by Band Back Together | May 6, 2016 | Abandonment, Abuse, Adult Children of Mentally Ill Parents, Anger, Child Abuse, Child Neglect, Grief, Loneliness, Mental Health, Parent Loss, Parenting, Sadness |
Mental Illnesses are prevalent in our world. They greatly affect not only the individual involved, but the people around them. In the month of April, we focus our spotlight on Mental Health, in order to heal together and break down stigmas.
We want your stories. How has your own, or someone else’s mental illness affected your life? How are you rising above stigmas?
Please share your stories with us during the month of April.
Mum,
I am supposed to be heartbroken.
…and I am, but not for the reasons other people think.
When you go – I will mourn the life that could have been – the life you could have had, the life WE could have had; not the car crash it was – leaving nothing but broken people and devastation in its wake.
I will be sad for the “what if” and the “what could have been,” not the actuality. I’m not sad for the reality.
The reality is that your passing will set me free – to a certain extent – from my ‘you’ prison. I’ll still have to continue contending with the prison I built for myself, I know that, but, the direct pain of you will be no more.
People try to share with me, which is sweet and kind but, it makes me squirm and knocks my very thin rope of sanity a little. They tell me about their own experiences of losing a parent or grandparent and how sad they were and how they are there for me. They share things with me which they think will make me feel better – and it would – in an alternate universe, where you weren’t so horrible, and I wasn’t so messed up.
I kind of lie, and say ’“Thank you,” and pretend that I’m cut up about it, like they are about their own relatives passing, and I lie, and I lie, and I lie. Once again, I’m the weird outsider watching the world be normal while I’m in my own little weirdness bubble. What else can I say to them?
“Thanks so much for your kind words and your thoughts and wishes but, please – don’t waste them. She never loved me, and in turn, I’ve built a wall 7 feet tall. I spent my whole life trying to make her love me and it never worked, no matter what I did. This is not a normal ‘daughter losing her mother’ thing, so please – don’t hurt yourself remembering something painful to you in order to help me. Please, please don’t. ”
Sometimes I think I should cry, to look normal.
I nearly did cry the other day. I couldn’t bear to touch your skin with mine so I held your hand through the blanket, and you squeezed it. You squeezed my hand.
It was like throwing a starving person one sugar-free mint. Something wonderful and warm and meaningful but, at the same time empty – and too little – and far too late.
You hang on. Wasting away. I can almost identify every bone in your body. You rarely speak. You rarely wake now. Your body is breaking down, and even the nurses are praying you pass before the really ugly stuff starts happening.
But, you hang on …and on …and on…
I’m sorry you never got the life you wanted mum. I’m sorry it was so hard. I’m sorry you struggled with your own mind from childhood, and I’m sorry you made such awful, terrible, harmful choices. I’m sorry you experienced horrific things, and I’m sorry no one was ever there to protect you.
But, I’m angry you left me. You abandoned me whilst still being in front of me. I’m angry, sad, lost and hurt that you ignored me and chose others so much more favorably over me. The things you did to me, and said to me, and put me through were unforgivable. Some of the things still make me gasp a bit when I remember them because they were so cold and hard and callous; designed to hurt me and humiliate me and separate me. How could a mother treat their child like that?
I guess I don’t want other people’s sympathy because it’s not right. I’m not grieving over the prospective loss of you because, I’ve already been grieving your loss.
…since forever.
Safe journey, Mum.
by Band Back Together | Oct 15, 2015 | Abuse, Adult Bullying, Adult Children of Narcissistic Parents, Bullying, Divorce, Emotional Abuse, Parent Loss |
A narcissistic parent can ruin a child’s life for years and years.
This is his story:
Where do I begin?
My mother didn’t just run the first 26 years of my life – she ruined them.
When I was five, I had a dog who mysteriously disappeared. The dog chased a would-be vandal over a fence. While the dog never touched the kid, the kid fell and hurt his shoulder. His parents threatened to sue. While my brothers and I were at school, while Dad was at work, Mom “settled out of court.”
She had a perfectly healthy dog, MY DOG, euthanized.
I was told he ran away while my brothers were told he was given to a chicken farmer. Dad was told the truth. I was told something different because I’d have asked to go to the chicken farm to see my dog.
Twenty years later, I was told the chicken farm story, twenty-five years later, I was FINALLY told the truth. Dad confessed because he was tired of lying for Mom.
What Dad didn’t know is that I paced the streets looking for my dog. I sat on my porch, just waiting for him to come home. I was just like that movie Hachi: A Dog’s Tale. A letter carrier came upon me on the porch, crying and was at a loss for words.
Life went on for Mom. She chatted on the phone, watched her soaps, did laundry, and ignored my pleas for my dog to “come home.” That dog was my friend.
The Golden Child, The Golden Boy, my abusive, bullying older brother would not allow anyone to be more successful at anything he’d failed at first. The Golden Boy was allowed to try out for Little League, but he didn’t like it. Therefore I was never allowed to try out for Little League. She wouldn’t let me try out for anything – even when Dad pushed for me to join the swim team.
As a teen, I was very shy, awkward around girls. There were a couple reasons: Mom insisted I buy her ugly car, Mom insisted I remain in Boy Scouts – and so it was. Lastly, The Golden Boy would go through my yearbook, find the girls I had crushes on, and ask them out first.
When I was fifteen, I took a date to my homecoming dance. She was my mother’s boss’s daughter who really wanted to go to that dance… just not with me. Her only way in was with a date. I got her in, she flirted with every guy there, and tells me, “Maybe I’ll look you up in a year or two.”
It was completely embarrassing.
Mom thought it was hysterical.
Four years later, I’m home for the summer from college. The Golden Boy commits road rage, and I save his sorry butt from a guy twice our combined sizes. How does he thank me? He starts dating the girl I’d brought to homecoming and bragging about it.
Mom finds it outrageously hilarious funny.
Once again, I was terribly hurt.
Mom informed The Golden Boy that my brother’s girlfriend wasn’t allowed in the house. She also tells me that people can change for the better. She told me about my uncle, her brother, who’d come home from the Navy only learn that his fiancee had married someone else. My uncle was devastated, married his first wife, had two kids, and ended up divorced. As his first fiancee did.
Mom told me they reconnected after he bailed her out of jail for prostitution. For 29 years, I believed this story. And I had failed romance after failed romance.
In college, The Golden One wanted me as a his roommate. Mom thought this was a great idea until I reminded her that I wouldn’t live under the same roof with him. Then he decided we needed to be in the same classes. I sat away from him, listening to comments about his abrasiveness from other students.
The only rebellious thing I ever did was to date my first wife. I knew the relationship wouldn’t work, but my self-esteem was shot, and I chose someone who was not his type – even though it meant I had to sacrifice my own happiness. My first wife and I were married and divorced in less than eight months.
At 26, I met my wife. When she and I got engaged, The Golden Boy had barely known his then-girlfriend, but decided that not only would he marry this woman, but that he should beat me to the alter. When it came to introduce our families, my fiancee and I settled on one weekend and made our plans. The Golden Boy then usurps my weekend so that his future in-laws are met first.
I told my wife we’d be on the back-burner. And we were.
Every time my wife and I would visit, the Golden Boy was there. See, he was was usually unemployed and wanted to use us to get a job. My mother played along until I put my foot down.
I have made up for my lost childhood. I will always have the kind of dog I want. I coached Little League and later high school baseball. When the high school team I coached won a game on a play I called, I remembered looking at my high school ring and saying, “Now I can wear this with pride.”
I went back to college, got my masters degree. I’ve had the same wonderful job for as many years as The Golden Boy has been fired from. It’s likely he’s been fired by more.
My mother died a few years ago, just after my daughter graduated. Dad was proudly telling me all about what my daughter accomplished when I interjected. I pointed out that I was denied those opportunities. I mentioned why and told Dad all about my uncle and aunt’s relationship.
Dad cut me off, “that isn’t true. Your mother made that up.” For 29 years I bought that story. I told my wife, “If she lied to me about this, what else did she lie about?”
My wife said it best, “You’re probably going to find out there were more lies.” I have – most were done to cater to The Golden Boy.
When I was visiting for Father’s Day, The Golden Boy tried to start something. I was on my parents phone – no one had cell phones back then – and he wanted to use the phone too. I told him I’d be off in five minutes, but he got nasty – he said he’d use the phone whenever he wanted to. My mother was on his side. I hit the roof. Mom started crying, and talking about taking everyone on a cruise for their fiftieth wedding anniversary.
They renewed their vows the day after their actual anniversary – my anniversary – to cater to The Golden Child. At dinner, my wife and I presented my parents with a special gift, a three-night stay at a bed and breakfast. Afterward, Mom called me to tell me that they’d had a blast. Years later, I find out that she’d given away the reservation to a family friend. No one, of course, is allowed to be better than The Golden Boy. And since he was broke and didn’t buy them a gift? She wanted nothing from me.
Later, I asked Dad about it – Dad knew nothing of it, which makes sense: Dad knew what Mom wanted him to know.
When Mom died, a spiteful Golden Boy showed his true colors. He and Dad never got along. He tried to have Dad institutionalized. It didn’t work. The Golden Boy was removed from the hospital by security.
The Golden Boy fought with Dad after Dad informed the hospital staff to not release his protected health information to my brother. What does this Golden Child do for revenge?
He makes a false report to DCF, claiming Dad is broke, beat his wife, has dementia, and is living off cat food.
DCF investigated while Dad was home grieving. A follow-up investigation took place the day Mom died. I was less-than-friendly to DCF. I told them if they had any questions about Dad’d mental capacity, to bring them to me. She couldn’t tell me who’d ordered the investigation, to which I replied, “I can take three guesses, and the first two don’t count.”
I made Dad change the locks on the house, and I became his power of attorney. I made sure Dad didn’t disinherit The Golden Child because there are grandchildren involved. He’s not getting a key to the house, though.
Now The Golden Boy has a job, which I always fill the words “for now,” since he always gets fired. Dad is trying to tell me how much better his personality is since getting this job. A person’s employment status does not change someone’s personality. Becoming a parent, yes.
Speaking of children, my mother GAVE BACK many pictures I gave her and Dad of my daughter under the guise of “There isn’t enough room.” There are ROOMS OF PICTURES of just his child, one of SEVEN GRANDCHILDREN! Dad won’t do anything there because he wants to keep the house as Mom left it.
The golden boy learned how to lie from my mother. He told a lie about my uncle that caused me to never be allowed to see that uncle the last 8 years of his life. This was another of Mom’s brothers, and he used to take us to a rifle range. The golden boy convinced Mom I was irresponsible and couldn’t be trusted at a range. Mom never let me see that uncle the last 8 years of his life before he was tragically killed.
This uncle left a rifle to the golden boy and my parents. When I asked why it was such a big deal with taking me to a range, my mother said, “Why do you take stock in what your brother says?” I responded, “I didn’t. You did.” Mom then said they were afraid I was holding a grudge against someone and was planning something rash.
I have poured a lot out here regarding the lies I was told. Now the golden boy is trying to charm his way back into Dad’s good graces. I’ve told Dad this has nothing to do with past grudges, or should I say all of his bullying. It has to do with the fact the golden boy broke any and all trust with me when my mother died. There is nothing he can do to ever earn my trust because he will never have my trust again.
The sad part is my father forgets his own sister was the golden child with my grandmother, and she and her husband stole from my grandmother, which set Dad off. I told Dad, “I trust my brother the same way you trusted your sister.” That woke Dad up. I even asked Dad what he plans to do when this golden boy asks for a key to his house. Dad has assured me that won’t happen, but to be on the safe side if I have to deal with my father’s estate, the first thing I will do is get the locks on that house changed again.
I feel better for sharing this, and I welcome your responses.
Sincerely,
Cleansed
by Band Back Together | Sep 15, 2015 | Blended Families, Cancer and Neoplasia, Caregiver, Chronic Illness, Coping With Cancer, Grief, Help For Grief And Grieving, How To Help A Friend With Chronic Illness, Loss, Parent Loss |
Part I Here
My memories of the time between when Mom was admitted and when she left for Houston are jumbled. I know with Mom gone, running the house largely fell to me. I would get me (age 8), my sister (age 3-4) and my Dad up in the mornings and make breakfast. I remember having burns on my thighs from wearing my night shirt while cooking bacon in the morning and the grease would pop and splatter me. I remember learning how to do laundry and having to have a step stool so I could climb on top of the washing machine so that I could reach the soap. I remember sitting on the sofa attempting to hand-sew a hole in my underwear closed.
Through out the summer we spent a lot of time with various family members and random people from our church who volunteered to look after my sister and I for a day. That was probably the hardest. Every house had different rules. One house I sat until I was near starved b/c I’d been taught it wasn’t polite to ask people for food. When the woman found out she was like “oh honey you just have to speak up or better yet go serve yourself!” Then the next house I got in trouble for trying to do just that. Some houses they’d tell me I could eat anything I wanted and others I was told that beggars can’t be choosers and I should eat ONLY what they offered me and eat every last bit.
Then there was the boredom. Some people had kids who would share their toys. Others did not – either the kids were grown or the kids wouldn’t share. Or they’d want to watch a movie I wasn’t interested in or what not. The sweetest woman, I have no idea what her name was or I’d write her a big fat thank you note all these years later, discovered I liked to draw and she bought me a BIG thick fat loony tunes coloring book and a box of 64 crayons. I swear that book saved my life with all those days of house hopping.
I also discovered reading. But mostly I discovered how to fake reading…. Nobody would tell me exactly what was up with my Mom. They made this big show of how Momma would do 6 weeks of chemo therapy (counted it off on the calendar with us and everything) and then she’d be all better and could come home. That was a lie. I don’t know if it was intentional or just misinformed but either way when the info changed they didn’t tell me directly.
And so I’d pretend to read a book and listen while Daddy talked on the phone. I even remember him saying “Oh nah, its okay, she’s reading a book. She’s not listening” and he would talk about chemotherapy and radiation and bone marrow transplants. I didn’t understand what those words were exactly but I caught the gist of it. Daddy seemed to underestimate my vocabulary and comprehension back then. Where as my Mom always just talked to me like I was an adult and I’d just have to stop her occasionally to have her define things.
It was funny, at one point they put me in class with one other little boy and some type of teacher there at the hospital where she tried to give us the “My Mommy has Cancer” after school special or some such thing. I was so excited to finally have a person to ask all my questions to. I immediately started asking about chemo etc and she about freaked. I think she would have put her hands over the ears of the other kid if she could.
As it was class was HASTILY broken up – me with one teacher where I asked all my questions and the little boy went with some other person to get the kiddie version.
Our days went something like this: we’d get dropped of with whoever was watching us that day, Dad would go to work, then he’d come and pick us up, we’d go visit Mom in the hospital. My sister and I would wear masks b/c the docs explained that we had cooties and would make Momma sick (oddly enough she never once got sick from my sister and I but she caught a dozen things from Dad). And then later in the evening we’d head back home and I’d lay across the foot of my Dad’s bed pretending to read Black Beauty while he talked on the phone.
In retrospect, Momma mostly looked good at the time. I remember she lost some weight and when the chemo got started a friend of hers who was a beautician came the hospital and gave her a hair cut. My Mom had had the 80′s big curly shoulder length hair and her friend cut it off to a ultra short pixie cut. They explained that this was better since the chemo would probably make her hair fall out and it wouldn’t make such a mess this way. I remember being shocked but liking it.
I missed being able to give my Momma kisses but at least we could scramble up into her bed and cuddle with her and get hugs. We’d bring her pictures we’d drawn to decorate her hospital room. And we always loved to see when other people would bring her balloons. She couldn’t have flowers so if somebody forgot and sent her them they’d hold them out at the nurses station and we’d take them home with us at the end of the night. I liked that part because I loved fresh flowers but I sure wished I could share them with Mommy.
Then they began to talk in earnest of transplants. Momma needed a donor and a hospital. At the time there were only 3 hospitals in the country that did the transplant – one in Tucson, one in Seattle and one in Houston. At the time we lived in Phoenix and so Daddy asked the doctor, “Well, Tucson is closest… whats the difference between the them?” The doctor replied that, “Well, right now, Tucson has about a 13% success rate, Seattle is running 20% and Houston is doing 50%”. My Dad stared at him for a minute and went “Ya know Houston sounds GREAT to me.”
I remember the search for a donor. They started by testing all of my Mom’s brothers. Adam and Sam went first and neither was a match. They’d wanted to avoid putting Uncle Mike through the stress because he had a heart condition, but he agreed to be tested. By this point, I’d caught on that if Mommy didn’t have a bone marrow transplant that it was going to be bad. I wanted them to test me. I didn’t care if it hurt. I was willing to do anything to save my Mommy.
Momma was dead set against my even being tested. She said it hurt too much and she didn’t want me to go through that. I was set and ready to be stubborn and fight long and hard for this if I had to but thankfully it turned out my Uncle Mike was a match.
So now we had a donor and a hospital there was just one more major roadblock: money. The insurance company was refusing to pay for treatment. There was some sort of government assistance available but they didn’t want to pay either and MD Anderson wouldn’t let us come unless they got a down payment that was either 30k or 3k I don’t remember. I was 8 at the time but I remember it was wayyyy more money than we had. My parents had always been on the verge of broke though they worked hard to provide for us but the medical bills quickly piled up and wiped out whatever was left of their finances.
And so, I don’t know who all organized it but they had a big benefit dinner to try to raise money for my Mom. A local grocery store donated steaks, family friends provided entertainment, and Kodak (my Dad was a professional photographer at the time) donated door prizes. I know the tickets were like 100 bucks each. We raised a ton of money with that dinner (I can’t remember exactly how much) but it was still far short (less than half if I recall) of what we needed.
Unbeknownst to me at the time, my father’s childhood best friend, an attorney, sent a letter to the hospital and the government and explained that if they continued to delay my mother’s treatment while they quibbled over the money and she died that we would sue them for everything that the mother of two small children was worth.
The day after the benefit dinner, we got word from the hospital that they’d let us come after all. We only needed to pay less than half the previous amount in advance. I don’t remember the numbers but I remember it was almost the exact amount we’d raised at the dinner the night before. It was a miracle.
A small army of sisters from church came to the house and packed up everything. My sister and I went to live with my grandparents while Mom and Dad went to Houston.
The day they left we went to the hospital early. Mom was in street clothes for the first time in months. They wheeled her in a wheel chair out of the hospital and to a waiting limo. I was so excited, I’d never been in a limo before. Daddy explained that taxis had too many cooties and they wanted all of us to be able to ride together so they’d gotten a limo. I remember my Mom and Dad piling into a little leer jet complete with a small medical team to monitor Mom through out the trip.
I hugged my Mother goodbye for what I was scared might be the last time. I had know idea if I would ever see her again. And then I stood next to my Grandma with her arms wrapped around me and I sobbed my little heart out as I watched the plane back up and take off.
Part III Here
by Band Back Together | Aug 6, 2015 | Anger, Breakups, Grief, Guilt, Help For Grief And Grieving, Loss, Parent Loss, Sadness, Suicide, Survivor Guilt |
My ex husband killed himself two months ago, and I’m not coping.
He has left behind a four year old daughter, and as we are still married, I am his next of kin.
I left him 18 months ago, he seemed happy and he seemed to get on with his life.
Since leaving him, I have been dating someone new.
I found my ex hanging from his loft. Since then, he is almost all I can think about.
My partner has been great, amazing, incredible, but I really cannot shake a feeling of guilt, and sadness, wondering why he did it, and how if I hadn’t left him, he would still be alive.
It’s breaking my heart, and it’s breaking my soul. Every time I feel strong again, the slightest thing sends me right back to square one. I saw him hours before he died. Why didn’t I notice any signs or see anything wrong? He seemed happy and normal and himself.
I am so cross with him. How could he do this to our baby? How could he not see that she adores him and hangs off his every word?
He will never know how many regrets I have. He will never know he is so missed. I don’t know how to rebuild my life, as a 20-something widow, single mum of a grieving four year old.
by Band Back Together | Jul 29, 2015 | Child Abuse, Child Sexual Abuse, Fear, Parent Loss |
When I was a little kid, my father would hit me. My mum didn’t care and didn’t want to listen when I tried talking to her about it. I was growing up, and around the age of 11, it became worse. He started touching me inappropriately, and it was terrifying. I couldn’t tell anyone because I was scared that they would judge me. A year or 2 later, my parents separated. I never wanted to see my dad again, I hated him so much. After a while, I told myself that I would go and see him when I would turn 18.
June 2014, I was 17 years old, and I was in the middle of my exams when I got a call. It was someone telling me about my real dad, who had been really sick for over a year and he was in hospital. I told myself I HAD to go, but I was so scared. I asked someone close to me to come with me and I went to see him. I spent hours in the hospital every day, sitting by his side and talking to him. I have no idea if he was able to hear me, but I still tried. It was so painful. That week, on June 20th, he passed away.
I have been telling myself that I should have visited him before, when he was still in good health. The only memories I have from him now are when he was sick, in a hospital bed.
I still think about him a lot and somehow I have forgiven him for what he did to me. I try to think about the good times with him, when I was very small. He inspired me to start playing music, to start singing, and he taught me that people should be forgiven, people deserve a second chance before it’s too late.
