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On The Contrary

I have spent the majority of my life feeling like a living, breathing, science project. I remember spending a good portion of my childhood in the hospital.

My asthma is further compounded by a congenital defect in my bronchial tubes referred to as ‘pig bronchus.” My life-threatening allergic reactions; seriously who the f*ck is allergic to tomatoes of all things? Tomatoes by the way, are in almost EVERYTHING. Or my surgeries, of which I’ve had one surgery per year.

The endometriosis, which I was told in high school I may not be able to have children. The endometriosis is probably why my periods are two weeks long.

Or other random shit that happens to me.

I almost died on three separate occasions – twice coded as an infant before the doctors discovered one of two major congenital birth defects. That one was an anominant artery – my aorta was crossed over my trachea – and once after surgery when I was eleven and Nurse Dumbass gave me too much morphine and put me into respiratory arrest.

Every time it seems like I’m coming out on top, something inevitably drags me back down, reminding me: ‘hey @$$hole, let’s not forget that you’re the bubble girl.’

As hard as it is, though, I’ve decided that no one is allowed to feel bad for me. I’ve had almost thirty years of that, and it really doesn’t accomplish much. I’ve decided that when life pushes me, I’m going to push the f*ck back, because I’m no one’s bitch.

Here from my aforementioned blog is a little gem I call “On The Contrary” written by moi.

Two congenital birth defects

They said ‘She won’t’

I DID

Life threatening allergy & exercise induced asthma

They said ‘Never’

I finished two 5K races

19 surgeries in 28 years

Won’t slow me down

Diagnosed with Endometriosis in high school

I was told ‘Unlikely’

Their names are Michael Julien and Mýa Renée

Years of unhealthy and abusive relationships

I was blessed with him

14 years of unhealthy eating, skewed body image and relentless self doubt

I got focused

Three cancer scares

I’m still here

They told me that ‘you won’t’

I said ‘I will’

They told me ‘you can’t’

I DID

JUST WATCH ME.

LIFE IS SHORT. LIGHT A FIRE UNDER ITS ASS!!!

Life After Death

I come from a large blended family.

I have six siblings- four brothers and two sisters. I’m especially close to two brothers.

November 19, 2017 will always be the hardest day of my entire life. You see, early that morning, I got a text from my mom asking me to call her; it was very important. I called her immediately, expecting that my grandfather, who is already in terrible shape, had fallen again or had another stroke.

When I called, the first words out of my mouth were, “Is it Pappaw?”

It wasn’t. It was Eli, my youngest brother, just 25.

He had committed suicide in the middle of the night.

I screamed for hours it seemed. I couldn’t stop screaming.

My baby brother, and one of my biggest supporters, had chosen to end his life with no signs of depression or struggle beforehand. I cried myself into one of the worst migraines of my life.

I was in the ER that evening seeking treatment.

As if that earth-shattering day wasn’t enough, the next day was just as bad.

My dad, 66 years old, had gone to the ER complaining of back pain and unable to walk. I mean, his legs wouldn’t support him or move, not that it hurt to walk. After scans and exams, we found out that he had stage four cancer. His bones were riddled with cancer.

He went straight from the ER to radiation.

Now, this is a double whammy. Not only am I reeling and numb from Eli’s loss, but now I have to hold myself together to support Dad. He’d always been my greatest supporter, it was my turn to help him.

I immediately began packing bags to go to his side. After a cluster of idiotic errors and misjudgments by the doctors, he was finally given an accurate diagnosis regarding the type of cancer and I stayed with him as much as I could during the next two months.

Dad died January 30, 2018.

Since losing these men that helped shape who I am, I’m barely breathing some days.

There are times when it all seems like a nightmare. There are times when I’m drowning in tears. I’ll never be the same. I don’t know how to live in a world without them. As crazy as it sounds, I’m reluctant to seek grief counseling. I’m worried I’ll hurt more if I’m forced to talk about it. I am on an antidepressant that takes the edge off this utter depression.

I distract myself with movies and books to get through the day.

He’s Leaving On A Jet Plane

I read a book the other day about a soldier’s account of his time in Iraq. It told of his missions and what he saw and what went through his mind while he was overseas. It was interesting, it was scary, it was so sad. It gave me an inside look, a first-hand account of what my husband went through in the year he was gone. It made me wonder. How would my book read, my first hand account of being a mom on the homefront, holding down the fort? Maybe it would be an interesting read, maybe it would flop. I really couldn’t tell you, but I figured I would try.

I believe Dan got word that he was on alert in February of 2004. That was a scary day, we spent the day at families houses telling them the news. I held it together, mostly, I was really okay until his sister asked me “How are you holding up?” I lost it! I cried because I was mad, I was hurt, I couldn’t believe it. But we still didn’t know when he could leave, it could be tomorrow, next week or next month, we just did not know and that was probably the scariest part. Would I have time to tell him goodbye. Would the kids understand what was happening? What was I going to do? I spent a lot of time crying, always in private, sometimes to friends, but mostly into my pillow. I had to stay strong, I had to make everyone think I was going to be OK, when really I wasn’t sure. I mean,  how could I be?

We never really talked about him not coming home, but it was always on my mind. I didn’t think I could handle that, being a widow at 24!

I tried not to think about it, but it was always there… just under the surface.

Finally word came.

The official orders, I am sure I still have them saved on my computer somewhere, along with every email and IM conversation we had while he was gone. He was going to leave on Veteran’s Day 2004. Kinda fitting right? We prepared as best as we could. And bright and early on November 11th we headed out to the unit to tell our soldier, my husband, my kids father, goodbye – perhaps for the last time. All of our best friends and our families were there. It was a tense atmosphere, so much crying from everyone around, talking, laughing, and just a lot of quiet thinking.

Finally the time came for the soldiers to line up and get on the buses that would take them to the airport. There were hugs, and kisses and more tears. Then we all got into our cars and headed to the airport to watch them board the plane.

It was so very cold out. But I don’t remember being cold. We all gathered at the fence at the air strip. Dan was on every single news station. One of my favorite moments, I have on tape somewhere, Dan leans through the fence and kissed Nick goodbye. The whole QC got to see that. That was right after Nick proclaimed that Daddy had to take Blankie with him so he would not be scared, which brought tears to everyone around. Instead we tore a piece of Blankie off and Dan put it in his breast pocket, where it stayed until he came home. We said some more goodbyes and tried to hug through a fence, which was incredibly awkward by the way. Then they had to board the plane. We stood and waved, all of us until the door closed. I was still not ready to say goodbye so I didn’t get back in the car, I stood on a small hill and just watched, soon I was flanked on either side by my mother and my mother in law. That too was caught on video and aired on local television. And we waved, somewhere there’s pictures of us waving until the plane looks like just a speck of dust that is on a photograph. I don’t remember much after that. I don’t remember driving home. I don’t remember going to sleep that night. I probably cried. I don’t remember but that’s probably a good thing.

I remember waiting, a lot of waiting.

Waiting for mail, waiting for phone calls, waiting for the computer to beep that he was online and of course waiting for the call saying he was coming home.

But those are all stories for another day.

Bitter’s Edge

Yesterday, I found within me a sharp so bitter it could twain my marriage and dismember a family.

In one gestalt twist of grievance, I realized I had the capacity to cut relationship with the detached precision of a pathologist.

My scalpel tongue gleaned against my clenched jaw in clinical consideration of the Y Cut as The Husband and I hit the first immutable impasse of our marriage like a hearse.

It was entirely mutual.

The smell of potential decay cleaved in my nostrils like carrion.

I stood in the rigor mortis of that moment and knew I had to yield or the damage I would do to my marriage would be irreparable.

My pulse races now even to reconsider how concrete was that tomb.

An expansive, vile id lurked inside me like a dark mine ready to deploy.

The Prince of Peace lives there inside me too.

It was the moment just before the moment too late.

It was taught, tight tension as sharp as a guillotine.

It was entirely mutual.

I bit my tongue hard enough to taste salt.
I drew in Light.
I put down being right.
I put away I don’t want to.
I shelved blame.
Through Grace,
by His strength alone
I chose Love.

Mercy pardoned us as we forgave each other the trespasses against us.

Nothing.
Nowhere.
Is more important to me than this marriage, this family and a life together.

Antepartum/Antenatal Depression

The only thing I’d wanted was another baby.

So when, after meeting a good guy, marrying him and buying a house in the suburbs with a yard (like I was Suzie-freaking-Homemaker), I found myself knocked up once again just like I’d wanted, I couldn’t begin to understand why I was so miserable. After living through my first pregnancy — something that can only be described through a particularly bad country song — raising an autistic child, escaping my alcoholic parents and finally having another baby, this time the way I thought it was “supposed to be,” my feelings were beyond bizarre to me.

Certainly, my life was stressful. But my life has always been stressful. I’d had to quit my job and money was tight, something my new husband worried about often and loudly. When we’d moved to the ‘burbs, we’d left behind our friends so my support system of single friends was gone. We’d occasionally talk on the phone but it became more and more obvious that we were no longer on the same page. It stung more than I’d thought it would.

Day after day during this pregnancy I sat alone on the couch, or praying to the porcelain gods, while my husband worked 14-hour days. My distant son, never a source of emotional comfort anyway, was in school all day. These were the days before I’d adopted the internet as Your Aunt Becky, so I was Becky, As Herself. I had no one to confide in, no Band of Merry Pranksters to confess my feelings to, and now neatly severed from all of my support systems, I floundered.

I’d been depressed before, but the feelings I was experiencing were new. I felt like I was mired in quicksand, rooted in one spot, unable to move forward. Always a social beast, I could barely leave my house. A simple phone call became too much to handle. The isolation bred isolation and now a trip to the store exhausted me for days beforehand and afterward.

It was all I could do to get out of bed in the morning.

Sleep was an elusive mistress. Night after night, as my son churned in my belly, I tossed and turned, unable to ever fall into that deep REM sleep that the doctors insist we need to survive. I remembered that sleep deprivation was a technique that soldiers used on POW’s to drive them slowly insane, which was precisely what was happening to me. Each morning, I dragged myself out of bed, unrefreshed and sad, filled with a sense of impending doom.

Finally, untrusting of my OB, I turned to Dr. Google for advice. While I wasn’t yet Your Aunt Becky, I was a blogger and I knew that the beauty (and horror) of the internet is that there’s always one soul that no matter how depraved you’re feeling, can sympathize with you. Setting my search to “antepartum depression,” I was confident that I would find something.

Nothing came up. Well, okay, there were a couple of things, but mostly with “antepartum” and “depression” mentioned in the same article.

Not exactly helpful, Dr. Google.

Fine, I thought. I’m a freak.

Ben, my first, had been born after Andrea Yates had her bout with postpartum psychosis, so I’d had no end of pamphlets shoved at me to help me combat any urges to hurt myself or someone else after he was born. We’d studied the spectrum of postpartum mood disorders in nursing school as well. But antepartum depression was a big question mark.

So what did I do? NOTHING. I wore a groove on the couch where I sat miserable and sad until my second son, Alex, was born squalling and healthy. Almost instantly, my mood improved.

When I got pregnant with my daughter, I expected the antepartum depression to return and it did. By this time, I had become Your Aunt Becky and shared my troubles with my Pranksters. Many stepped up and said that they, too, had experienced the same types of feelings. It was wonderful to feel less alone; less like a circus freak. I went onto an SSRI in my second trimester to try to combat the antepartum depression, but even with that on board I didn’t feel much better. Pregnancy, it seems, doesn’t agree with me.

What shattered me was after I shared my experiences about antepartum depression, the usual search terms that brought people to my blog (boring things, aunt becky sucks, mommy wants a vodka) were replaced by these: “antepartum depression,” “depression during pregnancy,” and “sadness in pregnancy.” Knowing that there were other women sitting on their own couches struggling the way I had broke my tiny black heart into a billion pieces.

The isolation I experienced was devastating and while I ended up walking away from the experience with only a little darkness on my back, I hate to imagine others out there suffering the way that I did. I’m thrilled that postpartum depression has gotten so much support. It should get all that it does and more. Women supporting other women is beautiful. I want antepartum depression, which they now call antenatal depression apparently, to get some of that support, too.

I hope that for the next pregnant woman who sits on her couch, crying and feeling as desperately alone as I did, I hope that she can find the light.

Because there is light. And it is so, so good

DX

Even
zen
ranked
by
the
most
gentle,
retro,
revisionistic
rubrics,
despite
socially/
developmentally-
delayed
features;
I am an adult.

Full
disclosure:
at best,
I am
a
youngy-
old
woman.
No
longer
on
the
oldish-
side
of
young,
travel
with
ID
unnecessary;
no
one
cards
me.

Perhaps,
it’s
more
simple
and
I
am
just
another
old
adult,
certainly
past
the
typical
season
for
continental
shifts
in
identity.

Chronology
aside
however,
‘round
about
Thanks-
giving,
2016,
it
occurred
to me,
that
I
couldn’t
pass
as
“normal,”
even
to myself.

Even
though-

I.
Tried.
Everything.
I
knew
or
read
through
systematic
trials.
I
recorded
data,
analyzed
results,
and
controlled
indicated,
variables
to
adjust
test
method
parameters.

Thread
worn
as
baba’s
mop
rag,
I
wrung
every-
possible
suppositional
drop
from
these
experiments.

Perpetually,
I
tried
to pass
as
relentlessly,
and
intensely
I
was
labeled
INTENSE
(not in
a
good way,
mind
you).

Usually,
when
I
really
want
to
create
meaning
to
pattern
change
and
route
exodus
from
conditioned
parameters,
I
produce
results,
however
modest
or
slow
to norm.

NOT
SO
THIS.

A
random,
variable,
X
unelected,
undesired,
outs me
vulnerable.

Despite
therapy,
education,
career,
marriage,
blessed
children,
forever
wanted,
I
could
not
pass.

People
noticed.

Colleagues,
my husband,
our
children,
dear
friends
networked
consensus
as
viral
tumbler
that
confirmed
me
odd.

Random
reblog
notes
something
about
me
off,
and
a
little,
shiny
bit
that
bends
light
in
chaotic
angles
that
sort
‘a
squint
their
eyes
shut.

Not
much
was
said
to
me
directly,
and
yet,
I
could
often
sense
recoil
when
they
reached
for
their
sun
glasses
or
threw
shade.

Such
relational
signals
torqued
my
analysis
into
hyper-
drive.

To
know
why
transformed
want
into
need.

Security
risks
recalibrate
my
research.

Dire
internal,
tornado
warnings
broadcast
evacuation
drills
like
gubernatorial
orders:

Develop
safety
protocols
to
protect
children
from
collateral
damage.

The
nuclear
family
that
raised
me
ran
a
mill,
union-
workers
manned
24/7
shifts.

Its
conversion
process
fed
my
faulty
chips
directly
into
the
assembly
line’s
ravenous
maw
to
produce
pulp
prose
that
proves
there
is
something
wrong
with
me.
Like
an
errant
piece
of
code
that
breaks
the
smooth
build
of
family
unity,
my
bark
rejected
as
unusable
fibres
darken
the
pulp.

Such
systematic
feed
back
loops
identified
me
as
the
system
glitch.

Pop-up-
error-
messages
in
resplendent
bold,
ALL
caps
print
included
stop
signs
to
confirm
same
on
my
laptop.

Their
attempts
to
upgrade
my
operating
system
downloaded
constant
commands:

“If
you
get
your
ass
off
your
shoulders”

“If
you
try
hard
enough,”

and

“If,
and
only
if,
YOU
GET
OVER
YOURSELF
and
LET
IT
GO
ALREADY,
R
E
A
L
L
Y,
For
God’s
Sake,”

“Only
then
will
you
be
normal,
better
company,
and
easier
to
get along
with,”

and

“Clearly,
you
aren’t
REALLY
trying,
or,
at the
very
least,
not
trying
HARD
enough
to
get
it
right.

Over
time,
it
also
became
crystal
clear
that
I never
did.

Get
it
right.

Not
EVER.

Fast
forward:
to
now
and
my
own
family
God
gave:
Our
precious
homestead
no
longer
could
bear
X’s
collateral
damage.

I
wanted
for
my
children
more
of
a
mother
than
what
I
could
tender.

Despite
my
known,
know,
knowing,
knowledge,
discord
clashed
outcomes
I had
methodically
deleted
from
my
user
profile.

So,
I
got
me
a
good
psychiatrist,
who
asked
hard
questions.

I
loathed
my
deficits
more
fiercely
than
my
capacity
to
love
my
husband
beloved,
or
our
four,
precious,
innocent,
children.

Tuesday,
January
31,
2017,
two
days
shy
of
Punxsutawney
Phil,
Seer
of Sages,
eye-
spied
his
shadow
in forecast
of
six more
weeks
of
winter

Clinical,
empirical,
objective,
reproducible
data…

(_least my
blended
parents
all
believe
I
am
making
this
all up,
again-)

…identified
me
as
an
adult,
late
in life
dx’d
on
the
autism
spectrum.

Relief
drenches
rain
upon
an
arid
oasis,
splashes
reprieve,
and
puddles
tears.

I am
NOT
a
fucked-
up,
broken,
damaged.
not-good-enough,
shameful
excuse
of a
daughter,
woman,
wife,
or
mother.

There
is
a
reason
and
name
for
why
I
cluster
cognition
like
constellations
pattern
stars
across
the
night
sky.

Abject
release
falls
Niagara
baptism
and
washes
me
clean.

I
am
undone
amid
the
rabble
pile
deconstruction,
my
identity.

A new
frame
raises
my barn.

I got
a
lot
to
hammer
out.
Likely
may
whack
an
errant
thumb
along
the way.

Yet,
tonight
Thursday
September 4, 2018,
as I
lay me
down
to sleep,
and
pray
the
Lord,
my
soul
to
keep,
I
lift
prayers
of thanksgiving.

Our
Father,
who
art
in
heaven,
may
it
be
Your will
that
this
dx
allows
me
liberty
to
live
out
and
be
who
You
made
me.

This
changes
everything
I
ever
knew
anew.

I am
more
grateful
than
anything
I can
si-
mul-
tan
e-
ous-
ly-
list
in
metacognitive,
pull-
down-
menus-
streams
list,
or
smells
shout
colors.

I
am
by
Your
design
made;
I
dwell
in
possibilities.

Hallelujah!