Once upon a time, I had a narcissism blog I never published. Mostly because it had a lame name and most of the posts were responses I had written on a message board where I was once a member. When the service was shutting down, I wanted to keep some of the things I had written, so I put them in the draft heap. There they sat.
See, to me blogging isn’t just a medium to get ‘my story’ out. While there’s a certain catharsis to that, it’s more the conversation and feedback I get from you guys, the readers, that I treasure most. There’s nothing more validating and healing than that. It’s where we learn that we’re not alone and the tricks our Narcissists used to make us believe they were so special and unique fall apart. We all have stories to tell, and countless nights I’d stay up way too late reading, commenting, and nodding my head in agreement.
There’s so much I don’t have to explain to you. You already get it.
Years ago, all I knew was that my parents weren’t normal. My mother was a totalitarian dictator who thought that somehow my life belonged to her. When she tried to ‘punish’ me for not adhering to her life plan, my husband stepped in and told her off. He gave me a choice…either it was my family or my marriage. In retrospect I don’t blame him. My mother is an absolute tyrant, enabled by my narcissistic father who fears her. But honestly, at the time I was scared to death. I understood that in going cutting all contact with my parents, it would also be with the rest of my family as well.
My mother would make sure of that. My husband did what was necessary.
What I couldn’t do myself.
What saved my sanity was a little tiny blurb on the sidebar of a crafting blog. It was a link to information about Narcissistic Personality Disorder (NPD). I hit it out of curiosity, and spent the whole night, and many nights thereafter, learning and researching. I finally had a term I could plug into a search engine that explained my mother’s behavior.
After 30 years, I learned it wasn’t my fault.
In our ‘real life’ exchanges, narcissism is like a dirty little secret. To explain it, most people can’t comprehend how a parent can be so predatory. They can comprehend it only on a ‘it-happens-to-other-people-they-don’t-know’ level, but not as it happening to someone in front of them. And certainly not to the kids that lived on the nicest house on the street, or the ones who went to church every Sunday. No, it’s much easier to believe the mother who complains about her ungrateful children who keep her grandchildren from her. It’s so believable after all, because they live in such a nice house and go to church every Sunday. The hypocrisy of it all leaves us silenced.
I don’t know the person who wrote the blog I happened across, but I am forever grateful to her. It was a small voice in a barren land of silence. It led to exchanges with others seeking the same healing we seek. A virtual hug of sorts, where we lean and learn from each other. We don’t share to play the victim card, we share to heal. We feel compelled to write for our own healing, to comprehend our past and somehow move forward from it. We lend our listening ears through our eyes and offer our experience to help others.
It’s the people that have brought us to this place out of the FOG (fear, obligation and guilt), not the countless psychology articles we’ve read. We’re used to feeling alone and afraid. Together, we’re a beacon of sanity. It’s what our narcissists feared the most: people in our lives that can positively influence us. They sought to destroy any of our relationships, but didn’t count on the rallying cry of a rag-tag unit of strangers on the internet. Blogging is powerful because it’s real.
Real people writing truth the only way they know how: in their life’s experiences.
It’s a far cry from the overly produced stage we grew up in.
Last year, Stand Up to Cancer asked me if i remembered what i was doing on september 11th, 2001. I did. I still do. This is what i wrote:
su2c asked on twitter if we remembered what we were doing eight years ago on September 11th, 2001. we were living in manhattan. i was on my way to work. the streets were filled with frantic police officers. it was horribly loud, as manhattan so reliably is, but you could feel an eerie silence beginning to settle over the city.
there was a mass exodus on foot. people fled the city via every bridge possible. the subways and trains weren’t in service. grand central was locked down because of the bomb threat. our building was locked down, too. a cell phone signal near impossible to come by.
nuggetdaddy was working in new jersey then and i was finally able to get a hold of him. we decided i would take the first train out of the city and he would pick me up wherever we could both get to. i made it on the first train out of grand central. it was sweltering. the train filled with an acrid stench. most passengers were covered in a heavy white dust; most in more than their fair share of blood.
it didn’t matter where the train was going, people just got on in hopes of making it out of the city. the train stopped at every single station en route. it took forever.
nuggetdaddy picked me up at the fleetwood stop and we decided to try to drive back into the city. we had pets and friends to check on. family and friends desperate to hear our voices. we were finally able to make it back in over some tiny bridge in the bronx.
by now the city was silent. there were no planes in the air, no people on the streets. when we woke up the next morning the wind had changed direction. the stench was unbearable. we stayed in the apartment all weekend, happy to be alive and at home with the pets and dr. roommate.
so, stand up to cancer, there’s your answer.
and speaking of stand up to cancer, did you watch the telecast last night? did you donate? did you help find a cure? did you save lives? did you stand up to cancer?
Anyone who has been through IVF or any type of infertility treatments can vouch for how isolating it is. The time period where I spent all of my energy and focus on trying to conceive were the most lonely times of my life. Sure, yes, you’re with a partner, but as only woman knows, creating life is entirely a maternal thing.
I could sit here and tell you my story, which would take all day. And believe me, I LOVE to talk. But to spare you, I’ll give you the short version.:
I went through approximately 6 1/2 years of infertility, on and off. It killed my first marriage, and with my second marriage, it definitely took its toll, but we had our limits. Our last attempt was a Frozen Embryo Transfer (or FET for you newbs or n00bs if you prefer leet speak). We both decided, for our mental health and our marriage, that this was it. If it didn’t work, we were going to become the crazy animal people in our neighborhood. There probably would have been weird things like ferrets and tegus.
But it worked. And we were…shocked. That’s the thing about fertility treatments, when they actually work, you feel like you pulled off a bank heist.
Cut to four years later, and we now have two healthy children, one, who was a big old natural surprise. We call her the Matlock baby. Because we joke that we had ten minutes before Matlock started, and well, you get the rest.
But my point to this is, that going through it, I felt…depression doesn’t even begin to cover it. The first time around, I felt as if I had this blanket of sadness wrapped around me, that I couldn’t take off. Ever. The second time around, I found solace in the internet. It wasn’t so taboo! I had people I could talk to. Blogs I could read. But it taught me two things:
One, you are not alone. Not by a long shot.
Approximately 7.5 [million] women are affected by infertility.
Two, use your voice. Educate.
I feel no embarrassment or shame in telling people that we had a hard time conceiving, or that my son was conceived via In-Vitro Fertilization. Was I ashamed that my body failed me? Yes, for a while, but it wasn’t my fault. So I tell people. I talk about it, and 70-80% of the time, someone will chime in, “ME TOO!” It opens doors. It helps us to find others like us. And it also helps to educate people that don’t understand what its like. When we were going through treatment, a good friend of mine was so interested in the process. She would watch me inject medication. She would ask questions. Some people will always be ignorant, but by and large, people are just uneducated about the topic.
As my work day began to wind down on Friday, I got antsy as I looked forward to Saturday’s big duck hunt with my son, Bryan. My excitement level was high as it’s always a great time getting my boy into the woods and watching him learn the ways of the wild. We also have the opportunity to put some tasty treats in the freezer.
I called Bryan into school on Friday and took him to work with me as we were hunting just a few miles from work. I work fifty miles from home and it’s senseless to make the the long drive home just to come right back Saturday. We decided to stay with my in-laws -the best a man could ask for- instead, which is only twenty miles away.
Around 10 PM, after a bit of good conversation and some TV at my in-laws, my father in-law hit the sack. My son and I figured it was probably a good idea too, as our 3:30 am wake up call would be upon us shortly. Bryan was out in no time, but no sooner had my head hit the pillow, my mind started reeling. I have no idea why, but it was going into overdrive at an alarming rate, even as I did my best to fight it.
I thought it was just the excitement of the next day’s events and would wear off soon, but wow, was I wrong.
In a matter of minutes I was up pacing through the house, my mouth dry, my breaths rapid. My mind could not concentrate on any one thing.
I was having a panic attack and my medications were 75 miles away. That’s right, I forgot them at home. I had been doing great lately, and it never really crossed my mind to bring them along just in case.
Well here I was in the midst of a full-blown panic and had no idea what to do. I picked up the phone and called my wife, knowing full well that she would be asleep because it was now approaching 11:30 and she never stays up that late.
She was so wonderful and gave me time to chat and tried to relieve my tensions a bit. I didn’t keep her on the phone long but was so appreciative of her willingness to even allow me to call that late without getting pissed off. Her talk and encouragement was a bit helpful, but I was still contemplating making the hour-plus drive home in the middle of the night just to get my medication.
Then it dawned on me. My friend Luke was probably going out somewhere for the evening since his wife was out of town, so maybe I could get in touch with him.
I called Luke’s cell phone but there was no answer. I left a brief message explaining my dilemma and asked him to call me back. About ten minutes later the phone rang. I figured it was my wife just checking up on me, but it was Luke.
He was almost back in town from a night out and would be more than happy to have me over for awhile, even though it was midnight and he had to work the next day. I was in such panicked state that it took me two tries to get into the car and drive the three miles to his house.
Every time I’d get into the car, I’d think: I will never make it over there and I couldn’t breathe. The world felt like it was going to collapse around me if I sat in that drivers seat too long, so I’d pull back into the in-law’s driveway. I would get out, walk back into the house, then turn right back around and get into the car.
Finally, I made it to Luke’s house, but he wasn’t there. I tried to get out of the car and wait for him but my head wouldn’t leave me alone. My throat was tightening and it seemed like my airway was going to close any minute if I didn’t do something drastic. I knew this was all in my mind at the time and yet I had no control.
That thought alone made it worse. I jumped back in my car to head back to the in-laws. Just as I got to the first stop at the end of Luke’s road, he pulled into the road and waved me back.
I followed him to his house and we sat outside for awhile before I worked up the nerve to go inside without feeling caged in. A few minutes was all I could handle indoors…the heat, the lack of oxygen, the walls…I had to get out.
Luke was more than willing to follow. I’m not much of a drinker, but a 22oz hard lemonade seemed like it might help slow me down a bit. I slammed that while Luke sipped on one himself. Usually one of those is enough to put me on the couch for the evening! But this was no ordinary evening and no ordinary panic attack.
I have only had an attack this severe a couple of times and I hated it. Before I knew it, I had Luke out waking down the dirt drive at 2:00 am, and he did it with no complaints. We wandered back to the house and went inside for a little more chit-chat.
It was now close to 3:00 am and I could see that Luke was fading fast. The good thing was that it would soon be time to wake my son for his duck hunt, and my mind was starting to shift into a lower gear in preparation for the day of hunting. I needed to keep myself in check for the safety of my son.
The fog in my head slowly began to lift as I pulled into my in-laws driveway at 3:10 am. I was actually able to chill long enough to take a shower. When I came out of the shower, I felt as if the world had been lifted from my shoulders. My wonderful son was sleeping peacefully on a futon mattress on Grandma’s floor, oblivious to the hell I’d been through over the past 4 hours. I was tired but rejuvenated with a clear mind.
I took my son on the hunt. It was a wonderful morning. Warm, calm, and the mosquitoes didn’t even bother me. Ducks were flying and my son was doing pretty good hitting them. I had a wonderful day, and I must say that it was due to the patience and understanding of my wonderful wife and my friend Luke.
Luke is the true definition of a friend. I have known Luke for the better part of thirty years and I would do anything for him. He is more like a brother to me than a friend. I would be hard pressed to find another person on this planet that would be willing to sacrifice a night of sleep just to help a guy through a hard time.
Luke is a true friend, and true friends are hard to come by. He helped me through a night of turmoil that could have led to tragedy if I had not had him to talk to and keep my mind off the senseless ramblings. He was there for me and I am eternally grateful.
Have you ever been swimming in the ocean and wondered what was lurking underneath you…eying your body…sizing you up to see if you would make a tasty meal? That’s what I call the breast cancer “shark attack syndrome.”
I liken the physical and psychological impact of a double mastectomy to a shark attack. It happens quickly and violently. In a matter of minutes you are struck hard and parts of your body are carried away into a vast ocean by a predator much bigger than you. It isn’t personal. The attack is random. You are left alive but amputated–stunned and with a life long fear of the water.
People who know about my diagnosis gawked at my chest like an accident scene on the freeway. Family, friends…they can’t help themselves from looking. I chose not to have reconstruction due to the lengthy recovery…an infant and a toddler don’t lend themselves to extensive plastic surgery. My daughter was 8 months old and my son was 3 years when I had the surgery, not exactly the age where I could be out of commission.
I don’t wear the prosthetics I bought…they constantly remind me I am amputated, and the first time I took yoga one of them fell out! My beloved yoga teacher said, “Just take them out, honey.” I never looked back.
Rough Waters
The journey through a breast cancer diagnosis with two small children was so very hard. I searched for the words to tell my son…
”The Doctor found a lump in mommy’s breast that isn’t good for her body and he has to take it out.”
Thanks to my son’s school and my amazing husband, we got him through it…but he STILL talks about it and recently asked, “Mommy, why don’t you have boobies?” At that point I realized my beautiful daughter would grow up never knowing her mother’s body to look “normal.” She only knows the scars. That is the day my heart broke forever. As if depression didn’t make me feel inadequate enough, now I felt like a carnie act. Come on down and meet the lady who was attacked by sharks!
I will never truly recover from knowing what I look like and what I represent to my children. But I am here to be their mom and truly thankful. Thank god I had it checked. The mammogram showed no abnormalities! If I had just had the mammogram I would have faced a diagnosis of invasive cancer and perhaps required chemotherapy or radiation. As of now, they tell me I am “cured.”
And I found it myself.
Not a minute in the day goes by that I don’t worry that it will return and take me from my children. Every woman who has had breast cancer knows exactly what I’m talking about. Every cold, every headache, every stiff muscle, still scares me into thinking I am still out there in that ocean—defenseless to another shark attack. What part of my body will they take next time?
I saw my mother lose her breast early in life. The same month I was diagnosed, she was diagnosed with Stage IV colo-rectal cancer. I watched the sharks circle her for six years, taking feet of colon, and eventually her life.
But it isn’t a pity party. I am glad I got cancer. It was a hell of a lot easier to deal with than postpartum depression, than life-long depression, than the cancer that is depression. And it got me immediately in touch with impermanence, and subsequently, my spiritual practice.
If I were thrown back into the dark ocean again and a recurrence reared it’s ugly head, I have my faith to thank for curing me of my fear of sharks.
When I was 15, I had terrible ovarian cysts so my doctor put me on birth control. Not that I needed it – I wasn’t sexually active. It was great. No cysts. When I was about 19, I decided to go off the pill. I was taking them but didn’t need them as I still wasn’t sexually active. I knew it couldn’t be great for me so I just stopped taking them.
And then, I never got another period.
After about a year, I went back to my gynecologist and asked about it, whether it was strange or not. He said it WAS very strange and that it did happen occasionally. I may never get another period and may, in fact, be infertile. He told me this very solemnly and with great empathy. He was a good man.
But me, well, uh, I was ECSTATIC! Infertile? Please. Thank you, god. I was never the kid who planned the wedding and the babies and the names. I had three younger siblings I didn’t really care anything about (now I do). I loved to party and this was before the HIV/AIDS epidemic. (YEAH..I know, I said it. This was mid to late 70′s. Figure out how old I am)
I was trying to be an actor and was living a very vagabondish life. I worked about 10 different jobs so I could live and enjoy my life and sexuality. And then one day I felt different. I went to the clinic and yes, I was pregnant. This was after not using birth control for 6 or 7 years. It was a very easy decision for me to make and I had an abortion. I have never regretted that decision.
I lived my life. I used birth control (not the pill, the sponge… remember the Seinfeld episode when Elaine hoards them?)
And then I met Tom. We were friends, fell in love and got married. I realized that, in fact, I did want to have a family with him and that it was going to be wonderful. My life and expectations were turned upside down by the love I felt for Tom and it was so exciting and fun. We were older and after a year of trying, we started dealing with infertility. I was fine. Tom’s motility was low. No boxers or hot tubs. My eggs were a little old. We did inseminations. (Did any of you ever ALMOST make love in the quiet room with your legs in stirrups? To make it more personal? I KNOW you did!)
About a year later, during an insemination break, I became pregnant. There were little lines on the test and it was so exciting! We told everyone. It was amazing. We went to check in and have an ultrasound and hear the heartbeat and well, you all know… there wasn’t one. It was ectopic. I sobbed as they took me in for my D&C because I wanted this baby that I never wanted. This was a little “me and Tom.” It was heartbreaking for both of us.
The next step was IVF. I became a science experiment. I’m not sure there are enough words to convey how much I hated the process. I was going crazy from the hormones, the daily shots of Lupron and the shots Tom gave me (though, I think he got a little pleasure from it). I had eggs harvested and there were a lot. Not many were viable though. There were enough for a transfer and enough to freeze for the next baby.
So we followed protocol and did everything right. There was no baby. It was heartbreaking. Because for the faintest minute, they thought there was a baby… but no, there wasn’t.
We did it once. That’s all we needed. I looked at Tom and said I didn’t want to be a science experiment anymore. I wanted to be a mom and I was already 38 years old. We moved on to adoption. We were together on this decision. He didn’t need a clone and neither did I.
I am so grateful I was with Tom because someone else may not have seen it that way. And that would have been OK but a problem for us. And with Tom it was not a problem. We moved together to the adoption process and that will be my next post.
su2c asked on twitter if we remembered what we were doing eight years ago on September 11th, 2001. we were living in manhattan. i was on my way to work. the streets were filled with frantic police officers. it was horribly loud, as manhattan so reliably is, but you could feel an eerie silence beginning to settle over the city.