So I go to my 6 month check up with the oncologist. He’s been my doctor for years. Nice guy who gets me. I am in the exam room when a strange doctor comes in and out of my mouth flies: “Who the hell are you?” SNAP! Dr. Young-Thing proceeds to tell me he is a resident (oh crap), and that he is going to examine me. Like a deer in headlights, I say, “Like hell you are…where is Dr. S?”
I thought for sure he was going to push some hidden button for non-compliant patients. But he sits down and pulls up my chart online. Dr I-Have-Tattoos-Older Than-You proceeds to overview my ENTIRE medical history with me. We are talking 7 years.
I’m thinking: Noooooo, it was 2003 superstar, now get me the real doctor and do your fancy learnin’ on someone else.
“I am going to examine you–is that okay?”
To which I say, “No, not really, but I will let you see the magic that is my mastectomy!”
Oh, I was in rare form. (undoubtedly precipitated by a phone call with my parents not ten minutes earlier that mimicked Terms of Endearment–where I was ready to go Shirley MacClain on my dad’s sorry ass—”Get My Mom the medicine NOW!)
Dr Young thing: “I am feeling for your spleen, don’t find it.”
Me: “Wow, you need to study more.”
Dr. YT is fairly flustered by this point and steps out–leaving me the keys to the kingdom– My personal files online, for me to read! AHHH yeaaaaa! You know I did, kids. I sat right down and scrolled through that puppy like I was on a shopping spree at eBay. Okay, you ready…Here it is…the undeniably recorded in history and for all of UCLA and the world at large to read as a description of me as written by a my oncologist:
“This is a pleasant lady, alert and oriented x4, in no acute distress”
A resounding endorsement for Zoloft if I have ever heard one.
By then my real doctor, the author of my epitaph, comes in. I tried really hard to be “pleasant, alert, oriented x4 (not sure what the highest possible score is, but I am optimistic). Now, he has passed several of my is-this-doctor-a-dipwad litmus tests and so he is familiar with my work as a pain in the ass patient! He does his thing, and I tell him they should tell folks before they send a resident in to a patient.
He asks, “Why?”
“Because I had cancer, have no boobs, and a right to choose who looks at the train wreck that I call a body, reads my history, and for that matter is in the same room with me.”
I think I lost points for “pleasant lady…”
But then I look up at Dr Young Thing, and see his name tag. “Dr. Krishna” to which I said, “man, not much pressure with that name, huh?” They both started laughing so I think I got some points back for pleasantness.
The best…and I did this for all of you…is when I left. I saw yet another Dr. Young Thing standing in the back office. He was beyond GORGEOUS! I said to the whole staff, “I will have him as my resident next time, thanks”. Could have heard a pin drop…
Love to all of you pleasant, alert, and oriented x4 women out there who are only occasionally in acute distress…
For the last five years, I’ve been lying to everyone; my parents, my children, social services, but most of all, myself.
My “courtship” with my husband lasted just three months before we became engaged. A year and a month after we met, I married him. I blindly ignored the warnings from my parents, my loved ones, and my own eyes. I thought I could change him. He would be better after the wedding, when all the stress was gone.
How wrong was I?
Within months of our marriage, what I saw scared me, but I decided to stay, thinking, “I can still change him. I can make him better!” I was so arrogant!
We had just conceived our first child when he sprained my arm. I told myself that it was an accident and justified it to everyone else.
His sister assaulted me when I was pregnant. He put me down in front of his parents. His mother assaulted me many times. They told me it was my fault. It was all my fault. Everything was always my fault.
What’s worse is that I genuinely believed them!
They threatened to take my baby away from me if I left. I was so scared of them, I stayed.
Now that WAS my fault! I should have left, but I didn’t!
He raped me the first time when our daughter was just five days old. I can still remember the searing agony that tore through my whole body as he did it! The tears and cuts burning with fire, my screams mingling with those of our daughter who was in the same room as us! That was my fault too apparently. After that, I had to have treatment for an erosion in the womb. That was also entirely my fault.
He was diagnosed with Borderline Personality Disorder. Now he had something else to justify his treatment of me. He “needed” round the clock care, an excuse to stop me from working.
He moved me away from my parents to an isolated town and wouldn’t let me visit them. My parents still blame me for that, as if I had a choice!
After our second child was born, the abuse got worse and worse. I confided in my midwife about him raping me when our daughter was five days old. She and all the other midwives we saw made a point of reminding him that sex wasn’t allowed before my six week check. Normally a woman is signed off by the midwife within days of giving birth. They visited me for over a month to protect me. As soon as my six week check was over, the rape began again. This time almost every night and sometimes while I was asleep.
I haven’t slept for almost two years! I began to crave the oblivion of deep sleep, but I couldn’t because of the fear of what he would do to me while I slept. Twice he raped me anally because I had a period. If he wasn’t doing that, he would say things like, “I was hoping to have sex with you, but I can’t because you’re bleeding,” as if it were somehow my fault for being a woman.
That wasn’t the end of the emotional abuse. There was always shouting and yelling. The police were called. Social services were called twice. He isolated me more and more from our friends and would only let me go out with one of the children at a time.
He’d lock me in the house and “forget” to leave my key behind. Sometimes, he would move my keys, and when I wasn’t looking, would put them somewhere I’d already looked. I thought I was going mad!
When our son was five months old, we went on holiday with his family. While we were there, he dragged me out of the room by my legs in front of our daughter and threw me out into the rain with no shoes and no coat. When he finally let me in half an hour later, I had to sit in my wet clothes feeding our son, while his mother lectured me on how the whole thing was my fault.
A week later, I was rushed into hospital with chest pains. Everyone noticed the bruises and three people made separate calls to social services on my behalf. They sent two police officers out that night to check on the children and me. It was so humiliating! He would never let me speak to men because as far as he was concerned, I was cheating on him with every single man I spoke to.
While I was visiting my parents, he kissed another woman. I wish I’d left him then! But I listened to his sob story about how he was really going to change this time! He did change …for the worse.
In November 2012, his brother assaulted me. I had to go to hospital and was on crutches for six weeks because my sciatic nerve had gone into spasm. I lied in the hospital and said that I’d fallen in the kitchen. I was so scared that my children would be taken from me this time.Do you know how much sex hurts when you have sciatica? Especially when it’s rape.
In May 2013, I was diagnosed with Fibromyalgia. The doctor believes there is a link between Fibromyalgia and Post Traumatic Stress Disorder. That was another excuse to isolate me further from everyone. I wasn’t allowed to do housework because I was “too ill.” I’d given up fighting him. I was so far into my shell, I couldn’t even care for our children.
He slowly crushed me to the point that I didn’t know any different.
We had a visit from our new health visitor. He told her that he was afraid of bathing our daughter because he was afraid of having sexual feelings for her. I was shocked and scared, but I didn’t know what to do! I should have left him there and then, but I couldn’t! I was paralyzed by five years of emotional, financial, and sexual abuse. He’d groomed me for this very eventuality so that I wouldn’t leave him!
The next day a social worker turned up with two police officers who seized all of our computer equipment. They told me that I needed to get the children out of the house. I replied that if they were going, I would be going too. They agreed.
My children have been protected by social services for three months now. I’ve ended the relationship and am seeking help for the abuse. Social services are being as helpful as they can be, but the health visitor thinks I should have left and should not have my children back. She thinks I’m a failure as a mother.
Maybe I am. I should have left. I should have sought help sooner. I have to live with that for the rest of my life. I obviously don’t deserve my children. Obviously love isn’t enough!
1. This Band right here? Y’all? Knock me over with a damn feather for how blown away I am by you. Your words, support, mad crazy love and humor are sitting at the tippy top of the stuff-I’m-grateful-for sundae. I love each and every one of you and there will never ever be way for me to express my love and gratitude. I wish I could make all of you chicken parm. Because my chicken parm rocks.
2. Anyone offended by the word fuck in all its versions and glory should probably stop reading right now. (I just re-read this post. Take this warning seriously.)
3. If you don’t mind, oh interwebbers, I’m probably going to be here a lot. I JUST started my own blog but this little issue I’ve got going on is a little personal and raw so this is stuff I’d like to keep here, where I feel safe and loved. Do you mind ?
OK. So the doctor’s office was essentially big, mega, fucking bullshit. After sitting in the waiting room for NINETY MOTHERFUCKING MINUTES, I finally see Dr. V. who does a little poking around my poor sore breasticles. You know, they should really have a class in medical school on the poker face. Like, I don’t need to see you looking startled. Oh, and I also don’t need you to ask me three times if there is any chance that my eggo is preggo. Dude, I am so fucking sure I’m not knocked up. I mean, if I am, hallelujah because not only does it explain the sore boobies, me and Chelle are about to be really, really rich. And I may even be able to make it on the Rachel Maddow show.
So he immediately starts writing out the referral for a diagnostic mammogram and sonogram and informs me that depending on what those show, we may need to do a biopsy. A biopsy? Doesn’t that involve a needle? In my boobie? Speaking of needles in my boobie, yes, my right nipple is pierced (that’s a good story, I will tell it to ya someday). He also looked at that in horror and informed me that I need to take it out. Which, I mean, I knew but that’s an added stress because it has been there for almost 15 years. It has never been taken out. When you go through 12 gauges of needle going IN, why the hell would you ever take it out? Plus its lots of fun going through medical detectors in deep south airports. So yeah, I’ve got to worry about that, too. Motherfucker. He also gives me a prescription for this massive antibiotic in case it is mastitis. He jokingly informs me that this is what he gives teenagers to treat their acne, so my skin will be great. Okay, first of all dickwad, my skin is already pretty fucking awesome. Secondly, I’m not here about bumps on my fucking FACE!!!
Anyway, referral for all the poking, prodding and boob squishing in hand, I leave the doc to walk over to the CVS to fill the prescription for the antibiotics. I am all about being proactive, so I decide to call the imaging center he has referred me to and see when I can get in because he said sometimes they are open on Saturdays. Full of the Win right ? Well, not really since I am informed that my motherfucking government employee insurance is not accepted there. Are you fucking kidding me? So now I’m pissed. I drop off the prescription and head over to Starbucks to wait for it and to call the motherfucking HMO. They inform me that even though it’s a DIAGNOSTIC mammogram, not a shits and giggles one, there are a very limited number of centers I can go to, all of them roughly in Indonesia. AND I am currently car-less (another sorta funny story).
Again, ARE YOU FUCKING KIDDING ME?
And, just because I was CLEARLY Attila the Hun in a past life and karma is making me its bitch, Monday is a holiday so I dont know if any of these places are open. I leave for fun-filled Kansas City, Missouri Wednesday morning for six days. So basically if I can’t get an appointment for Monday or Tuesday, I’m laying up in Kansas City, stressed the fuck out, licking BBQ sauce from my fingers, with sore boobies and a growing sense of dread and doom. For SIX MOTHERFUCKING DAYS.
So that’s where we are kids. I’m glad that I’m fairly consumed with a cocktail of detachment and general pissed off-ness so the panic and fear have to take a number for now. But ya know what? I am going to kick that lump’s ass, no matter what it is. I’m bigger than whatever it thinks it’s got. And I have one hell of a posse.
Hi, Gen here, again. In my last post, I gave you all the details about the cycles I’ve been through, the HUGE number of procedures I’ve had done to my body and my quest to have both my first and my next child. I wrote that post as I was looking down the barrel of another Frozen Embryo Transfer (FET).
We had miscarried with my last try. It had been a fresh cycle which meant tons of shots taken both in my belly, (self-administered) and then in my backside (given to me by Sam, my husband.).
What my last post didn’t describe to you was the emotional roller coaster the past 3 1/2 years have been.
The hormones are a bitch. I didn’t react well to the estrogen but I had no choice but to continue to self-administer this excruciating medication. It killed me. Every swallow, every suppository, every injection ate away at me. And broke me down.
With my first child, I had to take a break after several unsuccessful cycles.
I sought out massage and acupuncture. I increased my cardio work-outs. I did more yoga. And I found my sanity.
The next cycle we got pregnant and stayed pregnant. It was a dream come true.
When Chloe was 10 months old, we started again.
We blew through our frozen embryos. My doctor recommended that I be sterilized in order to protect future embryos from the caustic fluid in my fallopian tubes.
We then did another fresh cycle. And we were pregnant! But I wasn’t in a good place. Sam and I had been arguing. The money we had been shelling out to build our family was taking a toll on us. My emotional instability was wearing us both down.
When we went for our first ultrasound the doctor didn’t see a heart beat. He assured us it wasn’t unusual at this point, only 5weeks, 4days.
We went for another ultrasound. Heartbeat! But the baby wasn’t as large as it should be. And the damn nurse practitioner had NO bedside manner and did NOTHING to assure us of anything, did not tell us be prepared for this pregnancy to be rough. Nothing. She didn’t offer to answer questions, her face stern and uninviting.
I hated her.
A third ultrasound showed that the baby was growing well, so that was a positive. At 8 weeks, my doctor released me to my OBGYN.
Sigh of relief.
Surprisingly, I was able to get into to see my OB the next week. We joked, it was good to see each other again. I made my usual inappropriate jokes about a dildo cam.
We were both still laughing when the image of our baby came on the screen.
And there was no heartbeat.
I was in shock.
The D&C was scheduled four days later.
I didn’t cry for three weeks.
Three months later it was time to try again. I had started working out again. Sam and I had been working on the house together and had found a new sitter who relieved a TON of stress we’d been suffering.
Life was good.
As I started meds, a friend recommended that I write a post for Band Back Together.
It scared me. I was afraid to feel this all over again. I was afraid it would wreck the fragile self I was holding on to so tightly.
But I did it. I was careful, I didn’t fall apart and I didn’t write from my heart.
We did the implant, we tested ten days later and had good numbers, we were pregnant.
And the real waiting game began. The mental challenge was laid before me, “hold it together for another two weeks.” Two days ago I asked Aunt Becky if I could write this post because I was a neurotic mess.
I took a home pregnancy test and was such a nervous wreck I did it wrong and invalidated it. I took another. It was positive but took SO long and how could I trust it?
I was wigging out!
Sam kept telling me to calm down. He asked, “What is it going to take for you to relax? One good ultrasound? Two? Another trimester?”
I said I didn’t know. The last pregnancy ruined me.
Every once in a great while my job requires me to go out of town, fine and dandy… extra money and all that jazz. Today I had to go to Cedar Rapids. Good enough…Today I’m driving… listening to my favorite morning radio talk show, laughing my ass off… Then I look over I see a sign.
Iowa City 40 Miles.
I stop laughing.
My chest tightens.
I can’t breathe.
My mind turns off.
I no longer hear the banter of the D.J.
I’m back there.
It’s the 4th of July and I’m back to the back seat of my mom’s Kia. My step dad is driving, my younger brother next to me, my mom in front… 85 miles an hour. I see that sign… Iowa City 40 Miles… There is no way we can beat the helicopter…We are all blank. Dead inside. They have my bubba… My sweet baby brother. We speed up. Hoping there are no cops… maybe hoping there are so we can drive faster.
My mom’s phone rings. It’s the hospital… They need a recorded permission to take him to surgery… My mother speaks with the courage of a thousand Roman soldiers. I hear the wavering in her voice. She’s not crying though. She can’t… None of us can. The Doctor. or whoever was on the other end of the phone asks for the details… What happened? We don’t know… He fell of course… how do you not know???? Everybody must know by now….How far??? We don’t know 50 – 75 feet maybe further, maybe not as far… The Doctor tells her nothing.
But we’re closer now…. Iowa City 27 Miles…
My mother is pleading with the surgeon to please not take him back yet. Let us see him… Let her see him… Before the surgery… It’s brain surgery for crying out loud… Just 27 miles… We’re almost there just please wait another 27 miles. They can’t. They have to take him back now…My step-dad drives faster…. We’re not going to make it in time. We all know it’s a waste of energy to try to make it there before they have to take him back… We still drive faster.
Iowa City 6 Miles…. 6 MILES we’re only 6 miles away from where he is… From where the doctors are performing miracles.. We are too late to see him. He’s already in surgery. We know this… We still drive faster… We’re there… FINALLY we’re there… We can’t find the entrance… There’s no “Panicking People To the Left” sign… There should be… (remind me to put that in the suggestion box). We go in… We can’t see… Still blank… It smells like sick people. Like fake real flowers and wax… There is a player piano… (I will later find this very disturbing and somewhat humorous.) Elevator… up… Okay, waiting room… We sit… and wait. The lady at the desk is clearly ready for her shift to be over. She tells us the surgery will last up to 4 hours…
4 hours… OK… 4 hours… How do you function for 4 hours while an 11 year old is having brain surgery??? We pace… We get a Pepsi… It has no taste… I think we talked about who was going to drive what car when this was all over… I don’t think we knew if this was going to be all over. Then my husband was there. The one who saved him, the one who scaled almost 45 feet down a bluff without shoes to save him. Blood stained and covered in mosquito bites. Blood. So much blood….
Then over the P.A. system my mothers is called to the triage desk. He’s done… He’s in post-op… He’s okay… or at least will be.. They won’t be able to tell until the next day or so if he has any brain damage, but the outlook is good. Over 200 stitches. I’m terrified to see his face. His sweet cherubic face cannot be tarnished. Post-op… The second worse place in the entire world. (Only to be outdone by the children’s cancer ward in Peoria… story for another day.) It’s sterile and cold. Dead. It smells worse than the lobby. Like saline and metal. They try to make it pretty with florals and leafy shit. It doesn’t work..
They let us see him, my mom first. He doesn’t say anything. Then me… Bandages cover his head. His face is swollen. He has a drainage tube coming from his head. It’s so cold. I lean down to kiss him, his warmth radiates through my entire body. My sweet bubba. He says nothing… He can’t; the drugs are still doing their job. Then my husband… He comes out crying. My brother told him thank you… The first words he managed were to tell him thank you. That still radiates deep. It was then I knew he would be OK. My bubba…
It all came back to me. In a red hot flash… Like a ton of bricks…The day my little brother fell 45 feet from a look out point at a park in a nearby town, while at a family reunion picnic. Thank God for my husband who scaled the bluff to try to rescue him and for my son who alerted us and for the amazing rescue team who was able to get him out. It was straight out of a Rescue 911 episode. Except real… and not re-enacted for your viewing pleasure.
I wasn’t afraid to drive to Iowa City. In fact the thought never had crossed my mind that it would sneak up and haunt me. But it did. I don’t do that. I don’t freak out. I deal well with most things. I cope well with most things. I think what scared me most was how it took me off guard. Then it was over as quickly as it started. The rest of my drive was fairly uneventful. Maybe this was my mourning. Maybe this was my way of closure and coping. I really don’t know. But now… He sleeps. On my couch. I had to go pick him up… I had to be with him tonight.
His face isn’t tarnished, except for a small Harry Potter-esqe scar on his forehead. His back is still sensitive. He did suffer a compression fracture to his spine after all… But HE his fine. He is still my sweet amazing cocky little brother. He still gets in trouble at school and gets mouthy with my mom. We are so lucky to have him. I could not imagine my life with out him. I thank the good Lord every day for that. My sweet bubba.
Infertility affects us all differently with the exception of one thing: the pain.
This is her story:
FULL DISCLOSURE: I am not a Mommy Blogger. That is because I am not a Mommy. I would like to be a Mommy mind you, but alas, I am not.
Apparently, my female parts don’t get along with sperm as well as they should and they reject those little buggers every time my husband busts a nut. And yes, trust me, we’ve tried everything from WD-40 to Grandma’s old tyme Hold Yer Legs Up Over Your Head technique. My husband actually refers to this as “Mauding it” a term he coined after watching The Big Lebowski one too many times. For those of you who haven’t watched the film 70+ times, that’s Maude Lebowski’s (Julianne Moore) technique of rolling around on her back to let the semen deposit brew.
So anyway, it’s been two years of nut-busting and Mauding it and quite frankly, I’m starting to get a little bit depressed. Sure, we joke about it and try to make light of the issue, but the last time I got my period, my husband cried. As you can imagine, in my hormone-enhanced state, it turned into a dueling cryfest. It was worse than when we watched Sophie’s Choice last winter.
I should probably also mention that aside from our down-home techniques, we have gone through all the proper medical tests. According to my doctor and all the lab technicians we’ve met along the way, everything is working properly on both sides. My doctor eventually pronounced our situation as “unexplained infertility.” I sort of stared at her when she delivered that prognosis until I was finally able to locate my smart assedness and retorted “so is that like the proper medical way of saying you don’t have a clue?” My OB-GYN doesn’t have an ounce of humor in her and she said “it’s what we call it.” Thanks. She sent me back out into the streets knowing less than I did before I came to see her.
While we’re technically not in any rush, we are both 34, and well, time is a-ticking. I swear that all the comments my mom and in-laws make don’t bother me, but I would sort of like to get pregnant so I can just tell them to shut the hell up. My mom, especially. She totally blames me. Everybody does. Even my husband.
Carrying this burden is annoying and unfair. While I realize that there are people out there with problems far worse, it doesn’t change the fact that getting pregnant is theoretically a fairly simple thing to do. I frankly just don’t understand. I see crack whores in Hell’s Kitchen who are able to reproduce. Repeatedly. I only smoke crack when I drink. It’s just not fair. (note the sarcasm)
Seriously though, I take pre-natal vitamins and do yoga and do acupuncture for fertility. I eat healthy, I exercise. I’ve even given up lots of stuff like running and drinking wine and eating sugar. I guess I haven’t given up on hope though. But you know what, it’s a daily battle.
So I go to my 6 month check up with the 