by Band Back Together | Jul 19, 2016 | Anger, Bullying, Fear, Feelings, Self-Esteem |
This is a contribution to the I Am Me Project. I’m a ten year old girl with a soft heart and a million possibilities. Born into a wealthy family, we don’t have trouble with money, but my parents aren’t going to let that turn me into a snotty, spoiled child.
One of my ears doesn’t work, or at least the horrible muffled up sounds that do make it through, aren’t noticeable. I have a short temper and an easy-to-break heart. Sensitive physically and emotionally, I am treated like a rag doll.
I try my best to help others, not knowing if they are thankful or not. I’m soft and always happy to socialize and talk. I care about others and absorb their feelings.
I’m proud of my character that cares about others maybe more than myself. I expect others to do the same as I do for them, making most of my bad situations worse when no one cares.
I love to write and act. I love to sing in musicals, and say my lines, and write my words. I’m proud of my creative capabilities to make amazing stories and facial expressions.
I have a therapist who helped me with my temper, but I’m proud I got help. I’m proud I don’t scream any more, unless it is necessary. I’m known for swinging between optimism and pessimism. But it’s good that I can see two sides of one world. I can have both high and low self esteem.
That’s Me, and Me is who I am.
And Me is always proud of who I am, and I’m proud of Me.
But I’m not the best version of me. I want to take the oath I’m afraid to take, the path that would make me better. No one’s perfect, and everyone should except that. No one should be left out, everyone should feel important.
I believe the purpose of life is to Survive, Love, Hate, Feel, Die. To survive, and be a survivor of your own war. To love, have friends and family there for you. To hate, to know the difference between someone you should be with and someone you shouldn’t be with. To feel, to feel happiness, fear, heartbreak, anger. To feel the emotions of life. And to die, end it, and give space for someone to go on their own path of life.
By-WeWillBand
by Band Back Together | Jul 15, 2016 | Addiction, Addiction Recovery, Anger, Caregiver, Family, Health, Hepatitis, Infectious Diseases, Viral Infections |
I have a dear friend who has Hepatitis C. He went through interferon treatment, which is considered the gold standard for hepatitis C treatment, last year. The side effects were severe but it didn’t kill his disease and he will undergo an experimental protocol in January.
His wife, an even dearer friend, lived through hell during his treatment and now she has to return.
All I know how to do for them is be there when it starts. I will to walk through hell with them. They would do the same for me.
Ironically, they will probably have to one day. My better half has tested positive for Hepatitis C. I am just grateful that his viral load is still low enough that the doctors recommend against the interferon treatment; instead they are waiting, watching.
It is bad enough that these two men, so full of life and benevolent mischief, have this disease that wants to kill them. Yet, to add insult to injury, all four of us are recovering addicts. You’d think we had walked through enough hell just surviving addiction, getting clean, and finding a new way to live.
I feel so powerless, so inadequate. I want to scream. I want to fucking punch something
by Band Back Together | Jul 12, 2016 | Alcohol Addiction, Anger, Divorce, Fear, Grief, Infidelity, Suicide |
It is very difficult to watch someone you love go through the pain of a divorce. There really isn’t much you can do to help them, especially when they are in denial and are making poor choices.
He’s my best friend in the world. I love him dearly. His marriage was never anything extra special, in fact, it was almost always rocky. A few years ago, he was pretty sure his wife was cheating on him. They talked it out, and were working on their marriage. The only resolution I could see as an outside observer was that suddenly, all of HIS phone calls were being monitored. Including with me, his best friend. But since I’m a girl, I was under suspicion. Which I found quite ironic since SHE was the one suspected of cheating, not him.
So it really wasn’t a surprise to me when everything came crashing down this winter. She had been planning ahead: getting her own bank account and transferring her direct deposit into that account, packing up little things here and there. He was knocked completely sideways when she announced she was moving out. Not surprising, he tried very hard to get her to stay.
For a while.
Until he found out she was, indeed, cheating on him.
He isn’t an alcoholic, but he has always been a heavy drinker when he was in the right mood. Her leaving pushed him to the point of drinking all the time. He called me one night, more drunk than I’d ever heard him, and told me he was puking up blood and was suicidal. It scared me to death. I seriously considered driving the hundreds of miles between us to check on him.
Instead, I made him check in with me all the time. He was angry with her and took it out on me, saying I was smothering him. I know now that I probably did push too hard, but it was out of love and concern for him. He became angry enough that he quit talking to me altogether.
Months passed.
I needed to deal with some things in our hometown, so I went to see him. As I already knew, he was – mostly – ready to forgive me. Our friendship is still a little unstable, so for now, I need to be very gentle on him and give him some space.
In talking to him, I did discover that he is still very damaged. It’s not the loss of the marriage that has hurt him so much as it is the loss of the dream of what he thought their marriage was going to be. Even though he has “moved on” and has a new girlfriend, he couldn’t stop talking about his ex and everything she did. His pain is still very raw, although he’s too stubborn to admit it. I know a new relationship is probably not the best thing for him right now, but I know that, like the alcohol, he is using the new girlfriend as a crutch. She’s not his type at all, and from what I can tell is a walking train wreck. I hope she’s not going to end up making everything worse.
So I’m going to love him and pray for him from a distance. I’m hoping that once he heals more, he will cut back on the drinking, and hopefully see this other girl for who she really is.
This really hurts me to watch, but I’m glad he’s at least allowing me to do that much again.
by Band Back Together | Jun 29, 2016 | Anger, Chronic Illness, How To Help A Friend With Chronic Illness, Invisible Illness, Loneliness, Lupus, Shame, Trauma |
I push myself everyday often beyond my better judgment. Lupus and Sjogrens are not diseases that I can beat into submission nor is the depression that comes along with the chronic widespread pain.
Yes, I want to do more, but why can’t you see I can only do so much and some days a lot less?
You need to know something else. When you don’t make the time to visit me? it breaks my spirit in ways I cannot adequately describe. I may be broken, but I still have value. I am worth the trouble it would take to make the trip to my house. I know you love me.
I wish you knew how much I need you to recognize this won’t go away by ignoring it and by default me.
by Band Back Together | Jun 15, 2016 | Anger, Breast Cancer, Cancer and Neoplasia, Cancer Survivor, Coping With Cancer, Depression, Faith, Fear, Guilt, Mastectomy, Stress, Trauma |
Have you ever been swimming in the ocean and wondered what was lurking underneath you…eying your body…sizing you up to see if you would make a tasty meal? That’s what I call the breast cancer “shark attack syndrome.”
I liken the physical and psychological impact of a double mastectomy to a shark attack. It happens quickly and violently. In a matter of minutes you are struck hard and parts of your body are carried away into a vast ocean by a predator much bigger than you. It isn’t personal. The attack is random. You are left alive but amputated–stunned and with a life long fear of the water.
People who know about my diagnosis gawked at my chest like an accident scene on the freeway. Family, friends…they can’t help themselves from looking. I chose not to have reconstruction due to the lengthy recovery…an infant and a toddler don’t lend themselves to extensive plastic surgery. My daughter was 8 months old and my son was 3 years when I had the surgery, not exactly the age where I could be out of commission.
I don’t wear the prosthetics I bought…they constantly remind me I am amputated, and the first time I took yoga one of them fell out! My beloved yoga teacher said, “Just take them out, honey.” I never looked back.
Rough Waters
The journey through a breast cancer diagnosis with two small children was so very hard. I searched for the words to tell my son…
”The Doctor found a lump in mommy’s breast that isn’t good for her body and he has to take it out.”
Thanks to my son’s school and my amazing husband, we got him through it…but he STILL talks about it and recently asked, “Mommy, why don’t you have boobies?” At that point I realized my beautiful daughter would grow up never knowing her mother’s body to look “normal.” She only knows the scars. That is the day my heart broke forever. As if depression didn’t make me feel inadequate enough, now I felt like a carnie act. Come on down and meet the lady who was attacked by sharks!
I will never truly recover from knowing what I look like and what I represent to my children. But I am here to be their mom and truly thankful. Thank god I had it checked. The mammogram showed no abnormalities! If I had just had the mammogram I would have faced a diagnosis of invasive cancer and perhaps required chemotherapy or radiation. As of now, they tell me I am “cured.”
And I found it myself.
Not a minute in the day goes by that I don’t worry that it will return and take me from my children. Every woman who has had breast cancer knows exactly what I’m talking about. Every cold, every headache, every stiff muscle, still scares me into thinking I am still out there in that ocean—defenseless to another shark attack. What part of my body will they take next time?
I saw my mother lose her breast early in life. The same month I was diagnosed, she was diagnosed with Stage IV colo-rectal cancer. I watched the sharks circle her for six years, taking feet of colon, and eventually her life.
But it isn’t a pity party. I am glad I got cancer. It was a hell of a lot easier to deal with than postpartum depression, than life-long depression, than the cancer that is depression. And it got me immediately in touch with impermanence, and subsequently, my spiritual practice.
If I were thrown back into the dark ocean again and a recurrence reared it’s ugly head, I have my faith to thank for curing me of my fear of sharks.
by Band Back Together | Jun 7, 2016 | A Letter I Can't Send, Adult Survivors of Childhood Sexual Abuse, Alcohol Addiction, Anger, Child Abuse, Child Neglect, Child Sexual Abuse, Depression, Guilt, Inpatient Psychiatric Care, Loneliness, Self Loathing, Trust |
We all have letters we’d like to send, but know that we can’t. A letter to someone we no longer have a relationship with, a letter to a family member or friend who has died, a letter to reclaim our power or our voice from an abuser.
Letters where actual contact is just not possible.
Do you have a letter you can’t send?
Why not send it to The Band?
This is what I would like to tell my mom, and probably would if she weren’t in a fragile state. She’s been wheelchair bound since my second child was born and my daughter is now nearing junior high school. How she ended up in a wheelchair isn’t at issue at this point. Needless to say, she is simply too weak to hear this stuff.
Mom,
Did you ever wonder why I was so angry as a young man? Or why I only had a single friend when I was going through school? You should remember the angry tantrums that I used to pull. The anger I showed you was caused by a deep, horrid certainty that I was useless and doomed to failure. That I could never trust people or achieve anything of moment in life.
While a lot of this is standard fare for a teenager, you never informed dad about any incident as far as I can tell. He was never the kind of man to sit still for such nonsense. Did you stop to think when you told me as a very young child that I was a “surprise?” It didn’t take me long to figure out that “surprise” meant accident, and that you didn’t intend to make me. From that time on, I wondered if everyone would be happier without me, or if I even was truly wanted in the home.
What about the grades, Mom? You know, when I began failing in high school and you would hide the facts from Dad. Of course a child would accept help in such a way. I didn’t want to be in trouble at home AND school, after all. It’s a repeated pattern with you.
Consistently, you would “shelter” your little boy from Dad’s wrath, which was rather corporal, yet never over the top. Yet you failed entirely to protect me from sexual predators. Yes, mother I was molested as a child. I, your little boy, was fucked by a teenage girl belonging to a “trusted” family. My innocence was gone by fourth grade, Mother. Then, listening to your gossip, I learned that you never really even liked that family and thought their mother to be disgusting and immoral. Why, then, was I allowed to mix with them? Did you never wonder why I didn’t have any friends or why I quit playing with the other children from that family? I really believed that my molester was my girlfriend. You have no idea how confused and hurt I was when I saw her with a boy her own age. I had no one to confide in, and as children who are abused often feel that they would get into more trouble.
You were already struggling with demons of your own, of which I had known a little from the time I was in second grade when you were first hospitalized for “stress.” Junior high came around, and while I seemed to be okay, inside I was dying. I felt completely alone, as sex abuse survivors often do. I went through those three years with one friend who I met in fifth grade.
Then, you decided you were divorcing Dad. We moved out and lived for a few months in another town. You went back to father because, as I later found out, he bribed you. Yes, he cashed money from his retirement account and gave you a lump sum of cash to spend at your discretion. That caused me to lose a lot of respect for you. That was a single summer and back to the home. It was fucked up mom.
Junior high progressed. Even then I would have horrid angry outbursts of hopeless despair which should have caused some questions. Mom, why didn’t you do anything to get me help then?
High school came along and I gave up my choir aspirations. I didn’t have the confidence to try out for the high school choir, even though I had pulled straight A’s in all my choir work for junior high and earned a place on the Honor Choir. Indeed, I began to give up on everything then. I didn’t have many friends and had no visitors or invitations during summer breaks to anything. You never wondered why I never went steady with a girl, and asked only one out, and only then after repeated assurances that she would say yes? I pushed away my best friend in this time, in favor of what I thought were better friends. I’m lucky he forgave me, when I asked for his forgiveness.
I joined the Navy, only to flunk their psych evaluation and be sent home after five or so weeks. So there I was in the airport, defeated. You were so out of it, Mom. Dad was obviously exhausted. Apparently, it was getting near to another stay in the hospital for you. Not that they did you any good, except for to get you to decide to pretend everything was okay, so you could get out. Do you remember that ride home and the crazy things you talked about? In any case, Mother, you couldn’t handle your little boy leaving and broke down again. I needed some strength and real help then, Mom. But you, once again, were in trouble. I felt guilty by even thinking, “Dammit, I need my parents right now!” But Dad was dealing with your outbursts and insomnia. And so, once again, I kept my secrets and felt an utter failure. I know you’ve had difficulties Mama, but this isn’t about you right now.
You must realize that I was neglected by you in a few ways. Sure, you kept the house clean and meals on the table, but you never would inform my father of things that he had the right to know, like my failing grades. I was allowed to withdraw unhealthily into fantasy-like video games and television. You didn’t make me do the the things that I should have been doing, Mom. Dad could have helped you with that, if you would have let him. But I knew you, and I played you to keep the bad grades secret, just like any teenager would do, given the chance.
You did all that shit with my older sister, to the Nth degree, keeping her from facing the music for so long that she’s now a drug addict with no job, car, house, or self-respect. I escaped that because all along, since second grade, I have resented you. Yes. Resented that I couldn’t have a mommy that didn’t pick crazy fights with dad as we were watching a baseball game, eating dinner, or whatever. A mommy that wouldn’t freak out at tiny problems and scare the shit out of me with lies fashioned to keep me safe, that only served to inhibit my sense of trust in the world. A mommy who didn’t get so tired she wouldn’t talk to me or Dad and had to be taken to hospital on regular intervals.
I love ya, Mom, but you sure fucked up bad.
Four kids, one alcoholic, another a depressed, self-loathing mess (me) and a drug addict forever child. My oldest brother is the most well-balanced of the four of us, and I truly believe it’s because he spent the greater majority of his time with Father. Why did you “protect” us three from Dad so much? I have a good relationship with my father now, but my brother and sister haven’t spoken with him in years, in any meaningful way.
Do you know why dad was so grumpy all the time, mom? Because he slogged his ass of in a coal mine for twelve hours a day, six days a week and came home to either a batshit crazy or a sweet as pie wife–he never knew what to expect. He paid your way, Mom, and you resented him for it! He never made you stay home, you could have had your own money. Instead, you spent him into debt with secret credit cards, on more than one occasion. I remember the fights. They were the only ones that had any kind of justification. In other words, Dad was right!
You even kept him from forming decent relationships with the majority of his children.
Mom, I love you, but you have messed up three of your kids. That is a fact. I am now thirty six and struggle daily with feelings of empty, horrid loneliness and depression. These things are only bigger for me now, and I resent that you had every reasonable signal that something was very wrong with your child and you did …nothing. NOTHING!
I am now a father, and if one of my children began behaving the ways that I did, I would most certainly get them to someone for help. It’s not normal to rage the ways I did. Now I know it’s because of the injustice of abuse and the feeling that I wasn’t really wanted in the home.
I’m fixing these problems now, Mom, and without your help, just as before. It’s fucked, and I’m still kinda pissed off that all the signs were there. Sure, it was the early nineties. You watched enough talk shows to see at least one child psychiatrist telling parents signs of trouble in a kid. This fucking rock I’ve been toting for so goddamned long is a big bastard now. I’m pissed that I’ve had to do that carrying for so long. I’ve learned so much in my reading that I know that things wouldn’t be so bad NOW, if you would had done more THEN. Maybe you could have found yourself some decent help along the way, too.
I’m taking action now, Mom. I’m a big boy and have been taking care of myself. I’m getting the help I need, but my problems are compounded now by a failed marriage and the breakdown of my little family. This isn’t easier. Time didn’t make this shit go away. Indeed its only become worse.
I will overcome.
I love you mom. I hate you too. I don’t like it, and certainly this is going to be something that I address in therapy. But I’m doing it, finally, and that’s the point.
