by Band Back Together | Oct 12, 2010 | Anger, Borderline Personality Disorder, Child Abuse, Child Neglect, Child Sexual Abuse, Loneliness, Sadness, Substance Abuse, Suicide |
My mom was 14 when she had my sister. Together, they struggled through life and became best friends. When my mother was 23, she met my father, 22 years her senior. After a whirlwind courtship, they married and divorced six months later when he announced that he was going back to his first wife.
A few weeks later she found out she was pregnant with me. She told no one that she was pregnant. She starved herself so that she didn’t gain weight. I was born full-term weighing a whopping 4 lbs 12 oz.
I don’t have many memories from childhood, except for being by myself. Starting in kindergarten, I walked home alone, where I stayed, alone, until my mom came home around 7 pm. What I do remember is being sad, lonely, and ANGRY. I had no idea who my father was, my mother was never around, and my sister resented me for being born and taking away her best friend.
The first time I tried to kill myself, I was only eight years old. I wrapped a phone cord around my neck until I passed out. My mom found me when it was time for dinner, but she never said anything. A teacher told a school counselor about the bruising on my neck and I was called into the office. I laid it all out. I told her about how sad I was because no one wanted me and I knew it would be better for everyone if I just wasn’t around.
That’s when I started therapy.
After a couple of months in therapy, my mom stopped taking me as the appointments greatly interfered with her work schedule. I got sad again. I learned that pricking myself with needles felt really really good! I would carry safety pins and sewing needles with me at all times. I got into sports, made a few friends and got to spend more and more time away from my house. I managed my depression, by myself, and kept my “pricking” private.
But just as things were turning around for me, my mom decided to move to Pennsylvania to be with some guy I’d never met before.
I was 11 and she moved me across the country to an alien nation. I was more alone than ever. Stranger in a strange land. People made fun of me for my “Texan accent.” I listened to classic rock and everyone there listened to Hip-hop. It was so hard.
I finally managed to make a couple of new friends but the depression grew worse. My safety pins no longer did the trick. I needed something else. I discovered cutting. It felt even better than pricking, and the euphoria lasted far longer. Unfortunately, it was harder to hide. The school nurse saw my cuts and called my mom who then had me committed to a psych ward.
I was 12.
After my release things got even worse. My mom’s new boyfriend was drinking more than ever and he started getting physical with me. In a 6 month period, he broke four of my bones, and fractured two ribs. The school nurse called the authorities. After an “investigation” it was dropped, because I was a “clumsy” child and hurt myself. I started cutting again, this time on my legs, because it was harder to see that way.
From 1998-2000, I tried four more times to kill myself. Finally one of my friends’ mothers (after seeing bruises from my mom’s boyfriend) marched into my house and packed me a bag. She told my mom that until she was ready to be a real mom, I’d be staying with them.
I lived with them for three months. During that time, they paid for my therapy and my medications. She took me shopping and we had girl time. I wasn’t so alone anymore! Then they moved… Her husband’s company was relocated to Florida, and of course I couldn’t go.
My mom finally got her shit together and we moved into a small cottage. She still worked all the time, and I was alone. I did drugs, primarily heroin. I became angry and defiant. I was expelled from three different schools. My cutting got worse.
I was diagnosed with Borderline Personality Disorder.
I met my first husband when I was fifteen and a few months before my seventeenth birthday I found out I was pregnant. By that time I was on a LOT of heavy duty meds. I was drugged constantly, either by pills prescribed to me, or the drugs that I chose to take. I quit everything, cold turkey. No more anti-psychotics, antidepressants, pot, heroin, cocaine, not even a cigarette.
My daughter gave me a reason to live. She saved me.
It’s hard for me now (nine years later) to wear shorts or short sleeved shirts, because my scars are still very visible. My kids haven’t really asked me about them yet, but I’m preparing for the day. I don’t know how to tell them about what I went through. I do know that I can tell them that they have saved me, in so many ways.
I can’t say that I haven’t been through some rough patches. And honestly cutting and suicide still weigh on my mind, but I fight the good battle every day and I will continue to do so. Borderline Personality Disorder doesn’t just go away, so the only thing I can do is work on myself every day. But coming here, and seeing what EVERY ONE OF US goes through, gives me hope.
Every amazing person that posts on this site is my hero, THANK YOU.
Thank you for giving the misfits a place to lay our weary heads.
by Band Back Together | Oct 10, 2010 | Anger, Anxiety, Birth Defects, Birth Trauma, Encephalocele, Fear, Feelings, Generalized Anxiety Disorder Resources, Hope, How To Cope With Post-Traumatic Stress Disorder, Loneliness, Medical Mystery Tour, Neural Tube Defects, NICU, PICU, Post-Traumatic Stress Disorder, Sadness, Stress, Trauma |
Hear my prayer, hear my prayer, hear my prayer, please God, hear my prayer.
I instinctively checked the monitors as I approached my daughter who was sprawled out, getting a sunbath underneath the warmer. Her stats were picture perfect, I noticed, breathing a little more easily, and I made my way slowly to her bedside where she was sleeping peacefully.
I slogged my soggy bottom from the wheelchair onto the rocker that had been shoved into her tiny NICU room; barely even a room, more like a broom closet. She was sandwiched in between two misbehaving (“misbehaving” means that their alarms were constantly blaring) babies who I could hear misbehaving.
Most of the NICU, I noted as I was wheeled past, was full of Feeders and Growers. That’s NICU slang for babies that were, for whatever reason, finishing their gestation outside of the womb. It”s always evoked a pleasant picture of a garden of freshly hatched babies. A Baby Garden.
Of the other babies that I could see cooking away merrily in their incubators, Amelia was the biggest, fattest, and likely the only full- term baby there.
According to her room placement, though, she was the most ill.
Hear my prayer, hear my prayer, hear my prayer, please God, hear my prayer.
My ass firmly planted now onto the chair (I’d had a traumatic vaginal birth mere hours before), I held Amelia’s lone sock as a talisman, hoping it would ward off the Bad News. I was preparing to nurse my daughter again, just waiting for our nurse to come and help me sort through the tangle of wires my daughter was attached to.
It was hard to believe only thirty or so minutes had passed since we’d heard “there’s something sinister on your daughter’s CT scan.”
Our–Amelia’s–nurse walked in and introduced herself to The Daver and I. I was openly weeping, holding onto Mimi’s sock and my iPhone – where the Pranksters live!- as a life preserver. The Daver was pale(r) and stalwart.
I handed off the box of Kleenex that had been pressed onto my lap as we left Mother/Baby and my daughter was brought back to me, hooked up to so many wires that she looked like an electrical outlet. The nurse stood there, kindly talking to us, but not revealing anything.
We still had no idea what was wrong with our daughter. A diagnosis would take weeks. Her life, as far as we knew, hung in the balance.
I begged the nurse to have the house neonatologist visit my daughter as the pediatric neurosurgeon was busily operating on someone’s head somewhere other than the NICU. It’s probably good I didn’t know where he was or I’d have stalked him down and dragged him to my daughter for a diagnosis.
The neonatologist – the one I’d met a lifetime ago in the delivery room, the guy who was always drinking a bottle of something – he came over to Amelia’s “room” and he told us that there was a “bright spot” on Amelia’s CT Scan. He didn’t mean diamonds.
I had no fucking clue what that meant and he didn’t follow it up with much, although I did see his lips move, I couldn’t understand his words.
Guess that’s panic for you.
After the doctor left, the nurse came back in to ask if we’d wanted to see the chaplain; rather to have Amelia meet the chaplain. A thousand times yes.
She was amazing. Just. Incredible. For the next year, it was her words, her warmth and compassion that I kept coming back to. She blessed my daughter. My daughter was blessed.
And she is so, so blessed.
We sat there in the NICU; just the three of us. I couldn’t tell you how long we just sat. Time in the ICU is timeless. 4 AM and 4PM are the same.
Soon enough, I had to go upstairs to change my undergarments and ready myself to see my boys. My sister-in-law was bringing my sons to visit, and I had to put on my Poker Face. Given the raw, chapped and bleeding state of my cheeks, was going to be damn near impossible.
Back in my room, I saw that I’d gotten some flowers and a basket from two of my Pranksters and it made me cry. Then again, I think the package of Saltines that had been ruthlessly thrown on the floor the night before might have made me cry. I wasn’t in a Good Place.
Alex and Ben came in a bit after I’d gotten cleaned up. I held Alex very, very close as Ben showed me some pictures he’d colored of Amelia. Ben knew his sister was sick but Alex (only 22 months old) had no idea what a “sister” was, let alone what being “sick” meant. I held them and faked normal until I got the call from the NICU. Time to nurse the baby.
Talk about being torn.
I cried as I said goodbye to my youngest son–my eldest just wanted to get home and I couldn’t find fault with that–and he cried and yowled “Mooommmmyyy” as he was led away to the elevators that would dump him back into the outside world.
By myself for the first time, I tearfully found my way back to the Secret Place, The Land of Tears. Never have I felt so sick to my stomach in my life. People stared sympathetically as I wept in the elevator, leaning against the walls for support.
I begged God to let her live, even if she was retarded and her IQ was 43 and had to live at home for the rest of her life, just please let my baby girl live. I didn’t care what was wrong with her so long as she made it out alive. I begged God to take me instead. I’d had 28 wonderful years on the planet already, and she was less than 24 hours old. Certainly, I’d give my life to save her in a moment.
Hear my prayer, hear my prayer, hear my prayer. Please God, hear my prayer.
After scrubbing the top 50 layers of skin from my arm and signing a reasonable facsimile of my name, I wobbled to her bedside. There she was, my girl. Perfect stats, thrashing about her isolette, pissed as hell and looking for something to eat.
In the brief time I’d been gone we’d gotten a new nurse.
When she came in to assess my daughter and saw me crying as I nursed my girl, for the first time in a day, someone asked me what was wrong. I explained that I didn’t know if my daughter would live or die. I told her that no one had told us what could be wrong with her, what that bump COULD be, why she was in the NICU, nothing.
She looked pretty aghast that we’d been told nothing, and for the first time, someone tried to reassure us. I remember leaving the NICU several hours later slightly less burdened.
That night, we ordered a pizza and tried to relax in my somber room. We tried to let go of some of The Fear. I didn’t feel much like celebrating anything, so no balloons, no stuffed animals, no signs that I had just given birth decorated my room. I could have been on any floor, in any room in the hospital.
The nurse brought me my Ambien and the NICU called to tell me that they would bring my daughter up to nurse every 2 hours (the NICU runs like clockwork. It’s no wonder that new parents struggle to care for their NICU graduate when they get home). I turned on the sound machine to blast white noise over The Daver’s snores, and waited, trying to fall asleep.
Unsurprisingly to no one, I couldn’t get anywhere close to sleep that night. This made the tally of nights without sleep 3.
I was about to lose it.
Somewhere around 4 AM, after someone had barged into my room to empty the wastebasket, waking me from the lightest of light sleep, I panicked. I’d sent Dave down to the NICU to sit with our daughter in the vain hope that having him at her side would set my mind free.
I was alone. The panic that had been a constant dull buzzing had morphed into something much more sinister and I knew what was about to happen.
Frantically, I paged the nurses station because I knew I needed help. I explained as carefully as I could that I was about to have a panic attack and that I needed my nurse NOW. My nurse came in, I don’t remember what she did, but she didn’t want to call my doctors because they would be rounding in a couple of hours and I could ask for something for my anxiety then.
Fucking bitch.
She told me to “relax” and then left.
I tried to “relax” which was as useful as punching myself in the face with a hammer. It didn’t work. I put a call back into the nurses station, begging; pleading with them to call my doctor. I begged for help.
My last rational thought was to quickly inventory anything in the room with any sort of calming properties. The best I could come up with was a bottle of Scope.
I didn’t end up drinking it, but I did call the NICU and beg Dave to come back up. A nurse passing by my room took pity on me and called my doctor, who prescribed me an Ativan. A swarm of people all happened to come into my room at the same time: a partner in my OB practice who looked terrified by me but discharged me anyway, a nurse with that beautiful pill, a tech to get my vitals, and my husband.
It sounds, in retelling this, that they were all there to help, but it wasn’t really like that. Dave and the nurse were trying to calm me down, but the tech, the doctor and whomever was washing the floor were doing their jobs. With spectacularly bad timing.
Ativan on board now, I was trying to gulp some calming breaths and stave off the panic. They’d turned off the lights, and covered my still-swollen body with fresh sheets, cleaned off the bedside table and turned on the white noise machine.
Finally, I began to relax and beat the panic away, if only slightly. Dave held my hand and told me over and over and over again that my daughter was just fine, she was perfect, she was wonderful, she’d done great overnight, she was beautiful, she was going to be just fine. It was soothing to hear, but what would have been MORE soothing? Having her bassinet next to my bed where it belonged instead of three floors below.
Then (dun, dun, DUN), the absolute worst person to show up did.
Lactation services.
Lactation Services showed up, because they say they’ll come by every day you’re in the hospital with a new baby, and they do. It’s awesome for people who need help because breastfeeding is nowhere NEAR as easy as it looks on those weird Lamaze videos.
(also: why are people in the Lamaze videos always naked?)
But I didn’t need help. And when she showed up and saw me shaking in bed, being held by my husband while the nurse clucked around me like a mother hen, lights off, white noise blaring, she should have excused herself. This is not a debate about breast and bottle feeding, this is about decency. But no, she didn’t get the hint.
No.
She introduced herself perkily and asked me how breastfeeding was going, and through clenched teeth, I answered that it was fine. Kinder than the situation warranted.
I expected this to be enough for her, but no, she followed that up with, “Do you have any concerns about breastfeeding?” Wrong question, dipshit. Time, place, all that.
“You know what?” I snarled, “I’m MUCH MORE concerned that my baby is going to die than if I have proper latch, okay?”
Again, she could have gracefully bid be farewell. But no. She kept on keeping on.
“Well, what about your concerns with BREASTFEEDING?” She asked, just not getting it.
I responded with, “Look, if she’s dead, I’m not going to give a FUCK about colostrum, okay? Please!”
I began to sob heavily again. It was the very real truth that my daughter could die. We all knew it. Nursing her wasn’t going to help an encephalocele.
Dave told her to get the fuck out of our room.
Finally, with a DO NOT DISTURB sign on my door, I slept for a few hours.
I awoke when The Daver bounded in and announced, “the neurosurgeon ordered an MRI! And he’s really nice! And not concerned! He thinks it’s an encephalocele! It’s a piece of brain or something that’s herniated out! We can go home after the MRI! And follow up with the results next week! Oh, I wish you’d met him. He was so, so nice.”
And just like that, we went from critical to discharged in less than 36 hours.
by Band Back Together | Oct 7, 2010 | Anxiety Disorders, Coping With Depression, How To Cope With A Suicide, How To Help With Low Self-Esteem, Major Depressive Disorder, Sadness, Self Loathing, Self-Esteem, Suicide |
I’ve battled depression since I was a teen. I didn’t know what it was until late into my twenties. I just felt as if something was wrong with me or like I was a bad person.
I’ve been on medication for the last year. It was working. Working really well. My mood had greatly improved. I was no longer hearing a baby cry random times of the day. My anxiety had lessened. But the last couple of months it’s stopped working. I thought I was just in a funk. It happens from time to time. When I’m in a funk, I feel down and I lose all interest in housework, my kids, my husband, and my life in general. The one thing that keeps me going is school. I love going to school. I love doing the homework. It gives me purpose.
I started to feel down this summer.
I don’t have any friends. People say “you must have some friends,” but the truth is: I haven’t had a friend in over 10 years. When I met my husband it was wonderful. He was my friend and that was all I needed. Truthfully, I think I need more friends. I need someone to connect with. Someone to talk to besides him. I hate this feeling of being alone. I know my anxiety keeps me from talking to people and I need to work on it.
I was in therapy the first seven months that I was taking my medication. My counselor thought I was doing wonderfully. I wanted to be doing wonderfully. But the truth is, I was still having anxiety. Anxiety about leaving the house. About meeting new people. About about being a good enough parent or spouse.
I’m back to the dark place. I’m having thoughts of suicide again. Sometimes, I think sometimes everyone would be better off without me. I’ll think of how easy it would be to wreck my car while I’m driving to school so everyone would just think it was an accident.
I know I need to change my meds again. I need to call and set an appointment up. But I have anxiety about that, too. I don’t want to admit I am a failure. That once again I am not okay. And I worry, what if they don’t believe me? What if I am just overreacting?
What if I get in to see the doctor and I don’t have enough courage to say what I’ve said here?
(ed note: why don’t you bring this post in with you if you’re afraid you can’t talk about it? Any doctor will take you seriously.
Much, much love. Please remember that suicide is never, ever the answer. The Dark Place is a place that many of us have been before. There is hope.
If you are seriously considering suicide, this is the phone number for the National Suicide Prevention Hotline:
1-800-273-8255
Please know that you are loved. And you are never alone.)
by Band Back Together | Oct 7, 2010 | Anger, Anxiety, Coping With Divorce, Divorce, Loneliness, Marriage Problems, Sadness, Shame |
It was August third, 2001. A Friday. It was hotter than Hell outside, and it had been a long week. We’d talked about what we should do that night, and going out to a movie seemed like a good idea. I made dinner. We ate. You went upstairs to take a quick shower: “to wash off the day,” you said. I lay on the couch under the ceiling fan, dozing, and waiting for you.
When you came downstairs, I stirred. You smelled clean, ready to go. You sat on the loveseat across from me and said, “I need to tell you something.”
The rest is a blur, really.
I remember hearing the words, “I’ve been thinking about leaving” come out of your mouth and hit my ears like boiling lead.
I remember simultaneously wanting to vomit, hit you and run away.
I remember screaming, “NO! This isn’t high school! You can’t just ‘break up’ with me!! We took vows! In front of our friends! In front of our parents!”
I remember having a hard time catching my breath and my top lip swelling like it does when I cry really hard.
You were cold, despite the August heat. Firm. Unswayable. I wonder now how many times you’d practiced telling me that you were done. I wonder if you rehearsed in the shower and in the bathroom mirror just before you came down the stairs: “I’m leaving. No, I’m thinking about leaving. Yeah, that sounds better.”
I ended up begging you desperately: “Anything. I’ll do anything you want, just please don’t leave me,” I said. But your heart was closed. You were already gone.
The rest of the month was almost unbearable. The heat. The shame of explaining what was going on. The feeling of utter abandonment and failure. Hearing you move around upstairs in our bedroom while I tried unsuccessfully to sleep in the guest room below. Moving through the days numb, dreading my return home from work to see your things slowly leaving in boxes, headed for your new apartment. Crying on the phone to my mother and my friends about how you’d changed my chemistry and how there was no fucking way I was going to be able to go on without you.
And then it was September, and—just like that—you and the dog were gone.
I moved into a shitty eighties town-home that I loathed. My last living grandparent died, and I felt nothing. The Twin Towers fell, and I began to fall apart. I had one-night stands. I drank alone—something I’d never done before. And when I’d start to get disgusted with myself, I’d blame you. If you just hadn’t left me, none of this horrible shit would be happening to me. I’d be at home with you and the cats and the dog, hanging out. Being your wife. But you didn’t want that, and everything had turned to shit.
Somehow, I woke up each day and lived my life. By April, I’d lost forty pounds, dyed my hair aubergine and pink, and gotten a promotion at work. I began dating. Then one day I looked at the calendar, and more than a year had passed.
I was still alive.
Life was still happening, even though you weren’t a part of it anymore. Big, important shit was going on, and it was no longer my first impulse to pick up the phone, call you to tell you about it. And one day, I woke up, and loneliness and abandonment were not the first things I felt.
Letting go of my anger toward you was a like digging to China with a teaspoon in the desert sun. I hated you and wanted bad things to happen to you. I don’t anymore. I survived you, and I want to thank you. You leaving taught me how strong I am. You showed me how deeply I am loved and supported by my friends and family. I’d always suspected as much, but when you left, I became more confident of that strength and love than ever before, which set the foundation for the biggest challenges, the most terrifying and thrilling adventures and deepest love of my life.
by Band Back Together | Oct 4, 2010 | Cancer and Neoplasia, Family, Grief, Help For Grief And Grieving, Loss, Parent Loss, Sadness, Trauma |
On April 23, 2010 at 4:10 pm, I learned that my Daddy had a brain tumor. He had been having some trouble with the right side of his body and that had led him to the doctor. Many tests later, the doctors discovered the tumor. At that time we were very optimistic that the tumor was benign and that it could be removed surgically. The next week, on Wednesday, April 28, 2010 he went into surgery.
And our whole world changed.
After his brain surgery there were words thrown around like “oncologist,” “chemotherapy” and “radiation.” Phase III-IV Glioblastoma. Ugly words. He was in the ICU for a few days but after he weaned off the vent from surgery he was ready to “Get ‘R Done.”
And get ‘r done he did. He moved from the ICU, to the Neuro Acute floor to the rehab floor. He was told by his physical and occupational therapists that he was the hardest worker they had ever seen. Medically, he shouldn’t have gained his ability to walk and use his right arm again after his surgery. We were told with a glioblastoma tumor that the longest he had was 5 years.
Everyone grabbed on to the *5 years* part. 5 years? That’s plenty of time to get bucket list things done. Plenty of time to play with the grandkids, time to finish up projects and plenty of time to say goodbye.
Little did we know how fast things would go.
July 4, 2010 – my Mama called me and told me to “get to the hospital.”
“Are you for real? Like this is a for-real get to the hospital thing?” I asked.
“Yes,” she replied.
He had been admitted a week before with odd swelling in his head. Staph infection. Brain surgery on June 29th AND June 30th. TWO DAYS IN A ROW. Of brain surgery. On July 2nd they talked about him going home and how his infusion antibiotics would work. On July 4th he was no longer going home but Home with a capital H. Wait…what?
His heart rate was high and his blood pressure was very very low. His kidneys were no longer functioning.
And then? We waited. And we prayed. We prayed for no more pain. But no more pain? Meant no more Daddy.
He held on until the early morning hours of July 13th. I received a phone call at 1:45 am and was at the hospital by 1:55. My sister looked at me simply and said, “he’s gone.”
He’s GONE. My rock. My strong Daddy. Gone.
It’s been not even three months since that day. Most days I would say I’m okay. Some days I’m simply not. The physical pain of grief sneaks up on me and overtakes my body. The anti-depressants and anti-anxiety meds don’t seem to work at all.
I miss him terribly. I have no motivation. I rearranged my bedroom yesterday and had to sit down and sob. I’m 32-years old with a daughter of my own and a house. But moving furniture in a house that my Daddy was so entrenched in crushes me. He is NOT HERE. He is not going to complete my “Daddy Do” list. He will not see my little girl grow up. He will not see *me* grow up.
You see…my wonderful Mama and Daddy saved me from a bad marriage. They let us live with them for four years. I got to live with my parents as an adult – I got to know them as my friends. My Daddy was my rock through my divorce, through losing my job in early 2010 AND through his illness. He was our family rock when my nephew was diagnosed with leukemia at the age of 7. He gave me advice on everything from what to wear to an interview to how to paint my kitchen. And now? He’s just gone.
I miss him.
