich that made me question their place as a food establishment.
It turned out that my taste buds were not working on the right side. After I finished nursing Kellen I decided to go back to school to finish teaching. I was really scared but didn’t want to deal with it at the moment (because the only two options I could think of were a stroke and brain cancer). As I was driving down the road I lost my ability to blink my right eye. I turned around, and we went to the hospital.
The good news is that it wasn’t a stroke or brain cancer, though the way the doctor told me it was *just* Bell’s Palsy made it seem so benign as though I hadn’t just lost full functionality of one side of my face and now looked like this:
“Are you sure nothing else is wrong?” I asked the ER doc. I just couldn’t fathom that the nerves in my face would stop firing just because they felt like it. The doctor assured me that nearly all cases of Bell’s Palsy are spontaneous and have no other underlying cause than a small virus. (Had I lived in the Northeast, it is likely I would have been tested for Lyme then as Bell’s Palsy is common in Lyme and the first symptom of it moving into your brain, when things get really dicey.) They gave me anti-virals and steroids. (It was because of this I stopped breastfeeding.)
Dan and I decided to head down to San Diego. I had taken a leave of absence from work because I was overwhelmed. The stress of the fire and the rebuild was compounded by this new development, and I knew that I was spread too thin. It has always been hard for me to walk away, and while it was sad, I am proud of my ability to say, “I can’t.” We left the day after Thanksgiving, a trip that was nearly thwarted by an incredible and overwhelming sense of anxiety. I couldn’t sit down at all because I felt so antsy and uncomfortable. It was one of the only times I’ve ever had the urge to scrub a floor. It’s unknown if this was a natural progression of the Lyme or because I had been prescribed Zoloft to deal with the PTSD. It’s been posited that SSRIs may actually exacerbate Lyme symptoms in some people (many also find them helpful).
That was also the day that the dizziness set in, and it’s kept a firm hold on me for over a year. I spent the entire trip in San Diego sleeping. When I wasn’t, I was scared. I truly thought I was going to die but was afraid of going to the ER because I didn’t want them to think I was crazy. I wish I had gone while in California.
I made a deal with myself that I would make an appointment with my neurologist in January if I was still sick after Christmas. I scheduled an appointment. That week I woke up and felt fine, nearly canceling the appointment to see the doctor. At that point being dizzy was the biggest issue; it was debilitating and frightening. The symptoms came back strongly the day before I went to see the doctor It would be the first of many cycles but also the clue that led another doctor to Lyme disease nine months later.
At first I was diagnosed with Benign Positional Vertigo, which is caused by ear crystals shaking loose. The test for this is tilting your head back to see if it gets worse. It did. But the exercises didn’t work. So an MRI was ordered. While I passed the muscle tests with the neurologist and chiropractor I was seeing, I drop things a lot (more than normal), so I worried a lot about MS, especially because I was told that mid to late 20s was typical for age of onset. With every click on the MRI machine I just hoped that I didn’t have MS and if I did that the test showed it. I didn’t want to be sick, but I also wanted an answer to why I felt so badly.
So, I’ve just realized that I’ve been in an emotional, physical, and verbally abusive relationship for five years. I am in the process of healing.
You would think that healing comes easily. It doesn’t. Every day seems like a struggle. Sometimes I hate myself for the person that I have become: fragile, weak, heartbroken, depressed. I thought that I loved this man. He told me that he loved me, and I told him that I loved him, but everything changed so fast. The gentle, sweet talking man that I thought I knew turned out to be an angry, jealous, bitter abuser. I can’t help but think about the chances that I had to walk away.
I met him on a Christian blog. I discovered my spiritual side wanted to learn more about the Christian faith. He sent me a friend request, and I accepted it. I invited this man into my life because I thought that he was a fellow Christian with good intentions. Being 19 at the time, with many problems in my personal life, I realize that I was also naive. I did not think about the repercussions of pouring out my heart to a complete stranger.
Not long after we had met, he started to tell me that he loved me. Soon after, I gave him my phone number. I thought that I could trust him, and I gave him my address. Over time, he would send me gifts: candy, clothes, money, and other things. He told me that I was the only one, different from the other girls that he met. He made me feel loved, in his eyes I was perfect.
The more we got to know each other, the more serious we got. Since the relationship was long distance, we kept in touch with each as much as possible, maybe a little bit too much. We would literally stay on the phone with each other for hours. What I thought was a sign of care was nothing more than his way of control. If I did not return his phone calls, he would text me constantly. When ever we got into an argument, and I would ignore him, he would threaten to commit suicide.
Months into the relationship, I noticed that things were beginning to take a turn for the worse, but since I was going through a tough time in my life, and I needed someone to turn to, I chose to ignore the signs. A began to notice his jealousy, especially after I would tell him about my male friends. He punished for my honesty when I was only trying to establish trust. He started degrading me and calling me names. I thought that this was normal and forgave him after. He then started to send me pictures of himself, some sexual in nature. I was uncomfortable with this, but I did not tell him. I thought that sex would bring us closer since we were so far apart.
After seven months of communicating by phone, email, and text, I took a bus to meet him in Mississippi. I was scared, but felt that this would show how much I really wanted this relationship to turn out. When I saw him for the first time, I felt numb. I didn’t feel attracted to him, but did my best to make him feel loved. When I got to his house, I was nervous. His mom didn’t know I was there and I didn’t know anyone. We ended up having sex that first night. I didn’t enjoy it, but I felt like this would make everything official.
After two weeks, I returned home. I moved out of my parents house and stayed with my grandparents. We continued to stay in touch and we told each other how we wish that we could be together. One day, after an argument with his mother, he decided that he wanted to leave home. He wanted to come live with me even after I told him that I was not ready. He left anyway. I was scared at the fact that this man would come to my home even after I said no. I was worried about what my family would think.
When he got to South Carolina, I met him at the hotel to help him settle. I began to feel responsible for his homelessness and I stayed at the hotel with him. When he ran out of money, he asked if he could stay with me. As worried as I was, I let him.
Since that day, my life has never been the same. I live with a predator. He’s a completely different man from the man that I thought I knew. He accuses me of sleeping around. He’s looked through my phones, and even broken them. He destroys things that have value to me.
I’ve been sexually abused by this man. He touches me inappropriately without my permission. I’ve been physically abused: punched, kicked, slapped, bruised. I’ve called the police on him three times. He’s been arrested once.
I became pregnant by this man. The abuse did not stop after I got pregnant. After my baby was born, he started to isolate himself from me even more.
I wanted to share this story because I wanted to let any one who has been abused know that you can heal. I had to get on my knees and pray for healing. I accepted Jesus Christ into my life so that I could be saved. I know that Jesus loves me, and you, no matter what anyone else says. When we know that we are loved, we begin to love ourselves: then we can heal.
I’m still seeing the therapist for Post Traumatic Stress Disorder, but I am also seeing a Crystal therapist as well, every other week. (I can’t even begin to explain this – but if you’re curious – Google Crystal Sessions, Alexander Method, Natural Shock Healing or dark magic…er, scratch that…that won’t help.)
Unfortunately, there are still days when I can tell it isn’t gone. I’m not sure what I thought, but I think it was something like ”This Shit Will Be Over By Summer, RIGHT?”
Sometimes something as simple as a favorite TV show – (Brothers & Sisters to be exact) can send me into a full-blown anxiety attack – and push the reality of a tragedy back into my life as fast as I had swept it under the rug. And don’t underestimate me, I am pretty damn good as pushing dirt under rugs. Just ask my husband…
::Can I just take a slick city minute to say to the writers of Brothers & Sisters…whoa. I think you got your point across. As I stood on my back patio gasping for air and bawling my eyes out, I realized you people need to find hobbies. Something other than thinking of ways to make innocent, crazy, stressed-out TV addicts freak the hell out. ::steps off my soapbox::
Back to my point.
I am happy to report that there are days that go by where I feel like life is back to normal. There are moments in time where I feel myself forgetting about the fear.
Here recently, I’ve had several people ask what exactly my “bad days” look like? So, I thought I’d take a moment and explain what it feels like to always think the bottom is about to fall out.
Because really, that’s what it boils down to for me. I have days where I can pretend like bad things happen to other people. But, those days creep in, where I can’t help but think that too much time has passed between “bad things happening to me” and I am due.
There really is only one moment of every.single.day (approximatey 7:50 a.m. Nice way to start the day, eh?) that really has be stumped.
I pull into the school parking lot and I feel my heart begin to beat just a tad bit faster…and then my mind starts to race…and then my breaths become faster…and I pretend to be cool as a cucumber (whatever that means) and say goodbye to my son, I kiss him, I hug him and I watch him as he walks through the front doors. Slowly, I pull out of the drop off lane and I pull into a parking spot.
There – every single day, I have a brief panic attack. Without fail.
I am used to it now. Really, I am.
The tears only last about a minute or two. I regroup, adjust my eyeliner and go about my business. Ready to take on the world. It’s not as bad as it used to be. But, the thoughts are still there. I still think,
”Was that the last time I will ever kiss his warm cheek? “
“Was that the last time I ever see him alive?”
“Will someone come into the school today with a gun? Is this the day?”
And then I tell myself that I can’t let this fear control me. I can’t let Satan in my life, in my thoughts & in my heart. I push my fears aside every morning and I stop and thank God that I just watched my happy, healthy son, walk into school on two legs, with some pep in his step. I thank my lucky stars. And I continue my commute.
And even though this still happens every morning, the effect it has on me is shortening. And I know that this isn’t going to define me, control me or even cross my mind in the future. I may never be the same as I was prior to July 19, 2009, and that’s okay. I would dare to say that I am not supposed to be.
But, I can tell you that PTSD may linger with me the rest of my life, but it will not present itself every day. I know that. And that gives me hope.
I don’t think anyone knows the isolation that infertility brings with it unless they’ve lived it. Sure, we have several friends that we share all this with. Or rather, I do. I don’t know that my husband, Brian, has really told anyone what we’re going through. If you know him in real life, you know that he is silent about things that bother him. If you don’t know him, I cannot stress how quiet and private he is. But most of my friends know what we’re going through, and a few of our family members. Most people are unfailingly supportive, even if they don’t understand a bit of what’s going on.
Unfortunately, that doesn’t make it any less lonely, and doesn’t make me feel like less of a freak. Save your breath — rationally I know I’m not a freak. But that doesn’t keep me from feeling that way. And no amount of support from my very fertile friends makes it less lonely. Infertile friends — we are blessed with a few of those, too, though I wish they didn’t have to go through it either — make it even easier.
But when I’m in that exam room, having my lady bits poked and mishandled by the doctor and his ultrasound wand of pain, I am alone. When the Clomid headache sets in and I can’t even think straight, no one else is going to deal with that pain for me. When we schedule our love life, it’s just the two of us. When my cycle abruptly ends with the inevitable period, it’s just me.
That’s isolation.
That’s infertility.
But what really shocks me is the unexpected ways that infertility continually separates us from our family and friends. While it colors how I look at the world, it also colors how people look at me.
Between daycare and lessons, I come into contact with about 11 or 12 families each week. I have at least one doctor’s appointment each month and sometimes more, since I’m always having blood work and such, I need to let the affected parties know that either Brian will be here with the Munchkin Coalition, or that I’ll be late for lessons. None of them get too nosy or pry into my personal life, and all of them offer their support quietly, discreetly, and in a very sincere manner.
Except for one person. Who feels the need to tell me (again and again and again) the three stories she knows about other people suffering through IF, and how easy it was for her to get pregnant with her multiple children, and how she just can’t imagine how horrible it must be. And then, she says it…. “I am SO glad I didn’t have to do any of that! I just got pregnant so easily!” And laughs.
I’m not kidding you. She laughs at the misery of others and her amazing good fortune. One of these days I’m either going to punch her, or tell her what I’m thinking. Which is “Me, too. I’m glad you never had to go through any of this, because you couldn’t take it.” Nothing says “You’re a Freak” like that kind of statement.
My next example is a conversation I had with a family member who has expressed absolutely zero interest in our fertility situation until a recent phone call. Which, I have to say, was lovely and all that, but also really strange after two years of completely ignoring the situation.
It’s hard to catch someone up after two years of constant flux and ordeal. She then said “I wasn’t sure if you wanted to talk about it or not.” Um…yeah. I have a blog about this, ya’ll. It’s pretty much all I do talk about, it seems. Asking how it’s going makes me feel like you care, like you’re interested, like I’m not alone. The only reason I don’t talk about it 24/7/365 is because I know how that would annoy people.
So instead I wait to be asked, and feel separated from my family.
Finally, a very sweet friend recently made a comment that showed me just how much people must view me through what I’ve come to think of as The Infertility Filter. After all, it doesn’t just color how I see the world, but also how the world sees me.
We were talking about her family, and her new niece. She related an adorable story about her nephews as well. We rarely get to see them, so it was neat to catch up and think of them as little people and not as the babies we last saw. We parted ways and about 10 minutes later my phone beeped. She texted to apologize for her story, because she thought the content might have been inconsiderate and hurtful given our infertile state.
Granted, after I spent the next ten minutes really thinking about it I was able to see how someone could have taken offense or been hurt, given the actual content of the story she shared. If they were seriously sensitive and felt the world revolved around them. I, however, love to hear stories about other people’s kids — I spend 5 days a week caring for other people’s children, right?
Even though I was completely un-offended and hadn’t spared it a second thought until she texted, I appreciated her concern.
But I also had to wonder — who else is censoring what they say because I can’t get pregnant? Are we the topic of conversation when we’re not there? Are we your dinner conversation? How often are we referred to as “Brian and Andrea. They can’t get pregnant.” Or “this couple we know who can’t have a baby”.
I hate being pigeon-holed anyway, but to be ostracized by perfectly well-meaning people is kind of a bummer in and of itself. How many stories are we not hearing because someone is worried about our reaction or our feelings? Sure, it’s thoughtful. But it’s also terribly isolating.
A lot of the time, people with infertility isolate themselves. We really don’t want to make people uncomfortable or uneasy. We don’t want to be seen as abnormal, so we keep our problems hidden away. We don’t put our needs and concerns on the prayer list at church. We don’t ask friends to accompany us to the doctor for moral support (at least not after the first time you turn us down).
We don’t offer information, and we are crushed when you don’t ask. Quietly crushed. It’s so terribly easy to believe that we are all alone in our struggles, especially for couples who don’t know any other infertile couples. The longer we’re infertile, the more it builds up, and the lonelier we become.
That’s one reason I blog. Granted, I started blogging before we were “trying”, and I’ll hopefully still be blogging long after we have children, so it’s not technically an “infertility blog”. And yet it is.
I found that when we really started having trouble getting pregnant a lot of my information, ideas, inspiration, and encouragement came from the blogging world. I learned more from other infertile people than from doctors or journal articles. I want to give back to that. I want to be a source of information and encouragement to other infertiles out there who have just received a diagnosis, or just finished their fifth failed IUI, or who have discovered that Clomid doesn’t get everybody pregnant right off the bat.
So I make it a point to live our story out loud and proud. I won’t act ashamed of my infertility, and I won’t pretend it doesn’t exist to make someone else comfortable. I won’t be silent about something that affects so many people, and I won’t make anyone else feel embarrassed either by their fertility or their ability to pop out kids like it’s easier than breathing.
If you got here through a search, you are not alone. Pull up a seat, pop open a bottle of water (no booze in the infertile zone except CD 1-4), and share your stories. Ask questions.
If I can’t answer, maybe someone else can. Let’s learn from each other, and lift each other up. Need prayer? You got it. Need to gripe about how much this sucks, how cold your doctor’s hands are, or how much you really hate scheduled nookie? Go for it — we’re listening.
You are not alone, you don’t have to be isolated, and you are okay.
If we are all determined to do this right out loud, infertility does not have to separate us from them.
I am the Black Sheep, at least on one side of my family.
It’s not easy being the one who everyone seems to judge as being “bad,” when really, it’s that we are simply just not like the others. This is really the reason why you don’t feel accepted as one of them. I know this feeling. I totally get it. I am here to tell you that the most gracious thing that the Mother Goddess could do for you was to make you not be like them.
No one likes to be treated like an outcast, but when you take a step back and look at what sets you apart from everyone else, the stuff that you learn about yourself might not be so bad. You need to realize and accept that what others think of you doesn’t matter until you make it matter. Whatever they think does not have to be the truth of you.
As a kid growing up, I heard lots of ugly things about me. I was just a little kid. It makes me sad to know that there are adults on this planet who think that their word has to be gold. They use their words as a means to manipulate others to think the same way they do, without a thought to how those words will affect another person’s life. In fact, the reason that they are saying what they are is done out of fear, out of their own feelings of inadequacy.
All of us has the responsibility to create our own lives. Do not allow the opinions of others to keep you from making your life all it is supposed to be, and all that you want it to be. No one else has the power or the right to take away your ability to shine. You are who you are for a unique and special purpose. You hold the key to who you are, not someone else.
When people talk shit about you, it means they are guessing. It is easier for those kinds of people to go with what they have heard or what they assume rather than learning the real truth. When this is happening to you, it is hard to go through, and hell yes, it is hard to grow from, but you will grow from it. I Promise.
I come from a very “Born Again” family. As a little kid, I always thought I would go to hell because I was also one of those kids who conversed with the unseen world. I am Hawaiian. I am indigenous. I am a Pisces with my sun in the 8th house. What this all adds up to is that I am very weird, and for some of those very conservative people, I am evil.
I am the eldest of three children. My father, a preacher. My mother, I refer to as being “God’s Secretary.” As a child, I was freaked out when the lights were out and the house was dark and still. I knew that there were entities there with us, so I would talk to them. My parents likely believed that I was just a little kid with a great big imagination. As I got older, the things I was learning from my parents and my church did not agree with who I was. Did that give me the right to go out into the world and say horrid things about people and things that I did not understand? Not at all.
I tell my Spirit Students that through the hurt and the pain caused by the thoughtlessness of others, we become Stand Alone. I will repeat it again and again – you’re not alone …you’re Stand Alone.
The truth is that when we are at the weakest point in our lives, we are actually at our strongest.
Yup …you read that right. Think about it in terms of someone being hurt in a battle or perhaps someone being attacked by an abuser. When people who were attacked and done wrong to, they have walked through a fire of refinement. That is how people come to their own self-conjured amazingness. Though you may not see it, you never strayed from being you, meaning that in all of your you-ness, you managed to be able to remain true to you.
In remaining true to you, you have endured losses of gigantic proportion in terms of being able to trust others with your heart and soul. You have been able to walk with your head held high. Here you are, in all of your shining, fractured glory. It is the fractures which make you so very you.
It is not a bad thing to be what is known as ‘The Black Sheep.’ You are equipped to handle things beautifully, even the ugly, crappy things.
You are the black sheep, not because you are bad, but because you stand out.
You are the black sheep, not because you are weird, but because you are an original thinker.
You are the Black Sheep, because the Goddess and your Ancestors knew that of the entire herd of proverbial sheep you were born into, you stood out among them.
It is one thing to stand out, but you were meant to be Stand Alone, because really, there is no one like you.
