I’m still seeing the therapist for Post Traumatic Stress Disorder, but I am also seeing a Crystal therapist as well, every other week. (I can’t even begin to explain this – but if you’re curious – Google Crystal Sessions, Alexander Method, Natural Shock Healing or dark magic…er, scratch that…that won’t help.)
Unfortunately, there are still days when I can tell it isn’t gone. I’m not sure what I thought, but I think it was something like ”This Shit Will Be Over By Summer, RIGHT?”
Sometimes something as simple as a favorite TV show – (Brothers & Sisters to be exact) can send me into a full-blown anxiety attack – and push the reality of a tragedy back into my life as fast as I had swept it under the rug. And don’t underestimate me, I am pretty damn good as pushing dirt under rugs. Just ask my husband…
::Can I just take a slick city minute to say to the writers of Brothers & Sisters…whoa. I think you got your point across. As I stood on my back patio gasping for air and bawling my eyes out, I realized you people need to find hobbies. Something other than thinking of ways to make innocent, crazy, stressed-out TV addicts freak the hell out. ::steps off my soapbox::
Back to my point.
I am happy to report that there are days that go by where I feel like life is back to normal. There are moments in time where I feel myself forgetting about the fear.
Here recently, I’ve had several people ask what exactly my “bad days” look like? So, I thought I’d take a moment and explain what it feels like to always think the bottom is about to fall out.
Because really, that’s what it boils down to for me. I have days where I can pretend like bad things happen to other people. But, those days creep in, where I can’t help but think that too much time has passed between “bad things happening to me” and I am due.
There really is only one moment of every.single.day (approximatey 7:50 a.m. Nice way to start the day, eh?) that really has be stumped.
I pull into the school parking lot and I feel my heart begin to beat just a tad bit faster…and then my mind starts to race…and then my breaths become faster…and I pretend to be cool as a cucumber (whatever that means) and say goodbye to my son, I kiss him, I hug him and I watch him as he walks through the front doors. Slowly, I pull out of the drop off lane and I pull into a parking spot.
There – every single day, I have a brief panic attack. Without fail.
I am used to it now. Really, I am.
The tears only last about a minute or two. I regroup, adjust my eyeliner and go about my business. Ready to take on the world. It’s not as bad as it used to be. But, the thoughts are still there. I still think,
”Was that the last time I will ever kiss his warm cheek? “
“Was that the last time I ever see him alive?”
“Will someone come into the school today with a gun? Is this the day?”
And then I tell myself that I can’t let this fear control me. I can’t let Satan in my life, in my thoughts & in my heart. I push my fears aside every morning and I stop and thank God that I just watched my happy, healthy son, walk into school on two legs, with some pep in his step. I thank my lucky stars. And I continue my commute.
And even though this still happens every morning, the effect it has on me is shortening. And I know that this isn’t going to define me, control me or even cross my mind in the future. I may never be the same as I was prior to July 19, 2009, and that’s okay. I would dare to say that I am not supposed to be.
But, I can tell you that PTSD may linger with me the rest of my life, but it will not present itself every day. I know that. And that gives me hope.
I don’t think anyone knows the isolation that infertility brings with it unless they’ve lived it. Sure, we have several friends that we share all this with. Or rather, I do. I don’t know that my husband, Brian, has really told anyone what we’re going through. If you know him in real life, you know that he is silent about things that bother him. If you don’t know him, I cannot stress how quiet and private he is. But most of my friends know what we’re going through, and a few of our family members. Most people are unfailingly supportive, even if they don’t understand a bit of what’s going on.
Unfortunately, that doesn’t make it any less lonely, and doesn’t make me feel like less of a freak. Save your breath — rationally I know I’m not a freak. But that doesn’t keep me from feeling that way. And no amount of support from my very fertile friends makes it less lonely. Infertile friends — we are blessed with a few of those, too, though I wish they didn’t have to go through it either — make it even easier.
But when I’m in that exam room, having my lady bits poked and mishandled by the doctor and his ultrasound wand of pain, I am alone. When the Clomid headache sets in and I can’t even think straight, no one else is going to deal with that pain for me. When we schedule our love life, it’s just the two of us. When my cycle abruptly ends with the inevitable period, it’s just me.
That’s isolation.
That’s infertility.
But what really shocks me is the unexpected ways that infertility continually separates us from our family and friends. While it colors how I look at the world, it also colors how people look at me.
Between daycare and lessons, I come into contact with about 11 or 12 families each week. I have at least one doctor’s appointment each month and sometimes more, since I’m always having blood work and such, I need to let the affected parties know that either Brian will be here with the Munchkin Coalition, or that I’ll be late for lessons. None of them get too nosy or pry into my personal life, and all of them offer their support quietly, discreetly, and in a very sincere manner.
Except for one person. Who feels the need to tell me (again and again and again) the three stories she knows about other people suffering through IF, and how easy it was for her to get pregnant with her multiple children, and how she just can’t imagine how horrible it must be. And then, she says it…. “I am SO glad I didn’t have to do any of that! I just got pregnant so easily!” And laughs.
I’m not kidding you. She laughs at the misery of others and her amazing good fortune. One of these days I’m either going to punch her, or tell her what I’m thinking. Which is “Me, too. I’m glad you never had to go through any of this, because you couldn’t take it.” Nothing says “You’re a Freak” like that kind of statement.
My next example is a conversation I had with a family member who has expressed absolutely zero interest in our fertility situation until a recent phone call. Which, I have to say, was lovely and all that, but also really strange after two years of completely ignoring the situation.
It’s hard to catch someone up after two years of constant flux and ordeal. She then said “I wasn’t sure if you wanted to talk about it or not.” Um…yeah. I have a blog about this, ya’ll. It’s pretty much all I do talk about, it seems. Asking how it’s going makes me feel like you care, like you’re interested, like I’m not alone. The only reason I don’t talk about it 24/7/365 is because I know how that would annoy people.
So instead I wait to be asked, and feel separated from my family.
Finally, a very sweet friend recently made a comment that showed me just how much people must view me through what I’ve come to think of as The Infertility Filter. After all, it doesn’t just color how I see the world, but also how the world sees me.
We were talking about her family, and her new niece. She related an adorable story about her nephews as well. We rarely get to see them, so it was neat to catch up and think of them as little people and not as the babies we last saw. We parted ways and about 10 minutes later my phone beeped. She texted to apologize for her story, because she thought the content might have been inconsiderate and hurtful given our infertile state.
Granted, after I spent the next ten minutes really thinking about it I was able to see how someone could have taken offense or been hurt, given the actual content of the story she shared. If they were seriously sensitive and felt the world revolved around them. I, however, love to hear stories about other people’s kids — I spend 5 days a week caring for other people’s children, right?
Even though I was completely un-offended and hadn’t spared it a second thought until she texted, I appreciated her concern.
But I also had to wonder — who else is censoring what they say because I can’t get pregnant? Are we the topic of conversation when we’re not there? Are we your dinner conversation? How often are we referred to as “Brian and Andrea. They can’t get pregnant.” Or “this couple we know who can’t have a baby”.
I hate being pigeon-holed anyway, but to be ostracized by perfectly well-meaning people is kind of a bummer in and of itself. How many stories are we not hearing because someone is worried about our reaction or our feelings? Sure, it’s thoughtful. But it’s also terribly isolating.
A lot of the time, people with infertility isolate themselves. We really don’t want to make people uncomfortable or uneasy. We don’t want to be seen as abnormal, so we keep our problems hidden away. We don’t put our needs and concerns on the prayer list at church. We don’t ask friends to accompany us to the doctor for moral support (at least not after the first time you turn us down).
We don’t offer information, and we are crushed when you don’t ask. Quietly crushed. It’s so terribly easy to believe that we are all alone in our struggles, especially for couples who don’t know any other infertile couples. The longer we’re infertile, the more it builds up, and the lonelier we become.
That’s one reason I blog. Granted, I started blogging before we were “trying”, and I’ll hopefully still be blogging long after we have children, so it’s not technically an “infertility blog”. And yet it is.
I found that when we really started having trouble getting pregnant a lot of my information, ideas, inspiration, and encouragement came from the blogging world. I learned more from other infertile people than from doctors or journal articles. I want to give back to that. I want to be a source of information and encouragement to other infertiles out there who have just received a diagnosis, or just finished their fifth failed IUI, or who have discovered that Clomid doesn’t get everybody pregnant right off the bat.
So I make it a point to live our story out loud and proud. I won’t act ashamed of my infertility, and I won’t pretend it doesn’t exist to make someone else comfortable. I won’t be silent about something that affects so many people, and I won’t make anyone else feel embarrassed either by their fertility or their ability to pop out kids like it’s easier than breathing.
If you got here through a search, you are not alone. Pull up a seat, pop open a bottle of water (no booze in the infertile zone except CD 1-4), and share your stories. Ask questions.
If I can’t answer, maybe someone else can. Let’s learn from each other, and lift each other up. Need prayer? You got it. Need to gripe about how much this sucks, how cold your doctor’s hands are, or how much you really hate scheduled nookie? Go for it — we’re listening.
You are not alone, you don’t have to be isolated, and you are okay.
If we are all determined to do this right out loud, infertility does not have to separate us from them.
I’ve never talked about it…to anyone but a therapist. And, I have never said anything on my own blog about it. But personally, I think a blog that allows you to declare you are “Not Mommy of the Year” is the place to do it, right?
You see, I allowed my son – my first born & my pride & joy, ride and sometimes even drive a golf cart. That cart – it almost took his life.
I’ll pause here and let that sink in for a moment…
I knowingly allowed my son to operate and ride in a motorized vehicle that was not a) safe b) age appropriate or c) SAFE. What kind of mom does that?
Our children rely on us for many things. But one of the key things they rely on us for is safety. And, if they can’t rely on us, who can they rely on?
What kind of mother looks the other way as grandpa and son drive by (at a speed that is slightly faster than I would prefer for myself) in a golf cart, of all things.
And, this wasn’t your average golf cart. It was as suped up machine, with larger than normal wheels and a tow package. And my son, he isn’t just a normal son. He’s MY son.
I have cried a thousand tears. And made a thousand promises. And worried years of my life away since July 19. I have spent countless hours lying in bed with him, rubbing his hair and praying softly as he slept.
I have prayed for forgiveness. For healing. For peace.
And yet, I still don’t feel like I have paid for my sins.
I can still remember hearing the helicopter circle overhead and thinking – I could have prevented this. Let me be the first to tell you – there is nothing more painful to your heart than to think that you could have prevented your own child’s pain. his bloodshed. his near death.
And you didn’t.
I failed him.
I failed him in my most important duty as a mother. I failed to protect him.
This is the single most prominent factor holding me back from healing. And I know that. And, it is something I continue to work on.
Today, I decided to go back on anti-depressants. This is a battle I’ve waged for years; do I really need them, do they really help, are the side effects worth it, am I just a loser who can’t deal with life’s vagaries.
Last weekend I drafted a post that contained the line, I feel like a bucket brimming with tears, and the slightest, inevitable tremble of the earth makes them overflow. It’s an inelegant metaphor, but worse, it’s a pretty clear symptom that things are not going well. It’s partly a bad birthday, partly the break-up, partly some harsh health news. It’s mostly, if I’m honest, cyclical, recurrent, my noonday demon.
“Grief is depression in proportion to circumstance; depression is grief out of proportion to circumstance.”
— Andrew Solomon
This is a family tradition; at the cousins’ table at last weekend’s wedding, we raised a toast to Lexapro and discussed having a candy bowl of all our meds on the coffee table of the rental house we’ll share at the next wedding. It’s funny, but it isn’t. Undiagnosed and untreated depression, manifested as alcoholism and other self-destructive behavior, blackens the family history like soot after a fire. Not everyone, not all the time, but too many, too often.
For me, it begins with a lack of resilience. My normal ability to adapt diminishes and diminishes until I can’t remember that I ever had it. Then, despite the pride I take in being self-aware, I start to judge my good life unworthy and tell myself that my unhappiness, my deep profound malaise that rips the joy out of each moment and shows me only the glaring photo-negative of each happy event, is actually the only sane and measured response to a terrible world and my own failures to strive against the terribleness. That’s the most insidious part, for me; my beautiful brain turns against me, whispering that I am correct in my assessment of my own awfulness and that I deserve to feel bereft, that my sadness is borne from clearly seeing the world and my own bottom-rung place in it. That the life that stretches before me will always be this bleak and hopeless, and that it’s my fault, and that I’m forever lost.
I mostly retain enough self-awareness to know how first-world self-pitying this sounds to anyone but me, but knowing that doesn’t combat my secret belief that it’s true.
My first episode of depression hit me during my fourth year of college. I was living by myself, and working two jobs, and so sad and overwhelmed that I began skipping classes to sleep and sleep, until I got so far behind that I saw no option but to quit. The rueful backstory here is that my parents had already yanked me out of my beloved city and school once, for financial reasons, and I had fought bitterly to return to the life I thought was rightfully mine. And then I ruined it. No one, myself included, ever thought my actions might be aberrant because I was ill; I was just a failure who fucked it all up.
“…a part of depression is that it touches cognition. That you are having a breakdown does not mean that your life isn’t a mess. If there are issues you have successfully skirted or avoided for years, they come cropping back up and stare you full in the face, and one aspect of depression is a deep knowledge that the comforting doctors who assure you that your judgment is bad are wrong. You are in touch with the real terribleness of your life. You can accept rationally that later, after the medication sets in, you will be better able to deal with the terribleness, but you will not be free of it. When you are depressed, the past and future are absorbed entirely by the present moment, as in the world of a three-year-old. You cannot remember a time when you felt better, at least not clearly; and you certainly cannot imagine a future time when you will feel better.”
— Andrew Solomon (The Noonday Demon: An Atlas of Depression)
I’ve tried and tried to write about the beginnings of this last trough, when my sister’s boyfriend was shot and nearly killed on our front porch in 2006. Well, I have succeeded in writing about it–the awful terror and despair of the days and weeks that surrounded the event, and my subsequent PTSD and years of broken sleep and terrible anger–but I’ve failed to write about it in a way that is useful. It’s simply too raw and ugly still, and there is no happy ending, only pain and permanent disability and broken hearts. The long-term effects led to my worst low ever, eventually, and to an appointment with a psychiatrist where I wept uncontrollably and confessed that I was afraid to leave my house and afraid to stay home alone and at the bitter end of my ability to conceal how bad things were. I was scared that I would die, that I was broken in a way that could never be put right.
Medicine was a revelation, a silver bullet that lifted me up and out in weeks. I’d gone so far as to get a prescription for anti-depressants before, but never taken them. Once I started, within six months I’d launched a new business, gotten a promotion, found a new place to live, and started dating again.
And then in January I quit. I felt good, I was falling in love, I was emphatically not a person who would be on meds for the rest of her life. I wanted to be the plucky heroine of my own story who’d had some lows and left them behind. I didn’t want my dates to see the pill bottles. I didn’t want to be damaged goods.
But I don’t want to be mired in black sadness and self-doubt any more either. I’ve met so many people lately who are doing amazing things with their lives, and I’ve lost so much time already. I write this to remind myself that I have more to offer the world than I’ve been able to give, that the drum of failure and hopelessness inside my head can change its beat. I get a flash every once in a while of what my life could mean, of what I could accomplish with the talents and abilities I have, and I need to hold on to those images and walk toward them. If I have to pause in my march each day to wash down some false pharmaceutical courage, it’s a small price to pay.
I have a bit of garden with herbs, tomatoes, peppers, things like that. Anyway, even though I love my garden, keeping up with the weeds is always something that I have a hard time doing. In any case, I let a few of the weeds grow, just to see them develop.
One of these is a particularly nasty specimen. It’s got spines just about everywhere. The edges of the leaves are all lined with needles. It has been growing to over six feet. When you pull them, they often break off, leaving a taproot which can be very difficult to remove. They are hollow, but the membrane that forms the stem is full of sticky white sap. In all they are none too pleasant.
This plant is growing right next to my porch where I usually sit of a morning, so it’s been really easy to watch the plant’s progress. I noticed that it popped several nice flowers, yet tiny, compared to the rest of it’s awkward growth. It made me think that this type of weed goes through so much work, risking daily that someone would remove it, being of little aesthetic value, to put forth these little blossoms, is something of a miracle.
It got me thinking further that perhaps there is wisdom in watching the weeds grow. The whole thing is an apt metaphor for all the trauma that people endure in life. That the ugly, prickly, nasty, and sticky things can bring beauty into the world. The condition is, we must not give up. The singular constant with inner work is that one must practice strict discipline. Difficulties cannot be overcome by giving in to the negative thought patterns which usually are the main source of difficulty. Like the weed, we must endure the dangers and difficulties in order to put forth our flowers.
We spent the weekend away in Seattle, our first real weekend away from Kellen. Although we missed him, it didn’t hurt to have a weekend away from the constant demanding needs of another human. The first night we were out to a nice dinner on the water, and another family came in with a whiny toddler, and I wanted to tell them that I had a No-toddler-within-50-feet-of-earshot rule while on vacation, but that didn’t seem fair! We have certainly caused our share of raucous at restaurants.
Our trip was mostly for my check-up with the Lyme doctor, and we decided to add on a couple days away. This was the view from our hotel room:
We watched cruise ships load and unload passengers as though it were a 24 hour cattle call. We made a mental note that if we ever went on a cruise, we’d arrive late and make sure we could afford to be a VIP.
On Friday, I had a PICC line put in. It’s a more permanent IV line that allows me to give myself daily meds that will hopefully penetrate the blood-brain barrier and kick these spirochetes to the ground. After I had it put in, I told Dan we needed to name it. When Dad was sick with cancer and we were being given a five year life expectancy (it’s been nine years thanks to a great clinical trial), we named his IV stand Freddie. Whenever it was time to walk around 4-south, one hand on the pole, the other closing his hospital gown, it gave us a momentary laugh to call for Freddie, the IV stand. I guess it personalizes medicine a little and makes it less scary or… medical.
Dan decided that we should name it Venus, the intravenous PICC line.
