I didn’t get to work yesterday. I went to the hospital instead. At the insistence of my fiance, I called in sick and we headed out. This was after three days of hearts pounding, palm-sweating, barely able to focus anxiety. We pulled off the road for gas and breakfast only to have the car completely break down. We weren’t going any further that way. Our replacement car is over a week late, the current broken down junker has been a death trap for a while now. Needless to say, this turn of events did little to improve my stress level. I did my breathing exercises and fought a losing battle to stay calm. We called a cab, we got to the hospital. Very friendly people. Smiling nurses, nodding sympathetically to my plight. Always the same questions “Any idea as to what set you off? Do you have any triggers? Are you at risk of self harm?” and “Who’s this with you? Do you want him to stay?”
No, no, and hell no. My Fiance, yes.
The thing is, nothing has gone wrong. Work is awesome. My recent trip with my mother was fantastic. I met my fiance’s mother, a narcissistic woman I’d been dreading encountering. It was a pleasant visit, far better than expected. There’s just the background negativity that isn’t going anywhere, that for some reason, some unknown reason, was louder and more demanding than it has been since I was in the midst of abuse. Stuff like that I’m not good enough, my life is going to fall apart, it’s my fault my step father got away with so much, that he has uncontested custody of my little sisters. Sisters I miss so badly, and want to have as bridesmaids at my wedding. Sisters I may never see again. Just the same old shitty baggage, that isn’t going anywhere. I wish I knew how to just let go. The doctor gave me some pills. They put me to sleep, and for a while the background stuff is gone. It’s not perfect, but it helps me focus on the pretty A+ foreground I’m making myself. For now it’ll do.
Until I can let go of the shitty past and current yet distant circumstances beyond my control, it’ll have to do.
From my first memory, I have felt like I have been made of some sort of flypaper for trauma.
I am basically housebound and have a major fear of meeting, connecting, and attaching with other people in any way other than online. People hurt.
According to the last pro I saw, I have C-PTSD with conversion disorder. My trauma timeline (a literal timeline of traumatic incidents, memories, etc that we built in therapy) began at age 2. I have a history of long-term, consistent psychological/emotional abuses from multiple family members, gaslighting, covert pseudo-incestual victimization, and a mixed bag of years of homelessness/poverty as well as clusters of single-event traumas (natural disaster, single-incident sexual assaults from an early age on, spousal/partner abuse, bullying in school, hell – you name it). The longest consistent abusive relationship I had lasted from birth until I was 31.
I also spent long periods of my youth in and out of hospitals with various physical illnesses. (I don’t think that’s a coincidence, either.) Doctors and hospitals are some of my biggest triggers.
I have lots of triggers.
I began converting when I was 22, only I didn’t know that’s what it was at the time. Since then, I’ve had some symptoms come and go and others that have never left, like constant neuralgia. I was told it was like my body went all “TILT” and some of my systems got fried. I spent some time wheelchair-bound, unable to walk.
So besides the severe PTSD symptoms, I also have neuralgia, myasthenia gravis, and tremors.
My biggest triggers, besides the medical world at-large, are pretty basic and direct. Others are really complex:
any governmental/bureaucratic institution (like court, the Medicaid office, the police, the DMV),
phone calls or visitors when not scheduled ahead of time
sudden, loud noises
being touched without my permission
alpha-type individuals with large, forceful personalities
being late in any way
having to “explain myself” without reason
being judged
severe storms that could produce tornadoes
certain smells, words and phrases
anything unexpected
That last one is almost the hardest one of all to deal with. Sometimes I feel almost a kind of autism or something. Like my today has to be just like my yesterday – or at least as planned, and if not – if something throws a monkey wrench into my plan for today, I totally lose my shit. It can be something as simple as a bill that was higher than it should be or oversleeping. Not that sleep is something I get a lot of, but sometimes the insomnia flips itself inside out and all I do is sleep. Though at least with insomnia, I don’t oversleep, so I prefer it.
I heard this line once, from a favorite show of mine, “People with this thing (PTSD), they don’t believe in a just Universe.” Man, ain’t that the truth.
As I’m sure it is with everyone, my story is unique. There isn’t a single situation I have ever experienced that isn’t somehow affected by this damn illness. I don’t know how to let any of it go, either.
I also do not know how to relax. Other than right after orgasm. Which on the one hand, makes orgasm extra nice (when I can get one – yes, of course I have trouble there, too) but on the other hand, as soon as my body goes back to normal, I’m back to tension and worry. My muscles hurt all the time because I’m constantly tensed up.
I get bothered by things that have anything to do with control. Control being mine, that is. Of course, I can’t handle when I have no control, either.
I am on disability, and housebound as I said before, so I spend a lot of time with distraction. I have a couple of hobbies that bring me as much peace as possible, but sometimes even they don’t help.
I have bad days and better days. Once in a while, I have a good day. I never just kick back and enjoy a good day, though, ’cause I seem to be suspicious of it. It’s like I’m thinking, “What is going to come along and ruin this?” …because something usually does. It’s that no-relaxing thing.
It’s like if you’re on letter M, and letters A through L have been horrible? You can’t exactly just get cozy on M… and even thinking about what fun letter T would be would be all kinds of dangerous.
I guess that about covers it. Separating out the ingredients of the soup of this illness is really tough sometimes.
I don’t know if in future I’ll post specific events or not. Thanks for letting me put this all down like this, though.
While I am terrified of people, I am usually pretty lonely.
It’s like so much of it all has some vicious cycle to it, doesn’t it?
I’d always believed that my mother loved me and all her interference in my life was to make me better, stronger. Blindly, I trusted that she meant for me to be happy. But I also knew that … something was wrong. I never could do right by her and I just knew that something was wrong with me. She was inside my head, under my skin, causing me to drown. I lost my strength and discovered that I feared her.
These revelations took over a year – it was a whole process for me.
My life had fallen apart and I went to a specialized therapy clinic for help. There, I learned I was codependent. My therapist actually told me “you have a bad mother, you need to protect yourself from her.”
I was shocked.
I talked to my mother as I came out of the clinic and decided to break contact with her. Afterward, I felt so guilty and sunk into a very deep depression. I think I put all my energy into avoiding contact with her. I was stuck in bed, only leaving to go to therapy.
I couldn’t understand my mother’s attitude toward me. How could she be so crazy insensitive to what I was going through? I was obsessed with the question “why?” After seven months of therapy, I discovered that it was helpless to believe there was a way to save our relationship. I remember my therapist saying “no, I don’t think so. Any relationship with her, you’ll only get hurt.”
I cried so much. It was such a big loss. I finally understood how much she’d taken from me. How she enslaved me, took away everything I got, people that I loved. My mother had bullied me all of my life. The pain was indescribable; I was destroyed. Crying every day, having nightmares all night.
None of this made sense. I felt that she’d only rest once I’d killed myself. How could she be so awful to me? I did everything for her; gave her more than I had to give. Was it really just jealousy? Why? Why had she been so cruel to me? My therapist explained that she’s a narcissistic mother; she has narcissistic personality disorder. I was her extension. It was quite confusing so I turned to the internet for answers. I didn’t know what having a narcissistic mother meant.
There I found it. I understood the way I’d felt my whole life. I understood her attitude toward me.
I learned the tactics of psychological manipulation: invalidation, gaslighting, parentification, triangulation, narcissistic rage. Convincing me to do the opposite of what my gut said. Denying my needs.
I was deadly shocked for I don’t know, months? I haven’t really recovered. My symptoms increased, I developed panic disorder, my self-esteem melted, felt so insecure talking to people or making changes in my life.
For five months, I stopped dealing with it – it was just too much. I’m still unable to deal with anything or anyone. I feel lost, I’m afraid that I’m too damaged to be able to be happy. I’m paralyzed. I have no idea who I am.
I’m 40 and I lost my childhood, my innocence, my adult life. I am sick, depressed, lonely, and terrified.
I discovered The Band Back Together Project, for which I am very grateful. Thanks to reading your stories, I now know that I did the right thing in stopping contact to my mother. That was really killing me.
I can understand all the pain I’m feeling. How badly I’m grieving this loss. To top it off, I discovered that my father also has narcissistic personality disorder.
I’ve been badly abused all of my life. No wonder I’m unable to do what I want and need, how absolutely everybody in my life has abused me, why I can’t stand up for myself.
Knowing that I am not alone and understanding my symptoms gives me hope. I understand that I need treatment and support. I’ll return to therapy which I hope can help me to learn to feel angry, to defend myself, to stop feeling guilty all the time. To allow me to have things, a family, someone that treats me well. I hope I’ll never have abusers in my life again.
I wish I could see what life is like. Until now, I’ve never had a life of my own to lead; I was just a stupid toy, trying to please everyone for love and attention. I want to learn to respect myself and set clear emotional boundaries with other people.
The hardest part is to see how damaged I am. That’s really scary.
Thank you, Band Back Together for giving me the opportunity to speak out. I don’t need to be ashamed; I was abused, I am a victim. Thank you for showing me that.
Can you, The Band, share your stories about being an adult child of narcissistic parents?
I really want to believe this emotional trauma will end and I will, at long last, be free.
We all have letters we’d like to send, but know that we can’t. A letter to someone we no longer have a relationship with, a letter to a family member or friend who has died, a letter to reclaim our power or our voice from an abuser.
Letters where actual contact is just not possible.
Do you have a letter you can’t send?
Why not send it to The Band?
Dear Nick,
Fine, I’ll be here for when you need some quick sex or someone to yell at. Don’t worry about my fucking sanity, all that matters is yours. You have put me through so much yet hardly want to own up to it.
I have told you things about me that no one knows. When I opened up to you last night about some things that my ex said, I thought that I would receive the same compassion and comfort that I give to you when all you want to do is die. But I was wrong. You had zero compassion, or love, or understanding for what he put me through. I don’t care about him, I really don’t. But it still hurts that someone I had given everything to told me that I don’t meet his standards. Can you understand that?
Do you know how much that hurt me? You don’t seem to care what I’m feeling as long as you get laid and have someone to comfort you. What the hell am I supposed to do if I get hurt? If you can’t say a few comforting words when I’m reliving a bad memory, what happens if I really get hurt? Why am I so willing to put myself through the wringer for someone who doesn’t seem to care?
Today, my therapist told me I was ready to read/do this workbook. She said I was emotionally and mentally stable enough to try and retrain my brain as far as sex goes. To me, its dirty and wrong due to my childhood sexual abuse. This book is about accepting and coming to terms that I was abused and how to sort out all the emotions and issues that has caused and continues to cause.
I am starting it immediately and will update in case anyone wants to see how it works for me.
If you are like me and have warped feelings and opinions on sex after being abused, know that it is a normal response to an abnormal event. I never want sex and it’s created a barrier between my husband and I for a long time. I hope this workbook helps me fix that.
Anyways, here is the amazon link if you want to check it out. I am in no way shape or form associated with them, I just learned about this book today from my therapist and wanted to share it with The Band since there are so many like me out there unfortunately.
