by Band Back Together | Aug 6, 2015 | Anger, Breakups, Grief, Guilt, Help For Grief And Grieving, Loss, Parent Loss, Sadness, Suicide, Survivor Guilt |
My ex husband killed himself two months ago, and I’m not coping.
He has left behind a four year old daughter, and as we are still married, I am his next of kin.
I left him 18 months ago, he seemed happy and he seemed to get on with his life.
Since leaving him, I have been dating someone new.
I found my ex hanging from his loft. Since then, he is almost all I can think about.
My partner has been great, amazing, incredible, but I really cannot shake a feeling of guilt, and sadness, wondering why he did it, and how if I hadn’t left him, he would still be alive.
It’s breaking my heart, and it’s breaking my soul. Every time I feel strong again, the slightest thing sends me right back to square one. I saw him hours before he died. Why didn’t I notice any signs or see anything wrong? He seemed happy and normal and himself.
I am so cross with him. How could he do this to our baby? How could he not see that she adores him and hangs off his every word?
He will never know how many regrets I have. He will never know he is so missed. I don’t know how to rebuild my life, as a 20-something widow, single mum of a grieving four year old.
by Band Back Together | Jul 31, 2015 | Anger, Forgiveness |
In my own life, forgiving others was not something that I was taught to do. I was always taught that I had a lot of sins that needed to be forgiven, but I never saw forgiveness for others practiced until I had to start doing it myself.
Our hurts, our pains, our lives to this point have all been dictated by our emotional selves. This is understandable. I totally get it. It is fine that, for a little while, we are so mad at anyone else that we would love nothing else than to see them have to walk down the busiest street in town, wearing the most ridiculous attire, singing “I’m a little tea pot,” loudly as though they were singing along to their favorite Metallica tune. I get it. I have been there.
Forgiving others was hard for me because I always figured if someone hurt me, it was on purpose.
We choose what we want to recall of our own memories. We choose the uglies because that is what we have been taught through being shown only a victim mentality. I know this one very well. It is not hard to learn a lesson of being someone else’s victim if that is what everyone in a child’s life believes themselves to be.
I love my mother, and I hate to use her as the example, but the truth is that I now know, that while she did not teach me outright to be someone else’s victim, she showed me that by her example. I believed for a very long time, that in order for me to forgive, I had to make sure that everyone in my life knew that someone else had wronged me.
We humans do NOT want to forgive others. We want them to pay the fullest, heaviest price for the sins that they commit against us. In reality, it is not an actual sin against us, but is an indicator to us that they have not actually studied themselves and explored their own feelings of hurt. Even in church, too many people don’t understand what “turn the other cheek” means. Turning the other cheek means to hear the other person out, to allow them, through your listening, to be able to see the sin in their own energy.
The act of forgiving is not as simple as too many pastors in our lives have made it seem. It is hard for people to admit that they are sorry for the hurts they have caused.
When we hang onto wrongs for too long, it is all we can see. You can choose not to hang on to the anger and pain from the past. The best way that I know to begin the healing process is to learn by first starting with our very selves. We have to let go of the past, because it is no longer there. We need to stop believing that people will love us more if we tell them that we are in pain.
It is great to wallow, for a little while, but eventually that shit gets old, and eventually we find out that it got us nowhere. It is only in that act of forgiveness for others who have hurt us that we will also find the strength to forgive ourselves.
Just Sayin’
Aloha
ROX
by Band Back Together | Jul 28, 2015 | Anger, Date/Acquaintance Rape, Guilt, Healing From A Rape or Sexual Asault, Shame |
This is her horrible, uplifting, beautiful story:
At age 35, I went with my father to a professional baseball team’s Fantasy Camp. Our coaches were former professional baseball players and current minor league coaches. I played softball my whole life; I was a good ball player. I held my own with the guys. I was accepted. I had a great week.
Thursday night after the championship game, I was outside the complex where we were staying, talking on the phone to my husband. I was approached by one of the coaches, currently a minor league manager, who was roughly my age. We’d been friendly all week. He asked if he could buy me a beer in the lounge and I agreed. This wasn’t the first beer I’d been offered that week. That’s what you did – you bought people beers. I told him I’d meet him in a few minutes.
I went back to my room to grab some money and tell my dad where I was going. On my way back out, I saw him at the back door of the complex. He waved and asked if I would walk around with him. He handed me a can of beer and we walked out back. We talked about baseball mostly.
We stopped walking at one point and he asked how long I’d been married. I told him ten years. He said twelve years. We talked about kids and my work. We got in to a debate about one of my plays earlier in the week. Then he grabbed me and tried to kiss me. I said “Whoa, no, no, no, I think you’ve got the wrong idea about me.” He pulled away immediately and apologized over and over. I told him I had to go and we quickly parted.
While this situation made me uncomfortable, I wasn’t upset, angry, or scared. I was actually sort of flattered. The next day, we played a game in the morning and then our week was over. I went to the training room to get an injury taken care of and when I walked out, I ran straight in to him. He said hello and we talked about our games that morning. He asked what my plans were for the afternoon. I told him my dad had gone to my cousin’s for the afternoon so I didn’t have any plans. He asked what room I was in and I told him. He said he had some things to take care of and then he’d swing by. I thought nothing of it. I figured he wanted to hang out and apologize for the night before.
He came by ten minutes later and I let him in. I was completely at ease. He was extremely charismatic and very charming. I sat on my bed and he sat on my couch. He asked to put the television on. I told him sure. He put on the MLB channel and we continued to chat. Around three, asked when my dad was coming back. I thought my dad had said around 4:30.
He said, “Why don’t you call and make sure?” I told him I didn’t see a reason to. He persisted to the point where he finally said, “Make the call,” pretty forcefully. Still, I wasn’t alarmed. I ran outside and called my dad, who assured me he would be back around 4:30. I told him.
I had pretty seriously injured my finger earlier in the week and he asked how it was. I told him it was getting better but still pretty sore. He asked to see it, and I held it up. He asked to see it up close so I stood and walked over to him with my hand out.
He didn’t look at my finger.
He grabbed my wrist and pulled me on top of him. He tried to kiss me. I kept turning my head from side to side and arched my back. I said, “I can’t do this. I can’t do this.” “Yes you can,” he replied. “I’m married, you’re married. I can’t do this.” “Yes you can.” “You don’t understand, I love my husband. I don’t want to do this,” I started crying.
He caught my head with one hand while the other remained tight around my waist. He started kissing my mouth. After a few seconds of struggling, I started to kiss him back. I instantly became nauseated.
After only a few moments of kissing him, I pulled away and told him I needed to use the bathroom; it was an emergency. I ran to the bathroom. I was shaking so badly. I tried to calm down. My head was spinning. It felt almost as if I had been drugged or had too much alcohol, that’s how foggy my brain was. My heart was pounding so hard and so fast.
I thought, “I’m just going to make him leave and if he won’t, then I will. He stopped yesterday. He will stop today.”
I opened the bathroom door and he was standing right in front of it. He grabbed me and half carried, half dragged me to the couch. He tried to pull me down on him but I managed to end up next to him. I had on a t-shirt and shorts along with a bra and panties. He had his left arm tightly around my waist, like a vise. That arm never left my waist.
I again said, “I can’t do this. I can’t do this.”
I was ignored.
That was when my body and mind shut down. I was no longer able to control my body. My senses were gone. I knew his hands and mouth were on me but I couldn’t feel them. I couldn’t smell, I couldn’t see. I felt like I was in a dream. And my body was frozen. When I tried to move, it felt like I was stuck in thick mud. I could hardly move at all. And I knew. I knew what was going to happen. It was inevitable.
He grabbed my hand and put it on his penis that he had pulled out of his pants at some point. He held my hand there and began stroking himself with my hand. I thought, “If that’s all it’s going to be, I may be able to live with this.” But it wasn’t.
He pulled me on top of him and pushed my shorts and panties aside. He asked me if I could get pregnant. I told him no. I asked if he had any diseases and he told me no.
One arm around my waist and the other on my thigh, I had bruises for weeks from his hands. It was rough and it was fast. But I never felt it. I never felt anything. Like all my senses were gone.
He finished and got up. Told me not to tell anyone and that he “hoped I would be back at camp next year.” And then he left.
I jumped in the shower. I was on day three of my period. There was blood everywhere. I thought maybe this was a dream. This has to be a dream. I got out and got myself ready for our closing dinner that night. I know my dad knew something happened. I was quiet and withdrawn. I hardly said a word all night. He wasn’t at the dinner. I never saw him again. The next day we flew home with me saying less than fifty words to my dad all day.
As soon as we pulled up at my house and I saw my husband, I burst in to tears. I told him I had missed him so much. We had been dating since we were in eighth grade and married for almost ten years. We have three beautiful daughters. We are as close as it gets. After the girls were in bed, he asked me what was wrong; what happened? He could tell there was something definitely wrong.
I told him.
I told him the whole story. I felt like I had cheated on him and he deserved to know every detail. He listened patiently. I told the story sobbing. I felt sickened and guilty and ashamed. I hadn’t fought him. I didn’t hit him or punch him or kick him. I didn’t scream. I had, in fact, kissed him back at one point. I’d also asked him if he had any diseases.
Didn’t all these things mean that I was okay with what was happening? Hadn’t my lack of resistance when my body went numb told him it was okay to proceed?
My husband asked if I ever had any intentions of being intimate with him. I told him that I had no intentions whatsoever. I never even wanted to kiss him, let alone have sex with him. I thought we could be friends. We had a good rapport through the whole week. I thought it was cool to be friends with a professional baseball manager. My intentions were purely innocent.
My husband said, “If you had no intentions of being intimate with him, and you told him “I can’t do this” repeatedly, then you were raped.” The thought hit me like a ton of bricks. How could I have been raped? He didn’t have a gun or hold a knife to my throat. I didn’t fight him. And my husband said that none of that mattered. What he did was against my will and I’d told him as much.
My husband is the most supportive person I’ve ever met. He never once doubted me, even when I doubted myself. He encouraged me to tell my best friend who also agreed that I was raped. I made an appointment to see a counselor the next week. I’d done a lot of reading about rape between the assault and the first meeting with my counselor. I was really beginning to understand the concept of being raped.
Being raped was never something I thought could happen to me. I’m smart, I’m strong, I’m athletic, I’m a professional in my community, I’m a good wife, and a mother of three. How could I be raped?
The first meeting with my counselor was an eye opener. He explained to me the physiology behind our “fight or flight” response. It’s not really just fight or flight, but that it’s “fight, flight, or freeze.” An overwhelming number of rape victims freeze instead of fighting. He gave me the analogy of someone coming up to him on the street and asking for his wallet with no weapon. What does law enforcement tell us to do? Give the perpetrator what he wants. Because if we don’t, we may very well get hurt. We are conditioned this way.
My body and mind shut down to preserve themselves. If I’d fought, he could have easily hurt me. This man was conditioned as a professional athlete. From the bruises on my body, one could see how strong he was. But why had I asked him if he had diseases? Was that the green light for him? One author on this website absolutely nailed it when she said “it wasn’t consent, it was resignation,” (I wish I could find her particular story and give her proper credit) after she asked her rapist if he had a condom. What an epiphany that one line gave me. Finally I had some answers to the questions I’d been asking.
And finally, I came to accept that I was raped.
It’s been 2 months. And it still hurts. A lot. I called my rapist three days ago at the encouragement of my counselor and husband. I always hold people accountable for their actions, so they both thought the best way to get closure was to talk to him.
So I did.
I told him he hurt me. That I cry every day. That what happened in that room was never okay with me. He told me that yes, he probably pushed me too hard, he lost control, and he couldn’t stop. I asked if he heard me say, “I can’t do this.” He told me that yes, he heard me but didn’t think I meant it. He apologized over and over again. He said he felt like shit. I told him I’d been feeling that way for weeks.
He said that he hoped we could be friends; that’s all he wanted from me anyway. That he never had the intention of having sex with me either. I told him he was full of bullshit and that we would not be friends and I wouldn’t be calling him again.
That call was very liberating. I felt like all the chains that were wrapped around me were gone. But I still have bad days and good days. Bad moments and good ones. I’ve been plagued with panic attacks since the assault. Now I don’t have them as frequently or as badly, but they are still there. This is still pretty fresh and new and I know that I still need to heal. I don’t trust men in general. This man was Venezuelan and any time I see a man of Latin descent, I want to stab them. Hopefully, in time, that feeling will dissipate.
I’m writing this in part as therapy for me and in part so that other people that have had the same sort of experience can feel a little bit reassured. That they aren’t crazy. That there are other people out there that have been through it, and are still going through it. But that there is hope that it can get better.
With the right support, you can heal from rape.
That’s how I felt after reading all the stories on The Band. I felt like these people all helped me understand what happened to me and now it’s my turn to help others. The guilt, the shame, the blame, the disgust and the anger can all be healed.
by Band Back Together | Apr 29, 2015 | Anger, Anxiety, Chronic Illness, Fear, How To Help A Friend With Chronic Illness, Lyme Disease, Pain And Pain Disorders, Stress, Trauma |
Lyme Disease treatment options are all over the place – no one can seem to stick to any standard.
This is her frustration:
I am sitting at the ER. I have had a headache since Thursday with pain behind my eyes. It feels like my skull is trying to break through my eyes and nose and ears. I wish it were sinus related. But it’s not.
The reason I’m at the ER is two-fold. I want to make sure that I don’t have spinal fluid building up in my head. The second reason is more complicated. I was hoping maybe I could switch back to being treated here by my neurologist, who is covered by insurance. My Lyme doctor isn’t. She wanted to treat me with IV antibiotics. My Lyme doc thinks that orals are the first line treatment.
You see, Lyme disease is rife with controversy. Does it exist in the numbers that the International Lyme Disease Association says? Are the current tests sensitive enough for diagnosis? Does Lyme seroconvert in the blood like other infectious diseases? Is it easily treatable? Will three weeks (and maybe six weeks) of oral doxycycline treat all forms of Lyme, even if it’s late stage, which mine is? Will four weeks of IV rocephin treat neurologic Lyme?
I have Lyme, but my diagnosis is still suspect.
When I saw my neurologist in September, part of my Lyme test was positive, the other negative. When I went back for blood work,the negative part was now positive. But the positive was negative. Confused? My neurologist wasn’t convinced that I have active Lyme disease though I am symptomatic, and my tests prove that I have been exposed to Lyme (and my first test indicated active Lyme).
So I went to Seattle. I tried Levaquin, but it can cause joint inflammation, so any sign of joint pain and they stop treatment (joint pain is common in Lyme). Then I was put on Rifampin, which I have stayed on for months. It treats a secondary infection that is thought to occur often with Lyme disease. It resolved the shooting electric pains in my arms. I was put on Amoxicillin, which I’ve been on for months as well. Then I tried Minocycline for Lyme. It caused me to walk sideways. I already was dizzy. I didn’t need to have sea-sick vertigo as well. Then I tried Biaxin. I broke out in hives. I tried Doxy. It caused heartburn that radiated to the base of my skull. But the doxy DID work. I switched to Zithromax, and all of my symptoms returned. So I’m back on Doxy and taking Nexium to combat the heartburn. The problem is I’m not getting better like I did before.
What’s next? IV drugs. Insurance will pay for one month. It often takes more. A PICC line. Daily infusion. I was hoping to get treated from someone locally. But it looks like the doctors here don’t want to touch this. When I get home, I will call my doctor in Seattle and wait. And if this doesn’t work, I am flying to the Northeast where this stuff is treated often and where it costs a lot of money to see the top docs.
I am ready to be healthy. Six months with little improvement is just not acceptable to me.
by Band Back Together | Apr 12, 2015 | Anger, Anxiety, Breast Cancer, Cancer and Neoplasia, Denial, Depression, Faith, Fear, Hope, Love, Mastectomy, Stress, Trauma |
If you read my profile, you already know that I’m married 23 years with 2 teenagers; a daughter, almost 20 and son just turned 16. Four years ago I was diagnosed with breast cancer, went through a double masectomy, chemo, radiation and reconstruction. I was in remission up until 3 months ago when it was discovered that the breast cancer has returned, in the lining of my stomach, treatable, not curable (1% chance).
This is not to be mistaken for stomach cancer – confusing right?
Needless to say I went through the depression, anger and shock all over again. Only this time it was harder. The optimistic goal of beating it wasn’t as easy to grasp because it had already returned once.
My meds have been changed, my doctor’s visits are more frequent and the side effects more intense. Hotter flashes, sleepless nights and mood swings. I am not always the easy-going, jovial Queen that used to rule this Kingdom. No, I often become that dragon you referred to in the Bands write-up. But I allow myself to breath some fire, release some anger, then I straighten my tiara and return to my throne surrounded by my adoring and supportive family, my riches, my strength, my motivation.
I could fall in the moat tomorrow and get gobbled up by… well whatever lives in moats. I’m not going to let this Cancer defeat me and takeover my Kingdom…
I know I will have bad days but I also know that I will get through them with a little help from my army (my friends and family) …
Today was one of those bad days and then, suddenly, you appeared!
The Band Back Together Project. Thank you for being here.
by Band Back Together | Mar 1, 2015 | Anger, Cancer and Neoplasia, Cancer Survivor, Caregiver, Coping With Cancer, Depression, Fear, Feelings, Guilt, Happiness, Romantic Relationships, Stress, Trauma |
Imagine being 21 and attending one of the most well-known public universities in the United States. You are studying something you love, having a blast with your girlfriends, and always on the lookout for a potential suitor. You’ve lost some weight and feel really great about yourself. You’re four months away from graduating (a semester early!) and starting your life.
Your future is at your fingertips.
And then you get slapped with your mortality and it feels like your world is crashing around you.
You have cancer.
You know what? Sometimes the chemo, the vomiting, passing out, and the ever-present thoughts of death wasn’t the worst part.
Sometimes, the worst part was sitting on your parents couch at twenty-one, wishing you were going out to that amazing party with all of your friends. Or watching your hair fall out in chunks in the shower. Your beautiful, personality-defining red hair just washing away down the drain. Or realizing part of your soul died when you asked your dad to shave your head because you just couldn’t watch the slow process of it falling out any longer.
Sometimes the worst part was looking at yourself in the mirror and just watching the tears stream down your face as you realized that this is your new reality. You are a twenty-one year old woman and you are bald.
Maybe the worst part was the steroids. Good God those things are evil. In a matter of weeks you transformed from that trim, vibrant woman that you were so proud of, into a bloated, chemotherapy-ridden sick person. You have that look of cancer and it crushes you.
And then there were those few moments where you felt good. You put on nice clothes, brush out your fabulous black wig and get ready for a night of normalcy. The drinks start to kick in, you start talking to a handsome guy. One thing leads to another, he leans in to kiss you and goes to put his hand on the back of your head…. and you freeze. Because you know the second he touches you he’s going to feel your wig. Your cover is blown, you are not one of the normal girls. And the last time I checked, most guys weren’t looking for a date whose chemotherapy schedule would have to be worked around.
So then you just stop going out. You realize this is temporary and it may not be fair, but it was the hand you were dealt.
You live with it.
You stop sulking.
Hair grows back.
Weight can be lost.
Love is still out there to be found.
The bars aren’t going anywhere and you can graduate next semester.
They caught it early.
You are going to be okay.
Other people have it SO much worse.
You will still get that whole wonderful life that you always dreamed about.
You are lucky fortunate blessed.
